Hi Aley / Little Pixie,
Looking in the mirror is not always easy at the moment, I agree. I've also put on weight over the past few months (not to mention Christmas), plus I've got virtually no hair, stubbles instead of eye lashes, thinning eye brows, and despite extra daytime naps - dark rings under my eyes. Just lovely The other day I came across a photo of myself on holiday a couple of years ago: I had beautiful, long hair and looked "normal", hey-ho. I try to tell myself that it's only for a few more weeks and then hopefully my hair will start to grow back and I can try to rebuild the old me, if that's possible, although I've still got surgery and rads to contend with. I suppose in some ways there will always be the "me" pre- and post cancer. It's not going to be a worse version of myself or my life (I hope ), but a different one it certainly will be.
I treated myself to a facial today and rather weirdly my skin is actually better than it was pre-cancer. Either my skin likes the chemo (?????) or it's the lack of work-related stress.
Little Pixie: I'm sorry your treatment has been postponed. It's so frustrating when that happens, but I suppose it's better they don't give us chemo if our bodies aren't up to it.
Pulapula: Hope everything went well today
Take care, everyone.
Pulapula I am so sorry to hear your news. That’s just awful after everything you’ve already been through and you have every right to feel sorry for yourself. Best wishes for your surgery on Friday. Sending lots of love ❤️
Well, I wasn't expecting the results I got today! And not in a good way....Turns out I also have pre-cancerous cells (DCIS) which didn't show up on scans previously. So I am booked in for more surgery this Friday. Hopefully I can keep my nipple but I might loose it depending how widespread the cells are...I was also very happy with the cosmetic results from my surgery on 21 Dec so it's disappointing. Oh well, another scar to add to my collection. I'm also now a bit worried that these things can avoid detection - apparently it's because my breast tissue is very dense...
And I am also back with my oncologist next Friday to start chemo again - 4 x T cycles this time, so that takes me through to early April. And then I'll have a course of rads too :-(. Feeling sorry for myself - can you tell...
My main achievement today was to walk to the bus, get on the right one , collapse into the chair in the chemo ward and, after a visit to my oncologist, get home again, slowly! Then lunch and a nap - lovely
My oncologist told me that I should have surgery within 4-6 weeks of finishing chemo, which is great - can't wait to get the rest of that bugger out of my system! Rads apparently start after a similar gap, but I may need 3-5 weeks of daily doses, depending on what they find during surgery. And for those treatments I will need to go in to Guy's every day! Well, at least I know what I will be doing in April/May, how exciting NOT. Still, it will probably feel like a walk in the park compared with chemo.
Pulapula: I'm so pleased that you are recovering well from surgery and hopefully you won't need to have any more chemo now.
CarGarland: I agree, one way or another you need to know, so be brave and do the test.
The last few days have been a bit rubbish, hence my silence. The EC last Wednesday proved rather tough - I've not been sick, but have felt very weak (very wobbly legs and feeble hands) and have not been able to do anything much at all. Brain fog seems to be clearing a bit today and I have been able to make a few useful phonecalls, read a book, empty the bins and a few other equally exciting things.Am seeing my oncologist tomorrow and will ask for some general blood tests, just so I can check there aren't any supplements etc I could take to ease me through this a little.
Those of you who are now mowing on to surgery and/or radiotherapy: how long is the gap between the end of chemo and the start of the next lot of lovely treatments? My oncologist originally told me I'd have to wait 6 weeks before having surgery and then another 6 weeks after that for radiotherapy, but from what I can see on the forum, the timespan seems to vary quite significantly, depending on hospital etc.
Jacqs: I hope they managed to sort out that swelling for you. I do find that every chemo session seems to throw up another unexpected/unpleasant SE And yeah, sod the exercise - it's an achievement for me at the moment to get up and down the stairs to the loo!
Hope everyone is having a reasonable start to this week.
Hi Keeno72 - congratulations on your last T 🎉🎉🎉. It’s a great feeling even if you do still have to suffer SE’s. It can only get better now.
I came down with a cold on Christmas Eve just a few days after my last session and it’s only just getting better now.
I’ve got another worrying thing happening. I was experiencing some aching in my rib cage whilst having chemo. Discussed with onc but she said to leave it & hopefully it would ease. I’ve now got a swelling on my left hand rib cage just underneath where my left breast surgery was. Am waiting for bc nurse to call me back today to see if someone can check it out. 🙁
Thanks for the tips on hair growth - just googled the Grow Gorgeous serum & am going to try it out. Would be great to see real hair instead of candy floss style fluff.
Gaby - hope you’re feeling brighter today. Daily Pilates sounds very ambitious - some days, rest is needed & sod the exercise 🤪.
Hope everyone one else is doing well. Xxx
Did I say daily Pilates? What a load of rubbish! Defintiively not doing any today, as I had a bit of a rough evening and night. For the first time I actually felt sick last night and went to bed feeling very ropey. Had loads of hot flushes in the night, but still managed to get some sleep. Am feeling a bit wobbly this morning, so Pilates is off! Also noticed that some of my finger nails have started to go slightly yellow I really can't wait for all this bloddy chemo to be over...
Hope you all have a reasonable day.
Happy New Year everyone! We're all slowly reaching the end of this rather lousy road and 2019 should gradually turn into a much happier year for all of us.
We also had a nice, relatively quiet Christmas. Loads of food (I had to be weighed today, as it was chemo day - oh dear!), lots of chatting with family and too little movement, so pretty much just the usual
I have two EC sessions left, but as I have a 3-week gap between each, I won't finish chemo until 13 Feb. Then I get 6 weeks "off" before surgery and eventually radiotherapy. Should all be done by mid/late May. Roll on the summer!
Am feeling very dopey right now after chemo, but am trying not to go to sleep, as that tends to mess up my night. As for eye lashes, mine look like they might be trying to regrow, but I suppose the EC session today will stop that pretty quickly How lovely, Jacqs, that your hair is starting to regrow, even it's a bit flimsy. I'm sure it will take a bit of time for our hair to regain strength - maybe ask your hairdresser about shaving it again, or check the other treads to see if anyone has posted anything useful on this?
Aley, I really hope you're starting to feel a bit better.
MamaTony, good luck with the surgery - I'll be thinking of you. It will definitively be a good feeling to get rid of whatever is left of that blasted tumour. And you get a flat tummy as well - I'm jealous! My surgery will apparently be very minor, basically just scraping out dead cancer cells. No tummy tuck on offer so I am starting a new regime of daily Pilates to get that under control, or at least, that's the aim. Let's see whether I stick to this!
Lots of love to you all
Happy New Year to all you lovely ladies. I hope it finds us all on our way to better health and a positive & fresh new start.
We’ve had a very quiet and relaxing week recharging batteries. Now just waiting for my appointment for surgery to have my rejected implant re-done.
Mama Tony - like you there’s no signs of eyebrow or eyelash regrow. My hair however is starting to grow, although it’s more like white fluff! Not sure if best option would be to shave it off again & see if it comes through any thicker? Any suggestions welcome.
WOOHOO! Last chemo session completed🍾🍾🍾🎉🎉🎉
Although only just. Had bloods taken on Tue & they called yesterday to say neutrophils were low again ( as per last week) & asked if I was happy to postpone. I said no & asked if I could have them re-done today. After having them done, ward sister confessed she made a mistake yesterday & they had been fine all along. Anyway, was so happy 😁 did not complain.
I also got got the results to my BRACA testing last night. NEGATIVE! So despite the fact that I have a strong family history of bc, looks like i’m just unlucky. I need to do more research to find out if other members of the family could still have faulty genes though!
Bee & Millie - congratulations to you both too 🎉🎉🎉
Mama Tony - congratulations on your last chemo too 🎉🎉🎉. Sorry to hear your tumour growth has slowed. We’ll all be hoping & praying that it turns out to be scar tissue. Will be thinking of you on 16th Jan ❤️❤️
A Little Pixie - i’m so happy that you’re coping better with the weekly. 4 weeks will fly ❤️❤️
Kath - again you’ll be there in no time. For me, the weekly sessions seemed to go so quickly. Possibly because I didn’t have the more extreme SE’s that you get with 3 weekly FEC etc. ❤️❤️
Sending you all big hugs xxx
Thanks MamaTony, for your very encouraging words.It is so good to know that your daughter's operation was a success. How wonderful! We were all in a bit of a state that evening, but our lovely daughter is so sensible and determined - she is doing lots of research on the operation (with lots of warnings from me about internet scare stories!) and we have had a number of very calm and interesting chats. My husband compared it a bit to when I first got the news about the BC - the initial shock is overwheming, but after some sleep and more info, it is something we can deal with as a family, one day at a time.
Thanks to everyone else as well of course for your very kind words. They really help!
Sounds like we're all more or less getting through this week in a reasonable state. I'm still stuck with this awful taste - I'm SO fed up with it - but am hoping that it will clear by Christmas. I really don't want my Christmas lunch tasting of metal!Hot flushes are also a nuisance, totally! And I've got a grand total of 5 eye lashes left - why?
We're celebrating Christmas Eve with my parents (my dad is Danish, so Continental style) and then we're off to my in-laws on Christmas Day (great driving, absolutely no traffic ). No wifi and pretty lousy data connection in their house, so the kids might actually have to pick up a book or doing something other than fiddle with their phones!
Big hugs to everyone
Hi all! Haven’t posted for awhile but just wanted to share TODAY IS MY LAST CHEMO!!!
I didn’t think this day would come! This site has been such a comfort thank you 😊.
For anyone that doesn’t know i had lumpectomy and 3 nodes removed, IDC, HER2+ (lovely injections to look forward to). Love to you all & keep strong 💪🏿 💕xx
Hi all, I haven't posted on here very much at all since beginning chemo in September but have been reading all of your brave and supportive messages to each other. There is so much courage amongst you all and you have helped me enormously, so thank you 😊 I had my last Docetaxol yesterday (reduced to 80% and with some fab painkillers!!) Onwards and upwards to radiotherapy and 10 years of Tamoxifen now!! Well done all, you're almost there and you have 'totally got this' wishing you all a very happy and peaceful Christmas and a brighter 2019 xxx
Hello Gaby & Pulapula,
I’m sure everyone has got sidetracked with SE’s & getting ready for Christmas. Like you Gaby, i’ve been so tired & out of breath this last 2 weeks. Doing simple things is taking up so much energy. I went food shopping this morning after having bloods taken & thought I was going to pass out. As for that awful taste, I will be so happy to get rid of that. I think we should just hide those scales until well into Jan 🤪
Gaby that’s terrible to hear about your daughter - as if you didn’t already have enough to deal with. Sending big hugs & positive thoughts ❤️
Pulapula - good luck for Friday. Will be thinking of you. It is such a nuisance having to wear hats etc. I’ve taken to wearing a pink beanie that my sister bought for me. One minute I’m freezing, the next I have major hot flushes so it gets ripped off !
Hope everyone one else is doing ok xxx
I really hope everyone goes well for you on Friday. I'll be thinking of you. I've got surgery in late March, I think, so a bit of time to go still...
I'm fed up with hats etc as well, especially as nothing really seems to keep my head all that warm.
Had a bit of a mixed day today. I'm feeling better but our daughter was diagnosed with scoliosis at Guy's this morning and will probably have to have an operation to correct the curve in her spine at some point next summer. We seem to have gone from a family with very few health problems to having to deal with really rather major issues. I'm sure she will be ok in the end, but it's not easy for a teenager, who is about to embark on university etc. I just can't wait to see the back of all these doctors and hospitals!
Hi all, it's been a bit quiet on here lately - hope it just means you're busy getting ready for christmas, and are coping OK with your side effects.
I finally decided today what surgery I am going to have on Friday - WLE with reconstruction. I'll find out the pathology results on 7 January and really hope I don't need to have more chemo...It's been nearly 4 weeks since my last cycle and I don't miss it one bit! I've still got my PICC line in, just incase...Just wish my hair would start to grow back as I didn't get a wig and I'm getting fed up of wearing hats and scarves.
Hope you’re all having a good weekend, despite this cold weather. Today’s going to be a day tucked up at home for me maybe wrapping some more Xmas presents 🎁.
My stepdaughter is back from uni for the holidays so it’ll be a nice Sunday lunch then curl up on the sofa & watch Christmas films.
Thursday was my penultimate Carboplatin / Paclitaxel sesssion - it nearly didn’t go ahead cause my platelets & neutrophils we’re low, but they repeated the blood tests early on Thursday am & they’d risen just enough. Today was my last day of taking steroids - yeahhh 😁.
I’m fighting a cold & sore throat at the moment but praying I can stave it off till I get my last session out of the way next week.
Gutted that the nail on my right big toe is turning black - 1 week from the end. Isn’t that Sod’s law. Finger nails haven’t got any worse. The oncologist nurse said that I may get another horizontal band on each nail with this last cycle ( called Mees lines ) but the cuticles still look intact so she said I should avoid losing fingernails if I keep moisturising them & just let the bands grow out.
Wishing you all a good week. With each step closer to Christmas, we’re all getting closer to this nightmare ending. Take care all ❤️😘
Had my first EC session today and am feeling ok. I was half expecting to be throwing up by now, as I spoke to a couple of lovely ladies on the ward last week, who were feeling dreadful after their first EC. I had a barrage of anti-nausea drugs this morning and have been given a large bag with more goddies for taking at home - so far they seem to be doing the trick, fingers crossed! I am feeling a bit more dopey than usual, but my kids would probably say that they can't notice any difference
It's my husband's birthday today, so will bake him a cake in a moment. Wasn't sure I'd be up to it, but am very relieved that I can go ahead. He was a little low last night - combination of getting older and the ongoing worry of my treatment. He is not one for letting on much if he's stressed or sad, tends to bottle things up a bit, and the last few months have of course not been easy. Hopefully a bit of yummy cake and presents will cheer him up.
Hope everyone is having a reasonable week.
Gaviscon is a complete waste of time. The only thing i’ve ever found to work on severe indigestion / acid reflux is Lanzaprozole. Maybe try your own GP & see if you can get them to prescribe something stronger like Lanzaprozol. It’s usually 1 tablet a day in morning & it works pretty quickly. Xx
Gaby it’s great to hear your genetic test was clear. Such a huge relief for your famiy ❤️
Lisa I was offered genetic testing as i’m Also TN & have strong family history of BC. My results not due till Christmas time. Re nails, have gone for nice Christmassy red varnish & just going to keep fingers crossed.
Treemad - have you tried ringing the chemo helpline. They are really good if you just want advice & you can chat through what SE’s your having. I’ve had quite lot indigestion - I think due to steroids but i’m On completely different chemo drugs to you so it’s hard to compare. I take Lanzaprosol on prescription which helps, but they say that if any 1 symptom is really bad, it’s best to get it checked out. Please don’t suffer in silence - it’s all hard enough as is. I rand 24 hr chemo helpline early hours one morning & the nurse was so lovely - she let me run through every single SE & then gave advice on how to deal with each one. Hope you get it sorted soon
Think i’m set for a late night all thanks to those pesky steroids this morning. Wide awake 😬😬😬