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September 2018 Chemo Starters.

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Member

Re: September 2018 Chemo Starters.

Hi everyone Just a quickie to say hi and hope Jacqs is OK after the op. Hope ur rads went well today Gaby. Hi Lisa! Hi Aley! I'll msg longer tmoz and catch up with you all. Lots of love xxx
Member

Re: September 2018 Chemo Starters.

Hi everyone Just a quickie to say hi and hope Jacqs is OK after the op. Hope ur rads went well today Gaby. Hi Lisa! I'll msg longer tmoz and catch up with you all. Lots of love xxx
Member

Re: September 2018 Chemo Starters.

Hi Jacqs, I'm at Guy's just waiting for today's radiotherapy, so just a quick message to say good luck for the op! 🍀👍😘 I'll be thinking of you! Hope the food isn't too awful 😉😬. Gxx 😍
Kip Community Champion
Community Champion

Re: September 2018 Chemo Starters.

Hi Ladies, just wishing you good luck with the op Jacqs and wanted to say, its all normal to feel slightly up and down about things, moving on is very difficult especially when some of you still have parts of treatment outstanding. I think the idea of a Grown Up Gap Year is fabulous.. bloomin' eck we all deserve one! Keep on keeping on.. big hugs to all Love Kip xx
Member

Re: September 2018 Chemo Starters.

Good luck for today Jacqs ❤️ will be thinking of you ... nearly there 🎉🥂 make sure you take it easy 💪🏻❤️😘 xx

Member

Re: September 2018 Chemo Starters.

Hi All,

hope everyone is preparing for a lovely bank holiday weekend.  

Lisa - I hope you’ve had a lovely holiday. 

Well I am in hospital waiting my operation.  My echo scan didn’t show any major concerns - something about rate of blood being pumped being ever so slightly low but not major.  Will have to have couple follow up appointments at later date, but for now boob op happening.

surgeon is not sure if it’ll be straight forward reconstruction or if i’ll Have to have expander put in, then another op in 2/3 months time.  Will find out later today.

i’ll be Spending bank holiday weekend here.  CAn’t say i’m Looking forward to it, especially the food, but am keeping my fingers crossed it’s all nearly over.

i am feeling much calmer at the moment.  Let’s hope that feeling continues. Xxx

Member

Re: September 2018 Chemo Starters.

Hi you wonderful ladies, 

 

I was so relieved when I read all your messages. To know that I'm not the only one who is feeling a bit low was just such a relief. Thank you 😍

 

Lisa: I'm sure your holiday will help. I can't remember where you're going, memory is still awful 😕. But time away from work and some relaxation will do you good, I'm sure. I'm partly relieved about work, but also a bit sad and apprehensive. I enjoyed my job (when I wasn't stressed 🙃) and am now going to have to find other interesting things to do, which is exciting but also scary. Anyway, I'm not going to start anything until September, when we're back from holiday.

 

Aley: I really liked your idea of a grown up gap year. ☺️ Time to try out new things! And I might follow your lead and speak to someone at Maggie's. Like you, I've used food and especially biscuits to get me through treatment 😅. So I've cut all sweet stuff out during the week, but am allowing myself a couple of biscuits at weekends.

 

Jacqs: gosh, you really have got a lot to cope with 😕 😍 and I hope your doctors can do something to sort things out soon. I had a few meltdowns yesterday and felt very emotional. I'm especially confused about this, as I felt quite strong during much of my treatment. Hang in there, Jacqs, we'll get through all this rubbish eventually 💪😘.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hello Ladies,

Must be something in the air at the moment with everyone feeling a little down.  I got a date for my op of next Fri and had to go for a pre-op yesterday.  They’re still very concerned about my heart rate which doesn’t seem to be coming down and my liver count still not improving.  My heart scan has been brought forward to next Wed & results of this will decide if i’m allowed to have breast op or not. Had further blood tests to check out my liver too.

Have to say I had a mini meltdown on getting back to the car.  And to top it all off, i’ve got horrific cold and sore throat which is now turning into chesty cough.  Will there ever be an end to this **bleep**....

I totally understand how you feel Gaby - it’s something that won’t ever go away completely.

I received lots of birthday wishes with people asking if I was feeling better now.  Wish it was that simple!

Well, I hope everyone has a good weekend & hopefully this phase of the blues will pass.  

Sending lots of love to you all.  Xxx

 

 

 

 

Member

Re: September 2018 Chemo Starters.

Hi everyone

Good to hear your news ladies. I'm seeing my oncologist on Tuesday and will hopefully know more about when my radiotherapy is going to start. I've been a bit down lately as my wound has still not healed in one place. I've piled on about a stone and discovered I have very high cholesterol!! So time to take some action! Food has been a bit of a crutch for me throughout treatment. I'm starting a cancer rehabilitation class Monday and Fridays next week. So brave of you Gaby Im in exactly the same situation, crunch time for me do I go back or not? Life has changed forever and I'm questioning so many things..I went to Maggie's last week to chat it through with someone...I feel so confused about where now but one thing is for sure I can't go back to what I was doing before! A grown up gap year really appeals at the mo. Anyone else considered anything like this? 

How exciting going on holiday Lisa T..think we're having family over and heading to my parents later in the week.

Anyway have a great weekend all xx

Member

Re: September 2018 Chemo Starters.

Hi ladies,

 

Hope you are all having a lovely weekend. It’s miserable and wet in Northumberland today - where has all the lovely sunshine gone 😞 

 

Ahh Gaby, I’m completely feeling the same as you ... not sure if it’s because I’m coming up to a year since diagnosis or just everything is getting too much but I’m quite emotional at the moment. The ‘what if it comes back’ and all the aches are they something or nothing is driving me crazy! When I mentioned to my husband how I was feeling he said ‘I just had to get on with it and move on’ 🙄🤬. He really doesn’t have a clue!! 

 

Trying to distract myself with my holiday - we go a week today 😎 Going shopping later to get organised so hopefully a bit of retail therapy will help. 

 

Well done on seeing your employer and discussing not returning to work - must be a big relief. It’s so exciting that you can think about starting a new adventure. 

 

Your rads will will be over before you know - you are nearly there ❤️💪🏻 Keep slapping the cream on.

 

Sending lots of love ❤️ Lisa xx

 

 

Member

Re: September 2018 Chemo Starters.

Hi lovely ladies,

 

Just wondering how everyone is doing? It's been very quiet here lately...

 

Jacqs: belated Happy Birthday! Hope you had a lovely day. Heart

 

I've had 3 rads now and so far so good. I've got some slight tingling, but slapping on lots of E45 seems to help. Am also very thirsty and sleepy afterwards Smiley Very Happy, but nothing a glass of water and a cup of tea can't sort.

 

I met with my employer today and told her that I won't be returning to work. I was very apprehensive, partly because I thought I might burst in to tears (I didn't Smiley Happy) and partly because I thought she would be very upset. But actually, she had half been expecting it and was just lovely. I feel so relieved to have got this over and done with and now feel that I can relax and start to think about a (different) future. Who knows what I will do, but at least I have taken this first step.

 

My mum said to me on the phone the other day "you can soon forget about all this" and I just blurted out "I'll never be able to forget that I've had cancer!". Afterwards I felt a bit bad, as she was very apologetic and I know she didn't mean to upset me, but really, I doubt I will ever be able to forget this past year, even if the cancer doesn't return (and actually, my oncologist has been very positive about that). Somewhere at the back of my mind will, I am sure, always be that worry, what if... Smiley Frustrated What's more, I really hope that all the small aches and pains which I still seem to have and which sometimes make me feel like an old lady start to disappear soon. Don't want that sort of reminder either. Sorry, that's a rather miserable end to my post, but I just had to get this off my chest, as it's been bothering me!

 

Have a lovely weekend, everyone.

 

Gxx

 

 

Member

Re: September 2018 Chemo Starters.

Hi All,

Got appointments for cardiology dept.  13 June for 24 hour heart monitor, then 2 July for heart scan.  They did warn me it would be slow to get seen, but at least they are booked in.  

No news on the breast op - not sure they’ll still do it if my heart rate stays high??

 Gaby - good luck for next week. 15th is my birthday. Will be sending you positive thoughts x

Hope everyone enjoyed bank holiday weekend.  

Jacqs x

Member

Re: September 2018 Chemo Starters.

Hi Gaby,

 

Good luck for the 15th - not long to wait now. It will soon be over - great news ❤️. Interested to hear that the hospital said to avoid processed meats - I asked about diet and was just told to be healthy 🙄 not very helpful!

 

Pleased I’m not the only one with messy children 🙈 I’m sure I never used to be that messy when I was younger 😉😂

 

Hope you all have a lovely bank holiday weekend

❤️ Lisa xx 

Member

Re: September 2018 Chemo Starters.

Hi lovely ladies, 

 

I saw my oncologist on Tuesday and she's putting everything in place for rads to start on the 15th. As I am triple negative I will get a bonus week, lucky me 🤣, and will have 20 treatments. But at least that will be it - roll on a treatment-free summer!

 

LittlePixie: that ham looks very tasty 😋 and is presumably nitrate free?! I've just been to a talk at the hospital about diet etc and got dire warnings about processed meat and nitrates. 😬 Maybe papier-mache is the way to go!? 😁 Have a lovely anniversary weekend and congratulations 😍🤩!

 

Lisa: so glad to hear that your girls are messy 😉. My 18 year old's bedroom is a health hazard and although my 12 year old's looks slightly better, his room has some very dark corners that I wouldn't want to investigate too closely 😂! My daughter has just started her A Levels this week and has promised to have a clear-out once she's got through all her exams, but I'm not holding my breath on that one 😜.

 

Jacqs: I hope you're feeling a bit better now and that they can see to your heart asap. ❤️ You/we've been through so much this past year, I suppose it's not surprising that our bodies are protesting. It's great that you can dip in and out of work, as and when you feel up to it.

 

I'm going to potter about in the garden for a bit now. Just some light weeding (plenty of those around 😄) in the sun.

 

Gaby x

Member

Re: September 2018 Chemo Starters.

Hi ladies,

 

Jacqs, Was thinking you’d been waiting a while for your op 🙈 brain isn’t switched on sometimes 🤪 Sounds like you’ve had a very busy day at the hospital! Hopefully you won’t be waiting too long for your appointment - it’s good that they are checking it out. Make sure you take it easy ❤️

 

Ahh yes you are not far at all from my Mum - Croston is lovely 😊

 

ALittlePixie, Ahh wow - I wouldn’t know where to start with the footstool or papier-mâché ham. Would love to be a bit more creative - must be very satisfying. 

 

I’d forgotten how annoying the whole process of selling a house is and I’ve only had one viewing 😂 Doesn’t help having 3 extremely messy girls to contend with. 

 

Ooh where in Northumberland are you going? What a lovely surprise. I definitely need to start planning a few more nights out - need to make up for the last year!

 

Have a good evening everyone ❤️ Hugs xx

 

 

Member

Re: September 2018 Chemo Starters.

Lovely to hear from you too.  I think I must have posted at same time as you. - was at hospital for nearly 7 hours with suspected blood clot.  After ultrasound, blood tests, ecg etc, blood cloth was ruled out but I have to see. Cardiologist and have heart echo because my heart rate is too high and even after giving me beta blockers it took quite a while for it to start coming down again.  All ok on boob front though!

French boyfriend was soooo quiet.  I think he was freaked out at idea of meeting Harriet’s dad who is tall & dark, but not in least bit intimidating. We’re seeing him again in July at graduation, so hoping he’s gotten over his initial shyness & we can get to know him a little better.  

Sounds like great plan for your anniversary. Hope you have a fab time.

our anniversary is in September & we’ll be in St Ives Cornwall - there’s an arts and music festival on when we’re there, so looking forward to it.  Just hoping to have op & all other stuff sorted by then.

Also going to see mark knopfler at end of May in Manchester.  

Enjoy working on your new footstool. It must be so satisfying doing that kind of thing.  I used to work for a leather furniture manufacturer & loved the upholstering and antiquing dept.  Maybe was smell of leather but loved it.

Take care my lovely xx

 

 

Member

Re: September 2018 Chemo Starters.

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There you go Gaby! A pic of my paper mache ham for the table display at work! X

Member

Re: September 2018 Chemo Starters.

Evening!

 

So nice to hear from you Jacqs! It sounds like you had a lovely and busy Easter. It must have been nice spending time with your stepdaughter. How was the french boyfriend then? What type of op will they be doing on you? I really hope you had a good meeting with your bc team today.

 

Lisa - it's funny how time files. My diagnosis was June 22nd...I still can't get my head round that I'll need another mammogram soon. How's the house viewings going? I find moving so stressful...hope you sell yours soon so you can buy the house you really liked.

 

My wedding anniversary is next Friday so I've booked us back to the hotel where we got married up in Northumberland for the night. I've done it as a surprise so I'm looking forward to it. We've got 2 music gigs too this next month so that's something to look forward to.  I'm determined to plan nice things.

I've been working on another foot stool again today. We've managed to date it between 1720 - 1740 so it's been an interesting day. Oh, and my paper-mache ham turned out ok. I'll post pics!😀 

 

Hope Pulapula, Gaby, Aley and everyone else are well.

 

 

Sending lots of love xxxDSC_0026.JPGThe footstool I'm working on

Member

Re: September 2018 Chemo Starters.

Hi Lisa,

I’m not working full time yet. Hubby & I have our own business so have been able to just work as & when I feel like it although I did do near enough full time for 2 weeks before Easter.  Now that it’s quietened down, i’m back to doing odd days.

My op is to replace the implant I lost last year due to an infection.  I originally had a double mastectomy last June with reconstruction but got infections in both.  They managed to save the right one, but left one had to be removed.  

I saw the breast nurse today - most of aches and pains are normal but i’ve Just spent 7 hours in emergency dept.  Initially it was cause they suspected another blood cloth on my leg - I had a clot on my lungs mid way through chemo & just finished blood thinning injections about 5/6 weeks ago.  Have been getting severe cramp in one leg, so they wanted to check.  Turns out there are no signs of blood clots but they are concerned that my heart rate is too high still.  It has been a problem all way through treatment but it’s still. It come down.  They’ve done ecg etc today which was ok, but i’m now going to be referred for a heart echo?? & to see a cardiologist because they say that there must be an underlying reason & it’s feasible chemo has done some damage! It could be a month before I get that appointment though, so have to relax & take it easy again.  

We’re near Chorley - in Croston.  My family are all in Hartlepool - not quite as nice as Northumberland, but it’s beautiful here.  

Like you I do feel like i’ve Aged.  50 going on 90!  

It’s got to start getting better soon.

take care & have a great week xxx

Member

Re: September 2018 Chemo Starters.

Morning ladies,

 

Jacqs, pleased you had a good Easter - weather was so lovely 😎 which makes a change! Are you working full time now? I’m coming up to 12 months too (in June) - it’s been a bit of a rollercoaster but we’ve done the hard bit 💪🏻❤️! That’s really frustrating that you have to wait for your op - have they said how long it could be? Will you have mastectomy or lumpectomy? 

 

Good luck with your bc team today - hopefully they will reassure you all your aches and pains are perfectly normal. I am still getting aches - feel like I’ve aged loads but my fitness does seem to be improving. 

 

Ahh how funny, whereabouts are you? My family live near Chorley but I live in small village in Northumberland (opposite way round to you 😜) 

 

Hope everyone has a good week 😎

 

love and hugs ❤️ Lisa xx

Member

Re: September 2018 Chemo Starters.

Hello Ladies,

I’ve just dropped back in to see how you’re all doing.  I’ve been working quite a lot over the last few weeks as we’ve been super busy making lots of Easter eggs.  My stepdaughter also came home over the Easter holidays & we got the chance to meet her French boyfriend for a few days.  It was so nice to enjoy the sunshine with family & friends.  

I’m still waiting for a date to have my op - there are a lot of new cases of bc in my local hospital & i’m on the waiting list to be seen as and when.  It’s totally understandable as it’s almost 12 months since this whole nightmare started for me, so just have to be patient till they can fit me in.

I have a check up with the bc team on Tuesday.  Still suffering from lots of aches and pains and ankles keep swelling, so will be good to hear if these things are normal & wondering how long it will all last?

Lisa - love your hair pics.  You look fab & definitely rock that short crop.  I’ve also gone without wig for last 2 weeks.  Once the sun appeared it was just too hot to keep wearing it & I got lots of positive comments. Funny you said you were visiting family in Lancashire - I live in Lancashire but my family are in the north east.  It is tough when your family are not close by especially after what we’ve been through in the last 10 months or so.  

A Little Pixie - sorry to hear about the osteopenia.  It’s tough trying to get your head around exercising again when your aching so much! Glad to hear your enjoying your time back at work - take it easy though.  

Aley - what a lovely image of your cancer sitting in a jar somewhere.  Good luck for the rads.

Gaby - fabulous to hear you are now cancer free and do hope the rads go well.  I’ve been using bio oil for a few weeks.  I didn’t like the feeling of massaging my scars to begin with but now do it daily & it’s helping. 

Well that’s it for me for now. Love & hugs to you all xx

Member

Re: September 2018 Chemo Starters.

Good evening everyone,

 

Thanks for all your lovely comments 😘 I’ve not ditched the wig completely but it was reassuring and so lovely not to have to wear a wig even if it was just for a day.

 

ALittlePixie - I had a lovely time in Lancashire thanks although it does make me miss my family more when I go back as my Mum and both my sisters live down there. I would love it if they lived closer. 

 

I can’t believe how far we’ve come too. I know when we started chemo in September this seemed a long way off! We did it though and we should be extremely proud of ourselves ... we definitely rock! 

 

Great news that you’ve been back to work too - it’s so good to get back to some sense of normality but don’t rush things. 

 

House viewing went really well ... I love it in fact ... but trying not to get my hopes up as I need to sell mine first. Had first viewing on our house today but they haven’t even got theirs on the market! 🙄

 

Good luck with the decorating - I find painting quite therapeutic too although I’m not the neatest 😂

 

Sorry to hear about your osteopenia diagnosis ... it can all feel never ending at times ❤️💪🏻 Xx

 

Aley - fantastic news 🥂🎉 Hope you have been celebrating and toasting that blasted 💩 in a jar .. what a great image!! So pleased for you 💪🏻❤️ Radiotherapy is a breeze compared to chemo ... you are nearly there 😘  

 

Gaby - pleased you had a lovely Easter - it’s so nice to enjoy a bit of sunshine. Well done on embracing your stubble 😍 I wish I could as I’m getting sick of the wig but will wait just a bit longer. 

 

I’ve not tried bio oil either so please let me know if you find it helps. 

 

Hope you all have a lovely weekend 🥰 love and hugs xx

Member

Re: September 2018 Chemo Starters.

Good morning!

 

How's everyone doing today? 

 

Aley - that is brilliant news about your surgery and you've got good clear margins. Onwards and upwards for radiotherapy now. It's lovely you've had such a nice Easter break with your parents. My mum is 84 and drives me nuts when she stays with us, so I understand 😉 We wouldn't do without them tho 😊. It's so great they've been looking after and spoiling you.

 

Gaby - your Easter sounds great with all the family. 'French cricket' sounds brilliant fun...I like the thought of you soaking up the rays whilst they all ran around..were you the umpire in a sun hat? 😁 I'm happy to hear you've ditched the hat and embracing your hair. It gives me confidence weirdly and I'm sure yours will too. I'm not surprised you've had compliments because it looks great and suits you. I've not tried bio oil on my scar, but it can't hurt to give it a try. I've only heard good things about it. The tingling and stinging will calm down too, it's just all your internal healing doing its magic.

 

Lisa - I meant to ask..how was the house viewing you went to? Any good?

 

We've started decorating! Just started on the bathroom at the moment. I'm finding the painting bit quite therapeutic actually and finding myself able to switch off.

The gp phoned me last night with my bone scan results. It shows that I have osteopenia in my lower spine now. It's like the gift that keeps giving! I need to start doing some more weight bearing exercise to help strengthen my bones. Looks like I'm starting back at the gym if I can muster enough energy!😅

 

Right you lovely lot, take care and enjoy your weekend whatever you're doing. I'm working a wedding up at the castle for a few hours, so it should be nice.

 

Lots of love x

Member

Re: September 2018 Chemo Starters.

Hi lovely ladies, 

 

We had a lovely and rather lazy Easter in the Midlands, me sitting in the garden while the teenagers and various uncles and aunts played 'French cricket' (I think this is a family invention!? It very energetic and everyone gets very competitive about it 😂). It was so lovely to soak up all that fantastic sunshine 🌞 and to see everyone so relaxed. 

 

Lisa: you look absolutely gorgeous in that photo! 🤩 And you've got loads of hair, definitely cool 👍. I've decided to ditch all my hats and embrace my stubble. I've just had enough of covering up. Much to my surprise I've had quite a few compliments and only the odd puzzled look from strangers. 😜

 

LittlePixie: you sound so happy 😍. How lovely you're managing to do a bit of work again and a footstool sounds very manageable. But don't overdo it!

 

Aley: that's fantastic news!👏🎉😍 I agree, that image of the cancer in a jar is great 😄. I'm seeing my oncologist in 2 weeks and am hoping to start radiotherapy by mid May. The side effects sound manageable compared with chemo - we can do this last bit 💪. 

 

My scars are healing well now, still have some tingling and stinging occasionally, but nothing too awful. Just wondering, has anyone tried using bio oil on their scars? A friend has recommended and the reviews I've seen seem good. 

 

Love and hugs to you all. 

 

Gaby xx

 

Member

Re: September 2018 Chemo Starters.

Hi

had a lovely Easter break too! Didn’t go away but had my parents staying with us 🤪A bit testing at times😒but felt so grateful for their help. My dad did loads of gardening (he’s 83 this year!) drove us around (my husband doesn’t drive) and all the hoovering. My mum is a brilliant cook so spoilt us with non stop tasty food!! I can’t believe how much my family have helped out when we’ve really needed them🙏🏽

So yes Saw the surgeon today ALittlepixie..It was good news-well it feels a little weird saying that when you’ve got (or should I say had?!) bc.. the tumour was removed with good clear margins and 5% active cancer so the chemo blasted 95% of it 💪🏽 as for nodes- I was really worried beforehand thinking the worst but 2 affected with a 3rd having scarring. I’m waiting to hear from oncologist re:radiotherapy now. 

I asked what my cancer status is now is it have or had-My bc nurse said had-your cancer is sitting in a jar in a lab somewhere in the hospital - I liked that image! 💪🏽

Great to hear about your work ALittlePixie the stool sounds really interesting. I’d be shattered too I think..

Lisa I love your hair too😘I can’t wait to go out without the wig- mines only just taken off so I’ll have to wait a few more weeks.

love to you all xx

Member

Re: September 2018 Chemo Starters.

Evening ladies

 

Hope you're all keeping well and have had a great Easter break.

 

Gaby - that's fantastic news re your surgeon. I'm so chuffed you wont need more surgery. You must be relieved. Have they saud when your rads will start? How was the Midlands and your family? Did you do lots?

 

Aley - did you meet with your surgeon today? I hope it went well. I love my hair and I reckon we're all trendy!

 

Lisa - how was Lancashire? I'm so proud of you for braving the beach without your wig as I know you're still very nervous about it. You look awesome and have the same amount of hair as me. It's such a lovely pic of you both. Do you think this will boost your confidence to go without the wig a bit more now?

 

We had friends staying with us all weekend and it was brilliant. There was one evening where we sat round the fire in the garden singing along to the music playing. It was at that moment where I was so grateful to be through most of my treatment and happy to be alive surrounded by my most treasured people, that I teared up. I was just so happy. We've all come so far and done so amazingly well. I'm really proud of us all. I know there's a few of us on here still going thru the hell of chemo but there is a light in sight now for 'a new normal'.

 

I did my first proper day at work today. I've been working on a footstool from the early 1800's and it was so good to get back. I'm only doing 1 day a week and by the state of me tonight, I know it's enough. My body is aching so much, but it was definitely worth it. I had such a good day.

 

Sending love as always x

 

 

 

 

Member

Re: September 2018 Chemo Starters.

Hope you all had a lovely Easter ladies 🐣 

 

I actually braved the beach without my wig 😎😱 (sand, heat and a wig not a good combo!) - it helped that I knew I wouldn’t bump into anyone I knew - but still really pleased I did it. A no wig selfie had to be taken 😜 

 

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Re: September 2018 Chemo Starters.

Ahh Gaby that is fantastic news - hope you have been celebrating 🥂🎉💪🏻 You definitely do rock it ❤️ Wish I could ditch my wig too - must be quite liberating. Will try in a few months.

 

Hope you have a lovely Easter with your family. I’m off to Lancashire today to see my family (and also pick up girls from my Mums). 

 

Enjoy the sunshine everyone 😎 xx

Member

Re: September 2018 Chemo Starters.

Awesome news GabyF..I think your hair rocks too! You know what- I was trying to see some positives in my head stubble that’s emerging! I was thinking the other day that it might actually look ‘trendy’ 🤭as I was thinking about when I’d be brave enough to go without the wig..are you fully out and about without it GabyF? 

Having a fab time in the midlands..I’ve got my meet with the surgeon Tuesday.. 😬 lots of love and enjoy the Easter weekend XX 

Member

Re: September 2018 Chemo Starters.

Hi lovely ladies, 

 

I had great news from my surgeon today: the chemo got rid of all the active cancer cells and all that was left for him to remove were a cluster of DCIS plus 7 lymph nodes. I won't need another op and am cancer free! 😻🙃☺️ I will still need rads, as I am triple negative, but that's OK, I can deal with that. Also had a great comment from someone at my local health shop: apparently my hair 'really rocks'! No one has ever said anything like that about me 😂🤣, so it's been a good day. 👍

 

We're off to see family in the Midlands for Easter. Hope it stays sunny. Have a lovely weekend everyone. 

 

Gaby 😍😘

Member

Re: September 2018 Chemo Starters.

Morning ladies,

 

Hope you are all having a good week.

 

Gaby, Ooh yes would definitely mention to your surgeon today. I had numbness (it still is numb but I think that’s permanent now) but no stinging. Worth checking out but probably it is just your body recovering and healing. Are you getting results today too? Hope it all goes well ❤️💪🏻 

 

We are viewing a house today that looks lovely but needs a bit of work 🙈 We’ve got so much junk too - it’s difficult to know where to start!

 

It’s my last day of working full time and then a lovely long weekend off. Weather looks good too ☀️ Hope you all have a fab Easter.

 

Sending love and hugs 

Lisa xxx

Member

Re: September 2018 Chemo Starters.

Hi Everyone, 

 

2 weeks since my op and I'm much more uncomfortable: my scars seem OK, but the area around my armpit is numb, I get a lot of uncomfortable stinging there and the movement in my left arm is not great. I'm seeing my surgeon tomorrow so will mention all this. I think it's all very normal, but I'm feeling rather tired and low with the constant discomfort. 🙄

 

Lisa: gosh, you've got a lot on! Don't overdo things at work. My memory is shocking and that really bothers me. I wonder why we're getting this now?! Have you seen a property you want to buy? We've been in our house for 18 years and the amount of junk we've accumulated is ridiculous. I had a clear out last year when we had the loft done and chucked out loads of stuff. Quite fun, once you get going 😀.

 

Little Pixie: I'd love to see a photo of your ham! My daughter is very keen on prop making and is starting a Technical Theatre degree in September, so I'm quite used to seeing odd bits around the house (we have a lovely spare brick wall she made 😉). Fantastic you've booked your holiday. I think we all need a good break and some sunshine after this last year.

 

It's lovely and sunny here in London. Hope you're all getting a chance to enjoy the sunshine. 🌞

 

Gaby 😘

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Re: September 2018 Chemo Starters.


@Aley wrote:

Hi ladies,

Im just over a week post op. My right breast feels like a pumped up balloon 🎈and my bra a straight jacket 🧥  I had ANC so that is sore but numb when I touch it.

GabyF glad you’re doing ok-I too have done some soul searching re:work. I’m a trained teacher but worked in a support role in a secondary school prior to my diagnosis in August 2018. I was actually going to teach a bit from September but never went back-tbh I’m not sure it’s what I want to do and will seriously consider my options in due course. I’ve thought about volunteering too GabyF.

I’m being a good girl with exercises too 😜 I’m getting a bit bored of sleeping on my back!! 

My mouth still feels rotten and I’ve a bitter taste, I hope that clears soon.

like you I’m amazed at those of you who have returned to work 👍🏼 I’m just about managing to get through a proper routine for the day-feel a bit down at times too-I’m feeling terrified about returning for my pathology results in 2 weeks-thinking the worst, wish I’d quizzed my surgeon more post op but was totally not with it! 🤪She did say the op went really well so I’m taking that as nothing too terrible was seen..but who knows until the pathology report..anyway I must try to get out and enjoy the sunshine-we’ve a conservatory Which makes me feel like I’m in a tropical country on days like today ☺️☺️🔥☀️Bye for now 


If the surgeon said it went well that is v  hopeful ... also out of it when I saw him but it was OK . Good luck x

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Re: September 2018 Chemo Starters.

Good morning ladies,

 

Hope you are all having a lovely weekend.

 

ALittlePixie, fantastic news that you’ve booked 2 weeks away over the summer holidays. Tenerife will be amazing 😎

 

Good luck with the upholstery training and the papier-mâché ham 😊 need to see photos of your finished masterpiece xx

 

We’ve just put our house on the market so we will hopefully be moving soon 🤞😱 We had originally planned to put house up for sale in January but that went on hold after my diagnosis. I was hoping to leave it a bit longer before we put it up for sale, give me chance to recover and settle in to things, but hubby has different ideas ha ha  🙄🙈 Not moving far but the last time we moved was 11 years ago and we now have so much stuff to clear out! Will keep me busy at least!

 

I’ve also agreed to work full time next week (just for a week) as a couple of people are away ... will be a bit of a shock to the system but hopefully my lack of memory won’t be too bad! Does anyone else get stressed about things that wouldn’t normally bother them? I have turned into such a worrier.

 

Enjoy your sunday - hope the sun is shining 😎❤️ Lisa xx

 

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Re: September 2018 Chemo Starters.

Hi everyone

 

It's glorious up in Cumbria again today. I can't quite believe we've had so much sun, especially whilst it's the school holidays!

 

Lisa - so pleased you had a fab time in Newcastle. Hahaha about nearly falling asleep. I'd be the same! It must be strange not having your girls at home during the holidays. They'll be enjoying time with your mum. Eve always goes for a week to her my mum in law's in August. She loves getting spoilt!

 

Paula -  hope you're  doing ok. Thinking of you.

 

Aley - keep being kind to yourself. It will be really sore, but keep doing your arm exercises every so often as they will help keep movement and stop fluid building up. I do remember those days well tho, so I understand how uncomfy and sore you are. Utilise cushions in bed if its getting too boring sleeping on your back. I promise it gets better.

 

Gaby - I reiterate what I've just said to Aley. Keep being kind to yourself and utilise cushions!!! You do right trying not to think about results etc. It's so difficult tho. I think I'm a born stress head some days. It's fab you're not getting as many hot flushes. I've never tried acupuncture. If you do, you'll have to let us know how you get on.

 

Work & volunteering - I do both and have done for some time now. I love the freedom of volunteering because it means I'm not as tied. I still make a commitment to hours per week, but there's not as much pressure. I currently am training to do antique upholstery in a castle and it's all voluntary. I give my time and I get paid in skills. It's a brilliant arrangement and suits me even more so now I want to go back to work. I'll start back just one a week and build from there. I also make wire jewellery  and sell at local markets, although I have no motivation or the concentration to make anything at the moment, so it's on permanent hold at the mo. I'm just going to try and get back to my upholstery for now. I've been going in and doing bits already which helps my head space. I'm currently still making a paper mache giant ham for a display table at work!!! 😁

 

My news is we've just booked a 2 week holiday in Tenerife for the summer hols. We've not had 2 weeks together since Eve was born, so I'm really looking forward to it. I guess I'm a little nervous too, but I'll get over that once I'm there and everything is fine. Oh, and I went to the physio for my chest, neck and shoulder pain and I've got some exercises to do. She says it's all nerve and muscular pain from all the surgery, chemo and rads.

 

Right, off to do more of my ham whilst Eve is making a parrot mask for herself!!!

 

Enjoy the beautiful weather xxx

 

 

 

 

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Re: September 2018 Chemo Starters.

Hi ladies,

 

ALittlePixie, I had a lovely night out in Newcastle thanks although I nearly fell asleep in the 2nd half of the show 🙈 😂 Hope you are enjoying the Easter hols with Eve. Now I’m back at work my girls have gone to stay at my Mums for the holidays ... my house seems really quiet! 

 

Pulapula, hope your bloods were ok for your last chemo and you have finally finished whoo hoo 🎉🥂 

 

Gaby, hope you enjoyed your walk with your daughter yesterday. I’m trying to go out for a walk more too but I can’t get any of my girls to come with me 😂 

 

Good luck with finding a new challenge - sounds very exciting. It definitely does get you thinking about what’s important after a diagnosis.

 

My memory is also shocking ... I’m not sure if anyone has noticed at work but I have forgotten most things 😂 I also seem to struggle with simple tasks - common sense has completely deserted me. Much to the embarrassment of my daughter when I had to ask someone for help trying to pay at a ticket machine 🤪 

 

Aley, pleased you are recovering well after your op. Ahh waiting for results is awful ... try not to worry (difficult I know!) ... good luck for next week 💪🏻❤️

 

It’s been a gorgous day here in Northumberland 😎 ... I’m enjoying a glass (or two) of fizz as I’m not at work tomorrow 😜🥂 Cheers ❤️ Lisa xx

 

 

 

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Re: September 2018 Chemo Starters.

Aley, I forgot to say good luck with your results. I'm seeing my surgeon next week. Waiting for results is nerve wracking and I'm trying not to think about all that too much

Fingers crossed we will both be OK! 👍🤞❤️

 

Gx

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Re: September 2018 Chemo Starters.

Hi Aley, 

 

I was really relieved to hear that you're thinking about not returning to work. It would be a huge change for me and it's nice to know I'm not the only one thinking along these lines. 😍 Teaching is very rewarding, but I am very worried about returning to the stress and heavy workload. I'm also concerned about the physical side of my work. Right now the thought of carrying or even cuddling very young children, being unintentionally bumped on my boob 😣, and all the other lovely things like nappy changing 😂, really fill me with dread! In theory, as a manager, I should be able to opt out of most of these physical tasks, but I know that in practice this won't always be possible. I have looked at quite a few volunteering options and found a couple that involve mentoring young people (Prince's Trust) and helping parents with their children's mental health (Young Minds) that look interesting. I also considered doing something at my hospital, but I'm not sure - I might need a break from regular trips there for a bit! What sort of volunteering are you looking at?

 

Had another rubbish night. Sleeping on my back or right side, but I have to wake up to turn carefully and feel quite stiff in the morning. 🤨 I don't seem to be getting quite as many hot flushes anymore, but am considering having some acupuncture to sort this out properly. Has anyone tried that?

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi ladies,

Im just over a week post op. My right breast feels like a pumped up balloon 🎈and my bra a straight jacket 🧥  I had ANC so that is sore but numb when I touch it.

GabyF glad you’re doing ok-I too have done some soul searching re:work. I’m a trained teacher but worked in a support role in a secondary school prior to my diagnosis in August 2018. I was actually going to teach a bit from September but never went back-tbh I’m not sure it’s what I want to do and will seriously consider my options in due course. I’ve thought about volunteering too GabyF.

I’m being a good girl with exercises too 😜 I’m getting a bit bored of sleeping on my back!! 

My mouth still feels rotten and I’ve a bitter taste, I hope that clears soon.

like you I’m amazed at those of you who have returned to work 👍🏼 I’m just about managing to get through a proper routine for the day-feel a bit down at times too-I’m feeling terrified about returning for my pathology results in 2 weeks-thinking the worst, wish I’d quizzed my surgeon more post op but was totally not with it! 🤪She did say the op went really well so I’m taking that as nothing too terrible was seen..but who knows until the pathology report..anyway I must try to get out and enjoy the sunshine-we’ve a conservatory Which makes me feel like I’m in a tropical country on days like today ☺️☺️🔥☀️Bye for now 

Member

Re: September 2018 Chemo Starters.

Hi everyone, 

 

Just over a week since I had my op and finally had a shower yesterday 🚿😂. It was soooo nice! My arm has a few numb patches and my breast still feels tender (and it's still a beautiful blue 💙), but I've got much more movement (am being a good girl and doing my exercises regularly). Sleep is still a problem, but then I can't remember the last time I actually slept through, must have been last summer before I had my diagnosis?!

 

I know several of you have now gone back to work, which I think is amazing. I will have to wait until at least September, as I need to have rads and recover from that. I'm actually mulling over my options right now. I definitely don't want to go back full-time and am dreading the high stress levels of my job (I'm a nursery manager). I'm in the very lucky position not to have to work, but I need to have something to challenge my mind (or what's left of it - is anyone else struggling with short term memory? Mine is dreadful 😂). Instead of going back to my old job, I'm thinking about volunteering for a couple of charities, which would enable me to use my knowledge and experience, but free me from the old stresses. I'm really not sure which way to go with this right now. Have any of you thought about a career change?

 

Pulapula: I hope you're able to to have your last chemo soon. Any delay right at the end is so frustrating, but you're almost there. And as you say, it's nice to have some chemo free time with the kids. 😍 I realised the other day that now is the first time since September that I am not having to take any medication and it's so nice. We've all had so much stuff pumped into our bodies - I'm sure it will take quite some time for us all to feel completely normal again.

 

Lisa / LittlePixie: my hair has gone into overdrive and seems to be growing like mad. 🤩 My daughter strokes my head whenever she sees me, as she loves the feel of it. Maybe that's what is making it grow? 😁

 

We've got lovely sunshine here in London. 🌞 Going for a walk with my daughter soon. Have a lovely afternoon, ladies.

Gx ❤️💖💋

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Re: September 2018 Chemo Starters.

Hi ladies. 

 

Just thought I’d say a quick hello before bed. Still got one more chemo to go as my platelets count was too low to go ahead last week. So back on tues for bloods again. In some ways I don’t mind as my kids have been off for Easter hols so it’s nice not to be having treatment. Need to go ahead soon though so I feel well for centerparcs in 4 weeks time! Plus I want my picc out too. 

 

Gaby - fingers crossed for your biopsy results. 

 

I havent completely lost my hair but I have got a receding fringe so not much hair at the front but some at the sides! I did venture out without a wig when I just looked like I’d had a GI Jane cut, but not any more. I was lucky to have a wig gifted on a Facebook group last month and I love it although it does get uncomfortable after a few hours. 

 

Alittlepixie - enjoy your papier-mâché tomorrow!

 

Better go to bed. Night night ladies. 

 

 

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Re: September 2018 Chemo Starters.

Hi everyone!

 

How is everyone at the mo?

 

Jacqs - have you heard anything about your final op yet? I understand how you feel about your aches and pains. I've got a date with the physio on Tuesday too because of the pain. My radiology Dr advised me it was due to the radiotherapy. He gave me a chest x-ray to rule out anything else and it was thankfully clear. Try not to push your body too much. My body def tells me if I'm doing too much. It's good you're getting out and about without your wig now because it'll make you more confident about your hair. I love mine being so short now. It's so soft too. Fab news you've booked your hols to St Ives. We're hoping to book something soon. I'm desperate for a holiday.

 

Lisa - I proper laughed at the Barbie pic you posted! How was Newcastle? I ventured back down to Yorkshire to see my family, so that was nice. It just exhausted me!

 

Gaby - lovely to "meet" you. Your hair is coming on great! I'm so happy your op went well. You'll have to let us know re your biopsy results. I'll be keeping everything crossed they're clear.

 

I still have another week together with my Eve whilst she's on half term. We're randomly making a paper mache ham joint tomorrow!! Its for work.....we're doing a Victorian banquet table display!!!

 

Hope everyone is well. Lots of love as always x

 

 

 

 

 

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Re: September 2018 Chemo Starters.

Ahh so pleased everything went well Gaby. Keeping everything crossed for you 😘

 

You look amazing and it’s lovely to see a photo 👋 - stubble is definitely cool 😍 My daughter keeps rubbing my head 😂 

 

Hope everyone has a great weekend. Big hugs ❤️ Lisa xx

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Re: September 2018 Chemo Starters.

I think you can just about see my stubble in that photo 😂. 

 

Gxx

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Re: September 2018 Chemo Starters.

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Re: September 2018 Chemo Starters.

Hi lovely ladies, 

 

Thanks for all your kind thoughts. Had my lumpectomy and sentinel lymph node biopsy on Tuesday and everything went well. I was first up on the surgery list, so didn't have much time to sit around and worry. I was home by 3pm, had a sleep then some lovely dinner (I was starving 😁) and actually felt surprisingly OK. Have been taking it easy since then and am now off pain killers. Just have to wait a couple of weeks for the results of the biopsy. Fingers crossed, margins and lymph nodes will be clear. I was quite nervous about the surgery, and the anaesthetic in particular - I suppose it's the fear of the unknown. But the hospital staff were very reassuring and kind which really helped. All done now anyway. 🙂

 

Lisa: I think you look far more beautiful than barbie! 💖😍 Children do come out with the funniest things! I don't have a wig. My hair is growing, but I haven't been brave enough to venture outside without a hat. I've told myself that it's still too cold for that anyway 😉. My daughter thinks my stubble is cool 😂😎, so perhaps I'll brave it once the sun is out properly.

 

Jacqs: I've also had a lot of aches in my legs following chemo. Oddly enough the beautiful DVT stockings I'm having to wear post surgery seem to be helping a bit with that. Maybe it's the extra warmth or improved circulation? I was also able to stop my injections a few days early, which seems to have reduced the hot flushes and might also have affected my legs? It's all guesswork for me really 🙄. Are you able to take proper breaks at work? Be kind to yourself and don't overdo things!

 

Gaby xx

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Re: September 2018 Chemo Starters.

Ahh Jacqs sorry to hear you’ve been getting severe aches and pains. I am definitely getting more aches since chemo but they aren’t too bad and are not all the time. Maybe you are doing too much - you need to give yourself time to recover 😘

 

Oh no - just what you needed to hear 😬 don’t let them put you off - I’m sure you look fab. I haven’t ventured out without my wig yet - I’m not brave enough. Not many know about my diagnosis so I’m sure it will be a bit of a shock to everyone 😂

 

Told my twin nieces (who are 4) recently about my wig and Isabelle asked if it was ‘like this barbie doll’ and took her hair off and Bethany said ‘I wish I could take my hair off’ 😂 

 

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Re: September 2018 Chemo Starters.

Hi Ladies,

 

Sorry i’ve been very quiet the last couple of weeks.  I reckon it was a shock to the system going back to work 🤪

Gaby I do hope everything went well yesterday & wish you a speedy recovery from surgery.  I’ve been thinking about you 😘 

Aley I also hope you’re doing well although it’s still very early days.  Keep up with the exercises ladies because they definitely do help xx

I’m still waiting for a date for my final op.  I hope it’s soon.

 

A Little Pixie & Lisa - you’re both looking great & I love the hair pics.  I’ve been out a few times now without wig but still not feeling confident about it.  Maybe that’s down to 2 little girls whose conversation I overheard - they were trying to decide if I was male or female.  1 decided I was a girl but the other one said I couldn’t be cause I had no hair 😂😂😂.  Out of the mouths of babes & all that... I didn’t think I looked that bad!

 

My update is that i’ve booked in with a physio because i’ve been getting some severe aches n pains the last 2/3 weeks.  My GP says it’s all muscoskeletal & nothing to worry about.  I have seen other ladies on the forum mention similar issues - have any of you Sep ladies been affected by this.  I wondered if it was because of the bisphosphonate treatment or if it’s just remnants of chemo? Hubby seems to think i’ve developed an allergy to work - who knows, maybe he’s right! 

 

On a more positive. It’s, we’ve just booked a holiday to St Ives Cornwall in September.  Something to look forward to.

 

Hope you’re all doing well.  Xxx

 

 

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Re: September 2018 Chemo Starters.

Good luck for today Gaby ... sending lots of love 💗   xx

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Re: September 2018 Chemo Starters.

Nice to ‘meet’ you too 👋 ☺️ - so lovely to put a face to the name.

 

Ahh yes the hot and cold thing ... such a pain! As if we haven’t got enough to deal with 🙄 

 

Love the hair ... short is so much easier! I’m hoping to ditch the wig in the summer - just want my hair to thicken up a bit as it is still quite patchy on top. 

 

Hope you are back back home and taking it easy Aley ❤️

 

Love to everyone ❤️ Xx