So happy to hear your positive news Gaby
Pulapula - sending you lots of positive vibes for a good result from your mri tomorrow.
Kath - so sorry to hear about your tooth. Were they able to do any dental work. How are you coping with it? I can’t quite imagine how you deal with dental pain on top of all the other sh*t.
A Little Pixie - hope you enjoyed the time with your mum & sister. I’ve got my family visiting on Sunday for a pre- Xmas get together.
We saw the Fantastical Beasts film yesterday - very good. Setting the scene for a few more films to come I think, although I did doze off at beginning. Oops 😴😴😴
Its awful not being able to sleep. Friday night I was awake will 3.30am, then Saturday spent most of the day snoozing. It’s so hard to break that cycle especially when you just feel yuk.
Hope you managed some sleep eventually Gaby.
Aley I hope you had a better weekend and that your SE’s have now calmed down.
Its pouring down here, so we’ve decided on an afternoon at the cinema. Always feels like such a treat.
have a good day all xx
GabyF - can’t remember the last time I really slept properly either...I just toss and turn...drift off to sleep then wake with a hot flush! Or freezing cold cos I have shoved all the duvet off....I now just sleep when I can and hope it will all sort itself out later! I would just love to wake up refreshed and ready for the day....
Been aching all weekend following T last Thursday.....every muscle and joint in my legs particularly....should probably go for a little walk but too tired 🤣💤
It's my left eyelashes and bits of my right eyebrow that seem to be going! Still got a few bits of hair on my head sticking out at odd angles, so yes, I'll also be a bit of a stunnner for Christmas
I've been quite lucky with Paclitaxel this week: virtually no side effects except for feeling a bit tired and breathless, so I've taken advantage and had a couple of fairly busy days - meeting friends for tea, wrapping presents, and attending a university open day with my lovely daughter. It's been nice.
I also started doing some creative writing this week, just gathering up thoughts and ideas that have been floating through my mind over the last few months, and combining these with a bit of family history which I have been dabbling with. I've really enjoyed this - something to keep my mind busy, without any particular aim. I don't know how long I will keep it up for, but for now it's something to focus on and to stave off boredom.
Aley: Sorry you've had such a rotten couple of days. I really hope you're starting to feel a bit better.
Have a lovely Sunday, everyone.
Hi A Little Pixie - each hospital might differ but on the weeks that I only have Paclitaxel, I only have steroids as part of the pre-meds on the day. I don’t have any more to take home & it does help. Every 3rd week when I have Carboplatin & Paclitaxel I still have steroids for 3 days following chemo & they are the pits.
I agree with Gaby that the SE’s of Paclitaxel are so much more manageable and honestly having it weekly makes it count down a lot quicker.
Only problem is, think we’ll have baldy eyes for Xmas. Maybe need to rock the 😎look for a while.
Kath - i’ve got a central line & it’s been such a boost. My veins were rubbish from day 1, so had to have this fitted cause they couldn’t even get a picc line in. Does make life easier.
Aley - glad to hear you’ve had your last FEC & hope the next few days are kind to you.
Enjoy the weekend everyone. Sending hugs to you all xx
Little Pixie: I have found weekly Paclitaxel quite straightforward. My SEs usually only last a couple of days and have included tiredness, slightly loose bowels, slight tingling in the mouth on day one, dry eyes and skin, hairloss, problems sleeping (but that's probably from the steroids), and just generally feeling off colour for a couple of days; also my neutrophils have crashed a couple of times, but that may have been the carbolplain and/or an accumulative effect. I've not had any nausea or vomiting, no serious aches or pains. It's really quite manageable.
About the hair: I've now lost virtually all the hair on my head - just keeping a few bits off fluff to help keep my head warm; it's cold being bald! Also lost all the hair on my legs and under my arms - nice SE that one!, eye lashes and brows have defintiively thinned as has my pubic hair (bit of an odd lokk that!). The only hair I've kep is on my forearms and I'm hoping that might still go
Hope everyone is having a reasonable week. I was up 3 hours last night, bloody steriods! Am feeling ok otherwise though, which makes a nice change.
We were told to wear nail varnish containing silicium on both hands and feet to protect the nails. We were told to continue for 6 months after treatment.
Aley - my nails have horizontal stripes & are getting really discoloured. I was also advised to wear nail varnish & keep rubbing in cutical & nail oils / creams and hope for the best.
Kath - I hope everything went well today for you. I’ve just had my 5th session of paclitaxel. Managed to get some meds from the doctor for oral thrush so let’s hope it works.
I also woke noticed yesterday that half of my right eyebrow has dissapeared, along with a chunk of eyelashes on same eye. 😉
Stay well ladies xx
Slightly obsessed with hair growth! Didn’t really worry about having it shaved off but it growing back does make me feel like there is light at the end of the tunnel! But don’t think I’ll be rushing to book the hairdressers quite yet. 🤣