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September 2018 Chemo Starters.

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Re: September 2018 Chemo Starters.

Please don't be apprehensive.

I'm on weekly pacitaxel and I have coped so far.

I have 3 kids and haven't been in bed one day so far.

Am doing school runs etc, the side effects I'm getting are hot flushes and aches and pains but is all manageable and doable.

When I was on FEC I was bed bound for weeks and so so ill. So much so they actually cancelled my last FEC as felt it was making me too ill.

Sending you positive thoughts

Kath xxx
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Re: September 2018 Chemo Starters.

Thanks so much for the Gaby. I am feeling quite apprehensive about having it weekly, so I hope I'll manage better on that. So....we still to take the steroids?! I really hate them!
Good luck for tmoz Aley. Hoping the SEs aren't bad for you and you sail through this last one X
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Re: September 2018 Chemo Starters.

Little Pixie: I have found weekly Paclitaxel quite straightforward. My SEs usually only last a couple of days and have included tiredness, slightly loose bowels, slight tingling in the mouth on day one, dry eyes and skin, hairloss, problems sleeping (but that's probably from the steroids), and just generally feeling off colour for a couple of days; also my neutrophils have crashed a couple of times, but that may have been the carbolplain and/or an accumulative effect. I've not had any nausea or vomiting, no serious aches or pains. It's really quite manageable.

 

About the hair: I've now lost virtually all the hair on my head - just keeping a few bits off fluff to help keep my head warm; it's cold being bald! Also lost all the hair on my legs and under my arms - nice SE that one!, eye lashes and brows have defintiively thinned as has my pubic hair (bit of an odd lokk that!). The only hair I've kep is on my forearms and I'm hoping that might still go Smiley Wink

 

Hope everyone is having a reasonable week. I was up 3 hours last night, bloody steriods! Am feeling ok otherwise though, which makes a nice change.

 

Gx

 

 

Member

Re: September 2018 Chemo Starters.

Thanks for all the comments re:nails I’ll be hunting down some silicium nail polish in the near future💅🏼 My BCN rang me today to let me know that my FISH result came back and I am HER2-..I have read that as the initial test was inconclusive I should maybe ask for a retest? Has anyone heard anything like this? 🤔 I might contact my oncologist to ask advice..
Has anyone suffered from bloodshot, dry eyes? My Gp gave me 👁 drops but I’ve noticed they’re particularly bad today..Last FEC tomorrow ladies..here’s hoping the SE’s are kind to me 😝
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Re: September 2018 Chemo Starters.

Hi Jacqs

Was all fine, have got a picc line in now so much easier and no stress with needles.

Came home and slept though as pre med drugs knocks me out.

I'm in single figures now which I am chuffed about only another 9 weeks to go.

Regarding the nail colours, my toe nails have gone black but finger nails are fine. Had my nails done yesterday as my sister owns a nail salon.

Had red Christmas ones, they are lush.

Since having t my eyelashes have gone and my eyebrows are patchy and thin.

Hope you are ok

Sending you big hugs to you and everyone.

Kath xxx
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Re: September 2018 Chemo Starters.

We were told to wear nail varnish containing silicium on both hands and feet to protect the nails. We were told to continue for 6 months after treatment.

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Re: September 2018 Chemo Starters.

That's happened to my right eyebrow and eyelashes too Jacqs! Weird eh?
How are people finding the weekly paclitcaxel as in SEs etc? Oncologist finally phoned and said I'd be having 6 weeks of it starting on 10th Dec. I just wondered how people were finding it x
Member

Re: September 2018 Chemo Starters.

Aley - my nails have horizontal stripes & are getting really discoloured.  I was also advised to wear nail varnish & keep rubbing in cutical & nail oils / creams and hope for the best.

 

Kath - I hope everything went well today for you.  I’ve just had my 5th session of paclitaxel.  Managed to get some meds from the doctor for oral thrush so let’s hope it works. 

 

I also woke noticed yesterday that half of my right eyebrow has dissapeared, along with a chunk of eyelashes on same eye.  😉

 

Stay well ladies xx

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Re: September 2018 Chemo Starters.

Aley, my nails seemed ok on FEC - had one T now and I have noticed one nail has discoloured so blaming the Ts!

Ahh no ALittlePixie 😘 sending big hugs. Hope your oncologist rings tomorrow and you get some help ... you shouldn’t have to keep battling on ❤️ xx
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Re: September 2018 Chemo Starters.

No worries, I just hope it helps. I feel horrific still unfortunately. My oncologist was meant to call me yesterday but is off sick so I'm just battling on for now. Hope you're doing OK xx
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Re: September 2018 Chemo Starters.

Hi ladies, my finger nails are discolouring I’m having my 4th FEC on Friday. Did yours get worse with T anyone?
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Re: September 2018 Chemo Starters.

Thanks ALittlePixie - will give that a go. How you feeling today ... any better? xx
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Re: September 2018 Chemo Starters.

Hey Lisa
My oncologist told me to paint my nails dark, use olive oil for my cuticles and make sure I wear gloves for washing up etc. I've bought a water based nail polish and so far, so good. Hope this helps. My nails/fingertips hurt but none are lifting at the mo xx
Member

Re: September 2018 Chemo Starters.

My leg hair did go but it’s back again unfortunately 😂 Still got arm hair tho ... thought that would have gone too!

One of toe nails is now changing colour 😬 anyone have any tips ... or does it mean that I will probably lose it?
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Re: September 2018 Chemo Starters.

My legs have only gone this month...FEC 4....x

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Re: September 2018 Chemo Starters.

I’m very disappointed I still have hairy legs!
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Re: September 2018 Chemo Starters.

Slightly obsessed with hair growth! Didn’t really worry about having it shaved off but it growing back does make me feel like there is light at the end of the tunnel! But don’t think I’ll be rushing to book the hairdressers quite yet. 🤣

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Re: September 2018 Chemo Starters.

Hi all,

Can’t wait to see some hairgrowth, will be a huge milestone in getting back to ME🙎🏻‍♀️ Always felt my hair was my best feature lol always looked healthy and strong 💪 but it def didn’t like that FEC😭😭 even with cold capping am now almost bald apart from fluff that’s held on.

I was recommended to get my eyebrows microbladed before chemo and best thing I have done😀 They are holding up well and a far better shape than my old ones which is a bonus! My eyelashes are falling out especially my lower ones. Always look really tired now.

Looking forward to 2019 when I will be rebuilt lol

❤️❤️
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Re: September 2018 Chemo Starters.

Gosh, we're all gonna look like hot girls with patchy eyebrows and a cm of fluffy hair by Christmas! 😂😂😂
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Re: September 2018 Chemo Starters.

I definitely have some fluff emerging and hope that the T doesn’t make it all fall out! Looked up how fast hair grows....0.35mm a day! At 1mm every 3 days....a centimetre by Christmas...🤣🤞🎉