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September 2018 Chemo Starters.

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Re: September 2018 Chemo Starters.

Aley - my nails have horizontal stripes & are getting really discoloured.  I was also advised to wear nail varnish & keep rubbing in cutical & nail oils / creams and hope for the best.

 

Kath - I hope everything went well today for you.  I’ve just had my 5th session of paclitaxel.  Managed to get some meds from the doctor for oral thrush so let’s hope it works. 

 

I also woke noticed yesterday that half of my right eyebrow has dissapeared, along with a chunk of eyelashes on same eye.  😉

 

Stay well ladies xx

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Re: September 2018 Chemo Starters.

Aley, my nails seemed ok on FEC - had one T now and I have noticed one nail has discoloured so blaming the Ts!

Ahh no ALittlePixie 😘 sending big hugs. Hope your oncologist rings tomorrow and you get some help ... you shouldn’t have to keep battling on ❤️ xx
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Re: September 2018 Chemo Starters.

No worries, I just hope it helps. I feel horrific still unfortunately. My oncologist was meant to call me yesterday but is off sick so I'm just battling on for now. Hope you're doing OK xx
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Re: September 2018 Chemo Starters.

Hi ladies, my finger nails are discolouring I’m having my 4th FEC on Friday. Did yours get worse with T anyone?
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Re: September 2018 Chemo Starters.

Thanks ALittlePixie - will give that a go. How you feeling today ... any better? xx
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Re: September 2018 Chemo Starters.

Hey Lisa
My oncologist told me to paint my nails dark, use olive oil for my cuticles and make sure I wear gloves for washing up etc. I've bought a water based nail polish and so far, so good. Hope this helps. My nails/fingertips hurt but none are lifting at the mo xx
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Re: September 2018 Chemo Starters.

My leg hair did go but it’s back again unfortunately 😂 Still got arm hair tho ... thought that would have gone too!

One of toe nails is now changing colour 😬 anyone have any tips ... or does it mean that I will probably lose it?
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Re: September 2018 Chemo Starters.

My legs have only gone this month...FEC 4....x

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Re: September 2018 Chemo Starters.

I’m very disappointed I still have hairy legs!
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Re: September 2018 Chemo Starters.

Slightly obsessed with hair growth! Didn’t really worry about having it shaved off but it growing back does make me feel like there is light at the end of the tunnel! But don’t think I’ll be rushing to book the hairdressers quite yet. 🤣

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Re: September 2018 Chemo Starters.

Hi all,

Can’t wait to see some hairgrowth, will be a huge milestone in getting back to ME🙎🏻‍♀️ Always felt my hair was my best feature lol always looked healthy and strong 💪 but it def didn’t like that FEC😭😭 even with cold capping am now almost bald apart from fluff that’s held on.

I was recommended to get my eyebrows microbladed before chemo and best thing I have done😀 They are holding up well and a far better shape than my old ones which is a bonus! My eyelashes are falling out especially my lower ones. Always look really tired now.

Looking forward to 2019 when I will be rebuilt lol

❤️❤️
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Re: September 2018 Chemo Starters.

Gosh, we're all gonna look like hot girls with patchy eyebrows and a cm of fluffy hair by Christmas! 😂😂😂
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Re: September 2018 Chemo Starters.

I definitely have some fluff emerging and hope that the T doesn’t make it all fall out! Looked up how fast hair grows....0.35mm a day! At 1mm every 3 days....a centimetre by Christmas...🤣🤞🎉

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Re: September 2018 Chemo Starters.

😂 I keep taking selfies too ... a reminder of how bad I look at every stage ha ha! My eyebrows have gone very patchy too .. keep looking optimistically for some sign of head fluff growing but nothing yet! 😞

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Re: September 2018 Chemo Starters.

Aley - My hair does grow a bit between cycles but after fec 4 I’m almost bald now! I’ve shaved what there was to stubble today as it was so thin anyway. Still got thick eyebrows and some lashes. I never got a wig and find hats and scarves hot and itchy so I just go bald in public. I find it very liberating! I’ve got an evening social in a few weeks though but I’m not sure if I’ll be brave enough then...

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Re: September 2018 Chemo Starters.

🤣ha ha ALittlePixie! I was just taking some rather attractive selfies!!(Not) 😂and I think I’ve lost part of my eyebrow too!!!
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Re: September 2018 Chemo Starters.

Hey Aley
I've finished my FEC and started T and my head has def got some fluff growing, although one of my eyebrows have just disappeared!!! I look very attractive...not! 😂
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Re: September 2018 Chemo Starters.

 

 

 

Hi Everyone.  Hope you’re all doing ok.

A Little Pixie - I do hope you get switched to weekly treatments soon.  I was so worried when they said i’d Have to start weekly paclitaxel, but to be honest it’s so much more manageable than 3 weekly FEC and the SE’s are not as severe.  I’ve had some rib pain but nothing like you describe.  Sending you a big hug xx

 

Today i’ve been to have my blood tests for genetic test - will have results in 3 weeks.  If it’s positive, i’ll join a drug trial for women with BRACA gene & TNBC.  It’ll be 12 months on either a real drug or a placebo, but it’s peace of mind knowing they’ll be keeping an eye on me when chemo is finished.

 

Now I need to pysche myself up for going back to work for few hours tomorrow.  It’s getting so busy in run up to Christmas & am feeling guilty that i’m leaving everything to my OH.  Xx

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Re: September 2018 Chemo Starters.

 

 

Hi Everyone. Hope you’re all doing ok.

 

A Little Pixie - I do hope they get you switched to weekly Paclitaxel.  I was so worried when I was told they wanted me to switch to weekly treatments, but to be honest it’s been much more manageable than 3 weekly FEC.  I’ve had some pain in my ribs but nothing like what you’re describing.  Sending a big hug xx

 

Today was my blood tests for BRACA testing.  Now just got to wait 3 weeks for results.  If it’s a positive, i’ll join a drug trial at the end of my chemo for 12 months.  It’s for those with a genetic link & TNBC.  I won’t know if i’m on a real drug or a placebo, but it’s extra peace of mind that they’ll be keeping a close eye on me.  

 

Am now going to psyche myself up for going into work for few hours tomorrow to help my OH.  It’s getting so busy on run up to Christmas and i’m feeling guilty that i’m at home all day.  

 

Xx

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Re: September 2018 Chemo Starters.

Thanks Pulapula, just wish I could get a more accurate idea of what’s happening to le lump! 🤔Bit frustrating doing chemo first 😳 wondered if anyone else is getting hair growing between FEC cycles? I haven’t gone totally bald yet and there’s definitely growth between cycles..
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Re: September 2018 Chemo Starters.

Hi aley. I asked about the calliper measurements too and was told they aren’t comparable to mri or ultrasound measurements and usually measure bigger as it’s hard to identify where the lump starts and ends. So I wouldn’t worry about a few mms difference.

Sorry I can’t help with the FSH test. Think I had one but no idea what it was for or what it meant.
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Re: September 2018 Chemo Starters.

Hello Everyone
I’ve been a bit quiet recently..been ok just lurking! Got my fourth FEC on Friday saw oncologist today ahead of this. Does anyone else go through having their lump measured with callipers? I feel very confused as today she said it measured 3cm by 2cm..I don’t get it because on MRI it was 2.3cm!! I should have asked or said something but my list of questions/symptoms was sooo long today 🤔 Also I discovered that I’m neither HER2 positive or negative but borderline and they’ve requested a FSH test?! I have no idea what this means or what the implications are-all I can tell you is that it’s taking a very long time!!! It was requested early August!! Enjoy the rest of your week lovely ladies xx
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Re: September 2018 Chemo Starters.

Hi everyone,

 

Had a new SE last night - felt very dizzy most of the night and when I first got upSmiley Frustrated Had a long, hot shower, breakfast and then staggered into hospital for bloods etc. They checked me out, but everything seems as normal, so it's just another of those unexpected & unpleasant things, lovely!

 

LittlePixie: so glad they've identified what the problem is. Paclitaxel is not too bad at all (it's the carboplatin that gets me), so hopefully you should start to feel better very soon Smiley Happy

 

Met a former colleague this afternoon for a tea. She had Hodgkin's Lymphoma years ago and has been clear of that dreadful cancer for years. It was so good to see someone with a great positive story. We have to keep reminding ourselves that we will get through this and live a happy, healthy and long life! Smiley Very Happy

 

Gx

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Re: September 2018 Chemo Starters.

Alittlepixie - glad you have an answer to how crappy you felt but sorry you had to go through all that! Hope things pick up for you soon.

I had my 4th FEC last Thursday. Not too bad apart from yucky taste in mouth, tinnitus, tiredness and achy/sore collarbone/shoulders. Oh and constant bottom burps. But I keep telling myself it’s my last FEC for now so just have to get through it.

Hoping you are all managing your SEs ok x






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Re: September 2018 Chemo Starters.

And I'm putting pineapple on my Tesco order!!!
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Re: September 2018 Chemo Starters.

Good morning you lovely lot!
Thanks for all the best wishes RE my week of hell. So, I went to the oncologist who reckons I've had an allergic reaction to the T which is why I'm in such pain and crappiness. She's taken full bloods and will call me today. They're possibly going to put me on weekly paclitaxel instead.
Im stuck with paracetamol for the pain as I have bowel issues which restrict other pain relief unfortunately. Its the rib pain that's the worst I think.
Sending love to everyone xxx
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Re: September 2018 Chemo Starters.

Thanks Sue.

i tried the frozen pineapple last night & it definitely does help.  I’ve just ordered some ice lolly holders & am going to make pineapple lollies.

Xx

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Re: September 2018 Chemo Starters.

I have a bag of Tesco’s frozen pineapple chunks in the freezer....

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Re: September 2018 Chemo Starters.

Jacqs

I've found that fresh pineapple gives a bit of relief to the awful tasting mouth. Might be worth a try for you. Fingers crossed 🤞🤞

Sue x
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Re: September 2018 Chemo Starters.

I'm having the odd nosebleeds.

Don't have the bad taste at all like I did with FEC. That was horrendous.

My main side effect is pain in my legs, hips, bone pain, muscle pain. It's manageable but not nice at all.

I was bed bound with FEC but thankfully I am up and about with this paclitaxel and still managing to live my life so far anyway.

Good luck with yours as well. Will be thinking of you.

Am here if you need a chat anytime.

Kath xx
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Re: September 2018 Chemo Starters.

I’m having daily nosebleeds - not heavy but annoying. I have also had one weekend with a very upset stomach, stomach pain & pain in my rib cage ( this might be more to do with breast surgery than chemo? ). Also have the worst taste ever in my mouth - I did get oral thrush when I was on FEC, now it’s just a permanent bad taste. I’ve had 4 weekly sessions so far - 2 paclitaxel & Carboplatin & 2 paclitaxel single doses. I’m also having my next session on Thursday - Good luck & hope you don’t feel too rough xx ( PS I have generally faired a lot better on weekly paclitaxel than I did on FEC )
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Re: September 2018 Chemo Starters.

Your as bad as me. My pillows are soaking with sweat.

Have you had any other side effects?

I'm having my 3rd session on Thursday.

Kath xx
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Re: September 2018 Chemo Starters.

Hi Kath,

i think there are a few of us suffering from hot flushes & they do disrupt your sleep.  I woke up at 3am this morning & couldn’t get back to sleep.  Like you i’m on weekly Paclitaxel.  The only positive is that my consultant did say that once chemo was finished, it should stop & am hoping that’s the end of all things menopausal - lets hope & pray!

Have taken to sleeping on a towel so I can mop my bald sweaty little head as & when needed.  🤣🤣xx

 

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Re: September 2018 Chemo Starters.

Hi Everyone

I am now on weekly paclitaxel and am suffering terrible with hot flushes.

I can't sleep at night it is so bad.

Anybody else suffering like me on the same chemo.

I am also putting on so much weight as well which I didn't expect.

I am now a bald sweaty umpa lumpa. 🤣🤣🤣🤣

Kath xx
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Re: September 2018 Chemo Starters.

Hi Mama Tony,

No I'm not on any special diet, well I am on a low potassium diet but that's because my kidneys are knackered, nothing to do with the cancer as had it years before. Think chemo may have sped up the deterioration of my kidneys though ☹️.

Some people say dairy is bad? I don't drink milk now, I drink oat milk but more because it's low potassium.

Life is for living and I figure it would be pretty miserable existence going without chocolate & wine 😬

I put on 2 and a half stone during treatment, my main aim was to lose it and eat a healthy diet.  I lost all the weight plus a little more, joined a gym and reckon I'm fitter now than I was 20 yrs ago.

Because of the trip neg diagnosis I did opt for brca testing - which thank goodness was negative.

I can only go by my experience - I had 6 monthly check ups (cop a feel) alternating with consultant and oncologist but only 1 mammogram a year - that was for 5 years.
This year I had the choice to be discharged or see the consultant once a year - I wanted the reassurance. I'm not sure how long the annual mammo's go on for....

Take care Nikki x

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Re: September 2018 Chemo Starters.

Thanks MamaTony ... it’s good to know that they should be the same ... can prepare a bit ... or try at least 😂

Ahh GabyF sorry to hear you’ve had another rubbish night.
I’m not looking forward to the hot flushes at all ... can you take something to ease them?

We definitely need some lighter moments to keep us going ... this nightmare seems never ending at times and just when I think I’m coping ok I start blubbing again. We are getting there tho ... Christmas seemed a long way off when I first started treatment 💪🏻❤️

Here’s to Spring, Sunshine and kicking the crap out of cancer 💩 ☀️ Lisa xx
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Re: September 2018 Chemo Starters.

Hi,

Lisa: I do find the side effects for me have been the same. Bad furry mouth for the first 7 days, have got anti biotics to sort that out. Loose my taste buds for the first couple of weeks and also suffer from dry mouth, have bought biotene mouth spray which helps that. Few aches and pains but manageable and tiredness....better than FEC tho!

Gaby: I have not googled as too scary. I think the main difference is that there are no tablets longer term so get 6 monthly scans I believe. My thinking is to live my life and try and be as healthy as I can whilst still enjoying life!

❤️❤️
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Re: September 2018 Chemo Starters.

Hi Everyone,

 

Another rubbish night with hot flushes and nightmares. However, I dragged myself in to town, got some nice presents for my husband, then got back home, had some soup and crashed in to bed for an hour and a half. Absolutely shattered! Just got up and had another bite to eat and am feeling so much better. I did try to reduce my daytime sleeps last week, as I thought they may be affecting my ability to sleep at night, but that theory seems to be out of the window, so, like you Galligirl, I've decided that I might as well get some sleep when I can!

 

MamaTony: I'm also triple negative. So far I have very deliberately not read up anything anywhere on this, as I am terrified what I might find. However, I am very slowly (maybe, possibly Smiley Wink) coming to the conclusion that I can't shut out all knowledge forever and perhaps, just maybe, finding out a bit more might be a good thing. Did you google this at all? I've been told by various people here on the forum that that is a very BAD idea. Or did you just get some books from the library? I'm really not sure how to go about finding out more without scaring myself too much! Smiley FrustratedI might ask at Maggies when I go there on Thursday and will let you know if they have any good tips.

 

LisaT: So glad you had a nice weekend and birthday. It's so important to find those happier, lighter moments.Smiley Happy

 

And finally, Galligirl, I think we all want Spring to arrive, with lots of hope, sunshine and flowers. It's not about wishing time away, just looking forward to a brighter future (I'd better stop here, otherwise I'll start blubbing! Seriously, I thought I'd done with tears, but they are often not that far from the surface!). So here's to Spring and Sunshine!!! HeartHeartHeart

 

Gx

 

 

 

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Re: September 2018 Chemo Starters.

Morning,

Hope you are feeling brighter today GabyF / ALittlePixie ❤️ Hope you will get a solution from your oncologist today ALittlePixie - sounds like you’ve had a rubbish weekend 😘 Not heard about steroid tail but I had 3 days of steroids plus an extra day of steroids on half dosage ... not sure if similar thing.

Thanks for the tip about the fizzy vitamin C tablets Jacqs / MamaTony - will definitely give that a try. Did you find that you follow the same pattern of SE with Ts MamaTony?

Had a lovely weekend away thanks Galligirl ... really lucky with the weather ... it was just what I needed as had a bit of a wobble on my birthday. Good luck with your first T on Thursday 💪🏻❤️

Hope everyone has a good week 😘 Lisa xx

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Re: September 2018 Chemo Starters.

Good Morning!

Nikki49 - thanks for taking the time to pop in....so good to reinforce that there is light at the end of the tunnel ☀️

Alittlepixie - I hope you are a little more on top of your pain and that your visit to the oncologist nurse finds some resolution for you....!

 

GabyF - I am also having problems sleeping- too hot, twitchy legs, head spinning, can’t remember the last time I actually slept well! I am lucky I can sleep during the day...probably the wrong thing to do but I have to as I am soooo tired 💤. 

 

Does anyone know what the hot flush thing is all about? I get the whole reduction in er but why do you get hot? Must google it! 

 

MamaTony - I have my first T on Thursday....feeling anxious so following your tips avidly! Bit C tablets at the ready! 

 

LisaT - hope you had a lovely weekend away celebrating your birthday 🎂 

 

and to everyone....hang in there...it is a long slog...I don’t want to wish time away but I dream of spring sunshine and daffodils. GGx

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Re: September 2018 Chemo Starters.

Hi,

Nikki: so great you have got through this journey🎉🎉
I am also triple negative and it scares me so much. Have you made many changes to your lifestyle post treatment?
Reading books on diet etc. but all a bit brutal... no chocolate, carbs, wine🙁🙁... all the good stuff!!!

Tip for those going through T chemo, I find if you get some vitamin C tablets and put 1/2 of one on you tongue it freshens your mouth a bit and gives you some saliva.
I am suffering from dry mouth and sore finger nails after 2 T’s.

Hope everyone has a good week❤️❤️
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Re: September 2018 Chemo Starters.

Those hot sweats are hideous.  They started just at night, but am now having them daytime too.  Thought the whole menopause thing was over for me as I had a hysterectomy 9 years ago, but thanks to chemo, it’s all back with a vengeance.  It just keeps on giving doesn’t it 😡😡

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Re: September 2018 Chemo Starters.

Evening everyone,

 

It really is fantastic to hear from someone who has been through all this rubbish and come out the other side. Thank you, Nikki.

 

Little Pixie, I hope you were able to sort something out to deal with your pain and are feeling a bit better.

 

Went for a nice walk in our local park with husband today - good to get some fresh air, although I'm feeling breathless again.Smiley FrustratedAlso managed to do some Christmas shopping locally, which was very unusual for us - we're usually in a slight panic by mid-December! I'm planning to go in to town tomorrow get a few more pressies, something useful to do with my time anyway.

 

LisaT & Jacqs: I am trying not to snack too much, as I realised I was putting on a lot of weight. I have tried to get temporary relief from the bad taste by drinking lots of different herbal teas, which kind of helps, though by dinner tonight I was so desperate for food that my husband had to remind me to slow down! Smiley LOLSo maybe that doesn't quite work either?!

 

Rubbish night last night: I felt really hot one minute, then threw the duet off, only to get absolutely freezing within seconds, so kept waking up and eventually gave up around 5am - awake until c.7am, then fell back asleep, only to be woken at 8am by our neighbour's son playing some wild game that involved screaming the house down (he's only 3!). Hopefully I'll sleep a bit better tonight, as long as my body doesn't do that hot-cold thing again!

 

Love to you all,

Gx

 

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Re: September 2018 Chemo Starters.

Morning everyone
Thanks for the advice Nikki...it's great to hear you're through and there's a light at the end of this hellhole. I've not heard about doing the Steroid tail, so I'll ask.
Thanks to everyone RE advising about my pain on this T. I'm seeing my oncologist nurse tmoz so I'll tell her about the pain. It's now gone to my hips and lower back.....I swear it's like child birth splitting pelvis pain. I have issues with my bowels, so the only painkiller I can tolerate is paracetamol. Everything else reacts badly with my bowel and causes more pain issues. I'll see what they say tomorrow. I'm using heat pads at the mo and meditation to get through.
On a good note, there's blue skies and it's Sunday, so I'm gonna spend time with my little family 😍
Love to everyone xxx
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Re: September 2018 Chemo Starters.

Good morning ladies,

 

I'm from the September 2013 thread, I'm not on here much these days but I do like to pop in particularly on the September group to see how you are all doing.

 

When you get that rotten mouth - Some of the girls in my group drank tonic water prior to eating they swore it made food taste near to normal, unfortunately for me I don't like it.

 

I had awful pain on the  'T' part of FEC-T, I complained to my Onc to try to score some stronger painkillers for next time - I didn't want a reduction in chemo strength because hey that's why we're doing this...... to blast this disease to kingdom come.  Anyway he prescribed what he called the steroid tail, yes it is more steroids but you take them in ever decreasing doses daily rather than just the sudden stop.  It was like a miracle cure.

 

PS Top tip! I was told to take my steroids at 8am & noon, they never interfered with my sleep 😊

 

As for me now, I had skin sparing mx, then reconstruction surgery once chemo finished, then had a reduction on good boob to match, had a nipple made and then tattoo'd - haha I now got the boobs of a 20 yr old, every cloud and all that 😃

 

As I was triple negative I'm not on any meds which was a bit scary as I felt left adrift without a life belt, my Onc signed me off this year and my consultant will now only see me annually as opposed to 6 monthly for another 5 yrs (he did say he could discharge me but I like his reassurance).

 

So life does go on, you just appreciate it a bit more.

 

Best of luck ladies x

 

PS my hair grew back curly, was dead straight before lol, it's not so curly now more of a kink.  I used to have quite thick hair but alas it's quite thin now ☹️, on a plus note, leg & armpit hair is really sparse 😆

 

 

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Re: September 2018 Chemo Starters.

Hello Lovely Ladies.

Seems like everyone is suffering this week.

 

Gaby - I sympathise over the horrid taste.  I had my double dose of Paclitaxel & Carbo on Thursday and since have had cystitis, sore tummy & rib pain, daily nosebleeds & that awful taste, so have been feeling sorry for myself for last few days.  Don’t stress about the EC just yet - take it one step at a time & it seems more do-able.  Not sure if EC is like FEC but with just 2 of the drugs instead of 3 ?

 

A Little Pixie - so sorry to hear you’re suffering so much my lovely.  I agree with everyone that you need to ask for some stronger painkillers to make it more bearable.  I’ve been getting quite a lot of pain in my ribs but the oncologist just said to see how it goes as it’s not such common SE with drugs i’m on.  If it does keep on, she said she’d organise a scan to see what’s going on as it’s possibly to do with lingering healing from breast surgery. 

 

Lisa T - i’m with you.  The taste doesn’t seem quite so bad when you’re actually eating, so i’m guilty of picking constantly at the moment,  have put on 1/2 stone in last couple weeks🐷🐷

 

Has anyone tried the fizzy vitamin c tablet dissolved on the tongue? Just 1/2 tablet each night.  One of the ladies on an earlier thread suggested it for oral thrush but it does help a little in clearing that awful taste & as it’s only vitamin c, doesn’t cause any problems.

 

Looking forward to spending the day with OH tomorrow.  Haven’t seen much of him the last week or so as he was working away last weekend & has been busy all of this week.  

Enjoy what’s left of the weekend xx

 

 

 

 

 

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Re: September 2018 Chemo Starters.

Little Pixie: I hope you managed to get a bit of fresh air and that your SEs are starting to ease. There must be something you can take to lessen the pain a bit?! I agree with LisaT, contact your Chemo nurse and badger them for help - I don't see why you should have to put up with so much discomfort and pain! I had a sleep after lunch and am feeling a little less spaced-out. This morning I had a really bad bout of chemo brain, not being able to remember words, what I had said/did etc. My kids just laughed and groaned Smiley Tongue

 

LisaT: Thanks for your encouragement. I'll be on EC, with out the F (whatever that stands for!), but hopefully it will be okish. I just want all of this to be over Smiley Frustrated

 

Ktk: Gosh you're brave. I don't think I'd have the confidence to do all that at school functions, well done you! Mind you, I think I definitively saw a couple of mums at the parents' evening who seemed to have rather thin hair and were wearing scarves. Sadly there was no time to introduce myself (they were new to the school I think) and anyway, what would I have said "Excuse me, I notice you've lost your hair. etc etc" Not a great conversation starter! Smiley LOL

 

Am planning to visit the Maggies Centre at St Barts on Thursday, if I feel up to it. They've got a drop-in walking session, hair care (for what's left!) and general advice day then, so I'll give it a go. I feel I could do with a little more socialising and my local Macmillan Centre doesn't really offer that.

 

Hope everyone has a reasonable Sunday. Might go out for a walk with my husband, if the weather improves (very grey and dank here in London).

 

Gx

ktk
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Re: September 2018 Chemo Starters.

Hi Gaby, I was head of Y11 last summer, and couldn’t go to school once chemo started because of the risk of infection! I wore a big hat for the arrival at the prom, but took it off for the meal. As I decided not to have a wig, I think they noticed!!🤣🤣🤣xx. The next time I went in was on results day, again bare headed. This was the first time most of the parents had seen me. It was fine! I’ve been off school since May, but I guess I’ll have to go back sometime in the new year!! Kx
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Re: September 2018 Chemo Starters.

Afternoon ladies,

Horrid taste is awful isn’t it ... read on another post that having ice lollies before and and during treatment is supposed to help ... not tried it tho. I keep eating to get rid of the taste 🐷🙈 probably not the best solution ha ha!

Sorry to hear you are both feeling rubbish today 😘💪🏻 ALittlePixie are you taking anything for the pain ... ask your nurse for stronger pain relief if you need it (my nurse mentioned codeine) I had rib and back pain too but it wasn’t too severe and paracetamol took the edge off it.

GabyF - I was ok on FEC too and had a good couple of weeks. The unknown SE are always scary but try not to stress ... hopefully you’ll breeze through it 😎

Sending big hugs ... we’ve got this 🥊💪🏻❤️ Lisa xx
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Re: September 2018 Chemo Starters.

Afternoon Gaby
Sorry to hear you feel so crappy after Wednesday's dose. The horrid taste in your mouth is the pits isn't it.
I started with the T side effects on Weds afternoon and they're kicking my ass at the mo, so I'm stuck in bed, in pain and feeling sorry for myself! I'm hoping the next lot of T won't be as bad. My chemo nurse said this one would be bad cos I've still got FEC in my system.
Try not to stress too much about EC. You're right that it affects different people in different ways. Most people seem to get a good couple of weeks with it tho, so I really hope you do too.
It's quite a bright day here today so I might try and shuffle outside for 5 mins of fresh air. I feel like I'm 100 and I've been run over multiple times, it's ridiculous!
Anyone on T.....did you get really severe rib and back pain?!
Hope everyone is as well as can be. Lots of love xxx