Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Morning everyone,

 

Hope you're all doing ok - it's been a bit quiet here lately Smiley Happy

 

Lisa: How many radiotherapy sessions are you having? It is a bit of a pain having to travel so far every day. Will you be ok driving back on your own? I've been told that the main SE of rads is tiredness, though I don't know how quickly that kicks in. Do be careful driving - I sound like my mother Smiley LOL!

 

I think that if and when I go back to work, it will definitively be part-time, at least to start with. I am slightly worried that a part-time return is not what my employer wants and I haven't spoken to them about it yet. Am delaying that conversation for a few more weeks/months, as I am really not sure about what i want to do. I won't be going back until September at any rate, i.e. start of the new school year. By then I should have more energy and be physically fit to return. It will be a bit of a shock to the system though. And I just hope that my brain will be a bit more switched on by then - at the moment I can't see myself multi-tasking and rushing around as I used to!

 

Have a good weekend everyone. We're off to see some little kittens this afternoon. Our lovely cat died last summer (in fact the day before I was diagnosed - that was a lovely week!) and we are keen to take in a couple of rescue kittens now. Should be fun!

 

Gx

Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

Hi ladies,

Gaby, the Moving Forward course sounds great - unfortunately there isn’t one near me in Newcastle 😞 There might be something similar tho so will look into it - sounds like just what I need. I’ve been so focussed on taking one stage at a time, I think it will hit me once it has all finished - coming to terms with the new me, like many of you I’ve put on weight, and also the constant scare of it coming back! We have all been through so much ❤️💪🏻I’m planning on going back to work two weeks after radiotherapy although it will just be part time for 3 days - not sure how realistic this is.

Aley, hope you are feeling brighter this week. I always seem to have a wobble a few days after treatment - the darker thoughts would creep in and it seemed that this nightmare would never end! Blamed it on the steroids but it’s probaly natural to feel that way 😘.

ALittlePixie, hope your chemo rash has gone now and you can have your last treatment (or even better you don’t need need it and now you have finished and rang the bell 🎉🥂)

I had my planning appointment for radiotherapy on Wednesday and so now have 4 tattoo dots 😜 First session is on the 24th January - hospital is an hour away so I’m not looking forward to driving every day. Hoping to drive myself (OH will take me to the first one) ... will see how I get on.

Hope you are all doing well ... sending lots of love ❤️ Lisa xx
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi Jencat,

 

They don't seem to have listed this course on the website yet, but here's the info I was emailed:

 

Venue: Guy's Hospital, Cancer Centre, Guy's Hospital, Great Maze Pond, London, SE1 9RT - Dimbleby Drop in Centre, Group Room 2.

Week 1: Tuesday, 4 June 2019

Week 2: Tuesday, 11 June 2019

Week 3: Tuesday, 18 June 2019

Week 4: Tuesday, 25 June 2019

Session Timings: 1:30pm to 4:45pm

 

The person I've been in touch with is called Angela and her email is movingforward@breastcancercare.org.uk. Maybe just email her and ask if she can book you on to the course. It would be lovely to have someone else from our bit of the forum there and to meet you! Let me know how you get on.

 

Gx

 

Member
Posts: 1,751
Registered: ‎21-06-2017

Re: September 2018 Chemo Starters.

Hi Gaby, is the M F course at Guy's a new date, I don't remember seeing it? Also is it am or pm? I'm in Kent and there is a couple of M F courses at my local hospital but they're on a Friday, a day I work x

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Someone from Breast Cancer Care just emailed me with the details of the Moving Forward course beginning 4 June at Guy's - the details should also now be on this website, if anyone is interested. I've just booked myself on to that one, instead of in March. I should be done with everything by then, yipee!!! Smiley Very Happy

 

Gx

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi Aley,

 

I think we all have good and bad days. It's particularly hard, when I'm tired and/or feeling lousy, but I try to look forward and to think of all the rubbish we have to go through as part of my recovery. Having the children to chat to also helps - even if I'm low they will often help to distract me by just chatting away about their day/problems. Can't remember if you have any kids (sorry), but if not, then meeting up with friends, fresh air, exercise etc have all helped me (to a point Smiley Wink) The other thing that helped me was to book a holiday for the summer - something lovely to look forward to once all this is finished! Smiley HappyIf you're really low, it's worth talking to your BCN, as there is professional help available for us.

 

I have heard that once all the treatment is complete and we're discharged, things can actually get more difficult, so I have provisionally booked myself on to a "Moving Forward" course that Breast Cancer Care offers. However, the London one is in March, which is a bit early for me and I am hoping that they might put on one in the summer. This course apparently deals with everything, including diet, exercise and, perhaps most importantly, our mental health post-treatment. One of my biggest headaches, and one which I am currently trying not to think about too much, is whether and when I return to work. Hopefully, talking to other people on that course might help me a bit in making my decision.

 

Gx

Member
Posts: 43
Registered: ‎25-09-2018

Re: September 2018 Chemo Starters.

Hi GabyF
Yes it’s a grim sight when I look in the mirror so I avoid it if possible! Second ‘T’ has left me feeling emotionally quite down..anyone else experience this? Maybe it’s because it feels like such a long haul..Hope all you lovely ladies are doing 👌🏽 xx
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi Aley / Little Pixie,

 

Looking in the mirror is not always easy at the moment, I agree. I've also put on weight over the past few months (not to mention Christmas), plus I've got virtually no hair, stubbles instead of eye lashes, thinning eye brows, and despite extra daytime naps - dark rings under my eyes. Just lovely Smiley FrustratedThe other day I came across a photo of myself on holiday a couple of years ago: I had beautiful, long hair and looked "normal", hey-ho. I try to tell myself that it's only for a few more weeks and then hopefully my hair will start to grow back and I can try to rebuild the old me, if that's possible, although I've still got surgery and rads to contend with. I suppose in some ways there will always be the "me" pre- and post cancer. It's not going to be a worse version of myself or my life (I hope Smiley Tongue), but a different one it certainly will be.

 

I treated myself to a facial today and rather weirdly my skin is actually better than it was pre-cancer. Either my skin likes the chemo (?????) or it's the lack of work-related stress.

 

Little Pixie: I'm sorry your treatment has been postponed. It's so frustrating when that happens, but I suppose it's better they don't give us chemo if our bodies aren't up to it.

 

Pulapula: Hope everything went well today Heart

 

Take care, everyone.

Gbay x

Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

PulaPula - good luck with your surgery today. Let us know how you've got on when u can. I'm thinking of you today.
Aley - glad you're getting thru the T regime. I'm the same with the bloat and weight.

I'm meant to have my last Paclitaxel tmoz. I was looking forward to ringing the bell but it's been deferred for now. I have chemo rash only face and numbness/tingling in my fingers still so they've said I can't have it. I'm seeing the consultant on Weds and he's gonna tell me about my radiotherapy treatment next and im hoping he might say I don't need this next Paclitaxel dose.

Hope everyone is doing as well as possible. Sending love xxx
Member
Posts: 43
Registered: ‎25-09-2018

Re: September 2018 Chemo Starters.

Sorry to hear this Pulapula, sounds like they’ve caught it early..😒 had my second ‘T’ yesterday. So far ok, I’ve lost my eyebrows & eyelashes and look puffy in the face- no wonder I put on 3kg over Christmas 🥴 hope you’re all having a good weekend 😘
Highlighted
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

I think you have every right to feel sorry for yourself, Pulapula. What a shock that must have been. I'm so sorry you've got to deal with yet more surgery and chemo. It's just lousy. However, I also think that you seem to be dealing with this with incredible inner strength. At least they found the cells before they could turn into anything really nasty and they can get rid of them.

Much love. Thinking of you. 😘 Gaby
Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

Pulapula I am so sorry to hear your news.  That’s just awful after everything you’ve already been through and you have every right to feel sorry for yourself.  Best wishes for your surgery on Friday.  Sending lots of love ❤️

Member
Posts: 56
Registered: ‎01-09-2018

Re: September 2018 Chemo Starters.

So sorry to hear about your results Pulapula ... that must have been quite a shock ... the extra surgery and chemo is just 🤬🤬🤬 You can get through this ❤️💪🏻 It is so worrying when they ‘miss’ things ... makes you doubt the care you are getting. Sending big hugs ❤️ Good luck for Friday xx



Member
Posts: 52
Registered: ‎16-08-2018

Re: September 2018 Chemo Starters.

Oh Paula, I'm so sorry to hear this news. That's just so devastating for you and I'm not surprised you're feeling like that. Sending all my love sweetheart xxxx
Member
Posts: 49
Registered: ‎25-07-2018

Re: September 2018 Chemo Starters.

Well, I wasn't expecting the results I got today! And not in a good way....Turns out I also have pre-cancerous cells (DCIS) which didn't show up on scans previously. So I am booked in for more surgery this Friday. Hopefully I can keep my nipple but I might loose it depending how widespread the cells are...I was also very happy with the cosmetic results from my surgery on 21 Dec so it's disappointing. Oh well, another scar to add to my collection. I'm also now a bit worried that these things can avoid detection - apparently it's because my breast tissue is very dense...

 

And I am also back with my oncologist next Friday to start chemo again - 4 x T cycles this time, so that takes me through to early April. And then I'll have a course of rads too :-(. Feeling sorry for myself - can you tell...

Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi ladies,

 

My main achievement today was to walk to the bus, get on the right one Smiley Very Happy, collapse into the chair in the chemo ward and, after a visit to my oncologist, get home again, slowly! Then lunch and a nap - lovely Smiley Wink

 

My oncologist told me that I should have surgery within 4-6 weeks of finishing chemo, which is great - can't wait to get the rest of that bugger out of my system! Rads apparently start after a similar gap, but I may need 3-5 weeks of daily doses, depending on what they find during surgery. And for those treatments I will need to go in to Guy's every day! Well, at least I know what I will be doing in April/May, how exciting NOT. Smiley SadStill, it will probably feel like a walk in the park compared with chemo.

 

Pulapula: I'm so pleased that you are recovering well from surgery and hopefully you won't need to have any more chemo now.

 

CarGarland: I agree, one way or another you need to know, so be brave and do the test. Heart

 

Gx

Member
Posts: 49
Registered: ‎25-07-2018

Re: September 2018 Chemo Starters.

Hello ladies.

I’ve not been on for a while but thought I’d pop in to see how everyone is.

Cat - I think a pregnancy test is in order as it could be possible and you need to know one way or the other.

Lack of hair growth is bothering me now. My last FEC chemo was 22 Nov and whilst there are definitely more hairs on my head it’s taking forever to grow. Might look at some of those suggestions.

I had my surgery on 21 Dec so just 4 weeks from chemo finishing. I ended up having a LICAP flap where the lump was removed with margins and fat from under my arm used to fill the gap. It did leave me with a long scar back under my arm towards my back but it’s healing well.

I went back yesterday to get my results but they’re not back from the lab. Really hoping I don’t need more chemo as it will be T if I do. I’ve felt great these last few days now my scar is healing and I’ve had energy again I guess as the chemo drugs are out of my system.



Member
Posts: 5
Registered: ‎15-10-2018

Re: September 2018 Chemo Starters.

Hi Gaby

So sorry to hear you’ve struggled with your EC 😞. I hope you feel “normal” soon.

I had my last THP on 27th Dec and I was told that I’d have surgery 6 weeks later. I have an appointment tomorrow with my consultant where I will be given my date, I’m guessing early Feb for me. I then have an oncology appointment on 28th Feb to discuss my radiotherapy.

Did anybody on here so 3 x FEC and then 3 x THP? I have been so ill with the THP compared to the FEC.

TMI but.....I’m worrying I could be pregnant which I know is bizarre but today I realised the contraceptive implant in my arm expired back in June. My periods stayed normal through my FEC but stopped in October (if I remember rightly) and now I’m stressing that this constant nausea is morning sickness and not an SE as I was told by my oncologist that THP is kinder than FEC.

Am I losing my mind or could I be? I know the only way is to do a test but I just needed to write it|say it out loud.

Xx
Member
Posts: 90
Registered: ‎02-08-2018

Re: September 2018 Chemo Starters.

Hi everyone,

 

The last few days have been a bit rubbish, hence my silence. The EC last Wednesday proved rather tough - I've not been sick, but have felt very weak (very wobbly legs and feeble hands) and have not been able to do anything much at all. Brain fog seems to be clearing a bit today and I have been able to make a few useful phonecalls, read a book, empty the bins and a few other equally exciting things.Am seeing my oncologist tomorrow and will ask for some general blood tests, just so I can check there aren't any supplements etc I could take to ease me through this a little.

 

Those of you who are now mowing on to surgery and/or radiotherapy: how long is the gap between the end of chemo and the start of the next lot of lovely treatments? My oncologist originally told me I'd have to wait 6 weeks before having surgery and then another 6 weeks after that for radiotherapy, but from what I can see on the forum, the timespan seems to vary quite significantly, depending on hospital etc.

 

Jacqs: I hope they managed to sort out that swelling for you. I do find that every chemo session seems to throw up another unexpected/unpleasant SE Smiley Frustrated And yeah, sod the exercise - it's an achievement for me at the moment to get up and down the stairs to the loo!Smiley Wink

 

Hope everyone is having a reasonable start to this week.

 

Gx

Member
Posts: 62
Registered: ‎12-06-2018

Re: September 2018 Chemo Starters.

Hi Keeno72 - congratulations on your last T 🎉🎉🎉. It’s a great feeling even if you do still have to suffer SE’s.  It can only get better now.  

I came down with a cold on Christmas Eve just a few days after my last session and it’s only just getting better now.

I’ve got another worrying thing happening. I was experiencing some aching in my rib cage whilst having chemo.  Discussed with onc but she said to leave it & hopefully it would ease.  I’ve now got a swelling on my left hand rib cage just underneath where my left breast surgery was.  Am waiting for bc nurse to call me back today to see if someone can check it out.  🙁

Thanks for the tips on hair growth - just googled the Grow Gorgeous serum & am going to try it out.  Would be great to see real hair instead of candy floss style fluff.

 

Gaby - hope you’re feeling brighter today.  Daily Pilates sounds very ambitious - some days, rest is needed & sod the exercise 🤪.  

 

Hope everyone one else is doing well. Xxx