21-11-2018 11:45 AM
Good morning all.
Gaby - I did the shave thing in 2 stages. I went to my hairdresser at first and asked for a really short pixie cut. I had that for almost 2 weeks then my hair started to really thin out so I got my hubby to do a number 2 all over with his clippers. That lasted only about a week, then I started to get bald patches, so I basically rubbed my head over the sink & the rest of it pretty much came out.
I had my stepdaughter & my best friend there, but had a no tears rule because I was trying to be positive about it & to be honest I handled it a lot better that I thought I would. I had long curls which I loved, but being bald is not the worst part of the situation we find ourselves in!
If using clippers you do have different settings, so you can choose the longest one to start with or go to the hairdresser & try the pixie cut. Pinterest is great to check out cropped cuts.
You can do this - be strong, be positive 💪💕
Well all went well yesterday. My oncologist has agreed that I can complete my chemo before Christmas. I was due to have my last session just before New Year, but she’s happy to knock the last one on the head. Then had my counselling session for the genetic testing, followed by a walk round the Christmas markets which was lovely but really cold & damp. Today i’m feeling exhausted so it’s going to be a quiet one as it’s chemo again tomorrow. Double dose of Paclitaxel & Carboplatin. What joys!
hope everyone is well xx
21-11-2018 10:18 AM
20-11-2018 07:30 PM
20-11-2018 05:15 PM
20-11-2018 03:51 PM
LIsa - HAPPY BIRTHDAY for yesterday! I hope you were spoilt rotten by your loved ones! How lovely to be going to the Lake District. Hopefully the weather will be kind and allow you to go for some nice walks and enjoy the stunning scenery.
I'm just "talking" about courses and the OU, Lisa! Not actualy doing them, that would be far to organised! I had a look at the OU website yesterday and there weren't any short courses that I fancied - anyway, I kind of panicked, when I read all the stuff about essays and deadlines! I am really not sure that I want to commit to that sort of thing right now. I did find a one-day jewellery-making course in London which sounded fun and rather less serious. May book myself on to that in Jan/Feb, once I know how things go on the new regime of EC. Little Pixie:are you a professional jewellery maker or doing it as a hobby? I've always fancied doing something hands-on and creative, so maybe now is the time to give it a go - for one day at least, which is about as much time as I can concentrate for I think!
Christmas - well, you all inspired me, so today I ordered some presents online and went shopping for my kids in our local art shop. Both of them love drawing, painting etc. and I was quite sucessful in getting them lots of little interesting bits to keep them busy. Need to get more stuff, especially as I have several December birthdays to sort out as well, but at least I can now fill the next few days with shopping, wrapping, and then, yes, Christmas cards - hurray, I've got something to do! I don't usually get my cards off until the day before Christmas, sometimes even after Christmas, but this year I should manage to get all of them out on time.
Bloods and Picc Line care this morning. My Picc Line has got a bit blocked again (fluids go in, but no blood comes out ), so they injected something that should clear the line by tomorrow. THis shouldn't cause any problems for the chemo tomorrow, just a bit of a nuisance today.
19-11-2018 08:34 PM
19-11-2018 08:00 PM
Happy Birthday Lisa. Enjoy your trip to Newby Bridge. Sounds like the perfect way to escape for a few days.
Can’t agree more about the boredom. I’ve already bought most of my presents for Christmas and today started to write out Christmas cards. Don’t know what I’m going to do once we do get into December 🙃.
At least tomorrow is a busy day. Bloods 1st thing in the morning followed by an appointment with my oncologist. Then in the afternoon, I have my therapy session for genetic testing and as i’ll be in Manchester for the afternoon, we’re going to have a little wander around the Christmas markets before heading home.
Hope everyone has a good week xx
19-11-2018 07:43 PM
19-11-2018 06:28 PM
19-11-2018 05:15 PM
💐 🎈Happy Birthday 🎂 💐
It would be lovely if you get the chance to get away to such a beautiful part of the world for a couple of days!
Fresh air, log fires, gorgeous views, maybe a pub lunch or two? What a treat! Enjoy your day!
19-11-2018 05:11 PM
19-11-2018 05:05 PM
19-11-2018 05:00 PM
19-11-2018 04:59 PM
19-11-2018 04:02 PM
19-11-2018 03:12 PM
A relief to know you are not alone...it helps I think.
i would call myself a sort of ‘get on and do it’ sort of person...like a little project on the go whether around the house, holiday shopping, horses and animals...Now I have these empty days and I don’t seem to have the motivation or energy to do anything constructive. I am not really a big social person, I don’t have hoards visiting or popping in ...that’s not really me but I do look forward to my son coming home in the afternoon!
I thought about learning something new and, like you felt I couldn’t commit. Maybe the OU would be good, they do short courses don’t they?
I cant make decisions either...it’s like that little bit of sparkle has gone for the time being....I can’t concentrate, I can’t make decisions and I am frustrated by this person that isn’t really me...I did look at a photo the other day...taken weeks before my diagnosis....tarted up going out to a party (rare night out!) I don’t recognise that person anymore...
music sounds a good idea! Get that 🎹 practice in....is there a certain piece of music you could set yourself as a little challenge?
The gym is just a good way of getting me out of the house...I just do low key cycling, cross training, walking...a few weights to try and ease the tightness across my chest after mx. Classes are a step too far for me...hehehehe....I would have to book those 🤣.
A new pet is an excellent idea...we got a puppy at the end of last year ( our old lab had been pts a couple of years before) my son drove me mad begging and I gave in and bought a Vizsla - she has been amazing company for me over the last 6 months, always got a smile on her face and a warm welcome home. I also lost my horse just after my diagnosis....very sudden...so having the dog has given me a reason to get up and out on these dark mornings...
Here’s to the little positive things that just about keep us sane in this ever changing new world we are in. GGx
19-11-2018 10:13 AM
SOOO glad to hear I'm not the only one who is bored!! Fairly recently some journalist who's got cancer (can't remember his name) also moaned that having cancer is really boring, and he is defintively right! It's probably partly because we didn't exactly choose this career break and it's not of course particularly cheerful. Also, even when I do plan something, like you, I lose focus. I have a few things that I thought I would get stuck in to, like digging around in my family history (I trained as a historian years ago, so it's kind of interesting to go back to this type of research); and maybe exploring some new skills, like writing or jewellery making, but now that the SEs have become so unpredictable, I haven't wanted to sign up for any courses etc, in case I can't make it on that pearticular day. My husband suggested doing an Open University course and I dismissed that instantly, but actually, thinking about it now, maybe it's worth looking in to? I don't know - I just can't seem to make decisions! I used to play the piano a lot when I was young, so this morning, after many years of not really touching our piano, I had a 20 minute practice, which oddly enough cheered me up a bit - I wasn't as awful as I thought I would be! I think I'll try to be organised an build a bit of piano practice in to my day (let's see how long I stick with this!). I am also thinking of visiting a Maggies Centre, as I have heard so many positive things about this. Sadly, mine nearest one still involves an hour's worth of travelling, but hopefully it wil be worth it.
I'm impressed you've joined a gym - have you managed to go to regular classes? My Pilates teacher comes to our home, as my husband joins in with me and his work hours are so irregular, that we decided this would be the best option. Can't wriggle out of the class that way either, as I have no excuse about not feeling up to walking/travelling to a gym etc.
Our darling cat died last summer (the day before I got my cancer diagnosis, so that was a lovely week!) and we have just decided to get a kitten in January. My kids are so excited (my 17-year old daughter burst in to tears when I suggested this!) and I am looking forward to having a bit of company. So there is something positive to look forward to.
19-11-2018 08:11 AM
GabyF - that sums up how I feel...I’m bored too...and not sure what to do about it. I struggle to even read a book, I seem to lack focus. It’s good to know I’m not going mad by myself 😁.
I have joined a gym to give me something to ‘go’ to...and hopefully help me keep going through the winter...
Enjoy your Pilates 💪 it is soooo good for you and I hope you breathing improves too. GG
18-11-2018 09:02 PM
This whole thing is a bit of a rollercoaster of emotions and energy levels, and I am constantly having to remind myself of the endgoal to help me deal with it all. This week I thought I'd have more energy, as it's been drug-free. However, Friday and Saturday I had a bad stomach ache, not sure why, and today the breathlessness has come back with a vengeance.On the up-side, my taste is fully restored and I have been enjoying my food, which has been such a nice change. My mood has also been up and down, more down than up today. I guess essentially I'm bored - I've got things I can do, but I feel like I'm just filling time. I've had so many years of balancing fulltime employment and kids (and moaning about it! ) and I'm just not used to having to having all this spare time. It's difficult to plan specific activities, as I am never quite sure whether I'm going to be up to it on the day, but I think I need to do more of that nevertheless - I guess I can always change my plans, if I'm feeling a bit rubbish.
Another thing that has been troubling me is that I seem to be gaining weight. After my initial diagnosis I lost almost 4 kilos within a week and athough that was obviously due to the shock, I was actually quite pleased with the slimmer me. Then I gradually regained that weight, which was fine, but now my weight seems to be steadily creeping beyond my average.I don't know if that's drug-induced, or if I'm just eating too much! At least I've got a Pilates class coming up tomorrow evening, so I can try to work off some of the excess!
Hope everyone had a good weekend.