Lisa - I hope your mammogram was ok today. It must have been a very stressful morning for you. Thinking of you! As for waking up early, it's really annoying. I tend to be awake for a couple of hours at night on the steroids - I try not to stress about it and just make sure I get some extra sleep after lunch. You've got a very good excuse for an afternoon nap!
My chemo didn't happen yesterday as my neutrophils were too low. Someone somewhere on the Forum called them "Naughtyphils" which definitively applies to mine! I was a bit disappointed initially, but actually now I'm quite pleased, as it gives my body a short break from all the strong medication. In fact I feel so much better today, still tired, but no aches, cramps, funny tastes etc. which makes a very nice change. Hopefully by next week, my bloods will be back to where they should be and I'll be ready for another round of SEs!
Hope everyone has a reasonable night. Gaby x
Mama Tony - I had my surgery before chemo. I had a double mastectomy although my surgeon was not at all keen because as you say they don’t want to remove a healthy boob. I had to have counselling to prove that I felt this was the right thing for me. If it’s something you do feel strongly about, dig your heels in. I argued with my surgeon for over an hour but in the end he did agree to do it. Unfortunately I lost one of the bloody implants due to an infection & have to go back for more surgery after chemo now 😢
Today’s been a hugely emotional day as we’ve been to the funeral of a friend who died of a brain tumour. It was a beautiful service & lovely to see so many friends there, but now feeling drained.
Love to everyone. X
My MRI shows a "partial reduction" in the tumour and a change in its' structure which at this reliatively early stage of treatment is good news. I'm so relieved that the treatment is working!! Just have to keep at it now, through all the various lovely SEs, and get rid of the blasted thing altogether.
My oncologist also showed me a gragh for my hemoglobin, which shows that this has crashed from a healthy level to rock bottom over the past 2-3 weeks, which explains my problems with breathing. The last few days I've actually noticed a marked improvement in this and I'm hoping that my doulbe-dose of carboplatin and paclitaxel tomorrow won't bring a return of the breathlessness. Still, if it comes back, at least I know what's causing it.
Lisa: I hope you're feeling betterand your bloods come up ok. Waiting for those blood results is always a bit nerve-wracking.
MamaTony: hope the meeting with your surgeon went well.
Anniej: thanks for the tipa bout Boots insurance. I'll definitively look in to this nearer the time of our holiday.
Galligirl: looking at and eventually booking somewhere lovely for a holiday gave me something nice to do for a couple ofhours, definitively to be recommended. I'm very tempted to book a short weekend somewhere in the UK in Spring, but until I have my dates for surgery and radiotheraphy, I'd better not.
Seeing my oncologist tomorrow and should get the results from my mid-way MRI scan. Fingers crossed the tumour has reduced at least a bit. Had another choice comment from my darling son, who suggested that the tumour may just have "dropped off" - even he realised that this is a very unlikely scenario and collapsed into a heap of giggles! I really wouldn't mind if it had just decided to "drop off", but I'll happily take a reduction in size tomorrow.
Have a good week, everyone.
Mornin’ all - here’s to a positive week and no nasty side effect surprises....
GabyF - I just love Italy....think I might start looking too....would like to think I could squeeze in an Easter break 😁☀️😎
Hi Gaby, I have secondaries in my lungs. Boots is really good for travel insurance and You can do it on line. My friend has just got USA coverage for £245 and she has a secondary in her eye. She had to phone them, though, as the terminology was awkward. Terminal v palliative came into it. EU coverage is no prob with them. Happy holidays. X
I haven't actually contacted any insurance companies yet, but the Macmillan website has some useful basic information on this matter. It seems that we may face higher premiums (thanks!) or can opt for a cancer-related exclusion. I'll probaby opt for the latter, though quite frankly I don't see why once I've finished treatment, I should then be punished by the insurers through higher premiums etc. It's not exactly as though I/we have had any choice on this, but I guess that's how they operate. I'm going to speak to my mother-in-law about this as well - she's had breast cancer three times (now in her 80s! I look at her and think, yep, it's absolutely possible and I will be fine.) and travels regularly, so someone must still be willing to insure her. I'll let you know if I find out anything useful.
Got a day out with husband tomorrow: Royal Academy exhibition followed by a nice lunch I just wish the restaurant had a couch for a post-lunch snooze!
Good morning everyone,
I'm hoping to persuade my oncologist to postpone the start of my EC by a few days, so that I don't have to go in to hospital the week of Christmas. Usually we host my parents for Christmas Eve (my dad is Danish, so Continential style) and then we head of to my in-laws for Christmas Day. Haven't really thought what I'm going to do about Christmas Eve yet. It's hard to plan, when you don't know what you're going to feel like. Luckily my husband loves cooking (though he makes a mess!) and will probably do most if not all of it. I just hope I'll be able to taste all that lovely food.
On a positive note, we've just booked ourselves a lovely holiday in Tuscany for next August. When I started chemo I couldn't face thinking about any sort of "future", but now I am really looking forward to next summer, by which time I will definitively have finished everything and, as my lovely daughter said, will "need some sunshine" to recover properly. It's given all of us something fantastic to look forward to that is beyond chemo, surgery, radiotherapy and SEs!
Have a lovely Sunday.
I think we’re all feeling the same about Christmas, but let’s hope that as we get into the New Year, we’re all close to being finished with chemo & it’s nasty SE’s. I’ve got 7 more weekly treatments to get through, the last one due just before NY, but my consultant said she might cancel the last one & let me finish at Christmas. It still seems like a long way off though - especially with the latest SE being daily undignified ‘bottom explosions’. Hope you all have a relaxing Sunday. Love & hugs Jacqs x
i have had sticky eyes too...not too bad just a bit irritating. I have given up on trying to predict SEs yesterday all my muscles really hurt felt like I had done some serious exercise (which clearly I haven’t 🤣). Took paracetamol all day...last night felt fine again!
Defo feel more tears at the moment - FEC done, but now thinking about T. I want Christmas and new year to be special as we’ve had such a horrible 6 months...there got me started again!
You were all very quick to reply - thanks so very much! So relieved, yet again, it's not just me. I'm finding this eye business rather annoying, as I love reading and that's just a bit harder with watery, twitching eyes! I can't wait for all this chemo to be over and to be able to return to something like normal. I've got 7 treatments left, 4 of which are EC which I am starting in December - so a whole lot of new side effects to get to grips with. Mind you, every time I think I've got the hang of things, something new pops up. Never a dull moment!
Hope you all have a good night.
Hope everyone is having a reasonable weekend.
Just wondering: is anyone having problems with their eyes? Mine are dry, I constantly feel as if I had something gritty in them, I keep getting annoying twitches in my eyelids, and all the lights in our house seem duller than usual. Very odd and rather irritating. I've lost a lot of my eye lashes which may account for some of these problems, but I've still got a reasonable amount left, especially on my eyelids.
Apart from not being able to sleep last night, I feel fine thanks Aley...I gat one injection for today and that’s it.
Fingers crossed 🤞 for you and me both. 🙂
Mornin’ everyone! Off for my FEC...last one at last....I started this process at the beginning of August! Feel strangely anxious for the first time but then I suppose I sort of know what it is going to throw at me and no one in their right mind would be joyous about getting another 4 huge syringes full of toxic stuff! Can start researching T now...and will be reading all your advice.
My son is slightly less charming...and just walks into the room and rubs my head...with the warm welcome of ‘hello Fuzz Head’ 😁
Sending positive thoughts for everyone....GGx
Lisa: Try to stay positive - at least you know this lump hasn't been there for long and it's been spotted. But yes, you must be in in complete shock, I'm so sorry. Good they've given you an appointment quite soon; the waiting and not knowing is one of the hardest parts of this whole horrible progress. I'll be thinking of you - and do use us all here to sound off and share your thoughts, it helps!
Aley: how sweet of your son. It's the thought that countsm
Had my MRI scan today, so now have to wait for the reults next week. Also had another lot of Paclitaxel. Interestingly my cough and breathlessness are slightly improved since I had some treatment from my amazing cranial osteopath on Monday. She was horrified at the tension in my ribs and the lack of bloodflow to my lungs, so worked on that and it seems to have helped. I just hope today's chemo doesn't have too much of a negative impact. It's so nice being able to breath a bit more freely and not to be coughing every 5 minutes.
Thinking of you Lisa-T, it’s horrid to get a delay when you are all ‘ready’ for it ☹️. I am sure it is for the best but frustrating for you and your plans. One thing I have learnt is to give up planning anything!
Wishing you a speedy recovery...and sending you luck and positive thoughts for your results.
Thanks, Galligirl. So glad you're feeling better and hope the physio helps tomorrow. I had a very decent night last night and am also feeling much more positive - amazing what a bit of sleep can do. The music for the MRI is ok, yes, but last time I could hardly hear it, as the machine was so noisy! Also rather undignified, having to stick your boobs in to those cups , but then we've all had to go through so many tests that involve whipping your clothes off in front of complete strangers and having them squeeze and plod bits, I gues we're all rather used to it. In fact I sometimes forget to go behind the curtain to change until reminded by the nurse, and I'm not usually very relaxed about undressing in public!
My 11-year old son made me laugh tonight - he suggested suffing socks in my hat to bulk things out! He didn't want to offer me his, as he didn't fancy them on my head?! Not sure I fancy his socks on my head either actually and defintively not sure that this is a good alternative to a wig or a properly fitting hat, but at least we had some fun. My 17-year old daughter just groaned at his (and my?) immaturity.
Aley - hope your meeting with the oncologist was constructive and you are feeling okay...
GabyF - good luck with your MRI tomorrow ....thinking of you during all that ‘ clunking’ hope they have a decent music selection!
I’m doing bloods for FEC 3 ( well 4! ) and more physio tomorrow- have cording which is really annoying! And a bit tight across pecs since implant removed.
On a positive note, I am feeling like a different person today....so much better!
Just a quick update on my periods - I saw a gynocologist this morning for another scan on two cysts they discovered on my right ovary when I had all the pre-chemo checks in August. Initially the consultant was a bit concerned about the apparent size of these cysts, but now they have both shrunk considerably, almost certainly due to the fact that I haven't had any periods for a couple of months and the cysts have therefore not been stimulated. In fact I have been told that they will almost certainly sort themselves out and I don't need to come back. This has been the first piece of really positive news for me for weeks now and I am so relieved! At least something good has already come out of the chemo!
Wishing you all a happy week....good luck with all of your treatments and hoping for minimal SE. 😊
My final FEC on Thursday - told Hubbie he doesn’t need to be there...but now thinking maybe opportunity for lunch out! With a bit of luck and a few chillis I might taste it 😁.
GabbyF sorry that you too have been feeling a bit grumpy....I also have just noenergy which is so unlike me....maybe that’s why I feel frustrated. I wa t to be up and about with a smile on my face and I am struggling on all 3 😂.
Good luck with your MRI and your holiday hunt. I simply love Italy....enjoy the search....😎.
I'm very glad I'm not the only forgetful one and also relieved to hear that some of you have struggled with breathlessness. It does help to know that other's are going through the same rubbish.
Galligirl, I've been feeling a bit grumpy and miserable too these last few days. I'm halfway through chemo (I've done 8 out of 16) and have my MRI scan coming up on Wednesday, so should really be feeling a bit more positive, but like you I feel that this is dragging on. Midway-blues?! I don't have enough energy now to do much and can't remember the last time I felt anything like "normal". Still, as you say, the sun is shining today and we need to stay positive. It's just not always that simple.
On a much more positive note, we have started to think about planning a lovely holiday next year in August in the sunshine somewhere in Italy. By then, all this should be well and truly over and having a holiday to look forward to will be just lovely.
Have a restful weekend.