Hi all, it's been a bit quiet on here lately - hope it just means you're busy getting ready for christmas, and are coping OK with your side effects.
I finally decided today what surgery I am going to have on Friday - WLE with reconstruction. I'll find out the pathology results on 7 January and really hope I don't need to have more chemo...It's been nearly 4 weeks since my last cycle and I don't miss it one bit! I've still got my PICC line in, just incase...Just wish my hair would start to grow back as I didn't get a wig and I'm getting fed up of wearing hats and scarves.
Hope you’re all having a good weekend, despite this cold weather. Today’s going to be a day tucked up at home for me maybe wrapping some more Xmas presents 🎁.
My stepdaughter is back from uni for the holidays so it’ll be a nice Sunday lunch then curl up on the sofa & watch Christmas films.
Thursday was my penultimate Carboplatin / Paclitaxel sesssion - it nearly didn’t go ahead cause my platelets & neutrophils we’re low, but they repeated the blood tests early on Thursday am & they’d risen just enough. Today was my last day of taking steroids - yeahhh 😁.
I’m fighting a cold & sore throat at the moment but praying I can stave it off till I get my last session out of the way next week.
Gutted that the nail on my right big toe is turning black - 1 week from the end. Isn’t that Sod’s law. Finger nails haven’t got any worse. The oncologist nurse said that I may get another horizontal band on each nail with this last cycle ( called Mees lines ) but the cuticles still look intact so she said I should avoid losing fingernails if I keep moisturising them & just let the bands grow out.
Wishing you all a good week. With each step closer to Christmas, we’re all getting closer to this nightmare ending. Take care all ❤️😘
Had my first EC session today and am feeling ok. I was half expecting to be throwing up by now, as I spoke to a couple of lovely ladies on the ward last week, who were feeling dreadful after their first EC. I had a barrage of anti-nausea drugs this morning and have been given a large bag with more goddies for taking at home - so far they seem to be doing the trick, fingers crossed! I am feeling a bit more dopey than usual, but my kids would probably say that they can't notice any difference
It's my husband's birthday today, so will bake him a cake in a moment. Wasn't sure I'd be up to it, but am very relieved that I can go ahead. He was a little low last night - combination of getting older and the ongoing worry of my treatment. He is not one for letting on much if he's stressed or sad, tends to bottle things up a bit, and the last few months have of course not been easy. Hopefully a bit of yummy cake and presents will cheer him up.
Hope everyone is having a reasonable week.
Gaviscon is a complete waste of time. The only thing i’ve ever found to work on severe indigestion / acid reflux is Lanzaprozole. Maybe try your own GP & see if you can get them to prescribe something stronger like Lanzaprozol. It’s usually 1 tablet a day in morning & it works pretty quickly. Xx
Gaby it’s great to hear your genetic test was clear. Such a huge relief for your famiy ❤️
Lisa I was offered genetic testing as i’m Also TN & have strong family history of BC. My results not due till Christmas time. Re nails, have gone for nice Christmassy red varnish & just going to keep fingers crossed.
Treemad - have you tried ringing the chemo helpline. They are really good if you just want advice & you can chat through what SE’s your having. I’ve had quite lot indigestion - I think due to steroids but i’m On completely different chemo drugs to you so it’s hard to compare. I take Lanzaprosol on prescription which helps, but they say that if any 1 symptom is really bad, it’s best to get it checked out. Please don’t suffer in silence - it’s all hard enough as is. I rand 24 hr chemo helpline early hours one morning & the nurse was so lovely - she let me run through every single SE & then gave advice on how to deal with each one. Hope you get it sorted soon
Think i’m set for a late night all thanks to those pesky steroids this morning. Wide awake 😬😬😬
So relieved to hear your news Pulapula 🤗❤️
Just ticked another Session off the list. Now 2 is the magic number. I’ll be joining you Mama Tony & Lisa in finishing by end Dec.
I took my nail polish off last night & this is how my nails look. They’ve got horizontal stripes & tips are looking very brown. They’re still intact & not lifting so i’m hoping they survive another 2 sessions - Anyone else experienced this ? Xx