Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Sorry utube not iTunes xx
Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Aneebel and Ellie’s mum 👍👍great you are both responding to casa nhs and 🤞🤞🤞home today for you both. For eyebrows go for a powder and stencil and stiff brush there is a girl on iTunes that does a good tutorial video and you can buy the stuff off amazon dirt cheap 👍👍for eyelashes nip into a boots (most of the girls in the counters in there and Debenhams do the Lgfb days) so if you ask them to show you how to give illusion of lashes they will happily show you (you use feather like strokes of a pencil very close to the lash line) its amazing how good it works rather than just drawing a thick line on you do a softer line ❤️❤️❤️ And my darling amazing ladies you are still there when you look in the mirror, this does not strip away the beautiful amazing strong ladies you all are, it tries to but you just go 🥊🥊🥊🥊🥊jog on 🥊🥊🥊🥊🥊🥊our threads 💪💪💪💪💪and 👭👭👭👭and we’ll get through. 💕💕💕✨✨✨to you all Shi xx
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Yay, Aneeebel! I’m so pleased you’re feeling better.💕👍 I’m feeling so much better too. Those IV antibiotics seem to have done the trick (or maybe it was the morphine 🙈)... Way ahead of you here - I’ve already asked if I can go home! 😂 “Not yet” was the reply I received, but it looks like they will let me go home today once they’ve gotten a few more bags of IV antibiotics into me.

Good work making it to Scotland, Fiona. 🎄Glad to hear that your nieces have been accepting of your new look. My eyelashes and eyebrows are also on the way out and I, for one, am terrible at applying make up. 🤷‍♀️ I went on a Look Good Feel Better course a few weeks ago and, while it was helpful and I definitely recommend going, it wasn’t quite what I expected. I couldn’t really see what was being demonstrated and I was left to my own devices to figure out what I was supposed to be doing. Everyone was very friendly, and the bag of goodies was nice, but it wasn’t very hands-on. I needed some full-on intervention! 🤣 They do have lots of online tutorials and videos and there are also make up counters at some stores (Boots?) that can give you some personal assistance. I got a few tips at the course, but have actually found the online resources more helpful. Good luck with it!🤞

Badboob, reddi, shi, Sar_ah, thank you all for thinking of me! Your positive energy has clearly done the trick as I feel so much better. 🥰💪

I hope everyone gets lots of rest and enjoys the festive period. Xox 🎅🎄🎁⛄️💪💕
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

[ Edited ]

Good Morning Ladies... Hope you're all well! I actually feel a lot better this morning... Is it too early to be discharged do you think???? We need to get the show on the road...
😂😂😂 🎀🎀
Shi, Thankyou for your thinking about me 😘
I'm not on FEC, I'm on TCH and Pertuzumab... I've still actually got some very fine hair left on my head although, it does seem to be getting finer! I'm quite impressed it's lasted this long!

ElliesMum...hope you're feeling a bit better this morning 🎀🎀


💜Fiona, Thankyou for thinking of me, hope you have a fab time in Scotland! And yes, I agree, kids are very resilient! 🎀🎀

Badboob... You're allowed to rant! 🎀🎀

Reddi and Sa_rah..i...Thankyou to you too for thinking of me 🎀🎀

Have a fabulous day everyone... Stay strong!
🎅🏼🎄🎅🏼🎄🎅🏼🎄🎅🏼🎄🎅🏼

Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Good morning ladies

Aneeebel and ElliesMum, I hope your enforced stays at Casa NHS are doing the trick and you're both starting to feel better. We're all thinking of you and sending lots of love and hugs 🤗🤗 You can do this and we're all here for you.

I've noticed that I've started to lose my eyelashes and have just read Shi's comment which says T finishes them off 😣 I'm not looking forward to that. I've just about accepted the person looking back at me in the mirror but fear this next bit with the eyelashes and brows. I think it's because it makes a person look like a cancer patient (I hesitated over the word victim but to me that's a negative thought) and I don't want people to look at me and pity me. This is hard enough emotionally and physically without having to deal with other people's emotions. I've booked onto a Look Good Feel Better workshop but that's not until Feb, after my last (🤞🏻) T. So I'll probably end up looking like a clown in the interim🤡 (I've never been brilliant at make up).

We arrived safely in Scotland and my sister and nieces turned up in the afternoon. After an initial stare at me (I was wearing a headscarf) they soon realised it was still me. The eldest, who's 8, was a bit more wary but once I gave her a hug and told her I'm still aunty Fi she was fine. My sister wanted to see my bald head but I had to make sure the eldest was ok to see it and she was. It's hard to know how children will react isn't it? And this niece in particular is very wary of illness so I didn't want to upset her at all. But kids seem to be resilient 😁

So today they're coming over again (I had to have a rest at some stage yesterday, the noise was incredible) and will be opening their presents from us 🎁🎁🎄🎄.

Take care lovely ladies 🤞🏻you're all well and resting up. 💪💪🤗🤗
💜Fiona xxx
Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Aneebel 😘😘 it’s hard to know what’s what during chemo, your temp is up and down like a yo, yo, you have se’s To contend with, botty troubled, back up on the fec and 🌪🌪🌪arse on t (well some of us did last year) you are hairless too if you’ve not cold capped and then the t will finish if any remaining eyebrows and lashes, but your head hair does start to come back on the t, so crazy as it sounds something positive eh 👍rest up and let them pump you full of whatever to get that temp under control and you home safely 😘😘Ellie’smum, 🤞🤞🤞your temps behaving and you have managed to get home ❤️❤️❤️Badboob, think all of us had at least one 🤬🤬🤬moment like that on the journey, you are sat their 🧣 wrapped round your face to keep any germs away, hot and sweaty from the meds and chemo and you get mucked about a bit and even the most calm rational person in the world can go into hang on a minute mode you should be looking after me a bit better please. Right then those in hospital the thread will be having a group 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻At 10pm (nip to the loo and join in) extra bonus points if you get up and do it at the side of the bed 😁😁😁Tune on Chemo jukebox will be dancing queen by ABBA 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻See you tomorrow n the dance floor ladies 💕💕💕✨✨✨✨Shi xx
Member
Posts: 330
Registered: ‎29-06-2018

Re: October 2018 Chemo starters

@Aneeebel and @ElliesMum I am so sorry you're both in Casa NHS, but at the same time I am very glad you are -- they will keep a good eye on you! Fingers crossed that you're both back with your families very, very soon. Doing it Shi-style!: 💪💞👍💐🙌⛄... 🐀 (That last one for the creature most definitely not stirring in your rooms, thus ensuring good nights of 💤)
Member
Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

Ahhh! There you are Aneeebel! Sorry you too are at Hotel NHS, I hope you get sorted soon. I suppose we should all be thankful we aren’t at Gatwick!!

 

xx

Member
Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

Oh goodness Elliesmum, I feel really guilty about my rant! At least I am well enough to have a meltdown if you see what I mean.... You poor thing being in Hotel NHS. What a nightmare so close to Christmas! I do hope you get better and can join the in laws! At least you have a jolly good excuse to get out of the washing up,

 

And Anneebel, you are very quiet, I hope everything is ok........I think we are all just a little concerned about you. 

 

We are off off to my sisters in the New Forest. I haven’t seen her since September so it will nice to be looked after for a few days.

 

Hugs to all

Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hiiiìiii Ladies

Thank you for thinking of me...much appreciated! 😘🌷
I've been quite unwell for the last few days... 😷
I rang the Helpline this morning as my temperature had gone up yet again! I'm being admitted to hospital....I'm sat waiting for a bed as I type! 😫😫
I've been suitably reprimanded for not calling earlier in the week!
(I know I should have done!!! I'm just too clever for my own good!!)🙄🙄

ElliesMum... glad you're feeling marginally better! Hopefully you'll have a nice sleep tonight! 😴

Take care everyone... stay strong! 💪💪🎄🎄🎅🏻🎅🏻

💗💪💗💪💗💪💗
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

What a debacle, Badboob! I’m sorry you had such a bad experience having to wait around for so long for a simple blood test. These things are super frustrating when they come on top of everything else we’re dealing with. Good to hear that your back passage issues are easing and the colonoscopy is no longer necessary. We need to celebrate the little victories!👍

Fiona, I totally agree that this message forum has been so supportive and helpful. Thank you, wonderful October ladies, for helping me get through this. It makes such a difference having people who understand what it feels like and are going through the same 💩!

Kateday, I’ve found T a bit tougher than FEC so far, but I know that some people find it easier. Mentally it was a bit challenging for me, as the side effects didn’t hit me immediately and I felt progressively worse for a few days before starting to feel better. Now that I know what to expect, I think the next cycle will be mentally easier for me to deal with.

I’m in hospital as I write this, as I ended up spiking a fever overnight and felt really terrible. They couldn’t get my temperature down below 38, despite several hours of IV fluids, antibiotics and paracetamol. So I’ve been admitted and will have to stay overnight. Sigh. While it is very inconvenient, in some ways I’m pleased as I really felt so awful this morning and I’m finally starting to feel a bit more human. We were supposed to be driving up to Lancashire tonight to spend Christmas with my in-laws. They have offered to take our little girl tonight and then I will go up once I’m discharged. It was so lovely of them to offer to look after her for the night. I will try to make the most of my enforced stay in Casa NHS and catch up on some sleep. Love to all, and I hope that you all have a magical Christmas! Xox 🎁🎄💕😘⛄️
Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Aneebel ❤️❤️❤️😘😘hope you are ok darling 😘😘we’ve got you 👭👭👭👭👭💕💕💕✨✨✨✨Shi xx
Member
Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

[ Edited ]

Hello everyone, hope everyone is ok and trying to get though this poopy poop. Had my 4th Docetaxel, Herceptin and Perjeta on Tuesday and it only took 4 hours! 

 

Thank you reddi for your words, very encouraging for us all as we struggle along this chemo road. I can see a little chunk of light now I am more than half way, but a change to EC in the new year will bring new worries and fears.

 

i am amazed but how low my emotional state is, I am normally more strong and stable, but I am definitely now in the weak and wobbly camp. Had a complete meltdown yesterday, I had been called to the hospital (again) to get the results of my dna/gemone trial I’m on. It’s the one that been in the press a lot recently. So for a 9.45 appointment, I battle though the commuter traffic and arrive at the hospital at 9.30. At 10.30 I ask were I am in the queue. Told to wait another 10 minutes and they will let me know. At 10.45 I ask again, I’ m next! At 11.00 I get called to see the scientist. No apology for delay. She says various things which are rather obvious, such as, I have breast cancer and it’s HER2+!!! Then says I’m not BRAC1 or 2. But as I am the only person in the family with BC this is hardly a surprise. She then said that I might be CHEC2 which is a new gene they have identified and want to study but my bloods were inconclusive so would I do another blood test and then come back and see the genetic team who are looking for people to study with this gene. So at 11.15 I am out and take a ticket for a blood test and realise that there are 13 people in front of me. After another half an hour, I start to lose it and go and complain to the poor receptionists. At this point I have a full blown meltdown, mainly  because I had a lunch date booked with friends at 12.00 but this is in a town over an hour away and it’s now 11.45! they manage to bump me up the line for bloods and get me to fill in a complaint form. I was surprised how emotional I was about this. It’s so unlike the real me, but this stuff does really mess you up in many ways.

 

Needless to say I didn’t make lunch and was wasted for the rest of the day so still have loads to do today and still feel rubbish! Ahhhhhhhh!!! 

 

The good old news is that there is an improvement in the bottom department and my oncologist cancelled my colonoscopy, thank goodness as I don’t think I would have coped! 

 

Hugs to all

 

Member
Posts: 160
Registered: ‎08-09-2018

Re: October 2018 Chemo starters

Good morning ladies
Just having a little catch up
My third EC at reduced dose was much more tolerable , yes still felt erm poop but only for a week and not so bad , I still have one more EC to go then move to four T
How are you all finding the change over I am preying the side effects are not as bad x
Member
Posts: 330
Registered: ‎29-06-2018

Re: October 2018 Chemo starters

I'm sharing because others shared with us, back in June (and July and August... and November). Happy to add another link to the chain. Or I should say, add a hand to Shi's bungee cord! Smiley Very Happy

 

In fact, I ought to have also noted that I also learned to better accept care and support from others -- from people on the forum as well as the folks at hospital. A super important life lesson that I learned a bit late. Still able to learn new tricks!

 

p.s. @Aneeebel, another voice here nudging you to call with a temp of 38C. The risks associated with an infection during chemo are just too serious, and a fever is one of the few clues that something serious might be going on. Maybe not, but better to let someone check. Please call. Stay safe. Heart

Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Morning Ladies

You lovely ladies make my day every day. I find this Forum so encouraging and at the same time emotional.

I was starting to get concerned about T after your experiences this week but now I'm starting to feel a bit better. Each day done is one day closer to the end of this phase of our lives. The one thing I'm looking forward to when I start T is that my wee won't be orange any more for those first few days after FEC😁

I managed to get back into town this morning to return a few things (I'm in denial about my size 🤔) and managed to pick up a couple more tops 😲 I seem to live in joggers and hoodies these days and feel worse mentally because of it. So I decided I needed to brighten and smarten up a bit. It helps that my head seems to have a spattering more of hair these days, it definitely seems to be growing 👍🏻There are still plenty of gaps but at least it looks like I've got some sort of covering 😁

I've got a list of jobs to do today before we head north to Scotland to my parents to be looked after for a few days, ready for the first T on the 28th 🤞🏻
So I think I might put some Abba on and get the housework done 😁💃 Have a great day, stay safe and warm 🤗🤗💪💪👭
💜Fiona xxx
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Like Sar_ah, I found your comments really encouraging, reddi. Thank you!

I’m slowly starting to feel a bit more human, Sar_ah, which is a relief. I too am incredibly stubborn and strong-willed 🙈... I’m terrible at “relaxing” and doing nothing, which isn’t terribly helpful at the moment. I miss doing proper exercise and my endorphin high!🤦‍♀️ However, I’m in a much better frame of mind now that I am starting to recover from the worst of the tax side effects. We can do this! 💪💕👊

Please take care, Aneeebel! As Shi suggests, best to call a temperature in and have it be nothing than risk something nasty taking hold.

Love to you all! 🎄🎁💐xox
Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Reddi that’s really positive to hear, thank you for sharing 💕 it’s certainly made me feel more positive and reminded me everyday will get a bit easier Smiley Happy I personally think I’m just a very stubborn person!
Aneeebel how are feeling today?
ellliesmum, have are today also? Hope your starting to get some energy back, I’m finding that it’s here very very slowly!
Fiona love the shopping for a new wardrobe idea! I feel like I live in the same clothes at the moment and looking like a hamster 🐹🤣 enjoy the rest and putting your feet up Smiley Happy)
Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Aneebel, please phone your rapid response darling, keep safe on taking chances please 😘😘💕💕✨✨✨Shi xx
Member
Posts: 330
Registered: ‎29-06-2018

Re: October 2018 Chemo starters

Hi, October starters! I'm from June 2018, and wanted to empathize with and encourage you through those experiencing the terrible T. I too found it hit me harder, and a few days later, than FEC -- fatigue greater, but worse were the aches and pains, which sometimes felt debilitating -- for me, mostly my shoulders/back, thighs, and esophagus. My last two cycles (I had four cycles of T, because of getting HER2 antibodies, too), I was practically laid up in bed for 1.5 to 2 days in week 1. However, I rebounded by about the end of that first week, and was back to doing country walks of 5 to 10 miles by week 3, before starting the whirligig again. 

 

The "listen to your body" mantra is important, though. I suspect that some of you are like me and try to overdo it, in an attempt to maintain some "normalcy". (Just a guess based on your posts, strong ladies!) Keep an eye on things -- the combo of weakened immune system and stress delivered a case of (suspected) shingles and a couple weeks on antivirals, on top of everything else. After my final cycle, I also got blisters on my feet from just my usual sort of mile-long daily walk -- a known docetaxel side effect, which felt odd to first encounter so late in treatment.

 

By 3.5 weeks from last infusion, I was still a bit achey and less than 100% stamina, but I'd recovered enough for surgery and my hair has grown to a thick fuzz. All of which has helped me say farewell to chemo. And according to my post-chemo MRI, the T and HER2 antibodies were super-effective for me. Just as important, over those 5 months or so, I learned how strong and resilient I am, how I am able to accept and give myself room on my low and bum days as well as on my good ones, and to take care of myself, to make sure I stay safe.

 

So in the end, I don't remember the pain and aches and limitations and other awful side effects, except as something I recorded in my journal on a particular day -- I remember the good stuff, and I'm thankful for the results. And I found sharing here -- smiling and laughing and crying and venting through it all with my chemo-mates and those who had travelled this road before us -- helped make that possible. 💖