cancel
Showing results for 
Search instead for 
Did you mean: 

September 2016 starters

Member

Re: September 2016 starters

Thanks Dawn just read the article and note that it can be caused by Antibotics which I am currently taking so this may be the cause of it as not had it before. Have an apt  with doctor on Monday so will raise this with him. X

Member

Re: September 2016 starters

Hi Lisad - sore mouth/ tongue is a common SE of T, but oral thrush is something else. Signs of oral thrush are white spots all over your mouth and tongue, so if you haven't got that, you haven't got thrush - see: http://www.nhs.uk/Conditions/Oral-thrush---adults/Pages/Introduction.aspx. You probably have not got oral thrush if your tongue is just sore and red, but it could develop into it if you are not careful, so you may have to take some precautions to stop it from happening. Have you been given a course of Fluconazole tablets as a preventative? If not, I suggest you try and get some from your GP asap. In the meantime, try Bonjela to relieve the soreness and rinsing your mouth with salt solution after meals, if you haven't been given anything else. This should help in the short-term. Hope this helps and that your tongue gets better soon. 

 

Re: thinning eyebrows - I can recommend L'Oreal Brow Artist to enhance what's left. It is surprisingly easy to use (even for someone as ham-fisted as me). It costs £10.00 (but you're worth it). I got mine from Sainsburys but I imagine they are available from other large supermarkets and chemists as well. It is a kit containing wax, powder, tweezers and a two-ended brush. You apply the wax to the brow line with the one end of the brush, using what's left of your eyebrows as a guide, then you apply the powder, then finally you use the other spooly end of the brush to blend the powder with your eyebrows.

Member

Re: September 2016 starters

Hi ladies haven't posted much of late but have been reading the posts.  My last chemo is on 4th Jan due to going away on holiday over Christmas . Will be pleased when I had the final oneWoman Indifferent to be honest I do not know if I have been lucky but I have not experienced any sickness although I did found out that some of the anti sickness drugs that  I have been given under private care is not given out on the NHS unless you are really sick !! I still have my eyelashes and eyebrows although not as thick as before but still there to make an impact:smiley loll: Not sure if this had been due to me using serum on them everyday but I am happy. Have not put  on weight but this might be due to not being able to eat sweet things so there is some benefits to this:smiley loll:  finding it takes longer to recoup after chemo the more you have I guess this is a build of the drugs in your body? I am currently suffering with an extremely sore tongue what is that about? Never had it before what when I eat certain foods it's like my mouth is on fire. Is this thrush?     As I am sure next week will be busy for most of you I would like to wish you a very Happy Christmas and an even better New Year.  As mentioned we have come so far already and thank you all for your  advice and support on this thread.  Radiation scheduled for February so will probably catch up and ask questions  on the other thread.  take care everyone xx

Member

Re: September 2016 starters

Hi Aine, thank you for your kind words. I should also thank you and everyone else on this thread for your support, which has been fantastic. Chemo has been tough (and it's not over yet!) but it would have been far harder without all of you. It helps to know you are not alone and that we are in this together. We've all come so far now that the end of the chemo is in sight, and we know we'll get through it. I'm not abandoning this thread, just joining another one, so I will still keep in touch to see how you are all getting along. Sorry to hear you are still feeling nauseous, but glad you are managing to keep going in spite of it. It's still early in your cycle, so hopefully you'll be feeling a lot better by Christmas. It's Day 3 for me too, and the SEs are also beginning to creep up on me. I don't get nausea, but the sore mouth, throat and difficulty swallowing aren't nice either, and this evening they started. I hope this means I will be OK by Christmas. Now I'm off the steroids, the fatigue train 🚂 has arrived as well, so I should sleep better tonight💤! Goodnight everyone.

Member

Re: September 2016 starters

Old Dawn - I don't know what this thread will be like without you - you have been a rock to all of us and a fantastic contributor since I joined in September.

Keep in contact with us - we all still need lots of advice and support don't we ladies?

 

I am on day 3 of Cycle 5 of T.  Feeling nauseous and the aches are starting this evening from my neck and working their way down just as they did the last time.  Not unbearable but have started on the Paracetamol early as you all wisely advised.  I forced myself to take the dog for a short walk today and am so glad I did - it helped the nausea and cleared my head for a while.  Tomato soup is great at settling the stomach.

 

Hopefully we will all be able to keep our minds busy with the Xmas preparations and the next few weeks will go quickly!!

 

Keep positive everyone.  Xx

A

Member

Re: September 2016 starters

Thanks Gracie - chemo brain has got to me today (doesn't help with shopping) and face still as red as a beacon 😳 so could be a danger to motorists if I stand too near the kerb at a junction!🚦 It's a good job we live as far from the sea as you can get, because I'd probably be a hazard to shipping as well! 🚢 Took last of the steroids this afternoon so hopefully this will soon subside...
Member

Re: September 2016 starters

Well done, OldDawn. You should be feeling quite well by `Christmas. Forget about the surgery for the time being. 

 

Gracie xx

Member

Re: September 2016 starters

Afternoon all, my 6 cycles of chemotherapy are now done (hooray! 😁). I had the final T, Herceptin and Perjeta infusion today and am now back home and bracing myself for SEs (bah, humbug! 😬). I'll be going back to hospital tomorrow for Neulasta (bone marrow injection 💉) Then it's the final consultation with oncologist next Monday to review MRI results (he was encouraged by physical examination this morning), followed by meeting with surgeon next Friday (23 December, ho, ho, ho! 🎅) to plan surgery. I'll still be posting on the Chemotherapy Monthly Threads if there is anything useful I can share with others going through the same regime, but I will be moving mainly over to the Surgery Thread soon, as this will be the next stage of my BC journey. Hope everyone else is well and ready for Christmas. I'm sure we could all do with a bit of seasonal cheer🎄 but it's a bit early to wish you all a merry Christmas so I'll save that for next week! Meanwhile, hugs to all, especially those suffering from SEs. I hope that even so, you can see a light at the end of the tunnel (unless the fatigue train has got stuck in it 🚂 🚞, lol), because for most of us the end is now in sight, at least as far as the chemotherapy is concerned. XX 💜💛💚
Member

Re: September 2016 starters

Thanks for advice Vintage and Auntinanna. I have had a 'hospital bag' on standby since my last hospital admission back in October, but I'll need to have a sort through it again before I go in for the operation to make sure everything I need is still there.

Member

Re: September 2016 starters

When I went for my day surgery I took basic toiletries, pyjamas, clean underwear, slippers, ear plugs, phone charger and my kindle. Avoid taking jewellery or money (except for a small amount if you want, for newspapers or sweets) and I took one of those pocket sized containers of squash because hospital water needs all the help you can give it and you will be very thirsty and dry when you come round. You will be put into a hospital gown before your surgery and I only took mine off to get dressed to go home. Choose clothes carefully - you will be very stiff and sore and don't want to have to wriggle too much even though the nurses will help you to dress if you ask.
Member

Re: September 2016 starters

HI OldDawn63
I bought the top part of my pj's in afew sizes bigger. So it was easy to pull over my head and could stretch (on the side of my masectomy) , down without having to lift that arm up very much. Look for a strechy fabric.
I did have some movement even after the op. And I came home with my drain in after afew days. I could still have a shower because they used a waterproof dressing.
Other advice to anyone with cats. When I got home and was sitting on the sofa watching TV, I turned round to see my cat had spotted the drain tube sticking out the side and was about to start chewing it!!
Best to all about to have surgery xxx
V

Member

Re: September 2016 starters

Aine is right, I can't seem to find any suitable button front pyjamas anywhere. They're either too warm and fleecy, or have trousers that are too long for me and would be difficult to take up. The funny thing is, I remember seeing loads of them in the shops before, when I didn't want them! I'm thinking of getting some cheap blouses or crop top things instead, which I can wear with my existing pyjama bottoms.

Member

Re: September 2016 starters

Rosie - can't help you on timing of injections I'm afraid. For the pain, I am being given Paracetamol in the hospital before the T infusion, and am continuing to take them afterwards for the next few days as required. I was advised by the nurse that it is best to take the painkillers before the pain kicks in, as it is more effective at controlling it than taking them after the pain arrives. This has worked well for me so far, but as everyone is different, ALWAYS check with the nurse that it is appropriate for you before doing this. Also be careful to allow the minimum hours between doses of whatever painkillers you are taking, and not to exceed the maximum daily dose. Overdosing on Paracetamol is not recommended. Wishing you all a pain free cycle next time. XX

Member

Re: September 2016 starters

Truey- My tastebuds were getting better by about day 15 on my first T but I don't think they're reliable. I get my daughter to taste test my cooking to be sure. Having the next T on Monday so I'll be back to tasting metal again. Good job it's temporary as it puts me off eating!
Jo - I had day surgery too (lumpectomy plus 3 lymph nodes) and was surprised I could put my bra straight on afterwards. The thing I wish I had bought was a soft sleep bra as I found it difficult to get a comfortable position at night. I did prop my arm on a pillow and that helped. I wouldn't have liked PJs as I think it would have rubbed under the arm. The lymph nodes site was more sore than the breast.

Aine- good luck on Monday - I'm on the same track as you and due to have my final chemo 6 on Tuesday 3rd as the Monday is bank holiday. Not looking forward to the second T as I felt really rough for about 8 days, particularly with lower back pain and feeling as though I'd been run over by a bus while having terrible flu. After speaking to my oncologist I'm going to take codine (and plenty of laxative if needed) as soon as I start the injections to try to ward off the SEs. He also suggested that some people find it works better to do the injections just before going to bed. Anyone else any advice on this?

Good luck everyone- we're getting there.

Rosie xx
Member

Re: September 2016 starters

Bring ear-plugs!! hospitals can be very noisy at night - the staff in mine never stopped talking and it drove me mad.

Phone charger and headphones so you can watch stuff on your phone at night if you can't sleep.

 

Button front pyjamas - very hard to find though - over the head ones are too uncomfortable to pull on.

I noticed a lot of female patients didnt wear pyjamas but wore light track pants and loose tops or hoodies.  I brought 6 pairs of pyjamas for 5 days in hospital.  Only wore 4.

A zip up hoodie is more comfy than a bulky dressing gown.

body wipes to keep yourself feeling fresh.

lots of moisturiser - it can be a very dry atmosphere

 

A

Member

Re: September 2016 starters

Hi on day 20 of the first T cycle.  Just to say to you all that I had 2 weeks of fatigue and aches and pains along with diarrhoea days 10 to 14 (like a slurry spreader - some of you will understandSmiley Happy. I took paracetamol and it was bearable.  Nausea was still a problem.

 

However ....on day 15 a miracle happenned...the fatigue lifted, the nausea lifted and I have had 5 days of feeling like a normal human being again.   I haven't felt like this since the summer. 

 

So please be encouraged by this and hopefully some of you will have the same break as me.  I am now preparing for the second T on Monday.  In my mind this is the last one.  Cycle 6 on Jan 2 will be the final poisoning session and as far as I am concerned I will be on holiday from then on.  I don't care about SE's for that one because it will be the chemo over - think I will just drink Prosecco through those 3 weeks!

 

The LGFB last week was really enjoyable - make sure you all do one.

 

Good luck all of you and carpe diem

Member

Re: September 2016 starters

Also I bought some bra strap extensions from M&S to make the bra loose around my back for the first few weeks - they were a great idea.

Aine

Member

Re: September 2016 starters

So...surgery is booked for Jan 6th which means we can go to Munich for new year! (Booked before diagnosis!)
Lumpectomy plus skin removal with axillary clearance. I'll be having a drain in place for a week. Day surgery so home that evening . Depending on pathology results, no more chemo. I have an appt with breast care nurse to discuss everything surgery related but would really appreciate a list of what to take/wear & advice with what to expect.
Thanks in advance!
Jo xx
Member

Re: September 2016 starters

Truey, my taste disturbance was worse during the first 2 cycles, then didn't seem to last as long for 3rd & 4th. Certainly by day 11 I'd be just about over it but to be honest mine was more of a burnt mouth feeling. The Difflam mouthwash helped but I found brushing my teeth was more pleasant & just as effective. Also keeping food as soft as possible, drinking lots of water and sucking acid drops from the sweet shop!

Jo xx
Member

Re: September 2016 starters

Anyone know how long taste disturbance lasts during the T cycles? I'm on Day 11 and everything still tastes awful - on FEC my taste was resolving by now. I' m feeling very frustrated because I'm quite often hungry....

 

Sue