Member
Posts: 9
Registered: ‎31-07-2018

Re: September 2018 Chemo Starters.

Hello all and Happy New Year! Just enjoyed reading all your updates ice not been on for a while making sure I had good xmas and getting ready for the last T which was on time in 27.12! All done great news.....thought this would be a breeze but still so hard to get through the first 8 days!
I'm with you all on the hot flushes driving me crazy had to move into spare room as my man has got a terrible cold trying to avoid trip to A and E on my last session! Its so hard not being complacent now!

Anyway I'm counting down days and hoping the SE's stop soon as normal.
My little lumps have completely gone now and seeing surgeon next week to get ready for my last bit of surgery on 23.01.....really weird moving onto next stages oncologist been in touch to book me in for rads planning on 08.02 I'm in unchartered territory again so need to do some reading again me thinks!

Oh by the way my thumb nail is hanging off I'm so hoping no more go they're all hurting again! Another casualty .....

Re hair regrowth mine is going big guns I took advice at look good feel better and have been putting rose water on it daily and almond oil once a week...not sure if this is reason but its certainly helps with itching it started as white fuzz which is normal I would leave it and let it grow now I have had something called Grow Gorgeous recommended which I'm starting once out of cycle.....
Final thought does anyone else feel weird not starting a new year at work I so want to go back but know its best I dont......!!! Agggggh want normal life back...hopefully start a return after rads!
Much love all xxxx😍😍😍
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Morning everyone,

 

Did I say daily Pilates? What a load of rubbish! Defintiively not doing any today, as I had a bit of a rough evening and night. For the first time I actually felt sick last night and went to bed feeling very ropey. Had loads of hot flushes in the night, but still managed to get some sleep. Am feeling a bit wobbly this morning, so Pilates is off! Smiley Wink Also noticed that some of my finger nails have started to go slightly yellow Smiley Sad I really can't wait for all this bloddy chemo to be over...

 

Hope you all have a reasonable day.

 

Love,

Gaby x

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Happy New Year everyone! We're all slowly reaching the end of this rather lousy road and 2019 should gradually turn into a much happier year for all of us.

 

We also had a nice, relatively quiet Christmas. Loads of food (I had to be weighed today, as it was chemo day - oh dear!), lots of chatting with family and too little movement, so pretty much just the usual Smiley Very Happy

 

I have two EC sessions left, but as I have a 3-week gap between each, I won't finish chemo until 13 Feb. Then I get 6 weeks "off" before surgery and eventually radiotherapy. Should all be done by mid/late May. Roll on the summer!

 

Am feeling very dopey right now after chemo, but am trying not to go to sleep, as that tends to mess up my night. As for eye lashes, mine look like they might be trying to regrow, but I suppose the EC session today will stop that pretty quickly Smiley FrustratedHow lovely, Jacqs, that your hair is starting to regrow, even it's a bit flimsy. I'm sure it will take a bit of time for our hair to regain strength - maybe ask your hairdresser about shaving it again, or check the other treads to see if anyone has posted anything useful on this? 

 

Aley, I really hope you're starting to feel a bit better.

 

MamaTony, good luck with the surgery - I'll be thinking of you. It will definitively be a good feeling to get rid of whatever is left of that blasted tumour. And you get a flat tummy as well - I'm jealous! My surgery will apparently be very minor, basically just scraping out dead cancer cells. No tummy tuck on offer Smiley Sadso I am starting a new regime of daily Pilates to get that under control, or at least, that's the aim. Let's see whether I stick to this! Smiley Wink

 

Lots of love to you all

Gaby x

 

 

Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

Happy New Year to all you lovely ladies.  I hope it finds us all on our way to better health and a positive & fresh new start.

 

We’ve had a very quiet and relaxing week recharging batteries. Now just waiting for my appointment for surgery to have my rejected implant re-done.  

Mama Tony - like you there’s no signs of eyebrow or eyelash regrow.  My hair however is starting to grow, although it’s more like white fluff! Not sure if best option would be to shave it off again & see if it comes through any thicker? Any suggestions welcome.

 

xxx

 

Member
Posts: 35
Registered: ‎27-07-2018

Re: September 2018 Chemo Starters.

Merry Xmas everyone!!!

Thank goodness last day of 2018 tomorrow...not been my favourite year for obvious reasons🤧...anyways looking forward to a new year full of positive beginnings 🌟🌟

Had my last lot of chemo on the 20th Dec...woohoo...and have my surgery for mx, DIEP reconstruction and anxiliary node clearance on Jan 16th😳😳
Scared but will be glad to get the horrible tumour out of my body and have a new boob and flat tummy at the end of
it...part of rebuilding me👏🏻👏🏻

Now just looking in the mirror checking for signs of my hair and eyelashes regrowing that would just be magic🙏

Hope the SEs have been kind to everyone during this holiday period.

Much love to u all 💕🥰
Member
Posts: 43
Registered: ‎25-09-2018

Re: September 2018 Chemo Starters.

Hello lovely ladies, thanks for the thought Lisa-T! First ‘T’ bit of a shock tbh!! Could hardly move for about a week! Gradually getting out but still a bit of a struggle..hope you all had a lovely Christmas 🎄
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Evening you lovely lot!
Hope everyone has managed to keep well and enjoy their Christmas with loved ones. We had a very quiet one. Christmas Eve's weekly Paclitaxel has made me exhausted this week. Still been a lovely time tho and chilled in our jammies, just the 3 of us.
I'm counting my 3 weeks down for the last of my chemo. Sending love and health for the New Year xxx
Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

Merry Christmas everyone.  Hope you all enjoyed your day.  Xxx

Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Hope your first T is being kind to you Aley ❤️ 💪🏻 xx
Member
Posts: 43
Registered: ‎25-09-2018

Re: September 2018 Chemo Starters.

Happy Christmas everyone🎄 4 days post first ‘T’ this is a Christmas to remember!! 🙈😒
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Merry Christmas you lovely lot 😍😘
Hope everyone is reasonably well and managing to enjoy the days festivities.
Sending lots of love and festive cheer xxxx
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Merry Christmas to all you lovely ladies ... hope Santa was good to you 🎅🏻🎁 We definitely deserve it this year ❤️

Enjoy the festivities 🥂🎉 Sending lots of love. Lisa xx
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Congratulations Jacqs, MamaTony, Bee and Millie on your final session ... you did it 💪🏻 ...fantastic news, now time to celebrate 🎉🥂 (hope I haven’t missed anyone)

MamaTony - so sorry to hear that your tumour is misbehaving and might not be doing what it should be doing! Really hope it is just scar tissue too and that you don’t need any additional treatment after your mx ... sending big hugs ❤️

ALittlePixie - pleased you are coping better with SEs on the weekly Paclitaxel. You will be all done before you know it 😘 Hope you get to enjoy the holidays with no SE.

GabyF - sorry to hear about your daughter’s diagnosis and operation ... your family is going through so much already, it seems so unfair, but you will get through this 💪🏻 Sending lots of love ❤️

love and hugs to everyone. Lisa Xx
Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

WOOHOO!  Last chemo session completed🍾🍾🍾🎉🎉🎉

Although only just.  Had bloods taken on Tue & they called yesterday to say neutrophils were low again ( as per last week) & asked if I was happy to postpone.  I said no & asked if I could have them re-done today.  After having them done, ward sister confessed she made a mistake yesterday & they had been fine all along.  Anyway, was so happy 😁 did not complain.  

 

I also got got the results to my BRACA testing last night.  NEGATIVE!  So despite the fact that I have a strong family history of bc, looks like i’m just unlucky.  I need to do more research to find out if other members of the family could still have faulty genes though!

 

Bee & Millie - congratulations to you both too 🎉🎉🎉

 

Mama Tony - congratulations on your last chemo too 🎉🎉🎉. Sorry to hear your tumour growth has slowed. We’ll all be hoping & praying that it turns out to be scar tissue.  Will be thinking of you on 16th Jan ❤️❤️

 

A Little Pixie - i’m so happy that you’re coping better with the weekly.  4 weeks will fly ❤️❤️

 

Kath - again you’ll be there in no time.  For me, the weekly sessions seemed to go so quickly.  Possibly because I didn’t have the more extreme SE’s that you get with 3 weekly FEC etc.  ❤️❤️

 

Sending you all big hugs xxx

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Thanks MamaTony, for your very encouraging words.HeartIt is so good to know that your daughter's operation was a success. How wonderful! We were all in a bit of a state that evening, but our lovely daughter is so sensible and determined - she is doing lots of research on the operation (with lots of warnings from me about internet scare stories!) and we have had a number of very calm and interesting chats. My husband compared it a bit to when I first got the news about the BC - the initial shock is overwheming, but after some sleep and more info, it is something we can deal with as a family, one day at a time.

 

Thanks to everyone else as well of course for your very kind words. They really help!

 

Sounds like we're all more or less getting through this week in a reasonable state. Smiley HappyHeart I'm still stuck with this awful taste - I'm SO fed up with it - but am hoping that it will clear by Christmas. I really don't want my Christmas lunch tasting of metal!Smiley FrustratedHot flushes are also a nuisance, totally! And I've got a grand total of 5 eye lashes left - why? Smiley Very Happy

 

We're celebrating Christmas Eve with my parents (my dad is Danish, so Continental style) and then we're off to my in-laws on Christmas Day (great driving, absolutely no traffic Smiley Happy). No wifi and pretty lousy data connection in their house, so the kids might actually have to pick up a book or doing something other than fiddle with their phones! Smiley LOL

 

Big hugs to everyone HeartHeartHeart

 

Gx

Member
Posts: 25
Registered: ‎21-06-2018

Re: September 2018 Chemo Starters.

Thank you Alittlepixie

We are the same as I'm on pacitaxel weekly.

Am going today for my 8th session, only 7 more weeks to go after today.

Have started my herceptin injections, if I can cope with them you will be fine. Just make sure you tell them to inject it slowly.

I have vestibular issues as well and think they are playing me up as am feeling rubbish and fuzzy headed.

Oh well let's go and get some Christmas chemo. 🤣🤣🤣🤣

Have a good day everyone

Kath xx
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

CONGRATULATIONS Bee!!!!!! I'm so incredibly happy for you. Have the BEST Christmas celebration ever. Lots of love and take care of yourself xxxx
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Good morning you lovely lot
MamaTony - I'm so sorry to hear that your tumour might still be there and not shrunk any more. They are wrong sometimes, so I'll hope you won't need anymore chemo. Good luck for the surgery in the New Year 😘
Millie - well done for getting through this hell we're all in and have a super Christmas and New Year. It sounds like we'll probably be having radiotherapy etc at the same time!
Kath - I'm so sorry the SEs are so horrid. Crank up the pain meds and I hope it doesn't last too long for you.
Jacqs - do u have ur last chemo session today?! If so, congratulations and I'm so happy you've made it through.
Gaby - I'm so sorry to hear about your daughter and needing an op. I hope everything goes well and she'll be so much better after her op. It's just neverending for you at the mo. Sending love.
Paula - that's great you've decided on your surgery. The time will fly now. 😍
Lisa - you're nearly done with your chemo. Only one more!! I really hope the SEs aren't being too horrid for you over Christmas.
KEENO72 - great you've only got one more chemo to go too. It's lovely to be able to see the light at the end of the tunnel. I'm glad they got your meds more manageable for you.
Treemad - I hope SEs have calmed down for you and they've sorted your meds out. I use Lansoprazole for my acid gastric and it def helps.
Love to everyone and I hope I haven't missed too many people out.
I'm now on my weekly Paclitaxel (thanks for all your encouragement/advice you gave) and I'm coping soooooooooo much better! I have 2 days of pain but then it eases and I feel human again. My hair is bum fluff but it's def growing! It's all very amusing. I do feel like I can see the light at the end of the tunnel. Only 4 more weeks of it, then radiotherapy etc. I'm starting my Herceptin on New Years Eve. We're having a party on Christmas Eve and New Years Eve whilst I'm there having chemo. The nurses are fab, so I'll make the most of it. Have a fabulous Christmas everyone and I know we'll all get through this together xxx
Member
Posts: 13
Registered: ‎31-08-2018

Re: September 2018 Chemo Starters.

Hi all! Haven’t posted for awhile but just wanted to share TODAY IS MY LAST CHEMO!!!

I didn’t think this day would come! This site has been such a comfort thank you 😊.

For anyone that doesn’t know i had lumpectomy and 3 nodes removed, IDC, HER2+ (lovely injections to look forward to). Love to you all & keep strong 💪🏿 💕xx

Member
Posts: 35
Registered: ‎27-07-2018

Re: September 2018 Chemo Starters.

Hi All,

Due my last chemo tomorrow, have been counting down the days and so desperate to ring that bell 🔔 and see the back of it. HOWEVER, on Tuesday the oncologist was disappointed that the tumour has not continued to shrink🙁 it reduced from 6cms to 4cms after first docetaxol but has remained for last two🙁 He’s now talking about chemo tablets when I recover from my op as he suspects cancer still there. I’m triple negative.

Surgery Jan 16th for mx and recon with DIEP flap. Hoping after checking the tumour it is scar tissue and dead cancer cells🤞🤞🤞 He did say could be scar tissue but didn’t look convincing🙁

Gabyf: my daughter had the scoliosis op and the difference is great. Worrying time but the surgeons are amazing. And my daughter grew 1.5 inches after op because her spine was straightened 👍👍

Best wishes to all you lovely ladies💕