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September 2018 Chemo Starters.

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Re: September 2018 Chemo Starters.

Hi Aley,

 

I think we all have good and bad days. It's particularly hard, when I'm tired and/or feeling lousy, but I try to look forward and to think of all the rubbish we have to go through as part of my recovery. Having the children to chat to also helps - even if I'm low they will often help to distract me by just chatting away about their day/problems. Can't remember if you have any kids (sorry), but if not, then meeting up with friends, fresh air, exercise etc have all helped me (to a point Smiley Wink) The other thing that helped me was to book a holiday for the summer - something lovely to look forward to once all this is finished! Smiley HappyIf you're really low, it's worth talking to your BCN, as there is professional help available for us.

 

I have heard that once all the treatment is complete and we're discharged, things can actually get more difficult, so I have provisionally booked myself on to a "Moving Forward" course that Breast Cancer Care offers. However, the London one is in March, which is a bit early for me and I am hoping that they might put on one in the summer. This course apparently deals with everything, including diet, exercise and, perhaps most importantly, our mental health post-treatment. One of my biggest headaches, and one which I am currently trying not to think about too much, is whether and when I return to work. Hopefully, talking to other people on that course might help me a bit in making my decision.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi GabyF
Yes it’s a grim sight when I look in the mirror so I avoid it if possible! Second ‘T’ has left me feeling emotionally quite down..anyone else experience this? Maybe it’s because it feels like such a long haul..Hope all you lovely ladies are doing 👌🏽 xx
Member

Re: September 2018 Chemo Starters.

Hi Aley / Little Pixie,

 

Looking in the mirror is not always easy at the moment, I agree. I've also put on weight over the past few months (not to mention Christmas), plus I've got virtually no hair, stubbles instead of eye lashes, thinning eye brows, and despite extra daytime naps - dark rings under my eyes. Just lovely Smiley FrustratedThe other day I came across a photo of myself on holiday a couple of years ago: I had beautiful, long hair and looked "normal", hey-ho. I try to tell myself that it's only for a few more weeks and then hopefully my hair will start to grow back and I can try to rebuild the old me, if that's possible, although I've still got surgery and rads to contend with. I suppose in some ways there will always be the "me" pre- and post cancer. It's not going to be a worse version of myself or my life (I hope Smiley Tongue), but a different one it certainly will be.

 

I treated myself to a facial today and rather weirdly my skin is actually better than it was pre-cancer. Either my skin likes the chemo (?????) or it's the lack of work-related stress.

 

Little Pixie: I'm sorry your treatment has been postponed. It's so frustrating when that happens, but I suppose it's better they don't give us chemo if our bodies aren't up to it.

 

Pulapula: Hope everything went well today Heart

 

Take care, everyone.

Gbay x

Member

Re: September 2018 Chemo Starters.

PulaPula - good luck with your surgery today. Let us know how you've got on when u can. I'm thinking of you today.
Aley - glad you're getting thru the T regime. I'm the same with the bloat and weight.

I'm meant to have my last Paclitaxel tmoz. I was looking forward to ringing the bell but it's been deferred for now. I have chemo rash only face and numbness/tingling in my fingers still so they've said I can't have it. I'm seeing the consultant on Weds and he's gonna tell me about my radiotherapy treatment next and im hoping he might say I don't need this next Paclitaxel dose.

Hope everyone is doing as well as possible. Sending love xxx
Member

Re: September 2018 Chemo Starters.

Sorry to hear this Pulapula, sounds like they’ve caught it early..😒 had my second ‘T’ yesterday. So far ok, I’ve lost my eyebrows & eyelashes and look puffy in the face- no wonder I put on 3kg over Christmas 🥴 hope you’re all having a good weekend 😘
Member

Re: September 2018 Chemo Starters.

I think you have every right to feel sorry for yourself, Pulapula. What a shock that must have been. I'm so sorry you've got to deal with yet more surgery and chemo. It's just lousy. However, I also think that you seem to be dealing with this with incredible inner strength. At least they found the cells before they could turn into anything really nasty and they can get rid of them.

Much love. Thinking of you. 😘 Gaby
Member

Re: September 2018 Chemo Starters.

Pulapula I am so sorry to hear your news.  That’s just awful after everything you’ve already been through and you have every right to feel sorry for yourself.  Best wishes for your surgery on Friday.  Sending lots of love ❤️

Member

Re: September 2018 Chemo Starters.

So sorry to hear about your results Pulapula ... that must have been quite a shock ... the extra surgery and chemo is just 🤬🤬🤬 You can get through this ❤️💪🏻 It is so worrying when they ‘miss’ things ... makes you doubt the care you are getting. Sending big hugs ❤️ Good luck for Friday xx



Member

Re: September 2018 Chemo Starters.

Oh Paula, I'm so sorry to hear this news. That's just so devastating for you and I'm not surprised you're feeling like that. Sending all my love sweetheart xxxx
Member

Re: September 2018 Chemo Starters.

Well, I wasn't expecting the results I got today! And not in a good way....Turns out I also have pre-cancerous cells (DCIS) which didn't show up on scans previously. So I am booked in for more surgery this Friday. Hopefully I can keep my nipple but I might loose it depending how widespread the cells are...I was also very happy with the cosmetic results from my surgery on 21 Dec so it's disappointing. Oh well, another scar to add to my collection. I'm also now a bit worried that these things can avoid detection - apparently it's because my breast tissue is very dense...

 

And I am also back with my oncologist next Friday to start chemo again - 4 x T cycles this time, so that takes me through to early April. And then I'll have a course of rads too :-(. Feeling sorry for myself - can you tell...

Member

Re: September 2018 Chemo Starters.

Hi ladies,

 

My main achievement today was to walk to the bus, get on the right one Smiley Very Happy, collapse into the chair in the chemo ward and, after a visit to my oncologist, get home again, slowly! Then lunch and a nap - lovely Smiley Wink

 

My oncologist told me that I should have surgery within 4-6 weeks of finishing chemo, which is great - can't wait to get the rest of that bugger out of my system! Rads apparently start after a similar gap, but I may need 3-5 weeks of daily doses, depending on what they find during surgery. And for those treatments I will need to go in to Guy's every day! Well, at least I know what I will be doing in April/May, how exciting NOT. Smiley SadStill, it will probably feel like a walk in the park compared with chemo.

 

Pulapula: I'm so pleased that you are recovering well from surgery and hopefully you won't need to have any more chemo now.

 

CarGarland: I agree, one way or another you need to know, so be brave and do the test. Heart

 

Gx

Member

Re: September 2018 Chemo Starters.

Hello ladies.

I’ve not been on for a while but thought I’d pop in to see how everyone is.

Cat - I think a pregnancy test is in order as it could be possible and you need to know one way or the other.

Lack of hair growth is bothering me now. My last FEC chemo was 22 Nov and whilst there are definitely more hairs on my head it’s taking forever to grow. Might look at some of those suggestions.

I had my surgery on 21 Dec so just 4 weeks from chemo finishing. I ended up having a LICAP flap where the lump was removed with margins and fat from under my arm used to fill the gap. It did leave me with a long scar back under my arm towards my back but it’s healing well.

I went back yesterday to get my results but they’re not back from the lab. Really hoping I don’t need more chemo as it will be T if I do. I’ve felt great these last few days now my scar is healing and I’ve had energy again I guess as the chemo drugs are out of my system.



Member

Re: September 2018 Chemo Starters.

Hi Gaby

So sorry to hear you’ve struggled with your EC 😞. I hope you feel “normal” soon.

I had my last THP on 27th Dec and I was told that I’d have surgery 6 weeks later. I have an appointment tomorrow with my consultant where I will be given my date, I’m guessing early Feb for me. I then have an oncology appointment on 28th Feb to discuss my radiotherapy.

Did anybody on here so 3 x FEC and then 3 x THP? I have been so ill with the THP compared to the FEC.

TMI but.....I’m worrying I could be pregnant which I know is bizarre but today I realised the contraceptive implant in my arm expired back in June. My periods stayed normal through my FEC but stopped in October (if I remember rightly) and now I’m stressing that this constant nausea is morning sickness and not an SE as I was told by my oncologist that THP is kinder than FEC.

Am I losing my mind or could I be? I know the only way is to do a test but I just needed to write it|say it out loud.

Xx
Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

The last few days have been a bit rubbish, hence my silence. The EC last Wednesday proved rather tough - I've not been sick, but have felt very weak (very wobbly legs and feeble hands) and have not been able to do anything much at all. Brain fog seems to be clearing a bit today and I have been able to make a few useful phonecalls, read a book, empty the bins and a few other equally exciting things.Am seeing my oncologist tomorrow and will ask for some general blood tests, just so I can check there aren't any supplements etc I could take to ease me through this a little.

 

Those of you who are now mowing on to surgery and/or radiotherapy: how long is the gap between the end of chemo and the start of the next lot of lovely treatments? My oncologist originally told me I'd have to wait 6 weeks before having surgery and then another 6 weeks after that for radiotherapy, but from what I can see on the forum, the timespan seems to vary quite significantly, depending on hospital etc.

 

Jacqs: I hope they managed to sort out that swelling for you. I do find that every chemo session seems to throw up another unexpected/unpleasant SE Smiley Frustrated And yeah, sod the exercise - it's an achievement for me at the moment to get up and down the stairs to the loo!Smiley Wink

 

Hope everyone is having a reasonable start to this week.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi Keeno72 - congratulations on your last T 🎉🎉🎉. It’s a great feeling even if you do still have to suffer SE’s.  It can only get better now.  

I came down with a cold on Christmas Eve just a few days after my last session and it’s only just getting better now.

I’ve got another worrying thing happening. I was experiencing some aching in my rib cage whilst having chemo.  Discussed with onc but she said to leave it & hopefully it would ease.  I’ve now got a swelling on my left hand rib cage just underneath where my left breast surgery was.  Am waiting for bc nurse to call me back today to see if someone can check it out.  🙁

Thanks for the tips on hair growth - just googled the Grow Gorgeous serum & am going to try it out.  Would be great to see real hair instead of candy floss style fluff.

 

Gaby - hope you’re feeling brighter today.  Daily Pilates sounds very ambitious - some days, rest is needed & sod the exercise 🤪.  

 

Hope everyone one else is doing well. Xxx

Member

Re: September 2018 Chemo Starters.

Hello all and Happy New Year! Just enjoyed reading all your updates ice not been on for a while making sure I had good xmas and getting ready for the last T which was on time in 27.12! All done great news.....thought this would be a breeze but still so hard to get through the first 8 days!
I'm with you all on the hot flushes driving me crazy had to move into spare room as my man has got a terrible cold trying to avoid trip to A and E on my last session! Its so hard not being complacent now!

Anyway I'm counting down days and hoping the SE's stop soon as normal.
My little lumps have completely gone now and seeing surgeon next week to get ready for my last bit of surgery on 23.01.....really weird moving onto next stages oncologist been in touch to book me in for rads planning on 08.02 I'm in unchartered territory again so need to do some reading again me thinks!

Oh by the way my thumb nail is hanging off I'm so hoping no more go they're all hurting again! Another casualty .....

Re hair regrowth mine is going big guns I took advice at look good feel better and have been putting rose water on it daily and almond oil once a week...not sure if this is reason but its certainly helps with itching it started as white fuzz which is normal I would leave it and let it grow now I have had something called Grow Gorgeous recommended which I'm starting once out of cycle.....
Final thought does anyone else feel weird not starting a new year at work I so want to go back but know its best I dont......!!! Agggggh want normal life back...hopefully start a return after rads!
Much love all xxxx😍😍😍
Member

Re: September 2018 Chemo Starters.

Morning everyone,

 

Did I say daily Pilates? What a load of rubbish! Defintiively not doing any today, as I had a bit of a rough evening and night. For the first time I actually felt sick last night and went to bed feeling very ropey. Had loads of hot flushes in the night, but still managed to get some sleep. Am feeling a bit wobbly this morning, so Pilates is off! Smiley Wink Also noticed that some of my finger nails have started to go slightly yellow Smiley Sad I really can't wait for all this bloddy chemo to be over...

 

Hope you all have a reasonable day.

 

Love,

Gaby x

Member

Re: September 2018 Chemo Starters.

Happy New Year everyone! We're all slowly reaching the end of this rather lousy road and 2019 should gradually turn into a much happier year for all of us.

 

We also had a nice, relatively quiet Christmas. Loads of food (I had to be weighed today, as it was chemo day - oh dear!), lots of chatting with family and too little movement, so pretty much just the usual Smiley Very Happy

 

I have two EC sessions left, but as I have a 3-week gap between each, I won't finish chemo until 13 Feb. Then I get 6 weeks "off" before surgery and eventually radiotherapy. Should all be done by mid/late May. Roll on the summer!

 

Am feeling very dopey right now after chemo, but am trying not to go to sleep, as that tends to mess up my night. As for eye lashes, mine look like they might be trying to regrow, but I suppose the EC session today will stop that pretty quickly Smiley FrustratedHow lovely, Jacqs, that your hair is starting to regrow, even it's a bit flimsy. I'm sure it will take a bit of time for our hair to regain strength - maybe ask your hairdresser about shaving it again, or check the other treads to see if anyone has posted anything useful on this? 

 

Aley, I really hope you're starting to feel a bit better.

 

MamaTony, good luck with the surgery - I'll be thinking of you. It will definitively be a good feeling to get rid of whatever is left of that blasted tumour. And you get a flat tummy as well - I'm jealous! My surgery will apparently be very minor, basically just scraping out dead cancer cells. No tummy tuck on offer Smiley Sadso I am starting a new regime of daily Pilates to get that under control, or at least, that's the aim. Let's see whether I stick to this! Smiley Wink

 

Lots of love to you all

Gaby x

 

 

Member

Re: September 2018 Chemo Starters.

Happy New Year to all you lovely ladies.  I hope it finds us all on our way to better health and a positive & fresh new start.

 

We’ve had a very quiet and relaxing week recharging batteries. Now just waiting for my appointment for surgery to have my rejected implant re-done.  

Mama Tony - like you there’s no signs of eyebrow or eyelash regrow.  My hair however is starting to grow, although it’s more like white fluff! Not sure if best option would be to shave it off again & see if it comes through any thicker? Any suggestions welcome.

 

xxx

 

Member

Re: September 2018 Chemo Starters.

Merry Xmas everyone!!!

Thank goodness last day of 2018 tomorrow...not been my favourite year for obvious reasons🤧...anyways looking forward to a new year full of positive beginnings 🌟🌟

Had my last lot of chemo on the 20th Dec...woohoo...and have my surgery for mx, DIEP reconstruction and anxiliary node clearance on Jan 16th😳😳
Scared but will be glad to get the horrible tumour out of my body and have a new boob and flat tummy at the end of
it...part of rebuilding me👏🏻👏🏻

Now just looking in the mirror checking for signs of my hair and eyelashes regrowing that would just be magic🙏

Hope the SEs have been kind to everyone during this holiday period.

Much love to u all 💕🥰
Member

Re: September 2018 Chemo Starters.

Hello lovely ladies, thanks for the thought Lisa-T! First ‘T’ bit of a shock tbh!! Could hardly move for about a week! Gradually getting out but still a bit of a struggle..hope you all had a lovely Christmas 🎄
Member

Re: September 2018 Chemo Starters.

Evening you lovely lot!
Hope everyone has managed to keep well and enjoy their Christmas with loved ones. We had a very quiet one. Christmas Eve's weekly Paclitaxel has made me exhausted this week. Still been a lovely time tho and chilled in our jammies, just the 3 of us.
I'm counting my 3 weeks down for the last of my chemo. Sending love and health for the New Year xxx
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Re: September 2018 Chemo Starters.

Merry Christmas everyone.  Hope you all enjoyed your day.  Xxx

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Re: September 2018 Chemo Starters.

Hope your first T is being kind to you Aley ❤️ 💪🏻 xx
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Re: September 2018 Chemo Starters.

Happy Christmas everyone🎄 4 days post first ‘T’ this is a Christmas to remember!! 🙈😒
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Re: September 2018 Chemo Starters.

Merry Christmas you lovely lot 😍😘
Hope everyone is reasonably well and managing to enjoy the days festivities.
Sending lots of love and festive cheer xxxx
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Re: September 2018 Chemo Starters.

Merry Christmas to all you lovely ladies ... hope Santa was good to you 🎅🏻🎁 We definitely deserve it this year ❤️

Enjoy the festivities 🥂🎉 Sending lots of love. Lisa xx
Member

Re: September 2018 Chemo Starters.

Congratulations Jacqs, MamaTony, Bee and Millie on your final session ... you did it 💪🏻 ...fantastic news, now time to celebrate 🎉🥂 (hope I haven’t missed anyone)

MamaTony - so sorry to hear that your tumour is misbehaving and might not be doing what it should be doing! Really hope it is just scar tissue too and that you don’t need any additional treatment after your mx ... sending big hugs ❤️

ALittlePixie - pleased you are coping better with SEs on the weekly Paclitaxel. You will be all done before you know it 😘 Hope you get to enjoy the holidays with no SE.

GabyF - sorry to hear about your daughter’s diagnosis and operation ... your family is going through so much already, it seems so unfair, but you will get through this 💪🏻 Sending lots of love ❤️

love and hugs to everyone. Lisa Xx
Member

Re: September 2018 Chemo Starters.

WOOHOO!  Last chemo session completed🍾🍾🍾🎉🎉🎉

Although only just.  Had bloods taken on Tue & they called yesterday to say neutrophils were low again ( as per last week) & asked if I was happy to postpone.  I said no & asked if I could have them re-done today.  After having them done, ward sister confessed she made a mistake yesterday & they had been fine all along.  Anyway, was so happy 😁 did not complain.  

 

I also got got the results to my BRACA testing last night.  NEGATIVE!  So despite the fact that I have a strong family history of bc, looks like i’m just unlucky.  I need to do more research to find out if other members of the family could still have faulty genes though!

 

Bee & Millie - congratulations to you both too 🎉🎉🎉

 

Mama Tony - congratulations on your last chemo too 🎉🎉🎉. Sorry to hear your tumour growth has slowed. We’ll all be hoping & praying that it turns out to be scar tissue.  Will be thinking of you on 16th Jan ❤️❤️

 

A Little Pixie - i’m so happy that you’re coping better with the weekly.  4 weeks will fly ❤️❤️

 

Kath - again you’ll be there in no time.  For me, the weekly sessions seemed to go so quickly.  Possibly because I didn’t have the more extreme SE’s that you get with 3 weekly FEC etc.  ❤️❤️

 

Sending you all big hugs xxx

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Re: September 2018 Chemo Starters.

Thanks MamaTony, for your very encouraging words.HeartIt is so good to know that your daughter's operation was a success. How wonderful! We were all in a bit of a state that evening, but our lovely daughter is so sensible and determined - she is doing lots of research on the operation (with lots of warnings from me about internet scare stories!) and we have had a number of very calm and interesting chats. My husband compared it a bit to when I first got the news about the BC - the initial shock is overwheming, but after some sleep and more info, it is something we can deal with as a family, one day at a time.

 

Thanks to everyone else as well of course for your very kind words. They really help!

 

Sounds like we're all more or less getting through this week in a reasonable state. Smiley HappyHeart I'm still stuck with this awful taste - I'm SO fed up with it - but am hoping that it will clear by Christmas. I really don't want my Christmas lunch tasting of metal!Smiley FrustratedHot flushes are also a nuisance, totally! And I've got a grand total of 5 eye lashes left - why? Smiley Very Happy

 

We're celebrating Christmas Eve with my parents (my dad is Danish, so Continental style) and then we're off to my in-laws on Christmas Day (great driving, absolutely no traffic Smiley Happy). No wifi and pretty lousy data connection in their house, so the kids might actually have to pick up a book or doing something other than fiddle with their phones! Smiley LOL

 

Big hugs to everyone HeartHeartHeart

 

Gx

Member

Re: September 2018 Chemo Starters.

Thank you Alittlepixie

We are the same as I'm on pacitaxel weekly.

Am going today for my 8th session, only 7 more weeks to go after today.

Have started my herceptin injections, if I can cope with them you will be fine. Just make sure you tell them to inject it slowly.

I have vestibular issues as well and think they are playing me up as am feeling rubbish and fuzzy headed.

Oh well let's go and get some Christmas chemo. 🤣🤣🤣🤣

Have a good day everyone

Kath xx
Member

Re: September 2018 Chemo Starters.

CONGRATULATIONS Bee!!!!!! I'm so incredibly happy for you. Have the BEST Christmas celebration ever. Lots of love and take care of yourself xxxx
Member

Re: September 2018 Chemo Starters.

Good morning you lovely lot
MamaTony - I'm so sorry to hear that your tumour might still be there and not shrunk any more. They are wrong sometimes, so I'll hope you won't need anymore chemo. Good luck for the surgery in the New Year 😘
Millie - well done for getting through this hell we're all in and have a super Christmas and New Year. It sounds like we'll probably be having radiotherapy etc at the same time!
Kath - I'm so sorry the SEs are so horrid. Crank up the pain meds and I hope it doesn't last too long for you.
Jacqs - do u have ur last chemo session today?! If so, congratulations and I'm so happy you've made it through.
Gaby - I'm so sorry to hear about your daughter and needing an op. I hope everything goes well and she'll be so much better after her op. It's just neverending for you at the mo. Sending love.
Paula - that's great you've decided on your surgery. The time will fly now. 😍
Lisa - you're nearly done with your chemo. Only one more!! I really hope the SEs aren't being too horrid for you over Christmas.
KEENO72 - great you've only got one more chemo to go too. It's lovely to be able to see the light at the end of the tunnel. I'm glad they got your meds more manageable for you.
Treemad - I hope SEs have calmed down for you and they've sorted your meds out. I use Lansoprazole for my acid gastric and it def helps.
Love to everyone and I hope I haven't missed too many people out.
I'm now on my weekly Paclitaxel (thanks for all your encouragement/advice you gave) and I'm coping soooooooooo much better! I have 2 days of pain but then it eases and I feel human again. My hair is bum fluff but it's def growing! It's all very amusing. I do feel like I can see the light at the end of the tunnel. Only 4 more weeks of it, then radiotherapy etc. I'm starting my Herceptin on New Years Eve. We're having a party on Christmas Eve and New Years Eve whilst I'm there having chemo. The nurses are fab, so I'll make the most of it. Have a fabulous Christmas everyone and I know we'll all get through this together xxx
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Re: September 2018 Chemo Starters.

Hi all! Haven’t posted for awhile but just wanted to share TODAY IS MY LAST CHEMO!!!

I didn’t think this day would come! This site has been such a comfort thank you 😊.

For anyone that doesn’t know i had lumpectomy and 3 nodes removed, IDC, HER2+ (lovely injections to look forward to). Love to you all & keep strong 💪🏿 💕xx

Member

Re: September 2018 Chemo Starters.

Hi All,

Due my last chemo tomorrow, have been counting down the days and so desperate to ring that bell 🔔 and see the back of it. HOWEVER, on Tuesday the oncologist was disappointed that the tumour has not continued to shrink🙁 it reduced from 6cms to 4cms after first docetaxol but has remained for last two🙁 He’s now talking about chemo tablets when I recover from my op as he suspects cancer still there. I’m triple negative.

Surgery Jan 16th for mx and recon with DIEP flap. Hoping after checking the tumour it is scar tissue and dead cancer cells🤞🤞🤞 He did say could be scar tissue but didn’t look convincing🙁

Gabyf: my daughter had the scoliosis op and the difference is great. Worrying time but the surgeons are amazing. And my daughter grew 1.5 inches after op because her spine was straightened 👍👍

Best wishes to all you lovely ladies💕
Member

Re: September 2018 Chemo Starters.

Hi all,  I haven't posted on here very much at all since beginning chemo in September but have been reading all of your brave and supportive messages to each other. There is so much courage amongst you all and you have helped me enormously, so thank you 😊 I had my last Docetaxol yesterday (reduced to 80% and with some fab painkillers!!) Onwards and upwards to radiotherapy and 10 years of Tamoxifen now!! Well done all, you're almost there and you have 'totally got this' wishing you all a very happy and peaceful Christmas and a brighter 2019 xxx

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Re: September 2018 Chemo Starters.

Hiya Girls.

I am still here, I had my dental work done and chemo stopped for a week.

Had chemo on Thursday last week and the side effects are the worse I've ever had, I thought with a week gap they would be easier but seen to be worse.

Muscle and bone pain and stabbing pains in back and side of my head.

Oh and don't get me started on the hot flushes. Jacqs just like you they are crazy. I can't wear anything on my head as soaking in sweat.

Kids are keeping me upbeat with there excitement for christmas though.

Hope you are all coping with your side effects.

Only another 8 weeks to go!! Feels like an eternity. 🙄🙄🙄

Kath xx
Member

Re: September 2018 Chemo Starters.

Hello Gaby & Pulapula,

 

I’m sure everyone has got sidetracked with SE’s & getting ready for Christmas.  Like you Gaby, i’ve been so tired & out of breath this last 2 weeks.  Doing simple things is taking up so much energy.  I went food shopping this morning after having bloods taken & thought I was going to pass out.  As for that awful taste, I will be so happy to get rid of that.  I think we should just hide those scales until well into Jan 🤪

Gaby that’s terrible to hear about your daughter - as if you didn’t already have enough to deal with.  Sending big hugs & positive thoughts ❤️

 

Pulapula - good luck for Friday.  Will be thinking of you.  It is such a nuisance having to wear hats etc.  I’ve taken to wearing a pink beanie that my sister bought for me.  One minute I’m freezing, the next I have major hot flushes so it gets ripped off ! 

 

Hope everyone one else is doing ok xxx

Member

Re: September 2018 Chemo Starters.

Hi Pulapula,

 

I really hope everyone goes well for you on Friday. I'll be thinking of you. I've got surgery in late March, I think, so a bit of time to go still...

 

I'm fed up with hats etc as well, especially as nothing really seems to keep my head all that warm.

 

Had a bit of a mixed day today. I'm feeling better but our daughter was diagnosed with scoliosis at Guy's this morning and will probably have to have an operation to correct the curve in her spine at some point next summer. We seem to have gone from a family with very few health problems to having to deal with really rather major issues. I'm sure she will be ok in the end, but it's not easy for a teenager, who is about to embark on university etc. I just can't wait to see the back of all these doctors and hospitals!

 

Gx

Member

Re: September 2018 Chemo Starters.

Hi all, it's been a bit quiet on here lately - hope it just means you're busy getting ready for christmas, and are coping OK with your side effects.

 

I finally decided today what surgery I am going to have on Friday - WLE with reconstruction. I'll find out the pathology results on 7 January and really hope I don't need to have more chemo...It's been nearly 4 weeks since my last cycle and I don't miss it one bit! I've still got my PICC line in, just incase...Just wish my hair would start to grow back as I didn't get a wig and I'm getting fed up of wearing hats and scarves.

 

 

 

 

Member

Re: September 2018 Chemo Starters.

Hi Jacqs,

I hope you had a good weekend. Sounded like you definitely had a good plan!

I'm slowly emerging from the EC fog. I think my haemoglobin crashed again, as I am very short of breath and even more tired than usual. My brain completely went to pot over the weekend. My daughter thought it was funny - 'you just look like you're drunk mum!'. I couldn't string a sensible sentence together, muddled up words and was totally incapable of concentrating on anything. I feel very slightly more with it this evening, so hopefully I'll be a bit better tomorrow. Had the shivers during the night at the weekend as well and got told off by my lovely nurse today for not checking my temperature and phoning in. Oh dear! She's running another blood test just to make sure there's nothing serious going on, but really I'm fine 😁 🙃 😝.

Absolutely foul taste in my mouth which only goes when I'm eating, so of course I'm constantly nibbling. I'm definitely not going on the weighing scales right now 😡 😁.

Hope you're all having a reasonable start to the week.

Gx
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Re: September 2018 Chemo Starters.

Hi Everyone,

Hope you’re all having a good weekend, despite this cold weather.  Today’s going to be a day tucked up at home for me maybe wrapping some more Xmas presents 🎁.

My stepdaughter is back from uni for the holidays so it’ll be a nice Sunday lunch then curl up on the sofa & watch Christmas films.

Thursday was my penultimate Carboplatin / Paclitaxel sesssion - it nearly didn’t go ahead cause my platelets & neutrophils we’re low, but they repeated the blood tests early on Thursday am & they’d risen just enough.  Today was my last day of taking steroids - yeahhh 😁.

I’m fighting a cold & sore throat at the moment but praying I can stave it off till I get my last session out of the way next week. 

Gutted that the nail on my right big toe is turning black - 1 week from the end.  Isn’t that Sod’s law.  Finger nails haven’t got any worse.  The oncologist nurse said that I may get another horizontal band on each nail with this last cycle ( called Mees lines ) but the cuticles still look intact so she said I should avoid losing fingernails if I keep moisturising them & just let the bands grow out.  

Wishing you all a good week.  With each step closer to Christmas, we’re all getting closer to this nightmare ending. Take care all ❤️😘

 

 

 

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Re: September 2018 Chemo Starters.

Sounds like the birthday dance did the trick GabyF 💃🏻🕺 love that idea 😍

So pleased it’s not just me ... I wander round shops in a complete daze as I can’t focus on what I’m doing 😂

Really hoping the worst bit is nearly over too ... we are getting there ❤️💪🏻❤️ xx
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Re: September 2018 Chemo Starters.

Hi LisaT,

I'm so glad you're starting to feel a bit better. The walking is a nuisance, I agree. Thank heavens for lifts and escalators 😁. And chemo brain is another one. I've hidden my presents in rather obvious places, but I'm hoping that will enable me to remember where they are 😣. I'm also forgetting loads of other stuff, words, tasks, appointments, you name it, it's terrible 😡. So I'm making lots of lists, but then I have to remember where I put those 😁.

We had a lovely evening to celebrate my husband's birthday, thanks. My son was keen to bake the cake, mainly so he could lick the bowl 😋. So my husband got a tasty cake, some wine, dinner, lots of presents and a special happy birthday dance from me and my daughter 🕺 🎉 🕺 😁. All this cheered him up immensely. He's also got today off, so we're going out for a nice lunch. I wasn't sure if I would be up to it, but I actually slept quite well and am still feeling OK.

How fantastic that the end of all this rubbish is now in sight for you. I don't suppose any of us will ever be able to forget about the cancer, pills or no pills, but hopefully the worst is over soon and we can all return to something approaching normal ☺.

Gx
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Re: September 2018 Chemo Starters.

Pleased your first EC went ok GabyF 💪🏻 hope you had a good night. Happy Birthday to your hubby🎂🥂 Impressed you are thinking of making a cake ... I just slept after my first FEC 🙈

Had my 2nd T last Wednesday - felt really spaced out after this one and had more bone pain but hopefully over the worst bit now! Also feel like I’ve aged about 20 years ... I’m walking so slowly!

Signed the forms agreeing to radiotherapy yesterday which I should start end of January. 3 weeks of that and then I’m released back in to normal society armed with tamoxifen for 10 years and check ups every 6 months! It’s a weird feeling!

Pleased everything is sorted for you now Keeno72 ... last T for me on 28th now ... we are nearly there ❤️💪🏻❤️

Wrapping presents later today so Christmas tunes on full blast 🎄🎅🏻 ... just need to remember where I’ve hidden them all now 🙈

Hope everyone has a good week 😘 Lisa xx
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Re: September 2018 Chemo Starters.

Hi everyone,

 

Had my first EC session today and am feeling ok. I was half expecting to be throwing up by now, as I spoke to a couple of lovely ladies on the ward last week, who were feeling dreadful after their first EC. I had a barrage of anti-nausea drugs this morning and have been given a large bag with more goddies for taking at home Smiley Very Happy- so far they seem to be doing the trick, fingers crossed! I am feeling a bit more dopey than usual, but my kids would probably say that they can't notice any difference Smiley Wink

 

It's my husband's birthday today, so will bake him a cake in a moment. Wasn't sure I'd be up to it, but am very relieved that I can go ahead. He was a little low last night - combination of getting older Smiley LOLand the ongoing worry of my treatment. He is not one for letting on much if he's stressed or sad, tends to bottle things up a bit, and the last few months have of course not been easy. Hopefully a bit of yummy cake and presents will cheer him up.

 

Hope everyone is having a reasonable week.

 

Gx

Member

Re: September 2018 Chemo Starters.

Hello all haven't been on for a while after having a terrible 1st cycle of docetaxel, anyway got it all sorted with a reduced dose of steroids halved actually, sleeping tablets for 5/6 days and paracetamol and codeine at night. I have done 3 only have 1 left now on 27th woop woop! 😁
Been reading posts and a few little hinters and positive comments i hope.
Re indigestion I gave up on any meds and have ginger ale/biscuits lemon and ginger cordial seems to help get all the gas out! Never had so much gas inside!😲
I had recon b4 surgery and then suffered a recurrence in skin on new breast....great news the little lumps have all but gone having changed to docetaxel i only have minor surgery now in Jan! 😁 re recon for those considering its looking real good now after 4 months takes a while but i now feel worth it. I had implant btw.

Re nasty nails a v good nurse told me to get my nails painted black/dark i have gel night b4 chemo and all my nails bar 1 are in good nic the one that looks like it might lift was damaged beforehand I'd recommend some nice dark sparkly nails for xmas!
Finally hair!!! My hair didn't get any worse after started docetaxel still look like prince william and its attempting to grow back but not on top!!! 🙈🙈my eyebrows thinned as soon as changed to doxe and eyelashes I'm hoping what i have left lasts through next cycle as I'm filling them in well and some good eyeliner work means no ones noticing my sparce eyelashes! Finally i have a great wig and on my good week before chemo week.I've been out for lunch nearly every day will be feeling good for Xmas before last round......hang in there all nearly there....😍😍😍xxx
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Re: September 2018 Chemo Starters.

Reflux!
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Re: September 2018 Chemo Starters.

Hi jacqus, ive not had any acid reflex ir acid in upper part. Its what passes out!!

Like a curry from the underworld!
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Re: September 2018 Chemo Starters.

Hi Treemad

Gaviscon is a complete waste of time.  The only thing i’ve ever found to work on severe indigestion / acid reflux is Lanzaprozole.  Maybe try your own GP & see if you can get them to prescribe something stronger like Lanzaprozol.  It’s usually 1 tablet a day in morning & it works pretty quickly.  Xx