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September 2018 Chemo Starters.

Member

Re: September 2018 Chemo Starters.

Hi Ladies

Sorry haven't been on for a while.

Had my 2nd FEC 8 days ago and have been so wiped out by it. Thankfully no sickness as they gave me IV anti sickness this time because of how sick I was on 1st.

But fatigue is unbelievable, I never imagined it would be this bad.

Yesterday I was on day 7 and still feel so ill so phoned velindre hospital (which is my cancer hospital) and spoke to sister on treatment line and she got in touch with my GP and got me an appointment.

Turns out I've got a chest infection, so now on antibiotics and steroids.

Hope you are all well everyone.

Love to you all

Kath xxx
Member

Re: September 2018 Chemo Starters.

Hi Kip
Thanks. Anyone manage the odd beer or glass of wine?
Kip
Member

Re: September 2018 Chemo Starters.

Hi Jacqs and Aley, regarding the mouth issues.  I had a terrible bout of oral thrush, mouth ulcers and generally yuckiness when on my first T cycle.  It also had a greenish tinge to it and was slimy and really sore and thickly coated.  The inside of my cheeks had ulcers and I kept biting on them.  I did end up in hospital that cycle as my neuts were very low 0.1 I think.  I had a high temperature which was what prompted a call to the chemo hotline.   I had some blood tests whilst in hospital and a chest xray to asses whether I had an infection but I didn't just low neuts.  I was kept in for 2 days and given IV antibiotics.  I also then got the ilfrastrim injections after each chemo to help keep the neuts up.   I was put on flucozonale for the mouth thrush, 1 a day, and also used Nystatin (which I got from GP) for my tongue.   Every cycle after that I got the flucozonale to take home with my usual chemo drugs and started taking it at a soon as my mouth started to feel sore, about day 4 and took it for 10 days regardless aand although my mouth still lost taste etc it never got as bad again.   I also mixed up a solution of cooled boiled water with salt in and gargled with it after every time I ate and also inbetween, I think it did help.  I was also told to eat pineapple as this cuts through the nastiness, I never actually tried it and still have tins of pineapple in the cupboard.  A lady at chemo told me to freeze chunks of fresh pineapple on cocktail sticks and suck on those to help with the mouth.  

Hope something helps with the mouth... it really was horrible.. but like everything else it does pass and now almost 3 weeks post chemo I have taste buds and a pink tongue!

 

Kip

Member

Re: September 2018 Chemo Starters.

Relieved to have my 3rd & final FEC today. Left with awful taste in my mouth. Nurse suggested eating pineapple, but would appreciate any other suggestions.  

Aley - i’ve got a coating on my tongue with a greenish tinge to it.  I mentioned it whilst having my chemo session today but nurse didn’t seem overly interested - didn’t even look at it.  Wondered if this is what’s causing such bad taste in my mouth.  X

Member

Re: September 2018 Chemo Starters.

Hi Kip
Good to hear from you. Saw my gp yesterday who noticed I had oral thrush and wanted me to have a blood test immediately. The chemo unit called later on to say my immunity was very low..I’m due my second FEC next Friday, blood test again Tuesday, so I’m hoping I’m ok for it. Does anyone know how they decide whether you’re having 3 FEC or 4?
Kip
Member

Re: September 2018 Chemo Starters.

Hi ladies,

Glad to see you are all getting along well, and finding those good days amongst the SEs.   As for hair, mine started growing towards end of FEC, and now I'm finished chemo (almost 3 weeks ago) I have a full covering of white hair, its quite soft and downy like baby hair still but its hair at least.  It started growing on the T part of chemo.  Leg hair and elsewhere not doing much and the eyelashes and eyebrows not coming in yet, but they didn't fall out until 2nd T so last to go.

Kip

xx

Member

Re: September 2018 Chemo Starters.

Luckily my neutrophils edged up to 1 from 0.99 (whatever that means) and so I could go ahead with the chemo today, which was a huge relief. Apparently the Carboplatin, which I had last week, has this effect. I'm also low on Sodium, which seems odd, but apparently it's nothing to worry about. I did ask whether I should be eating anything in particular to help bring that up again, but just got a funny look from the nurse. Oh, and here's a tip, maybe: another lady was saying that she is going to try putting olive oil in her nose to combat dryness - the nurse responded by asking if she wanted balsamic vinegar as well. Smiley TongueMight be worth trying though (the olive oil, not the vinegar!).

 

Gx

Member

Re: September 2018 Chemo Starters.

Morning everyone,

I'm waiting in the chemo unit for a re-run of my bloods. Low neutrophils, bother. I'm actually feeling better than I have done for days, so this is doubly annoying, but hopefully they will have stabilised so I can go ahead with today's chemo.

Glad you're feeling better too, Galligirl. It's such a relief to get back to to something like normal and be able to do things. Have a lovely day!

Gx
Member

Re: September 2018 Chemo Starters.

It is amazing how one day can be so different to the next! Yesterday, Day 12 after 1st FEC, felt rubbish...a bingo card of SEs I was wiped out, felt crap, nauseous, dodgy tum, aching muscles....woke up this morning and feel like a different person 😁. Thank goodness! Sending good wishes to all those suffering today...it will pass...just hang in there and be kind to yourself.

Member

Re: September 2018 Chemo Starters.

Hi Aley.  I would agree on both points.  I’ve been told I look younger in my wig & I too loved my short crop.

I’ve heard a few people say they have some re-growth after the last FEC, buts it’s quite fluffy.

Xx

ktk
Member

Re: September 2018 Chemo Starters.

You start to get a light fuzz by the end of FEC. I have now finished chemo last week and I am more self conscious about the chemo fuzz than I was about my shaved head! Tend to wear a beanie or scarf out, but mainly because it is too cold to go bare!! A few hairs beginning to reappear on arms and legs too. Kx
Member

Re: September 2018 Chemo Starters.

Hi Jacqs
Great to hear you’ve had compliments! My wig fitter and a lot of other people have said I look better in it than my own hair 🤣
Also my extreme short hair cut prior to my mass hair loss looks very cool! I think this is the way to go when it starts growing again!! Does hair start growing back when FEC bit is over does anyone know?
Member

Re: September 2018 Chemo Starters.

Hi Everyone

Hope you are all doing well.  

Well after a weeks rest, i’m due to have my 3rd Fec on Thursday & I’ve already started with sleepless nights.  Can’t help wondering what’s going to happen with this one.

On a more positive note I got stopped yesterday whilst out shopping with my hubby by someone complimenting me on my lovely grey hair. She said her & her colleagues were debating wether or not to go grey.  I didn’t have the heart to tell her that it was a wig although it is the same colour as my hair was prior to losing it, so was able to chat to her about going grey originally.  Made me feel more confident about the wearing the wig though.

have a good evening all xx

 

ktk
Member

Re: September 2018 Chemo Starters.

Well done MamaTony. Lots of positive vibes there!! The nice thing about FEC is that it follows a pattern so you can enjoy the second two weeks. Glad you are liking your wig. Lots of love. Kxxx
Member

Re: September 2018 Chemo Starters.

Hi Everyone,

I have had 2 rounds of FEC and third due on 18th Oct.
First week after chemo is rough for me with nausea then I feel fine. Have some oral issues with a mouth ulcer at the moment but is manageable.

Hair loss is just such a bummer🙁 even although you think you are prepared it just hits you mentally when you are staring at big clumps of your lovely hair🤦🏻‍♀️
I did cold capping but sadly didn’t work for me have only about 5% left. However a friend is is going through the same treatment as me at the same time is doing really well with her hair. So cold capping definitely works for some👏🏻

I am quite confident now wearing my wig and feel when I have it on I feel like the ‘old me’ and my teenagers think it looks great 👍People keep commenting how well I am looking and overall feel much better on chemo for the 2 weeks out of three in my cycle. Fingers crossed continues like this🤞

Best wishes to everyone 💐
Member

Re: September 2018 Chemo Starters.

Hello ladies

Can I interest any of you in a game to help us combat chemo brain????? It's on this forum in the coffee lounge /chat and games section and is called word association again. It's a little bit of light relief!

I think this link might take you to it
https://forum.breastcancercare.org.uk/t5/Chat-and-games/WORD-ASSOCIATION-AGAIN/td-p/159964

Hope to see you over there: Let's get that gray matter pumping 😁🙌😵

Sue xx
Member

Re: September 2018 Chemo Starters.

Hi all, I keep thinking my hair will start to fall out but no sign yet (the odd hair when I wash/rub my head), and its time for my second FEC on Thursday. My scalp is so sore though on the top. I do like my short crop that I had done last week but I guess once it starts coming out I'll be shaving it off. My hairdresser said she would come round to the house to shave it if/when I need her to although we do have clippers for the kids hair so I could do it myself... My mouth is not as sore now, so thats good news. Just got to gear myself up for the next round. Wishing you all well with your ongoing treatment x
ktk
Member

Re: September 2018 Chemo Starters.

Aley it is always worth ringing the BCN just to put your mind at rest. They don’t mind how often you ring!! Kx
Member

Re: September 2018 Chemo Starters.

Hi Gaby, sorry bout hair loss, I too had a shock yesterday when I started losing it in clumps. I thought I was ready for it with a ‘bring it on’ sort of attitude but ended up a mess (mentally) yesterday when it actually did. Anyway a good friend came with me to the hairdresser today to get a very radical pre totally losing it cut! My armpit is swollen and painful, I’m having chemo first, surgery next, has anyone done it this way round and experienced pain & swelling? Should I mention it to BCN? Oh they did ‘tag’ the 1 lymph node they say it’s in and the tumour-hope the metal tag isn’t swirling around in my armpit!!
Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

We all seem to have gone a bit quiet over the weekend. Hope everyone is ok?! I've had a bit of a rough week (at least by my standards). Too little sleep, lurching between diahorrea and constipation, slight constant nausea, food and drinks taste horrible etc. I had my second dose of Carboplatin last Wednesday and am blaming that; the weekly Paclitaxel doesn't seem to cause any serious problems as yet. Have been feeling rather low on energy as a result and so now am also feeling bored, without being able to rouse myself to do any sort of interesting activity.

 

I'm now also loosing my hair everywhere - don't mind it on my legs, quite pleased with that actually, but the other "bits" will take some getting used to. Have signed up for a headscarf workshop on Friday at my Macmillan Cetre - if I'm going to loose my hair, I might as well try to get some style in there somehow!

 

Right now the chemo seems a bit of a long slog. My lovely husband is keen to book a holiday for next year to give us something positive to look forward to, but I am so uncertain about the timing of my surgery etc that I am holding off for now. It's nice to dream about having a break somehwere nice next year though.

 

Gx

ktk
Member

Re: September 2018 Chemo Starters.

Gaby you should start to feel better once the steroids wear off. Don’t worry about the sleepless nights. I have watched some interesting programmes and love Say Yes to the dress!!! It is ok to nap in the day too. I found with FEC after the first few days I was back to normal 🤪 Kx
ktk
Member

Re: September 2018 Chemo Starters.

Galligirl, you could try hay fever tabs to help with your drippy nose. Also good if you get any itching or irritation anywhere. They give you Piriton with Docetaxol. Kxx
Member

Re: September 2018 Chemo Starters.

Morning everyone,

 

Yes, drippy nose and nosebleeds are definitely on my list of SE too. My consultant told me it's very common.

 

I've now had four bad nights in a row Smiley Frustrateddue mainly I think to the steriod, but am on my last batch of anti-nausea pills today, so will hopefuy start sleeping better. And despite the cold-capping I am now starting to loose lots of hair. I washed my hair this morning and tons came out. I'm still clinging on to the hope that it may just be thinning, but I've got a hairdresser appointment in 10 days and should know by then if it's a matter to cutting thinned hair shorter or going for the shave!

 

I've downloaded the Headspace app and am actually finding this quite useful. Only on the basic intro so far, but it's quite calming and each section is only 3 minutes, so very doable.

 

Gx

 

 

Member

Re: September 2018 Chemo Starters.

Hello those with dry noses!

Have you tried a nasal spray? I went through a period at the end of the last winter where my nose was very dry causing it to bleed occasionally. This was pre diagnosis so nothing to do with chemo - I think it was just spending so much time indoors with the heating on and air conditioning in the office. The pharmacist recommended Sterimar (I'm sure there will be lots of other brands too). Sterimar is basically a water spray to put up your nose - I found it helped. I've got one on standby for this winter too!

Hope it helps, Sue x
Member

Re: September 2018 Chemo Starters.

Thanks kip...I thought it might be about the nasal hairs...I will add it to my thankfully short list of SE!
ktk
Member

Re: September 2018 Chemo Starters.

Hi Galligirl. Drippy nose is a common SE. You have lost your nasal hair so nothing to soak up the drip!!

Pulapula, glad your dentist was able to help. I got mouth ulcers round 1 and used Iglu. Ask your onc or gp for Difflam mouthwash and or regular warm water salt washes help.

Have a good day ladies 😁Kx
Kip
Member

Re: September 2018 Chemo Starters.

Hi galligirl, i had constantly running nose with Fec, it may be to do with losing your nasal hair!  I then got very dry nose during T to the point of discomfort.  Also very watery eyes, due to no eyelashes and an effect of the T chemo..  just another joy of chemo unfortunately.  If it keeps you awake though perhaps check with chemo hotline, they may be able to help.  Also watch out for nosebleeds, when mine got very dry i would get sudden short nosebleeds!

Kip

Member

Re: September 2018 Chemo Starters.

Good morning all! 9 days after 1st Fec and was wondering if anyone else had ‘nasal drip’ down the back of your throat. I seem to get it when sleeping and have to sit up and clear my throat. Soz quite hard to explain! It could just be me and nothing to do with chemo....

 

cheers GG

Member

Re: September 2018 Chemo Starters.

I phoned the hospital who advised a trip to the dentist. As a result, I've got some strong fluoride toothpaste on prescription which should hopefully help calm down the inflamation in my gums. No sign of ulcers or infection so that's good. If the problem persists I may need to look into a mouth guard - I have a big overbite, so my bottom teeth digging into my top gums making them sore. Not normally a problem but i guess the gums are a bit softer with the chemo.

 

Hope everyone else is OK today.

ktk
Member

Re: September 2018 Chemo Starters.

Good plan. I have an Oral B electric brush with a small round head. I can change the head for a soft one. My dentist was great when I had a check up. Well aware of what she could and could not do, but also keen to ensure my mouth was as healthy as poss. Your chemo helpline will tell you what to do but don’t suffer!! Kx
Member

Re: September 2018 Chemo Starters.

Hi ktk, I didn’t have time to visit the dentist before my chemo started although my last checkup was Feb and last hygienist visit was end of June so not that long ago. I was told at my first chemo to cancel all routine appointments and to let them know before I go for any emergency appointments as they need to speak to the dentist first. I think I’ll call the hospital today as i can feel discomfort all the time and it’s getting worse. Don’t want to wait til Tuesday. I think I’ll get a soft brush too.
ktk
Member

Re: September 2018 Chemo Starters.

Hi Pulapula. Have you been to the dentist for a check up? The don’t recommend the hygienist but you should get your teeth and jaw checked. If you are going into bisphosphonate you will have to get the all clear from the dentist too (only if you are post menaupause). My dentist recommended I changed to a soft brush but to continue with the EasyPik and floss a couple of times a week. Hope that helps. Kx
Member

Re: September 2018 Chemo Starters.

Hi Pulapula and Kip,

 

Thanks for all the reassurance, just what I needed! Heart

 

I've been to one of the pampering sessions run by Look Good Feel Better. It was a lovely morning. Lots of brilliant freebees (my 17 year daughter was rather jealous, so am guarding my lovely stash of goddies!). Everyone looked a bit grey and apprehensive when we started and by the end we all had a lovely (fake Smiley Very Happy) glow and were smiling, laughing and chatting. Definitively worth going to.

 

Had a sweet card with a very unexpected offer of help from someone I didn't think of as a particularly close friend today. That sort of thing really makes my day. Sometime, in all this awful mess, I actually feel very fortunate - it seems to bring out the best in (most) people! Also had a nice snooze after lunch, so am feeling much more energised. Just put up a new shower basket that required a lot of strength from my arms - my workout for today! Smiley Wink

 

Gaby x

Member

Re: September 2018 Chemo Starters.

Hi ladies. I’ve been told to expect dark days as well as good days but if you find your dark days are too many then definitely speak to someone. I’m lucky to have both a cancer support centre at the hospital and a Macmillan centre nearby so it’s worth seeing what is available locally. I’m signed up for one of the pampering sessions too which were recommended on here.

I am also TN and I said I was worried about that to my oncologist who said that it just means they can focus the treatment plan on what will work for me, so no different to other types. I must say I’m clinging onto the comment I got when I went for my marker insertion and the sonographer said that chemo would definitely work on my tumour. I don’t think she’d say that if she hadn’t had experience of seeing similar.

Has anyone else had any dental issues? My teeth are really sensitive (2 weeks after first FEC). No bleeding or mouth/gym sores but every bite is uncomfortable. It feels like it does after a hygienist visit when she’s been poking around and I hope it’s only temporary...I’m back at clinic on tues so I can mention it then. Other than that, I have avoided most SEs.
Kip
Member

Re: September 2018 Chemo Starters.

Hi all, just wanted to pop in and say, don't worry we all have those horrible thoughts and worries at times, especially during the night when you lay awake worrying.   I've had those kind of comments and worrying looks from people, even others in the chemo unit telling my their horror stories.. not helpful but it happens.  Try to remember every case is different, everyone reacts differently and we all worry!   Its normal, but talk to your nurses, use the apps, come on here and let it all out, it really helps.   I've spent hours trying to work out whether the look on my oncologist's face was good or not!  Daft really when I think about it but during the night it was a biggie!   AVOID GOOGLE too, its so tempting but lots of it is out of date and its just scaremongering.  My nurse said only go on Breast Cancer Care or MacMillan website.

Somebody asked about arm pain after chemo.  I have had a sore forearm which pulls when I move it for a few days after each chemo, my nurse said its normal along as it isn't red or burning or swollen.  Keep an eye on it and ask chemo hotline if you are worried.   Lots of the ladies have PICC lines though and they seem to be really good for avoiding the constant issues with veins, so don't worry if you are offered one of those.

 

I hope you are all managing to get some SE free days, make some nice plans and do something fun...

Take care

Kip

xx

 

 

Member

Re: September 2018 Chemo Starters.

Good Morning everyone,

 

Galligirl: welcome to this really lovely space - it's a great place to off load and get support and advice.

 

Thanks to you and ktk for the reminder about Headspace. I've heard of it but it completely slipped my mind as a possible tool to deal with anxiety etc. Will defintively download it today and give it a go. And yes, I'm definitely staying away from google. Usually I like to be well-informed and will google minor ailments, but with the cancer I've made a very conscious decision to trust my BC team, to ask them for information, and to avoid the often conflicting, ill-informed and scarry stories that I might find on the internet. Plus there is of course this lovely forum - I had never joined anything sort of group "thing" online before, I'm not even on facebook (due to work restrictions), but the support everyone gives here really has proved invaluable.

 

Jaqs: 2am - that's terrible! I hope you get a chance to rest during the day. I woke up at 4am, this time due to the steriods I think. Then started thinking about work - which I have actually had to give up due to the treatment, so why I start worrying about work issues now I don't know. Except, as you say thoughts and feelings are much harder to manage in the middle of the night. I hope your chest feels better this morning.

 

I've got a long list of things to do in the house today, so that should keep my mind occupied. I'm also signing up for a couple of interesting workshops on writing and jewellery making in the next couple of months, so using this time to explore a few new things. And yes, STAYING POSITIVE! Smiley WinkSmiley Happy

 

Have a lovely day, everyone!

 

Gx

Member

Re: September 2018 Chemo Starters.

First post, a week into FEC no.1...(for the second time!).I have found all your comments really helpful - just never been brave enough to post...but seeing some struggling with anxiety I just wanted to say...I have always had anxiety but nothing like I have experienced in the last couple of months. I did go to my gp and am on some medication to help with the ‘panicky’ feelings. It has really helped just calm the noise in my head. I have tried to do mindfulness- but struggled....although I have just started using the headspace app and found it much easier to use....just need to keep practicing! It’s worth a go....

 

ktk
Member

Re: September 2018 Chemo Starters.

Hi ladies. There is a free meditation app called Headspace which is good. Also contact your local cancer charity who can arrange for you to talk to someone and get you in a more positive mind set.

Just remember that this is all doable. The TN diagnosis is just that, and steers the oncologist towards your treatment regime. Don’t focus on the diagnosis and do not google!!!

Be strong, keep family and friends close and make the most of the extra time you have with them when you are not working. Try to organise things to do. FEC SEs will be over in a few days and should leave you with two good weeks to enjoy before the next cycle. Lots of love Kxxx
Member

Re: September 2018 Chemo Starters.

Hi Gaby,

Its currently 2am & i’m not able to sleep.  Woke up with chest pain which is a result of the blood clot on my lungs, but it always feels so much worse in the middle of the night.  I’ve had a few nights with horrible thoughts   We’ve just got to keep positive & tell ourselves that we will get through this.  

Someone suggested meditation & deep breathing to calm the mind - i’m struggling with this but maybe worth a try?

Hope you sleep well tonight. Jacqs x

Member

Re: September 2018 Chemo Starters.

Hi Lisa-T,

I’m the same with pain in my arm where I had my second Fec last week.

I spoke to my chemo nurse and advised to place a hot water bag on it ...which I’m doing just now to relieve the pain, also paracetamol. She said next chemo they would use my other arm which I am happy enough with.
Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

I had a rotten night - nose blocked and am getting neosebleeds occasionaly. But the worst thing was that I had awful nightmares about only having a few days to live etc. I'll spare you the details, but it was horrible. During the day I can push the really horrid fears and thoughts away, but can't control my mind during the night of course. I think these particular dreams were triggered by a couple of well-intentioned, but slightly worrying comments from my oncologist ("that's really good the tumour doesn't hurt anymore, especially as it was so large") and a fellow patient ("Oh dear" - response to my TN diagnosis, followed by worried look). They were nothing really, but somehow difficult to put aside and clearly my brain needed to digest them a bit more at night Smiley SadDoes anyone here have similar problems? Any tips on how to deal with negative thoughts?!

 

Hoping for a better night after spending all day in in the chemo ward (my drugs hadn't arrived, so I had to wait around for a couple of hours). Smiley Frustrated

 

Sleep well everyone!

 

Gx

Member

Re: September 2018 Chemo Starters.

Thanks I can do this ... I will ask again. My nurse never mentioned an alternative - just told me it was normal! Thanks 💕 Lisa
ktk
Member

Re: September 2018 Chemo Starters.

Hi Pickles. Time to get the shaver out I am afraid! Brave the Shave 😀
Member

Re: September 2018 Chemo Starters.

Hi Lisa-T,

I have finished my chemo but did have a similar experience. The first treatment I described the tightness as discomfort but after the second it progressed to feel like toothache. Subsequently I had a Groshong line inserted and had my chemo FEC administered through this which was much more comfortable.

My, advice would be to speak to your ontology nurse again sooner rather than later.

Take care,

I can do this.

Member

Re: September 2018 Chemo Starters.

Had first session 12 days ago and first few days was sick but after that just felt fatigued. Have woke up this morning and scalp is tender and sore to touch is this normal?
Member

Re: September 2018 Chemo Starters.

Hi ladies,

Has anyone had any vein pain in their treatment arm - my veins feel really tight and are painful when I stretch my arm out. I noticed it after the first FEC but seems to be getting worse after the 2nd one.

I mentioned to the oncology nurse and she seemed to think it was normal but if anyone has any tips to relieve the pain that would be great.

Thanks 💕 xx
Member

Re: September 2018 Chemo Starters.

Hi GabyF,

Thanks so much for that info it’s been really useful. Wishing us both the best of luck on our results🤞🤞 sure we are due some luck💕

Member

Re: September 2018 Chemo Starters.

Hi MamaTony,

 

The genetics test is very straightforward. It's basically just a bloodtest, and they only need one small tube. I also had to complete a table with my family's cancer history going back to my grandparents on both sides and then had a brief chat with my consultant about this. She explained the different types of genes they test for (there are 4 in total), possible outcomes, additional advice and counselling that's available etc. It was a useful discussion and I felt ok afterwards. Am trying not to worry about it now that I am waiting for the results (another 8 weeks or so). There is nothing I can do about this anyway - I've either got the gene or not. If not, great, if I do, well I'll probably try to reduce my risks of having any further cancer... Then there is the question of my children. Apparently, if I've got the gene, they wouldn't get tested yet (only 11 and 17, so too young), but would be ear-marked for an early monitoring programme that kicks in from when they are 30. All in all I'm glad I've done the test - it seems better to know. I am now just hoping that for once luck might be on my side.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi Kath,

I had my 2nd FEC last Wednesday and my SE are similar to the first one.

I was dreading the second one too ... probably because I knew what was coming, it was starting all over again and I would feel crap again. It soon passes though and I’m starting to feel brighter now.

My hair is falling out loads too ... haven’t braved the shave although I have let my Mum cut it quite short just to take some of the bulk off ... was sick of finding hairs in my food! Still get a shock when I see myself in the mirror tho.

Big hugs for Thursday Kath and for Friday Tizwaz 😘 xx
Kip
Member

Re: September 2018 Chemo Starters.

Hi ladies doing FEC ... don't worry, FEC really does seem to follow a pattern and you have those few rubbish days but you pick up quickly again, just like KTK said!

Gene Testing - I'm not having that, but I am guessing there are areas on this site dedicated to genetics, also some of the ladies on the June chemo thread are/had the testing and have lots of info on there, might be worth a read, probably a few pages back though!  

Kip

xx