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October 2018 Chemo starters

Community Champion

Re: October 2018 Chemo starters

Thanks Shi! I’ve sent you my email address. Happy for Fiona to know it too. Xox 😘

Community Champion

Re: October 2018 Chemo starters

Absolutely Shi, no problem at all with any of the Oct ladies knowing my email address. No point doing it twice.

💜Fiona xxx

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

ElliesMum please pm me your email address, I’m happy to forward to you, Fi, please let me know if I can copy you both on same email to save me sending twice. Thanks 💕💕✨✨Shi xx

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi Fi, sent you pm. 💕💕✨✨Shi xx

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

No can’t do the link, sorry x

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi Fi, please speak to Macmillan about moving forward course, it might help. Also when you are derby pop to Macmillan and see if the 4 free sessions with Eaac spirit and soul equine therapy is still available. Lady who runs it is a tnbc survivor herself and it’s wonderfully healing, helpful, empowering in a non clinical environment. There are plenty of tnbc survivors out there, Shannon Doherty (USA actress) Patricia prijatel, robin roberts, Joan lunden. I’ll have a go at putting link in, but I’m useless at it so it probably won’t work. Ellie’s mum great news 👍👍anneebel, that’s pants, tell them the others don’t suit you and that one is best for you, than go and plant some sweet peas on the Lottie so you can enjoy their beautiful flowers and scent soon 😘💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Hi Everyone 🎀💗

 

Have a fabulous 2nd Honeymoon Badboob...and Happy Anniversary to you both 👰🏼🎩💋💗

I was okay on the Letrozole for the first 4 weeks...then the pharmacy gave me a different brand and now I've developed very achy bones

 

ElliesMum...fab news that you didn't have to wait for the results from your CT, I'm so pleased everything was clear! 😘 Please let us know what your oncologists says about being 'High risk of recurrence/mets'...that's something else for you to worry about!!! I've never heard that either! 

Have a lovely w/e with your in-laws! Your little 🐥 will have fun! 

I checked with the physiotherapist about 'getting my shoulder moving'...she said the only exercises I should be doing are the ones I'm already doing and she was pleased with my movement! Still no heavy lifting for another few weeks. She couldn't massage my wound as it still hasn't healed sufficiently.

 

Fiona...Good news that DD is down to a bubble... 💪🏼🎀 I'm sure you do feel like rads is taking forever, although, like the others have said at least your body will have healed

I got my prosthesis today...it even feels like a boob 👙

 

Hope you're well Sar_ah 💗🎀

 

My hair is growing ElliesMum...not quite long enough for a pony tail but it's definitely coming back

 

Fiona...I don't know anyone who would make use of the scarves unfortunately  

 

Have a lovely evening Girls x 👙💗🎀🌸

 

Community Champion

Re: October 2018 Chemo starters

Thanks Fiona! 😘💕😘

 

Regarding the herceptin, it’s 18 doses in total, supposedly every 3 weeks. Aneeebel had it throughout her chemo but I only had it alongside the T part of chemo (and have had two cycles delayed since finishing as I was unwell). I’m one toenail down but otherwise ok. 🤞 Please do report back on how well the nail product you purchased works! Not sure how good summer footwear will look with missing nails... 🙈

 

Excellent news on the hair front. Woohoo! 👍How is your coming along, Aneeebel, Badboob and Sarah? I have tiny little eyelashes coming through too, which is very exciting! 🤗 I don’t know the answer to your chemo headwear question, but I would be very interested if others have a suggestion. I too have lots of scarves and hats I could pass on to someone starting their chemo (as opposed to donating them to a charity shop, which was my default plan). What a lovely idea! 💕💐😊

Community Champion

Re: October 2018 Chemo starters

Here's a question for you Ladies. Does anyone know if there's a recycling scheme for scarves and headwear at all? I've found a company who accept wigs and then sell them cheap so I've donated 1 wig already. I've got stacks of headscarves I'm never going to wear (hubby thinks I look like a fortune teller😲) and would rather someone in the same position benefited instead of sending them to a charity shop. I'll speak to Macmillan and see if they know but just wondered if any of you knew of some sort of scheme. 

They're taking up space and I don't really need them now 😉👵

🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

What a relief ElliesMum, that the news was good. I'm so relieved to hear it that it made me cry 🤗 so heaven only knows how you must feel. I've found my eyesight seems to be worse since chemo but I'm trying to convince myself it's just my age 😉. I'm fed up of chemo ruining everything so thought of another excuse instead 😉

And thank you Shi and ElliesMum, I know you're right, my body needs time to repair itself after all this leakage, but I just want it over and done with. Half of this delay isn't my body, it's because I chose to go to a different hospital so transferring oncologist etc etc. 

Why do they think you're at a high risk of recurrence/Mets? I think you ought to put a call in to your oncologist. What an awful thing to say to you with no qualification as to why. My surgeon said the risk of recurrence is greater in the first 2 years and then gradually lessens. I suppose now though the risk is higher because we've already had it? How many Herceptin injections do you have to have?

When do we become cancer survivors rather than patients? I feel there's always going to be that cloud hanging over me, that fear of it returning. I'm interested in reading that article Shi, perhaps you could put a link on this thread? I'll pm you my email address later though just in case! 

Aneeebel, good luck for your fitting today 🤞🏻💪 Be strong. I can't imagine what you must be going through, all I know is you are an incredible woman, as all you lovely October ladies are 😍🤗🎀

Off to work now for a couple of hours then it's holiday mode for me 😎

How's everyone's nails? I've now lost 2 toenails with a third on the way. I've bought some treatment from Live Better With which is supposed to help, not cheap at £20 but if it helps ... it's called Evaux Evonail. I'll let you know how I get on. My hair is growing loads, I can honestly say it's a full head now, and eyelashes and brows are well on the way 👵

Enjoy your Thursday, ladies.

🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

It must feel like big delay before you start rads, Fiona, but it may be for the best anyway. I agree with Shi; we all move at our own pace! I was supposed to start chemo weeks before I ended up starting... it kept being delayed as my wound wouldn’t heal. My drain site wouldn’t stop leaking fluid! The oncologist refused to start chemo with an open (albeit tiny!) wound, so I was sent back to the surgeon for the drain site to be stitched up. It was only after the mini stitch-up that the wound became infected, with pus eventually bursting through my mastectomy wound 🤮 and requiring me to have more surgery to remove the implant and clear out as much of the infected area as possible. All the while, I was freaking out as I was told I needed to start chemo ASAP. Anyway, what I’m trying to say is that some wounds take more time to heal. So starting rads a bit later might give your breast and underarm a chance to fully recover from the surgery. The silver lining for me is that the delay meant chemo didn’t start until October, so I got to “meet” you fabulous ladies on this thread!!! 💕💐😘

 

Yesterday was a busy day for me! I had a prosthesis fitting (thank you to Shi and Aneeebel for mentioning this - my BCN had forgotten about me but arranged a fitting quite quickly once I chased it up). Really pleased with it! 👍 I then had my 5th herceptin injection. I’ve had so many herceptin delays that I’m a long way behind you two, Aneeebel and Badboob. 🤷‍♀️ Oh well. Then the best part of my day, the head nurse in the oncology unit spoke with me about my CT scan results. So glad she squeezed me in, as I wasn’t due to see my oncologist until the 29th. Anyhow, the scan was clear. No sign of brain mets. Yay! Not that I thought it was very likely, but good to know definitively! 🤗💕 I’ve been told to get my eyes checked out, as chemo can cause vision issues and that might be what is giving me constant headaches. As an aside, the nurse mentioned that they were concerned as I am deemed to be at high risk of recurrence/mets!?! No one had said this to me before! Has anyone else been told that? I plan to ask my oncologist about it.

 

Shi, do you happen to remember if the research you found also considered the benefits of hormone treatment for HER2+, PR/ER- patients? Or was it just TN? If it does include all hormone-negative tumours I’d love to read a copy. I’m trying to walk a fine line between doing my own research (to ensure I’m doing everything I can to ensure I hang around for a long time), and not worrying myself unnecessarily by focusing on it... I’m yet to find a good balance! 🙈

 

I hope you’re having a fabulous holiday, Badboob. As Fiona said, congratulations on your wedding anniversary! 🥂 Fiona, I hope you have a wonderful trip away too. It looks like we’ll have some beautiful weather over Easter. Aneeebel and Shi, do you have Easter plans? I’m heading your way, Aneeebel, to spend Easter with the in laws. They are so excited about having Easter with our little 🐥 that they have planned an Easter egg hunt and all sorts of garden activities. She is allergic to chocolate, so it will be interesting to see how many chocolate-free eggs they have managed to source... I suspect there will be a lot! 😂 The Easter bunny (i.e. me) will only be bringing her one! 🐇 🐰

 

It it looks like it will be perfect weather for sitting at your lottie and doing some (very gentle) pottering around, Aneeebel. Did the physio give you more exercises to help with laying in position for radiotherapy?

 

Have a marvellous Easter long weekend, ladies!!! Xox 💕😘🌳🌷🐰🍫

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi Fi, try not to get ☹️About being a bit behind look at it as your little bubble having chance to be all sorted before starting rads 👍 there was something the other day about the possibility of tamoxifen maybe being able to be used against tn, if you want to pm your email address to me i’ll Forward to you. I was a tn too. But didn’t get a bone tablet 🤔was it Sheffield that’s put you on that? And what is it called please so I can speak to onc next time I see them. Thanks 💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Badboob, have a fabulous holiday - how romantic that you've gone back to your honeymoon holiday place.  Many congratulations to you both.

DD is improving - I'm still dressing it every day but it's just a bubble that falls out occasionally, a bit like a runny nose Woman Wink

I had Derby hospital phone me today, they'd had a cancellation for 23 April - no good though as we're away.  Typical!  Anyway, they called me back again and have pulled my appointment forward to 30 April.  It is just to meet the oncologist and discuss the options (? - surely my options are just radiotherapy or nothing?), then 2 - 4 weeks later I'll have the planning appointment then eventually the rads.  I'll be so far behind all of you but that's the price I'm paying for having an easier journey to Derby rather than struggling through to Sheffield each day.  I just hope it's all done before July and our holiday in Gran Canaria.

I managed to sort out my prescription issue today so that's one less thing to worry about.  Badboob, I fully appreciate your concerns about taking your Letrozole for the next 5 years.  I'm "fortunate" in that because I was triple negative I don't need these 5 year tablets - they'd be useless, but I do have the bone tablet and that's enough to deal with.  It's a constant reminder I suppose of what we've been through.

Well, ladies, I'll leave you to it.  Elliesmum, I hope you hear something soon and that everything is good. Hope your physio appointment went well Aneeebel.  Hoping you've all had a good day. 

Big hugs.

HeartFiona xxx

Member

Re: October 2018 Chemo starters

Morning lovely ladies from sunny Menorca! 🌞

 

Arrived late yesterday after a long day. We came to Menorca on our honeymoon many moons ago ❤️❤️ and as our wedding anniversary was yesterday, we decided to have a little break here to celebrate the end of the beginning, once we had been given the all clear to travel.

 

I am so pleased that everyone is moving forward if a little slowly, i still have my fingers crossed  Elliesmum, that they find the reason for your headache and it’s nothing to worry about. It sounds like DD is finally healing, Fiona,  what a marathon! Oh and the menopausal symptoms again. No wonder you are grumpy, I think we all would be. Go for a walk and have a good shout when no one can hear you. 🤬😱.it might make you feel a bit better. 😁.I am finding it a little strange to find myself in my new normal state but hopefully that will subside. I am trying not to scare myself about taking Letrozole for five years. I am desperate to get back to my active self and I really can’t be doing with too many side effects! 🥴 How are you finding them Aneeebel? 

 

I am so pleased you are back driving Aneeebel, gosh it’s hard to lose your independence, so its a good sign that you are getting there. Plus, we are all looking forward to our veg boxes from your Lottie! 😉.

 

Keep well everyone! Hugs 😘😘😘

Community Champion

Re: October 2018 Chemo starters

Gosh Aneeebel, how time flies. If you're 6 weeks post op then I'm 5 😁 My armpit is still numb above the scar but not below. It's such a strange sensation. The scar itself is progressing nicely this week, at last and since DD has been behaving herself. 

I've been driving hubby's car as that's an automatic but hopefully back to my manual car after our hols next week. We're off to my parents in Scotland for a few days and will see our nieces then down to York for the rest of the week 😁 

Back into the meeting shortly, it's a real struggle to stay awake right now 😴

Have fun 🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Fiona...I took one copy of the prescription my oncologist gave me for Letrozole into my health centre and they put it onto repeat for me (at my unit the pharmacy gives you 2 copies of the prescription) 

My lottie isn't huge but plenty big enough for us and the crops! It's actually only half of an allotment...the old fella next to us was finding it too difficult to work a full one so gave half of it up! We got the half that hadn't been worked for about 10 years!! 

It is easier now to do my exercises but my arm pit is still completely numb and skin painful...plus the 13 inch mx wound doesnt make it easy! 👙

Good news that you're doing well! 💪🏼🎀

Hopefully your day goes quickly!!

 

We have sunshine in Preston...it was quite dismal earlier but Mr Sunshine has got his hat on! 🌞

 

🌸🎀🌸🎀🌸

Community Champion

Re: October 2018 Chemo starters

Morning Ladies, how are you all?

Where is the sunshine🌞? It's not come out yet and it's quite cold too. Although that doesn't seem to be much of an issue for me as I keep having hot flushes 😲 Perhaps it's the menopause striking again, which would explain my grumpy mood for the past 2 days 😠

ElliesMum, I'm pleased to hear your unit are on it and 🤞🏻 you have some good news. In the meantime you just need lots of 🤗 from little 🐥

Aneeebel, how big is your lottie? It sounds enormous with all the plants you've got growing 😁 I bet your granddaughter will be so chuffed when her peas start shooting 😁 Good luck with all your appointments 🤞🏻

Hope you're having a great time away Badboob,  and sar_ah I hope you're ok too .

As for DD, she's still ejecting fluid but it has slowed significantly fortunately and my exercises are almost a doddle now. The underarm issue with the nerve damage is slowly improving and this means I can almost stretch the arm without it hurting. How is yours doing Aneeebel?  

I'm waiting on a call back from the breast care secretary as we're away next week and the surgeon hasn't written to my gp about my repeat prescription and I'll run out while we're away. Nothing is ever straightforward is it? Why do we have to do all the running around? 😠 Oh well, I'll hopefully get it sorted today 🤞🏻

Well enjoy your day today ladies, I'll be stuck in a meeting all day learning about the new time management system we're having installed 😴

🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Thanks Shi... you're very kind! 😘

My Grandaughter would love to be the next Charlie Dimmock...she's funny...can talk a glass eye to sleep! Wears me out! Ha! 👧🏼💖

Hope you manage to get your sparkly sandals on 👡...I'll be in my bovver boots no doubt! 👢😂

 

Hope everyone is well... 

How are you doing Fiona? Is your arm pit healing? Did you have a good w/e? 🎀

ElliesMum...hopefully your headache has improved! 🎀 How's your 🐥💖

Badboob..hope your having fun in the sun 🌞

Sar_ah...hope your well! 🎀

 

It's 6 weeks today since my op...it's gone so quick! I'm hoping the physiotherapist says I can do a bit more! 💪🏼

I drove the car yesterday....yippee!!! I'm back on the road...so much easier than waiting for my driver (hubby! 😂) to take me places!!! 🚗🚘🚗🚘🚗

 

Have a lovely day Girls x 🎀💖🌸

 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Anneebel 😘😘your lovely posts always make me 😁you are lovely ❤️Elliesmum 👭for Friday, good to hear your trusts doing all they can to check things out properly for you, that’s a comfort. Anneebel, you’ve got a mini Charlie dimming on your hands there, a future Chelsea flower show winner of the future and she’ll say she learnt with her nan on her Lottie 👍😁and we will all know it’s your granddaughter 👍looking forward to this 🌞they’ve promised us over Easter ❤️ Want to get sparkly sandals on, even if my toe nails are still 💩 a bit from the chemo, nothing a bit of polish won’t cover up 👍Fi, hope you’ve got better idea of things from rads if you’ve touched base with them 😘💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Hi Ladies 💖

 

Lovely to know you had a fab weekend ElliesMum... 👭 And then added bonus of time to yourself! 

Your hospital were on the ball with your CT scan! Fingers crossed everything will be fine! 🤞🏻💖

Fiona...hope you and DD are doing well! 🎀

Badboob... have a brilliant holiday 🌞🌞

Sar_ah...how are you? 🎀

 

I've had my Herceptin injection this morning.. physio appt tomorrow and prosthesis fitting on Thursday! 

Ive been to the lottie...our Grandaughter planted some more peas so she was quite chuffed with herself! 🍎🍏🍐🍑

She was  very excited when she spotted the blue tits going in the box...she's convinced she heard the babies chirping but I'm not so sure! 🐦🐦🐦

 

Hope you're all doing well x 🎀👙😘💖🌞

 

 

Community Champion

Re: October 2018 Chemo starters

I had a glorious weekend, thanks. With some beautiful weather on the way, hopefully we can all have a fabulous Easter long weekend! 🐣 🌳 ☀️ 

 

Excellent to hear that you all have a firmer idea about your radiotherapy dates. 👍 I hope you have an amazing holiday, Badboob. What an excellent idea!

 

Things have been arranged very efficiently at Warwick hospital; after seeing the oncologist on Friday, I had a call yesterday booking me in for a head CT this morning. All done now. 🤗 Still have a headache, but it is less severe than it was. Good to have it checked out, even though it’s highly unlikely to be anything nasty. Due to go in for herceptin tomorrow, then a breast prosthesis fitting in the afternoon. Lucky most of my research group are away this week, as I’ve not been into work as often as I had planned 🙈

 

Have a lovely Tuesday. Xox 💕😘

Community Champion

Re: October 2018 Chemo starters

Hi Ladies 🌻🌷

 

Badboob...Fab news your schedule has arrived... 

I'm starting my rads on the 23rd April and should receive my schedule when I go to my first one! 

I'm sure your baby bunnies are thoroughly enjoying dining in your garden! 😂🐰

When do you go away? 🌝🌞☀️

 

Fiona...hopefully DD has been on her best behaviour! Did you have a lovely meal out with your family? 🎀

 

ElliesMum.. hope your w/e is going well with your friend! 👭 Has your headache improved? 🎀

 

Sar_ah...hope you're well 🎀

 

Have a lovely evening Girls x 🎀🌸💖

 

 

Member

Re: October 2018 Chemo starters

I am so pleased Fiona, that your appointment has arrived at last ! 🎉👍. It sounds like Sheffield is similar to Addenbrooke’s in as much as Cambridge is a centre for Radiotherapy and takes patients from several other hospitals, saves on equipment and staff, I suppose. I was surprised how big the department was. My letter arrived yesterday with my appointment scheduled and it makes clear which machine I will be in for which appointment as they all have their own waiting areas, so presumably they don’t want you getting lost wandering around the endless corridors 😂😂😂. I am starting on the 1st May, yippee! 😁😁. 

 

So the three of us will meet again on the radiotherapy thread! 😘😘. How lovely. 

 

Jealous of the talk of Peas and spinach, my baby bunnies are munching their way though anything that’s green! Little blighters, It’s about time Mrs Fox weaned those youngsters!  🐰🐰🐰 🦊🦊 and josh couldn’t we do with some rain! Everything is so dry here in the East and still freezing cold! It will be nice to have some warm sunshine, but my radio therapist gave me strict instructions not to come back with a tan! So I popped in to Marks and have brought some lovely long sleeved linen shirts! Rude not too....😉.

 

Have a lovely day everyone. Headaches and leaky boobs willing! 😘😘

 

Hugs

Community Champion

Re: October 2018 Chemo starters

Good news that you've finally got your appointment Fiona...at least you know the show is on the road! 

I'm pleased DD is behaving... about time!! 😄 The peas will be delicious...last year when grew some we never even brought them home...we sat at the lottie and ate them....so scrummy!! 

 

Hope you're all well ladies...have a good day x 🎀💕

Community Champion

Re: October 2018 Chemo starters

Good morning ladies

Aneeebel, yes the armpit feels better while there's no fluid building up inside. And DD is getting better, less fluid coming out each day. 👍🏻😁 And it feels better inside too. I can feel tightness when I do my exercises but it's getting there.

How are we all today? I hope you're all well.

ElliesMum, I'm glad your team are on it with your headache. 🤞🏻 it's nothing to worry about. 

I'm pleased to hear about your planning appt Badboob. In the meantime, I hope you have a great holiday, you've earned it 👍🏻😁

I've got my letter at last from Derby, so my appt is on 9 May. I was starting to feel very left behind ☹ I'm assuming this will be the planning appt but it may just be a meet and greet as it's a transfer from Sheffield. At least I feel I'm getting somewhere now. And hopefully DD will have healed and they'll let me do rads and I can then relax and enjoy life again 🤣

I've got some peas coming up Aneeebel 🌱 along with my lettuce and spinach. I must water them today. 

It feels like a good day today so I'm going to make the most of it 😁 Enjoy your weekend Ladies.

🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Morning Ladies 🌻🌷🌼

 

Fab news your planning appointment went well Badboob...

How exciting going on your jollies! It's 9 weeks, and counting, until we go away! 🌞☀️🌞

 

Fiona..fingers crossed DD is on the mend! 🎀 I know it's not meant to be leaking but does it feel better that the fluid isn't building up in your arm pit! My 'bits and pieces' are still so tight, I can feel the pressure changing as the day goes on! 🙄👙

 

Shi...Your currant made me chuckle! 😂 I'm a bit put out that I only have 2 dots and you all have 3.... I'll have to have a word when I go back!!! 🎀💗

 

Hope you're all well, Have a lovely day everyone x 🎀💗🌸👙

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hope all the tattoos gone well and no one ended up with a currant 😁I got 2 nice little dots each side the think the person doing middle one on my chest had a tattoo fart and I ended up with one the size of a currant, right in the blooming middle 🤣😂🤣😂🤣cheers for that luv (Fi hope you get different person doing you) 💕💕✨✨Shi xx

Member

Re: October 2018 Chemo starters

Evening ladies,

 

So pleased you’ve had you radiotherapy planning Aneeebel, I found mine very straight forward. I did ask for a skull and crossbones tattoo, but she said she wasn’t very good at drawing! So three dots it is them. Interestingly, she did the middle one first on the basis it’s the worse so good to get it over with. I didn’t feel the other two ( must be the fat pads!) 😂😂😂.

 

Oh Elliesmum! Poor you with a headache for so long. I am very pleased that your doctor has decided to check it out quickly, hopefully it will be nothing to worry about, but still a pain! 😉 As for your  little one, well what a monkey! I hope she didn’t have any ill effects after the yogurt. 

 

and Fiona, still leaking! Poor you. But it sounds like it’s at last starting to dry up. Gosh i feel so lucky  to have escaped relatively unscathed with my op. My scar just looks really grubby where there is still glue. I have been told by my BCN not to pick it ( very tempting) so I just have to wait for it to fall off.

 

Well, we are all booked to go to Menorca for two weeks over Easter, can’t wait. And then back to Radiotherapy during May! Yippe🤪🎉💐💐💃💃🕺🕺.

 

Hugs

Community Champion

Re: October 2018 Chemo starters

How lovely that your friend is visiting ElliesMum......I bet you cant wait! 👭👩‍❤️‍👩

I haven't had anything done to my eyebrows...I kept quite a few actually! They look better now than they did before chemo! 👁👁

We'll just pretend we're "in with the in crowd" with our tattoos....just have to hope nobody asks to look at them! Ha! 

Good news that your 🐥 is okay x 💗

And fab news that your unit is on the ball....CT scans aren't too bad and at least you'll have peace of mind! Hope you feel better soon 🎀💪🏼 x

 

🌸💗👙🎀

 

 

Community Champion

Re: October 2018 Chemo starters

Great to read that you’ve had your radiotherapy planning appointment, Aneeebel. Your reaction to the tattoos made me laugh! 😂 After my rads planning appointment my sister remarked that I went from being very “conservative” (her nice way of saying “boring”!) in my appearance - wore very little make up, didn’t bother colouring/styling my hair - to being rather pleased with my three (tiny) tattoos and micro-bladed eyebrows. 🙈 If you forget to mention the underlying reason, it sounds like we’re all going through mid-life crises! 😬🤣

 

Sorry to hear about the continuing DD you’re having to deal with, Fiona. At least you are doing an excellent job of managing a crappy situation. I hope the dribbling eases into a trickle, and then ceases altogether!!! 🤞Your weekend plans sound excellent! 👌 

 

I hope you’re both continuing to heal after rads and surgery, Sarah and Badboob. Thinking of you both! 🌷

 

Little 🐥 is fine, thanks. She had an eczema flare up and a few yucky nappies but nothing serious. She was sad when I collected her from nursery, so we went to the park for a while on the way home. I wasn’t sure if I was giving mixed signals (rewarding her for taking another child’s food!), but it was fun to enjoy the sunshine and run around with her! 🤷‍♀️

 

Alas, my headaches are still hanging around. I was called by the unit and told to come in this morning to see one of the oncologists about it. He thinks it’s just a virus; apparently there is something going around at the moment and my immune system is still recovering. To be thorough, he booked me in for a head CT scan. I’m sure it will be fine, so no cause for concern. It is driving me bananas though! Never had a headache this persistent before and it’s really getting to me. 😔 Oh well. I’m sure it will go away soon!

 

One of my best friends (🐥’s godmother) is coming to visit us in Leamington this weekend. She was in Prague for work and, in true Australian style, figured that the U.K. was practically next door so is coming to say hi before she flies back to Sydney. It will be so lovely to see her! 💕🤗

 

I hope you all have fabulous weekends, filled with lots of rest! Xox 😘💐

Community Champion

Re: October 2018 Chemo starters

Hi Ladies 🌸

 

I cant believe DD is still at it Fiona! What a nuisance!

I would never have the energy to go to work for 4 days...you're doing so well! I'd be asleep at my desk! 😴💤😴💤😴

Sounds like you're going to have a nice w/e...hopefully Mr Sunshine will be out!

I don't feel too bad apart from my 'bits and pieces'... 🤕🙄👙  Thanks for asking x 🌸🎀

 

How are you ElliesMum? Has your headache gone? Hope you're not too tired with working! 🎀

Badboob...how are you feeling? How was your appt? 🎀

Hope you're well Sar_ah 🎀

 

I received a letter from the hospital yesterday to go for my Planning Scan today!!! 

So, I've had a CT scan, been lined up on the machine and had 2 tattoos! The one in the centre of my chest bloody killed...I actually squealed Bloody Hell! Hahaaa! She said I do that one last because it usually hurts! I said I've been on about getting a tattoo for years, I don't think I want to bother now if it feels like that!!! 😂😂😂 She laughed!  (it's because it's on the bone apparently!) 

1st rads will be on 23rd April! 💪🏼🎀

 

Have a lovely evening... 🌸🎀💗👙 x

 

 

Community Champion

Re: October 2018 Chemo starters

Morning Ladies, how are we all today?

ElliesMum, have you shifted that headache yet? And is 🐥ok after her yoghurt stealing activity 😉?

Badboob, how did it go yesterday? 🤞🏻 it all went well and you can start soon.

How are you Aneeebel? Gosh, you do sound like you're suffering with fatigue, you poor thing. I can't imagine it to be honest but big hugs coming your way 🤗🤗

Mind you, I'm not sleeping brilliantly because of the wounds and I've done 4 days at work this week, so hubby went to work about 7.30 this morning and I'd said I was going to just have a kip. Well, 10 o clock I actually woke up 🤣 and then the phone hasn't stopped ringing since 😲 

Sar_ah, how are you now that you've finished rads? Hopefully your skin is holding up well.

DD is still dribbling but it really is a little dribble now but needs covering all the time. I spoke to my bcn yesterday after a visit to my local practice nurse. They're happy that I'm managing it ok and from what I've described there's no infection etc so nothing to worry about. It will just take time. But while there's still an open wound it may delay rads, although I'm still waiting to hear about that anyway 😠

Any exciting plans for the weekend, ladies? I think we're just pottering all weekend and taking his kids (grown up) out for lunch on Sunday. So a nice easy weekend again 😁

Have a lovely day ladies 🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Fiona... I bought myself a bralette months ago from sainsburys -I nearly had to have it surgically removed when I tried it on shortly before my operation (I suppose I should have tried it on when I bought it!!) so I bought another one at the w/end in a bigger size and it's actually okay, the material has a bit more stretch in it too! I was glad to take it off though after a couple of hours as it was irritating my wound a bit by then! 👙

 

ElliesMum... Hopefully your 🐥 will be okay and you manage to get a good nights sleep!! 😴

I desperately need a good nights sleep to be honest! I'm pretty tired!! 😴

 

Badboob...let us know how you get on! 🎀

 

🎀💗👙

Community Champion

Re: October 2018 Chemo starters

Thanks for thinking of me, ladies! 😘 Still feeling a bit crappy. Called the unit about my headache, as I was due to have herceptin today. They’ve delayed herceptin for a week and asked me to call back in a few days if I’m not feeling better so they can give me a “once over” in case something nasty is brewing. I’ve taken the day off work to rest so hopefully will feel much better in the morning.

 

Badboob, the radiotherapy planning appointment is very straightforward. Be prepared to be tattooed! I have three tiny tattoo dots, which they use to align you on the machine. I was also warned not to gain (or lose) weight between the planning appointment and treatment!?! Hope it all goes well for you.

 

Very impressed with your various bird boxes. Your peas sound super yummy too, Aneeebel!

 

Will send this now as I’ve just been summoned to collect 🐥 from nursery; she grabbed and started eating another child’s yoghurt before the staff could stop her (and she’s dairy intolerant)... It might be an interesting night! 🤦‍♀️😬🙈

Community Champion

Re: October 2018 Chemo starters

Good luck for tomorrow Badboob,  hooe it all goes well. Let us know all about it 🤞🏻

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Afternoon Ladies and a glorious one it is too 🌞

I wonder if your rads appt came through quickly Badboob because you didn't have an ANC? I'm still waiting to hear from Derby, I'll give them til Friday then try chasing them. 

How's your head ElliesMum? I do hope you're ok. Did you give your unit a call? 

I'm wearing a post surgery bra today for the first time in ages 😲 DD is still active but manageable. My skin is so sore though from the dressings. I've not been able to wear a bra because of the swelling I've had but that appears to be minimal (probably because the fluid's got an outlet 😕). It's strange what makes my day these days 😉

I'm still doing the exercises just not as often as I should because of DD.

Did you manage to get your bralette on easily Aneeebel? I've got a couple and find them difficult at the moment but maybe that's because I'm too fat for them 😠

I feel shattered today so finished work early. Is anybody else having trouble sleeping because of your wounds? It was terrible last night 😴 I might go and have 40 winks now before hubby comes home 😉

🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Morning Ladies... 🌞

 

Badboob...fab news that you're feeling well! It does take a bit of time to sink in!!

Your appointment came very quickly for your rads, wow! Good news that you don't have to wait ages though!! I'm surmising mines taking its time as I have to wait for my mastectomy wound to heal anyway... It's actually about 13 inches long...it's mahoooosive! 😳👙🎀

I haven't worn a bra yet...well, when I went out for tea on Monday I wore one of those bra-let things that go over your head with my softee boob in the pocket! It was nice having 2 boobs! 👙

How lovely that you have lots of new residents!! 🐦🐦

 

How is your head ElliesMum? How's your little 🐥? 🎀

 

How's DD Fiona? Are you still doing your exercises? I'm starting to look like a body builder (yeh, right! 😂💪🏼)...I did them in the shower last night -just improvised a bit for the lying down ones! Defo don't want the firemen turning up when I'm in my birthday suit...scare them to death!! 😂🛁🚿

 

Sar_ah...hope you had a fab w/e away! 🌞 How are you feeling? 🎀

 

Shi...yes, they were poddy peas, although, it's a bit frosty this morning...I hope they've survived!! Last year when we grew peas none of them actually made it home...we sat on the lottie and ate them straight from picking! They were deeeeeelicious!!! 🌶🍒🍆🍇

 

Have a lovely day Girls x 💗🌸👙🎀

 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Badboob, I kept my post op bra (it was a nice zip front one with racer back from M&S) on for quite a while post op till everything had healed and settled, didn’t want anything tight round anything building any pressure or anything up inside while it was all knitting back together and I was goody 2 👠and did everything I was told by my team. Anneebel, that’s one posh Lottie and quite right too ❤️ Yum peas, are they poddy peas you’ve sneakily planted 😉💕💕✨✨Shi xx

Member

Re: October 2018 Chemo starters

Evening everyone, 

 

I have been catching up with your lovely posts and I am now feeling a lot more chilled! Monday was such an emotional day and I have needed  some time to process it all. I am sure you are right Fiona, it will take a couple of weeks to sink in. 

 

I am alarmed that you are all still showing signs of the after effects of chemo, tiredness, headaches and leaks, I am sure Shi is correct that it will take months to get back to normal and we must remain vigilant and continue to look after ourselves.  I feel really well, almost back to normal. I am itching to get back to yoga and golf but both my oncologist and BCN have warned me off for at least another three weeks! I have also been told to wear my sports bra 24/7 for another three weeks! Have anyone else had this advice!

 

Squinty is doing well, her glue is starting to peal off but I was been warned not to pick at it. She is still a lovely shade of blue. I hope DD stops soon Fiona and I am alarmed by your toe nails. My finger nail continue to be a problem and my oncologist even used me to explain to his medical student the effects of docetaxel on nails! Curiously my toe nails are completely unaffected! 

 

I am am amused by the conversation regarding nest boxes. I have had two on the fence that was subjected to the great fire of April fools day. But we’re not affected. They have a great fit and blue tit pair in residence. To try and dissuade the robins from trying to set up home in the garage, an annual battle that the robins are determined to win one day. I bought a robin box and put it up close to the garage and blow me, if another pair of great tits have moved in already! The robin pair are still nipping in to the garage with beakfuls of leaves if we leave the door open and have to be chased out. Stupid things! 

 

Now you lot are not going to believe this but. In the post today was a letter asking me to attend my radiotherapy planning meeting next week! We have booked to be away for Easter so when I rang to rearrange, they asked if I could come in THIS Thursday! Amazing! I was expecting to wait weeks. I do hope your letters arrive soon, I am sure you just want to get on with it.

 

Anyway enough of my nonsense.

 

Hugs

 

 

Community Champion

Re: October 2018 Chemo starters

ElluesMum... it may be a good idea, as Shi suggests, to ring the helpline or even your doctor! Hopefully, you're feeling a bit better today! 💗

 

Fiona...glad DD (😂) appears to be settling! I suppose it will feel better because you won't have the pressure from the fluid building up... My wound is still tight and so is my side! It's wearing me out a bit actually but saying that, it could be a lot worse! 👙

How exciting that your have interested tenants...🐦🐦

Yakkkk...you poor thing with your toe nails! I had to cut mine the other day...it was harder work than my exercises!! Hahaaa...too many stomachs and my arm wont stretch! Not a good combo!

 

I'm ridiculously tired today...I've gone back to my ludicrous wake up times I.e.the crack of flipping dawn!! 🕞🕓🙄

I have been to my lottie.. I planted some peas! (Don't tell anyone or I'll be in trouble!! 😉)

No date for my rads either...I'm waiting for the letter to come thru! 🎀

 

Badboob and Sar_ah...hope you're well! 🌸🎀

 

Shi...I'm not sure it would be worth a trip to my lottie, altho, we've (That's the royal We!) have just done the paths...we're very posh now!

 

Have a lovely evening Ladies x 🎀🌸😘

 

 

 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Ellie’s mum, please just phone your rapid response team we were told it takes 6 months for immune system to get back to normal, just keep safe please ❤️Fi, ring derby rads unit to see if they have you on their radar yet 😘 anneebel hope you managed to get to Lottie today ❤️ It’s been quite nice today. Think you should have your meet up at anneebel Lottie, deckchairs, tea and cakes 😁 💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Oh ElliesMum, I hope you shift that headache soon. Are you still drinking plenty of water? I hope you're not doing too much too soon 😉

Aneeebel, those words were lovely and so true, although sometimes it's hard to believe it all. How's the lottie doing? Have you been up today or did you have a little too much to drink yesterday 😁

Badboob, I hope you're ok. Like Aneeebel, I was waiting for the "but" and I think it's only now, nearly 2 weeks later, that I'm starting to appreciate the results. 

Sar_ah, what are you doing with yourself now there's no more rads 😃

Well, DD (That's the only time in my life I'll ever be a DD 🤣) is almost behaving herself. There is still leakage but less and less each day. I think I still need Aneeebel and her sewing skills and maybe little 🐥 with some glue 😉 I'm getting there. I think the internal healing is getting there, it just feels better inside. 

I lost a toenail yesterday 😲 I'd only noticed at the weekend that some looked pretty grim and one appeared to be loose. Yep, it was and easily came off last night. I might lose one or two more yet but 🤞🏻I'll hang on to them. I hate feet as it is, so chemo nails make it even worse 🤤

I (that is, hubby) put the bird box up Aneeebel, and some blue tits have already been investigating it and I think have moved in. I was so pleased 🐦🏠

No date yet for my rads ElliesMum. I'm still waiting to hear from Derby. I suspect that it may take longer as I'm being transferred from Sheffield to Derby. I chased up the breast care secretary and she confirmed they'd written to Derby on 1 April. Hopefully I'll hear something soon.

I hope you shift that headache soon ElliesMum, have a good night's rest.

Love to you all 🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Thanks for sharing those lovely words, Aneeebel, and for your wonderfully supportive posts. Shi is right - you’re lovely 😊💕💐

 

Alas, my headache is still hanging around. I’ve had it for over a week now. I suspect it’s because I overdid things at the conference last week. Early to bed for me tonight! 😴

 

Hope you’re all doing well. Aneeebel, Badboob and Fiona: do any of you have start dates yet for radiotherapy? (Apologies if I’ve forgotten!) It sounds from Shi’s description that Derby is a swanky Hospital like Badboob’s, Fiona. Having your own music played during radiotherapy is a great idea! 🎧 🎶 

 

Did you celebrate the end of treatment yesterday, Sarah? Super excited for you! 🥂 🥳

 

How is the fluid leakage, Fiona? Did you manage to stem the flow, or did Aneeebel’s sewing skills do the trick? 🤞

 

Have a lovely evening! Xox 😘

Community Champion

Re: October 2018 Chemo starters

The verse is for all of us Ladies... us strong, amazing, Cancer Free Ladies...🎀💗👙🌸

 

Fiona...hopefully DD has behaved during the night! 💗🎀

ElliesMum.. how are you feeling? Has your headache gone? 💗🎀

Sar_ah...how are you feeling? 💗🎀

Badboob...is the news sinking in? It actually took a few days with me....I'm sure my surgeon must have thought I wasn't very happy..I was waiting for a "but" at the end!! 🙄💗🎀

 

Shi...thank you and thanks for always thinking of us..you're very kind, hope you're well! 😘💗🎀🌸

 

Have a good day everyone xx 🎀🌝🌷🌻

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Great news ❤️❤️Anneebel, you get your stamina up bit by bit darling, even an Olympic athlete would not ping straight back after chemo, you are doing great, you all are and what another beautiful post yet again from you, you are a beautiful beautiful person ❤️❤️💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

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Community Champion

Re: October 2018 Chemo starters

What fabulous news Badboob! You're allowed to cry... 

I've cried today too... just thinking myself How the f*cking hell have I got through this sh*te... 

But "I" have got through it.... "WE'VE" got through it... we're on our way up Girls...

💪🏼💗💪🏼💗

There's definitely 'Light at the end of the tunnel' xx 🎉🎉🎉🎉

 

😘😘😘😘😘😘

 

 

Community Champion

Re: October 2018 Chemo starters

Ladies, it sounds like things are moving in the right direction for us all. 

Badboob, fantastic news, well done. Take your time to take it all in. Have a drink and just chill while you process it.

ElliesMum, hope the headache isn't too bad. And great news on the hair growth. You too Aneeebel. It does make you feel better when you start to see growth. My lady garden is on its way back, but no armpit or leg hairs. However, I did have these lasered some time ago and had eliminated these way before Big C struck. Eyebrows are growing by the day but no real sign of eyelashes yet. Strangely, I've noticed that the hairs on my forearms are falling out! 

Sar_ah, how did your last rads go? Is that it now for you?

Leaking Lucy seems to be more like Dribbling Deidre at the moment so that's going in the right direction too.

Take care lovely ladies 🤗🎀🤗🎀

💜Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Yay Badboob. So pleased for you!!! 🍾💐🎉🥳💕

 

I have a splitting headache so heading home early to have a lie down. Hopefully my little duckling will be in a quiet, gentle mood... 😂🙈

 

xox

Member

Re: October 2018 Chemo starters

Afternoon lovely ladies, just back from the hospital. Rather a marathon visit, Herceptin, Breast Surgeon, Oncologist! 

 

Well the good news is that I have clear margins and no sign of cancer in my lymph nodes plus I am healing well. Yippeee! 🎉 I can’t believe how relieved I am. Had to have a little cry in private when I got home. I think we try to be so strong and stable but underneath we are just jelly......... now on to radiotherapy but they are happy for me to start this is May once we have had a little break away over Easter.

 

Ladies, you have all been so wonderful on this site. I am so grateful for your unconditional support through some dark days. I know we are not at the end of this journey but I really do feel that there is definitely light at the end of a very long dark tunnel.💐🎉🕺💃💃💃💃🤪🤩🤩👍👍💪💪💋😘😘😘😘

 

Will post again when I am feeling more chilled! 😉

 

Hugs