18-12-2018 08:11 PM
18-12-2018 07:03 PM
Hello Gaby & Pulapula,
I’m sure everyone has got sidetracked with SE’s & getting ready for Christmas. Like you Gaby, i’ve been so tired & out of breath this last 2 weeks. Doing simple things is taking up so much energy. I went food shopping this morning after having bloods taken & thought I was going to pass out. As for that awful taste, I will be so happy to get rid of that. I think we should just hide those scales until well into Jan 🤪
Gaby that’s terrible to hear about your daughter - as if you didn’t already have enough to deal with. Sending big hugs & positive thoughts ❤️
Pulapula - good luck for Friday. Will be thinking of you. It is such a nuisance having to wear hats etc. I’ve taken to wearing a pink beanie that my sister bought for me. One minute I’m freezing, the next I have major hot flushes so it gets ripped off !
Hope everyone one else is doing ok xxx
18-12-2018 04:29 PM
I really hope everyone goes well for you on Friday. I'll be thinking of you. I've got surgery in late March, I think, so a bit of time to go still...
I'm fed up with hats etc as well, especially as nothing really seems to keep my head all that warm.
Had a bit of a mixed day today. I'm feeling better but our daughter was diagnosed with scoliosis at Guy's this morning and will probably have to have an operation to correct the curve in her spine at some point next summer. We seem to have gone from a family with very few health problems to having to deal with really rather major issues. I'm sure she will be ok in the end, but it's not easy for a teenager, who is about to embark on university etc. I just can't wait to see the back of all these doctors and hospitals!
17-12-2018 11:09 PM
Hi all, it's been a bit quiet on here lately - hope it just means you're busy getting ready for christmas, and are coping OK with your side effects.
I finally decided today what surgery I am going to have on Friday - WLE with reconstruction. I'll find out the pathology results on 7 January and really hope I don't need to have more chemo...It's been nearly 4 weeks since my last cycle and I don't miss it one bit! I've still got my PICC line in, just incase...Just wish my hair would start to grow back as I didn't get a wig and I'm getting fed up of wearing hats and scarves.
17-12-2018 06:33 PM
16-12-2018 10:24 AM
Hope you’re all having a good weekend, despite this cold weather. Today’s going to be a day tucked up at home for me maybe wrapping some more Xmas presents 🎁.
My stepdaughter is back from uni for the holidays so it’ll be a nice Sunday lunch then curl up on the sofa & watch Christmas films.
Thursday was my penultimate Carboplatin / Paclitaxel sesssion - it nearly didn’t go ahead cause my platelets & neutrophils we’re low, but they repeated the blood tests early on Thursday am & they’d risen just enough. Today was my last day of taking steroids - yeahhh 😁.
I’m fighting a cold & sore throat at the moment but praying I can stave it off till I get my last session out of the way next week.
Gutted that the nail on my right big toe is turning black - 1 week from the end. Isn’t that Sod’s law. Finger nails haven’t got any worse. The oncologist nurse said that I may get another horizontal band on each nail with this last cycle ( called Mees lines ) but the cuticles still look intact so she said I should avoid losing fingernails if I keep moisturising them & just let the bands grow out.
Wishing you all a good week. With each step closer to Christmas, we’re all getting closer to this nightmare ending. Take care all ❤️😘
13-12-2018 07:59 PM
13-12-2018 11:33 AM
13-12-2018 07:45 AM
12-12-2018 04:29 PM
Had my first EC session today and am feeling ok. I was half expecting to be throwing up by now, as I spoke to a couple of lovely ladies on the ward last week, who were feeling dreadful after their first EC. I had a barrage of anti-nausea drugs this morning and have been given a large bag with more goddies for taking at home - so far they seem to be doing the trick, fingers crossed! I am feeling a bit more dopey than usual, but my kids would probably say that they can't notice any difference
It's my husband's birthday today, so will bake him a cake in a moment. Wasn't sure I'd be up to it, but am very relieved that I can go ahead. He was a little low last night - combination of getting older and the ongoing worry of my treatment. He is not one for letting on much if he's stressed or sad, tends to bottle things up a bit, and the last few months have of course not been easy. Hopefully a bit of yummy cake and presents will cheer him up.
Hope everyone is having a reasonable week.
09-12-2018 09:19 AM
07-12-2018 06:55 PM
Gaviscon is a complete waste of time. The only thing i’ve ever found to work on severe indigestion / acid reflux is Lanzaprozole. Maybe try your own GP & see if you can get them to prescribe something stronger like Lanzaprozol. It’s usually 1 tablet a day in morning & it works pretty quickly. Xx
06-12-2018 11:51 PM
Gaby it’s great to hear your genetic test was clear. Such a huge relief for your famiy ❤️
Lisa I was offered genetic testing as i’m Also TN & have strong family history of BC. My results not due till Christmas time. Re nails, have gone for nice Christmassy red varnish & just going to keep fingers crossed.
Treemad - have you tried ringing the chemo helpline. They are really good if you just want advice & you can chat through what SE’s your having. I’ve had quite lot indigestion - I think due to steroids but i’m On completely different chemo drugs to you so it’s hard to compare. I take Lanzaprosol on prescription which helps, but they say that if any 1 symptom is really bad, it’s best to get it checked out. Please don’t suffer in silence - it’s all hard enough as is. I rand 24 hr chemo helpline early hours one morning & the nurse was so lovely - she let me run through every single SE & then gave advice on how to deal with each one. Hope you get it sorted soon
Think i’m set for a late night all thanks to those pesky steroids this morning. Wide awake 😬😬😬
06-12-2018 09:41 PM
06-12-2018 09:35 PM
06-12-2018 05:30 PM