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September 2018 Chemo Starters.

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Re: September 2018 Chemo Starters.

Apart from not being able to sleep last night, I feel fine thanks Aley...I gat one injection for today and that’s it.

Fingers crossed 🤞 for you and me both. 🙂

Member

Re: September 2018 Chemo Starters.

Hope it goes well Galligirl, I just had 3rd FEC..so far ok! I had the injections last time which seemed to help, got them again this time. Sending positive vibes to everyone 😘
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Re: September 2018 Chemo Starters.

Mornin’ everyone! Off for my FEC...last one at last....I started this process at the beginning of August! Feel strangely anxious for the first time but then I suppose I sort of know what it is going to throw at me and no one in their right mind would be joyous about getting another 4 huge syringes full of toxic stuff! Can start researching T now...and will be reading all your advice.

 

My son is slightly less charming...and just walks into the room and rubs my head...with the warm welcome of ‘hello Fuzz Head’ 😁

 

Sending positive thoughts for everyone....GGx

 

 

Member

Re: September 2018 Chemo Starters.

Hi All,

Lisa-T that’s devastating for you to have found another lump, but they say the majority of lumps found are non cancerous so everything crossed for a good result🤞🤞🙏🙏

I know u are at the same stage as me. I’m due my 4th chemo tomorrow. I have had one lot of Docetaxel and side effects were manageable tbh better than FEC for me. Also following a CT scan one does has shrunk my tumour from 6cms to 4cms...whereas FEC made no difference...so has worked well for me so hopefully will do the same for you.

Loving the stories about the hats/hairbands. I took a photo of me with my daughters long blond curly hair extensions under a scarf. My friends believed it was as my latest wig! Considering I am 52 and my normal style is a shoulder length bob I thought they would have gueiwas a wind up...but they all fell for it hook line and sinker!
Member

Re: September 2018 Chemo Starters.

Lisa: Try to stay positive - at least you know this lump hasn't been there for long and it's been spotted. But yes, you must be in in complete shock, I'm so sorry. Good they've given you an appointment quite soon; the waiting and not knowing is one of the hardest parts of this whole horrible progress. I'll be thinking of you - and do use us all here to sound off and share your thoughts, it helps!

 

Aley: how sweet of your son. It's the thought that countsmSmiley Wink

 

Had my MRI scan today, so now have to wait for the reults next week. Also had another lot of Paclitaxel. Interestingly my cough and breathlessness are slightly improved since I had some treatment from my amazing cranial osteopath on Monday. She was horrified at the tension in my ribs and the lack of bloodflow to my lungs, so worked on that and it seems to have helped. I just hope today's chemo doesn't  have too much of a negative impact. It's so nice being able to breath a bit more freely and not to be coughing every 5 minutes.

 

Gx

Member

Re: September 2018 Chemo Starters.

Meeting with oncologist ok thanks Galigirl-she doesn’t say much! It looks like the lump is getting smaller but my armpit is still swollen! Sorry for the delay Lisa-T😘 My son picked up a random hair band from the playground and presented me with it this afternoon he said ‘this is for when your hair grows back mummy’ 🤔🤣
Member

Re: September 2018 Chemo Starters.

Thinking of you Lisa-T, it’s horrid to get a delay when you are all ‘ready’ for it ☹️. I am sure it is for the best but frustrating for you and your plans. One thing I have learnt is to give up planning anything! 

 

Wishing you a speedy recovery...and sending you luck and positive thoughts for your results.

GG

Member

Re: September 2018 Chemo Starters.

Not having a great week and it’s only Wednesday! My first T was due today but has resulted in everything being delayed a week as I’ve got a cough and a cold and they didn’t want to risk giving me anything today. It’s a bit disappointing as wanted to finish chemo before Christmas, and now last one will probably be after the New Year, but it’s probably for the best.

Also found a lump in the one boob I have left on Monday ... totally in shock as mammogram was clear 4 months ago! Feel like I’m right back at the start again. Trying not to stress but it’s so hard. Called BC nurse and she said to get referred by docs as will be quicker to get results so got appointment at breast clinic on 15th! Hoping and praying it’s better news this time.

Hope everyone is doing ok this week ... love and hugs ❤️ Xx
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Re: September 2018 Chemo Starters.

Thanks, Galligirl. So glad you're feeling better and hope the physio helps tomorrow. I had a very decent night last night and am also feeling much more positive - amazing what a bit of sleep can do. The music for the MRI is ok, yes, but last time I could hardly hear it, as the machine was so noisy! Also rather undignified, having to stick your boobs in to those cups Smiley LOL, but then we've all had to go through so many tests that involve whipping your clothes off in front of complete strangers and having them squeeze and plod bits, I gues we're all rather used to it. In fact I sometimes forget to go behind the curtain to change until reminded by the nurse, and I'm not usually very relaxed about undressing in public! Smiley Wink 

 

My 11-year old son made me laugh tonight - he suggested suffing socks in my hat to bulk things out! He didn't want to offer me his, as he didn't fancy them on my head?! Not sure I fancy his socks on my head either actually and defintively not sure that this is a good alternative to a wig or a properly fitting hat, but at least we had some fun. My 17-year old daughter just groaned at his (and my?) immaturity. Smiley Very Happy

 

Gx

Member

Re: September 2018 Chemo Starters.

Aley - hope your meeting with the oncologist was constructive and you are feeling okay...

 

GabyF - good luck with your MRI tomorrow ....thinking of you during all that ‘ clunking’ hope they have a decent music selection! 

 

I’m doing bloods for FEC 3 ( well 4! ) and more physio tomorrow- have cording which is really annoying! And a bit tight across pecs since implant removed.

 

On a positive note, I am feeling like a different person today....so much better!

GGx

Member

Re: September 2018 Chemo Starters.

Thanks GabyF and Pulapula hello everyone!
Seeing my oncologist tomorrow so no doubt he’ll get his callipers our to check my lump! Mine defo feels different, I think smaller but sometimes feels the same if that makes sense!! I have severe endometriosis too.. really lucky to be a woman hey?! 🤣 I have a 6cm cyst on my left ovary that’s been monitored for the last couple of years-it hasn’t changed so left it alone for now. I saw my gynaecologist last week-I’d like a total hysterectomy and the ovaries out ASAP but it looks like I’m going to have to wait until sometime next year for that..
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Re: September 2018 Chemo Starters.

Just a quick update on my periods - I saw a gynocologist this morning for another scan on two cysts they discovered on my right ovary when I had all the pre-chemo checks in August. Initially the consultant was a bit concerned about the apparent size of these cysts, but now they have both shrunk considerably, almost certainly due to the fact that I haven't had any periods for a couple of months and the cysts have therefore not been stimulated. In fact I have been told that they will almost certainly sort themselves out and I don't need to come back. This has been the first piece of really positive news for me for weeks now and I am so relieved! At least something good has already come out of the chemo!

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi Ladies,

I haven't had a period since just after my first chemo. I was told to expect that and can't say I miss it!

Aley, I noticed a difference in size and texture of my tumour almost as soon as I started chemo and now I have trouble locating it at all. I'm hoping that this is due to real shrinkage and not just my tumour trying to 'hide'. My MRI scan on Wednesday should tell me more. I have seen comments on some of the other threads about tumours feeling larger, smaller, harder, softer etc. None of this seems necessarily to indicate anything about the effectiveness of the treatment. I had a vision of my tumour going in to horrified shock after the first chemo session and I've clung on to that happy vision since. 😁

Gx
Member

Re: September 2018 Chemo Starters.

Galligirl - definitely worth a special lunch after your final FEC. See if hubby can make it after all? My hubby came to first FEC but then he’s been busy working so I’ve had a friend with me for company. But might see if he can make my last one.

I was wondering about periods. I have a coil fitted which the oncologist said I might want to consider removing. But the thought of periods (not had any for over 7 years due to coil) is putting me off!

Aley - I’ve noticed some shrinkage of my tumour but not straightaway. Mine was about 3cm height and length. It’s shrunk in height but is still long so maybe 2cm by 3cm now? But at the end of the day I don’t mind lumpectomy or mastectomy - just want whatever is left taken out!


Member

Re: September 2018 Chemo Starters.

Wishing you all a happy week....good luck with all of your treatments and hoping for minimal SE. 😊

My final FEC on Thursday - told Hubbie he doesn’t need to be there...but now thinking maybe opportunity for lunch out! With a bit of luck and a few chillis I might taste it 😁.

 

 

Member

Re: September 2018 Chemo Starters.

Hi ladies,

Aley, I thought mine would stop too but I’ve had them throughout FEC. Although they are a lot heavier for first day they don’t last as long. Got my first T this week so not sure if that will change things.

Pulapula, rest days are important so listen to your body ... take it easy ... don’t feel guilty. I always seem to have a few low days after treatment (I blame the steroids but it’s probably just a combination of everything!) Hope you feel more energetic today ❤️

Love and hugs 💪🏻❤️
Lisa xx
Member

Re: September 2018 Chemo Starters.

Hi Pulapula, I like the sound of lucozade and I’m going to try it Friday after my 3rd FEC..sorry you’re feeling so weak, hopefully you’ll feel better soon 😘 I keep feeling my lump hoping it’s getting smaller with each FEC! Not feeling much difference yet..anyone notice any difference after each chemo? I didn’t think I’d have a period, I don’t know why?! I’m 45 and haven’t gone through the menopause. I think I thought chemo would stop them but I can feel one coming on-mainly because I have endometriosis and I have horribly painful periods..anyone else continue to have periods throughout chemo?
Hope you’ve all had a nice weekend 😊
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Re: September 2018 Chemo Starters.

Hi all, it’s been a bit quiet.

Whoever suggested the vit c tablets - thank you so much. Hubby got me some today and they do help - just a quarter seems to make a difference.

I also find original lucozade helps with my energy levels and taste too - or maybe it’s just because I associate it with childhood memories of being ill and it being a special treat :-)

Feeling really feeble at the moment. I laid in the bath this morning unable to motivate myself to climb out until hubby came back from his run. I have since managed to put some washing on which is progress as sometimes I can’t even get the energy to do that! But I have also laid/slept on the sofa all day too...


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Re: September 2018 Chemo Starters.

GabbyF sorry that you too have been feeling a bit grumpy....I also have just noenergy which is so unlike me....maybe that’s why I feel frustrated. I wa t to be up and about with a smile on my face and I am struggling on all 3 😂.

Good luck with your MRI and your holiday hunt. I simply love Italy....enjoy the search....😎.

Member

Re: September 2018 Chemo Starters.

Morning everyone,

 

I'm very glad I'm not the only forgetful one and also relieved to hear that some of you have struggled with breathlessness. It does help to know that other's are going through the same rubbish.

 

Galligirl, I've been feeling a bit grumpy and miserable too these last few days. I'm halfway through chemo (I've done 8 out of 16) and have my MRI scan coming up on Wednesday, so should really be feeling a bit more positive, but like you I feel that this is dragging on. Midway-blues?! I don't have enough energy now to do much and can't remember the last time I felt anything like "normal". Still, as you say, the sun is shining today and we need to stay positive. It's just not always that simple.

 

On a much more positive note, we have started to think about planning a lovely holiday next year in August in the sunshine somewhere in Italy. By then, all this should be well and truly over and having a holiday to look forward to will be just lovely.

 

Have a restful weekend.

 

Gx

Member

Re: September 2018 Chemo Starters.

Thank you Aley and Lisa T....woken up much perkier although haven’t actually got up yet!...my H has provided my tea! And the sun is out so feeling more positive already ☀️😎

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Re: September 2018 Chemo Starters.

Sending big hugs Galligirl ... it really does feel never ending at times! Keep going ...we’ve got this and we will get there 💪🏻❤️

Night night Grumpy 🤪 tomorrow will be a better day ❤️ Xx
Member

Re: September 2018 Chemo Starters.

Aww sorry it’s been a rubbish day Galligirl hopefully tomorrow will be better. I’ve been eating like a horse this cycle..I was rough a couple of days after FEC(2nd) but after 4/5 days I’ve been eating non-stop..and like you Pulapula lots of gas both ends! Your dilemma re:ROSCO trial is interesting. I was asked about going on it and was up for it but my ER and PR was too high. I liked the idea of going to surgery halfway through chemo to break it up..but I understand your dilemma. Let us know what you decide to do. Anyway off to find food 🐷🤣 Have a great weekend guys xx
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Re: September 2018 Chemo Starters.

Been a rubbish day...think it must be my neutrophils low point. Had the same feelings last FEC just a day or so earlier....thought I had escaped them this time round. Hoping that, like last time, I come bouncing back the next day! 🙂. Feel like chemo is going on forever I had my first FEC at the beginning of August....then lost weeks because of infection and removal of implant, started chemo again end of September.....from the beginning again which I as happy about but my last T will be in January which seems a hell of a long way away....

Anyway Grumpy is gong to bed and looking forward to waking up with a clear head....and some energy! 😊

ktk
Member

Re: September 2018 Chemo Starters.

To be honest Pulapula if you have T you might as well write Christmas off!! I think your timeline will be similar which ever you choose. You need to talk to your family about this and decide what works best for all of you. Whatever you decide will be the right decision for you. Xxxx
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Re: September 2018 Chemo Starters.

Hi ladies. I had FEC3 yesterday and generally ok apart from hot flushes and lots of gas (both ends).

I’m having a debate with myself at the mo, and not sure what to do. I am on the ROSCO trial which means I should have 4 FEC, then a scan and my surgery, but then may need 2 or 4 T cycles afterwards and possibly radio. That would mean last FEC on 22 nov, and then surgery probably new year. Then if I need chemo again or radio that won’t be til I’ve recovered from surgery so might not be all over til April/May/June??

I can leave the trial at any stage, so I’m now wondering whether to leave and go onto the standard 3fec 3t. But that would mean that I’d be having chemo over xmas/new year rather than a break. But surgery would then be Feb and possibly radio after so it might be done a bit sooner?

I would feel bad leaving the trial (as research benefits future treatments) but need to think what’s best for me too. Any thoughts?
ktk
Member

Re: September 2018 Chemo Starters.

Gaby that does sound like the Piriton. It sends some people to sleep, and they say you mustn’t drive. With regards your breathlessness, I had that too. It did eventually wear off, but it took me a long time to recover from T3. I had 3xFEC then 3xT.

Keep going ladies, you are doing brilliantly!!! Kx
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Re: September 2018 Chemo Starters.

Thanks For the advice again Gaby.

i didn’t eat during the treatment yesterday cause I was too nervous waiting to see if I had any allergic reactions.  Funnily enough I felt a little spaced during the pre-meds which did include Piriton.  

As for forgetfullness, hell yes.  It’s a nightmare.  If I don’t write it down, things just go right out of my head.

not feeling too bad today.

 

wishing everyone a good weekend x

 

Member

Re: September 2018 Chemo Starters.

Ahh I’m so forgetful too GabyF - pleased it’s just not me 😂 xx
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Re: September 2018 Chemo Starters.

Hi Jacq,

I had some nausea on my second cycle of Carboplatin but have since made sure that I wear sicknesses wrist bands during and for three days after each treatment which seems to have helped. I was also told by my BCN that it's a good idea to snack while having the treatment to prevent nausea, so I go in to the ward armed with a bag of goodies, lots of fruit and veg, nuts, a sandwich, and lots to drink. However, this week something odd happened at the end of the treatment. I didn't feel sick, but I felt completely spaced out and this feeling lasted until I got home and had a rest, very weird. Maybe it was the Piriton? I'll mention it to the nurse next week I think, as it was a very unpleasant sensation. That's if I remember of course. I'm a bit forgetful at the moment and often can't even think of the right words, much to my 11 year old son's amusement, who just replies' chemo brain, mum!'. 😁

Hope you have a reasonable day.

Gx
Member

Re: September 2018 Chemo Starters.

Hi everyone.  Hope you’re all keeping well & not suffering too much this week.

I changed to my new treatment plan today & spent 5 hours on the ward due to an allergic reaction to the Paclitaxel.  Had really bad hot flush to neck & chest, heart rate, temperature & blood pressure all spiked so they had to give me more antihistamines & then a break to see if it settled down.  I did manage to finish the treatment, then carried on with the Carboplatin without any further issues.  Got home at 7pm & now just feeling slightly anxious to see what SE play out with these new drugs.  

8 more treatments to go.

Gaby - have you suffered much with nausea on these drugs.  I found that the nausea after my last FEC treatment last3d almost 3 weeks.

 

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Re: September 2018 Chemo Starters.

Hi Everyone.  Hope you are all keeping well & 

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Re: September 2018 Chemo Starters.

Hi everyone,

 

I've been a bit quiet this last week due two my double-dose of Paclitaxel and carboplatin, which knocks me out a bit. Had a new SE this time - yipee! Bad dry cough and terrible breathlessness when doing anything other than sitting. I also struggle at night if lying flat, so have to have three pillows in various positions amd can't lie on my side, as this seems to restrict my breathing still further. I've had additional bloodtests and swaps to rule out any infection and gastric reflux; all were clear, so it's just something I might have to get used to Smiley Frustrated Hopefully it will wear off a little over the next week and I am also trying to find other ways of dealing with it. For a start my BCN told me to slow down! I still leave the house walking at some pace, only to find that after a few yards I am breathless, so yes, slowing down seems like a good plan! Went to the theatre last night and in order to control my cough I had 3 Jakeman's sucking sweets, which oddly eoungh seems to make quite a difference once I was back at home and in bed - better night. Has anyone else struggled with breathlessness and got any tips?

 

I've got an MRI scheduled for next week to check on progress. Am rather excited about this and hope that the news will be good. If the tumour shows signs of shrinking, they may consider lowering the last Carboplain dose, which would be lovely. Then I move on to EC.

 

I have stopped cold-capping, as my hair is falling out big time. Well, at least I tried. Actually, it's quite nice not having to spend an extra 2 hours on the chemo ward every Wedesnday, far less tiring. I don't bother wearing anything on my head at home, but am aquiring a selection of nice little beanies and scarves for going out and sleeping. I didn't want a wig, it's just not me. Also haven't braved the shave yet, as I still have just enough hair to get away with it. I have a hairdresser appointment in 10 days, so will see if there is anything left to cut by then, otherwise....

 

Hope everyone is having a reasonable week. Smiley Happy

 

Gx

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Re: September 2018 Chemo Starters.

Thanks all thats awesome! I am also a hypercondriac now its a perhaps a good thing as a dear friends BC came back secondary after a few years after she didnt notice symptoms so I reckon its a good thing abeit I'm driving my onco and nurses crazy every time I have a round of chemo!

An update on the side effects which was like cold turkey they are going to give me painkillers specifically for this on next round and could have taken paracetamol and ibropufen instead of being paranoid about masking an infection! The nurse thinks I'm a prize pratt!!

If worried about the T advice is call out the side effects if they happen and day 5 and 6 feel much better so better than the FEC in terms of timescales, no sickness either so there are positives.....make sure theyve given you good mouthwash terrible mouth issues thanks for advice re VIT C I'm off to get some! XXXX🤗🤗🤗
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Re: September 2018 Chemo Starters.

Thanks Lisa-T for the tip on using the voucher to put towards a wig - will definitely look into that! Smiley Happy

 

Bee - so sorry to hear you've had such a horrid time with the loss of your dad as well, sending massive hugs to you Heart  How are you doing now? xx With the food stuff, I'm just over 2nd cycle of FEC and I do find my taste changes about a week later.

 

Keeno - sorry to hear you've had a rough time on the T.  I know what you mean about constantly checking temp like a looney, I was doing the same due to having already been to hospital twice after each round of chemo.  The helpline nurse had to be really firm with me and reassure me that I was just panicking before I eventually started to feel ok lol.

 

I'm really anxious about changing to the T drugs as well, even though I still have one more FEC to go. I was freaking out at my breast care nurse last week and telling her "I can't do this, the anxiety over infection / paranoia over side effets is going to break me at this rate!" (though I can see the funny side of it now actually that I am much calmer, realising I am probably the medical professions' worst nightmare in terms of the hypochondria that seems to have come out of me). Smiley LOL

ktk
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Re: September 2018 Chemo Starters.

Keeno paracetamol is fine, but you might want to ask your go for something stronger like codeine. Kx
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Re: September 2018 Chemo Starters.

Hi all! Not posted for a while as was sailing through 2 FECs! Then had a local recurrance on my recon scary week checking hadnt gone elsewhere but scan came up good, anyway resulted in having to change to the T for my 3rd cycle, fully hyper on steroids then day 3 and 4 terrible crash never felt so bad every bone in my body aching, hot and cold sweats. Onco says will reduce steroids next time as too much for me. Must be driving chemo nurses mad worrying about infection!! I also keep checking temperature like a loony.😫 Hoping will be better next time......is it ok to take paracetamol for aching bones? Much love to all xxx😘😘😘
Member

Re: September 2018 Chemo Starters.

Hi all! I haven’t posted for a while (think it was couple weeks after my first ec) im now halfway had 3rd round week and half ago. After the second i felt pretty rough day 4,5,6 nauseous, dizzy and blurred vision. Ive not been feeling to bad after the 3rd, armpit hairs have gone which is great!! Bottom eyelashes gone. I find i go off certain food and drinks for the first week then it goes back to normal?? I found my 3rd round pretty tough due to the fact i lost my dad the day before 😢 i was called at 2am go and see him and by 5.30 he was gone. I was by hes bedside. Then having to go to chemo the next day was horrendous, it took 5 attempts to put cannula aswell. It just really gets me that my dad went before he got the chance to see me get through chemo and hes last image of me is all hairless! He died from metastatic cancer of the liver. So when i was diagnosed it was a massive blow to the family as my dad was then receiving hes final rounds of chemo So emotional its been tough. 

Love & hugs bee 🐝 xx

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Re: September 2018 Chemo Starters.

Hi Gillyflower,

You can put your NHS voucher (amount varies for different areas) towards the cost of a wig ... which is what I did (although I didn’t need to put much towards it - £5). I was really surprised by the quality of what I could get with the voucher so I would give it a try. Everyone is different tho and wigs aren’t for everyone ... some prefer scarves. It’s whatever you feel most comfortable with ❤️

I’m loving having my hair done with no effort every day ... saves loads of time 😊

Big hugs ❤️ Lisa xx
Member

Re: September 2018 Chemo Starters.

Thanks ktk - that’s good hear that you managed ok on Ts 😘 Can’t wait to see some tufts of hair - still get a shock when I see the bald version of me in the mirror 😂

MamaTony - pleased your first T went ok. It’s always the unknown that’s the worst so I hope I cope as well as you are doing. We are getting there ... 3 down 💪🏻❤️

Good luck for tomorrow ALittlePixie ... you’ve got this 🥊 and you’ll be half way 🎉 Sorry to hear you are struggling with your veins too .. hope your oncology nurse will have a solution. My girls are off school next week so I’m hoping to get away to my Mums (mustn’t be far from you ... Chorley 😊) for a few days as it’s my good week. It’s good to feel ‘normal’ again ... if only for a short time!

Love and hugs ❤️ Lisa xx
Member

Re: September 2018 Chemo Starters.

Hi everyone Smiley Happy

 

I'm new to posting here despite starting chemo on 26th September....I finally have only just had some time and space to sit down and do this but have been reading some of this thread and wanted to say that your shared experiences have been a godsend to me! Smiley Happy  

 

I've had two hospital stays already (first one was due to a combined anxiety attack / body not handling the first chemo too well), then 4 days after my second FEC I somehow got a UTI and ended up in hospital for 3 nights.  Bizarrely I didn't actually feel all that ill the second time round, I thought I had come down with a bit of a cold or something but the high temp flagged up the infection. 

 

In between the hospital stays however, I have been very lucky to not feel too ill - most of my problems seem to be gastric / stomach ache or discomfort and my asthma seems to be a bit worse, so never sure if I'm short of breath or if its just the asthma!  I do find myself very tired sometimes and I've noticed if I over exert myself in that first week after chemo, I tend to get the shakes and my heart feels like its racing. 

 

All my hair is practically gone now so I'm embracing the bald look, its a bit upsetting at times but on the whole I found I actually enjoyed having really fast showers (who knew hair washing took so long!).  Supposed to be getting a wig on the NHS but I've heard they are appalling so I might not bother, so long as my head is warm I'm happy to keep wearing scarves and hats.

 

Hope you are all doing ok with your respective treatments, look forward to going through this experience with you from here on Smiley Happy Heart

Member

Re: September 2018 Chemo Starters.

Hi everyone!
My veins in my left arm are also very painful, feel bruised and tight Lisa-T. I have a picc line, so I mentioned it to my chemo nurse and she said it could be the FEC (due my 3rd on Mon) or it could be my picc line resting on nerves. TBH, it does feel like nerve pain sometimes as it's so blooming painful. I'm gonna mention it to the Oncologist nurse as well.
I'm dreading this 3rd round and then I start on the T and Herceptin. It's all very nerve-wracking not knowing what the new SEs will be like.
I did manage to have date night last night tho, so my hubby took me to Manchester for dinner and a music gig. I'm still smiling and know it's given me the strength to get through Monday.
Love to everyone x
Member

Re: September 2018 Chemo Starters.

Hi Lisa-T,

I think we are at the same point with 3 chemos down🎉🎉

I have had 2 FEC and because my tumour hadn’t changed they swapped me into T early so I have had 1 T.
The SE’s have been fine, not much nausea but tiredness and issues with oral thrush which I have found to be the worst. Now have an antibiotic for that so hopefully will clear up🤞 My vein has not been sore. Was apprehensive about the T chemo but so far 😊

Best wishes to everyone💕
ktk
Member

Re: September 2018 Chemo Starters.

Hi Lisa, can’t comment on the veins as I had a Picc Line. The steroids for T are to prevent an allergic reaction, and they give you Piriton as an infusion which sends some ladies to sleep during the treatment! It probably means you shouldn’t drive afterwards too!! I found that T didn’t give any nausea and I felt fine for the few days following treatment. Personally I felt a bit worse mid cycle than I did with FEC. Feel free to ask anything else. Oh, btw, your hair starts to grow back!!!😁Kx
Member

Re: September 2018 Chemo Starters.

Hi ladies,

I’ve now had 3 FECs ... half way 💪🏻 whoo hoo. Now I’m starting to stress about the unknown of the Ts. Are the SE similar to FEC and follow the same pattern? Double dosage of steroids for 3 days is a little bit scary too!

My veins have not liked FEC at all - they are bruised, tight and painful in my left arm (they can’t use my right arm as I’ve already had surgery). My nurse has said Ts are a bit kinder on the veins and will try a cannula for my first T. Has anyone else found they are easier on the veins? They will give me a central line for the last two Ts if not ... they’ve not mentioned picc line!

Love & hugs ❤️ Lisa xx
Member

Re: September 2018 Chemo Starters.

Thanks - will definitely try it x
Member

Re: September 2018 Chemo Starters.

Hi Pat, I've had a picc line for several weeks now and do Pilates three times a week, carry bags etc, without any problems at all. Week 1 was a bit tender, but it's totally fine now. But yeah, don't do too much cleaning!! ☺ Gxx
ktk
Member

Re: September 2018 Chemo Starters.

Definitely not!! But the Picc Line won’t prevent it! 🤣 Kx
Member

Re: September 2018 Chemo Starters.

Can anyone help me when you have a picc line fitted can you normall house work like cleaning windows and cookers etc thank you x
ktk
Member

Re: September 2018 Chemo Starters.

Jacq, watermelon freezes really well too. Cut it up into cubes and lay it on a tray, then bag when frozen. Kx