Apart from not being able to sleep last night, I feel fine thanks Aley...I gat one injection for today and that’s it.
Fingers crossed 🤞 for you and me both. 🙂
Mornin’ everyone! Off for my FEC...last one at last....I started this process at the beginning of August! Feel strangely anxious for the first time but then I suppose I sort of know what it is going to throw at me and no one in their right mind would be joyous about getting another 4 huge syringes full of toxic stuff! Can start researching T now...and will be reading all your advice.
My son is slightly less charming...and just walks into the room and rubs my head...with the warm welcome of ‘hello Fuzz Head’ 😁
Sending positive thoughts for everyone....GGx
Lisa: Try to stay positive - at least you know this lump hasn't been there for long and it's been spotted. But yes, you must be in in complete shock, I'm so sorry. Good they've given you an appointment quite soon; the waiting and not knowing is one of the hardest parts of this whole horrible progress. I'll be thinking of you - and do use us all here to sound off and share your thoughts, it helps!
Aley: how sweet of your son. It's the thought that countsm
Had my MRI scan today, so now have to wait for the reults next week. Also had another lot of Paclitaxel. Interestingly my cough and breathlessness are slightly improved since I had some treatment from my amazing cranial osteopath on Monday. She was horrified at the tension in my ribs and the lack of bloodflow to my lungs, so worked on that and it seems to have helped. I just hope today's chemo doesn't have too much of a negative impact. It's so nice being able to breath a bit more freely and not to be coughing every 5 minutes.
Thinking of you Lisa-T, it’s horrid to get a delay when you are all ‘ready’ for it ☹️. I am sure it is for the best but frustrating for you and your plans. One thing I have learnt is to give up planning anything!
Wishing you a speedy recovery...and sending you luck and positive thoughts for your results.
Thanks, Galligirl. So glad you're feeling better and hope the physio helps tomorrow. I had a very decent night last night and am also feeling much more positive - amazing what a bit of sleep can do. The music for the MRI is ok, yes, but last time I could hardly hear it, as the machine was so noisy! Also rather undignified, having to stick your boobs in to those cups , but then we've all had to go through so many tests that involve whipping your clothes off in front of complete strangers and having them squeeze and plod bits, I gues we're all rather used to it. In fact I sometimes forget to go behind the curtain to change until reminded by the nurse, and I'm not usually very relaxed about undressing in public!
My 11-year old son made me laugh tonight - he suggested suffing socks in my hat to bulk things out! He didn't want to offer me his, as he didn't fancy them on my head?! Not sure I fancy his socks on my head either actually and defintively not sure that this is a good alternative to a wig or a properly fitting hat, but at least we had some fun. My 17-year old daughter just groaned at his (and my?) immaturity.
Aley - hope your meeting with the oncologist was constructive and you are feeling okay...
GabyF - good luck with your MRI tomorrow ....thinking of you during all that ‘ clunking’ hope they have a decent music selection!
I’m doing bloods for FEC 3 ( well 4! ) and more physio tomorrow- have cording which is really annoying! And a bit tight across pecs since implant removed.
On a positive note, I am feeling like a different person today....so much better!
Just a quick update on my periods - I saw a gynocologist this morning for another scan on two cysts they discovered on my right ovary when I had all the pre-chemo checks in August. Initially the consultant was a bit concerned about the apparent size of these cysts, but now they have both shrunk considerably, almost certainly due to the fact that I haven't had any periods for a couple of months and the cysts have therefore not been stimulated. In fact I have been told that they will almost certainly sort themselves out and I don't need to come back. This has been the first piece of really positive news for me for weeks now and I am so relieved! At least something good has already come out of the chemo!
Wishing you all a happy week....good luck with all of your treatments and hoping for minimal SE. 😊
My final FEC on Thursday - told Hubbie he doesn’t need to be there...but now thinking maybe opportunity for lunch out! With a bit of luck and a few chillis I might taste it 😁.
GabbyF sorry that you too have been feeling a bit grumpy....I also have just noenergy which is so unlike me....maybe that’s why I feel frustrated. I wa t to be up and about with a smile on my face and I am struggling on all 3 😂.
Good luck with your MRI and your holiday hunt. I simply love Italy....enjoy the search....😎.
I'm very glad I'm not the only forgetful one and also relieved to hear that some of you have struggled with breathlessness. It does help to know that other's are going through the same rubbish.
Galligirl, I've been feeling a bit grumpy and miserable too these last few days. I'm halfway through chemo (I've done 8 out of 16) and have my MRI scan coming up on Wednesday, so should really be feeling a bit more positive, but like you I feel that this is dragging on. Midway-blues?! I don't have enough energy now to do much and can't remember the last time I felt anything like "normal". Still, as you say, the sun is shining today and we need to stay positive. It's just not always that simple.
On a much more positive note, we have started to think about planning a lovely holiday next year in August in the sunshine somewhere in Italy. By then, all this should be well and truly over and having a holiday to look forward to will be just lovely.
Have a restful weekend.
Thank you Aley and Lisa T....woken up much perkier although haven’t actually got up yet!...my H has provided my tea! And the sun is out so feeling more positive already ☀️😎
Been a rubbish day...think it must be my neutrophils low point. Had the same feelings last FEC just a day or so earlier....thought I had escaped them this time round. Hoping that, like last time, I come bouncing back the next day! 🙂. Feel like chemo is going on forever I had my first FEC at the beginning of August....then lost weeks because of infection and removal of implant, started chemo again end of September.....from the beginning again which I as happy about but my last T will be in January which seems a hell of a long way away....
Anyway Grumpy is gong to bed and looking forward to waking up with a clear head....and some energy! 😊
Thanks For the advice again Gaby.
i didn’t eat during the treatment yesterday cause I was too nervous waiting to see if I had any allergic reactions. Funnily enough I felt a little spaced during the pre-meds which did include Piriton.
As for forgetfullness, hell yes. It’s a nightmare. If I don’t write it down, things just go right out of my head.
not feeling too bad today.
wishing everyone a good weekend x
Hi everyone. Hope you’re all keeping well & not suffering too much this week.
I changed to my new treatment plan today & spent 5 hours on the ward due to an allergic reaction to the Paclitaxel. Had really bad hot flush to neck & chest, heart rate, temperature & blood pressure all spiked so they had to give me more antihistamines & then a break to see if it settled down. I did manage to finish the treatment, then carried on with the Carboplatin without any further issues. Got home at 7pm & now just feeling slightly anxious to see what SE play out with these new drugs.
8 more treatments to go.
Gaby - have you suffered much with nausea on these drugs. I found that the nausea after my last FEC treatment last3d almost 3 weeks.
I've been a bit quiet this last week due two my double-dose of Paclitaxel and carboplatin, which knocks me out a bit. Had a new SE this time - yipee! Bad dry cough and terrible breathlessness when doing anything other than sitting. I also struggle at night if lying flat, so have to have three pillows in various positions amd can't lie on my side, as this seems to restrict my breathing still further. I've had additional bloodtests and swaps to rule out any infection and gastric reflux; all were clear, so it's just something I might have to get used to Hopefully it will wear off a little over the next week and I am also trying to find other ways of dealing with it. For a start my BCN told me to slow down! I still leave the house walking at some pace, only to find that after a few yards I am breathless, so yes, slowing down seems like a good plan! Went to the theatre last night and in order to control my cough I had 3 Jakeman's sucking sweets, which oddly eoungh seems to make quite a difference once I was back at home and in bed - better night. Has anyone else struggled with breathlessness and got any tips?
I've got an MRI scheduled for next week to check on progress. Am rather excited about this and hope that the news will be good. If the tumour shows signs of shrinking, they may consider lowering the last Carboplain dose, which would be lovely. Then I move on to EC.
I have stopped cold-capping, as my hair is falling out big time. Well, at least I tried. Actually, it's quite nice not having to spend an extra 2 hours on the chemo ward every Wedesnday, far less tiring. I don't bother wearing anything on my head at home, but am aquiring a selection of nice little beanies and scarves for going out and sleeping. I didn't want a wig, it's just not me. Also haven't braved the shave yet, as I still have just enough hair to get away with it. I have a hairdresser appointment in 10 days, so will see if there is anything left to cut by then, otherwise....
Hope everyone is having a reasonable week.
Thanks Lisa-T for the tip on using the voucher to put towards a wig - will definitely look into that!
Bee - so sorry to hear you've had such a horrid time with the loss of your dad as well, sending massive hugs to you How are you doing now? xx With the food stuff, I'm just over 2nd cycle of FEC and I do find my taste changes about a week later.
Keeno - sorry to hear you've had a rough time on the T. I know what you mean about constantly checking temp like a looney, I was doing the same due to having already been to hospital twice after each round of chemo. The helpline nurse had to be really firm with me and reassure me that I was just panicking before I eventually started to feel ok lol.
I'm really anxious about changing to the T drugs as well, even though I still have one more FEC to go. I was freaking out at my breast care nurse last week and telling her "I can't do this, the anxiety over infection / paranoia over side effets is going to break me at this rate!" (though I can see the funny side of it now actually that I am much calmer, realising I am probably the medical professions' worst nightmare in terms of the hypochondria that seems to have come out of me).
Hi all! I haven’t posted for a while (think it was couple weeks after my first ec) im now halfway had 3rd round week and half ago. After the second i felt pretty rough day 4,5,6 nauseous, dizzy and blurred vision. Ive not been feeling to bad after the 3rd, armpit hairs have gone which is great!! Bottom eyelashes gone. I find i go off certain food and drinks for the first week then it goes back to normal?? I found my 3rd round pretty tough due to the fact i lost my dad the day before 😢 i was called at 2am go and see him and by 5.30 he was gone. I was by hes bedside. Then having to go to chemo the next day was horrendous, it took 5 attempts to put cannula aswell. It just really gets me that my dad went before he got the chance to see me get through chemo and hes last image of me is all hairless! He died from metastatic cancer of the liver. So when i was diagnosed it was a massive blow to the family as my dad was then receiving hes final rounds of chemo So emotional its been tough.
Love & hugs bee 🐝 xx
I'm new to posting here despite starting chemo on 26th September....I finally have only just had some time and space to sit down and do this but have been reading some of this thread and wanted to say that your shared experiences have been a godsend to me!
I've had two hospital stays already (first one was due to a combined anxiety attack / body not handling the first chemo too well), then 4 days after my second FEC I somehow got a UTI and ended up in hospital for 3 nights. Bizarrely I didn't actually feel all that ill the second time round, I thought I had come down with a bit of a cold or something but the high temp flagged up the infection.
In between the hospital stays however, I have been very lucky to not feel too ill - most of my problems seem to be gastric / stomach ache or discomfort and my asthma seems to be a bit worse, so never sure if I'm short of breath or if its just the asthma! I do find myself very tired sometimes and I've noticed if I over exert myself in that first week after chemo, I tend to get the shakes and my heart feels like its racing.
All my hair is practically gone now so I'm embracing the bald look, its a bit upsetting at times but on the whole I found I actually enjoyed having really fast showers (who knew hair washing took so long!). Supposed to be getting a wig on the NHS but I've heard they are appalling so I might not bother, so long as my head is warm I'm happy to keep wearing scarves and hats.
Hope you are all doing ok with your respective treatments, look forward to going through this experience with you from here on