I am from the February group, but was interested in your post as I started on Letrozole 12 days ago too. I am not noticing any side effects at the moment. I started on FEC in February but had neutopenic sepsis and was really ill. So decided with my oncologist to stop doing chemo. I have had a mastectomy with reconstruction and lymph node clearance (just 2 nodes positive). As you can imagine deciding to stop chemo was worrying it I did not think I would have survived another cycle.
It's a strange feeling now I feel a bit alone as no input from BC nurse or Dr's not that I wanted that in the first place. But it becomes a bit of a safety net.
I am going to a moving on course on Monday to see if that will help me feel more confident in my health and getting on with my life
I would be really interested in how you feel at this point in your journey.
Fab news about your wound Fiona... Maybe it's settling down!
I must say...you seem very calm about an open wound, I'd be back to the hospital for them to sort it out! 🎀👙
I didn't know you get tablets for the bone thing (the name escapes me!) -I was told I'll go in every 6 months for a drip which takes 15 minutes! 🤕
I know what you mean about 'feeling lost'...I was half waiting for a 'but' after my surgeon told us the results... he was probably wondering why I wasn't jumping up and down with excitement!! 💪🏼
I did chuckle though...because he was trying to help me back into my gown after he'd checked his handiwork but he couldn't find the sleeve...I said Oh, you can tell you're not used to this...the nurse said No, he's more used to taking them off!!! He just said Yes, I know! Hahaaa... 😂🎀
My hospital seem to be on the ball to be honest... I've even received an appointment for a 'prosthesis fitting' -I have to wear a well fitting bra apparently...how the heck do I get a 'well fitting bra' for one boob!!! Answers on a post card.... 😂👙🙄
I'm waiting very impatiently for my hubby to take me to Sainsburys...hence, the ramblings! Only another 2+1/2 weeks and I'll be driving myself to Sainsburys!! Yippee!!! 🚙🚗
Gosh ladies, I've been busy working while you're all rambling on in the nicest possible way but I do love it, you make me laugh, smile and cry all at the same time 🤣😂
I'm on tablets every day rather than an infusion. I have to take them 30 mins before food or drink first thing in the morning then sit or stand for 30 mins to ensure it goes down properly 😲
It's surprising how different policies seem to be in our respective hospitals. I felt a little lost yesterday after my appt. I didn't expect to see the surgeon but rather the registrar so I was thrown by that but he just seemed to tell me the results then that was it. I'm being referred back to oncology for rads but that's all I know. Oh and mammograms every year for 5 years. I've no idea about any other scans. I had bone, ct and mri scans before chemo and mri after but that's it. It sounds like we need to be at Badboob's hospital, they seem really on the ball, and they give your boob a cod liver oil tablet 😉
My wound didn't leak last night 👍🏻and I'm keeping a close eye on it today 🔍I've even progressed to a post surgery bra today rather than the Charlie Dimmock look I've adopted over the last week 😉
ElliesMum, I think we all want your family, your mum for baking, your daughter because she's just adorable and your MIL for her supervisory no nonsense skills 😂 We've changed our garden to a low maintenance one but I still need help and advice 🤔 And Aneeebel, your lottie time sounds perfect 🤗 I get my peaceful moments when I'm out walking the hills around Matlock 😚
I'm being hassled by my hubby to get on with some work again, he's such a meanie 😠
Have a great day today ladies, enjoy the sunshine 🌞 I need to do some arm stretches so I'll put the washing out 👍🏻
Aneeebel is right! Call your BCN re Echocardiogram. I had to have another prior to restarting Herceptin last week. I was amused that my heart function has actually improved! 🤣! Must be the weight loss or drugs! 🤪.My hospital has already booked me in for two further echos. Sounds like it’s slipped though the net! It a full time job this cancer nonsense 😂😂. I am seeing my oncologist on the 8th April after I’ve had my results from the breast surgeon. They run a duel clinic which definitely helps with appointments.
No apologies for long posts! I do love a bit of a ramble myself 😂😘🥴.
ElliesMum...why don't you ring your BCN for advice about the echo and follow on procedure...
When I was diagnosed I had an MRI, Bone Scan, Echocardiogram and CT scan...Ive also had another Echo shortly after my last chemo and as you're on Herceptin you should have an Echo every 3 months!
It might put your mind at rest if you had clarification!
I'm seeing my Oncologist next week so I'm going to compile a list of questions...🤔
Tell your MIL she's welcome to come to my lottie... I'm a very good supervisor!! 😂😂
Have a lovely day x
Haha Badboob and Aneeebel, you would be very wise to enlist the services of my gardener. He’s great! Our garden was a total shambles before he started working on it a year or so ago. My mother in law demanded that we get a gardener as my hubby and I both work full time and are totally useless (no green thumbs here). The mother in law now comes over to our place during the day when the gardener is here to boss him around. 🙈 I could send her along with the gardener, to ensure that he does as he’s told! 😂 (To be fair to my MIL, she is a lovey person and very thoughtful - she just has strong opinions... no wonder I have a fiercely independent toddler!)
Fiona, excellent news that chemo and surgery have achieved the desired result. Woohoo! 🥳 How is your wound? Please do follow Shi’s advice and go back to your unit if it isn’t resolved. I’m thinking of you and sending good wishes your way! Fluid dramas aside, I hope that you’re all recovering and that each day you feel a little better than the day before. Be kind to yourselves! 💕💐😘
I’m really pleased to be back at work and back into a routine, but I do feel a tiny bit abandoned... The last time I saw my oncologist was just before my last chemo session and I had rads at a different hospital. I’m supposed to be having echos (still have 14 herceptin injections to go), but seem to have fallen through the cracks somewhere. I asked the nurse at the unit about being seen again/needing an echo and she assured me I’d get a letter at some point with an appointment date... so not sure what to do. 🤔I had surgery first, and only had one positive node (out of 3 taken), HER2+ and ER/PR-, but didn’t get clear margins. No one has mentioned what follow-up treatment will involve, aside from herceptin. Not had any scans since diagnosis. Was this discussed with your oncologist? Maybe I should call the unit and ask for a follow-up appointment? It’s so hard to know what is “normal” practice with this whole situation!?!
Apologies for the essay above! I promise my next message will be more succinct 😂. Have a lovely day in this gorgeous sunshine! Xox 💐 ☀️
Badboob...my dentist said if i did need any teeth taking out she would refer me to a specialist..but as it stands my peggys look ok so I'll be starting the infusions at some point! I see my oncologist next week!
I've started my Letrozole...dont seem to have any side effects but I've only had 12 up to now! Fingers crossed.... (I'm well known for my side effects to meds!)
With regards to the lymph nodes...now we've had them removed...our bodies have to learn how to disperse the build up of fluid.. My physiotherapist said I have to stroke my painful arm with different textures as I have to teach my brain that this is my arm...as the nerves have been damaged the connection is lost! It's quite an ingenious thing the body isn't it! 💪🏼💪🏼💗💗
I'm not particularly down...but it's just so frustrating not being able to do much but it's for my own good... And when I can faffed about at the lottie the other day I was in agony!!!! So I have to do as I'm told!!! I'm under strict instructions from my daughter's! 💗
Good idea to borrow ElliesMums gardener...send him over here when he's finished yours! 😂🌻🌲🌳
Morning ladies 🌞 from another lovely sunny spring morning. Doesn’t it make a difference to see some bright sunshine! 😁😎
Congratulations Fiona on your results 🎉🎉. I am really humbled by the fact they took so many nodes! No wonder your poor system is struggling to cope. I feel a bit of a fraud with my 2! Don’t worry about having Bisphosphonate. I had my first infusion with chemo 2. My oncologist insisted I spoke to my dentist before as they are worried about teeth extraction during treatment. My dentist was useless, refusing to give me any advice but in the end I decided that the risk was worth it. Being HER2+ bones secondaries are common! You will have a DEXA scan to measure your bone density (easy peesey) and calcium tablets to take daily. The only other side effect has been flu like symptoms for about 24 hours after wards. A bit alarming during chemo but I was warned so just went to bed with a couple of paracetamol. There is an excellent information sheet published by Macmillan if you need more information, search zoledronic acid.
Aneeebel, I am sorry you are feeling down🤕 it’s frustrating that this treatment is seemingly never ending. I am starting to get annoyed with well mean friends who are now saying, ‘oh you have now finished your treatment’ er NO! I have results to come ( and as we know there are NO guarantees that they will be clear! ) then radiotherapy, plus Herceptin for a year ( and zometa) then Letrozole for 10 years! Quite apart from the fact I have no hair, a wonky boob and my nails are falling off! 🤬 Your Lottie will be fine and I am delighted that you can sit and have a brew admiring your patch. I love my little space and it is frustrating that so much needs doing and we just can’t do much at the moment! Perhaps Elliesmum’s gardener could pop round for a bit and give us a hand😉.
ElliesMum, look after yourself, gosh it must be extra hard with a busy job and little one to look after. But on the other hand it must be wonderful to have some normal routine back into your life. I can’t wait to get back to all the things I use to do. 😁👍
Sarah, I hope life is treating you kindly as well.💐🌻
Morning Girls... 🌻🌹🌼
How are you doing Fiona? Hopefully you've had a good night...and your wound is behaving! Did anyone give you any indication as to when it may heal itself or are you going back to the hospital? 🤕🎀
ElliesMum...I think it may be an anticlimax if everyone came to meet at my lottie...it's only a bit of ground in the middle of a field but we've worked hard on it...it was a complete tip when we took it on last year! It looks fabulous now in comparison...🍋🍊🍓🍅
It's saved my sanity over the last few months, during chemo etc...it's close enough to walk there so I've spent many hours 'pottering about' and sitting in the fresh air having a picnic and a brew! I'm very posh you know...I have a camping stove and a whistling kettle!! 😂☕️🍪🔥
Badboob...how are you getting on? 🤕🎀
How are you getting on Sar_ah? 🎀🌼
Have a lovely day Ladies, Thankyou for caring xx 😘💪🏼💗
Just catching up now. Fi 👍❤️That’s brilliant news darling on results, might not seem it to you but it’s great news 👍👍on this weeping wound, get yourself to your unit tomorrow and please get yourself seen again, don’t try and battle through ❤️❤️Don’t worry about making a fuss over what they might think is nothing, you make a fuss over everything, you are important. Aneebel you are good for lots of things 😁😁bringing sunshine and smiles to here and sharing your Lottie tales which make us all wish we were as green fingered as you 😘😘you’ll be back out there soon ❤️❤️You just need to look after you first a bit and then you can look forward to being back out there soon and the weather will be better by then too 💕💕✨✨Shi xx
Yay... What wonderful news Fiona! I bet you were so pleased with your results!! I'm very pleased for you!! 💪🏼🎀😘💗
You just need to sort out your arm pit now! You would have thought there would be some glue somewhere in the hospital!!!!
(I will be on bisphosponate infusions too!)
I hope you manage to get some rest and your arm isn't too painful! 🎀
ElliesMum...fingers crossed you get a good nights sleep too! 😴💤
Hope you're well Badboob! 🎀 And you too Sar_ah! 🎀
Im tired today...my 'chest' is quite tight but I'm sure things will improve soon...it takes it out of you having a mastectomy! 🙄😳🤕😥
Thank you for your kind thoughts ladies, you don't know how much it means 😚
My appt was with the surgeon today. He took 13 lymph nodes, of which 6 had been affected by cancer. Chemo had cured 3 of those. And the removal means no cancer in the lymph nodes now. Breast clear too 👍🏻😁
I'm on bisphosphonates now for 3 years to reduce risk of recurrence in bones. I'm a bit disappointed about that because it had never been mentioned before. But on the plus side if it means my risk is reduced then it's ok.
However, the armpit is still weeping. I got thrown today because it was the surgeon and not the registrar I've seen before so any questions flew out of my mind. I have more dressings etc and was told to phone at any time if I'm worried. I think the surgeon was going to glue my wound but they didn't have any as it had all been thrown away recently due to lack of use 😲 Surely it will stop leaking soon? I feel like an old woman who keeps peeing herself 😭😲
So Aneeebel, it looks like I can't apply for the post of crop planter just yet. I'm happy to apply for the post of chief crop taster though 😂 And don't put yourself down, you are if use, to your family and to us here 😚
Thank you again ladies for your support, it really does help 🎀🎀🎀😗
How did you get on today, Fiona? Thinking of you and Josephine! 💕💐😘
Aneeebel, I feel like we all have an emotional connection to your lottie now. If we manage to arrange to meet up (as Shi suggested), we should try to meet at your lottie!!! I have never done any gardening - I have to admit, we employ a gardener at our home 🙈 - but I am willing to be told what to do! 😂
Hoping you’re feeling ok, Aneeebel and Badboob. Sar_ah, almost there with the rads! Is your skin holding up ok?
I’m super tired but otherwise feeling well. Early night for me tonight! Xox
Hope you got on okay at your follow up appointment Fiona... and they sorted out the wound in your arm pit! 🎀🌷
I'm not much use at my lottie either Badboob... in fact, I'm not much use anywhere!!! 🙄🙄🙄🙄
Just a quickie to wish you luck today with your follow up appointment, Fiona. Hope Josephine is on the mend. Will be thinking of you🤞😘.
I would love to come and help with your Lottie Aneeebel, but not sure I would be much use at the moment. 😂😂🥴Our first baby bunnies have appeared in the garden. They love to nibble everything and haven’t leant yet what’s good to eat and what’s not, little blighters, where’s next doors cat when you want it! Grrrrrrah! 😡🤬🐰🐰.
Hi Ladies 🎀
How are you doing Fiona? Is your wound still ouzing? I hope you can get someone to look at it for you.. I'm still shocked they just left it dripping! Unbelievable! 🌷
Hope you're doing okay Badboob! How are you feeling? 🎀
How's work ElliesMum? And your little Duckling? 🐥
Sar_ah... you're rads sessions are going down now! How are you finding it? 🎀
I went to my physio appt... she was pleased with my progress! Has "'tweaked" my exercises slightly but I've got to carry on pretty much as I have been...virtually doing nothing...and go back again in 3 weeks! If my wound is sufficiently healed she will start massaging it and show me how to do it too!💪🏻🎀
I'll have to recruit staff to plant my crops at the lottie...would anybody like to apply!! 🥕🍓🍅
Have a lovely day Ladies 😘🎀🌻 x
Wow Fiona hope your ok, sounds like your being given a right run around, you always sounds so positive! I hope the team offer you some solution and you got some rest today after your night x
Hi Fi, sorry to hear you’ve had this happen. I know it’s probably not in your nature but kick off about this, speak to pals and don’t get fobbed off. You need to be super careful, please ask about washing with hibiscrub (my surgeon made me wash in this before and after). If something doesn’t feel right then get to your unit, sod them if they don’t do turn up’s you need seeing and they have a duty of care. No one knows your body better than you. ❤️❤️To everyone 💕💕✨✨Shi xx
Thank you Ladies.
No plan as such, just a great big pad over it. No steristrips or anything else. It's still weeping each time I move my arm too much. I'll see how I get on tonight and then ask tomorrow. It's obviously just my turn for drama 😉
I'll keep you posted 🤗
Fiona, if it continues to leak you could ask your unit for a small ostomy bag. I had one of these put over the opening in my scar temporarily to catch the fluid as it oozed out 🙈... Sounds revolting but it worked really well! As Aneeebel says, I hope your team come up with proper solution (or at least a plan) for you tomorrow. Good luck, and keep us posted!🤞xox
Goodness me... how bizarre that nobody wanted to do anything yet yesterday they wouldn't drain it because of the risk of infection...now they seem happy to leave the wound open!!!
What happens now Fiona? Is someone going to put steristrips or any thing on it?
Glad you're home! 🌻🌼🌷
Lovely ladies, you really are the best 🤗
I'm fine thank you. Got home about 10.45. A&E wouldn't do anything "you need to see your specialist team, especially as there is no infection, we'll just stick a dressing on" 😠 So I'm kicked out off a&e at 7ish, walk round to the main hospital, phone the breast care team and leave a message. Turn up there at 8.45 (they don't do drop in appts so weren't too chuffed), explained the situation and was eventually seen at 10. They take the dressing off, it's still leaking like a tap, drain 100 ml off (I've no idea how much ended up in the bed and shower prior to all this 🤔) and its still trickling out from the original hole 😲 Anyway, I now have lots of padding, gauze, dressings, boob tubes and a bed liner to hopefully get me through today at least 😉 Still, if it's trickling out at least it's not filling up again 😂
I'm fine, a bit annoyed I didn't insist yesterday on being seen to but you live and learn. I don't know what's normal in these circumstances so just soldiered on. I'll know better next time 😉
Oh no, I’m so sorry to hear that Fiona!!! I hope your team can get things sorted for you as soon as possible. Big hugs! Xox
Oh no Fiona! How awful and frightening for you. 😱I do hope the Breast care team can sort you out! It just shows that your instincts were correct yesterday that all was not well. 🤕 Sending positive vides and some flowers. 💐💐🌻👍😘😘
Lets us know how you get on.
I hope you're all well today? 🎀
A restless night for me and guess where I am? Yes, hospital. I woke up at 4.30 in what I thought was a pool of sweat but hubby thought better and had a look and its my wound leaking 😲. So we call 111 who tell us to go to a&e. We go to a&e, eventually get seen, get told it's best to see the breast care team, have a new dressing put on (by this stage my football has now reduced to a large marble) and are told we can go. So we're now waiting for breast care to open as it wasn't worth going home to come back in an hour or so. Oh the joys 🤔 Fortunately there's no sign of infection but it's still leaking 😲
Sar_ah, the days are ticking down to the end of rads, keep positive 👍🏻
Thank you for all your advice, it's encouraging to know that it's not just me 😉
Big hugs to all 🤗🎀🤗🎀
Have a great day.
Thankyou for your kind thoughts Ladies... Yes, it's fabulous news! (I actually wanted to cry!!!)
I did have half an idea I might have a 'small sherry' to celebrate but fell asleep on the sofa after all the excitement and now I can't be bothered! Ha! 🍾🍸🍾🍸🍾🍸🍾
Badboob...how lovely that you're doing well...🎀 And nice for you to have a catch up with your friends hubby! 💙 (Poor squinty! 👙)
-just for info, I was advised not to scrub the glue off, it'll come away naturally, although I don't know exactly where the glue is on you of course! Make sure you rest! (Says she!!) 💐
Fiona, the edge of my wound that goes into my back is quite tight today...but nowhere near the size of a football! I'm guessing the main of mine drained into my drain bags as some days there was a lot in them and, to be honest, my 'bits' were more comfortable with the drains in as no fluid build up! (I had them in for 13 days so they drained a lot over that period! 🤕) Hope you feel more comfortable soon! 🌻
Hope me you're not too tired with work ElliesMum! 🌷
Sar_ah...wow, only 9 more rads! That's gone quick! 🌸
Thanks again for your lovely thoughts and concern... It means a lot! 😘🎀 x
Evening all so lovely to hear from all 💕
aneeebel what wonderful news from the surgeon! I bet you feel on top of the world )
badboob sounds like a very emotional day, how lovely that he was so pleased to see you (maybe not so lovely for squirty though!)
Glad you had a lovely time in New York Elliesmum, it’s magically isn’t it!
I have nothing exciting to report here, 9 rad sessions left after tomorrow that’s about it.
have a lovely evening all xx
Yay Aneeebel, so good to hear that the many difficulties you encountered throughout chemo and the challenges of dealing with a mastectomy was worth it!!! 🍾💃🥳🥰👍💕 I’m so pleased that the surgeon got it all and that your lymph nodes were clear. Woohoo! Take things easy at the lottie, and good luck with the physio tomorrow!
Great to hear from you, Sar_ah! New York was fab and my little one had a great time, thank you for thinking of me. 🤗 🐥
Badboob, good to hear you’re ok - and that Squinty survived the hug!🙈😂 Sounds like you had a lovely catch up.
Fiona, I’m sorry to hear that the accumulated fluid is giving you ongoing issues. It sounds super frustrating! Has your BCN seen the wound/area in the last few days? If not, perhaps insist on being seen tomorrow morning. I was told that the swelling/fluid would go down, and so didn’t worry about it (wasn’t painful for me, just a bit tight, as I had no feeling in the area). By the time I started to get worried it was too late and the scar burst open... not good! I was also told off for not calling the BCN sooner!?! 🤷♀️ So if it’s really worrying you, I would call first thing in the morning and insist on being seen. I really hope they can do something for you tomorrow, instead of having to wait for Thursday. 🤞💕
Aneeebel, i am so pleased for you, that really is fantastic news 🍾🍾🍾💃💃💃 You've done fantastically well to beat this, I'm so proud of you.
Thanks for your info 're fluid build up. Mine has kept me off work today. It's feels like I've got a football in my armpit ready to burst and really is quite uncomfortable now. I'm assuming you're only getting a small amount of fluid build up now? I'm not quite sure how I'm going to last until Thursday pm 😭 And hubby is getting another cold 😷
Good to hear you're doing well Badboob and not suffering any side effects 👍🏻
Apologies for moaning a lot but it's really getting to me now 😣
Take care ladies and big hugs to all 🤗🎀🤗🎀
Great news Aneeebel! 💐🎉 I bet you are relieved and the news that your mx was the right op for you and that evil bastard has been banished. 😁 You now just have to relax and get better! Trying to take it easy is NOT easy is it! I think we are all so used to being busy that being ill is hard!.
Fiona I hope your fluid build up is not too uncomfortable, it must be aright pain. At least the boss will let you have another sticky if you want it.
And Elliesmum don’t over do it at work you! I am sorry that your mum has had to go. It must be hard having her so far away. Do you have plans to visit her soon?
Sarah, how lovely to hear from you, you must let us know how you are getting on.
Squinty is doing nicely, now a mixture of yellow bruise and blue dye, plus underneath the red antiseptic stuff I have found a large strip of glue ( it was all over my arm as well) I have decided to leave it for now in the hope it just disappears. Finally, I saw the husband of my friend who passed away at Christmas today, he was so pleased to see me that he gave me a huge hug. Poor squinty thought she was about to burst! And of course I jumped a mile! He was so apologetic and then burst into tears which set me off! What a pair! But it was lovely to see him out and about so we had a good catch up over lunch.
Hi Ladies 🌞
Fiona...I am still getting fluid building up around my wound! I haven't had any of it drained off since I had my drains out! The end of my wound that goes onto my back does feel quite swollen today but the nurse didnt seem worried about it...said it will disperse naturally!
I had fabulous news from my surgeon -my main tumour had shrunk quite significantly when my breast tissue was examined but I also still had bits of cancer "dotted about in my breast" which would grow into new tumours...so chemo had worked but the mx "Had finished the job off"... 19 lymph nodes were removed but no trace of cancer in any of them so chemo had killed the cancer off in my nodes...so, mastectomy was the best surgery in my case! 💪🏻🎀
He was pleased with his "handiwork" 👙.. my wound is healing well... 😊
Next stage will be radiotherapy(I see my oncologist next week!)...🎀🎀
(Sorry for my long winded post! 🙄 🎀)
Hope you're all well! 🌻
Morning ladies, Apologies for being absent for the past week, I don’t know where the time is going!!!
I hope you’re all well!? Sorry I haven’t read thought the message yet! But it’s been on my mind that I haven’t been following how you all are properly let alone replying so just wanted to stick my head in!
Elliesmum how was New York! What did your little girl make of it all?
Hiw are you ladies recovering post surgery?
Oh ElliesMum, your little duckling is such a sweetie. I think we all need shares in her 🐥
How's squinty today Badboob?
Aneeebel, are you still having fluid collect? Are you having it drained off at all? I'm just interested to know if mine will eventually calm down. It feels enormous again but the bcn yesterday was adamant they wouldn't do anything because it's not been a week since the first drain. I did try the pillow trick in bed which helped quite a bit actually 😉 I've got the pain in the arm too which you're right, is nerve damage. It feels really weird sometimes doesn't it?
I'm working from home today 😉and hopefully hubby will finish early so that he can make me a sling and we can then go for a walk 🚶♀️
Good luck with your appt today Aneeebel 🤞🏻🎀
Have a lovely day ladies 🎀🎀🎀
Awwww, ElliesMum, you'll miss your Mum but how lovely that you had her over for a while! I can just imagine your little Duckling looking for her Nanna... bless her cotton socks! 💖🐥
I don't feel too bad at the moment, my wound is quite tight by the time evening comes and the surface of the skin on my arm is so painful..
Yes, I've got my appt with my surgeon on Tues, physio on Wed...so physio will tell me a bit more with regards to what I can do movement wise!
(Sorry, you will know that!🤗)
Thank you for asking... 💖
Have a nice evening Girls 💖
I hope you got some rest this afternoon too, Fiona.🤞It’s sounds really hard balancing the need for draining fluid with minimising infection risk. I really hope Josephine and your seroma settle down for you!
Alas, Aneeebel, my Mum went home on Friday. 😢 It was so lovely having her here. My little duckling spent the weekend looking for her Nanna everywhere! 🙈 Aside from missing her bestie, my little one is really well. We just need to get her sleeping through the night again... 😂
Fiona, I suspect you may be right; I keep forgetting to drink enough water now that chemo is over and I’m less focused on staying hydrated. I’ll try to up my water intake... I figure it can’t hurt!
How are you feeling, Aneeebel? Are you seeing the surgeon and the physio this week? How’s squinty, Badboob? Are you ok, Sar_ah?
It was a gorgeous afternoon here. I only made it to 4pm at work, but was rewarded with a glorious journey home. 🥰💐💕 xox
Hopefully you managed to get home early and go for a walk Fiona...🚶♀️🚶♂️
From what I've read they dont like to drain the fluid very often...or not at all if they can help it! Which would be very uncomfortable if you've got 350 mls like you had!! It's strange how different hospitals approach things so differently isn't it! I had 400 mls one day but luckily it was in my drain bag!
Hope you're doing well Badboob 🎀🌻
ElliesMum...hope work hasn't been too tiring for you...And you're arm is holding out! 💪🎀
How's your Duckling? 🐥🐣 Is your Mum still here? 💖
Have a lovely evening 🤗🎀💖
I hope you're all well.
Thank you for asking, Aneeebel, I'm ok but this seroma business is becoming a right pain. I spoke to the breast care team this morning but they really don't want to do anything until Thursday when I'm in for my follow up, due to the risk of infection etc. I can understand that but I look and feel like a monster at the moment and not the adorable one from Monsters Inc 😣
Oh ElliesMum, that doesn't sound too nice about the after effects of rads. I wonder if flying and dehydration has exacerbated the issue? I guess all you can do is keep moisturising 😉
Badboob, how's Squinty today? I hope she's doing ok 😉
Work is a bit slow today so I might have to tell hubby to take me home and then maybe we can slope off for a walk in the sunshine 🌞 Sometimes there are perks with being married to the boss 😂
Take care ladies 🎀🎀
What a glorious day.... 🌞🌞🌞🌞
How are you and Josephine today Fiona? Hope the swelling under your arm isn't too painful! 👙🎀
Badboob...how do you feel? Hope you're getting plenty of rest! 😴🎀
ElliesMum...hope your armpit isn't too painful! 💖🎀
Sar_ah....are your rads finished now? 🤔🎀
Have a good day Ladies x 🎀🌻
It sounds as though you’re all doing well after your respective surgeries, Aneeebel, Fiona and Badboob. Excellent work keeping up with the exercises! 🏋️♀️
Haha I like that your husband gets to leave work early too so that you don’t get too tired, Fiona. You should put him to work waiting on you when you get home! 😂
I must admit, the radiotherapy burns under my arm (where my lymph node removal scar is) are very sore today... 🙈 I’ll need to be a bit more careful the next few days and increase the moisturising regime. Hopefully it doesn’t break down any further. Off to bed now. Need a decent sleep before work tomorrow!!! 👍
Love and hugs to you all 😘💕💐 xox
Fab news that you seem to be doing well Badboob! And Squinty is behaving herself too...bet you're relieved! 🎀👙🌸
Its quite difficult to move around in bed isn't it...I have a small pillow under my legs to stop myself rolling over onto my bad side! I also have a little heart shaped cushion that I hold against my side...as my wound goes right across my chest to my back and I'm scared of my hubby leaning against it! When I came home from hospital I built a barricade between us, similar to the Berlin Wall...but I'm not quite as bad as that now! 👙
I have dissolvable stitches inside and glue on the outside...no dressings either! 🤕
It's so frustrating not being able to do anything...(if I'm honest, I haven't got the energy to do much! My surgery seems to taken it out of me!)
Who wants to put my crops in at the lottie... 🍇🍓🍅🍉
I have my follow up appointment with my surgeon this week 🤕 And one with physio! 💪🏼
Good news that yr not too bad Fiona, hope Josephine is okay! 🎀
Hope you're well ElliesMum and Sar_ah 🎀
Glad to hear Squinty is doing well and that you're ok, Badboob 👍🏻 Moving in bed is a bit awkward, isn't it? My armpit area has filled up with fluid already so sleeping is hit and miss. But my bcn said they only like to drain the wound once a week due to the risk of infection. I've got to wait until Thursday when I have my follow up appt . It's more awkward than anything else and at least there's not as much fluid in there this time.
I know how you feel about having a shower again. I too had that beached whale feeling 🐋. If it wasn't for the fluid I'd have pretty good movement in that arm, the exercises are working well. Perhaps you'll be ok Badboob as you've not had the ANC 🤞🏻 When is your follow up?
What a gorgeous day it is here 🌞. Hubby is out doing his man thing and chopping wood up 😉 while I take it easy and just potter. What a life 🤗. Work tomorrow so another early start as hubby is my chauffeur for a couple of weeks 👮♂️🚘 It's a good job I work for him 🤣 At least he gets to finish early as he claims I'm tired and need to go home 😲😴
Hoping everyone's having a great weekend 🤗🎀🤗🎀
Morning everyone, I hope we are all doing well this lovely spring morning.
I am feeling so much better! Squinty is behaving herself and I even braved a shower this morning rather than a bath. I have no stitches, steri strips or dressings over the wound only glue, which is a bit alarming, but I wrapped her in cling film and went for it. She looked like a piece of chicken that’s gone off! DH had to scrub my back yesterday as I am covered in that red antiseptic stuff. He had to help me out of the bath as I resembled a beached whale. Not very elegant!
Sorry to hear that Josephine needed attention, Fiona, I will watch out for that as it sounds nasty. I am so grateful that they didn’t need to cut me under my arm. I am sure it’s really helping as I am finding the exercises ok plus I don’t need so much pain relief. I feel for you Aneeebel with your op it must be very hard to manage. How are you getting on moving around in bed? That’s something I’m find the most difficult!
Well I will think of Elliesmum off to work tomorrow morning 😂😂 and presumably Aneeebel and Fiona will soon have your follow up appointments soon. So fingers crossed! 🤞.
Enjoy the sunshine, Hugs
Elliesmum...how lovely of your colleagues to throw you a welcome back "party".. 🍾🍾🍾
Fiona... I bet you feel much better after having all that fluid drained off... what a good job you went! Josephine will be pleased! 👙
You're allowed to brag about your scars... (better than crying...like Yours Truly! 💔)
I bet its a relief for you! It's fab news! 💪💪💪
How are you feeling Badboob? 🎀
How are you Sar_ah? 🎀
I've just been to my lottie but I'm not allowed to do anything...can't lift anything heavier than 2 cups of water until I've been to the physio next week! Not even with my good arm because it pulls on your chest!!! 🙄
The areas around my wound and my arm are quite tight... my surgeon did say my arm would feel funny but I don't know if it's meant to feel this bloody funny! 😳
Have a good day Ladies, thinking of you all! 🎀🌻😘
Hi ElliesMum, yes my bcn drained it, over 350 ml 😲 No wonder i was in quite a bit of pain 😉 It was a 5 minute job. Hopefully it'll not be too bad when I go back next Thursday for my follow up but she said they'd drain it again then . And now I can move my arm and I don't look like some mish mash of a person 😂 She also took my steristrips off so I can now have a good look at my scars, although my armpit one has a plaster on where the bcn was today. I've got 2 scars just above my nipple and once they've faded I don't think it'll be noticeable at all. I hope that doesn't sound like I'm bragging when some of you have had mx. I'm just amazed that surgeons are so good these days.
How are you getting on at work?
Badboob, I hope you're doing well.
Aneeebel, how are you? Off to the lottie this weekend?
Sar_ah, another week done, not long now to the end of rads 👍🏻
Big hugs to you all 🤗🎀🤗🎀
What's that saying, be careful what you wish for? I'm off to see the breast care nurse this morning as I appear to have an awful lot of fluid collecting in the armpit and around Josephine 😣 it's making life quite difficult, I'm walking lopsided and holding my arm out so heaven only knows what I must look like 😂 Oh well, I'm still laughing which is a good thing.
I hope the rest of you lovely ladies are all fine and dandy today 🤗🎀🤗🎀
Yay Badboob, so pleased to hear that you’re back home and feeling ok. Less pleased to hear about the delays before your surgery. You must have been starving and super thirsty!?! I think I would have fainted before 7pm 🤣 so well done you! Be warned - your skin will be blue/green from the dye for months to come (mine still hasn’t fully faded, and surgery was back in August for me).
Haha the comments about firemen coming to the rescue keeps reminding me of the “Fireman Sam” theme song. 🙈 Anyhow, I hope that none of us need rescuing! Good work keeping up the exercises. 💪
Yay, everyone has finished both chemo and surgery now. Woohoo! 🥳💐👍 Excellent news. I know that it may not be the case for everyone - perhaps I was lucky - but radiotherapy was a walk in the park compared with chemo and surgery. The toughest parts are over! 👊 💃 😁 We’re all made of tough stuff! 😘
I survived my first proper day back at work. My fabulous research group had a cake and champagne to welcome me back. They’re so lovely!!! 🍾 Not one person I encountered commented on my hair (or, rather, lack of hair 😂). So I managed to avoid any awkward conversations. It probably helped that the undergrads are all away (we’re between terms). It will have a chance to grow a bit longer - and hopefully look more like a hair “style” rather than stubble - by the time I have to give lectures/tutorials again. Good news! I did only make it to 4pm (on the train home now), but I’m pleased with that. Onwards and upwards. 💪🤗💕
I hope you all keep improving post-surgery. Let us know how your arms recover, Fiona and Aneeebel. Fingers crossed the swelling/tightness subsides over the next few days. Love to you all! Xox 😘💐❤️
Blimey Badboob...what a day! I bet you're relieved it's over!! Poor Squinty! 😳🤕🎀😂👙
How do you feel in yourself? Keep topped up with the pain killers! I had my lymph nodes cleared through my mx wound too so I don't have a cut in my arm pit!! 💪🏼
How are you feeling Fiona? How's Josephine? 👙 I think I prefer the 'alternative arm exercises too!! 🍷🍷 I might even force a bottle of beer down tonight! 🍺
I have seen a single fireman all day...they're obviously far too busy to come an rescue me and my big girl pants!!! I'm not sure what else could be more important!! 👙🙄
My drain sites seem okay, thanks Fiona...
Hope you had a good day at work ElliesMum 💪🏼🎀
Take it easy Fiona and Badboob 💪🏼🎀
How are you Sar_ah? 💪🏼🎀
Have a lovely evening x 🌸🌼
Oh Fiona, no plastic cups for me! I had a great big wound dressing covering the whole thing! Im only pleased I was out cold when they ripped it off! 😜🥺
Oh and the other bit of good news is that they only made one incision, so no cuts in my arm pit! No wonder I’m sore with all that rooting about they must have done🤕
Back at work Elliesmum! Gosh it must be lovely to do normal things again, even if it’s work. I am also looking forward to hearing more about your New York trip.
I too have started the exercises, no sign of the firemen yet, but give it time........perhaps they are still busy with Aneeebel!