22-12-2018 10:49 AM
22-12-2018 08:41 AM
22-12-2018 07:53 AM - edited 22-12-2018 09:53 AM
Good Morning Ladies... Hope you're all well! I actually feel a lot better this morning... Is it too early to be discharged do you think???? We need to get the show on the road...
Shi, Thankyou for your thinking about me 😘
I'm not on FEC, I'm on TCH and Pertuzumab... I've still actually got some very fine hair left on my head although, it does seem to be getting finer! I'm quite impressed it's lasted this long!
ElliesMum...hope you're feeling a bit better this morning 🎀🎀
💜Fiona, Thankyou for thinking of me, hope you have a fab time in Scotland! And yes, I agree, kids are very resilient! 🎀🎀
Badboob... You're allowed to rant! 🎀🎀
Reddi and Sa_rah..i...Thankyou to you too for thinking of me 🎀🎀
Have a fabulous day everyone... Stay strong!
22-12-2018 06:22 AM
21-12-2018 07:32 PM
21-12-2018 02:57 PM
21-12-2018 02:47 PM
Oh goodness Elliesmum, I feel really guilty about my rant! At least I am well enough to have a meltdown if you see what I mean.... You poor thing being in Hotel NHS. What a nightmare so close to Christmas! I do hope you get better and can join the in laws! At least you have a jolly good excuse to get out of the washing up,
And Anneebel, you are very quiet, I hope everything is ok........I think we are all just a little concerned about you.
We are off off to my sisters in the New Forest. I haven’t seen her since September so it will nice to be looked after for a few days.
Hugs to all
21-12-2018 02:37 PM
21-12-2018 12:35 PM
21-12-2018 08:15 AM - edited 21-12-2018 08:18 AM
Hello everyone, hope everyone is ok and trying to get though this poopy poop. Had my 4th Docetaxel, Herceptin and Perjeta on Tuesday and it only took 4 hours!
Thank you reddi for your words, very encouraging for us all as we struggle along this chemo road. I can see a little chunk of light now I am more than half way, but a change to EC in the new year will bring new worries and fears.
i am amazed but how low my emotional state is, I am normally more strong and stable, but I am definitely now in the weak and wobbly camp. Had a complete meltdown yesterday, I had been called to the hospital (again) to get the results of my dna/gemone trial I’m on. It’s the one that been in the press a lot recently. So for a 9.45 appointment, I battle though the commuter traffic and arrive at the hospital at 9.30. At 10.30 I ask were I am in the queue. Told to wait another 10 minutes and they will let me know. At 10.45 I ask again, I’ m next! At 11.00 I get called to see the scientist. No apology for delay. She says various things which are rather obvious, such as, I have breast cancer and it’s HER2+!!! Then says I’m not BRAC1 or 2. But as I am the only person in the family with BC this is hardly a surprise. She then said that I might be CHEC2 which is a new gene they have identified and want to study but my bloods were inconclusive so would I do another blood test and then come back and see the genetic team who are looking for people to study with this gene. So at 11.15 I am out and take a ticket for a blood test and realise that there are 13 people in front of me. After another half an hour, I start to lose it and go and complain to the poor receptionists. At this point I have a full blown meltdown, mainly because I had a lunch date booked with friends at 12.00 but this is in a town over an hour away and it’s now 11.45! they manage to bump me up the line for bloods and get me to fill in a complaint form. I was surprised how emotional I was about this. It’s so unlike the real me, but this stuff does really mess you up in many ways.
Needless to say I didn’t make lunch and was wasted for the rest of the day so still have loads to do today and still feel rubbish! Ahhhhhhhh!!!
The good old news is that there is an improvement in the bottom department and my oncologist cancelled my colonoscopy, thank goodness as I don’t think I would have coped!
Hugs to all
21-12-2018 04:26 AM
20-12-2018 11:06 AM
I'm sharing because others shared with us, back in June (and July and August... and November). Happy to add another link to the chain. Or I should say, add a hand to Shi's bungee cord!
In fact, I ought to have also noted that I also learned to better accept care and support from others -- from people on the forum as well as the folks at hospital. A super important life lesson that I learned a bit late. Still able to learn new tricks!
p.s. @Aneeebel, another voice here nudging you to call with a temp of 38C. The risks associated with an infection during chemo are just too serious, and a fever is one of the few clues that something serious might be going on. Maybe not, but better to let someone check. Please call. Stay safe.
20-12-2018 11:06 AM
20-12-2018 09:52 AM
20-12-2018 06:53 AM
19-12-2018 05:56 PM
Hi, October starters! I'm from June 2018, and wanted to empathize with and encourage you through those experiencing the terrible T. I too found it hit me harder, and a few days later, than FEC -- fatigue greater, but worse were the aches and pains, which sometimes felt debilitating -- for me, mostly my shoulders/back, thighs, and esophagus. My last two cycles (I had four cycles of T, because of getting HER2 antibodies, too), I was practically laid up in bed for 1.5 to 2 days in week 1. However, I rebounded by about the end of that first week, and was back to doing country walks of 5 to 10 miles by week 3, before starting the whirligig again.
The "listen to your body" mantra is important, though. I suspect that some of you are like me and try to overdo it, in an attempt to maintain some "normalcy". (Just a guess based on your posts, strong ladies!) Keep an eye on things -- the combo of weakened immune system and stress delivered a case of (suspected) shingles and a couple weeks on antivirals, on top of everything else. After my final cycle, I also got blisters on my feet from just my usual sort of mile-long daily walk -- a known docetaxel side effect, which felt odd to first encounter so late in treatment.
By 3.5 weeks from last infusion, I was still a bit achey and less than 100% stamina, but I'd recovered enough for surgery and my hair has grown to a thick fuzz. All of which has helped me say farewell to chemo. And according to my post-chemo MRI, the T and HER2 antibodies were super-effective for me. Just as important, over those 5 months or so, I learned how strong and resilient I am, how I am able to accept and give myself room on my low and bum days as well as on my good ones, and to take care of myself, to make sure I stay safe.
So in the end, I don't remember the pain and aches and limitations and other awful side effects, except as something I recorded in my journal on a particular day -- I remember the good stuff, and I'm thankful for the results. And I found sharing here -- smiling and laughing and crying and venting through it all with my chemo-mates and those who had travelled this road before us -- helped make that possible. 💖