03-01-2019 06:38 PM
03-01-2019 04:58 PM
Wonderful story Aneeebel! I am sure we will all have our Chemo moments by the end of this rubbish. Oh and bragging is definitely allowed here, it goes to show the little bit of light at the end of the tunnel.
Now then Fiona, Piles and thrush! All you need is a good dose of cystitis and you can have a prize. A tube of Anasol and some yoghurt! Actually, my sympathies, I would suggest you ask your doctor for some POM ointment and suppositories, and don't forget the nappyrash cream! I’ve only had thrush once, it was probably once of the worse things, talk about an itch you can’t scratch..........I am given antibiotics to take from day 8 BUT they do also give me an anti fungal to take as well so I have been fine in that department.
So sorry Sar_ah, that your chemo has been put back but you just have to trust your team and I hope you feel better soon.
Finally, some good news, my bloods are fine, so all set for next Tuesday and my tumour has shrunk. Thank goodness!
We now just need some good news from Elliesmum 😁😁
03-01-2019 03:05 PM - edited 03-01-2019 03:07 PM
Definitely not a good look Fiona!! 😂😂😂
Bizarrely enough... After having horrendous side effects with my first 3 chemos and several hospital stays...No 4 was relatively kind to me! I had a few hairy moments and I did end up in hospital with a high temp and the antibiotics gave me a dodgy tum for a few days (and my temp went up again...but don't tell anyone, particularly my daughters or I'll be in deep dodo! 😳) but on the whole I've been so much better! My oncologist was going to stop my chemo if I'd been ill again and she was very surprised when I wasn't!
I hope I don't sound like I'm 'bragging' about it when you all feel so awful because I certainly wouldn't do that!
Take care everyone 😘
03-01-2019 02:54 PM
03-01-2019 02:26 PM
03-01-2019 12:56 PM
03-01-2019 08:33 AM
NO APOLOGIES needed, Elliesmum! I absolutely get how you are feeling. We are all at similar stages with this chemo nonsense and it has now got beyond a joke! Just a hard slog. I too am amazed at how pathetic I’ve been and how out of character my mood has been. The wonderful things about this forum is that we we all absolutely get it when one of us kicks off. And it’s easier to do it here rather than with family!
Fiona’s right, chocolate is definitely the answer!
Good luck with your WBC, will be sending positive vibes.
Chin up everyone!
03-01-2019 08:01 AM
02-01-2019 10:17 PM
02-01-2019 09:31 PM
02-01-2019 08:41 PM - edited 02-01-2019 08:49 PM
ElliesMum...when I was in hospital last week my neutrophils were 0.62 but increased to 1.something over night so, fingers crossed, yours may recover in time! X
Good luck for tomorrow Badboob x
(Thanks for thinking about me for Friday!)
Hope everyone is as well as can be... stay strong!
02-01-2019 08:15 PM
02-01-2019 06:31 PM
What a bummer Elliesmum! I can only suggest rest. But as you say that’s easier said than done! You could get your OH to give you a massage. That is supposed to stimulate your WBC! 😉
I will keep everything crossed for you, I’ve got my oncology and bloods tomorrow plus an ultrasound to see if the chemo is doing it’s stuff. I blinking hope so!
Sending positive vibes.
02-01-2019 05:42 PM
02-01-2019 05:19 PM
@ElliesMum I'm afraid that, as far as I know, there are no "home remedies" for jumpstarting neutrophil levels. But that doesn't mean they can't jump overnight: from what I understand it takes 7 to 14 days for the bone marrow to produce mature neutrophils, ready for the blood, so things might just be lagging by a day or two compared to previous cycles. (There's usually a store of neutrophils in the marrow, but chemo hits that.) Are you already getting filgrastim/GCSF injections each cycle to help spur the marrow to produce neutrophils? I'm guessing so. Otherwise, I think it's just a matter of time. Delays are agonizing, I know, but unfortunately, they are sometimes necessary.
02-01-2019 04:28 PM
02-01-2019 12:52 PM
02-01-2019 10:56 AM
Badboob- you're not selling Docetaxel to me! I so want to get off this merry go round. Hopefully, EC will be much kinder to you than T - I think I'd rather go through FEC again than the next two Ts.
I've just phoned the hospital helpline and I'm off to the chemist now to get some Diflam mouthwash. I'd already started the Flucenazole tablets yesterday, so we'll see how I get on.
Take care ladies, and stay safe and warm.
02-01-2019 10:48 AM
First of all thank you all for your good wishes and kind posts. It’s great to know the support is out there when this poopy poop gets too much.
Docetaxel! Well what can I say. I have now had my fourth and last dose before moving onto EC next week. The symptoms you are all describing are very common. I had horrid mouth ulcers on cycle one. But not on the other three. Although my taste buts have disappeared. My skin has flared up on each cycle, it feels like I have fallen in a bed of nettles and throbs. It is now all over my hands, arms, chest, back and on this cycle my knees! Also on this cycle it has kept me awake for two nights, I rang my BCN who was if course AWOL, so in desperation I rang the emergency number. They suggested piriton, which I think helped a bit, but the funny thing about docetaxel is you suddenly feel much better from about day 15 and all the side effects subside! However, My nose has dripped constantly and my nails are very sore and a lovely shade of brown! I am finding it hard to do every day tasks with my fingers. Finally, I am now at world championships level for bursting into tears!
So ladies, that’s the joys of docetaxel, the good news is that I haven’t felt sick or had any joint pain, but I am expecting a whole load of different side effects with EC. At the end of the day if it’s doing it’s job then it’s worth it.
Stay strong everyone, stay strong.