Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

Good morning all.

 

Gaby - I did the shave thing in 2 stages.  I went to my hairdresser at first and asked for a really short pixie cut. I had that for almost 2 weeks then my hair started to really thin out so I got my hubby to do a number 2 all over with his clippers.  That lasted only about a week, then I started to get bald patches, so I basically rubbed my head over the sink & the rest of it pretty much came out.  

I had my stepdaughter & my best friend there, but had a no tears rule because I was trying to be positive about it & to be honest I handled it a lot better that I thought I would.  I had long curls which I loved, but being bald is not the worst part of the situation we find ourselves in!

If using clippers you do have different settings, so you can choose the longest one to start with or go to the hairdresser & try the pixie cut.  Pinterest is great to check out cropped cuts.

You can do this - be strong, be positive 💪💕

 

Well all went well yesterday.  My oncologist has agreed that I can complete my chemo before Christmas.  I was due to have my last session just before New Year, but she’s happy to knock the last one on the head.  Then had my counselling session for the genetic testing, followed by a walk round the Christmas markets which was lovely but really cold & damp.  Today i’m feeling exhausted so it’s going to be a quiet one as it’s chemo again tomorrow.  Double dose of Paclitaxel & Carboplatin.  What joys!

 

hope everyone is well xx

 

 

 

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Good morning all you lovely ladies,

My bloods were OK, so am now hooked up for premeds and chemo. What a relief 😌.

I'm loosing loads of hair now so am wondering whether to brave the shave 😔. I don't actually find the idea of being bald that horrific, but I am worried how to cope with the actual process. Do I go to my hairdresser, who I'm sure will be lovely, but then I will have to deal with the other people in the salon, both staff and customers - that thought really bothers me somehow. Or do I ask someone in my family to help me with this at home, but that might be rather upsetting for them (I'm thinking of my dad, who would do it I'm sure, but the thought of him getting upset makes me feel so sad). How did those of you who have gone for the shave deal with this? Also, can you set the shaver to a setting that leaves the hair very short but doesn't actually chop it all off? I've never shaved any of my hair, so feel completely ignorant 😁.

Hope everyone's week is going reasonably well.

Gx
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Ha ha thanks GabyF ... had me worried there for a minute 😉 Hope all goes well tomorrow 💪🏻❤️

Hope you continue SE free ALittlePixie ... the tiredness and aching hit me a few days after but I’m hopefully over the worst now 🤞
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Evening you lovely lot
Well, so far my T hasn't made me nauseous today, just very very fatigued. I can cope with that so far. It's so nice not feeling so grim, especially after the horrid FEC SEs I had for 2 weeks every time. Is this the calm before the storm?!?!
Hi GabyF, no I'm not a professional jewellery maker but I do love it immensely and I do sell at craft fairs etc. I love anything creative with my hands. I'm actually an antique upholstery apprentice, but I haven't been able to go since I got BC in June. It's just too manual and hard so I can't wait to get back to it once all the chemo, radiotherapy is done etc.
Hope everyone is keeping as well as possible xxx
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

LIsa - HAPPY BIRTHDAY for yesterday! I hope you were spoilt rotten by your loved ones! How lovely to be going to the Lake District. Hopefully the weather will be kind and allow you to go for some nice walks and enjoy the stunning scenery. 

 

I'm just "talking" about courses and the OU, Lisa! Not actualy doing them, that would be far to organised! I had a look at the OU website yesterday and there weren't any short courses that I fancied - anyway, I kind of panicked, when I read all the stuff about essays and deadlines! I am really not sure that I want to commit to that sort of thing right now.Smiley LOL I did find a one-day jewellery-making course in London which sounded fun and rather less serious. May book myself on to that in Jan/Feb, once I know how things go on the new regime of EC. Little Pixie:are you a professional jewellery maker or doing it as a hobby? I've always fancied doing something hands-on and creative, so maybe now is the time to give it a go - for one day at least, which is about as much time as I can concentrate for I think!

 

Christmas - well, you all inspired me, so today I ordered some presents online and went shopping for my kids in our local art shop. Both of them love drawing, painting etc. and I was quite sucessful in getting them lots of little interesting bits to keep them busy. Need to get more stuff, especially as I have several December birthdays to sort out as well, but at least I can now fill the next few days with shopping, wrapping, and then, yes, Christmas cards - hurray, I've got something to do! I don't usually get my cards off until the day before Christmas, sometimes even after Christmas, but this year I should manage to get all of them out on time.

 

Bloods and Picc Line care this morning. My Picc Line has got a bit blocked again (fluids go in, but no blood comes out Smiley Frustrated), so they injected something that should clear the line by tomorrow. THis shouldn't cause any problems for the chemo tomorrow, just a bit of a nuisance today.

 

Gx

 

 

Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Ooh I'm jealous of the Christmas market in Manchester Jacqs. Hope the bloods and oncologist goes well hunny.
I'll wave back from my bed Lisa 😉
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Ahh not far at all ALittlePixie ... will give you a wave on my way past 👋😊

Thanks Jacqs. Good luck with your bloods tomorrow. Love a Christmas Market .. especially the mulled cider 😋 .... hope you have a fab day xx
Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

Happy Birthday Lisa.  Enjoy your trip to Newby Bridge.  Sounds like the perfect way to escape for a few days.

 

Can’t agree more about the boredom.  I’ve already bought most of my presents for Christmas and today started to write out Christmas cards.  Don’t know what I’m going to do once we do get into December 🙃.

 

At least tomorrow is a busy day.  Bloods 1st thing in the morning followed by an appointment with my oncologist.  Then in the afternoon, I have my therapy session for genetic testing and as i’ll be in Manchester for the afternoon, we’re going to have a little wander around the Christmas markets before heading home.  

 

Hope everyone has a good week xx

Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

You'll have a fab time in Newly Bridge. It's beautiful and you'll only be down the road from me. I'm up on the West Coast of Cumbria!
I have the same problem hiding pressies. We're only in a small cottage and there's not much storage....at the moment pressies are all piled in bags in the corner of my bedroom. I made a list of what I've bought and wrapped cos my chemo brain is terrible!!!! 😂😂😂
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Thanks everyone 🥂 Going to Newby Bridge with hubby and our 3 girls ... it’s just what I need at the moment.

So far I’m doing ok with my first T. First few days I felt surprisingly fine but for last few days I have been aching everywhere and have a sore throat. Not enough to keep me in bed tho and I’m still eating plenty 😂

I actually feel quite organised this Christmas for the first time ever! Just need to remember where I am hiding everything and what I’ve bought 🤪 My chemo brain is definitely getting worse!

Hope you all have a lovely night ❤️ Xx
Member
Posts: 37
Registered: ‎31-07-2018

Re: September 2018 Chemo Starters.

Lisa T 

 💐 🎈Happy Birthday 🎂 💐 

It would be lovely if you get the chance to get away to such a beautiful part of the world for a couple of days! 

Fresh air, log fires, gorgeous views, maybe a pub lunch or two? What a treat! Enjoy your day! 

 

 

Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

I'm the same about Christmas Aley. My daughter is 10 and we all love the Christmas vibe. I actually wrapped lots of pressies on Saturday....I'm usually a Christmas Eve wrapper 😂
PulaPula,that's brill news about your SEs for the FEC. Hope it lasts for you.
I'm hoping I can get my mojo back and start making jewellery again. I love wire wrapping, but I've just been where I can't really concentrate on anything. Chemo brain is ridiculous at the mo! 😂
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

HAPPY BIRTHDAY LISA!!!!!!
Im so pleased your mammogram was good news and nothing to worry about last week. Yay!
Whereabouts in the Lakes are you hoping to get away to?
Hope everyone else is good. Boredom is crappy isn't it. I had my first T today and the nurse told me to pack a hospital bag just in case. It's made me think I shouldn't be attempting to go out in case I catch anything. More boredom! Saying that tho, my chest is killing me (steroids I think) and I'm absolutely fatigued as hell so currently in bed!
The T itself was OK tho. I'm just waiting for the onslaught of SEs. How is everyone else coping with the T so far?
Sorry to hear about the funeral Jacqs 😘
Glad the meeting with ur surgeon went well MamaTony. Keeping pushing for what you want. I know it's such a lot to think about tho.
Hi to everyone else and hope you're all keeping well. Lots of love xxxxxx
Member
Posts: 43
Registered: ‎25-09-2018

Re: September 2018 Chemo Starters.

Happy Birthday Lisa-T!
Hello ladies!
Man Alive the boredom!!! Now that I’m sort of over the trauma of the initial diagnosis, yes I totally agree bored beyond belief!! I sort of ‘write off’ the first few days but them make myself do things I like even if it’s as silly as going for a cup of tea and a walk around the nearest Waitrose!! Sounds daft! But I’m actually enjoying doing little things that make me happy!! With Christmas around the corner I’m focusing on planning to make it exciting and memorable for my little boy..he’s 4 so this is really the first year he gets it and is actually excited about it..have a great week all 💋
Member
Posts: 49
Registered: ‎25-07-2018

Re: September 2018 Chemo Starters.

Hi all, I have been lurking but not posted for a while as I feel a bit of a fraud as my third FEC has been so painless (after the initial SEs). I have energy, and eyebrows still and everyone keeps telling me how well I look. I’m just hoping the final FEC on thurs is the same, as my second FEC was miserable.

I have my “look good feel better” session tomorrow which I’m really looking forward to.

I’m also planning to start Pilates again in December and maybe some sessions on the exercise bike at home. I’ve also put weight on so my jeans are getting too tight!

I also feel like life is put on hold at the moment as it’s hard to plan. Friends are booking ski holidays etc. Once I know my treatment timeline I hope to have a weekend away with hubby and plan a summer hol with kids. But I expect surgery in jan, then recovery, then more chemo or radio so it could still be a way off.

Anyway, hope you are managing your SEs and I am interested to know how people find “T” as I might need that after my surgery (or possibly before).
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Hi Galligirl / GabyF,

It is SOOO boring, I agree with you both. I hate that everything is just on hold at the moment and I can’t plan much at all!

So impressed you are both looking at doing courses / gym classes etc .. I need to find a hobby! OU course sounds like a fantastic plan ... I can’t seem to think past the end of the day/week at the moment. Keep meaning to have a long over due sort out but I never quite seem to make a start 🙄

I’d love to go back to the old me without all this worry all the time! It’s my birthday today too - another reminder of how much has changed in the last 5 months. Hoping to get away to the Lake District for a few days on Friday tho 🤞

GabyF - Maggies is definitely worth a trip. I did the Look Good Feel Better session - had a lovely day out and got lots of goodies too. A bit of pampering always helps.

Hope all went ok today with your first T ALittlePixie 💪🏻🥊

Big hugs ❤️ Lisa xx
Member
Posts: 37
Registered: ‎31-07-2018

Re: September 2018 Chemo Starters.

Afternoon GabyF 

A relief to know you are not alone...it helps I think.

i would call myself a sort of ‘get on and do it’ sort of person...like a little project on the go whether around the house, holiday shopping, horses and animals...Now I have these empty days and I don’t seem to have the motivation or energy to do anything constructive. I am not really a big social person, I don’t have hoards visiting or popping in ...that’s not really me but I do look forward to my son coming home in the afternoon! 

I thought about learning something new and, like you felt I couldn’t commit. Maybe the OU would be good, they do short courses don’t they? 

I cant make decisions either...it’s like that little bit of sparkle has gone for the time being....I can’t concentrate, I can’t make decisions and I am frustrated by this person that isn’t really me...I did look at a photo the other day...taken weeks before my diagnosis....tarted up going out to a party (rare night out!) I don’t recognise that person anymore...

music sounds a good idea! Get that 🎹 practice in....is there a certain piece of music you could set yourself as a little challenge? 

The gym is just a good way of getting me out of the house...I just do low key cycling, cross training, walking...a few weights to try and ease the tightness across my chest after mx. Classes are a step too far for me...hehehehe....I would have to book those 🤣.

A new pet is an excellent idea...we got a puppy at the end of last year ( our old lab had been pts a couple of years before) my son drove me mad begging and I gave in and bought a Vizsla - she has been amazing company for me over the last 6 months, always got a smile on her face and a warm welcome home. I also lost my horse just after my diagnosis....very sudden...so having the dog has given me a reason to get up and out on these dark mornings...

 

Here’s to the little positive things that just about keep us sane in this ever changing new world we are in. GGx

 

 

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Morning Galligirl,

 

SOOO glad to hear I'm not the only one who is bored!! Smiley Very Happy Fairly recently some journalist who's got cancer (can't remember his name) also moaned that having cancer is really boring, and he is defintively right! It's probably partly because we didn't exactly choose this career break and it's not of course particularly cheerful. Also, even when I do plan something, like you, I lose focus. I have a few things that I thought I would get stuck in to, like digging around in my family history (I trained as a historian years ago, so it's kind of interesting to go back to this type of research); and maybe exploring some new skills, like writing or jewellery making, but now that the SEs have become so unpredictable, I haven't wanted to sign up for any courses etc, in case I can't make it on that pearticular day. My husband suggested doing an Open University course and I dismissed that instantly, but actually, thinking about it now, maybe it's worth looking in to? I don't know - I just can't seem to make decisions! Smiley LOL I used to play the piano a lot when I was young, so this morning, after many years of not really touching our piano, I had a 20 minute practice, which oddly enough cheered me up a bit - I wasn't as awful as I thought I would be! I think I'll try to be organised an build a bit of piano practice in to my day (let's see how long I stick with this!). I am also thinking of visiting a Maggies Centre, as I have heard so many positive things about this. Sadly, mine nearest one still involves an hour's worth of travelling, but hopefully it wil be worth it.

 

I'm impressed you've joined a gym - have you managed to go to regular classes? My Pilates teacher comes to our home, as my husband joins in with me and his work hours are so irregular, that we decided this would be the best option. Can't wriggle out of the class that way either, as I have no excuse about not feeling up to walking/travelling to a gym etc.

 

Our darling cat died last summer (the day before I got my cancer diagnosis, so that was a lovely week!) and we have just decided to get a kitten in January. My kids are so excited (my 17-year old daughter burst in to tears when I suggested this!) and I am looking forward to having a bit of company. So there is something positive to look forward to. Cat Very Happy

 

Gx

 

 

Member
Posts: 37
Registered: ‎31-07-2018

Re: September 2018 Chemo Starters.

GabyF - that sums up how I feel...I’m bored too...and not sure what to do about it. I struggle to even read a book, I seem to lack focus. It’s good to know I’m not going mad by myself 😁. 

I have joined a gym to give me something to ‘go’ to...and hopefully help me keep going through the winter...

Enjoy your Pilates 💪 it is soooo good for you and I hope you breathing improves too. GG 

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi Galligirl/everyone,

 

This whole thing is a bit of a rollercoaster of emotions and energy levels, and I am constantly having to remind myself of the endgoal to help me deal with it all. This week I thought I'd have more energy, as it's been drug-free. However, Friday and Saturday I had a bad stomach ache, not sure why, and today the breathlessness has come back with a vengeance.Smiley SadOn the up-side, my taste is fully restored and I have been enjoying my food, which has been such a nice change. My mood has also been up and down, more down than up today. I guess essentially I'm bored - I've got things I can do, but I feel like I'm just filling time. I've had so many years of balancing fulltime employment and kids (and moaning about it! Smiley Wink) and I'm just not used to having to having all this spare time. It's difficult to plan specific activities, as I am never quite sure whether I'm going to be up to it on the day, but I think I need to do more of that nevertheless - I guess I can always change my plans, if I'm feeling a bit rubbish.

 

Another thing that has been troubling me is that I seem to be gaining weight. After my initial diagnosis I lost almost 4 kilos within a week and athough that was obviously due to the shock, I was actually quite pleased with the slimmer me. Then I gradually regained that weight, which was fine, but now my weight seems to be steadily creeping beyond my average.Smiley FrustratedI don't know if that's drug-induced, or if I'm just eating too much! Smiley LOLAt least I've got a Pilates class coming up tomorrow evening, so I can try to work off some of the excess!

 

Hope everyone had a good weekend.

 

Gx