17-11-2018 10:22 PM
What a difference a day makes...I feel soooo much better today! Have to keep reminding myself on the really low days that ‘this too shall pass’ and it does...a new day and seemingly a load more energy too! Hopefully will continue and I can start to feel more positive....and active and generally more me...! Happy Days 😎GGxx
16-11-2018 07:37 AM
16-11-2018 07:27 AM
16-11-2018 07:22 AM
Lisa-T : Fab news! The thought of going back to waiting for results scares me 😟 so pleased the news was good.
Mama Tony ; Nice to hear that T is treating you kindly at the moment. Everything I read just fills me with dread....
GabyF : Make the most of your extra recovery time....💃
Catgarland : Finger crossed for T success....delighted you too have not had any SE yet....long may it last!
I have spent most most of the last day or two asleep! Decided my naughtyphils are at their low point...earlier in cycle than before but same ‘knocked out’ feeling. Hoping to bounce back today and get out....
16-11-2018 01:37 AM
15-11-2018 11:30 PM
15-11-2018 10:29 PM
Lisa - I hope your mammogram was ok today. It must have been a very stressful morning for you. Thinking of you! As for waking up early, it's really annoying. I tend to be awake for a couple of hours at night on the steroids - I try not to stress about it and just make sure I get some extra sleep after lunch. You've got a very good excuse for an afternoon nap!
My chemo didn't happen yesterday as my neutrophils were too low. Someone somewhere on the Forum called them "Naughtyphils" which definitively applies to mine! I was a bit disappointed initially, but actually now I'm quite pleased, as it gives my body a short break from all the strong medication. In fact I feel so much better today, still tired, but no aches, cramps, funny tastes etc. which makes a very nice change. Hopefully by next week, my bloods will be back to where they should be and I'll be ready for another round of SEs!
Hope everyone has a reasonable night. Gaby x
15-11-2018 07:47 AM
15-11-2018 06:41 AM
13-11-2018 05:09 PM
Mama Tony - I had my surgery before chemo. I had a double mastectomy although my surgeon was not at all keen because as you say they don’t want to remove a healthy boob. I had to have counselling to prove that I felt this was the right thing for me. If it’s something you do feel strongly about, dig your heels in. I argued with my surgeon for over an hour but in the end he did agree to do it. Unfortunately I lost one of the bloody implants due to an infection & have to go back for more surgery after chemo now 😢
Today’s been a hugely emotional day as we’ve been to the funeral of a friend who died of a brain tumour. It was a beautiful service & lovely to see so many friends there, but now feeling drained.
Love to everyone. X
13-11-2018 04:03 PM
My MRI shows a "partial reduction" in the tumour and a change in its' structure which at this reliatively early stage of treatment is good news. I'm so relieved that the treatment is working!! Just have to keep at it now, through all the various lovely SEs, and get rid of the blasted thing altogether.
My oncologist also showed me a gragh for my hemoglobin, which shows that this has crashed from a healthy level to rock bottom over the past 2-3 weeks, which explains my problems with breathing. The last few days I've actually noticed a marked improvement in this and I'm hoping that my doulbe-dose of carboplatin and paclitaxel tomorrow won't bring a return of the breathlessness. Still, if it comes back, at least I know what's causing it.
Lisa: I hope you're feeling betterand your bloods come up ok. Waiting for those blood results is always a bit nerve-wracking.
MamaTony: hope the meeting with your surgeon went well.
13-11-2018 07:42 AM
12-11-2018 11:43 PM
12-11-2018 11:35 PM
12-11-2018 06:33 PM
12-11-2018 06:16 PM
Anniej: thanks for the tipa bout Boots insurance. I'll definitively look in to this nearer the time of our holiday.
Galligirl: looking at and eventually booking somewhere lovely for a holiday gave me something nice to do for a couple ofhours, definitively to be recommended. I'm very tempted to book a short weekend somewhere in the UK in Spring, but until I have my dates for surgery and radiotheraphy, I'd better not.
Seeing my oncologist tomorrow and should get the results from my mid-way MRI scan. Fingers crossed the tumour has reduced at least a bit. Had another choice comment from my darling son, who suggested that the tumour may just have "dropped off" - even he realised that this is a very unlikely scenario and collapsed into a heap of giggles! I really wouldn't mind if it had just decided to "drop off", but I'll happily take a reduction in size tomorrow.
Have a good week, everyone.
12-11-2018 08:40 AM
Mornin’ all - here’s to a positive week and no nasty side effect surprises....
GabyF - I just love Italy....think I might start looking too....would like to think I could squeeze in an Easter break 😁☀️😎
11-11-2018 06:26 PM
Hi Gaby, I have secondaries in my lungs. Boots is really good for travel insurance and You can do it on line. My friend has just got USA coverage for £245 and she has a secondary in her eye. She had to phone them, though, as the terminology was awkward. Terminal v palliative came into it. EU coverage is no prob with them. Happy holidays. X
11-11-2018 06:02 PM
I haven't actually contacted any insurance companies yet, but the Macmillan website has some useful basic information on this matter. It seems that we may face higher premiums (thanks!) or can opt for a cancer-related exclusion. I'll probaby opt for the latter, though quite frankly I don't see why once I've finished treatment, I should then be punished by the insurers through higher premiums etc. It's not exactly as though I/we have had any choice on this, but I guess that's how they operate. I'm going to speak to my mother-in-law about this as well - she's had breast cancer three times (now in her 80s! I look at her and think, yep, it's absolutely possible and I will be fine.) and travels regularly, so someone must still be willing to insure her. I'll let you know if I find out anything useful.
Got a day out with husband tomorrow: Royal Academy exhibition followed by a nice lunch I just wish the restaurant had a couch for a post-lunch snooze!