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September 2018 Chemo Starters.

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Re: September 2018 Chemo Starters.

Thanks GabyF. All went well ... so relieved I nearly hugged the nurse 😂 She referred me for an ultrasound but no cause for concern ... thankfully! Bit vague about it really but they think breast tissue has hardened probably as a result of chemo.

Sorry to hear you didn’t have your chemo yesterday although it is quite nice having an extra week off 😊 I hope you’ve got some nice things planned ❤️

Hope you’ve had a good day today CatGarland and are still SE free 🥊 💪🏻 Noticed my arms feel itchy today but apart from that so far so good (can’t help but thinking this is the calm before the storm but hopefully not ha ha).

Big hugs ❤️ Lisa xx
Member

Re: September 2018 Chemo Starters.

Evenin everyone,

 

Lisa - I hope your mammogram was ok today. It must have been a very stressful morning for you. Thinking of you! HeartAs for waking up early, it's really annoying. I tend to be awake for a couple of hours at night on the steroids - I try not to stress about it and just make sure I get some extra sleep after lunch. You've got a very good excuse for an afternoon nap!

 

My chemo didn't happen yesterday as my neutrophils were too low. Someone somewhere on the Forum called them "Naughtyphils" which definitively applies to mine! I was a bit disappointed initially, but actually now I'm quite pleased, as it gives my body a short break from all the strong medication. In fact I feel so much better today, still tired, but no aches, cramps, funny tastes etc. which makes a very nice change. Hopefully by next week, my bloods will be back to where they should be and I'll be ready for another round of SEs!

 

Hope everyone has a reasonable night. Gaby x

 

Member

Re: September 2018 Chemo Starters.

Morning ladies.
Gaby that is fab news about the MRI, so pleased for you.

Lisa-T, I had my first T yesterday along with my H and then my first P the day before. so far no nasty SE to report. I just felt my lump and it feels like it has reduced in size slightly, it was 5-6cm (depending on who I asked) I’m not going to get my hopes up as the FEC didn’t reduce it at all but it did prevent it from getting larger which is fab.

Hope you all have a good day xx
Member

Re: September 2018 Chemo Starters.

Morning,

First T done yesterday and I’m awake ridiculously early for me (annoying steroids!) ... so thought I would give you all a quick update.

Doing ok so far (famous last words I know 🤪) and no sickness which is a bit of a relief. Nurse said to expect that SE will hit me when I come off the steroids ... so probably the weekend. She said to expect bone pain and flu like symptoms which may mean I need a couple of days in bed. Also have to make sure I drink lots of water to avoid mouth problems. We will see what delights the weekend brings 🥊💪🏻 4 done now - 2 to go.

Got my mammogram this morning for the other lump I found, which I’m more stressed about than having the first T! Feels like I’m going back to the start of it all again ... hopefully it’s nothing and I can get back to stressing about the Ts ha ha! Just when you think you are getting a tiny bit closer to the finish .. it throws something else at you. My nerves are shot!

Take care ... hope everyone is coping well with SE this week ❤️💪🏻 Lisa xx
Member

Re: September 2018 Chemo Starters.

Great news about your MRI today GabyF 💪🏻🥊 Good luck for tomorrow xx

Ahh so sorry for your loss Jacqs, sending lots of love ❤️ xx

Member

Re: September 2018 Chemo Starters.

Evening All

 

Mama Tony - I had my surgery before chemo.  I had a double mastectomy although my surgeon was not at all keen because as you say they don’t want to remove a healthy boob.  I had to have counselling to prove that I felt this was the right thing for me.  If it’s something you do feel strongly about, dig your heels in.  I argued with my surgeon for over an hour but in the end he did agree to do it.  Unfortunately I lost one of the bloody implants due to an infection & have to go back for more surgery after chemo now 😢

 

Today’s been a hugely emotional day as we’ve been to the funeral of a friend who died of a brain tumour. It was a beautiful service & lovely to see so many friends there, but now feeling drained.  

 

Love to everyone. X

Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

My MRI shows a "partial reduction" in the tumour and a change in its' structure which at this reliatively early stage of treatment is good news. I'm so relieved that the treatment is working!! Smiley Very HappyJust have to keep at it now, through all the various lovely SEs, and get rid of the blasted thing altogether.

 

My oncologist also showed me a gragh for my hemoglobin, which shows that this has crashed from a healthy level to rock bottom over the past 2-3 weeks, which explains my problems with breathing. The last few days I've actually noticed a marked improvement in this and I'm hoping that my doulbe-dose of carboplatin and paclitaxel tomorrow won't bring a return of the breathlessness. Still, if it comes back, at least I know what's causing it.

 

Lisa: I hope you're feeling betterand your bloods come up ok. Waiting for those blood results is always a bit nerve-wracking.

 

MamaTony: hope the meeting with your surgeon went well.

 

Gx

Member

Re: September 2018 Chemo Starters.

Good luck with the MRI today GabyF and your surgeon MamaTony ❤️

Had my bloods taken yesterday ready for my first T tomorrow ... hopefully I’ll be well enough to have it now my cold is on its way out 🤞 Lisa xx
Member

Re: September 2018 Chemo Starters.

Evening MamaTony, thanks for that. It's reassuring to know the nausea won't be as bad. I've really struggled with that because I'm so sensitive to all the anti sickness drugs. That's fab news re the shrinkage. Good luck with your meeting tomorrow. I feel the same way RE my healthy breast. If my implant is destroyed through radiotherapy and they have to remove it, I'll be asking them to take my left healthy breast at the same time for the same reasons. Let us know how you get on. Good luck x
Member

Re: September 2018 Chemo Starters.

Hi All,

Alittlepixie: I’ve had 2 T treatments so far and isn’t as bad as I was expecting tbh. Tiredness, loss of tastebuds which is rubbish🙁 and I notice my eyelashes coming out after this second one but haven’t had that nauseous feeling that FEC gives you. But has worked for me and tumour has shrunk from 6cm to 4cm on T so I’m delighted it’s working😀.

Gabyf: Good luck with your MRI results🤞🤞

I’ve got a meeting tomorrow with the surgeon about my op. I’ve been told I need a mastectomy but would prefer a double mastectomy as would only worry the cancer would come back. I don’t think they are too keen on removing a healthy breast tho so will need to see how I go.

All the best to everyone with their treatments/results ❤️
Member

Re: September 2018 Chemo Starters.

Good luck with your results tomorrow Gaby.

I had a meeting with my oncologist today who went through what to expect with T on Monday next week. She advised painting my nails a dark colour. Hope she's right about not feeling too sick. She said the fatigue would be hard tho. Any other things I should look out for?!
Ooh I'd love to book a holiday, but I daren't yet. I'm gonna wait til the radiotherapy is done in Jan/Feb and see if my reconstructed boob survives it first. I'm hopefully gonna do weekend UK breaks if I can manage it.
Lots of love to everyone and hope you have a good week without nasty SEs xxx
Member

Re: September 2018 Chemo Starters.

Anniej: thanks for the tipa bout Boots insurance. I'll definitively look in to this nearer the time of our holiday.

 

Galligirl: looking at and eventually booking somewhere lovely for a holiday gave me something nice to do for a couple ofhours, definitively to be recommended. I'm very tempted to book a short weekend somewhere in the UK in Spring, but until I have my dates for surgery and radiotheraphy, I'd better not.

 

Seeing my oncologist tomorrow and should get the results from my mid-way MRI scan. Fingers crossed the tumour has reduced at least a bit. Had another choice comment from my darling son, who suggested that the tumour may just have "dropped off" - even he realised that this is a very unlikely scenario and collapsed into a heap of giggles! I really wouldn't mind if it had just decided to "drop off", but I'll happily take a reduction in size tomorrow.Smiley Wink

 

Have a good week, everyone.

 

Gx

Member

Re: September 2018 Chemo Starters.

Mornin’ all - here’s to a positive week and no nasty side effect surprises....

 

GabyF - I just love Italy....think I might start looking too....would like to think I could squeeze in an Easter break 😁☀️😎

 

 

Community Champion

Re: September 2018 Chemo Starters.

Hi Gaby, I have secondaries in my lungs. Boots is really good for travel insurance and You can do it on line. My friend has just got USA coverage for £245 and she has a secondary in her eye. She had to phone them, though, as the terminology was awkward. Terminal v palliative came into it. EU coverage is no prob with them. Happy holidays. X

Member

Re: September 2018 Chemo Starters.

Hi Lisa,

 

I haven't actually contacted any insurance companies yet, but the Macmillan website has some useful basic information on this matter. It seems that we may face higher premiums (thanks!) or can opt for a cancer-related exclusion. I'll probaby opt for the latter, though quite frankly I don't see why once I've finished treatment, I should then be punished by the insurers through higher premiums etc. It's not exactly as though I/we have had any choice on this, but I guess that's how they operate.Smiley Frustrated I'm going to speak to my mother-in-law about this as well - she's had breast cancer three times (now in her 80s! I look at her and think, yep, it's absolutely possible and I will be fine.) and travels regularly, so someone must still be willing to insure her. I'll let you know if I find out anything useful.

 

Got a day out with husband tomorrow: Royal Academy exhibition followed by a nice lunch Smiley Very HappyI just wish the restaurant had a couch for a post-lunch snooze! Smiley Wink

 

Gx

Member

Re: September 2018 Chemo Starters.

Tuscany sounds amazing GabyF ... sunshine always helps 😎 Have you sorted out travel insurance yet ... just wondered how difficult it is to get cover for travelling after a diagnosis and treatment?
Member

Re: September 2018 Chemo Starters.

Good morning everyone,

 

I'm hoping to persuade my oncologist to postpone the start of my EC by a few days, so that I don't have to go in to hospital the week of Christmas. Usually we host my parents for Christmas Eve (my dad is Danish, so Continential style) and then we head of to my in-laws for Christmas Day. Haven't really thought what I'm going to do about Christmas Eve yet. It's hard to plan, when you don't know what you're going to feel like. Luckily my husband loves cooking (though he makes a mess!) and will probably do most if not all of it. I just hope I'll be able to taste all that lovely food. Smiley Frustrated

 

On a positive note, we've just booked ourselves a lovely holiday in Tuscany for next August. Smiley HappyWhen I started chemo I couldn't face thinking about any sort of "future", but now I am really looking forward to next summer, by which time I will definitively have finished everything and, as my lovely daughter said, will "need some sunshine" to recover properly. It's given all of us something fantastic to look forward to that is beyond chemo, surgery, radiotherapy and SEs!

 

Have a lovely Sunday.

 

Gx

Member

Re: September 2018 Chemo Starters.

Morning ladies,

I think we’re all feeling the same about Christmas, but let’s hope that as we get into the New Year, we’re all close to being finished with chemo & it’s nasty SE’s.  I’ve got 7 more weekly treatments to get through, the last one due just before NY, but my consultant said she might cancel the last one & let me finish at Christmas. It still seems like a long way off though - especially with the latest SE being daily undignified ‘bottom explosions’.  Hope you all have a relaxing Sunday.  Love & hugs Jacqs x

Member

Re: September 2018 Chemo Starters.

Morning ladies,
Been thinking bout Christmas too.. just not sure how I’ll be. Looks like I’ll have had 1 ‘T’ just before Christmas.. not sure how that’ll compare to FEC.. anyway have a good Sunday ladies 😘
Member

Re: September 2018 Chemo Starters.

I feel EXACTLY the same way Lisa and Galligirl. I love Christmas, but this year I'm not planning anything much. I just want to get through it and all my Ts done before the years end. My last one is due New Years Eve. I feel frustrated because I want to book a nice holiday for me, Stu and Eve but I don't know what's gonna happen after radiotherapy in January. My breast surgeon says my implant he put in in July might get damaged with the radiotherapy and have to be taken out. Everything feels very much in the air. Talking of crying, I balled my eyes out at Strictly last night. Stu thinks I'm nuts 😂 Oh and I forgot to give Eve money from the Tooth Fairy last night.....bad mum alert!!!
Love to everyone X
Member

Re: September 2018 Chemo Starters.

Morning,

I thought I would be pleased to reach the half way chemo point but I’m definitely more tearful ... maybe because i know I’ve now got to do it all over again.

I’m planning an extra special Christmas this year too GalliGirl 🎅🏻 I’ve bought a keepsake necklace each for my girls which sets me off every time ha ha (just hope they like them). It will be just a quiet one at home for us, rather than the usual chaotic house full at my mums with my sisters and families (pesky chemo gets in the way of everything!), but it’s just one year. Also have warned hubby that he might need to take over cooking Christmas dinner 🙀

So looking forward to be able to book a holiday next year after all this has finished ... still seems far away but it’s keeping me going at the moment 😎

Big hugs ❤️ Lisa xx

Member

Re: September 2018 Chemo Starters.

Mornin’ all!

i have had sticky eyes too...not too bad just a bit irritating. I have given up on trying to predict SEs yesterday all my muscles really hurt felt like I had done some serious exercise (which clearly I haven’t 🤣). Took paracetamol all day...last night felt fine again! 

Defo feel more tears at the moment - FEC done, but now thinking about T. I want Christmas and new year to be special as we’ve had such a horrible 6 months...there got me started again!

Member

Re: September 2018 Chemo Starters.

I meant Gaby, not Aley, but you know what I mean. Bad chemo brain tonight!!! 😂
Member

Re: September 2018 Chemo Starters.

Thanks Lisa. It's a week on Monday so at least I hopefully have a decent week ahead, fingers crossed!
Aley, you're def not alone with the weird SEs. I get paranoid about all different changes now and wonder if I'm going nuts. Nature of the beast I guess.
Lots of love X
Member

Re: September 2018 Chemo Starters.

You were all very quick to reply - thanks so very much! So relieved, yet again, it's not just me. I'm finding this eye business rather annoying, as I love reading and that's just a bit harder with watery, twitching eyes! I can't wait for all this chemo to be over and to be able to return to something like normal. I've got 7 treatments left, 4 of which are EC which I am starting in December - so a whole lot of new side effects to get to grips with. Mind you, every time I think I've got the hang of things, something new pops up. Never a dull moment!

 

Hope you all have a good night.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi ladies,

I also have been having a few eye issues ... thought it was just me! My eye lids seem to feel sticky if that makes any sense ... notice more after I’ve been sleeping. My right eye also seems to water a lot the few days before my next sessions is due ... didn’t know if it was a SE or me just stressing about the next one!

Hope everyone is coping ok with SE this weekend after treatment.

Good luck for your first T on Monday ALittlePixie 💪🏻 ❤️

Big hugs ❤️ Lisa xx
Member

Re: September 2018 Chemo Starters.

Aley.....it effects my right eye with blurriness too! I thought it was just my eyes...maybe it is SE of the meds?!
Member

Re: September 2018 Chemo Starters.

Evening everyone
I also have issues with my eyes, especially worse on my week before next chemo. They are dry, gritty, constantly burning etc. I got some eye drops from the chemist which help a little but not much. I've just accepted it's a SE of the FEC and hopefully won't last. I'm starting T next Monday and I'm dreading it. I think it's the unknown again after just getting my head around the FEC and it's effects.
This last round of FEC has been horrible with SEs lasting longer with the nausea and I'm crying at everything. My emotions are all over the place. Eve, my 10 year old just holds my hand and pats me when she sees me crying. She's so sweet.
I've tried to catch up on all the posts. I'm sorry to hear some of you are really struggling too.
Sending out lots of love to you all xxx
Member

Re: September 2018 Chemo Starters.

Hi GabyF I’m having problems with my eyes and have been given some eye drops. More blurry than gritty for me and more in the right eye-the bc side 😳this made me paranoid of brain mets for a while! Mentioned it to oncologist who suggested I see an optician. I had 3rd FEC on Friday and touch wood haven’t been too bad-have drunk loads of water this time and trying to be more positive and just get through it..hope you all have a good weekend x
Member

Re: September 2018 Chemo Starters.

Hope everyone is having a reasonable weekend.

 

Just wondering: is anyone having problems with their eyes? Mine are dry, I constantly feel as if I had something gritty in them, I keep getting annoying twitches in my eyelids, and all the lights in our house seem duller than usual. Very odd and rather irritating. Smiley Frustrated  I've lost a lot of my eye lashes which may account for some of these problems, but I've still got a reasonable amount left, especially on my eyelids.

 

Gx

Member

Re: September 2018 Chemo Starters.

Apart from not being able to sleep last night, I feel fine thanks Aley...I gat one injection for today and that’s it.

Fingers crossed 🤞 for you and me both. 🙂

Member

Re: September 2018 Chemo Starters.

Hope it goes well Galligirl, I just had 3rd FEC..so far ok! I had the injections last time which seemed to help, got them again this time. Sending positive vibes to everyone 😘
Member

Re: September 2018 Chemo Starters.

Mornin’ everyone! Off for my FEC...last one at last....I started this process at the beginning of August! Feel strangely anxious for the first time but then I suppose I sort of know what it is going to throw at me and no one in their right mind would be joyous about getting another 4 huge syringes full of toxic stuff! Can start researching T now...and will be reading all your advice.

 

My son is slightly less charming...and just walks into the room and rubs my head...with the warm welcome of ‘hello Fuzz Head’ 😁

 

Sending positive thoughts for everyone....GGx

 

 

Member

Re: September 2018 Chemo Starters.

Hi All,

Lisa-T that’s devastating for you to have found another lump, but they say the majority of lumps found are non cancerous so everything crossed for a good result🤞🤞🙏🙏

I know u are at the same stage as me. I’m due my 4th chemo tomorrow. I have had one lot of Docetaxel and side effects were manageable tbh better than FEC for me. Also following a CT scan one does has shrunk my tumour from 6cms to 4cms...whereas FEC made no difference...so has worked well for me so hopefully will do the same for you.

Loving the stories about the hats/hairbands. I took a photo of me with my daughters long blond curly hair extensions under a scarf. My friends believed it was as my latest wig! Considering I am 52 and my normal style is a shoulder length bob I thought they would have gueiwas a wind up...but they all fell for it hook line and sinker!
Member

Re: September 2018 Chemo Starters.

Lisa: Try to stay positive - at least you know this lump hasn't been there for long and it's been spotted. But yes, you must be in in complete shock, I'm so sorry. Good they've given you an appointment quite soon; the waiting and not knowing is one of the hardest parts of this whole horrible progress. I'll be thinking of you - and do use us all here to sound off and share your thoughts, it helps!

 

Aley: how sweet of your son. It's the thought that countsmSmiley Wink

 

Had my MRI scan today, so now have to wait for the reults next week. Also had another lot of Paclitaxel. Interestingly my cough and breathlessness are slightly improved since I had some treatment from my amazing cranial osteopath on Monday. She was horrified at the tension in my ribs and the lack of bloodflow to my lungs, so worked on that and it seems to have helped. I just hope today's chemo doesn't  have too much of a negative impact. It's so nice being able to breath a bit more freely and not to be coughing every 5 minutes.

 

Gx

Member

Re: September 2018 Chemo Starters.

Meeting with oncologist ok thanks Galigirl-she doesn’t say much! It looks like the lump is getting smaller but my armpit is still swollen! Sorry for the delay Lisa-T😘 My son picked up a random hair band from the playground and presented me with it this afternoon he said ‘this is for when your hair grows back mummy’ 🤔🤣
Member

Re: September 2018 Chemo Starters.

Thinking of you Lisa-T, it’s horrid to get a delay when you are all ‘ready’ for it ☹️. I am sure it is for the best but frustrating for you and your plans. One thing I have learnt is to give up planning anything! 

 

Wishing you a speedy recovery...and sending you luck and positive thoughts for your results.

GG

Member

Re: September 2018 Chemo Starters.

Not having a great week and it’s only Wednesday! My first T was due today but has resulted in everything being delayed a week as I’ve got a cough and a cold and they didn’t want to risk giving me anything today. It’s a bit disappointing as wanted to finish chemo before Christmas, and now last one will probably be after the New Year, but it’s probably for the best.

Also found a lump in the one boob I have left on Monday ... totally in shock as mammogram was clear 4 months ago! Feel like I’m right back at the start again. Trying not to stress but it’s so hard. Called BC nurse and she said to get referred by docs as will be quicker to get results so got appointment at breast clinic on 15th! Hoping and praying it’s better news this time.

Hope everyone is doing ok this week ... love and hugs ❤️ Xx
Member

Re: September 2018 Chemo Starters.

Thanks, Galligirl. So glad you're feeling better and hope the physio helps tomorrow. I had a very decent night last night and am also feeling much more positive - amazing what a bit of sleep can do. The music for the MRI is ok, yes, but last time I could hardly hear it, as the machine was so noisy! Also rather undignified, having to stick your boobs in to those cups Smiley LOL, but then we've all had to go through so many tests that involve whipping your clothes off in front of complete strangers and having them squeeze and plod bits, I gues we're all rather used to it. In fact I sometimes forget to go behind the curtain to change until reminded by the nurse, and I'm not usually very relaxed about undressing in public! Smiley Wink 

 

My 11-year old son made me laugh tonight - he suggested suffing socks in my hat to bulk things out! He didn't want to offer me his, as he didn't fancy them on my head?! Not sure I fancy his socks on my head either actually and defintively not sure that this is a good alternative to a wig or a properly fitting hat, but at least we had some fun. My 17-year old daughter just groaned at his (and my?) immaturity. Smiley Very Happy

 

Gx

Member

Re: September 2018 Chemo Starters.

Aley - hope your meeting with the oncologist was constructive and you are feeling okay...

 

GabyF - good luck with your MRI tomorrow ....thinking of you during all that ‘ clunking’ hope they have a decent music selection! 

 

I’m doing bloods for FEC 3 ( well 4! ) and more physio tomorrow- have cording which is really annoying! And a bit tight across pecs since implant removed.

 

On a positive note, I am feeling like a different person today....so much better!

GGx

Member

Re: September 2018 Chemo Starters.

Thanks GabyF and Pulapula hello everyone!
Seeing my oncologist tomorrow so no doubt he’ll get his callipers our to check my lump! Mine defo feels different, I think smaller but sometimes feels the same if that makes sense!! I have severe endometriosis too.. really lucky to be a woman hey?! 🤣 I have a 6cm cyst on my left ovary that’s been monitored for the last couple of years-it hasn’t changed so left it alone for now. I saw my gynaecologist last week-I’d like a total hysterectomy and the ovaries out ASAP but it looks like I’m going to have to wait until sometime next year for that..
Member

Re: September 2018 Chemo Starters.

Just a quick update on my periods - I saw a gynocologist this morning for another scan on two cysts they discovered on my right ovary when I had all the pre-chemo checks in August. Initially the consultant was a bit concerned about the apparent size of these cysts, but now they have both shrunk considerably, almost certainly due to the fact that I haven't had any periods for a couple of months and the cysts have therefore not been stimulated. In fact I have been told that they will almost certainly sort themselves out and I don't need to come back. This has been the first piece of really positive news for me for weeks now and I am so relieved! At least something good has already come out of the chemo!

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi Ladies,

I haven't had a period since just after my first chemo. I was told to expect that and can't say I miss it!

Aley, I noticed a difference in size and texture of my tumour almost as soon as I started chemo and now I have trouble locating it at all. I'm hoping that this is due to real shrinkage and not just my tumour trying to 'hide'. My MRI scan on Wednesday should tell me more. I have seen comments on some of the other threads about tumours feeling larger, smaller, harder, softer etc. None of this seems necessarily to indicate anything about the effectiveness of the treatment. I had a vision of my tumour going in to horrified shock after the first chemo session and I've clung on to that happy vision since. 😁

Gx
Member

Re: September 2018 Chemo Starters.

Galligirl - definitely worth a special lunch after your final FEC. See if hubby can make it after all? My hubby came to first FEC but then he’s been busy working so I’ve had a friend with me for company. But might see if he can make my last one.

I was wondering about periods. I have a coil fitted which the oncologist said I might want to consider removing. But the thought of periods (not had any for over 7 years due to coil) is putting me off!

Aley - I’ve noticed some shrinkage of my tumour but not straightaway. Mine was about 3cm height and length. It’s shrunk in height but is still long so maybe 2cm by 3cm now? But at the end of the day I don’t mind lumpectomy or mastectomy - just want whatever is left taken out!


Member

Re: September 2018 Chemo Starters.

Wishing you all a happy week....good luck with all of your treatments and hoping for minimal SE. 😊

My final FEC on Thursday - told Hubbie he doesn’t need to be there...but now thinking maybe opportunity for lunch out! With a bit of luck and a few chillis I might taste it 😁.

 

 

Member

Re: September 2018 Chemo Starters.

Hi ladies,

Aley, I thought mine would stop too but I’ve had them throughout FEC. Although they are a lot heavier for first day they don’t last as long. Got my first T this week so not sure if that will change things.

Pulapula, rest days are important so listen to your body ... take it easy ... don’t feel guilty. I always seem to have a few low days after treatment (I blame the steroids but it’s probably just a combination of everything!) Hope you feel more energetic today ❤️

Love and hugs 💪🏻❤️
Lisa xx
Member

Re: September 2018 Chemo Starters.

Hi Pulapula, I like the sound of lucozade and I’m going to try it Friday after my 3rd FEC..sorry you’re feeling so weak, hopefully you’ll feel better soon 😘 I keep feeling my lump hoping it’s getting smaller with each FEC! Not feeling much difference yet..anyone notice any difference after each chemo? I didn’t think I’d have a period, I don’t know why?! I’m 45 and haven’t gone through the menopause. I think I thought chemo would stop them but I can feel one coming on-mainly because I have endometriosis and I have horribly painful periods..anyone else continue to have periods throughout chemo?
Hope you’ve all had a nice weekend 😊
Member

Re: September 2018 Chemo Starters.

Hi all, it’s been a bit quiet.

Whoever suggested the vit c tablets - thank you so much. Hubby got me some today and they do help - just a quarter seems to make a difference.

I also find original lucozade helps with my energy levels and taste too - or maybe it’s just because I associate it with childhood memories of being ill and it being a special treat :-)

Feeling really feeble at the moment. I laid in the bath this morning unable to motivate myself to climb out until hubby came back from his run. I have since managed to put some washing on which is progress as sometimes I can’t even get the energy to do that! But I have also laid/slept on the sofa all day too...


Member

Re: September 2018 Chemo Starters.

GabbyF sorry that you too have been feeling a bit grumpy....I also have just noenergy which is so unlike me....maybe that’s why I feel frustrated. I wa t to be up and about with a smile on my face and I am struggling on all 3 😂.

Good luck with your MRI and your holiday hunt. I simply love Italy....enjoy the search....😎.

Member

Re: September 2018 Chemo Starters.

Morning everyone,

 

I'm very glad I'm not the only forgetful one and also relieved to hear that some of you have struggled with breathlessness. It does help to know that other's are going through the same rubbish.

 

Galligirl, I've been feeling a bit grumpy and miserable too these last few days. I'm halfway through chemo (I've done 8 out of 16) and have my MRI scan coming up on Wednesday, so should really be feeling a bit more positive, but like you I feel that this is dragging on. Midway-blues?! I don't have enough energy now to do much and can't remember the last time I felt anything like "normal". Still, as you say, the sun is shining today and we need to stay positive. It's just not always that simple.

 

On a much more positive note, we have started to think about planning a lovely holiday next year in August in the sunshine somewhere in Italy. By then, all this should be well and truly over and having a holiday to look forward to will be just lovely.

 

Have a restful weekend.

 

Gx