16-09-2017 08:53 AM
16-09-2017 08:53 AM
16-09-2017 07:55 AM
15-09-2017 10:47 PM
15-09-2017 08:57 PM
15-09-2017 06:48 PM
My oncologist said it was okay to have the odd glass of wine, but my nurse said to avoid the day before and a few days afterwards. To be honest I didn't feel like alcohol till last night which was day 9.
I am leaving my hair till it starts falling out, but not got any changes at all at present. Good luck if you do decide to take the plunge.
15-09-2017 06:24 PM
15-09-2017 08:36 AM
Hope everyone is well and that those with bone pain from GCSF are getting some relief.
Vee and Bujtterflyflyfree my PICC line is on the right hand side as most of my surgery was on the left including SNB. I got a little heatpack and used this for the first few days and it really eased the discomfort.
My bone pain is so much better today. I was reading some anectodal research on loratidine, also sold as Clarytin anti histamine. It's suggested that as there is a histamine response when white blood cells are stimulated that this drug may help with the bone pain. I'm sure I've also read this on the forum elsewhere. I bought the Llloyds own Loratidine as much cheaper than the branded one. The pain may have passed on its own of course, but following the Loratidine I didn't need any more analgesia.
I am also pleased to report I had a great sleep last night. I woke up once, but didn't look at the time, closed my eyes and went back to sleep.
I had my first glass of red wine in almost two weeks last night and really enjoyed it. However, it really is the devil for giving me hot flushes. I was prescribed venlafaxine for hot flushes nearly a month ago and I found it has really helped, but not strong enough against wine!
I'm off for an echocardiogram and ecg in preparation for Herceptin, hoping they find I do have a heart
Feeling really good today on day 10. Hoping cycle 2 will be as manageable.
14-09-2017 08:21 PM
Hi Vee, I heard it was a more difficult job in the left side because of the angle, so have mine in the right too. Took her several attempts as my veins kept reducing in size! But got there in the end. Sorry you had a tough time too. Mine is still sore where it goes in, I'm hoping it feels better soon. Heat works whilst it's on. No sign of infection so guess I just need to be patient.
Lookimg forward (!) to the benefit when I have my next bloods and chemo. Xx
14-09-2017 08:07 PM
14-09-2017 07:51 PM
14-09-2017 04:06 PM
14-09-2017 02:57 PM
14-09-2017 02:52 PM
14-09-2017 11:02 AM
Hi everyone - I too have beeen out of action on here for a while, but have been reading your posts. Well done to those of you who've had your PICCs put in - you do get used to it, very quickly. Glad to hear that for most, we are all getting through it! It's reassuring to listen to others who have panicked - makes me feel normal! After Day 6 I felt quite 'well' once the anti sickness was sorted and an infection dealt with, but I must say, I am dreading my second cycle next Wed. They have assured me that te IV anti sickness should prevent what I went through ast time, but still full of trepidation!
Got my wig yesterday - Maria! She was chopped a little more as she was soooo full! Felt like an 80's soap star! I must say though, I took it off soon after becuse it fely so weird - amd I'm getting used to mr cropped look! My scalp is tingling today and my lady garden (!) has statred to shed in the shower today! Silver lining eh?!!
Onwards and upwards!
14-09-2017 10:54 AM
14-09-2017 07:00 AM
Morning everyone and hello to those joining recently
Sorry I've been missing in action recently. I started getting some nausea on day four and five and just felt like lying in bed doing nothing. My friend took me to get some food shopping on Sunday, but I came straight home to bed as I was getting motion sickness and felt very spaced out. However, I was also getting heartburn and think the nausea was possibly more related to this. I've now been commenced on pantoprazole and this has helped greatly. It still didn't affect my appetite though!
I've been reading that a few people are getting back pain and it's hitting me too! I started getting lower back pain last night (day eight) and had to get up around 6am as had been awake since 4am with the pain which has now spread to both hips. I know the GCSF can contribute to this, but I only had one subcutaneous injection to do 24 hours after chemo and it's 7 days since I did mine. I'm going to check with my nurse as joint pain has also been reported in people taking pantoprazole.
Hope everyone has a good day.
14-09-2017 06:43 AM
Sending my best warm wishes and thoughts to all going through such difficult side effects to chemo.
One week in, and I am not too bad relatively. I hope stays this way for me, and gets better for you all.
Have a happy day today.