Member
Posts: 27
Registered: ‎31-08-2017

Re: September 2017 Chemo Starters

Thank you Sue x I guess it's just another wait and see then!! But thank you for letting me know what I might expect x
Member
Posts: 192
Registered: ‎14-07-2017

Re: September 2017 Chemo Starters

Hi everyone,
Sorry to hear so many of you are having aches and pains with the injections. I think I was very lucky as I was ok with mine even on day 7. I did preemptively soak for a good hour in a bath with 2 cups of Epsom salts every day for the week just in case!

Well, it's day 13 now and I'm feeling pretty good, almost back to normal. I've been to Zumba on Tuesday, yoga on Wednesday, and today had reiki and a gong shower!!! Trying to enjoy the time before next Thursday comes and it's back to bed for a week. I'm really enjoying walking the dogs, taking kids to and from school and cooking nice meals - though I do wonder if I will ever be able to taste food the same...my tongue is kind of numb and fruit tastes vile still!

Remember to snatch those good times when they come, lots of fresh air, healthy food, movement and laughter,
Cath x
Community Champion
Posts: 1,235
Registered: ‎19-08-2016

Re: September 2017 Chemo Starters

Hi Michelle
I had a really long one cycle 2, which lasted 2 weeks and then nothing. I think we all react differently, but chemo effects so many things, it's not surprising that periods can be irregular.
Sue xx
Member
Posts: 27
Registered: ‎31-08-2017

Re: September 2017 Chemo Starters

Ladies, rather personal but I wondered if anyone has had a period or been told what to expect? Mine are generally heavy but they told me to see what happens because they might "Dry up" (lovely terminology!). It's due now, day 7 FEC. I'm utterly shattered and wondered if that was contributing too. Thank you x
Member
Posts: 91
Registered: ‎29-07-2017

Re: September 2017 Chemo Starters

Hi everyone - I too have beeen out of action on here for a while, but have been reading your posts. Well done to those of you who've had your PICCs put in - you do get used to it, very quickly. Glad to hear that for most, we are all getting through it! It's reassuring to listen to others who have panicked - makes me feel normal! After Day 6 I felt quite 'well' once the anti sickness was sorted and an infection dealt with, but I must say, I am dreading my second cycle next Wed. They have assured me that te IV anti sickness should prevent what I went through ast time, but still full of trepidation!

Got my wig yesterday - Maria! She was chopped a little more as she was soooo full! Felt like an 80's soap star! I must say though, I took it off soon after becuse it fely so weird - amd I'm getting used to mr cropped look! My scalp is tingling today and my lady garden (!) has statred to shed in the shower today! Silver lining eh?!!

Onwards and upwards!

Jacqui

CK
Member
Posts: 825
Registered: ‎07-08-2017

Re: September 2017 Chemo Starters

Hi Rohona
It's good to see you again and hopefully you will start to feel better now. I started to feel 'human 'again on day 7 after a blip at A&E on the 6th but all was well. Panic attack! Day 11 now & since then I have been as good as can be wirh a huge appetite.
The injections caused me severe aches and pains so I was happy when the 7 were done til next time. Next time I'm going to take both Ibroprofen and
Paracetomol. Hopefully number 2 will go easy on us.xxx
Member
Posts: 98
Registered: ‎07-08-2017

Re: September 2017 Chemo Starters

Morning everyone and hello to those joining recently

 

Sorry I've been missing in action recently. I started getting some nausea on day four and five and just felt like lying in bed doing nothing. My friend took me to get some food shopping on Sunday, but I came straight home to bed as I was getting motion sickness and felt very spaced out. However, I was also getting heartburn and think the nausea was possibly more related to this. I've now been commenced on pantoprazole and this has helped greatly. It still didn't affect my appetite though!

 

I've been reading that a few people are getting back pain and it's hitting me too! I started getting lower back pain last night (day eight) and had to get up around 6am as had been awake since 4am with the pain which has now spread to both hips. I know the GCSF can contribute to this, but I only had one subcutaneous injection to do 24 hours after chemo and it's 7 days since I did mine. I'm going to check with my nurse as joint pain has also been reported in people taking pantoprazole.

 

Hope everyone has a good day.

 

 

 

Rhona x

Highlighted
Member
Posts: 186
Registered: ‎15-07-2017

Re: September 2017 Chemo Starters

Good morning

Sending my best warm wishes and thoughts to all going through such difficult side effects to chemo.

One week in, and I am not too bad relatively. I hope stays this way for me, and gets better for you all.

Have a happy day today.

Fairydust x

CK
Member
Posts: 825
Registered: ‎07-08-2017

Re: September 2017 Chemo Starters

Hi love
I too got myself to A&E on the 5th day if injections and all checked and alright. But next day didn't chance it and took Paracetomol and Ibuprofen. My chemo nurses say not to listen when they say Paracetomol masks temp, contolling the pain is much more important and taking temp frequently helps anyway. Glad you are home and ok now. It's a scare but good to have peace of mind.
I've just woken up hungry so having jam and toast and a decaff brew b4 I nod off again.x
Member
Posts: 34
Registered: ‎20-06-2017

Re: September 2017 Chemo Starters

Hi Glenn

Oh my god! Last filgrastim today by 8pm paramedics were here. Phoned 111 saying about muscle spasms and of course being upper back chest neck they sent abulance. Still it was nice to have some company for the evening. Ecg done all fine but my god the pain. Throbbing chest all the way down to tailbone. Excrutiating. I no longer care about masking a temp or anything else for that matter. Paracetamol will ensue. Went off for now but back 4am with a vengeance hence this post.....is this just another torture we have to suffer. Why the last day? We are not alone....two ladies on my support group have the same. Sarah xxxx
Member
Posts: 140
Registered: ‎31-07-2017

Re: September 2017 Chemo Starters

How did the PICC go Vee. Had mine done yesterday after 2 cycles where they had trouble finding veins. PICC insertion was just as difficult! Was quite uncomfortable yesterday evening, but has eased today with regular paracetamol and a hot water bottle. I highly recommend. Shower time was interesting, guess we'll get used to it!
Hope you're ok and get a good night sleep. Xx
Member
Posts: 3
Registered: ‎12-09-2017

Re: September 2017 Chemo Starters

[ Edited ]

Hi CK,

Yes, I found Paracetamol helped, although I was nervous taking them in case of temperature masking - but all seemed OK.  I only had that reaction with the last injection - it lasted around 24 hours and has gone now thank goodness.

 

I was given extra Emend for the two days following and also have Metoclopramide for the 'as and when' nausea - it kinda works, but I think I will talk to my Oncologist when I see him next week to see if something else might work better.  I've been drinking Peppermint tea and fizzy water (not in the same cup!!) which soothes at the time.  I shall probably try some boiled sweets but have to be careful because I'm diabetic.  Also been using the sickness bands ... I think they help.  Day 10 and feeling more human today!

 

Notice you have a daughter going back to Uni this weekend - my son is also heading back to Uni this weekend - I've encouraged him to tell his tutor what is happening at home and also to talk to student support if he wants to, whether he will or not is another matter!  My daughter, who is in last year of A Levels, has talked to her tutors and they have all been very supportive and offered any additional help she needs.  Learning to let go of the reins a bit and trust them to others is so hard, but has to be done.

 

Not looking forward to starting this all over again!!

 

Glen xx

Member
Posts: 3
Registered: ‎12-09-2017

Re: September 2017 Chemo Starters

Thanks, Sue!  Back pain has gone now - it lasted around 24 hours and was just with the last injection - pain killers helped, just a bit nervous about taking them in case it masked a temperature - but all seemed OK.  I feel a lot more human today thank goodness!  Still intermittent nausea which I guess I was expecting as I suffered horrendous morning sickness with both my children and chemo nurse said that often is an indicator for chemo nausea - such fun!!  

Glen xx

CK
Member
Posts: 825
Registered: ‎07-08-2017

Re: September 2017 Chemo Starters

Hi Geordie
I was glad I didn't have any sickness which I think may be due to the extra Amend they gave me so I definitely recommend this.
I did have a kind of empty hungry feeling though from day 3 to 6 so I just smacked and sucked on anything which helped.

It has been easier not having to stress too much about work because I have staff, so the 18 years I've put into my small business has paid off and now to sit back a bit and sort myself out. I used to hate not been able to work but this most certainly has put things into perspective.

Children adapt easier than we think. Never feel guilty, but explain to them in a way they won't worry and when it might affect them going to school, etc.

My daughter is 20 and the first thing after diagnosis is how do I tell her without her getting anxious. She wasn't too good at the beginning but when she saw I was coping well, she did. She said I need to tell her everything and be honest with her but sometimes if I'm not too good I'll just say I'm tired and need to rest to avoid her worrying as she goes back to Uni next week.

As parents we will always protect our children.xxx
Member
Posts: 41
Registered: ‎01-09-2017

Re: September 2017 Chemo Starters

A cautionary note on painkillers - for those of us who have to take the anti-coagulant injections, ibuprofen is listed in the leaflet with my clexane as something that could be dangerous if taken in conjunction.  Please check with your GP/oncologist before taking ibuprofen if you're on these type of drugs.

Member
Posts: 41
Registered: ‎01-09-2017

Re: September 2017 Chemo Starters

Hi CK

 

Glad to hear you're doing better now and are through the sickness.  It's nice to be able to get up and plan something 'normal' to do with our days again, in amongst all the madness!  A day at a time seems to be the best way to get through this all sane :-)

 

Geordie x

Member
Posts: 41
Registered: ‎01-09-2017

Re: September 2017 Chemo Starters

Hi Jow

 

Sorry to hear about yesterday's 'adventure'.  I had similar issues on my first day of chemo as I'd been struggling to breathe and had pain in my chest.  They found a clot in my chest so I've been doing the same daily injections now for two weeks and, like you, have another 5 and a half months of this to go.  It's annoying, more than anything, that it's got to continue for so long, especially when we know we'll still be doing this when the chemo and radiotherapy are long done.  However I have found that my breathing returned to normal pretty quickly after starting the injections and within around 3 days the discomfort had gone so guess the injections are better than the alternative!  One tip that might help you avoid the bruising I've given myself - make sure you really do pinch that inch and keep pinching for 30 seconds or so afterwards and try to have a pattern to the injections so that you have room for them all and avoid giving them too close to each other too soon. Now I know this, I'm not bruising any more! 

 

It's so hard with kids around but also find that they help bring me back to daily reality very quickly.  I have twin ten year old stepsons and they've been amazing (they loved helping me do the shopping on Saturday while the husband went to rugby!) but sometimes I feel guilty that they are exposed to any of this, even though I know it is not my fault!  Their smiles and hugs really help me get through the days though and they're so resilient - put us grown ups to shame sometimes :-)

 

Glad you feel better and are now coming through the chemo fog!

 

Geordie x

CK
Member
Posts: 825
Registered: ‎07-08-2017

Re: September 2017 Chemo Starters

Glen
I started on the same day as you! I also had pain down from back of my head, through my neck to my back. Ibuprofen and Parecomol helped. I also ached lower back and belly where I had the injections. For the last one I went for a walk after doing it which helped.
Were you given an extra anti sickness pil Amend? I was and it helped me. I took the two days of drugs at home and didn't need any. For nausea I found rhat Murray mints, ginger drops and pear drops helped. When my stomach felt empty milk helped.
I also wore a pair off travel sickness bands which may have helped. I too was very fatigued and napped a lot which doesnt do any harm. Since day 7 I have been feeling me again and have been doing normal everyday things.

Vee
My next chemo is Weds 27th Sept when I will also see the oncologist. Glad you have Picc sorted.xx

Geordie
Glad you are feeling better and can work from home to keep your sanity. I'm day 9 and feeling good. I just take a day at a time. Every morning when I wake up I see how I feel and plan the day then.xx
jow
Member
Posts: 41
Registered: ‎23-08-2017

Re: September 2017 Chemo Starters

Good to hear from you Geordie and give us all something to look forward to. And welcome Glen.

 

Im pretty sure I'm close to getting that full Bingo card.  I've not found this easy at all.  Ended up on oncology ward yesterday as I've been intermittently short of breath for a couple of weeks (i.e post op but before my chemo). Have been trying to convince myself that it is psychosomatic but GP at Penny Brohn (Cancer wellbeing centre) insisted i get it checked out. Anyway it turns out I have a pulmonary embolus (lung clot). I've been allowed home but with anticoagulant injections every day for 6 months.   Good it was detected but not really what I wanted on top of all this. It was my youngest child's first morning at school and his 5th birthday.  I've promised to make his 6th more fun! 

 

Anyway, chemo wise I do feel a bit better today - at last!  

Jo

 

Community Champion
Posts: 1,235
Registered: ‎19-08-2016

Re: September 2017 Chemo Starters

Hi Glen

Welcome to the thread.

The first week is definitely the worse! Hopefully you will start to feel a little better over the next few days. Your immune system will be quite low now so take it easy. Just keep an eye on your temperature.

Side effects from the injections can be joint pain. I too suffered from a bad back at times. Its OK to take ibroprofen which I found really effective. And also the pain stopped as soon as the injections so you should be fine now.

Come and chat any time.

Sue xx