29-11-2018 09:29 PM
Little Pixie: I have found weekly Paclitaxel quite straightforward. My SEs usually only last a couple of days and have included tiredness, slightly loose bowels, slight tingling in the mouth on day one, dry eyes and skin, hairloss, problems sleeping (but that's probably from the steroids), and just generally feeling off colour for a couple of days; also my neutrophils have crashed a couple of times, but that may have been the carbolplain and/or an accumulative effect. I've not had any nausea or vomiting, no serious aches or pains. It's really quite manageable.
About the hair: I've now lost virtually all the hair on my head - just keeping a few bits off fluff to help keep my head warm; it's cold being bald! Also lost all the hair on my legs and under my arms - nice SE that one!, eye lashes and brows have defintiively thinned as has my pubic hair (bit of an odd lokk that!). The only hair I've kep is on my forearms and I'm hoping that might still go
Hope everyone is having a reasonable week. I was up 3 hours last night, bloody steriods! Am feeling ok otherwise though, which makes a nice change.
29-11-2018 09:23 PM
29-11-2018 07:49 PM
29-11-2018 07:02 PM
29-11-2018 06:47 PM
Aley - my nails have horizontal stripes & are getting really discoloured. I was also advised to wear nail varnish & keep rubbing in cutical & nail oils / creams and hope for the best.
Kath - I hope everything went well today for you. I’ve just had my 5th session of paclitaxel. Managed to get some meds from the doctor for oral thrush so let’s hope it works.
I also woke noticed yesterday that half of my right eyebrow has dissapeared, along with a chunk of eyelashes on same eye. 😉
Stay well ladies xx
28-11-2018 08:54 PM
28-11-2018 07:54 PM
28-11-2018 07:46 PM
28-11-2018 07:30 PM
28-11-2018 06:48 PM
Slightly obsessed with hair growth! Didn’t really worry about having it shaved off but it growing back does make me feel like there is light at the end of the tunnel! But don’t think I’ll be rushing to book the hairdressers quite yet. 🤣
27-11-2018 10:41 PM
27-11-2018 09:58 PM
I definitely have some fluff emerging and hope that the T doesn’t make it all fall out! Looked up how fast hair grows....0.35mm a day! At 1mm every 3 days....a centimetre by Christmas...🤣🤞🎉
27-11-2018 09:51 PM
27-11-2018 09:04 PM