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September 2018 Chemo Starters.

555 REPLIES
Member

Re: September 2018 Chemo Starters.

Hi Jencat,

 

We're getting a female and male kitten, both beautiful little tabbies. Thanks for the tip about letting them out of the basket one at a time when we get home - I shall be on the alert! Smiley WinkWe all miss our old cat and are really looking forward to having the kittens. I agree that cats can be fantastic company, when they choose to. I have always found that they are particularly good at knowing instinctively, who needs a little cheering up and often used to encourage our cat to distract or comfort our children. Our daughter is sitting her A Levels this summer, so I think the kittens will have their work cut out to cheer her up and provide comfort when things get a bit tense.

 

I've got chemo/EC tomorrow - really not looking forward to the SEs and am assuming that I will be out of action for a week at least. I am feeling increasingly tired and less robust anyway, i.e. less able to cope with the SEs. Walked to the hospital for Picc Line and bloods today and felt completely shattered when I got home, and that's without having actually had any chemo yet. Smiley SadSpoke to one of the lovely chemo ward nurses today, who told me that increasing weakness/tiredness is very common and that I will need to rebuild my energy and strength slowly when all this is over. Can't wait!

 

Gx

Member

Re: September 2018 Chemo Starters.

Gaby, glad you had such a lovely time with the kittens yesterday! What have you chosen? I know dogs are good company,but cats can be too! Smiley Happy (I'm trying to type this with Oscar making a fuss of me because I've been out for a few hours! ) One word of advice, don't let them both out of the cat basket at the same time! We did, but one of them had done a poo on the way home, so as you can imagine it went everywhere with them both running around!

I'll get in touch with Angela-if they haven't advertised it there should still be places! Smiley Happy xx

Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

We had a lovely time with the kittens yesterday - nothing like little furry balls rushing about and mewing to put a smile on teenage faces! Smiley HappyWe will be able to take them home in 3 weeks, so I'm getting ready for mayhem!

 

Pulapula: glad your surgery went well (I'm impressed you managed an evening out the following day, well done!) and fingers crossed for the results.

 

Jencat: I'm a nursery teacher (and manager). Your advice about a phased return and the potential for getting bumped by children is very sensible. We have babies and children up to the age of 4 at nursery and I will definitively need to consider energy levels and my physical strength when planning my return. I will probably just do 2-3 days, then gradually up it, though I will not be returning fulltime - I had already cut back my hours before cancer due to exhaustion/stress. About the Moving Forward course, do email Angela. I'm sure she can book you in for the June course at Guy's. Not sure why they haven't advertised it online yet.

 

Lisa: hope you enjoyed your walk. OH and I went to the park this morning. No interest at all from our two kids Smiley Winkthough our son did actually end up going there with his friends to play table tennis - going for a walk with your parents is "boring" and probably not very cool! Smiley LOL

 

Gx

 

Member

Re: September 2018 Chemo Starters.

Thanks Jencat - will speak to rads staff on Thursday see what they think. I work in an office and it is 3 weeks of rads so hopefully will be ok 🤞 Hope you have a lovely Sunday 😘 the sun is shining here so going to try and drag my 3 girls for a walk ... got no chance with the teenager 😜 xx
Member

Re: September 2018 Chemo Starters.

Hi Lisa, I'm an infant teacher and I'd planned to go back before the school broke up for the Summer holiday.It was either then or wait until the children went back in September. When I told the rads staff that I intended to go back in July, they did keep telling me that I might not be ready and they were right as I felt tired and also emotional after I finished treatment. I also had to be careful that the children didn't knock me, some of the Yr 2 children are boob level! If you work in an office, you might be ready to return earlier than me. Also I was 58 when I finished treatment, so quite a bit older than you, plus I don't know how many weeks of radiotherapy you're having, but I had six, so that might make a difference too xx

Member

Re: September 2018 Chemo Starters.

Pulapula, big hugs for Thursday ❤️💪🏻 Really hope your results comes back all clear ... will be thinking of you and keeping everything crossed xx

Jencat, I have warned work that it depends how I feel after radiotherapy 😬 Part of me wants to go back ASAP as I want things to get back to ‘normal’ however I also don’t want to rush things. I’m 43 - how long was it before you felt ok to go back? xx
Member

Re: September 2018 Chemo Starters.

Ps Gaby, I'm a teacher and working part-time. When you do return make sure you go back  on a Phased Return. I'd been off for 11mths when I went back in September, but didn't return properly until nearly half-term x

Member

Re: September 2018 Chemo Starters.

Gaby, thank you so much for the M F course details, I'd looked on the website and couldn't find it. They have got M F courses near me, but unfortunately they're either on a day I work or include school holidays and the one I could attend isn't until November and that seems too far away! It would be lovely to meet you too! Smiley Happy

Are you a teacher btw?

Hope you had fun with the kittens yesterday! After our cat died we went to a Rescue Centre and got two kittens, a brother and sister. They're 4 years old now and have been great company when I didn't feel up to seeing people! Actually my daughter's think Oscar has got attachment issues, where I am he usually is too! xx

Member

Re: September 2018 Chemo Starters.

Lisa, I don't want to put a downer on your going back to work plans, but you might find you need/want a little longer after rads to recover-I finished mine in the middle of June last year and had intended to go back to work in July,but found I was too tired. Mind you, I think I'm older than you, so it could be an age thing and you'll be fine x

Member

Re: September 2018 Chemo Starters.

Pulapula, hope everything goes well when you start T on Thursday and you get good results from your surgery x

Member

Re: September 2018 Chemo Starters.

Hi Ladies,

 

I've been pretty quiet on the forums, as I'm a bit deflated about my extended treatment.

 

My last surgery (10 Jan) was very short and went well and I even managed a night out on the 11th!. It was a school reunion so I hadn't seen most of the people for 28 years! I don't have a wig and went with my head fluff. Got lots of compliments for being brave etc etc.

 

I'm booked in to start 4 cycles of T on Thursday, which will take me through to the end of March/early April. Then I'll have rads after that. Hopefully I'll have the results from my last surgery this week too, if there is any remaining DCIS they're talking about a mastectomy after chemo, or losing the nipple...fingers crossed for the all-clear.

Member

Re: September 2018 Chemo Starters.

Hi Gaby,

I’m having 15 sessions. Will hopefully be ok driving 🤞. I’m going to take someone with me for company just in case. Will be careful I promise 😉

I’m sure your employer will just be pleased to have you back 😊 I went into work last week to discuss starting back. Was a bit nervous going in as I’m not feeling the most confident at the moment. I’ve also not seen anyone for 6 months (only a few people know why I’ve been off!). One person commented ‘you look different’ not sure if it was the wig, lack of eyebrows or weight 😂 just the sort of comment I needed 🙄

Ahh how lovely to get some rescue kittens (need photos please 😍) they will definitely keep you busy too.

Hope everyone has a fab weekend 😘 xx



Member

Re: September 2018 Chemo Starters.

Morning everyone,

 

Hope you're all doing ok - it's been a bit quiet here lately Smiley Happy

 

Lisa: How many radiotherapy sessions are you having? It is a bit of a pain having to travel so far every day. Will you be ok driving back on your own? I've been told that the main SE of rads is tiredness, though I don't know how quickly that kicks in. Do be careful driving - I sound like my mother Smiley LOL!

 

I think that if and when I go back to work, it will definitively be part-time, at least to start with. I am slightly worried that a part-time return is not what my employer wants and I haven't spoken to them about it yet. Am delaying that conversation for a few more weeks/months, as I am really not sure about what i want to do. I won't be going back until September at any rate, i.e. start of the new school year. By then I should have more energy and be physically fit to return. It will be a bit of a shock to the system though. And I just hope that my brain will be a bit more switched on by then - at the moment I can't see myself multi-tasking and rushing around as I used to!

 

Have a good weekend everyone. We're off to see some little kittens this afternoon. Our lovely cat died last summer (in fact the day before I was diagnosed - that was a lovely week!) and we are keen to take in a couple of rescue kittens now. Should be fun!

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi ladies,

Gaby, the Moving Forward course sounds great - unfortunately there isn’t one near me in Newcastle 😞 There might be something similar tho so will look into it - sounds like just what I need. I’ve been so focussed on taking one stage at a time, I think it will hit me once it has all finished - coming to terms with the new me, like many of you I’ve put on weight, and also the constant scare of it coming back! We have all been through so much ❤️💪🏻I’m planning on going back to work two weeks after radiotherapy although it will just be part time for 3 days - not sure how realistic this is.

Aley, hope you are feeling brighter this week. I always seem to have a wobble a few days after treatment - the darker thoughts would creep in and it seemed that this nightmare would never end! Blamed it on the steroids but it’s probaly natural to feel that way 😘.

ALittlePixie, hope your chemo rash has gone now and you can have your last treatment (or even better you don’t need need it and now you have finished and rang the bell 🎉🥂)

I had my planning appointment for radiotherapy on Wednesday and so now have 4 tattoo dots 😜 First session is on the 24th January - hospital is an hour away so I’m not looking forward to driving every day. Hoping to drive myself (OH will take me to the first one) ... will see how I get on.

Hope you are all doing well ... sending lots of love ❤️ Lisa xx
Member

Re: September 2018 Chemo Starters.

Hi Jencat,

 

They don't seem to have listed this course on the website yet, but here's the info I was emailed:

 

Venue: Guy's Hospital, Cancer Centre, Guy's Hospital, Great Maze Pond, London, SE1 9RT - Dimbleby Drop in Centre, Group Room 2.

Week 1: Tuesday, 4 June 2019

Week 2: Tuesday, 11 June 2019

Week 3: Tuesday, 18 June 2019

Week 4: Tuesday, 25 June 2019

Session Timings: 1:30pm to 4:45pm

 

The person I've been in touch with is called Angela and her email is movingforward@breastcancercare.org.uk. Maybe just email her and ask if she can book you on to the course. It would be lovely to have someone else from our bit of the forum there and to meet you! Let me know how you get on.

 

Gx

 

Member

Re: September 2018 Chemo Starters.

Hi Gaby, is the M F course at Guy's a new date, I don't remember seeing it? Also is it am or pm? I'm in Kent and there is a couple of M F courses at my local hospital but they're on a Friday, a day I work x

Member

Re: September 2018 Chemo Starters.

Someone from Breast Cancer Care just emailed me with the details of the Moving Forward course beginning 4 June at Guy's - the details should also now be on this website, if anyone is interested. I've just booked myself on to that one, instead of in March. I should be done with everything by then, yipee!!! Smiley Very Happy

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi Aley,

 

I think we all have good and bad days. It's particularly hard, when I'm tired and/or feeling lousy, but I try to look forward and to think of all the rubbish we have to go through as part of my recovery. Having the children to chat to also helps - even if I'm low they will often help to distract me by just chatting away about their day/problems. Can't remember if you have any kids (sorry), but if not, then meeting up with friends, fresh air, exercise etc have all helped me (to a point Smiley Wink) The other thing that helped me was to book a holiday for the summer - something lovely to look forward to once all this is finished! Smiley HappyIf you're really low, it's worth talking to your BCN, as there is professional help available for us.

 

I have heard that once all the treatment is complete and we're discharged, things can actually get more difficult, so I have provisionally booked myself on to a "Moving Forward" course that Breast Cancer Care offers. However, the London one is in March, which is a bit early for me and I am hoping that they might put on one in the summer. This course apparently deals with everything, including diet, exercise and, perhaps most importantly, our mental health post-treatment. One of my biggest headaches, and one which I am currently trying not to think about too much, is whether and when I return to work. Hopefully, talking to other people on that course might help me a bit in making my decision.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi GabyF
Yes it’s a grim sight when I look in the mirror so I avoid it if possible! Second ‘T’ has left me feeling emotionally quite down..anyone else experience this? Maybe it’s because it feels like such a long haul..Hope all you lovely ladies are doing 👌🏽 xx
Member

Re: September 2018 Chemo Starters.

Hi Aley / Little Pixie,

 

Looking in the mirror is not always easy at the moment, I agree. I've also put on weight over the past few months (not to mention Christmas), plus I've got virtually no hair, stubbles instead of eye lashes, thinning eye brows, and despite extra daytime naps - dark rings under my eyes. Just lovely Smiley FrustratedThe other day I came across a photo of myself on holiday a couple of years ago: I had beautiful, long hair and looked "normal", hey-ho. I try to tell myself that it's only for a few more weeks and then hopefully my hair will start to grow back and I can try to rebuild the old me, if that's possible, although I've still got surgery and rads to contend with. I suppose in some ways there will always be the "me" pre- and post cancer. It's not going to be a worse version of myself or my life (I hope Smiley Tongue), but a different one it certainly will be.

 

I treated myself to a facial today and rather weirdly my skin is actually better than it was pre-cancer. Either my skin likes the chemo (?????) or it's the lack of work-related stress.

 

Little Pixie: I'm sorry your treatment has been postponed. It's so frustrating when that happens, but I suppose it's better they don't give us chemo if our bodies aren't up to it.

 

Pulapula: Hope everything went well today Heart

 

Take care, everyone.

Gbay x