Hi MamaTony, sorry to hear that you are feeling sick, it's horrible isn't it! I had my first chemo on Tuesday 4th and have been very lucky in being prescribed fab antisickness meds which have worked really well (after the initial onslaught of chemical invaders!) Try For Emend and Ondansetron, I've been told by others that some health authorities don't give them routinely as they are expensive, but they are really good. Keep drinking lots of water and sleep when you can! I found that eating coconut water ice pops (homemade as shop bought are loaded with sugar) helped with getting extra fluid into me. 4 days in now and doing ok! Lots of love to you xx
well last night was fun! Nausea kicked in around 5ish, was physically sick 3 times 🙁 i have back up sickness tablets which helped and sleep horrendously! Managed to do the school run and currently snuggled on the sofa lol
Hi Rhi32 sorry to hear your news x
Hello all new Ladies,
I just thought I'd pop a few of my tips on here, not sure if they will help but anything is worth a try. I started chemo in June, I've had 3 x FEC and 2 x T (Docetaxol) so only 1 left to go. The FEC does seem to come with more sickness, I found I had to keep eating little and often to help, ginger biscuits, crackers, sucking boiled sweets all helped, and it only lasted a few days for me, bit like pregnancy sickness. I also had some strange cravings for sausage rolls and salt n vinegar crisps. Also don't put up with the SEs phone your nurse, or help line and they have lots of other tablets to try and tips to give. I remember the first time I called the hotline I so didn't want to but now I use it as my backup if needed, thats what they are there for. The T part of chemo, so far hasn't made me sick at all, but has more mouth related issues, lack of taste, slimy tongue etc. But again, speak to your helpline and they will provide extra meds for anything you need.
Sorry can't comment on icecap as didn't try it, my hair did begin shedding by day 12 of first FEC and then I had it shaved off on day 15, it was falling out so quickly and was terrible distressting but once gone, I found I could cope with it more. Eyelashes/eyebrows have thinned a lot but not until first T. I have a lovely wig which the NHS helped to fund and also loads of hats, scarves etc, you can find them really cheaply on Ebay or Amazon, £1.99 sometimes so you don't need to spend much. Have fun playing around with them, its quite surprising how quickly you get used to them, and if people stare... STARE BACK!
Take care, and rest up when you need too!
Gaby, a notepad is probably enough to jot down any side effects. On hindsight, maybe the spreadsheet was a bit overkill! xxx
Thanks for the water tips, makes sense, I need to start drinking more!!
Is anyone else on Paclitaxel? I am having it weekly and have my fifth chemo session tomorrow. So far my hair is falling out but I am not bald or even patchy yet. Today was the first day I started to wear a hat as it's got very thin but still there. I ahve been told it will definately fall out. Just wondering when to expect it all to fall out.
One down five to go!!
I had nurse led ec chemo, she was really lovely. A couple of strange sensations i must say lol.
Arm just felt abit sore and heavy.Was there about an hour, Im at home now snuggled up as feeling abit cold. Abit sickly but manageable. Hope i have an ok night, will let you know x
Hugs & love bee 🐝
I just read your blog, which I found really helpful - and it made me cry, particularly the bit about the daffodils. So much of what you say resonates with what I am feeling at the moment. I am trying to stay strong, not least for my family, but sometimes it's the small things that catch me unawares and the tears just flow. Had a look through your tips for chemo and will defintiively try some of them. I was very impressed you created a spreadsheet for your symptoms. Not sure I'll manage to do that, but I'm sure it's worth making a note of these things. I am already noticing that my memory is not very reliable, so who knows what will happen once I've started chemo next week.
I had my Picc line put in today. Wasn't half as bad as I had feared. I didn't feel a thing and although my arm feels slightly odd now, I think I will get used to this very quickly. At least I won't have needles being poked in to my arm every week. I don't like needles, but am fast learning to cope with all sorts of unpleasant and mildly embarrassing procedures.
I have also been told to drink lots of water and am trying to build up my intake - got myself a new water bottle that has a "well done!" marker for when I've finished. Pretty daft really, but oddly enough I am getting slightly competitive with myself about reaching that marker.
I've had a look at the scarves and hats on hipheadwear - has anyone tried their things? They're not cheap, but look well made and easy to use.
Ladies, the baldness anxiety is understandable, it's a no-choice style imposed upon you. My kids didn't want to see me bald, they wanted me to still look like Mum. I wore a wig and if it was a windy day I'd wear a newsboy cap over my wig as it felt better hanging on to the peak of a cap than my hair! You'll find your comfort zone with hats, wigs, scarves but it will take a bit of time in front of the mirror experimenting with "looks". My hair grew back exactly the same colour but is now a bit curly whereas before chemo it was very straight!
Kip is right about the water: it plumps up the veins which makes canulation easier and helps your body to cope with the chemo toxic load and also, with the FEC, it flushes your bladder out as you can wind up with severe bladder irritation. I always went for a wee straight after my FEC, before I left the hospital, as that first wee was really red and I didn't want that concentration sitting in my bladder too long. For anyone that hasn't seen my blog yet it's here and has a list of tips for chemo which worked well for me. http://lifeafterlola.com xxx
I found out from the girls on this forum so just incase you haven't been advised by your team..... you are entitled to free prescriptions for at least 5 years. I got a form from my gp.
Hi sunbean, with regard to drinking lots of water.
As someone has already said it makes it easier for the nurses to find a vein & less painful if your veins are nice and plump. I had a portacath so that didn’t matter for me.
I suffered awful nausea (was never actually sick) on FEC even though I was on the wonder drug Emend as well as granesetron and metoclopromide*, one of the ladies in my group had the same chemo but sailed through with barely any nausea, she swore it was due to all the water she drank. On the 2nd cycle I made sure I drank at least 2lts the day before the day of and the day after and pleased to say it made a huge difference, many of the other girls did the same with the same result.
*was switched for cyclizine as it turned out I was allergic to metoclopromide.