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October 2018 Chemo starters

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Re: October 2018 Chemo starters

Wow, excellent work of the walking - and the exceptional organisation for your blood test - Fiona! So pleased you enjoyed the weekend with your sister. Hope the LGFB session is fab! 💁‍♀️

 

Aneeebel, your “lottie” (love the abbreviation!) sounds idyllic. A chance to get away from things and enjoy nature. Do you have anything flowering yet? Some early flowers have started to bloom in the park across the road from me. They look so wonderful! 💐 I hope you’ve managed to restock the fridge and pantry and your grandson raided it! 😂

 

Tomorrow is the big day, Badboob! Woohoo! You made it! 🥳 Don’t overdo the cleaning; make sure you are well rested - and hydrated!

 

I’m in need of some advice from you lovely ladies... I’m feeling absolutely 💩 at the moment! My little girl has a bad cough/sore throat and a temp (she also has explosive nappies and hasn’t eaten much at all the past few days). I started feeling unwell this morning, but went in to work as I felt I had to. Foolish decision; I’m now feeling far worse, on the train home, and didn’t get to the meeting and seminar that I went in for anyway!?! Not sure what to do... I am due to have herceptin Wed morning (at the unit) and start rads that afternoon. I desperately don’t want a delay to rads - my Mum organised her trip around it. I strongly suspect I have a temp (like you, Aneeebel, I’ve stopped taking it 🙈). Do I have to call the unit, or can I self-medicate and hope for a quick recovery? 🤞😳

 

xox 😘

 

P.S. So grateful my Mum is here. I would definitely be in hospital by now if I had to do the “night shift” last night, as little one did not sleep!

Member

Re: October 2018 Chemo starters

Morning Ladies

Aneeebel, I've noticed that you're always awake early 😴 I don't know how you do it 🤔

Thank you all for thinking about me. I'm pleased to say I'm fine thank you. It was just a one day blip - we all have them don't we?

I had a lovely weekend with my sister and her boyfriend thanks. It was so good to talk to someone other than my hubby 😁. My energy is coming back and I managed to walk nearly 10 miles over the weekend, slowly but I did it. I'm feeling much more positive now, the sunshine helps as well as company and a general feeling of getting better.

Badboob, have fun doing the housework 😉 It's so good to know that tomorrow is your final session. I'm so pleased that we've all managed to get to the end 👭 And a busy March for us surgery-wise, one a week by the look of it, Aneeebel on 6th, me on 13th and Badboob on 20th. 

I had a phone call on Thursday asking for a blood test prior to my mri tomorrow. It was too late to get to my gp so I've come into the hospital today early thinking I'd get it done prior to the lgfb workshop. Of course it's half term so no traffic on roads, no-one in blood test centre and now I'm killing time before the workshop 😉 The canteen tea is not up to much 😣 and healthy eating has started so no cakes or treats allowed 😣

I hope you're all well and have a lovely day. 🎀🎀 I'll let you know how I get on with the workshop 😁👄💄

💜Fiona xxx

 

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Re: October 2018 Chemo starters

Oh I never thought of that Badboob...may be it is about rads! Although, my surgeon said a decision would be made about rads after the tissue from my breast has been examined! Or it could be to do with my echocardiagram.... I'll find out on Wednesday!! I emailed the secretary to ask actually but although she replied she didn't really answer my question as to what it was for!! 🙄

 

My surgery is scheduled for the 6th March!!! 😫😫💔💔 

I am (very) slowly coming around to the idea!! I've got 2 Knitted Knockers... and 2 lovely heart shaped mastectomy pillows from Jens Friends 💗 💗

 

Hope you have a 'productive' day tidying up!! 🙄

Thankyou for for thinking about me x 🎀🌻💗

 

 

 

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Re: October 2018 Chemo starters

Oh goodness, Aneeebel don’t you just hate that 3.30 wake up! I think it’s all part of this blasted cancer rubbish that sneaks up behind us and gives us a shove! I am sorry that Fiona is having a wobble as well. I hope everyone else is doing well. I am sure Elliesmum is enjoying being spoilt by her super mum. Who is also welcome here in sunny Cambridge if she fancy’s a change 😉. 

 

I find a cup  of hot chocolate ( calories don’t count in the middle of the night) and a chat on the Macmillan site is a good way to pass the night time terrors. There is always some around on that site posting nonsense to cheer you up in the middle of the night so it nice to know that you are not alone feeling low.

 

Have you got your op date yet? I know how disappointed you are to have a mx. It’s rubbish and I am so sorry for you. It’s not easy for anyone to tell you that it will be ok, because it’s your body and you don’t want to lose a part of it! Can you get a second opinion? 

 

Maybe your oncologist wants  to discuss radiotherapy? Just a thought! 

 

I am am about to have a mad day before chemo tomorrow, I know I will feel rubbish for a week, so I must dung the house out and do some washing...while drinking 3 litres of water! 

 

Thanks for all good wishes, I can’t quite believe that this part is finally FINISHED! 🤪🎉💃💃🕺🕺🕺

 

Hugs

 

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Re: October 2018 Chemo starters

Morning Ladies...(very early...I've been awake since 3.30!) 🙄

 

ElliesMum... I didn't have blood tests before my Herceptin injection ...I didn't have b/p checked or temp checked either (I've put my thermometer away...I don't check my temp any more!) -the nurse just asked if I was okay and in it goes!! 💉💉💉 Some Ladies on the forum had said it was really painful but I didn't find it painful at all! 🎀

Hope everything goes well with your radiotherapy! 💪🎀 

Is your Mum enjoying her stay? I bet it's fabulous having your Mum over x 💗

 

Fiona...have you had a good w/e with your sister? Hope you're feeling a bit brighter! 🎀

 

Badboob...not long until you're done with 💩chemo!!!! Yippee! 🎀

 

I haven't done anything exciting...I've been to my lottie! My daughter and grandkids came for tea yesterday! Nearly ate me out of House and Home! 😂💙💗 My grandson is 14 and 6ft tall...he can eat for England! 😂

I finally feel relatively okay...just the odd bit of nausea and soooo tired, I don't know why I can't sleep!

I have an appt with my Oncologist on Wednesday which is rather random as she said she would see me at the end of March! I do wish they'd give you some indication what it was about!!!! I'll be grey before I'm 30 with all this worrying!! 🤣🤣👵👵🎀🎀

 

Have a good day Girls! 🌻🌷🌼

 

💗💪💗💪💗💪💗

 

 

 

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Re: October 2018 Chemo starters

Aneeebel, when you had the herceptin injection by itself did you need your blood counts checked first (or anything other than the usual blood pressure and temp checks)? Just trying to figure out if I am supposed to go in to the unit for a blood test tomorrow/Tuesday before herceptin on Wednesday.🤷‍♀️ Thanks!

 

Hope everyone had a lovely weekend! Xox 💕😘💕

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Re: October 2018 Chemo starters

I’m sorry you had a tough day, Fiona. I had a few wobbles the week or two after my last chemo. I was sick of feeling sick and just wanted everything to go back to “normal” immediately! 🤦‍♀️ I’m feeling much better now; hopefully you start to feel better soon too. Is your sister looking after you? I told my Mum that she was in demand - she laughed and said it’s the most appreciated she has felt for ages. 😂

 

Excellent to hear that you enjoyed the LGFB session, Badboob. Super impressed that the ratio of beauty advisors to patients was 1:1, so you got personal attention! 👍 I hope you have a fabulous time at your session on Monday, Fiona - and at work next week! 🤞🥰 

 

I hope you all have a wonderful Sunday. Xox 💪💕😘

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Re: October 2018 Chemo starters

Thankyou Badboob... Blackpool isn't that far away from me! I'll look into it x🎀


@Badboob wrote:

Aneeebel, I just gone though the goody bag I received yesterday and they had a list of hospitals that run the courses.

 

Nothing at Preston, but are these any good for you?  Blackpool, Victoria Hospital 01253 955710 or  Burnley General 01254 733362. Otherwise is Liverpool, Manchester or Oldham.

 

Best wishes


 

Member

Re: October 2018 Chemo starters

Aneeebel, I just gone though the goody bag I received yesterday and they had a list of hospitals that run the courses.

 

Nothing at Preston, but are these any good for you?  Blackpool, Victoria Hospital 01253 955710 or  Burnley General 01254 733362. Otherwise is Liverpool, Manchester or Oldham.

 

Best wishes

Member

Re: October 2018 Chemo starters

Fiona...my allotment isn't perfect..potter about a bit! I just like to go for a walk and sit in the sunshine for a while! It's in a lovely spot...the park is on one side of the allotment site and fields on the other so it's like being in the countryside! 🌻🌳🍁 Yes..you're right! Perfect for chilling! 

Sorry you're feeling so out of sorts... hopefully you'll start to buck up a bit soon! 

Have a good w/e with your sister..   💗🌻 x

 

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Re: October 2018 Chemo starters

Morning Ladies

Well we do all seem to be in a good mood today 😁

Badboob, such good news to hear that your final chemo is on.  I'll be thinking of you and celebrating for you 🍾 Its one more tick in the box 👍🏻 And your surgery will be knocking on the door soon. I think you're one week after me 👍🏻

I'd love to see this allotment of yours Aneeebel, you spend so much time there, it must be amazing. I suspect it is a good place to chill out 😎 and so lovely that your granddaughter wants to go there with you 😊

ElliesMum, can you please ship your mum up to Matlock. I could have done with her tlc yesterday 😉

My day went downhill yesterday, didn't feel brilliant but temp was ok. I'm still battling the oral thrush but can now say I think it is on the mend. It just all got to me I think. Id had enough of feeling ill, and all that cancer does to you. I miss being with people in the day so I'm really glad I'm going back to work next week. Part time of course 😉 So my mental state wasn't brilliant yesterday. I guess we all have these wobbles. It just felt like it was never ending, treatment, s/e's, hair loss etc etc.

I've got my Look Good Feel Better workshop on Monday and am really looking forward to it. I didn't think I'd want to do it when I booked it in November (yes they are that booked up at Chesterfield 😲) but I had eyelashes and brows then 😉 So I'm glad to hear that the workshops seem to be a success 👍🏻

I'm still on operation tidy up, I gave up yesterday 😲 

The sun is shining🌞 the frost is clearing ❄ I might even put the washing out today 😉

Ladies enjoy your day and the weekend 💪💪🎀🎀💐💐

💜Fiona xxx

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Re: October 2018 Chemo starters

 

 

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Re: October 2018 Chemo starters

Morning Ladies...

 

With regards to the Herceptin injections.... If the drug is delivered to the patients house the hospital don't pay VAT on it so the VAT money is used to pay the Nurse to go out to the patients house to administer it and so it takes a bit of pressure off the chemo unit, as in fewer patients arriving! It seems to be working well according to the Nurse! Apparently the injections cost a £1000 each! 

It didn't hurt at all when I was having the injection but my hips/legs have been aching like mad since yesterday! I had the Herceptin intravenously as part of my treatment! 😷🤕🤒

 

Good news that your bloods are okay Badboob... Fab news that you're 'good to go'! It's a wonderful feeling! 🎉🎉🎉🎉🎉 Was your Look Good sessions arranged through the hospital? How nice that you enjoyed it and got goodies too! 🎀

 

That sounds like 'a bit of a trek' ElliesMum...🚙🚗 Its a fab idea for you to move to Preston... One of our lovely nurses will come and see you to administer your injection! Much easier and you won't need to pay for the car park either!! 😂😂

I bet your Mum is loving staying with you...and the little duckling! So sweet! 💗

 

Im looking after my Grandaughter today...it's a lovely day so no doubt we'll find something to do! She said she wants to go to the allotment so we'll probably potter around down there for a bit! We're easily pleased! Haha! 

 

Hope you're feeling okay 💜Fiona! 🎀

And you too Sar_ah... 🎀

 

Have a good day Girls 🎀

 

💗💪🏼💗💪🏼💗💪🏼💗

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Re: October 2018 Chemo starters

I’m so pleased you enjoyed the Look Good Feel Better session, Badboob! Excellent news that you’re all set for your final chemo on Tuesday. Woohoo! 🙌 

 

Aneeebel, I’m super impressed that you have a nurse come to your home to administer the herceptin injection. Like Badboob, I have to head to the chemo unit for mine. In fact, on Wednesday I get to visit the cancer unit in two different hospitals: Warwick in the morning, for herceptin, then Coventry in the afternoon, for my first radiotherapy session. That will be a fun day! 😳🤦‍♀️ Badboob, I think we should both move to Preston with Aneeebel! 😂

 

My Mum is amazing 😊 I’m so spoilt! My little girl adores her Nanna and has been following her around everywhere like a little duckling. 🐥 It’s lovely to watch.

 

Fiona, if it makes you feel any better you’re certainly not alone with the night sweats. I feel freezing, so rug up warm, then wake drenched in sweat and have to strip off layers and throw the covers off. It doesn’t help that I have a wriggly (and hot!) little person that frequently joins us at midnight... 🙈 I don’t know if it is a coincidence, but the last few nights have been a little better. Fingers crossed it improves for you! Will you head out for a walk today? It looks to be another glorious day here!

 

Big hugs to you too Sar_ah!

 

Xox 💕😘💪

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Re: October 2018 Chemo starters

Morning lovely ladies, I hope we are all perky on this frosty morning. 🤩.

 

Just been catching up on all your news, it’s seems you are all slowly recovering from the poopy poop of chemo, well done. 

 

Oh Elliesmum, your mum sounds amazing, and if you don’t mind me saying, knows her girl rather well.😂. I can just imagine her having a sneaky peak in your fridge and thinking, right I got to take control here and then nipping out to Tesco, and as for the gym on the same day, blimey she must be bionic! Enjoy her stay.

 

Aneeebel, I am impressed that you get your Herceptin jab at home! Is that your Health trusts policy? And I have heard that it hurts like hell, but yours seems to have been pretty painless. Thank goodness. I am also impressed that you have had them all the way though chemo, so you only have 12 more to go. I will restart Herceptin in three weeks and my choice is either Cambridge in the oncology unit ( half an hour away, terrible parking, very busy unit) or Haverhill health centre. (3/4 hour away, easy parking) so not much of a choice. I have also worked out they my last one will be in early October which seem a life time away!

 

Fiona, glad you are getting on ok but I hope the night sweats subside, I expect  that it’s your hormones mucking you around. I presume you are pre menopausal and it’s all the drugs confusing your poor body. It’s hard for partners when we are thrashing about! 😁

 

Sa_rah, I hope you are ok too.

 

All good yesterday with bloods etc, so now I can look forward to Tuesday and the end of chemo!🥳🤪🤩🕺💃🎉

 

Finally, I had a great time at the Look Good Feel Good session. If you get the chance to go on one of these, take it. Only 6 of us chemo ladies with 6 beauty therapists! So we were really spoilt and an amazing bag of goodies to take home. 

 

Hugs

 

 

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Re: October 2018 Chemo starters

Hi Ladies 🎀

 

The injection was fine... The Herceptin was delivered to my house at the weekend, the Chemo Nurse comes out to my house to administer it... It is injected into the front of your leg, at the top..."where there is a bit of meat!" and done quite slowly! The nurse then waits for 30 mins to check you're okay! My legs/joints are quite achey today... I think that's a s/e of Herceptin! 🙄🤒🤕

Are you having your injections at home ElliesMum?? 🎀

💜Fiona...the injections are every 3 weeks! 🎀

 

Good news that you managed your walk 💜Fiona! 🚶🏼🚶🏼🚶🏼 I've been to my allotment again...it's a glorious day here in Lancashire! Hope you have a fab w/end with your sister 👭 💗

 

Your Mum was on the ball ElliesMum...shopping and gym on her 1st day! I bet your little one is enjoying having her Grandma spoiling her! 👶🏼 

Good news that you have your date for rads...apparently you're only in the rads machine for 2 minutes (literally)... My friend had it a couple of years ago! 💪🏼🎀

 

How are you doing Sar_ah? Are you any better? 🎀

Bad_boob...not long until your final chemo!! It's on Tuesday isn't it! 🎀

 

I could do with a nap...I feel so weary! 😴 Is it too early to go to bed?? Haha! 

 

Have a a good day Girls x 💗💐❤️

 

💗💪🏼💗💪🏼💗💪🏼💗

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Re: October 2018 Chemo starters

Glad to hear your mum's arrived safely, ElliesMum. She doesn't waste any time does she? Shopping and gym on her day of arrival! It's tired me out just thinking about it.

And great news on your rads start date. The sooner you start the sooner it's all over. Fingers crossed it all goes well for you 🤞🏻

I'm feeling a bit better each day thank you. I think a lot of it is mental because i know ive finished chemo.

Yes, Aneeebel , I did 2.3 miles yesterday which included 3 inclines which felt like mountains but I managed them very slowly without stopping or feeling sick so huge achievement for me now 😁👍🏻

I've got the Macmillan move more DVD and might start that next week and have also ordered Dr Yoga's breast cancer yoga DVD to try and get some strength back.

I'm on operation housework before my sister turns up tomorrow night. I don't know why I'm so bothered, she's not the most houseproud person I've ever met 😉

Are the Herceptin injections just a 5 minute job? I presume you still have to go into the chemo unit for these? Forgive my ignorance but I'm not on it so don't know. How often will they be?

Well ladies enjoy your day, I hope everyone is well 💪🎀🤗

💜Fiona xxx

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Re: October 2018 Chemo starters

Great news about your PICC line, Aneeebel! I was so pleased to get my Hickman line out. I have a new appreciation for how fabulous having a shower is! 🚿 How was having herceptin without chemo? Sadly I’m not as far along as you (I was told they can’t give herceptin alongside FEC as both can cause heart issues) so I have 16 herceptin injections to go. 🙈 I’m hoping the herceptin-only side effects are very mild! 🤞

 

How are you going, Fiona, Sar_ah and Badboob? I hope you’re all feeling ok. Fiona and Sar_ah, are you starting to emerge from the chemo fog yet? Hopefully each day you are feeling a bit better than the last!!! When is your final chemo, Badboob? I seem to have lost track of your treatment schedule (sorry!) and I don’t want to miss celebrating your final session! 🥳

 

My fabulous Mum arrived safely yesterday. I managed to fit in a grocery shop in the morning, and proudly displayed the food in the fridge and pantry. Mum insisted on doing another grocery shop “just to get one or two items” I had overlooked... and she came back with several full bags! 🤦‍♀️ At least I made an effort. 🤷‍♀️ My Mum is very fit and active and so wasted no time in joining the local gym. She signed me up too, 😂 so I had my first gym session yesterday. The attempt to get fit starts now!💪

 

I received confirmation of my radiotherapy start date yesterday. I start in 6 days!?! Sooner than I expected, although it will be good to get it over and done with. I don’t know how other people have juggled radiotherapy and work... I might need to read up on some of the other threads to see what people managed. I would like to work throughout, but may need to work from home as I suspect travelling north for treatment (Coventry) then south for work (Oxford) every day will be too tiring - not to mention time consuming. 🚙 🚂 

 

I hope you all have a wonderful Thursday (and Valentine’s Day)! Xox 💐💕😘

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Re: October 2018 Chemo starters

Hi Ladies 🎀

 

💜Fiona..the night sweats don't sound like fun!

I had phases where I was frozen to me marrow and then the next thing I would be boiling...my hubby said he was fed up of faffing with the central heating! Haha!

Hopefully you'll feel well enough to go to work next week! 💪🎀

Did you manage to go for a walk?🚶‍♀️🚶‍♀️🚶‍♀️Hope you had a better day x 🎀

 

I was very brave and went to the chemo unit to have my picc line removed! To be honest..I was scared to death! I don't do gory things very well! I had a bit of a sweat going on!! Haha! But at least it's out...💪

(I only shouted Oh 💩 once!! 😂)

I had my first Herceptin injection yesterday and found out that as I've had Herceptin with my chemo every cycle I'll only need 12 injections as opposed to 18, so that's good news! 💉💉💉

 

How are you other Ladies? Hope you're well! 🎀🌻

 

Stay strong Girls 💪💛🌻

 

💗💪💗💪💗💪💗

 

 

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Re: October 2018 Chemo starters

Morning Ladies

 

I hope you've written your shopping list ElliesMum 🤣 Seriously, though, have a fantastic time with your mum and hopefully she'll spoil you after what you've been through. You deserve it 🤗🎀

I hope all you other ladies are doing ok. It sounds like all the dates are starting to come good with everyone now. We just need to get you Badboob through your last chemo and we can all celebrate 🍰🍾🍷 I really can't wait to get some normality back in my life , to take back control. I was supposed to go into work for a meeting today but hubby decided it was probably best if I didn't do it. I'm definitely going to start back next week. This 💩 can't take control of me any longer.

S/e's are reasonable (Oral thrush again). But the night sweats are awful. I've got all the bedroom windows open, whole body out of the covers and I'm still melting. When will it ever end? I'd like to sleep for 2 hours without being woken up because of the night sweat 😴

I couldn't manage a walk yesterday (had a bit of a moment when I thought I was going to pass out or be sick at the table) so I need to get one in today, best do it early before I get tired again 🚶‍♀️

I hope you all have a great day, I think the weather is going to be quite good today in Matlock. 

Take care ladies 🤗🤗🎀🎀💪💪

💜Fiona xxx

 

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Re: October 2018 Chemo starters

6 months is ages.... 😍💗

I'm excited for you! Ha! 

 

😍😍😍😍😍😍


@ElliesMum wrote:

Haha no, I haven’t been grocery shopping yet. 🙈 Thanks for the reminder, Aneeebel! 😂 I’m taking tomorrow off work and I’m not collecting my Mum until 11 am, so I’ll have a few hours to get my act together in the morning...🤞

 

I haven’t seen my Mum for 6 months. It’s not that long, but given the crap we’ve all been dealing with it will be great to see her. 💐

 

Have a great night everyone! Xox 🥰


 

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Re: October 2018 Chemo starters

Haha no, I haven’t been grocery shopping yet. 🙈 Thanks for the reminder, Aneeebel! 😂 I’m taking tomorrow off work and I’m not collecting my Mum until 11 am, so I’ll have a few hours to get my act together in the morning...🤞

 

I haven’t seen my Mum for 6 months. It’s not that long, but given the crap we’ve all been dealing with it will be great to see her. 💐

 

Have a great night everyone! Xox 🥰

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Re: October 2018 Chemo starters

Hi Ladies, hope you're all well 🌻

 

ElliesMum, Thankyou for being so kind and encouraging... 🌺

I know it makes sense to have a MX but it's been my biggest 'fear' since all this started 👙

I'll be okay! 

I bet you can't wait for your Mum to be here... How exciting! Is it a while since you saw her?

Have you got your shopping done!? 😉 Have a wonderful time and enjoy every minute with your Mum 💗

 

How are you other Ladies? 🎀

 

💗💪🏼💗💪🏼💗💪🏼💗

Member

Re: October 2018 Chemo starters

Excellent news on your appointment, Badboob. It’s great to have a timescale and to know what to expect for the surgery. The countdown is on for your final chemo too. Almost there now! 👍

 

Aneeebel, nothing I can say will make the situation any better. Needing a mastectomy is crappy. However, as others have said, it’s a case of needs must. My tumour was multi-focal, and the primary tumour was quite large (5.5 cm), so I wasn’t given the option to have a lumpectomy either. You’ve done the hard work and survived the horror that is chemo. 💪 I know I did things the other way around, but I honestly found recovering from surgery so much easier - physically and mentally. We are all different, but you might surprise yourself. You are so strong! 💕👊💐

 

How are you feeling, Sar_ah? Are you still feeling ok, Fiona? 🤞

 

I’m still waiting for confirmation on my radiotherapy appointments. It should be starting in a week from Friday, so fairly soon now! My lovely Mum arrives tomorrow - yay! 😊

 

Thinking if you all! Xox 😘

MBJ
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Re: October 2018 Chemo starters

Hi Badboob

Well that's good news for you then. A plan is always good and dates are even better gives us some control. Let us know how the look good session goes I hear they give lots of nice freebies. 

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Re: October 2018 Chemo starters

Blimey Fiona... You did well on your walk! It takes me all my time to walk around the supermarket!! 💪🏼💪🏼💪🏼🚶🏽🚶🏽🚶🏽Hope you managed to have a rest when you got back! 😴💤

 

Glad you had a good w/e ElliesMum...I bet it made a change to get out and about! 🎀

 

Badboob... I'm so pleased your appt went well... I bet you're relieved to have a date! 🎀

 

My appt went well...in so far as appointments go, however the BCN (my BCN was off) and my Surgeon probably now think I'm booloo as well!! 😂🙄🎀

Surgery in 3 very short weeks!!!!!!! 😫😫😳😳💔💔

 

Thanks for thinking about me x 🌺🌻

 

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Re: October 2018 Chemo starters

Afternoon everyone! Tail end Charlie here.😀

 

First of all thank you all for your positive vibes, they seem to have done the trick! I hope your day has gone well Aneeebel.🤞🤞🤞.  

 

So pleased you enjoyed your London trip,Elliesmum  even though we live only 40 minutes away on the train we still don’t get there enough. There is always so much to do and see. Hope your final chemo is being kind to you Fiona. Glad you are feeling better Sar_ ah.

 

My appointment lasted for two hours 😳😱. My surgeon was still unhappy. The results of the MRI seem to have confused things rather than made them clearer. I blame the cod liver oil tablet!  I think he was close to recommending a mastectomy ☹️, as he is worried about getting clear margins. He then had a good prod around of both good and bad boob before sending me off for a mammogram.

 

Half an hour later I am back to see him for the results and now he has a clearer view, he’s happy! He will do a slightly larger lumpectomy and if he doesn’t get clear margins, then we can talk about the next step if we need to at the post op review meeting. What a relief! 🕺🕺

 

So he then whips his diary out and says “how’s the 20th March for you? I could have kissed him 😳.

So then it’s off to the day surgery  unit to get booked in for pre op assessment on the 11th March! I have all my consent forms as well to read. Amazing service. Well done NHS! 

 

Back to the hospital to see the oncologist on Thursday for my pre chemo bloods etc. I have also booked myself in on the Look Good Feel Good session at the Maggie centre ( I thought I would give them a challenge! 😂😂) and then final chemo next Tuesday. THANK GOODNESS! 

 

Thanks for all all your support! 😘😘😘

 

Hugs 

 

 

 

 

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Re: October 2018 Chemo starters

Good afternoon lovely ladies. Thanks to all of you for your kind wishes for a fabulous weekend. Clearly the good vibes you were sending my way worked, as we had a really lovely time in London! 💕😊 Saw lots of things we had previously just walked past (went up Wellington Arch and the fire of London Monument, for example), making the most of our English Heritage membership. Walking around all day was tiring, but in a good way. I just went to bed at the same time as the 18 month old! 😂

 

How did your appointments go today, Badboob and Aneeebel? Are you starting to feel better, Sar_ah? Great work on your walk, Fiona! 👍

 

I hope you’ve all had a good Monday. 😘💐💪 Xox 

Member

Re: October 2018 Chemo starters

Morning Ladies

First of all, fingers crossed today for you Aneeebel and Badboob. I hope your meetings go well 🤞🏻🎀

As for me, I'm doing ok so far thank you. The s/e's are being reasonably kind this time at the moment. I've just done a 2 mile stroll so I'm set up for the day now 😁 A bit of me time with luck 🤞🏻

Big hugs 🤗🤗

💜Fiona xxx

 

Member

Re: October 2018 Chemo starters

Morning Ladies 

 

I'll be thinking about you today today Badboob...hopefully you'll find out more about your surgery at your appointment -I know you're keen to get the info! 🎀👙😘

 

How are you feeling Sar_ah? 🎀

 

Did you have a good weekend in London ElliesMum? 🎡🎀

 

Did you have a good w/end 💜Fiona? 🎀

 

Its a lovely day here in Lancashire... Have a good day Girls xx 🌞🎀💐

 

💗💪🏼💗💪🏼💗💪🏼💗

MBJ
Member

Re: October 2018 Chemo starters

Hi Aneebel

I am so glad you enjoyed your alotment this afternoon. I have been cleaning out my fridge! Boring. Good luck with the surgery I can now see why you are not having an implant. I had to wait a few extra weeks to have chemo because implants don't like that either. Between I have a new Knee a new boob and shortly a few new stick on hair styles there is a wonder I won't be in the Guinness book of Records soon. You have got to laugh 😁it's better than crying😪.

Member

Re: October 2018 Chemo starters

Bless you Aneeebel 😘 We all have our wobbles don't we but we're all with you in this.

 

Yes i did have an mri before chemo and the idea was still a lumpectomy but even though I know Humphrey has shrunk I still fear it's not shrunk enough and I'll need a mx. This 2nd mri is to see what chemo has done to it 💪

I'm glad you got to your allotment 🤗

Take care and big hugs to you all 🤗🤗

💜Fiona xxx

Member

Re: October 2018 Chemo starters

💜Fiona... Yes, your right... Chemo has been total 💩💩💩💩... And a mastectomy does make perfect sense... BUT I still can't bear the thought of it if I'm honest!!! 👙

Did you not have an Mri before you started chemo? The spiculations in my breast only showed up by Mri...hadn't shown on my mammogram hence the decision changed from WLE to Mx! 🎀🎀

 

Hi MBJ... Thanks for the advice, you're very kind! I won't be having a recon straight away as the plan is for me to have radiotherapy and they won't risk a reconstruction being damaged by rads, so would have to wait a year!

As for coping with chemo...you may be one of the lucky ones and don't suffer with side effects! Fingers crossed! Drink plenty of water, take the meds as advised by your team and listen to your body! Hopefully, you'll sail through chemo and you'll be coming out 'the other side' before you know it! 🎀Thankyou for thinking of me X 🌻🌺🌸🌼

 

We had a good couple of hours on the lottie...tidied up a bit, my daughter did some weeding and we had a picnic and a brew!!! 🌞And Mr Sunshine came out eventually! 

 

Thanks for for thinking about me Ladies...I probably sound ridiculous but thats what is going around in my head! 😫🙄👙😳😘 x

 

Member

Re: October 2018 Chemo starters

Oh Aneeebel, sending you big hugs 🤗🤗🤗

It's not an easy thing to cope with and like Badboob I'm "only" having a lumpectomy (depending on the results of the MRI). But we have come through chemo and you've done remarkably well 😘🎀 I know you're attached to your boob, but it's for the best. I'd have a mx if it was necessary, anything to stop it coming back. That's what we're all afraid of isn't it?

You'll hopefully feel better after meeting your surgeon tomorrow. It's still scary but it's one step closer to the end of tbis nightmare 🤗

Let us know how you get on and enjoy your stroll to the allotment 😘

💜Fiona xxx

MBJ
Member

Re: October 2018 Chemo starters

Dear Aneebel

I am sorry you are feeling so afraid I am feeling fear too as I start chemo on the 20th February. I joined the February thread. You have coped with chemotherapy then you can definitely deal with surgery. I had a mastectomy with reconstruction (my choice I was offered lumpectomy and radiotherapy) last November and three weeks later had lymph node clearance. Yes I won't lie to you it's not a painless process but at least you don't feel systemically unwell. So when the chocolates arrive you feel like tucking in. My hospital suggested that paracetamol would be sufficient pain relief but it's not. If you can take anti inflammatories than do also I found co codamol very good. If you are having a reconstruction then the bras as VERY important. I got measured in M/S the result was the bra was far too small. So my advice is buy a sports bra that is at least one if not two sizes bigger around your chest area than usual otherwise it will be far too uncomfortable. I think I bout about 30 in two weeks and sent back about 25. I found "comfortable" bras from Amazon called Wings of Love. They are too big for me now but post surgery they were the best. Since I have been wearing normal bras I like the Miss Mary of Sweeden site. Not cheap but very supportive and I only have a 36B. 

I think for us and anyone it's fear of the unknown and this life we are leading at the moment just keeps on changing all the time. 

My other advice is to do your excercises to get your arm movements going. Eat well sleep a lot if you don't have one get a V shaped pillow so much more comfortable in bed and when you are resting downstairs. 

But my biggest and strongest advice is get the best bra you can and change it a few times of the day as they all seem to be uncomfortable it slightly different places.

I would be greatfully to you for some tips and advice of how I am going to cope with chemotherapy. Even when I am writing it I still don't think I believe it is going to happen. 

Take care and let us know how you are doing.  X from MBj form February thread

MBJ
Member

Re: October 2018 Chemo starters

Dear Aneebel

I am sorry you are feeling so afraid I am feeling fear too as I start chemo on the 20th February. I joined the February thread. You have coped with chemotherapy then you can definitely deal with surgery. I had a mastectomy with reconstruction (my choice I was offered lumpectomy and radiotherapy) last November and three weeks later had lymph node clearance. Yes I won't lie to you it's not a painless process but at least you don't feel systemically unwell. So when the chocolates arrive you feel like tucking in. My hospital suggested that paracetamol would be sufficient pain relief but it's not. If you can take anti inflammatories than do also I found co codamol very good. If you are having a reconstruction then the bras as VERY important. I got measured in M/S the result was the bra was far too small. So my advice is buy a sports bra that is at least one if not two sizes bigger around your chest area than usual otherwise it will be far too uncomfortable. I think I bout about 30 in two weeks and sent back about 25. I found "comfortable" bras from Amazon called Wings of Love. They are too big for me now but post surgery they were the best. Since I have been wearing normal bras I like the Miss Mary of Sweeden site. Not cheap but very supportive and I only have a 36B. 

I think for us and anyone it's fear of the unknown and this life we are leading at the moment just keeps on changing all the time. 

My other advice is to do your excercises to get your arm movements going. Eat well sleep a lot if you don't have one get a V shaped pillow so much more comfortable in bed and when you are resting downstairs. 

But my biggest and strongest advice is get the best bra you can and change it a few times of the day as they all seem to be uncomfortable it slightly different places.

I would be greatfully to you for some tips and advice of how I am going to cope with chemotherapy. Even when I am writing it I still don't think I believe it is going to happen. 

Take care and let us know how you are doing.  X from MBj form February thread

Member

Re: October 2018 Chemo starters

Initially I was going to have a lumpectomy but my Mri showed spiculations running 5 cms from my primary tumour so the decision was changed to a mastectomy! 😫

I know it makes absolute perfect sense Badboob...it's just that my head cant hack it!

And it's not "only" a lumpectomy... it's still bloody horrid!! 😘🌻 

 

I'll be thinking about you too... let us know how you get on! (I'll give my head a wobble before tomorrow!!!!) 🎀 x

Member

Re: October 2018 Chemo starters

Oh, I do know how you feel. , Aneeebel. I know I am “only” facing a lumpectomy 😉 , but I think if a mastectomy was necessary and would ensure, as much as possible that this nightmare was over, then I wouldn’t hesitate. My greatest fear is it coming back.......I will try anything to stop that......

 

Good luck with your appointment, I shall think of you while I am waiting for mine!

 

Sending positive vibes xx🤪

 

 

Member

Re: October 2018 Chemo starters

Thanks for the hug Badboob.... Logically, the op makes sense, I know all that but I love my boob...we've been together a long time!!! 💔😫 x 

 

Member

Re: October 2018 Chemo starters

Oh Aneeebel! I am so sorry you are so distressed 😫 It’s not fair, is it. Our emotional strength has been completely drained by the chemo poo and now you have to face a horrid operation. It’s the pits!😱😥.

 

A great big hug for you.....😘

Member

Re: October 2018 Chemo starters

Morning Ladies 🌞

 

Sar_ah...How are you feeling? Did you make it home last night? 💐🎀

 

💜Fiona...hopefully you'll be well enough to go to work! I'm not planning on going back until I've fully recovered from my surgery! 🤕🤒😷👙

 

The wind has died down at last...I might have a walk over to my allotment and check it's still in one piece! It's not that far from us so it's a nice little walk over the fields when you can't walk and breathe at the same time!! Ha! We've only had the lottie a year but I love going... I've even got a camping stove and a kettle so I can make a brew! Simple things, eh!! 🍅🍓🍊🍐☕️

 

I have my appointment with my surgeon tomorrow.... I don't want to go!!!!!! 😫😫😫😫😫

It's too scary and horrid.... the "op" is getting closer....too bloody close!!! 😫😫😫😫😫

I can't think about it without panicking!!! 😫😫😫😫😫

I can't even remember the questions I wanted to ask!!!!  😫😫😫😫😫

(Sorry if I sound completely booloo but my head can't hack it!) 🎀👙💔

 

Have a nice day Girls... 🎀

 

💗💪🏼💗💪🏼💗💪🏼💗

 

 

 

 

 

Member

Re: October 2018 Chemo starters

Afternoon, 

I’ve avoided people who I know are ill, like if friends/family have colds etc but to be honest some of it has been unavoidable, I’ve lost count of the times my daughter who is never sick has been sick on me since October! You can only do your best, my reasoning to myself has been it’s a balance our mental well-being is so important to so if we need to get out a bit for that then so be it.   I’ve got myself into a little routine I go to a Pilate class twice a week, it gets me out, helps with side effects I’ve found and I get to see people but don’t have to be near or talk if I don’t want too.   I hope that helps! 

Like everyone else I don’t know where I would without this group 💕

i think I’m going to have a chat with my occupational health next week and see if we can make a plan, I’ve got so my training to catch up on that will keep me busy! 

Well im still in the ever lovely Southend hospital, looking forward to hopefully seeing the outside world before darkness.   Have a lovely weekend all xx

Member

Re: October 2018 Chemo starters

I couldn't agree more Aneeebel, this forum has been a life saver for me too to be able to talk with other ladies going through exactly the same as me. As Shi said, we must meet up when all this is done 💐🎀💪

I'm pleased to hear you and hubby are both getting there Aneeebel 🤗

Sar_ah, I did work a bit during the first 3 cycles but changing to Docetaxal completely whacked me. However I'm fortunate that I can work from home fairly easily. I'm planning on going back for a couple of days each week after next week if I'm up to it 😉

Just been for a short walk, it's blow out there so take care ladies 🌬

Enjoy London ElliesMum 🎡

💪🎀💐

💜Fiona xxx

 

Member

Re: October 2018 Chemo starters

Hi DiKat.. 

I tried not to go into crowded places or let anyone in my house who had bugs for the first 7-10 days but I did go for walks when I felt well enough! Unfortunately chemo didn't like me very much so I did spend some time just lounging around as i had zero energy! 

I didn't really go overboard trying to stay away from people altogether...I was just careful! 🤧🤕🤒 x

 

Member

Re: October 2018 Chemo starters

Morning all of you lovely ladies that are nearing the end of your chemo. I’m December so half way there! I just wondered if I could ask your advice about how you handled things during the day 7-14 low immune phase. I have read that some of you have worked which I have found amazing. Unfortunately it’s been about day 13 before I’ve been able to function each time. However I do feel like I am locking myself away too much. Apart from generally feeling rubbish I became neutropenic sepsis after day 9 of first cycle and feel this has elevated my anxieties. I was in hospital for 5 days and they never did locate the source of the infection and again I think this has increased my anxiety as it would have been easier if I could have known what it was.

Anyhow ladies, your thoughts/advice would be gratefully appreciated.

Dont get blown away out there, very windy here on the East coast xx

Member

Re: October 2018 Chemo starters

Morning Ladies....🎀

 

ElliesMum....you're absolutely right...without the support of all the Ladies on here the world would have been a much lonlier place over the last 5 months...I've actually only spoken to one lady who had BC so it's been a Godsend to come onto the forum and "talk" to you all! so Thank you to you all from me too! 😘🎀🌻

 

You've done well to work 4 days ElliesMum.. I haven't got the energy... 

Sar_ah...I haven't worked through chemo, in fact, my BCN didn't advise it due to the risk of infection! To be honest, I've lost the ability to remember anything! My daughter's both said I've always been dateless so I can't blame chemo brain! Hahaa! 😂😋

 

Badboob...when is your last chemo? 🎀

 

I don't feel too bad now, still so tired tho but bucking up! My hubby has improved very slightly....insisted on going to watch rugby last night "as it was the first match of the season"... I don't think he was well enough to be honest...😷🙄🏈

 

Have a good w/e everyone...and Thank you for caring about me and my Hubby x 🎀🌻

 

💗💪💗💪💗💪💗

 

 

 

 

Member

Re: October 2018 Chemo starters

Such a lovely positive message Elliesmum Smiley Happy that’s an achievement   four days at work! 

Those that are working how do you think your manage it around the rads? I’ve been off work through chemo, I’m a community mh nurse and I don’t think would have managed the driving let alone the emotional impact, i work with ante and postnatal mothers which while the best job in the world can be hard emotionally at times.   I’m starting to think about going back but terrified I wouldn’t be able to manage the role anymore, it’s a really scary thought! 

Member

Re: October 2018 Chemo starters

Yay Sar_ah, excellent news that you can go home tomorrow! I hope you manage to get some rest tonight and wake feeling much better in the morning. 💐

 

Having your sister come and stay sounds lovely, Fiona. I hope she spoils you rotten! 🥰

 

How are you and your husband, Aneeebel? I hope you’re both finally on the mend. What does the weekend have in store for you, Badboob? 😊

 

I agree with the others, Kitkat18 and Trixielady, that chemo has gone much faster than I expected. It will all be over before you know it (and it sounds like you’re almost finished, Kitkat18), especially with the support of fabulous experienced ladies such as Shi and those on your monthly thread who are going through it all with you! 💪 Thank you, October 18 ladies, for being so amazing and fabulous throughout the last 5 months. I, for one, couldn’t have done it without you!!! We just need to get you to the finish line now, Badboob. 💕

 

I’ve managed 4 full days back at work this week. I’m super tired now 😂 but feeling really pleased that life is finally getting back to (a new kind of) normal. Bring on radiotherapy - and a new fitness regime! 🏃‍♀️

 

Have a fabulous weekend everyone! Thank you for the lovely wishes; I’m sure we will enjoy our weekend away! Xox 💕👊💐

Member

Re: October 2018 Chemo starters

Thank you for your messages ladies Smiley Happy been told I can go home tomorrow with ten days antibiotics, it’s been a long day but every time I’ve felt low today I’ve just thought of cod liver capsules 🤣 it really has made me giggle!! 

elliesmum have a brilliant break in London! Smiley Happy

hopefully time will go quick for you  Trixielady, looking back now it all seems to have gone so quick!

Fiona, well done on your last day! Hope you have a relaxing restful weekend!! Smiley Happy

aneeebel I hope you and your husband are feeling a bit better x

 

Member

Re: October 2018 Chemo starters

Thanks Trixielady. That's what I did, counted every single day down, so I have 20 days left of this cycle before I feel I can say chemo 💩 is finished. You'll be there soon enough. When I started in October, the end seemed a long way away but here I am as well as the other lovely ladies, just finished or about to finish 🤗🤗

💜Fiona xxx