14-09-2017 10:54 AM
14-09-2017 07:00 AM
Morning everyone and hello to those joining recently
Sorry I've been missing in action recently. I started getting some nausea on day four and five and just felt like lying in bed doing nothing. My friend took me to get some food shopping on Sunday, but I came straight home to bed as I was getting motion sickness and felt very spaced out. However, I was also getting heartburn and think the nausea was possibly more related to this. I've now been commenced on pantoprazole and this has helped greatly. It still didn't affect my appetite though!
I've been reading that a few people are getting back pain and it's hitting me too! I started getting lower back pain last night (day eight) and had to get up around 6am as had been awake since 4am with the pain which has now spread to both hips. I know the GCSF can contribute to this, but I only had one subcutaneous injection to do 24 hours after chemo and it's 7 days since I did mine. I'm going to check with my nurse as joint pain has also been reported in people taking pantoprazole.
Hope everyone has a good day.
14-09-2017 06:43 AM
Sending my best warm wishes and thoughts to all going through such difficult side effects to chemo.
One week in, and I am not too bad relatively. I hope stays this way for me, and gets better for you all.
Have a happy day today.
14-09-2017 04:57 AM
14-09-2017 04:25 AM
13-09-2017 08:05 PM
13-09-2017 12:26 PM - edited 13-09-2017 12:47 PM
Yes, I found Paracetamol helped, although I was nervous taking them in case of temperature masking - but all seemed OK. I only had that reaction with the last injection - it lasted around 24 hours and has gone now thank goodness.
I was given extra Emend for the two days following and also have Metoclopramide for the 'as and when' nausea - it kinda works, but I think I will talk to my Oncologist when I see him next week to see if something else might work better. I've been drinking Peppermint tea and fizzy water (not in the same cup!!) which soothes at the time. I shall probably try some boiled sweets but have to be careful because I'm diabetic. Also been using the sickness bands ... I think they help. Day 10 and feeling more human today!
Notice you have a daughter going back to Uni this weekend - my son is also heading back to Uni this weekend - I've encouraged him to tell his tutor what is happening at home and also to talk to student support if he wants to, whether he will or not is another matter! My daughter, who is in last year of A Levels, has talked to her tutors and they have all been very supportive and offered any additional help she needs. Learning to let go of the reins a bit and trust them to others is so hard, but has to be done.
Not looking forward to starting this all over again!!
13-09-2017 12:19 PM
Thanks, Sue! Back pain has gone now - it lasted around 24 hours and was just with the last injection - pain killers helped, just a bit nervous about taking them in case it masked a temperature - but all seemed OK. I feel a lot more human today thank goodness! Still intermittent nausea which I guess I was expecting as I suffered horrendous morning sickness with both my children and chemo nurse said that often is an indicator for chemo nausea - such fun!!
13-09-2017 11:49 AM
13-09-2017 11:07 AM
A cautionary note on painkillers - for those of us who have to take the anti-coagulant injections, ibuprofen is listed in the leaflet with my clexane as something that could be dangerous if taken in conjunction. Please check with your GP/oncologist before taking ibuprofen if you're on these type of drugs.
13-09-2017 11:03 AM
Glad to hear you're doing better now and are through the sickness. It's nice to be able to get up and plan something 'normal' to do with our days again, in amongst all the madness! A day at a time seems to be the best way to get through this all sane :-)
13-09-2017 11:01 AM
Sorry to hear about yesterday's 'adventure'. I had similar issues on my first day of chemo as I'd been struggling to breathe and had pain in my chest. They found a clot in my chest so I've been doing the same daily injections now for two weeks and, like you, have another 5 and a half months of this to go. It's annoying, more than anything, that it's got to continue for so long, especially when we know we'll still be doing this when the chemo and radiotherapy are long done. However I have found that my breathing returned to normal pretty quickly after starting the injections and within around 3 days the discomfort had gone so guess the injections are better than the alternative! One tip that might help you avoid the bruising I've given myself - make sure you really do pinch that inch and keep pinching for 30 seconds or so afterwards and try to have a pattern to the injections so that you have room for them all and avoid giving them too close to each other too soon. Now I know this, I'm not bruising any more!
It's so hard with kids around but also find that they help bring me back to daily reality very quickly. I have twin ten year old stepsons and they've been amazing (they loved helping me do the shopping on Saturday while the husband went to rugby!) but sometimes I feel guilty that they are exposed to any of this, even though I know it is not my fault! Their smiles and hugs really help me get through the days though and they're so resilient - put us grown ups to shame sometimes :-)
Glad you feel better and are now coming through the chemo fog!
12-09-2017 11:33 PM
12-09-2017 11:25 PM
Good to hear from you Geordie and give us all something to look forward to. And welcome Glen.
Im pretty sure I'm close to getting that full Bingo card. I've not found this easy at all. Ended up on oncology ward yesterday as I've been intermittently short of breath for a couple of weeks (i.e post op but before my chemo). Have been trying to convince myself that it is psychosomatic but GP at Penny Brohn (Cancer wellbeing centre) insisted i get it checked out. Anyway it turns out I have a pulmonary embolus (lung clot). I've been allowed home but with anticoagulant injections every day for 6 months. Good it was detected but not really what I wanted on top of all this. It was my youngest child's first morning at school and his 5th birthday. I've promised to make his 6th more fun!
Anyway, chemo wise I do feel a bit better today - at last!
12-09-2017 10:16 PM
Welcome to the thread.
The first week is definitely the worse! Hopefully you will start to feel a little better over the next few days. Your immune system will be quite low now so take it easy. Just keep an eye on your temperature.
Side effects from the injections can be joint pain. I too suffered from a bad back at times. Its OK to take ibroprofen which I found really effective. And also the pain stopped as soon as the injections so you should be fine now.
Come and chat any time.
12-09-2017 06:26 PM
Welcome to all the new starters and hello again to everyone else! Sorry I've gone quiet for a few days but I've been attempting Operation Pretend-things-are-normal after feeling like the chemo fog lifted. It's Day 13 after chemo 1 now and I feel more like myself than at any time since my surgery in July as I didn't have much gap between the two so I've been making the most of it. I've been working from home which has made me feel more useful and today I ventured out to a Haven welcome day for my first go at some support - glad I did as it was a great session and I learned loads of really useful nutrition information.
I still have hair and no tingling yet so hoping that the cold cap worked although no sign of any hairloss from any other part of my body either so maybe not the best indication!
Vee78 - hi! - there was a discussion on page 8 of this thread about PICC lines that you might find helpful. I am so pleased I had mine put in and it wasn't a painful procedure. Have a look at page 8 as it might help.
Jow - didn't make it out on the town but definitely trying to live it up a bit more! Think I've finally got my head around the fact that we can try and do some nice things when we're feeling up to it in the next few months and our lives don't have to be completely on hold :-)
Fairydust14 - hope your constipation has gone - I can relate to this one as it was so bad in the first few days post chemo that I did some damage and had to go to the GP yesterday to find out that I now have a 'thrombosed heamorrhoid' as a result. My husband seems to find the fact that I now have piles, on top of everything else, very amusing and keeps asking me if anything's fallen out when I go to the loo! Think I'm going to double up on the laxatives for a few days before next chemo to prevent it happening again but I'm counting myself lucky that I've not had the sickness issues others have.
MrsMeow - symptom bingo proper made me laugh - think there needs to be a 'booby prize' for a full house? lol
12-09-2017 05:54 PM
My first post! I started chemo (FEC) on 4th Sept - my best thoughts to all you folks going through this. All went well during the session which was a relief, started to feel 'off' the next day. Nausea has been horrible, and tiredness overwhelming - I pretty much slept for three days! Had one or two brighter days but today (day 9) have felt horrible again, still nauseous. Last night I had the last of my Filgrastim injections and had a real throbbing back pain all night - it has eased a bit today, but still aching. Has anyone else experienced this?
12-09-2017 04:00 PM
12-09-2017 03:57 PM
Hi lilibet, yes, afraid ant head is definitely saying your hair is falling out. Mine stopped feeling so awful and painful once I took the plunge and had it shaved off. Little spritz of coconut oil keeps the scalp healthy . X