Happy Birthday Lisa. Enjoy your trip to Newby Bridge. Sounds like the perfect way to escape for a few days.
Can’t agree more about the boredom. I’ve already bought most of my presents for Christmas and today started to write out Christmas cards. Don’t know what I’m going to do once we do get into December 🙃.
At least tomorrow is a busy day. Bloods 1st thing in the morning followed by an appointment with my oncologist. Then in the afternoon, I have my therapy session for genetic testing and as i’ll be in Manchester for the afternoon, we’re going to have a little wander around the Christmas markets before heading home.
Hope everyone has a good week xx
💐 🎈Happy Birthday 🎂 💐
It would be lovely if you get the chance to get away to such a beautiful part of the world for a couple of days!
Fresh air, log fires, gorgeous views, maybe a pub lunch or two? What a treat! Enjoy your day!
A relief to know you are not alone...it helps I think.
i would call myself a sort of ‘get on and do it’ sort of person...like a little project on the go whether around the house, holiday shopping, horses and animals...Now I have these empty days and I don’t seem to have the motivation or energy to do anything constructive. I am not really a big social person, I don’t have hoards visiting or popping in ...that’s not really me but I do look forward to my son coming home in the afternoon!
I thought about learning something new and, like you felt I couldn’t commit. Maybe the OU would be good, they do short courses don’t they?
I cant make decisions either...it’s like that little bit of sparkle has gone for the time being....I can’t concentrate, I can’t make decisions and I am frustrated by this person that isn’t really me...I did look at a photo the other day...taken weeks before my diagnosis....tarted up going out to a party (rare night out!) I don’t recognise that person anymore...
music sounds a good idea! Get that 🎹 practice in....is there a certain piece of music you could set yourself as a little challenge?
The gym is just a good way of getting me out of the house...I just do low key cycling, cross training, walking...a few weights to try and ease the tightness across my chest after mx. Classes are a step too far for me...hehehehe....I would have to book those 🤣.
A new pet is an excellent idea...we got a puppy at the end of last year ( our old lab had been pts a couple of years before) my son drove me mad begging and I gave in and bought a Vizsla - she has been amazing company for me over the last 6 months, always got a smile on her face and a warm welcome home. I also lost my horse just after my diagnosis....very sudden...so having the dog has given me a reason to get up and out on these dark mornings...
Here’s to the little positive things that just about keep us sane in this ever changing new world we are in. GGx
SOOO glad to hear I'm not the only one who is bored!! Fairly recently some journalist who's got cancer (can't remember his name) also moaned that having cancer is really boring, and he is defintively right! It's probably partly because we didn't exactly choose this career break and it's not of course particularly cheerful. Also, even when I do plan something, like you, I lose focus. I have a few things that I thought I would get stuck in to, like digging around in my family history (I trained as a historian years ago, so it's kind of interesting to go back to this type of research); and maybe exploring some new skills, like writing or jewellery making, but now that the SEs have become so unpredictable, I haven't wanted to sign up for any courses etc, in case I can't make it on that pearticular day. My husband suggested doing an Open University course and I dismissed that instantly, but actually, thinking about it now, maybe it's worth looking in to? I don't know - I just can't seem to make decisions! I used to play the piano a lot when I was young, so this morning, after many years of not really touching our piano, I had a 20 minute practice, which oddly enough cheered me up a bit - I wasn't as awful as I thought I would be! I think I'll try to be organised an build a bit of piano practice in to my day (let's see how long I stick with this!). I am also thinking of visiting a Maggies Centre, as I have heard so many positive things about this. Sadly, mine nearest one still involves an hour's worth of travelling, but hopefully it wil be worth it.
I'm impressed you've joined a gym - have you managed to go to regular classes? My Pilates teacher comes to our home, as my husband joins in with me and his work hours are so irregular, that we decided this would be the best option. Can't wriggle out of the class that way either, as I have no excuse about not feeling up to walking/travelling to a gym etc.
Our darling cat died last summer (the day before I got my cancer diagnosis, so that was a lovely week!) and we have just decided to get a kitten in January. My kids are so excited (my 17-year old daughter burst in to tears when I suggested this!) and I am looking forward to having a bit of company. So there is something positive to look forward to.
GabyF - that sums up how I feel...I’m bored too...and not sure what to do about it. I struggle to even read a book, I seem to lack focus. It’s good to know I’m not going mad by myself 😁.
I have joined a gym to give me something to ‘go’ to...and hopefully help me keep going through the winter...
Enjoy your Pilates 💪 it is soooo good for you and I hope you breathing improves too. GG
This whole thing is a bit of a rollercoaster of emotions and energy levels, and I am constantly having to remind myself of the endgoal to help me deal with it all. This week I thought I'd have more energy, as it's been drug-free. However, Friday and Saturday I had a bad stomach ache, not sure why, and today the breathlessness has come back with a vengeance.On the up-side, my taste is fully restored and I have been enjoying my food, which has been such a nice change. My mood has also been up and down, more down than up today. I guess essentially I'm bored - I've got things I can do, but I feel like I'm just filling time. I've had so many years of balancing fulltime employment and kids (and moaning about it! ) and I'm just not used to having to having all this spare time. It's difficult to plan specific activities, as I am never quite sure whether I'm going to be up to it on the day, but I think I need to do more of that nevertheless - I guess I can always change my plans, if I'm feeling a bit rubbish.
Another thing that has been troubling me is that I seem to be gaining weight. After my initial diagnosis I lost almost 4 kilos within a week and athough that was obviously due to the shock, I was actually quite pleased with the slimmer me. Then I gradually regained that weight, which was fine, but now my weight seems to be steadily creeping beyond my average.I don't know if that's drug-induced, or if I'm just eating too much! At least I've got a Pilates class coming up tomorrow evening, so I can try to work off some of the excess!
Hope everyone had a good weekend.
What a difference a day makes...I feel soooo much better today! Have to keep reminding myself on the really low days that ‘this too shall pass’ and it does...a new day and seemingly a load more energy too! Hopefully will continue and I can start to feel more positive....and active and generally more me...! Happy Days 😎GGxx
Lisa-T : Fab news! The thought of going back to waiting for results scares me 😟 so pleased the news was good.
Mama Tony ; Nice to hear that T is treating you kindly at the moment. Everything I read just fills me with dread....
GabyF : Make the most of your extra recovery time....💃
Catgarland : Finger crossed for T success....delighted you too have not had any SE yet....long may it last!
I have spent most most of the last day or two asleep! Decided my naughtyphils are at their low point...earlier in cycle than before but same ‘knocked out’ feeling. Hoping to bounce back today and get out....
Lisa - I hope your mammogram was ok today. It must have been a very stressful morning for you. Thinking of you! As for waking up early, it's really annoying. I tend to be awake for a couple of hours at night on the steroids - I try not to stress about it and just make sure I get some extra sleep after lunch. You've got a very good excuse for an afternoon nap!
My chemo didn't happen yesterday as my neutrophils were too low. Someone somewhere on the Forum called them "Naughtyphils" which definitively applies to mine! I was a bit disappointed initially, but actually now I'm quite pleased, as it gives my body a short break from all the strong medication. In fact I feel so much better today, still tired, but no aches, cramps, funny tastes etc. which makes a very nice change. Hopefully by next week, my bloods will be back to where they should be and I'll be ready for another round of SEs!
Hope everyone has a reasonable night. Gaby x
Mama Tony - I had my surgery before chemo. I had a double mastectomy although my surgeon was not at all keen because as you say they don’t want to remove a healthy boob. I had to have counselling to prove that I felt this was the right thing for me. If it’s something you do feel strongly about, dig your heels in. I argued with my surgeon for over an hour but in the end he did agree to do it. Unfortunately I lost one of the bloody implants due to an infection & have to go back for more surgery after chemo now 😢
Today’s been a hugely emotional day as we’ve been to the funeral of a friend who died of a brain tumour. It was a beautiful service & lovely to see so many friends there, but now feeling drained.
Love to everyone. X
My MRI shows a "partial reduction" in the tumour and a change in its' structure which at this reliatively early stage of treatment is good news. I'm so relieved that the treatment is working!! Just have to keep at it now, through all the various lovely SEs, and get rid of the blasted thing altogether.
My oncologist also showed me a gragh for my hemoglobin, which shows that this has crashed from a healthy level to rock bottom over the past 2-3 weeks, which explains my problems with breathing. The last few days I've actually noticed a marked improvement in this and I'm hoping that my doulbe-dose of carboplatin and paclitaxel tomorrow won't bring a return of the breathlessness. Still, if it comes back, at least I know what's causing it.
Lisa: I hope you're feeling betterand your bloods come up ok. Waiting for those blood results is always a bit nerve-wracking.
MamaTony: hope the meeting with your surgeon went well.
Anniej: thanks for the tipa bout Boots insurance. I'll definitively look in to this nearer the time of our holiday.
Galligirl: looking at and eventually booking somewhere lovely for a holiday gave me something nice to do for a couple ofhours, definitively to be recommended. I'm very tempted to book a short weekend somewhere in the UK in Spring, but until I have my dates for surgery and radiotheraphy, I'd better not.
Seeing my oncologist tomorrow and should get the results from my mid-way MRI scan. Fingers crossed the tumour has reduced at least a bit. Had another choice comment from my darling son, who suggested that the tumour may just have "dropped off" - even he realised that this is a very unlikely scenario and collapsed into a heap of giggles! I really wouldn't mind if it had just decided to "drop off", but I'll happily take a reduction in size tomorrow.
Have a good week, everyone.
Mornin’ all - here’s to a positive week and no nasty side effect surprises....
GabyF - I just love Italy....think I might start looking too....would like to think I could squeeze in an Easter break 😁☀️😎
Hi Gaby, I have secondaries in my lungs. Boots is really good for travel insurance and You can do it on line. My friend has just got USA coverage for £245 and she has a secondary in her eye. She had to phone them, though, as the terminology was awkward. Terminal v palliative came into it. EU coverage is no prob with them. Happy holidays. X
I haven't actually contacted any insurance companies yet, but the Macmillan website has some useful basic information on this matter. It seems that we may face higher premiums (thanks!) or can opt for a cancer-related exclusion. I'll probaby opt for the latter, though quite frankly I don't see why once I've finished treatment, I should then be punished by the insurers through higher premiums etc. It's not exactly as though I/we have had any choice on this, but I guess that's how they operate. I'm going to speak to my mother-in-law about this as well - she's had breast cancer three times (now in her 80s! I look at her and think, yep, it's absolutely possible and I will be fine.) and travels regularly, so someone must still be willing to insure her. I'll let you know if I find out anything useful.
Got a day out with husband tomorrow: Royal Academy exhibition followed by a nice lunch I just wish the restaurant had a couch for a post-lunch snooze!
Good morning everyone,
I'm hoping to persuade my oncologist to postpone the start of my EC by a few days, so that I don't have to go in to hospital the week of Christmas. Usually we host my parents for Christmas Eve (my dad is Danish, so Continential style) and then we head of to my in-laws for Christmas Day. Haven't really thought what I'm going to do about Christmas Eve yet. It's hard to plan, when you don't know what you're going to feel like. Luckily my husband loves cooking (though he makes a mess!) and will probably do most if not all of it. I just hope I'll be able to taste all that lovely food.
On a positive note, we've just booked ourselves a lovely holiday in Tuscany for next August. When I started chemo I couldn't face thinking about any sort of "future", but now I am really looking forward to next summer, by which time I will definitively have finished everything and, as my lovely daughter said, will "need some sunshine" to recover properly. It's given all of us something fantastic to look forward to that is beyond chemo, surgery, radiotherapy and SEs!
Have a lovely Sunday.
I think we’re all feeling the same about Christmas, but let’s hope that as we get into the New Year, we’re all close to being finished with chemo & it’s nasty SE’s. I’ve got 7 more weekly treatments to get through, the last one due just before NY, but my consultant said she might cancel the last one & let me finish at Christmas. It still seems like a long way off though - especially with the latest SE being daily undignified ‘bottom explosions’. Hope you all have a relaxing Sunday. Love & hugs Jacqs x
i have had sticky eyes too...not too bad just a bit irritating. I have given up on trying to predict SEs yesterday all my muscles really hurt felt like I had done some serious exercise (which clearly I haven’t 🤣). Took paracetamol all day...last night felt fine again!
Defo feel more tears at the moment - FEC done, but now thinking about T. I want Christmas and new year to be special as we’ve had such a horrible 6 months...there got me started again!
You were all very quick to reply - thanks so very much! So relieved, yet again, it's not just me. I'm finding this eye business rather annoying, as I love reading and that's just a bit harder with watery, twitching eyes! I can't wait for all this chemo to be over and to be able to return to something like normal. I've got 7 treatments left, 4 of which are EC which I am starting in December - so a whole lot of new side effects to get to grips with. Mind you, every time I think I've got the hang of things, something new pops up. Never a dull moment!
Hope you all have a good night.
Hope everyone is having a reasonable weekend.
Just wondering: is anyone having problems with their eyes? Mine are dry, I constantly feel as if I had something gritty in them, I keep getting annoying twitches in my eyelids, and all the lights in our house seem duller than usual. Very odd and rather irritating. I've lost a lot of my eye lashes which may account for some of these problems, but I've still got a reasonable amount left, especially on my eyelids.