27-11-2018 08:49 PM
27-11-2018 08:23 PM
Hi Everyone. Hope you’re all doing ok.
A Little Pixie - I do hope you get switched to weekly treatments soon. I was so worried when they said i’d Have to start weekly paclitaxel, but to be honest it’s so much more manageable than 3 weekly FEC and the SE’s are not as severe. I’ve had some rib pain but nothing like you describe. Sending you a big hug xx
Today i’ve been to have my blood tests for genetic test - will have results in 3 weeks. If it’s positive, i’ll join a drug trial for women with BRACA gene & TNBC. It’ll be 12 months on either a real drug or a placebo, but it’s peace of mind knowing they’ll be keeping an eye on me when chemo is finished.
Now I need to pysche myself up for going back to work for few hours tomorrow. It’s getting so busy in run up to Christmas & am feeling guilty that i’m leaving everything to my OH. Xx
27-11-2018 08:16 PM
Hi Everyone. Hope you’re all doing ok.
A Little Pixie - I do hope they get you switched to weekly Paclitaxel. I was so worried when I was told they wanted me to switch to weekly treatments, but to be honest it’s been much more manageable than 3 weekly FEC. I’ve had some pain in my ribs but nothing like what you’re describing. Sending a big hug xx
Today was my blood tests for BRACA testing. Now just got to wait 3 weeks for results. If it’s a positive, i’ll join a drug trial at the end of my chemo for 12 months. It’s for those with a genetic link & TNBC. I won’t know if i’m on a real drug or a placebo, but it’s extra peace of mind that they’ll be keeping a close eye on me.
Am now going to psyche myself up for going into work for few hours tomorrow to help my OH. It’s getting so busy on run up to Christmas and i’m feeling guilty that i’m at home all day.
27-11-2018 07:38 PM
27-11-2018 06:59 PM
27-11-2018 06:39 PM
27-11-2018 05:38 PM
Had a new SE last night - felt very dizzy most of the night and when I first got up Had a long, hot shower, breakfast and then staggered into hospital for bloods etc. They checked me out, but everything seems as normal, so it's just another of those unexpected & unpleasant things, lovely!
LittlePixie: so glad they've identified what the problem is. Paclitaxel is not too bad at all (it's the carboplatin that gets me), so hopefully you should start to feel better very soon
Met a former colleague this afternoon for a tea. She had Hodgkin's Lymphoma years ago and has been clear of that dreadful cancer for years. It was so good to see someone with a great positive story. We have to keep reminding ourselves that we will get through this and live a happy, healthy and long life!
27-11-2018 10:18 AM
27-11-2018 09:45 AM
26-11-2018 10:10 PM
26-11-2018 09:55 PM
26-11-2018 09:11 PM
i think there are a few of us suffering from hot flushes & they do disrupt your sleep. I woke up at 3am this morning & couldn’t get back to sleep. Like you i’m on weekly Paclitaxel. The only positive is that my consultant did say that once chemo was finished, it should stop & am hoping that’s the end of all things menopausal - lets hope & pray!
Have taken to sleeping on a towel so I can mop my bald sweaty little head as & when needed. 🤣🤣xx
26-11-2018 07:43 PM
26-11-2018 06:49 PM - edited 26-11-2018 06:57 PM
Hi Mama Tony,
No I'm not on any special diet, well I am on a low potassium diet but that's because my kidneys are knackered, nothing to do with the cancer as had it years before. Think chemo may have sped up the deterioration of my kidneys though ☹️.
Some people say dairy is bad? I don't drink milk now, I drink oat milk but more because it's low potassium.
Life is for living and I figure it would be pretty miserable existence going without chocolate & wine 😬
I put on 2 and a half stone during treatment, my main aim was to lose it and eat a healthy diet. I lost all the weight plus a little more, joined a gym and reckon I'm fitter now than I was 20 yrs ago.
Because of the trip neg diagnosis I did opt for brca testing - which thank goodness was negative.
I can only go by my experience - I had 6 monthly check ups (cop a feel) alternating with consultant and oncologist but only 1 mammogram a year - that was for 5 years.
This year I had the choice to be discharged or see the consultant once a year - I wanted the reassurance. I'm not sure how long the annual mammo's go on for....
Take care Nikki x