Aine, you have just described my last two weeks of cycle 3 on Docetaxcel. I am on Day 13 and have been much more dizzy, tired and nauseous than the first two cycles and I too eat Ritz crackers with Philadelphia light, but might just try the pate !
I take Dexamethasone 1 day before, the day of and the day after chemo. It makes me high and I get zero hours sleep on those days.
I have found the first 9/10 days of treatment really tough going with the remaining days good. I can’t wait to get cycle 4 out of the way and am really hoping the 4 cycles of FEC won’t be as bad. The worst thing for me is the 5 days of bone pain caused by the white cell booster injection. I didn’t manage it well on cycles 1 & 2 and decided I needed stronger pain killers, so they gave me pregabalin for cycle 3. It totally worked and I had no bone pain, however I was totally out of it for the 5 days, felt like I had drunk 2 or more bottles of wine each day, couldn’t walk straight and was slurring my words. The kids thought it was hilarious.
I too am a sociable person and all I want to do is stay in the house, rest and not see anyone. However, when someone does drag me out or I make an effort to go out somewhere, I feel so much better. I will be putting my feet up on Sunday night and watching I’m a Celebrity too, might just look away when they do the eating task.
Wishing you a good 3rd week ahead and best wishes for your next few cycles.
I have to add that these were supplied by my Californian sister in law's mother the lovely Shirley.
Shirley was 84 and still enjoying life in the USA.
She sadly passed away a few months ago but we have a great supply of jokes to remember her by.
I had to delete some of them - some were too rude!!!!
I am on 3rd cycle of FEC day12 and am just coming back to the land of the living.
That was really really tough - nausea and extreme fatigue and battling to keep the sickness at bay. I had to eat every 1 1/2 hours to keep it down but that didn't really work. Bad constipation, bloating, etc.
Still swear by the Heinz WW tomato soup. Also lettuce with vinaigrette dressing. And ice-cream.
Also I forgot to put the seabands back on one day after a shower and I do think that made me much worse for the rest of the day.
I also have sinus issues - not too bad but always aware of them - not too comfortable when you have to wear glasses though.
Rough gums appear around day 7 and disappear after a week.
I haven't had ulcers - I always use kitchen roll to dry my hands in the bathroom and kitchen, never share a towel - may be a help?
Start docetaxyl on 21st.
I am reading your posts with great interest.
I have to take Dexamethasone for 24 hours prior to this.. has anyone else done that?
I haven't had any nail problems but I am having a strange sensation now in them as if I am aware of them all the time. Anyone else?
I could stand any pain if I am not having nausea problems ....at least thats what I think now!
At least I'm a Celebrity starts on Sunday - that always entertains me so put your tootsies up ladies and have a laugh for the next few weeks!!
This is so tough isn't it? I can't look at myself in the mirror without a hat on...I dont look like a human being let alone a woman. I didn't realise how much our hair flatters us and how important is was to how I feel about my looks. Thank god I can wear a hat and not look odd in public. I feel for the ladies who had to endure this torture in warm weather.
I went to Tesco yesterday and was so dizzy I had to do half the shopping and go and sit in the car for a half hour and go back in again. I sat and stuffed myself with Ritz crackers and pate in the car and just tried to chill out!!
Usually I am a very sociable person but at the moment I dont want to talk to anyone - am happy to be on my own dozing on the sofa and generally not thinking. I can just about stick hubby! But not the rest of the family circle! And dont want to hear anyones problems! Anyone else?
Saw the oncologist today and following my admission to hospital with an infection last week and generally dreadful side effects, I've been changed from Taxotere to Taxol which is administered weekly and is said to be much better tolerated as it's given more frequently and in lower doses. The fact sheet I was given says it can make you feel tipsy as it has as much alcohol as a pint of beer in it!! It also means I don't need the Ondanstron (yippeee) as the constipation it caused along with my Crohns was causing havoc with my digestive system. My last dose will be 21st December if all goes to plan and then radiotherapy in January. Feeling much more positive now that my SE are likely to be more manageable and looking forward to a weekend of near normality (hope that's not tempting fate).
Hope others are getting good help with managing this awful period of the treatment.
Hi Old Dawn,
My digestive system is not coping well either. In terms of drinks ginger beer is good for me though I sometimes let it go flat if I'm troubled with bloating. Also I find fennel and detox tea are good for the digestion and taste acceptable.
I usually take immodium (at least three a day) because of my Crohns but stopped for the first 12 days of the T cycle because the effects of chemo and antibiotics were too much to bear. This strategy has resulted in a sore bum but that's less of a problem than constipation.
I have the same drug as you for persistent thrush.
I've had LOADS of colonoscopies in my time so if you need any advice, I'm happy to assist.
Been to doctor's and was reassured that there's no need to panic about bleeding when going to the loo (on closer inspection it appears that the blood is not actually in the poo) unless it persists for a fortnight or more (pity the doctor in the hospital wasn't clearer about what she meant by persist!). She agreed with hospital that it is probably due to irritation of bowel by all the medication I have been on The main suspect is the antibiotics, because it is listed as a side effect in the leaflet with them. Although I have had them before without it causing this problem, the doctor pointed out that I am now on a different combination of chemo drugs, and it may be that my body is less well able to tolerate the antibiotics with the T and Herceptin. Anyway, she has said to stop taking the antibiotics and all other medication apart from the Fluconazole (to prevent oral thrush) to allow things to settle down, but to go back if the problem is still there in a fortnight. She is also referring me for a colonoscopy to set my mind at rest. It is a non-urgent referral at the moment, but she will escalate it to urgent if I have to go back again in a fortnight. Have briefed oncology nurse, as if we still have a problem in a fortnight, the next chemo cycle will have to be postponed. We will have to wait and see what happens. I am unfortunately still having to dash to the loo about 10 minutes after eating something, so I hope it does settle down soon! Have been advised not to reach for lmmodium for the time being, as the fewer drugs my gut has to deal with the more chance it has to recover on its own. Let's hope so. Have also got the Difflam, and my mouth is a bit better today. I have also managed to keep eating today - advice about eating small amounts when you feel like it is sound if you can eat what you want when you want, and now I'm off the antibiotics I can. Chicken and sweetcorn soup I had for lunch was the first thing I can say I actually enjoyed eating since Saturday morning. The main problem is drinking, as there is very little I actually want to drink. At the moment I only seem able to tolerate water and black tea with milk. Does anyone else have this problem?
Hi Lisad and Old Dawn
Its sadly reassuring that you both seem to be feeling like me. However on day 9 it seemed to improve. My appetite came back and I managed a short walk. There is hope 😏
Like you I have also lost my appetite. Gone off sweet food and mainly try and eat little and often.
I still have two boxes of Thornton’s chocolates given to me last month for my birthday unopened- saves me putting on weight!
I seem to have developed hot sweats today - have not experienced these since when I was going through the menopause.
Very tearful and moody - I'm hating what this treatment is doing to me, It is like I am grieving for someone. Was never like this before
Ladies - the main thing I have found about toilet visits is to be prepared for every eventuality! For instance, the FEC gave quite a few of us constipation, and for some of us it took a while to resolve, but each of us found something that worked for us in the end. But from reading the posts of ladies further forward with their T cycles, it seems that Taxotere can cause the opposite, as well as making us wee a lot. I have noticed a number of posts about the 'Tax Trots' and I've actually experienced a bit of this myself today, though only a couple of times. Being on a combination of drugs it is a bit unpredictable as to which way things will go for me, and I wouldn't be surprised if it changes across the cycle. So it's probably a good idea to have in stock some laxatives and Immodium as well as the Tena Lady pads just incase!
Ru - I also had my first T cycle on Tuesday and was dreading it. I'm afraid it's way too early to tell how it is going to affect me, and because these drugs affect everybody differently, there really is no way of knowing exactly how the T will affect you, although being aware of the most common SEs through this forum, and the advice your oncology team should be able to give you, will help you prepare for the worst. However, if you are having the T in combination with Herceptin (like me), it may not be easy to establish which of them has caused some of the SEs as both can cause similar effects (hot flushes for example). The bone marrow injections can also cause bone pain, although I did not experience any significant pain from these during my FEC cycles. It's now Day 5 of my first cycle of Taxotere, Herceptin and Pertumazab, and the main SEs I have had so far are: hot flushes (occasional), red puffy face (not all the time, comes and goes), slight swelling of lower legs, some bladder control issues (but not severe), some aches and pains in my knees, hips and lower back (currently controlled by painkillers), heartburn/ indigestion (trying to control with Rennies), slightly sore mouth (trying to control through regular rinsing with Corsodyl and salt solution and Bonjela), and fatigue/ 'chemo brain' (probably the worst things). I was warned about the bone pain and was given Paracetamol on the day of the treatment, just before I was given the Taxotere, and was advised to take a couple of them four times a day rather than waiting for the pain to appear, as it is more effective at controlling the pain if you take them in advance. I was also advised that I could take Ibuprofen instead, but to be careful, as you can't take as many of these in a day as you can Paracetamol. It is early days but so far the Paracetamol has been sufficient for me. If the pain gets worse I will ask for something stronger and if more severe SEs appear I will seek further help. I don't know whether this helps you but let's hope your SEs are not too bad and you can control them using simple remedies like I am managing to do at the moment. If not, the best advice I can offer is not to suffer in silence. If nothing you have to hand works, contact your oncology nurse for further assistance, or if you are feeling very unwell and you are worried (particularly if you feel shaky, feverish or confused), get yourself straight to A&E.
Hi Sweetbriar and Ru,
Sweetbriar your experience of T seems rather like mine except that the hospital also diagnosed me with a chest infection (inpatient for 24 hours) so I wasn't able to get out and about. I didn't get out of the house till day 9 and I seem to have done too much walking (to the pharmacy for meds including something for thrush brought on by the antibiotics) and didn't surface till 11.30 today. I did a shorter walk this afternoon!
Ru, I'm afraid I don't have any tips other than what's already on this thread and to be sure you keep your team informed of any side effects that concern you. My blood pressure has been pretty low on T which has made me feel dizzy (but this may have related to the alleged chest infection I had)
Good luck all xx
No, it's definitely not just you. I got up a few times again last night so there's obviously still a bladder control issue going on. 😛 Was using up some old STs l had left over from my pre-menopausal days, but have now bought some Tena Lady, just incase!
So what's the deal with this dizziness?
Had cycle 3 TC on Tuesday, started g-csf injections again last night (😣) and today I feel utterly useless! I'm usually fairly game by now. I know recovery gets longer the further in you get but...!!!
Very frustrating. Has anybody had anaemia? I dont know when I'm supposed to know if I've got it! Temp is normal. Not breathless, just imitating a wet rag today.
Ugh...and I wanted to bake today!
Reassuring ladies that it's not just me who is expericing bladder control problems - hate that fact that I have to wear something at night for emergency dash - Not nice
Yippee. I managed a shower and a passing thought for how I might look today 😜 BP is back up and temp seems fairly stable. Just the normal SE to cope with. Hope you all have a manageable weekend xxx
I had the bladder control issue on FEC-T round one - good job I was wearing pyjamas!! Prepared for it this time with Tena Lady - but no issues so far - but have been made familiar with the necessary dash - oh the joys!!
Hi Lisa - I've also had a few issues with bladder control at night while on FEC, although I put it down to the extra fluids. I never had any 'accidents' at home, but I did once or twice while in hospital, probably because it was further to go to get to the loo. Since the sodium deficiency episodes I haven't been drinking quite so much, and I have also moved on to T now, and it doesn't seem as bad at the moment. But it's probably too soon to tell.
yes I had that problem on FEC. At present I'm sleeping so much that drinking a lot isn't a problem!
good luck xx
Anyone else sufferting from a bad cold?? I don't usually suffer but I have had my worst cold ever, four days on it seems to be getting better, but not nice, my nose was a running tap
Does anyone else suffer from bladder control at night? I seem to go through a period between sessions where I appear to have no bladder control at night and only just make it to the bathroom? Yesterday evening I really did not have much fluid and yet I was up 3 times on a emgerency dash
I'm not looking forward to hormonal therapy after 'active' treatment either. My cancer is ER+ as well as HER2+ so I will be expected to endure 5-10 years of this as well as 12 months of Herceptin injections. I'm post-menopausal so will be on some form of AI rather than tamoxifen. I am aware that some ladies are quite badly affected by SEs from these drugs (and not just hot flushes). I know it's some way off, but I can't help feeling apprehensive about the future, when it's as though the treatment and the anxiety will never end. This sort of thing may account in part for Madmac22's feeling of anti-climax, that and the fact that she is now shifting to a new phase. If you can, it's best to try and focus on each stage of the treatment at a time rather than looking too far ahead. Regarding hot flushes, I have never been on HRT and wasn't affected unduly by hot flushes while going through it, so I am hoping that things won't be too bad. From what the nurse said the other day it is a job to tell whether my hot flushes are due to the Herceptin or the Taxotere.
I also had to stop HRT. That was back in June and the day sweats seem to have calmed down. It could be because I have no hair so it doesn't affect me as much. The night sweats are either a weird change in my hormones (god help me when it gets to hormone therapy); the taxotere or a result of what the hospital say is chest infection (I'm breathless, tired and dizzy but don't have a cough / cold)