19-01-2019 12:00 PM
Hope you're all doing ok - it's been a bit quiet here lately
Lisa: How many radiotherapy sessions are you having? It is a bit of a pain having to travel so far every day. Will you be ok driving back on your own? I've been told that the main SE of rads is tiredness, though I don't know how quickly that kicks in. Do be careful driving - I sound like my mother !
I think that if and when I go back to work, it will definitively be part-time, at least to start with. I am slightly worried that a part-time return is not what my employer wants and I haven't spoken to them about it yet. Am delaying that conversation for a few more weeks/months, as I am really not sure about what i want to do. I won't be going back until September at any rate, i.e. start of the new school year. By then I should have more energy and be physically fit to return. It will be a bit of a shock to the system though. And I just hope that my brain will be a bit more switched on by then - at the moment I can't see myself multi-tasking and rushing around as I used to!
Have a good weekend everyone. We're off to see some little kittens this afternoon. Our lovely cat died last summer (in fact the day before I was diagnosed - that was a lovely week!) and we are keen to take in a couple of rescue kittens now. Should be fun!
18-01-2019 02:07 PM
17-01-2019 09:39 AM
They don't seem to have listed this course on the website yet, but here's the info I was emailed:
Venue: Guy's Hospital, Cancer Centre, Guy's Hospital, Great Maze Pond, London, SE1 9RT - Dimbleby Drop in Centre, Group Room 2.
Week 1: Tuesday, 4 June 2019
Week 2: Tuesday, 11 June 2019
Week 3: Tuesday, 18 June 2019
Week 4: Tuesday, 25 June 2019
Session Timings: 1:30pm to 4:45pm
The person I've been in touch with is called Angela and her email is firstname.lastname@example.org. Maybe just email her and ask if she can book you on to the course. It would be lovely to have someone else from our bit of the forum there and to meet you! Let me know how you get on.
16-01-2019 04:57 PM
Hi Gaby, is the M F course at Guy's a new date, I don't remember seeing it? Also is it am or pm? I'm in Kent and there is a couple of M F courses at my local hospital but they're on a Friday, a day I work x
16-01-2019 03:54 PM
Someone from Breast Cancer Care just emailed me with the details of the Moving Forward course beginning 4 June at Guy's - the details should also now be on this website, if anyone is interested. I've just booked myself on to that one, instead of in March. I should be done with everything by then, yipee!!!
16-01-2019 12:06 PM
I think we all have good and bad days. It's particularly hard, when I'm tired and/or feeling lousy, but I try to look forward and to think of all the rubbish we have to go through as part of my recovery. Having the children to chat to also helps - even if I'm low they will often help to distract me by just chatting away about their day/problems. Can't remember if you have any kids (sorry), but if not, then meeting up with friends, fresh air, exercise etc have all helped me (to a point ) The other thing that helped me was to book a holiday for the summer - something lovely to look forward to once all this is finished! If you're really low, it's worth talking to your BCN, as there is professional help available for us.
I have heard that once all the treatment is complete and we're discharged, things can actually get more difficult, so I have provisionally booked myself on to a "Moving Forward" course that Breast Cancer Care offers. However, the London one is in March, which is a bit early for me and I am hoping that they might put on one in the summer. This course apparently deals with everything, including diet, exercise and, perhaps most importantly, our mental health post-treatment. One of my biggest headaches, and one which I am currently trying not to think about too much, is whether and when I return to work. Hopefully, talking to other people on that course might help me a bit in making my decision.
15-01-2019 07:43 PM
14-01-2019 08:47 PM
Hi Aley / Little Pixie,
Looking in the mirror is not always easy at the moment, I agree. I've also put on weight over the past few months (not to mention Christmas), plus I've got virtually no hair, stubbles instead of eye lashes, thinning eye brows, and despite extra daytime naps - dark rings under my eyes. Just lovely The other day I came across a photo of myself on holiday a couple of years ago: I had beautiful, long hair and looked "normal", hey-ho. I try to tell myself that it's only for a few more weeks and then hopefully my hair will start to grow back and I can try to rebuild the old me, if that's possible, although I've still got surgery and rads to contend with. I suppose in some ways there will always be the "me" pre- and post cancer. It's not going to be a worse version of myself or my life (I hope ), but a different one it certainly will be.
I treated myself to a facial today and rather weirdly my skin is actually better than it was pre-cancer. Either my skin likes the chemo (?????) or it's the lack of work-related stress.
Little Pixie: I'm sorry your treatment has been postponed. It's so frustrating when that happens, but I suppose it's better they don't give us chemo if our bodies aren't up to it.
Pulapula: Hope everything went well today
Take care, everyone.
13-01-2019 10:58 AM
12-01-2019 06:37 PM
10-01-2019 12:12 PM
09-01-2019 11:03 PM
Pulapula I am so sorry to hear your news. That’s just awful after everything you’ve already been through and you have every right to feel sorry for yourself. Best wishes for your surgery on Friday. Sending lots of love ❤️
09-01-2019 09:37 PM
09-01-2019 07:47 PM
Well, I wasn't expecting the results I got today! And not in a good way....Turns out I also have pre-cancerous cells (DCIS) which didn't show up on scans previously. So I am booked in for more surgery this Friday. Hopefully I can keep my nipple but I might loose it depending how widespread the cells are...I was also very happy with the cosmetic results from my surgery on 21 Dec so it's disappointing. Oh well, another scar to add to my collection. I'm also now a bit worried that these things can avoid detection - apparently it's because my breast tissue is very dense...
And I am also back with my oncologist next Friday to start chemo again - 4 x T cycles this time, so that takes me through to early April. And then I'll have a course of rads too :-(. Feeling sorry for myself - can you tell...
08-01-2019 05:56 PM
My main achievement today was to walk to the bus, get on the right one , collapse into the chair in the chemo ward and, after a visit to my oncologist, get home again, slowly! Then lunch and a nap - lovely
My oncologist told me that I should have surgery within 4-6 weeks of finishing chemo, which is great - can't wait to get the rest of that bugger out of my system! Rads apparently start after a similar gap, but I may need 3-5 weeks of daily doses, depending on what they find during surgery. And for those treatments I will need to go in to Guy's every day! Well, at least I know what I will be doing in April/May, how exciting NOT. Still, it will probably feel like a walk in the park compared with chemo.
Pulapula: I'm so pleased that you are recovering well from surgery and hopefully you won't need to have any more chemo now.
CarGarland: I agree, one way or another you need to know, so be brave and do the test.
08-01-2019 08:00 AM
07-01-2019 06:26 PM
07-01-2019 04:54 PM
The last few days have been a bit rubbish, hence my silence. The EC last Wednesday proved rather tough - I've not been sick, but have felt very weak (very wobbly legs and feeble hands) and have not been able to do anything much at all. Brain fog seems to be clearing a bit today and I have been able to make a few useful phonecalls, read a book, empty the bins and a few other equally exciting things.Am seeing my oncologist tomorrow and will ask for some general blood tests, just so I can check there aren't any supplements etc I could take to ease me through this a little.
Those of you who are now mowing on to surgery and/or radiotherapy: how long is the gap between the end of chemo and the start of the next lot of lovely treatments? My oncologist originally told me I'd have to wait 6 weeks before having surgery and then another 6 weeks after that for radiotherapy, but from what I can see on the forum, the timespan seems to vary quite significantly, depending on hospital etc.
Jacqs: I hope they managed to sort out that swelling for you. I do find that every chemo session seems to throw up another unexpected/unpleasant SE And yeah, sod the exercise - it's an achievement for me at the moment to get up and down the stairs to the loo!
Hope everyone is having a reasonable start to this week.
04-01-2019 10:42 AM
Hi Keeno72 - congratulations on your last T 🎉🎉🎉. It’s a great feeling even if you do still have to suffer SE’s. It can only get better now.
I came down with a cold on Christmas Eve just a few days after my last session and it’s only just getting better now.
I’ve got another worrying thing happening. I was experiencing some aching in my rib cage whilst having chemo. Discussed with onc but she said to leave it & hopefully it would ease. I’ve now got a swelling on my left hand rib cage just underneath where my left breast surgery was. Am waiting for bc nurse to call me back today to see if someone can check it out. 🙁
Thanks for the tips on hair growth - just googled the Grow Gorgeous serum & am going to try it out. Would be great to see real hair instead of candy floss style fluff.
Gaby - hope you’re feeling brighter today. Daily Pilates sounds very ambitious - some days, rest is needed & sod the exercise 🤪.
Hope everyone one else is doing well. Xxx