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Registered: ‎29-06-2018

Re: October 2018 Chemo starters

@FiMillan Oh! Your GP may be able to help with the oral thrush, if you are getting your bloodwork done there anyway.
Member
Posts: 330
Registered: ‎29-06-2018

Re: October 2018 Chemo starters

@FiMillan White and furry tongue sounds like oral thrush -- so your anti-fungal pills should help. Do call the hotline, though, to see if you might also need a mouthwash. (I didn't get this -- though at one point I thought I had, as I was on the lookout for it since many of the June 2018 folks did get it. It's quite common.)
Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Morning Ladies, I hope you're all well?

Sar_ah, good luck today with your onc and fingers crossed for tomorrow's chemo 🤞🏻And good luck ElliesMum and Aneeebel this week too.

I feel like I've turned the corner this morning and am starting to feel better now. Crikey, this T and second half is tough. I spent a lot of yesterday crying and saying I can't take it anymore and I don't want to carry on with chemo but today I feel a bit better so I'll carry on. But like you Sar_ah, I'm dreading the next one.

I've lost my taste on T, although I think it may just be coming back now, and my tongue has gone white and furry. Anyone else have this as a side effect? I've got anti fungal and anti viral pills which I started yesterday. I may give the helpline a ring but am assuming it's just a side effect.

Hubby has gone back to work today so time for me to get up, walk round to the Drs and book next blood test and then enjoy the day.

Have a good day lovely ladies, thinking of you all and sending big hugs 🤗🤗🤗
💜Fiona xxx
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Posts: 153
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Re: October 2018 Chemo starters

Hi Ladies.... I hope you all start to feel better soon x 🎀

Thinking of you all x 🎀

💗💪🏼💗💪🏼💗💪🏼💗
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Posts: 330
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Re: October 2018 Chemo starters

Shi recommended Udderly with Urea moisturizer (available on Amazon) and I found it helped a lot with peeling between my fingers. Definitely mention it to your oncologist though, as it might be a side effect of your chemo, separate from any personal history of eczema etc.
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Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Good job managing a hike, Fiona! 👍

Sar_ah, I don’t have any jaw pain, but I believe that bone aches are common on docetaxel... does it feel like bone pain? The skin on my hands (and feet, to a lesser extent) is definitely peeling and is very dry too. I’ve had the first eczema flare up on my hands in years! Trying to alternate steroid cream with moisturiser. 🤦‍♀️ Best of luck with round 5 on Thursday. 🤞

Thanks, reddi, for sharing your experiences and knowledge redgarding reduced dosage. I feel a bit better about the situation now.

Xox 😘💕💐
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Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Happy new year to you all ladies! I’m currently sitting with my sleeping husband watching James Bond 🎉🎉
Back in for my second T Thursday and dreading it! Also suffering from my fingernails hurting Smiley Sad most the of the other side effects have subsided but I now have horrible dry peeling hands and the most awful pain in my jaw anytime I have anything too cold! It feels like it moves up both sides of my jaw right up to the top, does anyone else have this? I’ve looked at the side effects but can’t find anything, I’m back on the 2nd but worried they may think I’m mad!
Xx
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Re: October 2018 Chemo starters

Happy New Year in advance lovely ladies 🍾 I don't know about you but I can't see myself seeing the New Year in this time. I am unbelievably tired on T but today me and hubby did a 3 mile walk so I'm quite pleased with myself. I even had 10 minutes or so when I felt I was coming round and cheering up 😉. I'm not coping too well on T mentally and the side effects are different (my fingernails hurt 😣) but I'm getting by and that's the good thing.

I really do wish you all the very best for 2019. We are getting there 💪💪 I know I've said it before but each day done is one step closer to the end of this nightmare journey. Not one of us chose to be on it but we will come out of it stronger. And I for one couldn't do it without you all helping me and being there 👭

Happy New Year 😁
💜Fiona xxx
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Posts: 153
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Re: October 2018 Chemo starters

[ Edited ]

Happy New Year to you all... 🎉💪💗

Thinking of you all! Have a fab New Year... We're on our way up Ladies... stay strong! 😘💪💗 x

💗💪💗💪💗💪💗

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Re: October 2018 Chemo starters

@Badboob Although I am just an interloper from June, I wanted to send more hugs your way. Losing your friend at this time in this way must be all the harder. Take care. 💞
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Re: October 2018 Chemo starters

Hi @ElliesMum: I had all of my T at reduced dose due to liver problems at the end of FEC and an infection in my first TPH. At my hospital they don't like to "yo-yo" doses, so once it was lower it didn't go back up (I did ask!). However, it seems different hospitals have different approaches, so yours may be open to doing so.

One thing I learned is that the doses are calculated based on your body surface area -- a pretty rough measure, estimated with weight and height, but it is the best they have until they are able to do more research on the genetics of tumors, and the "100%" dose level is mostly focused on max safe dose, with the emphasis on safety. If your body is struggling with the drugs, your actual max safe dose is probably lower than your estimated BSA suggests.

As to max versus lowered doses: My mid-chemo MRI showed relatively little response to FEC, while my end of chemo one showed high response to TPH -- and not just on the HER2+ side. And that was with every T at around 77%. Of course, every tumor is different -- not just every person...

Happy New Year, October starters! You're halfway through -- or further -- and chemo will be over sooner than you can imagine! 🎉🎉
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Posts: 130
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Re: October 2018 Chemo starters

Badboob, I’m also really sorry to hear about your friend. As if you didn’t have enough to deal with at the moment already! Thinking of you and sending big hugs your way. 💕💐💪

I hope you’re still feeling ok, Fiona. While I did have a few days where I felt terrible, I’m feeling much better now. Still needing a nap most afternoons, but I managed a decent hike today: about 5 miles, carrying the little person on my back (well, my husband probably carried her for 1 mile.... he claims he can’t use the baby carrier as it “hurts his back” 😂). Felt very proud of myself afterwards, but will definitely need a nap soon! 🙈

I too am celebrating the little victories, Sar_ah. On my bad days this cycle, I literally set myself the goal of getting my daughter dressed and off to nursery in the morning; getting anything else done was a “bonus”! I found it really helped my mindset, as I had been getting quite down about how little I was getting done each day.

Aneeebel, your granddaughter sounds adorable. What a thoughtful young lady! 🥰 Best of luck with cycle 5. I too have cycle 5 on Friday, but this will be my first lot of herceptin alongside chemo. I see the oncologist on Wednesday and have been warned that she will likely reduce the dose of my next chemo to 80% as I didn’t tolerate the first T cycle very well. Has anyone else had a reduced dose? I’m not sure how I feel about it. Part of me thinks that, if I’m enduring the rubbish that is chemo, I want it to be as effective as possible and so want to have the full dose. On the flip side, I really did feel rubbish for a few days last cycle and don’t really want that to happen again... Will I be able to choose to have the full dose if the oncologist recommends reducing to 80%?

Happy New Year to you all. I hope that 2019 is kinder to all of us. Xox 🤞💕🥳
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Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Fiona, glad you're not too bad at the moment...
I'm not on FEC-T chemo... I'm on TCH + Pertuzumab...but it has been pretty horrible to me, my oncologist had said if I was poorly again after No.4 then she was going to stop my chemo but strangely enough I was relatively okay until I got the high temperature and was admitted to hospital with it! So I'm now going ahead with no.5 on Friday! I'm already panicking!! 😳😳

And yes, you and Sar_ah are right... Chemo robs us of lots of things...
I sent my daughters a photo of me with hair...saying It seems such a long time since I had hair!! I want my hair back...this isn't 'me' with an almost bald head...
My Grandaughter is such a darling, she was trying to look after me so told me 'she likes me better with no hair now she's used to it' so I don't feel awful without my hair! 😘💗

Stay strong Ladies... Moan as much as you like... We're all here to 'listen' to each other because we all know exactly how each of us feel....😘😘😘

💗💪🏼💗💪🏼💗💪🏼💗

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Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

Sounds like you are still high on steroids Fi, I hate them with vengeance, so my lovely oncologist has let me off most of them, but I still feel slightly crazy on them and sleeping is impossible. So rest is really important. Are you drinking loads to keep highdrated and flush the rubbish out. Nag over😉

 

Thank you all for your support, it is appreciated. I think we are all really scared of what the future might hold for us, even when when we are being positive and strong. My friend was told three weeks ago she had only a couple of months and there was nothing more be done. When I saw her she was really positive and bright, so it was a shock when the end came so quickly. Her poor husband is in bits. I have a card that I am trying to write for the family but somehow the words just won’t come this afternoon.

 

Hugs 

 

 

 

 

 

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Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

So sorry to hear your sad news badboob, I’m glad you got to see your friend before. Sorry to hear about your Christmas, sending you lots of love Smiley Happy
Completely agree with you Fiona, feels like chemo takes so much! I feel like I’m fighting to hang on to the few things that are the same! Sometimes I just get so angry with it all and still can’t believe this is even happening.
I don’t know if it is helpful to anyone else but I just keeping breaking everything down into tiny wins, I’ve pretty much got to the stage where I think everyone in the house made it through the day and is feed 🎉 that’s a win 🙈
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Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Oh Badboob, so sorry to hear about your friend 😪

 

So my first T is going okay so far, but I'm only 2 days into it. I'm still feeling a bit spaced out, to be honest, after the episode on Friday.  I'm feeling very cautious about how I'm going to be, having read how Aneeebel and ElliesMum have been during the course of it all.  I'm not sleeping too well, but then I don't seem to after a chemo session 😴 My knees are aching already.

 

I'm trying to be positive but it's so hard, isn't it, especially when we hear about your friend, Badboob. Chemo robs you of everything, from health through to hair through to self-esteem. Hubby asked me today if I was ok. Of course im not f**king ok, nothing is normal anymore. I don't do change very well, I like normal.

 

Sorry, ladies, for having a moan, I guess that's chemo for you.

 

💜Fiona xxx

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Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Badboob... so sorry to hear about your friend! What a shock that was for you! If you need a shoulder you know where we are! 😘💔🌼 x
And don't worry about swearing... you're allowed to say whatever you want! We all are!

💗💪💗💪💗💪💗
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Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

Hello everyone,

 

I have been catching up with everyone’s posts from the festive period! Phew! What a roll a coaster we’ve all had. Fiona, I hope you are OK after your T. I sailed though by first one, but boy this one, my 4th and final one is being a bit of a bit*h! So I hope all goes well with you. I found resting in the afternoon helped and trying not to do too much, but, easier said than done. 

 

Anneeebel, you hit the nail on the head about emotions and what people say. I even snapped at my stupid sister in law ( who has ignored me since diagnosis) because she started to talk to me with that tone which really gets your goat and if another person says to me ...oh my mother’s friend’s  granny didn’t have to have chemo first with her breast cancer. I will scream YES, but they probably weren’t HER f*****g positive! Grrrrrrrrrr! 

 

My final straw was on Boxing Day when I learnt that my friend who had been diagnosed with stage 4 inoperable lung and bone cancer at the same time as I got my diagnosis, had died on Christmas morning. I howled like a dog. I am only so grateful that I managed to get to see her last week. So all in all it’s been a bit s**t. 

 

Excuse my  language and let all hope the new year will see us all on the onwards and upwards projection.

 

Hugs

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Posts: 153
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Re: October 2018 Chemo starters

I have everything crossed for you Fiona... 💗💪🌻😘 xx
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Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Thank you everyone for your kind thoughts.

It was all a bit scary to say the least but those nurses are great, I really can't fault them. As soon as I said I had a pain in my chest they were all there doing their bit and keeping a check on me.

I've had a good nap this afternoon so I'm feeling a bit better 💪. Let's see if I can get through this second half of 💩 as well as I did the first half 🤞🏻

🤗🤗 to you all.

💜Fiona xxx