Member
Posts: 37
Registered: ‎31-07-2018

Re: September 2018 Chemo Starters.

What a difference a day makes...I feel soooo much better today! Have to keep reminding myself on the really low days that ‘this too shall pass’ and it does...a new day and seemingly a load more energy too! Hopefully will continue and I can start to feel more positive....and active and generally more me...! Happy Days 😎GGxx

Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Thanks GalliGirl ❤️ Hope your pesky naughtyphils pick up today and you manage to get out later 🤗

My nurse was all doom and gloom about the Ts too which was a bit worrying but so far I’m doing ok🤞🤞

Big hugs ❤️ Lisa xx
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Thanks MamaTony ❤️ I’m really hoping I cope as well as you with the Ts 🤞 I have got the injections but I had them for FEC too so I’m getting used to injecting myself (sort of) ... hubby was a bit too keen to do it for my liking!

Good luck with pushing for your double mastectomy ... I was all set to push for the same yesterday as can’t cope with all the stress! Free tummy tuck sounds very tempting too 🤔 I know some ladies have started their reconstruction already but there was too much info to take in for me! I have opted to leave it for now as I wanted to wait until this rollercoaster has calmed down a bit and then I will think about reconstruction. Also I’ve never had much up top so the mastectomy has not been a huge shock 🤪

Thanks everyone for all your support this week ❤️💪🏻 Big hugs Lisa xx
Member
Posts: 37
Registered: ‎31-07-2018

Re: September 2018 Chemo Starters.

Lisa-T : Fab news! The thought of going back to waiting for results scares me 😟 so pleased the news was good.

 

Mama Tony ; Nice to hear that T is treating you kindly at the moment. Everything I read just fills me with dread....

 

GabyF : Make the most of your extra recovery time....💃

 

Catgarland : Finger crossed for T success....delighted you too have not had any SE yet....long may it last! 

 

I have spent most most of the last day or two asleep! Decided my naughtyphils are at their low point...earlier in cycle than before but same ‘knocked out’ feeling. Hoping to bounce back today and get out....

 

GGx

Member
Posts: 35
Registered: ‎27-07-2018

Re: September 2018 Chemo Starters.

Hi Everyone😊

Lisa-T: I am soo happy for you that your scare on your good boob is nothing to worry about, I just can’t imagine how you must have felt waiting to hear that great news.
Peewee. 😅 Glad the T is being kind to you so far, honestly I have had 2 now and far prefer the side effects with this one. Do you have to inject your tummy every day for the first. week to boost your immunity levels? I am having to do that.

GabyF: Every cloud has a silver lining missing chemo and enjoying life without SE’s...enjoy x

CatGarland: Hoping the T works for you too as FEC made no difference for me but T did after just one dose so 🤞🤞

I had my meeting with the surgeon, as expected not keen to do double mastectomy and remove a healthy boob. To go back after genetic blood test result in mid December to discuss further. Definitely going to push for it though.
Met with the plastic surgeon to discuss reconstruction options...a bit daunting. However one option involves getting a free tummy tuck thrown in 👙😀...sounds good but big op involved. A lot to think about!

Love to all and minimal side effects💕❤️
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Thanks GabyF. All went well ... so relieved I nearly hugged the nurse 😂 She referred me for an ultrasound but no cause for concern ... thankfully! Bit vague about it really but they think breast tissue has hardened probably as a result of chemo.

Sorry to hear you didn’t have your chemo yesterday although it is quite nice having an extra week off 😊 I hope you’ve got some nice things planned ❤️

Hope you’ve had a good day today CatGarland and are still SE free 🥊 💪🏻 Noticed my arms feel itchy today but apart from that so far so good (can’t help but thinking this is the calm before the storm but hopefully not ha ha).

Big hugs ❤️ Lisa xx
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Evenin everyone,

 

Lisa - I hope your mammogram was ok today. It must have been a very stressful morning for you. Thinking of you! HeartAs for waking up early, it's really annoying. I tend to be awake for a couple of hours at night on the steroids - I try not to stress about it and just make sure I get some extra sleep after lunch. You've got a very good excuse for an afternoon nap!

 

My chemo didn't happen yesterday as my neutrophils were too low. Someone somewhere on the Forum called them "Naughtyphils" which definitively applies to mine! I was a bit disappointed initially, but actually now I'm quite pleased, as it gives my body a short break from all the strong medication. In fact I feel so much better today, still tired, but no aches, cramps, funny tastes etc. which makes a very nice change. Hopefully by next week, my bloods will be back to where they should be and I'll be ready for another round of SEs!

 

Hope everyone has a reasonable night. Gaby x

 

Member
Posts: 5
Registered: ‎15-10-2018

Re: September 2018 Chemo Starters.

Morning ladies.
Gaby that is fab news about the MRI, so pleased for you.

Lisa-T, I had my first T yesterday along with my H and then my first P the day before. so far no nasty SE to report. I just felt my lump and it feels like it has reduced in size slightly, it was 5-6cm (depending on who I asked) I’m not going to get my hopes up as the FEC didn’t reduce it at all but it did prevent it from getting larger which is fab.

Hope you all have a good day xx
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Morning,

First T done yesterday and I’m awake ridiculously early for me (annoying steroids!) ... so thought I would give you all a quick update.

Doing ok so far (famous last words I know 🤪) and no sickness which is a bit of a relief. Nurse said to expect that SE will hit me when I come off the steroids ... so probably the weekend. She said to expect bone pain and flu like symptoms which may mean I need a couple of days in bed. Also have to make sure I drink lots of water to avoid mouth problems. We will see what delights the weekend brings 🥊💪🏻 4 done now - 2 to go.

Got my mammogram this morning for the other lump I found, which I’m more stressed about than having the first T! Feels like I’m going back to the start of it all again ... hopefully it’s nothing and I can get back to stressing about the Ts ha ha! Just when you think you are getting a tiny bit closer to the finish .. it throws something else at you. My nerves are shot!

Take care ... hope everyone is coping well with SE this week ❤️💪🏻 Lisa xx
Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Great news about your MRI today GabyF 💪🏻🥊 Good luck for tomorrow xx

Ahh so sorry for your loss Jacqs, sending lots of love ❤️ xx

Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

Evening All

 

Mama Tony - I had my surgery before chemo.  I had a double mastectomy although my surgeon was not at all keen because as you say they don’t want to remove a healthy boob.  I had to have counselling to prove that I felt this was the right thing for me.  If it’s something you do feel strongly about, dig your heels in.  I argued with my surgeon for over an hour but in the end he did agree to do it.  Unfortunately I lost one of the bloody implants due to an infection & have to go back for more surgery after chemo now 😢

 

Today’s been a hugely emotional day as we’ve been to the funeral of a friend who died of a brain tumour. It was a beautiful service & lovely to see so many friends there, but now feeling drained.  

 

Love to everyone. X

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi everyone,

 

My MRI shows a "partial reduction" in the tumour and a change in its' structure which at this reliatively early stage of treatment is good news. I'm so relieved that the treatment is working!! Smiley Very HappyJust have to keep at it now, through all the various lovely SEs, and get rid of the blasted thing altogether.

 

My oncologist also showed me a gragh for my hemoglobin, which shows that this has crashed from a healthy level to rock bottom over the past 2-3 weeks, which explains my problems with breathing. The last few days I've actually noticed a marked improvement in this and I'm hoping that my doulbe-dose of carboplatin and paclitaxel tomorrow won't bring a return of the breathlessness. Still, if it comes back, at least I know what's causing it.

 

Lisa: I hope you're feeling betterand your bloods come up ok. Waiting for those blood results is always a bit nerve-wracking.

 

MamaTony: hope the meeting with your surgeon went well.

 

Gx

Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Good luck with the MRI today GabyF and your surgeon MamaTony ❤️

Had my bloods taken yesterday ready for my first T tomorrow ... hopefully I’ll be well enough to have it now my cold is on its way out 🤞 Lisa xx
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Evening MamaTony, thanks for that. It's reassuring to know the nausea won't be as bad. I've really struggled with that because I'm so sensitive to all the anti sickness drugs. That's fab news re the shrinkage. Good luck with your meeting tomorrow. I feel the same way RE my healthy breast. If my implant is destroyed through radiotherapy and they have to remove it, I'll be asking them to take my left healthy breast at the same time for the same reasons. Let us know how you get on. Good luck x
Member
Posts: 35
Registered: ‎27-07-2018

Re: September 2018 Chemo Starters.

Hi All,

Alittlepixie: I’ve had 2 T treatments so far and isn’t as bad as I was expecting tbh. Tiredness, loss of tastebuds which is rubbish🙁 and I notice my eyelashes coming out after this second one but haven’t had that nauseous feeling that FEC gives you. But has worked for me and tumour has shrunk from 6cm to 4cm on T so I’m delighted it’s working😀.

Gabyf: Good luck with your MRI results🤞🤞

I’ve got a meeting tomorrow with the surgeon about my op. I’ve been told I need a mastectomy but would prefer a double mastectomy as would only worry the cancer would come back. I don’t think they are too keen on removing a healthy breast tho so will need to see how I go.

All the best to everyone with their treatments/results ❤️
Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Good luck with your results tomorrow Gaby.

I had a meeting with my oncologist today who went through what to expect with T on Monday next week. She advised painting my nails a dark colour. Hope she's right about not feeling too sick. She said the fatigue would be hard tho. Any other things I should look out for?!
Ooh I'd love to book a holiday, but I daren't yet. I'm gonna wait til the radiotherapy is done in Jan/Feb and see if my reconstructed boob survives it first. I'm hopefully gonna do weekend UK breaks if I can manage it.
Lots of love to everyone and hope you have a good week without nasty SEs xxx
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Anniej: thanks for the tipa bout Boots insurance. I'll definitively look in to this nearer the time of our holiday.

 

Galligirl: looking at and eventually booking somewhere lovely for a holiday gave me something nice to do for a couple ofhours, definitively to be recommended. I'm very tempted to book a short weekend somewhere in the UK in Spring, but until I have my dates for surgery and radiotheraphy, I'd better not.

 

Seeing my oncologist tomorrow and should get the results from my mid-way MRI scan. Fingers crossed the tumour has reduced at least a bit. Had another choice comment from my darling son, who suggested that the tumour may just have "dropped off" - even he realised that this is a very unlikely scenario and collapsed into a heap of giggles! I really wouldn't mind if it had just decided to "drop off", but I'll happily take a reduction in size tomorrow.Smiley Wink

 

Have a good week, everyone.

 

Gx

Member
Posts: 37
Registered: ‎31-07-2018

Re: September 2018 Chemo Starters.

Mornin’ all - here’s to a positive week and no nasty side effect surprises....

 

GabyF - I just love Italy....think I might start looking too....would like to think I could squeeze in an Easter break 😁☀️😎

 

 

Community Champion
Posts: 1,051
Registered: ‎21-01-2017

Re: September 2018 Chemo Starters.

Hi Gaby, I have secondaries in my lungs. Boots is really good for travel insurance and You can do it on line. My friend has just got USA coverage for £245 and she has a secondary in her eye. She had to phone them, though, as the terminology was awkward. Terminal v palliative came into it. EU coverage is no prob with them. Happy holidays. X

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi Lisa,

 

I haven't actually contacted any insurance companies yet, but the Macmillan website has some useful basic information on this matter. It seems that we may face higher premiums (thanks!) or can opt for a cancer-related exclusion. I'll probaby opt for the latter, though quite frankly I don't see why once I've finished treatment, I should then be punished by the insurers through higher premiums etc. It's not exactly as though I/we have had any choice on this, but I guess that's how they operate.Smiley Frustrated I'm going to speak to my mother-in-law about this as well - she's had breast cancer three times (now in her 80s! I look at her and think, yep, it's absolutely possible and I will be fine.) and travels regularly, so someone must still be willing to insure her. I'll let you know if I find out anything useful.

 

Got a day out with husband tomorrow: Royal Academy exhibition followed by a nice lunch Smiley Very HappyI just wish the restaurant had a couch for a post-lunch snooze! Smiley Wink

 

Gx