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October 2018 Chemo starters

Kip
Member

Re: October 2018 Chemo starters

Hello ladies, sorry to just pop in,  im from the June chemo thread and was just having a thought about the nasty tongues and lack of taste buds due to chemo and remembered this tip.  Get the vitamin c tables (the ones jn a tube which you disolve jn water) and let half a tablet dissolve on your tongue, it helpa cut through the sliminess, yoh ccan do a whole one but they are quite sharp.  Juat a tip to pass on.

Kip

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Sarah 😘😘ring your team darling and speak to someone, they have seen everything and will be able to advise you and give you peace of mind. Keep 💪💪💪💪💪you can alll 🥊🥊🥊🥊this ❤️❤️❤️💕💕💕✨✨✨Shi xx
Member

Re: October 2018 Chemo starters

Hi FiMillan,
Read your post and just wanted to say 👋 I have a lump in my right breast 2.6mm and one in my armpit..My armpit one is painful and swollen and the boob one sort of well ‘moves’ a bit..i’ve Had 2 FEC so far and I think they say it’s shrinking a bit! I’m having my chemo up front too which frustrates me a little as although they say from biopsy & ultrasound it’s in 1 node sometimes it sounds like it’s spread more at the time of surgery. Just feels a bit weird having it in me too as I’d wished it could be removed ASAP!! Anyway we just have to trust the medical experts I guess! Have a great day all x
Member

Re: October 2018 Chemo starters

Hi Sarah

I can't really comment as I've not had surgery yet, doing chemo first but I would recommend you speak to your team about it asap. My lump Humphrey in my boob has a mate Patricia in the armpit. Both are hard, and the armpit one can hurt. I thought I could feel it growing recently but the BC consultant said that was due to the biopsy and poking and prodding.  The armpit tumour is more sensitive apparently.

Get it checked out as soon as you can so it can be dealt with if necessary or, fingers crossed, it's absolutely nothing to worry about and you can just focus on getting through chemo.

Thinking of you 💪💪

💜 Fiona xxx

Member

Re: October 2018 Chemo starters

Don’t know if anyone can help on this one. I have developed a lump under my armpit, (the side my cancer was) I noticed it at the end of last week and just assumed it was hormonal and would go away but it’s not, it hurts when I poke it’s too and feels quite hard. I’m 12 days into my cycle and feel ok other than the mystery lump.
I feel a bit silly asking but are lumps and bumps appearing just part of chemo!? I wasn’t really worried but I’m having a port fitted Thursday and my minds starting to run away with itself 🤦‍♀️
Member

Re: October 2018 Chemo starters

Thank you aneeebel, it sounds like it's going to be easy, my veins are a bit small but I'm drinking loads. I will ask if the district nurse can come in, but sometimes they can't come on the same day every week. We don't live to far from the hospital, only 12 miles, so if I have to go there, it's not a great problem. Feeling a bit nervous about tomorrow now, but I've got a busy evening, I hope that helps.
Member

Re: October 2018 Chemo starters

@pinklily I've had a picc line fitted... Was quite straight forward -had an ultra sound scan to check where my veins where and if they were suitable, I then had a local anaesthetic and the line was inserted, I then went for an X-ray to check it was in the right place and then you go back to the unit to have the picc line area cleaned and a dressing put on it... I couldn't really feel too pain afterwards, it's more like having a small cut...cleared up quickly and so much easier than having needles/canullas for treatment or blood tests! The district nurse comes out once a week to flush it and change the dressing! I would recommend it if you have the option! 💗💪🏼 x

Member

Re: October 2018 Chemo starters

Hi ladies, I just went for my follow-up on my mastectomy and the good news is that they did get clear margins. The tumor was 6 cm. Again, just saying...I don’t know how 14 consecutive years of mammograms could have missed that. Anyway, my doctors are saying eight rounds of chemo. Four rounds with epirubucin and cyclophosphamide and four rounds of docetaxel. My tumor is estrogen and progesterone receptor positive. Does anybody have any experience/advice on my type of tumor and the above mentioned chemotherapy?  Thanks in advance! 

Member

Re: October 2018 Chemo starters

Thanks reddi

 

I was hoping someone would say they could do walks, it helps me to think I might be able too as well, I know maybe the hills might be bit adventurous to start with, but it would make such a difference to get up there and see those views.

 

I'm not sure about using my ruck sack at the moment, I can't lift anything heavy with my right arm ever and I'm going to have the picc line in the left and I read I can't lift anything heavy with that arm, although what some people count as heavy, I don't. As you said, I will have to see how I feel, but the sooner I get walking, the better.

 

I got bitten by something two days ago, used the antisane cream and took a anti histamine tablet, but it's itching and still looks a bit angry, I'm worried that the chemo will cause it to become infected, I will have to see what they say on Wednesday. Good idea to carry a mini first aid kit, we've got one in the house, in the car and we both have one in our ruck sacks, hadn't thought about losing nose hair, but it must make a difference, just as well it's autumn and winter. Smiley Happy

 

As I'm starting with the EC and the Zometa for the first four sessions, I'm hoping the side affects will not be too bad, it's when they start to add the Paclitaxel as well once every week for 18 to 20 weeks that worries me more.

Member

Re: October 2018 Chemo starters

@pinklily Take it as it goes with the walking -- and treat yourself as you can! My OH and I are keen walkers, and it's been hugely helpful to my  spirits to keep it up. I've managed several 10-11 mile walks during chemo (at least one per cycle, often more), including a 3-day trip to the Wye Valley that involved carrying our "kit" on day 1 and 2 during week 3 of my 3rd cycle of FEC. It can be doable, though it all depends on how your body responds to each chemo regime.

 

I've found it best to plan a walk that allows for an "early out" in case I'm feeling tired or running short on water. This weekend, we did a 7-mile walk on both Saturday and Sunday -- late starts cut short by dusk/twilight. Both were on relatively flat ground, as I'm feeling it more now that I'm in cycle 5. I've found the taxane regime is harder, in terms of walking -- I'm more fatigued, whether from the specific drug (I've been prescribed docetaxel, not paclitaxel) or the cumulative effects, and I really feel the effects on my feet (soles weary, and a bit of peeling, but no worrying pressure blisters as yet). I also carry a little first aid kit with me -- antiseptic cream, plasters, antihistamines -- in case of bites/splinters/scratches, to reduce chance of infection and deal with extra sensitivity to any pollens in the air (losing nose hairs makes a big difference!). 

Member

Re: October 2018 Chemo starters

It's good to hear you have a lot of friends and a good family to support you lebbie, I'm sure that must make all the difference. It's just me and hubby and a few close friends, but the support I get from this board is wonderful. I don't know about treating myself after each session, I don't usually do anything like that, but if there is one thing I would look forward to, it would be a walk on the hills. We live by the sea, but love hill walking, probably won't be up to 11 mile walk, but maybe a gentle stroll will make me feel a bit like the old me. I'm glad my surgery is over, can't believe it's been 11 weeks tomorrow, just finished decorating the lounge and the bedroom and feel much fitter, even did a 7 mile walk six weeks after surgery, I just have to keep reminding myself not to lift anything heavy, even when it looks like I'm going to lift anything, hubby barks at me not to do it, I'm lucky to have someone who loves and cares for me so much, I fee so sorry for those who have to go through this on there own. xxx
Member

Re: October 2018 Chemo starters

Pinklily, a Limbo cover is perfect for showering with a PICC line. I was advised to buy one and, in a bid to be super organised, did so before having my line fitted. I believe some hospitals give them out (mine didn’t).

As an aside, given that I ended up with a Hickman line, I now have one surplus to requirements! 🤦‍♀️ I can send my unused Limbo cover to anyone who could use it - let me know if it could be useful and I can post it to you! Xox
Member

Re: October 2018 Chemo starters

Just wondered if having the picc line inserted is very uncomfortable and did anyone have any problems?

 

Also, I've got a Limbo arm cover that I used when I had surgery for golfers elbow, would this be suitable to use with the picc line when I shower or should the hospital give me something?

Member

Re: October 2018 Chemo starters

My second cycle is also the 1st. I must say I wasn’t entirely convinced by the swimming but we will see.
I’m hoping to go to Pilates tomorrow and taking a day at a time but I must say after that run (maybe not that day, it was a loooong day!!) I have felt more like me which I was really struggling with before.
Member

Re: October 2018 Chemo starters

Great work with the running, Sar_ah! I too am trying to exercise through chemo. Most of my first week was a write-off, except for gentle walking, but managed some hiking and a little jogging on the weekend. Felt fabulous after (even though it was very slow) - I love an endorphin high! 😂💕

I don’t have a port, but I have a Hickman line. (I had asked for a PICC line but this wasn’t possible.) I’m not going to lie, it was super painful for a few days after it was put in! 🙈 It took an hour to be inserted, under local anaesthetic in theatre. Felt a bit uncomfortable but tolerable. Was surprised at how sore I was for the next few days - lifting my little girl was simply not possible, and I hadn’t expected that. However, it is totally painless now. Having chemo through it was a breeze. Also have bloods taken from the line. Fewer needles is a winner in my books! I was told not to shower (or to fashion a cover of sorts and be careful) 🤦‍♀️ but that I could have a bath, provided the water level was below the line (so it doesn’t get wet) and the water isn’t too hot (so the skin under the dressing doesn’t get super sweaty). My oncologist recommended no swimming to me anyway - even without the Hickman line - due to the infection risk of water-borne nasties. Maybe we just have unhygienic public pools in my area! 😂 I’m not a big fan of swimming, so I didn’t question her recommendation.

I can understand what you mean, lebbie, about having lines hanging for little hands to grab. My little one has been great, luckily. I just wear tops that cover my chest - my usual style anyway, especially now with my plethora of surgery scars - and she can’t get her hands on the lines. All good so far! 👍

After an interesting first week, I’m off to work tomorrow (have been working from home as and when I felt up to it thus far - so not doing much haha). Yay! 🤗💪

Best of luck on Friday, FiMillan and Aneeebel! 💕💐🤞 I’ll be thinking of you. Xox 😘
Member

Re: October 2018 Chemo starters

Hi Sarah
That's amazing that you went out running, well done you.
Keep going, from what I gather exercise helps with the effects of chemo.
I might have to get my running gear out soon 🤣
💜 Fiona xxx
Member

Re: October 2018 Chemo starters

Hi @Sar_ah  The advice I was given was not to bath because of the risk of infection due to the bath water not being fresh running water like a shower. If they tell you any different, or give you any tips when you see them, please let me know as I would love to have a bath again!

 

Which day to you have your 2nd chemo? My 2nd one is due on the 1st November.

 

Good luck for the port fitting, I had mine done with sedation, which helped with the anxiety of it all, and I didn't feel a thingSmiley Happy

 

Well done for the 5k, that's amazing! I would have been exercising more but once I got this chest infection, I wanted to conserve my energy to help me get better, plus I don't think my lungs would have handled getting out of breath!Smiley Happy

 

 

Member

Re: October 2018 Chemo starters

Thank you for the advice on the cold cap Lebbie Smiley Happy I’ve had it once so far, round two next week, it wasn’t as bad as I was expecting but simple shampoo does nothing for my hair either!
I’m having the port fitted this week but didn’t realise I wouldn’t be able to bath, they told me I would still be able to do everything as normal, even swim! I guess I might need to double check that.
Is anyone exercising through there chemo? I’m trying to do what I can, I’m finding the fatigue is the most upsetting thing for me. I managed a 5k run on Saturday and felt like a superhero 💪🏻
Member

Re: October 2018 Chemo starters

@Shi - thanks, sounds great!  I'll get tuned into that jukebox now lol, and get on to the thread you mentioned straight after xxxx

Spoiler
 

 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Lebbie 😘😘meesh from my oct17 thread was a cold cap queen and did really well, so please jump on Oct17 chemo thread and leave her a message, she made her own curl cream that worked very well, so might be worth picking her brains 👍she also used an air flossed for oral hygiene too, difflam and as reddi said, brushing teeth after ever meal and sloshing a bit of difflam round too helps. I did suck ice lollies while they put the red one in a lady who had done fec a year before me passed the tip to me and it helped. Keep eye on your tongues girls any white coating get on the phone it’ll be oral thrush and is common get fluconzole, don’t let them fob you off with drops. Right tune on the chemo jukebox is bounce by Calvin Harris 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻🤪🤪🤪🤪🤪hang onto the bungi chord we’ve got you 👭👭👭👭👭💕💕💕✨✨✨Shi xx