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September 2018 Chemo Starters.

628 REPLIES 628
Member

Re: September 2018 Chemo Starters.

Good morning, everyone,

 

I've been a bit quiet lately, just too much going on. I saw my surgeon last week and was told that I had had a "partial response" to the chemo. He couldn't tell me whether the tumour had shrunk and said something about the structure of it possibly having changed. It wasn't a very helpful explanation and I felt a bit low afterwards. Since then, however, I have checked with my BCN and she told me that there had been a "GOOD partial response" and that this almost certainly means that the tumour has shrunk! Also, this is apparently the most common outcome of chemo. I will know more, once they've done the surgery and have sent off the tissue for further testing, but really, why couldn't the surgeon have told me all this!?Smiley Frustrated These small words make a big difference! The other good news is that I will only need day surgery, so will be in and out within c.6 hours on the 2nd April.

 

Lisa: it was our daughter's 18th birthday last week. We didn't do balloons, but I put together lots of embarrassing photos of the past 18 years. I don't think children are ever too old for a bit of fun on their birthday, especially if it involves cake. Smiley Wink

 

I am so sorry to hear that your friend has had this worrying news. It can't be easy for you to see her so anxious and the thought of someone you care for possibly having to go through all this rubbish that we've all endured, must be very unsettling. Hopefully she is ok, but if not, at least she's got you to be there for her.

 

Pulapula: I felt the same way back in January, when the end of chemo still seemed ages away and everyone else appeared to have moved on. However, that last session will come along sooner than you think. Enjoy your holiday at Centre Parks and remember, you are actually almost done with chemo! Heart 

 

Little Pixie: I've got a "Moving on" workshop booked for June and am hoping this will be useful. I will be very interested to hear whether you found your sessions helpful. I've also booked myself a few sessions with a life coach - not something I've ever done before, but I am so confused about what I want to do work-wise, that I felt I needed to talk through my options with some "neutral".

 

Aley: So glad to hear that you are now recovering well after that spell in hospital - what lousy luck to have got sepsis right at the end. But congratulations on finishing chemo!! Smiley Happy 

 

Have a good day/week, lovely ladies Heart

 

Gaby x

 

Member

Re: September 2018 Chemo Starters.

Morning ladies,

 

Pulapula, treatment can feel never ending at times but you will get there! Pleased you are nearly at the end of chemo. It’s a great milestone to reach and a trip to Center Parcs is a perfect way to celebrate. I went to the one at Sherwood Forest last summer before my chemo started - we had a fab time.

 

 ALittlePixie, great idea to keep yourself busy with seminars. How did it go yesterday - do you find they help? I signed up for one at Maggies Newcastle but they’ve not got back to me with dates yet 😞 Hope your trip to work went well - have you got a date to go back?

 

Aley, fantastic news about your last chemo 💪🏻 but crap that you ended up in hospital with it! Typical!  Pleased you are back home now - every day now you will get better ❤️ Enjoy your trip to Belfast.

 

A friend of mine has a mammogram today as she found a lump a few weeks ago! Hoping and praying it’s nothing - it’s so worrying to think that as I’m hopefully finishing my treatment hers could be starting! 

 

Its my eldest daughters birthday on Friday (she will be 15) so I’m off to try and get organised with banners, balloons and a cake - not too old for balloons and banners hopefully 😂 

 

Take care everyone ❤️ Lisa xx

 

 

 

 

Member

Re: September 2018 Chemo Starters.

Hello lovely ladies 💖

Great to hear everyone’s news! I had my last chemo on 22nd Feb-and guess what? Landed in hospital with neutropenic sepsis! 😳Unbelievable!! Anyway after 4 days of being pumped full of fluids and antibiotics I was discharged 4 days later 🤪 my surgery is at the end of the month..🥴

anyway we’re off to Belfast for a few days at the end of the week, I’ve never been 😊 but I reckon it’ll rain!!

take care & lots of love 💖💖

Member

Re: September 2018 Chemo Starters.

Hello!

Hope everyone is keeping well.

Pulapula - I didn't realise you still had a bit of active treatment left to go. Your final chemo beginning April will fly by. I had my picc line out and it healed really quick. My chemo nurse said not to bathe for a few days, but I'd be perfectly fine after a week to swim once it had healed. Double check the 3 week that they've advised you. You'be done right to book Center Parcs, it'll be a lovely break for you.

I'm keeping myself busy going to seminars! I went to one yesterday called "Health & Wellbeing". It was interesting and had workshops and talks on complementary care, mental health, fear of reoccurance etc. I'm going to another on Tuesday called "Living With & Beyond Cancer". That covers more the mental health side of things which will be interesting. In June, I'm going to a 2 day event called "Younger Women Together" which are for women aged 45 or below. It sounds really interesting. 

I just figured I should keep myself informed especially since my Herceptin injections don't finish til December and I'm stuck on Letrozole for at least the next 10 years!!!

I've got a busy week ahead. Monday I'm in work for a catch up session, Tuesday is my seminar and Friday I'm off to Manchester for date night....we're off to an Amy MacDonald gig, so it'll be a late one. I'm usually in bed by 9.30! ;-) I'm so looking forward to some time away with Stu feeling like us again.

Right you lovely lot, I'm off to have a little rest. I'm all headachy today.

Sending lots of love to everyone xxx

Member

Re: September 2018 Chemo Starters.

Sorry not sure how my autocorrect got to “scrubs” - that should have said “active” lol 

Member

Re: September 2018 Chemo Starters.

Hi ladies 

 

I’ve not checked in for a while as I was a bit down that a lot of you had finished scrubs treatment and I’ve still a way to go. At least now I feel like I’m getting there..,

 

Helen - congrats on Hawaii and wedding x

 

Gaby- I am due to have my final chemo on 4 April and didn’t realise I’d need to keep my picc wound dry after removal. I’m off to centerparcs on 3 May and want to swim. Any advice on when I need the line out to be recovered. They like to keep it in for 3 weeks after chemo but that might be tight for swimming?

 

My rads should then start in May so I should be finished by June!!! Not the few months I thought it would be when I was diagnosed on 8 Aug....

Member

Re: September 2018 Chemo Starters.

Hi ladies,

 

How are we all doing this week? 

 

Gaby, hope the mri showed that the chemo has blasted the little 💩 💥🥊 Have you got a date yet for surgery? How you getting on with the running? 

 

Jacqs, hope you had a lovely few days in Harrogate. How’s work been this week - hopefully not too tiring.

 

ALittlePixie, work has been ok thanks. Feels odd to be back - almost like the last few months have been a bad dream! Well done on the exercises / yoga - my fitness is definitely improving as the weeks go by. My fitness was shocking after my last chemo - just walking to school was exhausting!

 

Eyebrows / eyelashes are starting to come back - whoo hoo. Didn’t realise how much I missed them 😂 I’m starting to look like me again - just a GI Jane version.

 

Got a check up with my oncologist on Wednesday - not really sure what it’s for and how regularly I will see her from now on or if that’s it 😬 

 

I’m off to Edinburgh tonight with hubbie and my 3 girls for a few days. We are meeting up with friends so will be lovely to catch up with them and just have a wander round. Think snow is forecast this weekend though - should be fun 😜

 

Take care everyone. Lisa xx

 

Member

Re: September 2018 Chemo Starters.

Hi everyone

 

Ooh that sounds fun Jacqs, have a super time in Harrogate. I'm so chuffed you're getting a little break after being back at work for a few full days. You must be exhausted.

 

Keeno  - huge congratulations on booking your wedding and also about your margins being clear after your surgery. Its all so positive and these next few months will fly by.

 

Gaby - hope the MRI results are good next week. Let us know. I think it's great you're doing your Pilates and gonna start running.

 

Lisa - that's fab you're back at work too. Has it been ok? How's your hair now?

 

I had a little jog up the lane a few days ago. It felt good to tire my body with exercise, even tho it wasn't very far or fast. I could probably have walked quicker! I'm having another go at my yoga class tmoz too. I have a lot of aches and pains around my neck, shoulders and chest so hopefully it'll help. My hair is definitely growing. I keep putting on my Grow Gorgeous serum and it seems to be working. My eyebrows have made an appearance too....darker than they were so they're a little surprising! 

 

Sending love to everyone. I'm determined to get on here and write a little more often.

Love, D x

 

Member

Re: September 2018 Chemo Starters.

Hi All,

 

Lisa - I wouldn’t worry too much about your hair at this stage - it’s still early days.  Someone said it’s good to brush it every day as it encourages growth ??? Maybe worth a try.  If not, there are serums you can buy to help stimulate growth.  I’ve got about 1/2 cm - not enough to go without the wig just yet especially as it’s turned so cold again 😬

I’ve just done my 2nd full day at work + 2 1/2 days this week - it’s been pretty tiring so next week only  going to do 2 or 3 1/2 days.  

 

Gaby - as of tonight, I’ve only got 13 injections left to go.  Good luck for your MRI results this week.

 

Well tomorrow we’re off to Harrogate for an overnight stay.   Couple of hours around a trade show, then the rest of the afternoon to relax - maybe little bit of shopping followed by nice food.  Shame it’s so cold - will need to dig hats back out.  

 

Have a good week everyone xxx

Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

I've got aches and pains too, mainly in the chest/breast area. Nothing bad, but just enough to make me worry a little - so it's really comforting to now that you're all having the same issues. Although I have restarted Pilates and am going to give running a go (bought some trainers a couple of days ago!), it is going to take me some time to get properly fit again. I think I tried to do too much today - walk to the hospital, loads of household chores and a slightyl too elaborate dinner, and now I'm really tired.Smiley Frustrated I had my MRI scan today and will get the results next week. I'm really hoping that there is very little left of that damn tumour, fingers crossed.

 

Keeno: how wonderful youre getting married. I'm sure you will look stunning whatever length your hair gets to.

 

Lisa: I've got about 0.5cm of growth on my head, eye lashes are great, eye brows are coming back (though they look much lighter than they were) and, sadly, the hair on my legs is also growing Smiley Wink

 

Jacqs: thanks for sharing your pre/post op tips on bras and arnica. I seem to be getting better with the injections and am usually only getting very small red marks around the injection site, rather than big bruises. I now have less than 30 to go, so like you might actually start the count down. Yuo must be below 20 now, which is great. The end of this particularly lovely treatment is in sight!

 

Have a lovely weekend, everyone.

 

Gaby x

Member

Re: September 2018 Chemo Starters.

Hi ladies,

 

Jacqs, Hope you’ve had a better day at work today and you aren’t suffering too much. So far I’ve been ok but I’m not doing a full day and I also sit at a desk so not much activity either 😂 

 

How is everyones hair coming on? Mine is coming everywhere apart from where I want it! It is coming through but I can still see a lot of bald head shining through! My hair was thinning on top before treatment and I know tamoxifen can cause it too so worrying that it’s as good as it’s going to get 😞 

 

Hope everyone has a lovely week. Lisa xx

Member

September 2018 Chemo Starters.

Hi All,

It’s lovely to hear how everyone is doing.

Lisa - I hope this week is going ok for you back at work.  I’ve just done a full day but have come home with terrible backache & aching feet ( i’m on feet all day at work ).  

Keeno - congratulations on your upcoming wedding.  So good to hear positive news.  I think the aches and pains both you & Lisa mentioned are a common complaint.  I’ve had exact same thing and breast care nurse has reassured me that it’s normal - we need to keep moving and eventually it’ll ease.  Our bodies have endured so much and now just need a lot of tlc.

Gaby - glad you’re healing after picc line issues.  Isn’t it bliss to be able to have a soak in the shower after getting them removed.  Simple pleasures 🤪

Aley & Gaby - I had surgery before chemo.  Double mastectomy & recon.  I did take arnica tablets before and after surgery - I was informed it was perfectly safe.  I now use the cream for my bruises - both on my tummy where I have bruising from daily injections & where I had my central line removed as that also bruised badly.  

On bra front, I went for crop top / sports bras that I could step / wriggle into as I couldn’t lift my arms above my head.  

A Little Pixie - good to hear from you again and so pleased your rads are all finished.  I think we’ve all got similar issues with regards our level of fitness.  I too am trying to get back to cooking real food and I ‘ve started walking a little more, but it’s going to be a slow slog getting back to my pre-chemo fitness level.  Main thing is we’re all headed in the right direction after a very tough 8/9 months.

Take care lovely ladies 😘 

Member

Re: dRe: September 2018 Chemo Starters.

Hi All,

It’s lovely to hear how everyone is doing.

Lisa - I hope this week is going ok for you back at work.  I’ve just done a full day but have come home with terrible backache & aching feet ( i’m on feet all day at work ).  

Keeno - congratulations on your upcoming wedding.  So good to hear positive news.  I think the aches and pains both you & Lisa mentioned are a common complaint.  I’ve had exact same thing and breast care nurse has reassured me that it’s normal - we need to keep moving and eventually it’ll ease.  Our bodies have endured so much and now just need a lot of tlc.

Gaby - glad you’re healing after picc line issues.  Isn’t it bliss to be able to have a soak in the shower after getting them removed.  Simple pleasures 🤪

Aley & Gaby - I had surgery before chemo.  Double mastectomy & recon.  I did take arnica tablets before and after surgery - I was informed it was perfectly safe.  I now use the cream for my bruises - both on my tummy where I have bruising from daily injections & where I had my central line removed as that also bruised badly.  

On bra front, I went for crop top / sports bras that I could step / wriggle into as I couldn’t lift my arms above my head.  

A Little Pixie - good to hear from you again and so pleased your rads are all finished.  I think we’ve all got similar issues with regards our level of fitness.  I too am trying to get back to cooking real food and I ‘ve started walking a little more, but it’s going to be a slow slog getting back to my pre-chemo fitness level.  Main thing is we’re all headed in the right direction after a very tough 8/9 months.

Take care lovely ladies 😘 

Member

Re: dRe: September 2018 Chemo Starters.

Hi Lisa Reassuring to know your brain is also playing nasty tricks on you or is it! We have been through enough without paranoier! I have been looking at dresses on line got to find something suitable for a beach! 

I wonder what my hair will be like by then I have about 10 weeks to grow something half decent!"

Oh went to see my hairdressor last week to show her my smoky grey fuzzy growth and my white patch at front! Great idea we put some of that root powder on it Loreal  colour spray or powder sorts it out a treat for a couple of days....my eyebrows are growing back well though better than before I think! Eyelashes not so at minute! 

I started my bike training today and yes it took my mind off things v well! 

Love H xxx

Member

Re: dRe: September 2018 Chemo Starters.

Ahh wow - Hawaii - fantastic news Helen. Congratulations ... very exciting and will be so nice to focus on something other than the last few crappy months. Have you been dress shopping yet? 

 

I’m paranoid about all aches and pains too  ... I’m convinced it’s somewhere else and that it just hasn’t been found yet! It’s so hard not to focus on every little thing but I’m trying to stay positive. I’m hoping work will be a good distraction for me. We’ve all come on a long way 💪🏻 We've been through so much since our diagnosis and we should be very proud of ourselves. Hopefully your wedding plans will be a lovely distraction. Good luck with starting rads and your injections ❤️ Lisa xx

Member

Re: dRe: September 2018 Chemo Starters.

Hey all WOW there's been lots going on! All very positive I see which is great news.

 

My 2nd surgery to get the margins went well and yah margins were clear at last! Had full node clearance and there was another node and a bit affected so I get extra rads on my armpit and above breast as extra precaution.....had my radio planning and 15 rounds starts on 19.03!  I also get my first zoladex injection and exomestane on 19th and starts daily I am also worried about SE's! 

So we booked a holiday 21.05 I'm off to Hawaii.......to get married!  We thought it was about time with all thats happened.....

Back to work on phased return once radio finished.

I have lots of aches and pains not sure whats caused them...chemo, picc line, surgery or menopause symptoms! I am still paranoid that this is a sign it has returned elsewhere.....I am looking forward to moving forward programme to help me get over the stuff in my head!!

I have also been doing lots of walking and yoga had to stop running again with sugery but starting cycling next week as signed up for a 37 mile race on Dartmoor in Devon in June! 

So well done to those getting out there running and walking.

Much love to you all

Hxxx

 

 

 

 

Member

Re: dRe: September 2018 Chemo Starters.

Morning ladies,

 

Hope you are all having a good weekend.

 

Gaby, pleased you seem to be over the worst of the SE. Well done on doing the couch to 5k programme - very impressed. New trainers always help and you need to look the part 😜 I’m trying to walk more too. Hoping to start Pilates again soon. 

 

Thanks for the advice about going back back to work ... will let you know how I get on ❤️

 

Jacqs, ooh the blood thinning injections sound really painful 😬 Good luck with returning to work next week ❤️ I’ve been feeling really tired the last few days so I’m hoping I can stay awake at work 😂 I’m also going to a baby shower tonight - not going to drink but a late night will probably wipe me out 😜

 

ALittlePixie, pleased your radiotherapy went well and you managed to enjoy a few weeks off with family. Great idea to take Eve out of school and make the most of you being in Carlisle. It’s so nice not having to do the school run for a bit. I love the lakes - I grew up nearby in Lancashire so have lots of happy memories going there. 

 

Good luck with taking Letrozole - hope the SE are kind to you. I started on tamoxifen when I started rads (so 6 weeks ago now) and so far I’ve been ok. Few more hot flushes but not too bad. 

 

Aley, well done on having your last T - hope you have managed to celebrate 🥂🎉 Third of the way done - fantastic ❤️

 

Aley / Gaby, I had surgery at the start of my treatment - a mastectomy and then another op for anc. I found recovery from surgery so much easier than chemo. My advice is to make sure you rest and do the exercises that they ask you to do. The exercises make a huge difference to getting mobility back in your arm quicker. I bought a couple of sports bras too - didn’t go bra less. It was only day surgery for me (which I was surprised at) but was probably for the best as I could rest at home better. Good luck for the 29th Aley ❤️ and Gaby ❤️ 

 

Enjoy your Sunday ladies ... I’m off to brave this blustery weather for a walk 🙈 ... where’s the sunshine gone! Big hugs. Lisa xx

 

 

 

 

 

 

 

Member

Re: dRe: September 2018 Chemo Starters.

Hi everyone,

 

It's so lovely to read all your messages - we have all pulled through some really tough months and although there are clearly still quite a few treatments and issues, more or less unpleasant Smiley Frustrated, for all of us to sort out, it's just wonderful that we have done it! Smiley HappyHeart

 

My picc line wound is healing really well now. I've just got a small plaster there and should be able to take that off early next week. I'm looking forward to having my first shower without a plastic sleeve since September! The injections are defitniively not my idea of fun and my tummy is getting increasingly colourful Smiley Wink, but I am just ploughing on, haven't got any choice really. Jacqs: you're already on the count-down to the finish-line with your injections, excellent. I've got several boxes left, so reckon it's too depressing to count at this point. Have you tried applying anything soothing to your bruises, like Arnica? I've been wondering whether that might be a way of getting through the next few weeks, but I'm not sure if it's safe to do.

 

LittlePixie: how lovely your family were able to join you in Carlisle. That must have made your time there so much more bearable. Thanks for the encouragement with the running. I am planning to get my trainers next week and get started. Like everyone else, I'm not happy with the extra pounds I've put on. However, I've discovered that the extra flab around my middle is very useful for the injections Smiley LOL We're spending the weekend with my in-laws in the Midlands - lots of cakes and pudding that can't be rejected outright - so no point dieting just yet, but come Monday, I've got to stop snacking on biscuits, crisps etc and make a serious start to getting my weight down.

 

Aley: like you, I've got surgery coming up in late March. No details yet, as I am waiting for my MRI. I've read lots on other threads about bras/no bras, exercise etc and nearer the time, and once I know what sort of surgery I'm having, I gues I shall have to do some serious research in to all of this. Don't fancy "no bra", as my boobs are slightly on the larger side, but I guess I could do that at home, as long as I have something supportive to wear when I go out. I'll be interested to hear what everyone else has done/is doing about this.

 

Have a lovely weekend.

 

Gaby x

 

Member

Re: dRe: September 2018 Chemo Starters.

Hi everyone 

Ive been a bit quiet lately, lots going on so just trying to get my chemo fogged head around everything! 🥴

had my last ‘t’ nearly a week ago! Just coming through albeit slowly, the grotty phase!!😆my surgery is planned for 29th March, so the plan is to recover & prepare for phase 2 of this triathlon! I’m having WLE, reduction on other breast and anc. Would welcome any advice for post op & recovery.

Lisa & Jacqs that’s impressive that you’re returning to work-good luck.

My parents have come up to help so off to the garden centre with them later..

bye for now x

Member

Re: dRe: September 2018 Chemo Starters.

Hello you lovely lot!

 

I've just caught up on all the posts. I've been staying up in Carlisle for 3 weeks doing radiotherapy with limited Wi-Fi. I've tried to reply a few times using my phone, but the forum kept kicking me out...so frustrating. So, I'm now using my tablet and it seems to be behaving so far, so I hope this reply posts!!!

 

So, how the devil is everyone?

 

Jacqs  - I'm so pleased you've had your central line removed now.  I hope the soreness and bruising goes down quickly. That's rubbish about your stomach being so bruised with your injections. Good luck starting work next week. That little bit of normality will do you the world of good, just take it slowly and build up tho. Our bodies have been through so much trauma.

 

Gaby - I think you taking up running is a fab idea. Is your picc line would healing well? I'm sorry you had such a nightmare getting it out. Thats rubbish you got a clot too. More sodding  injections. I love your kittens, they're super gorgeous.

 

Lisa - congratulations on starting back at work. I think you and Jacqs are brilliant. Slowly and steady tho. I agree with all of Gaby's comments re your colleagues. Let us know how you get on.

That's great you've booked your holiday to Malta. Don't stress about the weight....once you start at work and are active, it'll come off again.

 

So, I'm back home and all my rads are done, yipee! Im still having my herceptin injections every 3 weeks and I''ve just started on Letrozole which I'm still concerned about. The side effects look crap, so I'm praying I'll be ok on them. I didn't finish all my chemo...even the weekly paclitaxol gave me nerve damage on my hands and feet so they stopped the last one. Radiotherapy went well and my skin is ok, if a little red. I'm slapping on the gel they gave me and it's good stuff. I stayed up in Carlisle on my own for the first week which was horrible, so we took Eve (she's 10) out of school for a week and the next week was half term anyway. It was a lovely 2 weeks with Stu and Eve with me and we made the most of our time up there. I guess that'll be our holiday for the year!! I think we'll just do camping weekends in summer, even in the garden will be fun. We live on West Coast of Cumbria so we have lots of choice in The Lakes for days out. We just need another fab summer!

My hair is growing back like anything. I do like my buzz cut tho, so I might keep it now, it's just so easy. I don't mind rocking the bald look weirdly. Whilst in Carlisle, I did the Looking Good Feel Better course. Oh my, I drew on eyebrows and they just looked like a couple of slugs. It did make me laugh lots. I had no eyelashes for the mascara either!

My weigh is driving me nuts, so I'm trying to be sensible with my eating habits. Now I'm getting more energy, I'm starting to cook more. AND...I had a little ride out on my bike for the first time in forever it seems. It was only up our lane but I felt like I was gonna have a heart attack and my legs were killing ... I'm incredibly unfit now, but I'm determined I'll get there. Oh, and i went to my yoga class on Monday. There was so much i couldnt do, but it was nice to go and see everyone, and the relaxation bit at the end was lovely! 

Hope you all have a lovely day. Lots of love and congratulations everyone,  we're finally on the way to getting our lives back to some new normality. Love Dawn xxxx

 

Member

Re: dRe: September 2018 Chemo Starters.

Hi Ladies,

 

Hope you are all all doing well & have made the most of the lovely weather - it was so nice.  I’ve been on a few long walks, but unfortunately it looks like it’s going to turn cold again, so it’ll be back to the woolly hats.

 

I had my central line removed yesterday.  It’s a little sore & badly bruised but thankfully it’s out & I can now look forward to a couple of months without weekly hospital trips.  

Gaby - sorry to hear you had a bad experience getting your picc line removed.  I’m also on blood thinning injections - hope you’re managing ok with them.  It’s not great having to inject every night but only 25 more days to go for me.  Can’t wait - the bruising on my tummy is severe.

 

Lisa - i’m also planning on going back to work next week.  Part time hours to see how I feel.  It will be nice to have that sense of normality back.  The next couple of months will be busy for us with Easter coming up, so hope I can keep up.

 

Take care all xxx

Member

Re: dRe: September 2018 Chemo Starters.

Hi everyone,

 

I have emerged from my last ever chemo fog, picc line wound is healing nicely, the sun is shining and the flowers are coming out - what more could I ask for! Smiley Happy

 

Lisa: I wasn't quite up for celebrations at the weekend, but we had a couple of nice walks in the sun and all now feel very positive. I think I shall wait a couple of weeks before toasting myself with some bubbly. Smiley Very Happy As for that diet, well, yes, I need to do that too Smiley Frustrated I've decided (I think?) to take up running - I hate running, actually!!! - but everyone I see in the park who is running looks fabulous, so I think I shall give it a go. My daughter and I have decided to do the NHS Couch to 5K programme, very slowly, and with a lot of couch to start with Smiley Wink I shall invest in some good trainers and hopefully the pain of spending that money will keep me going for a bit! I'm so impressed that you're going back to work. It seems a very sensible idea to start part-time and to build up slowly. I'm sure everyone will be so pleased to have you back and presumably those colleagues who need to know what's happened have been told. As for the rest, maybe just play it by ear - if they ask and you feel up to it, tell them, if they don't ask, well, maybe leave it for now. You have enough to deal with re-adjusting to work to worry too much about what other people are thinking. You should be very proud of yourself to have got through the last few months and to be at a point where you can return to work! I think it's fantastic and I'm sure your family and friends think so too.Heart

 

Hope everyone is doing well and getting a chance to enjoy this amazing weather.

 

Gaby x

Member

Re: dRe: September 2018 Chemo Starters.

Good morning ladies,

 

We’ve all gone a bit quiet! Hoping that means we are all busy doing lots of lovely things ❤️💪🏻

 

Gaby - ooh ouch that sounds really painful - hope you you are feeling brighter now. Did you celebrate at the weekend? I celebrated a little too much 😂 but had a fab night with family. Now the diet starts today 😞

 

I’m starting work on Monday ... just 12 hours a week to begin with ... will see how I get on. Really nervous as a lot of people at work don’t know why I have been off. I don’t look like the old me so they are in for a shock 😜. I am looking forward to getting back to a bit of normality though and I’m hoping work will give me that. 

 

Hope you all have a lovely week ❤️ Lisa xx

 

Member

Re: dRe: September 2018 Chemo Starters.

Thanks Lisa and Jacqs!

 

I had a difficult day today, as they still had trouble getting my picc line out. In the end I had to have a local anasthetic which was really painful and they were then able to do something or other - I didn't loo, as there seemed to be lots of blood! - and got it out. Now, however, I've got a small blood clot just below the piccline entry point, so am having to inject blood-thinning drugs for the next 3 weeks, lovely! I spent quite some time in the pharmacy waiting for my prescription and when I got home I had a phonecall from some specialist nurse to say that they need to reduce my dose and so I will need to go and see her on Thursday. I'll probably be feeling the SEs of my last chemo by then, so it's not great timing, but I'd rather have a lower dose, so will drag myself in to King's. Hopefully that will then be it! Smiley Tongue Time to celebrate at the weekend I think Smiley Wink

 

Hope things are going well with everyone. I've slightly lost track as to which stage everyone has reached, but it's so lovely that we're all emerging from all this tough treatment and can now start to think about rebuilding our lives.

 

Gx

Member

Re: dRe: September 2018 Chemo Starters.

Fantastic news Gaby.  It is a really emotional thing - I had a good cry the day I finished.

Hope you recover well from this round.  Get plenty of rest then when you’re feeling a little stronger make sure you have a little celebration to mark the end of it.

Enjoy those little kittens & take care.

Jacqs xxx

Member

Re: dRe: September 2018 Chemo Starters.

Ahh fantastic Gaby - well done - you did it 💃🏻🎉🥂 No more chemo ... it’s a really good feeling 😘 something that seemed a really long way off when we all started in September. Everyday you will get better and no more counting down to the next cycle 💪🏻❤️

 

Hope you managed an end of chemo dance before you fell asleep 😜 Take it easy over the next few days and rest ... big hugs ❤️ Lisa xx

 

 

Member

Re: dRe: September 2018 Chemo Starters.

Hi everyone,

 

I had my last chemo today!!!!!! And, like most of you, I rang the bell and ran!!! Smiley LOLSmiley Very HappySmiley LOL I didn't realise there is an actual bell for us to ring in the chemo ward - I'm evidently not very observant and strangely enough haven't heard anyone use it before, but I jolly well did use it, nice big hearty ring! Everyone clapped and I started crying, so legged it before things got too embarrassing Smiley Wink. I've got to go back tomorrow morning to have my picc line taken out. They tried today, but for some weird reason it got stuck?! Apparently this can happen, if your vein goes in to a spasm, so hopefully it will relax over night and they can then just pull it out. In a way I'm pleased, because one of my favourite nurses wasn't in today, so I couldn't say goddbye to him, but hopefully he'll be in tomorrow. I got some chocolates and biscuits for the nurses, and gave them a card and lots of hugs, but really I wish there was something more meaningful I could have done for them. I could not have got through these last few months without their incredible kindness and humour, and skill of course.

 

Anyway, I've done it!!!!! Just have to get through the next few rubbish days, but at least I know this is the last time. Am getting rather tearful again, as I am writing this. But they are tears of joy. In fact, If I wasn't feeling a bit tired, I would do an "end of chemo" dance or something, but maybe I'll do that next week, once I'm over the worst side effects. Smiley Wink

 

Hope everyone is ok.

 

Gx

Member

Re: dRe: September 2018 Chemo Starters.

Thanks Kip xx I bought some conditioner from a wig shop on Saturday so hoping that will help make the wig last a bit longer 🤞 They also steamed my wig for me which seems to have done the trick for now 😊. Lisa xx

 

 

 

Kip
Member

Re: dRe: September 2018 Chemo Starters.

Hi Lisa T, sorry to jump into your thread,. I saw your post about conditioning uour wig,. I had some specific cknditioner from the wig shop tk use which kept mine soft,  have  you had any?   I also had wig shampoo too.. you can probably get some on line too.

kip

Xx

Member

Re: dRe: September 2018 Chemo Starters.

Lovely to hear from you Kath xx

 

My hair is also really patchy and there is too much white for my liking (I’m 43). As long as it comes back though🤞 - we can dye it after 6 months 😉 

 

I’ve put on a lot of weight too ... my diet and any exercise I used to do has completely gone out the window! With everything that we’ve been through I don’t recognise the person in the mirror anymore. My goal for losing weight is May ... I’ve booked a week holiday to Malta 😎 Will hopefully be ditching the wig then too (or at least just for the holiday) Enjoy your weekend. Lisa xx

Member

Re: dRe: September 2018 Chemo Starters.

Ahh no that is so annoying Jacqs - hope you manage to get it sorted soon!  Enjoy your weekend with your sister ... the diet can definitely wait!

 

I’m visiting family this weekend too, my Mum and 2 sisters, who all live close to each other. We are having a big celebration meal as I missed Christmas and New Year with everyone 🎉🥂 Diet is definitely (definitely this time and no excuses) starting after I’ve been to see everyone 😜 

 

On a different issue ... the ends of my wig now look like the frizzy hair you see on an old barbie doll 🙈😱 ... tried washing it with fabric softener but does anyone have any other tips? Maybe it’s time for a new one 😜

 

Hope everyone has a lovely weekend ❤️ Lisa xx

Member

Re: dRe: September 2018 Chemo Starters.

Evening Everyone 

 

Sorry haven't been on for ages, I have been reading all your posts. 

 

Just want to give you an update. 

 

My oncologist came to the decision to stop my chemotherapy early due to chemo causing me nerve damage to my hands and feet. 

 

I now have a few weeks before my radiotherapy starts middle of March. 

 

I have been reading your posts about your hair or lack of it. I am so glad I am not on my own. What is this fluffy stuff on top of my head!! It doesn't even feel like hair and its grey!!!! I'm 41.... 😮😮😮😮😮 

 

And I look ridicolous as it's patchy. I have two bald patches on front of my head so look like a receding middle aged man. 

 

Am also trying to lose the 2 stone I have put on while on chemo. I'm asthmatic so can't do too much but have been out walking every other day and making sure I'm doing 10,000 steps and also doing a fitness video at home. 

 

Hope you are all doing ok and all have a good weekend. Xx

Member

Re: dRe: September 2018 Chemo Starters.

Hi Lisa,

So glad to hear you’re finished with rads.  Hope it doesn’t get too sore. 

You do keep thinking that as each area of treatment is over that it’s all finished, but unfortunately it’s never that simple.  I’m 8 weeks past chemo & almost 3 weeks past my bisphosphonate treatment, but still have my central line in.  Have been ringing different depts each day this week to chase up appointment to have it removed, but still nothing.  Very frustrating 😬

As the weather was so lovely yesterday, I went for a 2 hour walk but am suffering for it today.  Everything aches! I think it’s going to take a long while getting back to a better level of fitness. Haven’t psyched myself up to dance fitness classes just yet.  I’m going to spend the weekend with my sister in Cambridge so maybe will just have another weekend relaxing before getting my fat butt in gear.

Have a lovely weekend all.

xx

 

Member

Re: dRe: September 2018 Chemo Starters.

Morning ladies,

 

Ahh Gaby, Ollie and Luna are gorgeous 😍 (fab names too) - I’m sure they will give you all a much needed boost and distraction to the last few months when they cause the chaos that all kittens do 😉Pleased you are feeling better too. 

 

Haven’t heard the tip that brushing helps to encourage hair growth but I’m in! Willing to try anything 😂 Although my daughter looked at me like I had gone mad when I sat brushing my hair (or lack of it) last night. 

 

MBJ, good luck with your treatment next week ❤️💪🏻 Everyone reacts differently to treatment but you can do this and you will get through it. Sometimes it’s the thought of what is happening and the unknown that is worse than the actual treatment. Try and focus on just one treatment at a time and keep a diary of SE as they will follow a pattern - you will then know when your rubbish days are on your next one. Drink plenty of water too. Will be thinking of you next week 💪🏻😘

 

Jacqs, pleased you had a lovely weekend away. Well done on winning the dance fitness class - you just need to go now 😉 I really need to start looking at my fitness and diet as my weight has piled on 🐷🙈

 

I finished my last radiotheraphy yesterday 🛎🛎🛎 all felt a bit strange but it was a really good feeling. All went ok but I have started to go a bit pink and the nurse said it might get itchy and sore in next few weeks. There was me thinking that was it 😂 not so lucky! Had a lovely lunch out afterwards and then a few drinks last night to celebrate. 

 

Hoping you all all have a lovely week ❤️ Lisa xx

 

 

Member

Re: dRe: September 2018 Chemo Starters.

Hi ladies,

 

I'm feeling so much better - those antibiotics must have been super strong. In the past I have always avoided antibiotics whenever possible, but now I am very grateful for them! Smiley Very Happy

 

Jacqs: We lost our 13-year old cat the day before my diagnosis. How odd that we should both have lots our old pets at such a similar point. It was defintiively the worst week of our life as a family. Originally I told my children that we would get a new cat once all my treatment was complete, i.e. sometime late summer 2019, but then my daughter reminded me that she would be at uni by then and possibly not living at home, and my son also looked so disappointed, so I of course changed my mind in about 2 seconds! Smiley Wink

 

MBJ: I'm sorry that you are feeling so scared about chemo. I think we all felt that way before the treatment started. It is the fear of the unknown that makes it all so awful. I can only speak for myself, but once I actually started chemo, I felt more in charge and no longer at the mercy of the cancer. Throughout I have tried to keep the endgoal in sight - getting rid of this blasted tumour. I have of course had some really rubbish days and weeks. Chemo is defintively not easy, I'm afraid. But having this forum as a space to sound off, moan and voice my anxieties has been a huge help. Make use of your Feb thread - the support you will get from everyone there really makes a big difference. Is anyone coming with you for your first chemo? It's good not to be on your own. Also, I hope you have a good BCN - s/he too should be a good support, both in terms of giving advice and helping you through any any emotional issues. If there's one thing I have learnt through all this, it's to ask for and to accept help more readily. I like my independence and usually like to do things for myself and in my own way, but sometimes that has not been possible and I've had to learn to voice my needs much more openly and to put my needs first, at least occasionally. The nurses on the chemo ward have also been a god-send. Perhaps I am lucky, but the chemo ward team at King's iin London are highly professional, kind, caring and have a great sense of humour. I couldn't have done this without them and I really hope that you have a similarly wonderful team to look after you. I wish you much strength and love for your treatment.

 

Gaby x

MBJ
Member

Re: dRe: September 2018 Chemo Starters.

Hi GabyF

I love your new kittens they look so sweet. But as a cat lover and mum I know looks can be decieving. I am in the February thread starting chemo next week, scared to death to be honest. You have to be so careful all the time and even when you are sometimes it's not enough, AE staff obviously did not take your cold seriously enough. The worst is you suffered for longer and this journey is hard enough as it is. Enjoy you kittens, they will son grow into beautiful cats. 

Member

Re: dRe: September 2018 Chemo Starters.

Hi Ladies,

Just back from our weekend away in Nottingham.  It was lovely to get away & do normal things for a change.  Although I have to say my fitness levels are shocking - a couple of days walking around & i’m exhausted.  

We went to a charity evening on Saturday & I won a 1 month unlimited pass to a dance fitness class.  Definitely need to give it a go.

 

Gaby - feeling very envious of you with your new kittens.  I lost my 15 year old kitty the day after I was diagnosed & have spent last 9 months telling myself I wouldn’t get another.  They are so much fun though and bring so much happiness.   Hope your cold is feeling better.

 

My head has been very itchy over last couple of days - i’m hoping that’s because of growth.  I’ve got a fine covering all over now.  Cutting it a little while ago seems to have encouraged growth.  

 

Hope you’re all doing well this week.

jacqs xx

 

 

 

 

Member

Re: dRe: September 2018 Chemo Starters.

Good morning lovely ladies,

 

I've been a bit quiet the last few days - have had my first, awful cold while on chemo. Developed a slight temperature on Saturday, so being the good girl I am, I trapsed in to A&E to get assessed. I spent 5 hours there, only to be told that my bloods were fine and as my temperature was not particularly high (37.8C), I should just go home. No antibiotics, nothing. By Monday, I was feeling far worse, phoned acture oncology, who hauled me in to the chemo ward immediately, put me on an antibiotics & saline drip, and didn't let me go home, until my heart rate & temperature were back to normal. I slept like a log last night and am feeling SO much better this morning - I love my chemo nurses! Smiley HappyHeart

 

This morning I have spent cat-proofing our house. We collected two gorgeous kittens, Ollie and Luna, from a charity on Sunday and they love cables - help!! DSC_0143.JPG

They look innocent, but they are actually incredily cheeky, as all good kittens should be.Smiley Wink Ollie and Luna have put a big smile on all our faces and it has been lovely to watch our kids looking so happy!

 

I saw a note on the August 2018 thread about brushing hair to encourage growth - has anyone tried or heard of that? I haven't got more than 2-3mm of growth on my head yet, but gave it a go this morning anyway. Quite nice feeling, bit like a head massage, and so nice to actually use a hairbrush for the first time in months!

 

Hope you're all having a reasonable week.

 

Gx

Member

dRe: September 2018 Chemo Starters.

Thanks Lisa! Still hanging in there keeping busy!! 

Re the hair it will catch up mine was thin on top also.....my eyelashes just arent playing ball though! 

Lots of love

Hxxx

Member

Re: September 2018 Chemo Starters.

Lovely to hear from you Helen - pleased your head hair is coming back well. Mine still isn’t growing back as much as I would like (maybe I’m expecting too much 😬) - it’s growing at sides and back a bit but still quite sparse on top ... not a great look 😂 

 

Sorry you’ve had a rubbish few days - it’s so frustrating when treatment gets delayed. You will get there tho ... stay strong ❤️ 💪🏻 Really hope you get positive results soon and can keep your new boob. Make sure you take it easy 😘

 

Hope you all have a lovely Sunday.

 

Big hugs. Lisa xx

Member

Re: September 2018 Chemo Starters.


@Lisa-T wrote:

Afternoon ladies,

 

Hope you are all doing well this week ❤️

 

I’m completely losing all track of the days at the moment but it’s nearly the weekend whoo hoo - will be pleased to not have to go to the hospital for a few days.

 

Great news that you are coming to the end of chemo Gaby - it’s a strange (but fantastic) feeling. We are getting there 💪🏻 Not surprising you were emotional - it can catch you off guard at times can’t it. I was in tears driving to hospital thinking about the end of rads and ringing the bell! Hope I won’t be a blubbering wreck on the day 😂 

 

Jacqs, hope the facial hair is now under control 😜 Weekend away sounds fab - hope you have a lovely time celebrating hubbys birthday. 

 

Lisa xx

 



Hi all! 

Ive not been on for a while and it took me a while to get through all the posts! Hair appears to be the main subject! My head hair is going like the clappers the grow gorgeous is good I do have an Heartarray of colours! I have devided to just let it grow until there's enough to have it cut properly as i have some long bits and the rest needs to catch up! 

I had a shock when I discovered my leg hair had grown without me knowing!!! I had been back to work for a couple of days with black tights on luckily! 

Eye brows and lashes not keeping up with the rest but yes I can see a hairy face starting to appear most bizarre! 

Anyway Ive not had a good few days....I had the piece of skin removed and then a shock to all  when Heartthe margins werent clear enough so  i was wipped back in for a further removal of 1.5 cms of skin and while at it they decided a full axillary clearance would be best rather than radio on armpit....so I now have the drain back in a huge scar and am playing the waiting game to see if its now clear.....if it isnt then the new boob has to go!! My rads have been delayed and  i feel like a major step back I so  hope Its back to positive news soon....

Keep the posts going all and keep positive..........

Helen xxxxx

Member

Re: September 2018 Chemo Starters.

Afternoon ladies,

 

Hope you are all doing well this week ❤️

 

I’m completely losing all track of the days at the moment but it’s nearly the weekend whoo hoo - will be pleased to not have to go to the hospital for a few days.

 

Great news that you are coming to the end of chemo Gaby - it’s a strange (but fantastic) feeling. We are getting there 💪🏻 Not surprising you were emotional - it can catch you off guard at times can’t it. I was in tears driving to hospital thinking about the end of rads and ringing the bell! Hope I won’t be a blubbering wreck on the day 😂 

 

Jacqs, hope the facial hair is now under control 😜 Weekend away sounds fab - hope you have a lovely time celebrating hubbys birthday. 

 

Lisa xx

 

Member

Re: September 2018 Chemo Starters.

Hi Jacqs,

 

You really made me laugh last night with your mention of lip hair and bellies, thank you!! After reading about your rather annoying lip hair, I looked at my face properly in the mirror and realised that mine had at some point fallen out and I hadn't even noticed. Now, thanks to your warning, I'm on high alert for any monster regrowth Smiley Very Happy I hope you manage to get yours under control!

 

On my way back from seeing my oncologist just now I had a little cry of complete relief. He's booking me in for an MRI and to see the surgeons in just a few weeks and I won't see him again until after surgery. As I was walking home through the park, I suddenly realised that this means I really am coming to the end of chemo. Then the birds all starting tweeting around me and well, tears started to flow! Haven't cried for weeks and I actually felt really happy, crazy!

 

Hope everyone is having a reasonable week.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi Everyone,

 

Good luck for your meeting tomorrow Gaby & hope the swelling in your boobs improves.  I think the general feeling of being bruised n battered is down to our bodies just being low & protesting at everything they’ve been put through, but still not easy to deal with.

 

I am pleased with the progress on hair growth front - with huge exception of top lip hair.  Think that’s growing faster than anywhere else on my body and have just invested in a slimline epilator for facial hair today.  Lip hair longer than head hair & belly bigger than boobs isn’t a look I’m aiming for 🤪🤣

So tomorrow morning is to go for good long walk before breakfast then come home to do lip defuzz.

 

Have booked weekend in Nottingham for hubbys Birthday this coming weekend.  Will be able to spend some time with my stepdaughter too which will be lovely.  Looking forward to getting back to little more normality.  

 

Little Pixie - hope rads are going well.  Get through this week and you’re more than halfway ❤️

 

Have a good week all xx

 

 

Member

Re: September 2018 Chemo Starters.

Morning everyone,

 

I think I'll have to brave the camera and get a photo of myself up here as well! Haven't let anyone take a photo of my for a few months now, but will see if I can do it myself on Monday (in peace and quiet Smiley Happy). It is really nice to be able to put faces to names.

 

Thanks to all of you for your encouragement with the injections. I've now done 3 and they're actually not bad at all. It's just the thought of putting a needle in myself that's the problem. But it doesn't hurt, so I have stopped making such a fuss about it! I am getting a lot of aches with these injections though - feel weirdly bruised all over my back and arms - and my boobs seem a little swollen. Am seeing my concologist on Tuesday, so will just check this with her.

 

Very interesting about your stubble, Jaqcs. I will have a chat with my hairdresser next week and probably get rid of my fluff. It's so nice to be able to feel something growning on my head, finally. My old eye brows have now mostly fallen out and new ones are growing - yippee! Have also got a load of short new eye lashes. Nothing on my legs yet (good! Smiley Happy) and no pubic hair yet either. Smiley WinkOh well, can't have it all.

 

LittlePixie: hope your first few days of rads have been ok and that you managed to get some rest over night.

 

Jacqs: hope you're starting to feel a bit better. Sounds like you've had a few tough days, but maybe you can get that trip to the Lake District sorted soon to get some lovely fresh air and build up your strength.

 

Have a good weekend.Heart

 

Gx

Member

Re: September 2018 Chemo Starters.

Thanks for the info ktk / Jacqs xx  

 

Pleased you are over the worst now Jacqs and great news about the stubble. 

 

Hope you are coping ok with rads / being away from home ALittlePixie ❤️ 

 

Big hugs ❤️ Lisa xx

 

 

Member

Re: September 2018 Chemo Starters.

Hi Lisa & Ktk,

I am feeling much better today thanks.  As Ktk says, it was like a 24 hour flu type of thing.  

As well as strengthening the bones to protect from osteoporosis, they do believe that bisphosphonates help prevent cancer cells from coming back in the bones which is common in triple negative breast cancer. They stress however that you must be postmenopausal - I was borderline, but they still agreed to go ahead with it.

I noticed a little bit of stubble on my lashes today WOOHOO!! 

Its lovely to put a face to a name Little Pixie & Lisa. I’ll have to try & figure out how to do it too.

Have a lovely weekend all.  💗 xx

 

 

ktk
Member

Re: September 2018 Chemo Starters.

The bisphosphonate is to reinforce your bones, make them absorb more calcium. It is recommended post menopause to limit osteoporosis. The worst SE could be necrosis of the jaw!!!!  You have an infusion every six months for a couple of years. It also made me feel a bit fluy, but only for 24 hours. Kx

Member

Re: September 2018 Chemo Starters.

Hope you are feeling better today Jacqs ❤️ What is the bisphosphonates treatment for and how long do you need to have it? It’s rubbish that its making you feel so lousy ... big hugs. Hope you are taking it easy xx

 

I haven’t got any sign of eyelashes / eyebrows coming back either. Hopefully soon 🤞

 

Managed to avoid any more mishaps in the car park today 😜 even with all this snow. Haven’t heard anything yet about bump so I’m hoping I won’t now 🤞 

 

Hope you all have a lovely weekend ❤️ Lisa xx

Member

Re: September 2018 Chemo Starters.

Hi Ladies,

Hope everyone is well.

I finally had my bisphosphonate treatment yesterday.  Blood tests showed I was borderline postmenopausal.  Nurse said it would only be 2/3 more months of having symptoms, then i should be officially postmenopausal, so agreed that the treatment could go ahead.  I woke up feeling like i’d been hit by a bus as my whole body is aching so badly.  

On hair front, I got rid of my hair fluff on Monday.  It was so soft and fluffy and very patchy but does now seem to be more stubbly like real hair.  I’ve got opposite problem to you Lisa - mine is mostly white with a few dark patches.  Still little sign of lash & brow hair though.  Sorry to hear about your bump & hope you don’t hear anymore about it.  

Little Pixie I do hope rads went well today.  Have you got any company whilst you’re away from home? Paul & i we’re thinking of a night away in the Lakes this weekend but will be putting it on hold with the cold weather.  

Gaby Well done on getting your first injection out of the way.  Hope your energy levels pick up soon.

I’m currently looking into CBD Oil.  Have been told by a number of people that it’s worth trying. There’s claims that it stops cancer cells re-occurring and although no evidence to prove this, my last oncologist did say that it has potential for future NHS trials, but for now, I do believe it can improve energy levels and help with aches & pains.  I was asked not to try it whilst going through chemo, but no reason not to try it now. I generally avoid taking any unnecessary meds but can’t be as scary as some of rubbish we’ve put into our bodies over the last few months.  

Have a good evening all.  Stay warm.

xxx