cancel
Showing results forย 
Search instead forย 
Did you mean:ย 

September 2018 Chemo Starters.

Member

Re: September 2018 Chemo Starters.

Hi all, it's been a bit quiet on here lately - hope it just means you're busy getting ready for christmas, and are coping OK with your side effects.

 

I finally decided today what surgery I am going to have on Friday - WLE with reconstruction. I'll find out the pathology results on 7 January and really hope I don't need to have more chemo...It's been nearly 4 weeks since my last cycle and I don't miss it one bit! I've still got my PICC line in, just incase...Just wish my hair would start to grow back as I didn't get a wig and I'm getting fed up of wearing hats and scarves.

 

 

 

 

Member

Re: September 2018 Chemo Starters.

Hi Jacqs,

I hope you had a good weekend. Sounded like you definitely had a good plan!

I'm slowly emerging from the EC fog. I think my haemoglobin crashed again, as I am very short of breath and even more tired than usual. My brain completely went to pot over the weekend. My daughter thought it was funny - 'you just look like you're drunk mum!'. I couldn't string a sensible sentence together, muddled up words and was totally incapable of concentrating on anything. I feel very slightly more with it this evening, so hopefully I'll be a bit better tomorrow. Had the shivers during the night at the weekend as well and got told off by my lovely nurse today for not checking my temperature and phoning in. Oh dear! She's running another blood test just to make sure there's nothing serious going on, but really I'm fine ๐Ÿ˜ ๐Ÿ™ƒ ๐Ÿ˜.

Absolutely foul taste in my mouth which only goes when I'm eating, so of course I'm constantly nibbling. I'm definitely not going on the weighing scales right now ๐Ÿ˜ก ๐Ÿ˜.

Hope you're all having a reasonable start to the week.

Gx
Member

Re: September 2018 Chemo Starters.

Hi Everyone,

Hope youโ€™re all having a good weekend, despite this cold weather.  Todayโ€™s going to be a day tucked up at home for me maybe wrapping some more Xmas presents ๐ŸŽ.

My stepdaughter is back from uni for the holidays so itโ€™ll be a nice Sunday lunch then curl up on the sofa & watch Christmas films.

Thursday was my penultimate Carboplatin / Paclitaxel sesssion - it nearly didnโ€™t go ahead cause my platelets & neutrophils weโ€™re low, but they repeated the blood tests early on Thursday am & theyโ€™d risen just enough.  Today was my last day of taking steroids - yeahhh ๐Ÿ˜.

Iโ€™m fighting a cold & sore throat at the moment but praying I can stave it off till I get my last session out of the way next week. 

Gutted that the nail on my right big toe is turning black - 1 week from the end.  Isnโ€™t that Sodโ€™s law.  Finger nails havenโ€™t got any worse.  The oncologist nurse said that I may get another horizontal band on each nail with this last cycle ( called Mees lines ) but the cuticles still look intact so she said I should avoid losing fingernails if I keep moisturising them & just let the bands grow out.  

Wishing you all a good week.  With each step closer to Christmas, weโ€™re all getting closer to this nightmare ending. Take care all โค๏ธ๐Ÿ˜˜

 

 

 

Member

Re: September 2018 Chemo Starters.

Sounds like the birthday dance did the trick GabyF ๐Ÿ’ƒ๐Ÿป๐Ÿ•บ love that idea ๐Ÿ˜

So pleased itโ€™s not just me ... I wander round shops in a complete daze as I canโ€™t focus on what Iโ€™m doing ๐Ÿ˜‚

Really hoping the worst bit is nearly over too ... we are getting there โค๏ธ๐Ÿ’ช๐Ÿปโค๏ธ xx
Member

Re: September 2018 Chemo Starters.

Hi LisaT,

I'm so glad you're starting to feel a bit better. The walking is a nuisance, I agree. Thank heavens for lifts and escalators ๐Ÿ˜. And chemo brain is another one. I've hidden my presents in rather obvious places, but I'm hoping that will enable me to remember where they are ๐Ÿ˜ฃ. I'm also forgetting loads of other stuff, words, tasks, appointments, you name it, it's terrible ๐Ÿ˜ก. So I'm making lots of lists, but then I have to remember where I put those ๐Ÿ˜.

We had a lovely evening to celebrate my husband's birthday, thanks. My son was keen to bake the cake, mainly so he could lick the bowl ๐Ÿ˜‹. So my husband got a tasty cake, some wine, dinner, lots of presents and a special happy birthday dance from me and my daughter ๐Ÿ•บ ๐ŸŽ‰ ๐Ÿ•บ ๐Ÿ˜. All this cheered him up immensely. He's also got today off, so we're going out for a nice lunch. I wasn't sure if I would be up to it, but I actually slept quite well and am still feeling OK.

How fantastic that the end of all this rubbish is now in sight for you. I don't suppose any of us will ever be able to forget about the cancer, pills or no pills, but hopefully the worst is over soon and we can all return to something approaching normal โ˜บ.

Gx
Member

Re: September 2018 Chemo Starters.

Pleased your first EC went ok GabyF ๐Ÿ’ช๐Ÿป hope you had a good night. Happy Birthday to your hubby๐ŸŽ‚๐Ÿฅ‚ Impressed you are thinking of making a cake ... I just slept after my first FEC ๐Ÿ™ˆ

Had my 2nd T last Wednesday - felt really spaced out after this one and had more bone pain but hopefully over the worst bit now! Also feel like Iโ€™ve aged about 20 years ... Iโ€™m walking so slowly!

Signed the forms agreeing to radiotherapy yesterday which I should start end of January. 3 weeks of that and then Iโ€™m released back in to normal society armed with tamoxifen for 10 years and check ups every 6 months! Itโ€™s a weird feeling!

Pleased everything is sorted for you now Keeno72 ... last T for me on 28th now ... we are nearly there โค๏ธ๐Ÿ’ช๐Ÿปโค๏ธ

Wrapping presents later today so Christmas tunes on full blast ๐ŸŽ„๐ŸŽ…๐Ÿป ... just need to remember where Iโ€™ve hidden them all now ๐Ÿ™ˆ

Hope everyone has a good week ๐Ÿ˜˜ Lisa xx
Member

Re: September 2018 Chemo Starters.

Hi everyone,

 

Had my first EC session today and am feeling ok. I was half expecting to be throwing up by now, as I spoke to a couple of lovely ladies on the ward last week, who were feeling dreadful after their first EC. I had a barrage of anti-nausea drugs this morning and have been given a large bag with more goddies for taking at home Smiley Very Happy- so far they seem to be doing the trick, fingers crossed! I am feeling a bit more dopey than usual, but my kids would probably say that they can't notice any difference Smiley Wink

 

It's my husband's birthday today, so will bake him a cake in a moment. Wasn't sure I'd be up to it, but am very relieved that I can go ahead. He was a little low last night - combination of getting older Smiley LOLand the ongoing worry of my treatment. He is not one for letting on much if he's stressed or sad, tends to bottle things up a bit, and the last few months have of course not been easy. Hopefully a bit of yummy cake and presents will cheer him up.

 

Hope everyone is having a reasonable week.

 

Gx

Highlighted
Member

Re: September 2018 Chemo Starters.

Hello all haven't been on for a while after having a terrible 1st cycle of docetaxel, anyway got it all sorted with a reduced dose of steroids halved actually, sleeping tablets for 5/6 days and paracetamol and codeine at night. I have done 3 only have 1 left now on 27th woop woop! ๐Ÿ˜
Been reading posts and a few little hinters and positive comments i hope.
Re indigestion I gave up on any meds and have ginger ale/biscuits lemon and ginger cordial seems to help get all the gas out! Never had so much gas inside!๐Ÿ˜ฒ
I had recon b4 surgery and then suffered a recurrence in skin on new breast....great news the little lumps have all but gone having changed to docetaxel i only have minor surgery now in Jan! ๐Ÿ˜ re recon for those considering its looking real good now after 4 months takes a while but i now feel worth it. I had implant btw.

Re nasty nails a v good nurse told me to get my nails painted black/dark i have gel night b4 chemo and all my nails bar 1 are in good nic the one that looks like it might lift was damaged beforehand I'd recommend some nice dark sparkly nails for xmas!
Finally hair!!! My hair didn't get any worse after started docetaxel still look like prince william and its attempting to grow back but not on top!!! ๐Ÿ™ˆ๐Ÿ™ˆmy eyebrows thinned as soon as changed to doxe and eyelashes I'm hoping what i have left lasts through next cycle as I'm filling them in well and some good eyeliner work means no ones noticing my sparce eyelashes! Finally i have a great wig and on my good week before chemo week.I've been out for lunch nearly every day will be feeling good for Xmas before last round......hang in there all nearly there....๐Ÿ˜๐Ÿ˜๐Ÿ˜xxx
Member

Re: September 2018 Chemo Starters.

Reflux!
Member

Re: September 2018 Chemo Starters.

Hi jacqus, ive not had any acid reflex ir acid in upper part. Its what passes out!!

Like a curry from the underworld!
Member

Re: September 2018 Chemo Starters.

Hi Treemad

Gaviscon is a complete waste of time.  The only thing iโ€™ve ever found to work on severe indigestion / acid reflux is Lanzaprozole.  Maybe try your own GP & see if you can get them to prescribe something stronger like Lanzaprozol.  Itโ€™s usually 1 tablet a day in morning & it works pretty quickly.  Xx

Member

Re: September 2018 Chemo Starters.

Yes in frequent communication with nurses, which recommended the gaviscon and constant omeprezole, but its not making much of a difference yet.
Member

Re: September 2018 Chemo Starters.

Gaby itโ€™s great to hear your genetic test was clear.  Such a huge relief for your famiy โค๏ธ

 

Lisa I was offered genetic testing as iโ€™m Also TN & have strong family history of BC.  My results not due till Christmas time.  Re nails, have gone for nice Christmassy red varnish & just going to keep fingers crossed.

 

Treemad - have you tried ringing the chemo helpline.  They are really good if you just want advice & you can chat through what SEโ€™s your having.  Iโ€™ve had quite lot indigestion - I think due to steroids but iโ€™m On completely different chemo drugs to you so itโ€™s hard to compare.  I take Lanzaprosol on prescription which helps, but they say that if any 1 symptom is really bad, itโ€™s best to get it checked out.  Please donโ€™t suffer in silence - itโ€™s all hard enough as is.  I rand 24 hr chemo helpline early hours one morning & the nurse was so lovely - she let me run through every single SE & then gave advice on how to deal with each one.  Hope you get it sorted soon 

 

Think iโ€™m set for a late night all thanks to those pesky steroids this morning.  Wide awake ๐Ÿ˜ฌ๐Ÿ˜ฌ๐Ÿ˜ฌ

Member

Re: September 2018 Chemo Starters.

Gaby - so pleased to hear your genetic test came back negative.

Lisa-T, unless youโ€™re triple negative, I donโ€™t think they offer genetic testing unless you are very young and/or have a history of BC in the family.

My cysts were aspirated yesterday so no further treatment needed. Thatโ€™s 3 Iโ€™ve had aspirated since diagnosis. I have a feeling Iโ€™ll be back there again and again every time I find another lump as Iโ€™m always checking now! And I am very cysty....

I finally slept like a log last night. So much so I was woken by my 9 year old at 8:58. He should have been at school by 8:50!!! I quickly got dressed and delivered him. Oops!
Member

Re: September 2018 Chemo Starters.

I am aged 48, ER/PR- HER2+. 3cm lump removed in lumpectomy, one sentinal node with 3mm calls but other 20 nodes clear.

I have been perscribed 3 x FEC and 3 xTax plus Herceptin and Pertuzemab.

I have just had 1st of the Tax/Her/Per and am 8 days on.

Distended stomach, aches and pains, metallic taste, diarrhoea. But thankfully no nausea, which i struggled with on the FEC.

Trying Aloe Vera juice for gut, as well as gaviscone and Omeprozole, but it still feels like i am passing acid marbles (sorry if you are having your tea). Im avoiding fruit and acidic or spicy foods but it is still bad, what is going on inside to produce the chemical reaction? I don't feel the stomach is actually acidy.
Member

Re: September 2018 Chemo Starters.

Thanks GabyF - will mention to my oncologist next week xx
Member

Re: September 2018 Chemo Starters.

Thanks, Lisa. I was offered the test because I'm triple negative which has a higher chance of a genetic link. I don't think it's offered as standard for other types of BC at King's, but it's worth asking your hospital as they may have a different policy.

Gx
Member

Re: September 2018 Chemo Starters.

Fantastic news GabyF ... such a relief for you and your children xx Iโ€™ve not been offered a genetic test ... does everyone get offered the test? xx

Jacqs - my fingernails have white horizontal lines on them too although the ends arenโ€™t brown. Hoping mine last too. My little toenail has gone brown tho ๐Ÿ˜ฌ xx
Member

Re: September 2018 Chemo Starters.

Hi everyone,

Finally had the result through from my genetic test: I'm all clear, no genetic link just bloody bad luck! I'm so happy for my children, as they won't have this cloud hanging over them. โ˜บ ๐Ÿ™ƒ ๐ŸŽ‡ ๐ŸŽ‰ ๐Ÿ˜

Gx
Member

Re: September 2018 Chemo Starters.

Hi All

So relieved to hear your news Pulapula ๐Ÿค—โค๏ธ

Just ticked another Session off the list.  Now 2 is the magic number.  Iโ€™ll be joining you Mama Tony & Lisa in finishing by end Dec.

I took my nail polish off last night & this is how my nails look.  Theyโ€™ve got horizontal stripes & tips are looking very brown.  Theyโ€™re still intact & not lifting so iโ€™m hoping they survive another 2 sessions  - Anyone else experienced this ? Xx

4DA088A4-2413-44C0-AA2A-83C4FA7D5A53.jpeg