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September 2018 Chemo Starters.

Member

Re: September 2018 Chemo Starters.

I could do with some ideas too! Have got frozen pineapple chunks and mango in the freezer and they help...some boiled sweets in the car....but I am struggling too! GGx

Member

Re: September 2018 Chemo Starters.

Thanks Galligirl. I've had a quick look at the Macmillan site and I don't think I'll qualify. As far as I can tell you have to have real issues with mobility and/or looking after yourself to qualify. I don't have any problems with any of those, but at least I've checked it out.

 

I'm loosing my sense of taste again today and getting that horrid metallic/musty taste instead. This seems to happen most weeks on day 2-3 after the treatment and is even worse when I have Carboplatin (i.e. next week - yipee!), when it seems to last for 3-4 days. I really like my food and find this one of the most annoying SE. Pineapple and very spicy curries seem to be the only thing that can overpower or at least reduce that awful taste, but I haven't found any really effective way of dealing with this. Anyone got any other tips?

 

Gx

Member

Re: September 2018 Chemo Starters.

Gabby F

There were some discussions recently on the Macmillan site I remember seeing...it might be worth a look. 

Member

Re: September 2018 Chemo Starters.

Hi ladies,

 

Aley: I had a bone scan as well, but I think that is because I am triple negative and they wanted to check out absolutely everything before I started on chemo. Luckily all my scans were clear.

 

About PIP: do we qualify for this automatically because we've got cancer, or do we have to show that there are mobility/other issues that limit what we can do? I've checked the government website, but that doesn't provide any detailed guidance, though it does seem to imply that you have to have limited mobility and/or problems with everyday tasks to qualify. I guess I can just phone their helpline to find out, but wondered if any of you know more about this?

 

Gx

 

 

Member

Re: September 2018 Chemo Starters.

Aley

 

i had a ct scan and bone scan after they found the extent of my cancer was more than expected - both were found to be clear!. Oncologist implied that ct scan was now good enough to see bone issues and that the bone scan was a double check ordered by surgeon. Just my experience. GG

Community Champion

Re: September 2018 Chemo Starters.

Hi Pulapula - although not the best place to be in one way in another you've found the best support and advice available by joining Breast Cancer Care's forum!  I certainly wouldn't have got through it all last year as well as I did had I not found this safe place!  I'm from May 2017 Chemo starter group and still on here browsing daily to see if I can offer any help or support following my experiences!

 

Anyhow, I've seen you mention PIP and my reply to you on your question is a definite YES - I didn't come across it until after the chemo, surgery and radiotherapy - I applied and I was successful in achieving the lower amount.  However, I was informed during my assessment that had I applied whilst going through chemo - I would have been accepted straightaway.  So please do fill in the form - there's nothing to loose! - it also removes the financial burden that cancer brings with it!  I work in school and I was unable to attend once the chemo started due to infection risk - I therefore ran out of full pay and had to go onto sick pay - a huge difference and at the same time - bills increase (due to being at home more!) and expenses increase (not being able to drive yourself at times and when I had surgery I had to have help to do things like hoovering, ironing etc).  One tip when completing the form - think of how you feel on your worse days......

 

Good luck with the remainder of your treatment xx

Member

Re: September 2018 Chemo Starters.

Hi
Did anyone have a bone scan? I didn’t and wondered if I should have asked for one?
Member

Re: September 2018 Chemo Starters.

Welcome Cat. I was diagnosed 8 August so similar to you. Ive also been told they can’t stage til after surgery but I’m grade 3 (Triple negs are always grade 3) and from googling I think I’m stage 2 as tumour is 30mm and sentinel lymph node biopsy results were negative.

Pat - I’ve got some toothpaste and mouthwash on prescription so my mouth is much better now thanks. Good news on your tumour shrinkage. Mine had shrunk (touching only - not scanned yet) by around 5mm after 1 FEC which was encouraging.

My kids aren’t bothered by my hair loss - I just have half an inch of fuzz. No eyebrow loss yet. Still on the waiting list for my pamper day but looking forward to it.

Has anyone on here thought about claiming PIP? I’ve got the form from DWP and filled it in but don’t know if I’m wasting my time applying?
Member

Re: September 2018 Chemo Starters.

Hi CatGarland,
Scary similarities! I was diagnosed on 6th August..I’m 45 I have 26mm grade 2 tumour with 1 lymph node involved (so far) Ive Had MRI of breasts and CT of abdomen..No PET scan though & I have wondered if I should ask for it..I’ve got a 4 year old who started reception in September, thankfully he’s fine & settled in well..I’ve got my second FEC on Friday so a little behind you, I think I’ve got 4 of each. Im having chemo first so was told by BCN they can’t stage it as I haven’t had surgery yet..
Member

Re: September 2018 Chemo Starters.

Hi Ladies.
Hope you’re all having a good day.
My name is Cat, I’m 40. I was diagnosed with HER2+ BC on 6th August, within a few days I had MRI, CT and PET scan but although being told the results (no spread) I’ve never actually been told what stage I am or the size of the tumor. I think it’s in 1 lymph node if I remember rightly.

I started FEC on 11th Sept, shaved my hair just after my second FEC and I have my 3rd FEC on Tuesday (23rd). My SE have been standard really, constant nausea for about 7 days (I take Emend, Ondansteron and Metoclopramide)

On 13th November I start THP chemo so I’m going to ask my onc what the side effects are with that. Im such a baby when it comes to being sick and nausea.

Mentally I’m getting stronger, I lost the plot when I was diagnosed as I lost my mum 11 years ago to BC. Hubby works away in the week so it’s just me and my 6 year old son Parker. He’s amazing and has dealt with my hair loss amazingly. I always wear my wig to school for him as he said he’s worried for me that people stare but today I went out in just a beanie and he didn’t even notice bless him. He is off school at the moment with a sickness bug, I’m praying I don’t catch it until after I’ve had my bloods taken on Friday.

Anyway, I think that’s it about me!! I’ve read all the posts in the thread so I’m all up to date with everything now I think.

Xx

Member

Re: September 2018 Chemo Starters.

Hi Pat73,
Had my Look Good Feel Better day yesterday-it was awesome & so many freebies! I’ve got my second FEC on Friday so ‘living it up’ re: food next few days!!
Member

Re: September 2018 Chemo Starters.

Hi Paula I have had the same problem with my gums after my second Fec but after a a couple of days it eased off but my dentist recommend a toothpaste called oranurse unflavoured toothpaste which I am sure will help went to see my oncologist yesterday she is pleased with my results as the tumours has shrunk they may be able to operate earlier rather then later which is good news for me have another treatment Friday hopefully won't be as bad as the second also I have booked for my beauty day can't wait you seemed to have enjoyed it hope you get on ok Pat
ktk
Member

Re: September 2018 Chemo Starters.

That’s interesting Gaby. My worst bout followed a couple of days when I couldn’t even swallow. My oncologist has given me meds which do help a bit. Kx
Member

Re: September 2018 Chemo Starters.

Looks like my breathlessness and tight chest were caused by my digestive problems, ie basically too much acid. They offered me some medication but as it's only happened once and I don't want to take any additional medication unless it's absolutely necessary, I declined for now. My neutrophils were also down again, but luckily bumped back up to acceptable levels over night. What fun all this is!

Gx
Member

Re: September 2018 Chemo Starters.

Hi - maybe a bit of anxiety? When I was first diagnosed and had my biopsies, I kept having moments of being short of breath...not painful just weird...it was put down to anxiety. Always worth getting it checked out though. GGx

Member

Re: September 2018 Chemo Starters.

Thanks, ktk. I'm sure that just what it is. I'll check with the nurses tomorrow and if they come up with any useful info or advice, I'll post it here.

 

Gx

ktk
Member

Re: September 2018 Chemo Starters.

Hi Gaby. I’ve had that breathless feeling too. I put it down to chemo fatigue, but if you are worried give your helpline a buzz.

Kx
Member

Re: September 2018 Chemo Starters.

Hi everone,

 

As I was walking back from the hospital after bloods and Picc Line care this morning, I started to feel rather breathless and my chest seemed to tighten a bit. The feeling only lasted while I was walking (takes me about 30 minutes door to door) and it's completely gone now that I've had a rest, but it was a bit odd. Has anyone else had that? I assume it's just another new SE, but will check it with my nurses tomorrow when I go in for chemo.

 

I had a lovely day out with my other half yesterday. He/we enjoyed the time "out" so much, he has booked another day off work in November. If you can persuade your hushand/partner to do the same occasionally, I really recommend it as a way of getting some quality time away from everything, chores at home, cancer, children, and just enjoying eachother's company. He even felt relaxed enough by mid-afternoon to ask me how I was coping, something he has not done for a few weeks. He then just listened to my answer, put his arm around me, which was perfect - just a bit of love and comfort. Heart

 

Hope everyone has a good / reasonable week. Smiley WinkI'm on number 6 of 16 tomorrow, or 6 out of 12 carboplatin/paclitaxel (which sounds much better), to be followed by 4 EC in December.

 

Gx

Kip Community Champion
Community Champion

Re: September 2018 Chemo Starters.

Hello girls, justbwanted to offer a bit of advixe for thise of you eith "itchy wigs".  I have bamboo wig liner which is realy soft little skull cap which you wear under the wig and makes it so much better, j got it from the wig shop, also found once all hair gone it was more comfy.  Foe those of you approaching half way, my hair began growing by T No 2, now 3 weeks post last chemo and have fluffy hair all over head!! As for husbands mine struggled with talkingnto me aoart from saying "be positive" and ",it will be ok".. its hard for them to know what to say or to voice how they feel i i think, but there is help for partners from macmillan if they need it.   

Kip

Member

Re: September 2018 Chemo Starters.

Lisa T - I still have a few strands all over too..so I have gone from looking like a scabby badger when I first went short to now a sort of ducky fuzz! I assumed I will loose it all after FEC 2. Still have eyebrows and lashes ...and I think losing those will be the hardest...

 

FEC 2 on Thursday...just want to make it this time....( I had by first FEC in August then got an infection in my implant and had to have it removed...the delay meant I went back to the beginning again...so I have done two FEC 1s...) 

 

🤞everyone stays well this week....GG

Member

Re: September 2018 Chemo Starters.

Hi MamaTony,

I’ve not braved the shave yet either (although I have cut it shorter). I’ve got a few strands all over my head left, but thought I would be completely bald by now, or is it usual to keep some hair?

Good luck for Thursday ... half way whoo hoo. We are getting there 💪🏻❤️ Lisa xx
Member

Re: September 2018 Chemo Starters.

Hi All,

The hair loss is just such a hard one to cope with. I don’t think I’ve felt as traumatised by anything as seeing my lovely hair coming out. I’ve not braved the shave yet even although I have only a pathetic few strands left but at least I can see a bit of hair under my scarves etc. I’m now wearing my wig quite a bit and feeling quite confident in it now... still a bit itchy mind you but not sure you can avoid that??

My hubby sounds like yours Lisa-T, he’s doing his best but always says ‘It will be fine’ when I try and talk to him about my fears. But I know he’s putting a brave face on for me which I admire and appreciate💕 Not easy for our other half’s either.

I am due my third FEC on Thursday. So the next few days I will be catching up on all my housework and getting a big food shop in preparation for a rough week of SE’s. However after the first week I am usually feeling fine so I can cope with that. Head down and I will be half way through treatment after Thursday...woohoo👏🏻👏🏻 And closer to ringing that bell 🔔🍾

Best wishes to everyone ❤️👍
Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

I washed my hair this morning and lost two large fistfuls of hair - it was just awful Smiley Sad. So, I phoned my lovely hairdresser and went to get a radical, very short pixie cut. And rather surpringly I actually quite like it. Now at least I don't have tons of loose hair falling in my food, clinging to my clothes and falling on my pillow. Also, I'm hoping that the lack of weight might actually help my remaining hair a bit. I'm so relieved I've done this. I also went for a headscarf workshop on Friday at my local Macmillan Centre. A lovely lady showed me lots of different ways how to wraps scarves around my head. She also had a huge selection of lovely beanies etc that she makes herself. They weren't cheap, but I treated myself to a couple. I'll need to keep my head warm, even if I don't loose all my hair.

 

I think I'm lucky with my husband. He's very worried of course and I've had to stop him from giving me "concerned" looks all the time, checking up on how I am etc. It was getting a little too much. But he now seems to have found a better balance. He wanted to come to the hospital for my treatment every week, but I have instead persuaded him to take the occasional day off when I'm actually feeling well, so that we can spend some quality time together, e.g. go to the cinema or for a walk. That way we're not just always talking about this wretched cancer and can enjoy eachother's company (without the children!). It's important not to forgot how to do that, I think. We've got our first "date" on Monday and are planning to go to an exhibition followed by a nice lunch - Mondays are my good days, so I'll enjoy my food!

 

Have a lovely Sunday (despite the rain!).

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi Pulapula,

I think my husband is really struggling too ... he just seems to be keeping really busy with work and trying not to think about it. Won’t talk about what’s going on ... if I say I’m worried he just says ‘you’ll be fine’ and when my hair was falling out and I was having a bit of a melt down ‘it’s just part of recovery’ ... quite dismissive of everything. I think it’s his way of coping but doesn’t really help me at all.

I’m sure having your Mum there will help ... it will take the pressure off hubby too.

I’ve got my 3rd FEC on Wednesday so starting to dread SE starting all over again 💪🏻 💕

Big hugs to all the ladies who are struggling with infections and SE 😘 hope you are feeling brighter today ❤️
Lisa xx
Member

Re: September 2018 Chemo Starters.

Thanks ktk. I’ve already shaved to a #4 which is half an inch so just wondering whether to go lower or just wait.

I’m sure my hubby is scared, but he’s just so busy trying to do everything I’m sure chatting is the bottom of his list after work, kids, house (DIY), dog, etc. My mum is coming tomorrow until fri which should hopefully help me and him out (and I know he’s been invited out by friends on thurs night so hopefully he’ll go). Just hope my mum behaves. She nursed my dad though cancer (we lost him 6 years ago) but with the kids around I want her to be positive and not all emotional! She found my short haircut a shock and said people need to get used to it and I don’t want to shock people!!! That’s the least of my worries! I’d better warn her that I’m nearly bald!
ktk
Member

Re: September 2018 Chemo Starters.

Morning Ladies. Sorry to hear that some of you are having a rough time. Do look after yourselves. Hibernate in bed if you need to and do not hesitate to ring your helplines.

Pulapula, I shaved my head as soon as the big shred came. When I found what looked like a dead animal in the shower, off the rest came! You then eventually lose the stubble too, but it is not as noticeable as losing longer hair. I am sorry to hear that your OH is struggling to cope. Perhaps he needs someone in a similar situation to him to talk to. You could try talking to your BCN or your local charity who might be able to suggest some support for him. It is so hard for partners as not only do they see you suffering they have to consider losing you, which they will not have done before. Remember he loves you and is probably as scared or more so than you.

Much love to all. Keep warm and dry. Kxxx
Member

Re: September 2018 Chemo Starters.

Kath1977, sorry to hear you’ve been feeling so fatigued and I’m relieved to hear you have got a reason for it and have some meds to help.

Sending positive vibes to others who have colds, mouth issues, and other SE too.

I had my second FEC on Thursday and have felt better than after the first which I think was because I had my PICC line put in then too so I had some SE from that.

I was however awake 230-630 in the night, tossing and turning and feeling sick, and I think I just needed a bit of food! Just caught up on my sleep now after some breakfast. Might need to keep a banana by my bed if it happens again.

My hair has nearly all fallen out. I have been encouraging it as I didn’t want it falling everywhere so have been bathing and showering twice a day and washing it through. It’s patchy though so do you think I need to do a final shave or do you think it will it all come out soon?

Anyone else finding it hard with their partner. I know mine is really busy at work (lots of stress) but he is really irritable and whilst he will fetch me things to save me getting up but it’s in a begrudging way. He has a real issue with loose hairs so he’s not been great when he finds some of mine!
Member

Re: September 2018 Chemo Starters.

Got a cold ☹️.....Sending Hubble out to buy tissues, lemsip and pineapple chunks 🙂....

Member

Re: September 2018 Chemo Starters.

Thanks Kip. Nurse had suggested pineapple which i’m gonna try today. Think I’ll pop into gp’s to see if he can offer anything else. Jacqs xx
ktk
Member

Re: September 2018 Chemo Starters.

Aley, you bet!!🍷🍻🥂🍸
Member

Re: September 2018 Chemo Starters.

Hi Ladies

Sorry haven't been on for a while.

Had my 2nd FEC 8 days ago and have been so wiped out by it. Thankfully no sickness as they gave me IV anti sickness this time because of how sick I was on 1st.

But fatigue is unbelievable, I never imagined it would be this bad.

Yesterday I was on day 7 and still feel so ill so phoned velindre hospital (which is my cancer hospital) and spoke to sister on treatment line and she got in touch with my GP and got me an appointment.

Turns out I've got a chest infection, so now on antibiotics and steroids.

Hope you are all well everyone.

Love to you all

Kath xxx
Member

Re: September 2018 Chemo Starters.

Hi Kip
Thanks. Anyone manage the odd beer or glass of wine?
Kip Community Champion
Community Champion

Re: September 2018 Chemo Starters.

Hi Jacqs and Aley, regarding the mouth issues.  I had a terrible bout of oral thrush, mouth ulcers and generally yuckiness when on my first T cycle.  It also had a greenish tinge to it and was slimy and really sore and thickly coated.  The inside of my cheeks had ulcers and I kept biting on them.  I did end up in hospital that cycle as my neuts were very low 0.1 I think.  I had a high temperature which was what prompted a call to the chemo hotline.   I had some blood tests whilst in hospital and a chest xray to asses whether I had an infection but I didn't just low neuts.  I was kept in for 2 days and given IV antibiotics.  I also then got the ilfrastrim injections after each chemo to help keep the neuts up.   I was put on flucozonale for the mouth thrush, 1 a day, and also used Nystatin (which I got from GP) for my tongue.   Every cycle after that I got the flucozonale to take home with my usual chemo drugs and started taking it at a soon as my mouth started to feel sore, about day 4 and took it for 10 days regardless aand although my mouth still lost taste etc it never got as bad again.   I also mixed up a solution of cooled boiled water with salt in and gargled with it after every time I ate and also inbetween, I think it did help.  I was also told to eat pineapple as this cuts through the nastiness, I never actually tried it and still have tins of pineapple in the cupboard.  A lady at chemo told me to freeze chunks of fresh pineapple on cocktail sticks and suck on those to help with the mouth.  

Hope something helps with the mouth... it really was horrible.. but like everything else it does pass and now almost 3 weeks post chemo I have taste buds and a pink tongue!

 

Kip

Member

Re: September 2018 Chemo Starters.

Relieved to have my 3rd & final FEC today. Left with awful taste in my mouth. Nurse suggested eating pineapple, but would appreciate any other suggestions.  

Aley - i’ve got a coating on my tongue with a greenish tinge to it.  I mentioned it whilst having my chemo session today but nurse didn’t seem overly interested - didn’t even look at it.  Wondered if this is what’s causing such bad taste in my mouth.  X

Member

Re: September 2018 Chemo Starters.

Hi Kip
Good to hear from you. Saw my gp yesterday who noticed I had oral thrush and wanted me to have a blood test immediately. The chemo unit called later on to say my immunity was very low..I’m due my second FEC next Friday, blood test again Tuesday, so I’m hoping I’m ok for it. Does anyone know how they decide whether you’re having 3 FEC or 4?
Kip Community Champion
Community Champion

Re: September 2018 Chemo Starters.

Hi ladies,

Glad to see you are all getting along well, and finding those good days amongst the SEs.   As for hair, mine started growing towards end of FEC, and now I'm finished chemo (almost 3 weeks ago) I have a full covering of white hair, its quite soft and downy like baby hair still but its hair at least.  It started growing on the T part of chemo.  Leg hair and elsewhere not doing much and the eyelashes and eyebrows not coming in yet, but they didn't fall out until 2nd T so last to go.

Kip

xx

Member

Re: September 2018 Chemo Starters.

Luckily my neutrophils edged up to 1 from 0.99 (whatever that means) and so I could go ahead with the chemo today, which was a huge relief. Apparently the Carboplatin, which I had last week, has this effect. I'm also low on Sodium, which seems odd, but apparently it's nothing to worry about. I did ask whether I should be eating anything in particular to help bring that up again, but just got a funny look from the nurse. Oh, and here's a tip, maybe: another lady was saying that she is going to try putting olive oil in her nose to combat dryness - the nurse responded by asking if she wanted balsamic vinegar as well. Smiley TongueMight be worth trying though (the olive oil, not the vinegar!).

 

Gx

Member

Re: September 2018 Chemo Starters.

Morning everyone,

I'm waiting in the chemo unit for a re-run of my bloods. Low neutrophils, bother. I'm actually feeling better than I have done for days, so this is doubly annoying, but hopefully they will have stabilised so I can go ahead with today's chemo.

Glad you're feeling better too, Galligirl. It's such a relief to get back to to something like normal and be able to do things. Have a lovely day!

Gx
Member

Re: September 2018 Chemo Starters.

It is amazing how one day can be so different to the next! Yesterday, Day 12 after 1st FEC, felt rubbish...a bingo card of SEs I was wiped out, felt crap, nauseous, dodgy tum, aching muscles....woke up this morning and feel like a different person 😁. Thank goodness! Sending good wishes to all those suffering today...it will pass...just hang in there and be kind to yourself.

Member

Re: September 2018 Chemo Starters.

Hi Aley.  I would agree on both points.  I’ve been told I look younger in my wig & I too loved my short crop.

I’ve heard a few people say they have some re-growth after the last FEC, buts it’s quite fluffy.

Xx

ktk
Member

Re: September 2018 Chemo Starters.

You start to get a light fuzz by the end of FEC. I have now finished chemo last week and I am more self conscious about the chemo fuzz than I was about my shaved head! Tend to wear a beanie or scarf out, but mainly because it is too cold to go bare!! A few hairs beginning to reappear on arms and legs too. Kx
Member

Re: September 2018 Chemo Starters.

Hi Jacqs
Great to hear you’ve had compliments! My wig fitter and a lot of other people have said I look better in it than my own hair 🤣
Also my extreme short hair cut prior to my mass hair loss looks very cool! I think this is the way to go when it starts growing again!! Does hair start growing back when FEC bit is over does anyone know?
Member

Re: September 2018 Chemo Starters.

Hi Everyone

Hope you are all doing well.  

Well after a weeks rest, i’m due to have my 3rd Fec on Thursday & I’ve already started with sleepless nights.  Can’t help wondering what’s going to happen with this one.

On a more positive note I got stopped yesterday whilst out shopping with my hubby by someone complimenting me on my lovely grey hair. She said her & her colleagues were debating wether or not to go grey.  I didn’t have the heart to tell her that it was a wig although it is the same colour as my hair was prior to losing it, so was able to chat to her about going grey originally.  Made me feel more confident about the wearing the wig though.

have a good evening all xx

 

ktk
Member

Re: September 2018 Chemo Starters.

Well done MamaTony. Lots of positive vibes there!! The nice thing about FEC is that it follows a pattern so you can enjoy the second two weeks. Glad you are liking your wig. Lots of love. Kxxx
Member

Re: September 2018 Chemo Starters.

Hi Everyone,

I have had 2 rounds of FEC and third due on 18th Oct.
First week after chemo is rough for me with nausea then I feel fine. Have some oral issues with a mouth ulcer at the moment but is manageable.

Hair loss is just such a bummer🙁 even although you think you are prepared it just hits you mentally when you are staring at big clumps of your lovely hair🤦🏻‍♀️
I did cold capping but sadly didn’t work for me have only about 5% left. However a friend is is going through the same treatment as me at the same time is doing really well with her hair. So cold capping definitely works for some👏🏻

I am quite confident now wearing my wig and feel when I have it on I feel like the ‘old me’ and my teenagers think it looks great 👍People keep commenting how well I am looking and overall feel much better on chemo for the 2 weeks out of three in my cycle. Fingers crossed continues like this🤞

Best wishes to everyone 💐
Member

Re: September 2018 Chemo Starters.

Hello ladies

Can I interest any of you in a game to help us combat chemo brain????? It's on this forum in the coffee lounge /chat and games section and is called word association again. It's a little bit of light relief!

I think this link might take you to it
https://forum.breastcancercare.org.uk/t5/Chat-and-games/WORD-ASSOCIATION-AGAIN/td-p/159964

Hope to see you over there: Let's get that gray matter pumping 😁🙌😵

Sue xx
Member

Re: September 2018 Chemo Starters.

Hi all, I keep thinking my hair will start to fall out but no sign yet (the odd hair when I wash/rub my head), and its time for my second FEC on Thursday. My scalp is so sore though on the top. I do like my short crop that I had done last week but I guess once it starts coming out I'll be shaving it off. My hairdresser said she would come round to the house to shave it if/when I need her to although we do have clippers for the kids hair so I could do it myself... My mouth is not as sore now, so thats good news. Just got to gear myself up for the next round. Wishing you all well with your ongoing treatment x
ktk
Member

Re: September 2018 Chemo Starters.

Aley it is always worth ringing the BCN just to put your mind at rest. They don’t mind how often you ring!! Kx
Member

Re: September 2018 Chemo Starters.

Hi Gaby, sorry bout hair loss, I too had a shock yesterday when I started losing it in clumps. I thought I was ready for it with a ‘bring it on’ sort of attitude but ended up a mess (mentally) yesterday when it actually did. Anyway a good friend came with me to the hairdresser today to get a very radical pre totally losing it cut! My armpit is swollen and painful, I’m having chemo first, surgery next, has anyone done it this way round and experienced pain & swelling? Should I mention it to BCN? Oh they did ‘tag’ the 1 lymph node they say it’s in and the tumour-hope the metal tag isn’t swirling around in my armpit!!
Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

We all seem to have gone a bit quiet over the weekend. Hope everyone is ok?! I've had a bit of a rough week (at least by my standards). Too little sleep, lurching between diahorrea and constipation, slight constant nausea, food and drinks taste horrible etc. I had my second dose of Carboplatin last Wednesday and am blaming that; the weekly Paclitaxel doesn't seem to cause any serious problems as yet. Have been feeling rather low on energy as a result and so now am also feeling bored, without being able to rouse myself to do any sort of interesting activity.

 

I'm now also loosing my hair everywhere - don't mind it on my legs, quite pleased with that actually, but the other "bits" will take some getting used to. Have signed up for a headscarf workshop on Friday at my Macmillan Cetre - if I'm going to loose my hair, I might as well try to get some style in there somehow!

 

Right now the chemo seems a bit of a long slog. My lovely husband is keen to book a holiday for next year to give us something positive to look forward to, but I am so uncertain about the timing of my surgery etc that I am holding off for now. It's nice to dream about having a break somehwere nice next year though.

 

Gx