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October 2018 Chemo starters

Community Champion

Re: October 2018 Chemo starters

Quick question for Aneeebel and Badboob (or any other HER2+ ladies): did you ever have a really painful/achey leg 🦵 after having herceptin? I had herceptin #7 today and had to get a taxi home from the unit as it was throbbing and I struggled to even limp (I walked there and had intended to walk home). I also planned on going in to work this afternoon but had to abandon that idea as every time I move my leg it hurts (even when sitting down). Don’t want to be overly dramatic and call the unit. It hasn’t happened to me with the previous injections. Has anyone else experienced this with herceptin? If so, did anything help ease the ache/throbbing/discomfort?

 

xox

Community Champion

Re: October 2018 Chemo starters

Oh no Aneeebel, you really are working your way through all of the possible side effects of the various treatments! 🙈😬 How extremely frustrating for you. It’s great that your team are being cautious, though, and have arranged for a MUGA scan to check things more precisely.

 

How many doses of herceptin have you had so far - was it #11 you were due yesterday? My oncologist was speaking with me about how herceptin can affect the heart before I started treatment, as I have a (very minor) underlying heart condition. My oncologist was telling me that she was part of a recent trial (yet to be published) that looked at the effectiveness of giving 9 doses of herceptin (instead of 18) and that they saw some really promising results. I’m definitely not an expert, but what I’m trying to say is that the doses you’ve already have will already be doing their thing and reducing the risk of recurrence. As with everything, your team needs to weigh up the risk of doing more harm than good. You probably know all of this already and don’t need me waffling on! Thinking of you and sending hugs! 😘💕💐

 

Fingers crosses it all goes smoothly for you with rads session #1 tomorrow Fiona. 🤞👍

 

Love to you all! Xox

Community Champion

Re: October 2018 Chemo starters

Thanks Fiona x 💗🤞🏻

 

I also went for an echocardiogram this morning prior to my herceptin inj... 

The radiographer had put my Ejection Fraction down as 45%-55%.. this is the bit that measures your blood flow (if I remember rightly) and the bit that the chemo nurse is interested in as it determines if you can have herceptin...the cut off point for the inj is 50%..if it goes lower you can't have it!

So because there was a wide range I couldn't have my herceptin...

my oncologist wants me to have a MUGA scan...this is a more specific scan of the heart!  I've never heard if it!

I'm going to be grey before I'm 30!!

👵🏻👵🏻👵🏻👵🏻

(Where's the prosecco...😂)

 

💕💕💕💕💕💕

Community Champion

Re: October 2018 Chemo starters

Oh Aneeebel, you do have it tough don't you? I've got everything crossed for you.

Shi, that therapy sounds a bit scary to me 😲 I think horses are magnificent creatures but I'm slightly too wary of them 🐎

ElliesMum, I can't wait for Thursday although the nerves are starting to kick in now. I just want to get started so I know what I'm dealing with.

Thanks all for replying, I think it's just sar_ah I'm waiting to hear from now. Sar_ah, I hope you had a good weekend? I've sent you a message about a meet up, hope to hear from you soon.

Have a great evening ladies 🤗🎀🤗🎀

💜Fiona xxx 

Community Champion

Re: October 2018 Chemo starters

Thankyou ElliesMum x 🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻

 

Fiona...you'll be surprised how quickly your rads sessions go..you'll soon be ringing the bell!!! Yippee!! 🔔🔔💗💗

 

💖💖💖💖💖

Community Champion

Re: October 2018 Chemo starters

My fingers are definitely crossed for you, Aneeebel! 🤞 Hope you manage to see your GP first thing tomorrow morning.

 

Great to heat that the equine therapy helped you, Shi. Sounds really interesting! 🐴 

 

Not long before rads starts for you, Fiona! It’s nearly the beginning of the end of treatment 😂 👍

 

Xox 💕

Community Champion

Re: October 2018 Chemo starters

Hi Fiona...

I went to see the physio... she said that the cording in my arm seems a lot better but she thinks I've got an infection under my arm and in my chest/mx area...my chest is really quite painful and swollen to be honest...so tender! She said that rads will have broken everything down...she suggested going to A+E if I couldn't get an appt at the kwaks! 😫

I tried to get an appt at the docs but none left...I went to A+E but the waiting time was 3-4 hours...so I came home! I'll have to ring the GP tomorrow! 

She's going to refer me to the Lymphoedema clinic "so I'm in the system" but if everything settles down after antibiotics I may not need to go... keep everything crossed!!! Im not having Lymphoedema and that's that!

Thanks for asking x 💪🏻💕

 

Hope you're all well Girls x 💖💕💗

Community Champion

Re: October 2018 Chemo starters

How did you get on with the physio today Aneeebel? How's your rash doing?

Hope you're all well, ladies 🤗🎀🤗🎀

💜Fiona xxx 

Community Champion

Re: October 2018 Chemo starters

Shi... how lovely! And fantastic that it was so beneficial to you! 😘🐎 x

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Macmillan fund 4 sessions ( you then have to pay for any further ones) you are buddy’d up with a horse and it’s amazing, if you look on the spirit and soul equine therapy website it will explain much better than I can, all I can tell you is it was the missing piece of the jigsaw puzzle that helped put me back together after finishing treatments 👍👍xx

Community Champion

Re: October 2018 Chemo starters

Thanks Shi x 🎀😘

Your open day sounds interesting...what did you actually do? 🐴💗

 

🐴🐴🐴

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

😘😘😘anneebel for tomorrow 😘😘you’ve all been very busy 😁😁 it was the spirit and soul equine therapy open day today, it was great, I do hope they manage to get more centres opened up round the country, it’s been a great experience, I would not have opened up in a clinical environment, this gently allowed the mental healing ❤️❤️I would have been proper bonkers without it. 💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Thankyou ElliesMum... Me too! x 😩🎀

Community Champion

Re: October 2018 Chemo starters

Best of luck with the physio tomorrow, Aneeebel! Fingers crossed she can sort out the cording for you and the other issues start to subside 🤞💕😘

Community Champion

Re: October 2018 Chemo starters

Hello Ladies 💗

 

Fiona...hope you enjoyed the beer festival...we've accumulated lots of glasses from beer festivals over the years so when we were moving house once I gave my hubby a box full to take to the tip along with lots of other stuff... He only brought the bloody things home!!! Said he wanted to keep them...they've now been in the attic for 5 years!!! 😂🍺🍻

Well done on losing all that weight!!! 💪🏼 💗

Not long until your rads....everything is crossed that it goes well! I'm sure you'll be fine! 💪🏼🎀

 

ElliesMum...fab news you managed the run 🏃🏼💪🏼 Have a lovely arvo with your little 🐥

I've just seen 2 swans with their cygnets on the side of the canal on my way back from the lottie.... I did chuckle when I saw a man walking down the path -he took a detour onto the fields when he saw the swans...they can be quite vicious can't they when they're looking after their babas! 

 

Badboob...hope you're well! 🎀💗

 

Sar_ah...Did you have a good weekend in Bournemouth? 😎

 

Im having a palava with my arm...it's still a bit painful when I stretch it from the cording but where my armpit is numb and spongey from surgery and I have the rash...the skin is coming away on a small patch plus I seem to be getting a slight rash on my chest where my mx wound is!!! I can't win!!! 

I have an appointment with my physio tomorrow so hopefully she will point me in the right direction!!! 

😩😩😩😩😩😩😩😩

 

Have a good day girls x 🌸🎀👙💗

 

Community Champion

Re: October 2018 Chemo starters

Apologies - first I couldn’t post my message, then it posted twice 🙈

Community Champion

Re: October 2018 Chemo starters

Haha Aneeebel heading to the pub with your lovely twin sister sounds like a fabulous way to spend your husband-free day! 😂

 

Fiona and Sar_ah, I’m really keen to meet up too! I can drive/jump on a train and happy to organise/help coordinate. Thanks for instigating things, Fiona! 🤗

 

It sounds like everyone is doing amazingly well with activities! Badboob off playing golf, Sar_ah back at yoga (running too?), Aneeebel pottering around the infamous lottie, Fiona making excellent progress running. What an awesome team! 👏 I did my first ever Parkrun on Saturday. It was so much fun! I highly recommend trying it. The Parkrun I went to didn’t have the “5k your way” tie-in, but it didn’t matter as everyone was so lovely and friendly. I decided to try and do a gentle “jog” (my competitive side simply wouldn’t let me walk 🙈), and so I did a very slow jog for 5k. Felt amazing. I went a lot quicker than I expected too - still very slow (beaten by lots of little kids!), but there were plenty of people moving at my pace and slower. It was a lovely day for it too. Definitely plan on going along again next week. I highly recommend it!

 

My little person is waking from her nap so I’ll post this now. Have a wonderful afternoon! Xox 💕😘💐

Community Champion

Re: October 2018 Chemo starters

Lol, Aneeebel, sounds like you had a good night 🥂 and who can blame you after everything you've been through. We attended our local beer festival on Saturday 🍻😉

ElliesMum, did you manage to do a Parkrun on Saturday? I've just got in from c25k, just finished week 3 🏃‍♀️ my pace was a bit slower but it felt a bit easier at least. I'm still as red as a tomato 🍅

Sar_ah, have you got back into your running? 

Badboob, any more full English breakfast shopping incidents 🤣 I think my hubby's got sympathetic chemo brain - he tried to put his phone in the dishwasher last week 😂

I hope you're all having a good Bank Holiday. I'm still trying to get a bit healthier and fitter ready for rads starting on Thursday. I've managed to lose 10lbs of my chemo gain of 1 stone (apologies for the younger ladies, I can't do kgs, it's like a foreign language to me😁). Then I need to lose another stone and a bit to be a "healthy" bmi weight.

I'm fairly at ease with the thought of rads at the moment, hopefully that feeling will continue throughout. I hope I can continue working through it all too. I've asked for mid afternoon appts and it's only 30 mins from work. Fingers crossed I don't get too tired with it all.

So how about a meet up then? First of all we need to private message email addresses. I'm happy to coordinate and I believe ElliesMum is too. I'd suggest we should meet up in the next couple of months if possible.

Well, enjoy the rest of the day. I'm off to see if my drunken bum of a hubby is in the land of nod still (he went out with his son last night 😉).

🤗🎀🤗🎀

💜Fiona xxx 

Community Champion

Re: October 2018 Chemo starters

Well...so much for having the house to myself...I ended up going out to the pub for tea and a couple (!!!!!) of drinks.....

I went out with my sis...we're twins! 🙎🏼🙎🏼 She's my best friend in the whole world! 👩‍❤️‍👩

 

Hope you all have a fab w/e x 💖🎀🍻 

Member

Re: October 2018 Chemo starters

Aneeebel a house to yourself sounds lovely Smiley Happy  I hope you have a good rest and enjoy the time. 

My thoughts are with you, and your family, hope you all get some answers soon.

thank you for the info re the travel insurance kip.  Like Ellie’s mum we have ours though the bank but we haven’t actually checked in all covered yet so def good to know Smiley Happy 

good luck tomorrow as well Ellie’s mum, let us know how you get on!

I’m so sorry I can’t remember who suggested it but I posted about my worries re the bone scan and osteoporosis and it’s really helped, it was so positive and the advice so helpful - thank you Smiley Happy and silly as it sounds I hadn’t even thought of it!! 🤦🏼‍♀️

Meeting sounds like a brilliant idea Smiley Happy I am so up for that! I’m pretty easy given enough notice can meet whenever.   I’m in Essex but happy to travel if that’s helps!? 

Community Champion

Re: October 2018 Chemo starters

Hi Ladies

 

Thankyou for thinking about me and the hugs and lovely kind thoughts... It means a lot to be honest! And thanks for thinking about my s-i-l and daughter... he will have to have biopsies etc so hopefully they'll get the show on the road asap! 😘

 

Fiona...have you tried looking on the comparison sites for insurance...you can declare illnesses and they give you a few quotes! Ours for Greece was only about £48 if I remember rightly! 

Well done on the walk... 🚶‍♀️🏃‍♀️

 

Badboob...you were a busy bee!! Remind me not to let you do my shopping tho! Hahaaa.. 

😂😂

 

ElliesMum... the back marker sounds like a fab idea! I could do that!! Haha! 🏃‍♀️🏃‍♀️

Have a good w/e with your in-laws! 👵🏻👴🏻👪

 

Sar_ah... hope you have a lovely time in Bournemouth! 😎

 

I'm soooooooooo tired today! I can barely lift my feet to walk... what's all that about! 🙄 I desperately need a sleep! 

 

Hope you all have a lovely w/e...my hubby and grandson are off to watch rugby for the whole day so I get the house all to myself!! Yippee!!! 🏠🏈😂😎🌞

 

Community Champion

Re: October 2018 Chemo starters

I forgot to add...

 

Fiona, we have travel insurance with our credit card. They were fabulous in refunding everything from the trips we had booked and had to cancel when I was diagnosed. It was so straightforward and painless! I spoke with them when organising the claim forms and they said that they could continue to offer us cover excluding anything BC related, or we could pay a small premium to include BC-related claims. So it may be worth checking if you have a policy through your credit card and, if so, if you can pay a small premium so that it covers all eventualities. (We're covered through a particular type of HSBC account.) Hope that helps!

 

I would so love to meet up with you lovely ladies!!! I'm happy to organise something, via email if that is easier or we could make preliminary plans here and confirm via private message. What dates/locations would suit people?

Community Champion

Re: October 2018 Chemo starters

Aneeebel, I have no words. I'm thinking of you and your family, especially your SIL. I'm certain that your mother would be so proud of you and the fabulous person that you are - on here, supporting others, even when you're dealing with so much yourself. You are such a strong woman! Xox Heart

 

Badboob, well done you getting back onto the golf course Smiley Happy As others have mentioned already, keep up the liquids and moisturising as the radiation after-effects continue for a week or two after treatment finishes. Wow, a 5 mile walk Fiona. Excellent work! I hope you're doing well too, Sar_ah. I think we'll head up to the north west tonight, so that my in laws can see little duckling, so I will probably try either the Chorley or Southport parkrun. Neither of those are involved with 5k your way, but I've checked the times of competitors in previous weeks and I'm confident I won't finish last so I'll give it a go anyway. Actually, a colleague at work helps to organise her local parkrun (Didcot) and was telling me that they have a back marker - a volunteer whose job it is to walk with the slowest person/people and then cross the finish line last. Isn't that a lovely idea!

 

Lots of love to you all!

xox

Kip Community Champion
Community Champion

Re: October 2018 Chemo starters

Hello FitMilan,

I have to sort holiday insurance myself and was wondering where to go, my Macmillan centre have given me a list of companies they have compiled from other cancer suffers.. I haven't tried any yet but worth a go..

Insurance Brokers

JD Travel Insurance 0344 247 4749

Orbis Insurance Services 01274 518393

Insurance Choice 01926 680319

 

Insurance Agencies

Freedom travel Insurance 01223 446914

InsureCancer (Medi Travelcover Ltd) 01252 780190 or 0845 6490190

Its So Easy Travel Insurance - 0330 6061422

AllClear Insurance 01708 339295

Free Spirit - 0800 1707704

World First - 0345 9080161

 

Also listed are:

www.able2travel.com

www.insurancewith.com

www.justravelcover.com

Explorer Travel 0800 0434003

MIA Travel Insurance 01268 783383

www.Community.macmillan.org.uk

Boots the Chemist offer competitive travel insurance policies too.

 

As I said I haven't tried any yet.. but might be something there.  Oh and my nurse said if you are finished active treatment to make sure you tell them that!

Kip

x

 

 

 

Community Champion

Re: October 2018 Chemo starters

Question for you Ladies. Who have you all used for travel insurance, given our "existing condition"? I've found myself with a quiet moment so thought I'd have a look and see how much it was. It doesn't seem particularly bad but if any if you have used insurance specifically for cancer could you let me know please?

💜Fiona xxx 

Community Champion

Re: October 2018 Chemo starters

Oh Aneeebel, sending you lots of big hugs and love 🤗. I can't imagine what it's like not having a parent but I hope you go up to your lottie and have a chat with your mum and fell her how fabulously you're doing . And what awful news about your SIL. 🤞🏻 he gets a care plan soon and is ok. What a 💩 time for you just when you thought life was starting to begin again. Don't forget, you know where we are when you need to let off steam 🤗

Badboob, so pleased to hear you've got back out on the golf course. Lol, I love what you came back with when you popped to the shop, maybe it was your subconscious telling you to have a breakfast 🤣 

I had one of those moments this week though. I was leaving work earlier this week, sat in my car pressing the button and wondering why it wouldn't start. I tried it about 3 times before I realised I was holding the window button, not the ignition button 😲 

It's another glorious day and I've already done a 5 mile walk 😁 I hope you all have a lovely day and great weekend.

ElliesMum, enjoy your Parkrun, which one are you doing?

Good to hear from you sar_ah, hope you're ok.

🤗🎀🤗🎀

💜Fiona xxx 

Member

Re: October 2018 Chemo starters

Wow badboob your physio sounds amazing! How positive Smiley Happy do let us know how you get on! 

I’m with you there in the memory!  It’s so frustrating! I’ve taken the other ladies advice and now alarms and reminders are my friends! And sooooo many lists, there all over the house 🤣!

Hope your all well and have some nice plans I’ve tried weekend! We’re currently making our way to Bournemouth! I’m so excited! It’s def my happy place Smiley Happy 

xx

Member

Re: October 2018 Chemo starters

Oh Aneeebel, so sorry to hear your news, life is very good at giving you a good kick when you are already down☹️. I do hope you SIL is treated quickly and he is soon on the road to recovery.  Quite frankly your family has had enough to cope with this year! I can also sympathise with you about your mum, I lost mine when I was in my late 20s nearly 40 years ago, and I still  “talk”  to her when I need to......it’s a grief you never really get over😢.

 

Had a mad day yesterday, 12 holes of golf, shopping, garden centre, and then  bridge in the evening, so knackered today, but it was fabulous not having to go to the hospital and being able to do ‘normal’ things! 😁😁 

 

I do hope you’ve recovered from your sick bug Fiona, I think we are all still trying to regain our strength after our ordeal and our resistance is still very low from anything going.  I have had a referral by my oncology team to a physio who specialise is getting cancer patients back to full fitness and helping them with life long diet and fitness programs. My posh hospital again! 😂😂 I had to phone her yesterday to change the appointment I was allocated and during the brief chat we had, it sounded really interesting, so I will keep you all posted.

 

My memory is also shocking, I popped out at the weekend to get some eggs and bananas from the village shop, only to return with bacon, mushrooms and a newspaper!  🤣🙄 it’s so unlike me and it’s now starting to really really annoy me. Even DH is starting to get exasperated..........

 

Enjoy the sunshine ladies, and don’t  get burnt🔥😉🌞

Hugs

 

 

Community Champion

Re: October 2018 Chemo starters

Shi...I will look after meself, thanks for caring x 😘🌸💚🎀

 

Thanks Sar_ah...hope you're well x 🎀🌻

 

Hope you're all well too Fiona, ElliesMum and Badboob... 🎀🌷🎀🌷🎀🌷🎀

 

Have a lovely day Ladies...I think the sun will have his hat on today...I'll have to go to my lottie and water my crops!! 🌞🌞🌞😎😎😎

 

Member

Re: October 2018 Chemo starters

I hope your ok Aneeebel, doesn’t sound like you’re having a great day to sound the least Smiley Sad   I hope your daughter and son-in-law are as ok as anyone can be in these situations, sending lots of love 💖.

congratulations Badboob on finishing rads! I hope you get to celebrate soon Smiley Happy it really is a strange feeling.

Ladies I think your all seriously impressive with all this exercise business Smiley Wink it’s flaming hard💪🏻

Good luck on park run Saturday Elliesmum, you’ve got this Smiley Happy

I think meeting up sounds like a lovely idea when everyone is ready, be nice to put faces to the people in my phone who have made this journey so much easier than what it could have been xxx 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Anneebel 🙏🙏for you all and very sorry to hear about your mum 😘 ❤️ You need to please look after yourself too lovely lady 😘💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Shi... it's imperative my s-i-l is okay... my daughter loves him with her whole heart... 

I'll be fine but Thankyou for thinking about me xx 💙💔

 

It's 9 years today since my darling mum went to heaven...I miss her more than words can say! She put up one hell of a fight against myeloma... myeloma won! Ba**ard!  💔💔💔 😢😢😢 x

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Anneebel glad your arm is feeling a little better 😘😘what about the rash? If things are tender, swollen, don’t feel quite right call your unit, they would rather you check everything with them ❤️ Hope your daughter and her partner are ok and there is a plan in place soon for his treatments ❤️❤️💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Hi Ladies

 

Fiona...I'm sure you don't look like a tomato, altho, the vision made me chuckle! 🍅🍅🍅

You're doing well with the exercise... I have to sit down to get my breath back when I get to my lottie and it only takes 15 minutes to walk it! 

its a lovely day in Lancashire too...  

They're my Great Tits Fiona...it's imperative you know all about them! Hahaaaa 🐦🐦🐦

We booked a hot air balloon ride for my hubbys birthday last year...we haven't done it yet as I've been "under the weather" but I need to get that organised!! Mind you...I've now started wondering if I'm brave enough to go up in one!!! 🎈🎈🎈🎈

My arm actually feels a bit better than yesterday thanks but mx area on my chest feels like it's swollen! 😳😳😳

 

My daughter texted me this morning to say that her partner went for the results of an MRI he'd had on his knee.... They assumed it would be something to do with a tendon or ligament but he has some type of cancerous lesion on his kneecap!! Bit of a shock to say the least!! 

 

Hope you're all well x 🌸👙🎀💗

 

 

 

Community Champion

Re: October 2018 Chemo starters

Well I've just got back from my jog/walk session 🏃‍♀️ Why do I always look like a tomato 🍅and sweat like a pig 🐖these days with any form of exercise 🤣 Aneeebel, I may be on the road to a fit(ish) me again but I'll never be slim, it's not in my genes 😉 

Another glorious day in the Derbyshire Dales and I can just see a hot air balloon floating over the hill 🎈 What a shame I'm going to work again today 🤔

How's the arm today Aneeebel? Can you get your husband to massage it to try and release any cording? You amaze me though, with everything life has thrown at you these past few months and you're still on about your tits 🤣🐦

I hope you don't have a headache this morning Badboob? 🍾 And now you're onto the letrozole. 🤞🏻it's ok for you. Does this mean now active treatment is over you can get back to your golf? 

Have a great day ladies 😎🤗🎀🤗🎀

💜Fiona xxx 

Community Champion

Re: October 2018 Chemo starters

You're a lovely clucky mother hen tho Shi... 🐦😘🎀💗🐔

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Badboob 💃🏻💃🏻🕺🕺💃🏻💃🏻😁😁😁well done finishing rads 😎😎keep drinking plenty of fluids and slapping the cream on, the sizzle usually continues for a bit after 😝anneebel sorry to be like a clucky mother hen, please get that rash checked out 😘😘💕💕✨✨Shi xx

Community Champion

Re: October 2018 Chemo starters

Hi Ladies

 

Blimey...there's lots going on tonight! 

 

Badboob...fabulous news that you're fully zapped!! Did you ring the bell? 🔔 Enjoy your bubbles!! Cheers! (Dont drink the whole bottle!!) 🍾🍸 💪🏼💗🎀

I saw my tits again this morning...you would think they were mine the way I keep waffling on about them! 🐦

 

Kip...thanks for the info! My physiotherapist has said she thinks I have cording but because I have swelling and a bit more pain she's going to see how I am next week and possibly refer me to the Lymphoedema clinic to be assessed! 😳

 

Fiona... Good news about your veggies... Mine are coming along nicely! It's actually quite satisfying for some strange reason eating your home grown fruit and veg! 🍓🍅🍐

Youll be as fit as fiddle soon with all your running and walking! 💪🏼💗

 

ElliesMum...good luck with your run! Did you get a pair of socks? 👣😂 You should get yourself a knitted knocker...you could always leave it at work for 'emergencies' 👙👙

 

My arm has improved slightly but my armpit and side are still spongey...although, my armpit is  completely numb from surgery.... I've had a rash under my arm for a couple of days too!

(Skin infection is a symptom of the dreaded Lymphoedema but I'm not having it so it must be a coincidence!!! 😳)

 

🌸🎀💗👙

 

Community Champion

Re: October 2018 Chemo starters

Have you been done on the spit roast Badboob? 🤣 Congratulations on getting to the end and enjoy that drink with your husband, you deserve it 😊🍾🍾 it's good to hear you've got through this time relatively easily. Now it's time to build up your strength and grow that hair ready for your big reveal in July 💇🏻‍♀️

ElliesMum, my sister used to have a running buggy for her youngest girl and it worked a treat 😉 I'm hoping to go for my next session tomorrow morning but I'm not up to a Parkrun yet, much as I'd love to be. I don't think they do the 5k Your Way at my nearest one but I'll investigate 🏃‍♀️

Aneeebel, how are you and how's your arm been today? You'd be proud of my veggies, I know I am 😁

Big hugs to you all 🤗🎀🤗🎀

💜Fiona xxx 

Community Champion

Re: October 2018 Chemo starters

Yay Badboob, you’re all done! 🤗💕🔔💐🍾 Have a fab celebration with your husband tonight. Try to refrain from chopping wood or setting bonfires! 🔥😂

 

xox

Member

Re: October 2018 Chemo starters

Well lovely ladies, that’s me cooked! I’m done to a turn. 😂 But seriously many thanks for all your good wishes, you know how much it means. 😘🤗 I’ve been so lucky with my Radiotherapy, squinty looks like she’s been sunbathing without her top on 😳, but apart from the occasional ants in my bra it’s been really easy. As I said I’ve been very very lucky. Fiona, I do hope you too will sail though as well,  I am sure that once you get started you will appreciate going to a nearby unit as the travelling every day had been a pain.  So now I get started with the dreaded Letrozole.

 

so pleased you enjoyed your Yoga, Elliesmum, my GP recommended it to me a couple of years ago when I popped a disk splitting logs.🙆‍♀️...............Don’t start..........I’ve been banned by DH from this, one of my favourite jobs while on chemo, my other ‘favourite job’ is bonfires and we all know how that ended🥴🔥🔥........................I am pretty rubbish at Yoga but I love the exercises and stretches and I definitely think the breathing exercises  helped during some of the more unpleasant procedures I’ve had during the past 8 months. Park runs are really popular now, our local attractions over 200 people on a Saturday and I just love the thought of you and your little one trying to do it together. She sounds like she is growing up fast. 

 

I am so sorry to hear about your painful arm Aneeebel, you’ve been though so much, I just hope they can sort it out quickly. But lovely news about your tits, whichever variety they are 😂😂😂.

 

DH rearranged his meeting, so a bottle of fizz will be opened a bit later! 🥂🍾 I shall drink to a healthy future for us all👭👭👭👭🤞.

 

Just you Fiona to go on the Rads roll a coaster, don’t worry, we are all with you ever step or zap.😘

 

Hugs

 

 

Kip Community Champion
Community Champion

Re: October 2018 Chemo starters

ElliesMum.. I've done that too.. gone out with out one in!   Just goes to show how comfortable you can become again in your own body... a pair of socks is a great idea! hee hee..

Kip

x

Community Champion

Re: October 2018 Chemo starters

Your veggie planting sounds amazing, Fiona! Good luck at work today 👍

 

Sounds like great advice, Kip!

 

I’ve just realised that I forgot to pop my prosthesis or softie in my bra this morning. Whoops! 😬 I’m now at work looking decidedly lopsided... I might buy some socks at lunchtime to try and even things up a little. Lucky I wore a loose floaty-style top today! 😂

Community Champion

Re: October 2018 Chemo starters

Oh Aneeebel, fingers crossed it's not lymphodema 🤞🏻

Badboob, it's nearly party time for you, woohoo 😁🍾 I hope you get to ring that bell loud 🔔🔔🔔 

I'm so pleased you've all managed to get through this, even though it's been an incredibly hard and emotional journey 👏👭

Yes Aneeebel,  DD has definitely dried up, a few weeks ago. Its so nice not to have to wear dressings and worry about what clothes to wear. My only issue with my clothes is they still don't fit 😠🥞 

How was your yoga class ElliesMum? I've just done my yoga DVD (for surviving breast cancer patients) and I've realised how little flexibility I have 😲 oh well, at least I'm giving it a go.

How's the lottie Aneeebel? All my pots are coming up, peas, lettuce, spinach, dwarf beans and even some sweet corn 🌽

Off to work again shortly. I've been ridiculously tired this past day or two And can only assume it's from the upset tummy at the weekend, followed by diet/healthy eating and exercise 🤔

Have a great day ladies and Badboob best of luck for today, looking forward to hearing how it goes 👭💪🔔

💜Fiona xxx 

Community Champion

Re: October 2018 Chemo starters

Yay Badboob, last day of rads! Woohoo! 💐🍾🥳🎊 I’m ringing a virtual bell for you too! 🔔 Fabulous work making it to the end of active treatment. Thanks for being so supportive throughout it all. 😘 Xox 

 

Aneeebel, I hope your arm settles down. How extremely frustrating for you!!! It’s great that your physio is being cautious and proactive, but “lymphoedema clinic” are two words none of us want to hear. 😢 Fingers crossed the massage did the trick and the pain eases for you. 🤞🤞🤞

 

My yoga class went really well, thanks. I’m absolutely rubbish at it (terrible balance, flat feet, minimal strength) but really enjoyed it. The instructor was excellent and it was exactly what I was looking for. It was a 90 minute class in the evening. I almost fell asleep in the 5 minutes of guided meditation at the end! 😂

 

Hope you’re having a good week, Fiona and Sar_ah. I’ve decided to do a Parkrun this weekend - for the first time ever. A colleague at work was telling me about the “5k your way” initiative that runs alongside several Parkruns on the last Sat of every month. It’s aimed at people who have/had cancer, as there are so many benefits from being active. While there is no way my knees will let me run 🏃‍♀️, I’m swallowing my pride and plan to walk it! Might even bring 🐥 along in her buggy (if she consents... getting very independent now and flat out refuses to get in her buggy some days as she is a “big girl”. What happened to my baby?!?) There is no way I can carry her for 5km! 😂 So I may “run” solo.

 

Have a lovely day ladies. I’ll ring the bell again for you Badboob (as this has ended up being such a long and meandering message, as usual 🤦‍♀️) 🔔🔔🔔🥂💕

Kip Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi Aneebel,  sorry to hear your arm is still painful.  I suffered with this after finishing rads too.  I had a cording which ran from my wrist to armpit and was painful to straighten my arm out.   I got someone to massage it vigorously for me as two thumbs pressing were better than me trying.   Eventually it did go but I was referred to lymphodema clinic too and they said I have mild lymphodema, it's very slight and not really visible.  They did some measurements to find out.  I have a sleeve but only need to wear it when doug heavy jobs, gardening or exercising so I tend to wear it around the house etc and then don't need it when I'm out.   I was guttered when they said as felt it was just another thing to deal with but now I see it as prevention to it getting worse.  Keep up with the arm exercises everyday and also massage that arm starting at the top and working downwards in upward strokes.  Hopefully you won't have the lymphodema but it's fine if caught quickly.

Kip

Community Champion

Re: October 2018 Chemo starters

Morning Ladies 🎀

 

Badboob... best wishes for your last rads today!! Are you ringing the bell? 🔔🔔🔔

We can all celebrate with you when you've finished!! 🍾🥂💗🎉

 

How did you get on at yoga ElliesMum? 💪🏻🎀

 

Fiona...has DD dried up completely now? 💛

 

Sar_ah...hope you're well 🎀

 

After I said the pains in my arm had eased off a bit on Monday...it decided to go painful again! The physio massaged it again..ouch! She's hoping it's from the aftereffects of rads but if it's no better when I go again next week she's referring me to the  lymphoedema clinic!! 😫😫

I'm not having lymphoedema...I flatly refuse!!!!!! 🤪 Keep everything crossed for me please! 😝😝

 

Have a good day x 🎀

 

 

 

Community Champion

Re: October 2018 Chemo starters

Fiona...the physio massaged my arm on Friday which improved the movement in it slightly almost straight away... Then over the w/e it was still quite restricted but today it's loosened up a bit... I've got another appointment on Tuesday (tomorrow) so hopefully it should improve again! 

She did say that it was probably rads that has caused it! 

No, it didn't pop but you feel like if it did pop it would be better! (If that makes sense!) 💪🏼

 

Glad you had a lovely walk...and a lovely glass of vino...  I nearly gave up drinking after the 'Prosecco night' but I've recovered... Phew!! 😂😂

 

Enjoy your yoga class ElliesMum 💪🏼 

 

💗🎀👙🌸

 

Community Champion

Re: October 2018 Chemo starters

Only Aneeebel could make a comment like that :-) I thought it was hilarious too and read it out to hubby ;-)

Gosh, I hadn't thought about the mx and balance issues.  I hope you all adjust well to that.

Aneeebel, how's the arm this afternoon?  Did the physio manage to "pop" it?  And if you need to have a nap, do so.  Your body has been through so much in the past few months, it needs a rest so just give in to it.

Yes, I'll get back into the arm exercises before rads so that I don't suffer too much.  Being the last of us to go through rads has some advantages - I've got all the great advice from you lovely ladies :-)

ElliesMum, have you settled back into work ok?  I'm so pleased I'm flexi time and work for my hubby!

What a lovely evening it's been here - we did manage a good walk this afternoon which was great, followed by a glass of rose!

Big hugs to you all xxx

 

 

Community Champion

Re: October 2018 Chemo starters

I hope your rads and herceptin went well today, Badboob. 💉 Only two days to go! 🤗 We can celebrate with you on here on with virtual 🍾 and then you can have the real stuff with your hubby when he gets home! 🥂 Keep up the moisturising. 🤞

 

Haha I laughed out loud at your Great Tits comment, Aneeebel, and got a very strange look from the person seated beside me on the train. 😂 I also had no idea that a mastectomy could affect your balance! I didn’t have much to take away (only a B cup 👙), but have had some balance issues. Mind you, I’ve always been a bit prone to fainting/feeling lightheaded anyway so hard to tell if it is due to surgery for me.🤷‍♀️ Good to know though! I hope the physio can continue to help you with your cording and recovery post-surgery and rads. And definitely take those naps!!! You’ve earned them! 😘

 

So sorry to hear that you were unwell, Fiona. I’m sure your Mum will have understood; these things can’t be helped. I hope you had a lovely walk this afternoon! 👍 I’m off to try out a new yoga class. I’ve not been to yoga or Pilates since going back to work. This class is very close to home and on an evening, so works well with work and giving duckling 🐥 dinner. Fingers crossed I can manage it! 🤞

 

Thanks Shi for always supporting us October18 ladies! 😘

 

Have a great evening ladies! 💕xox