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October 2018 Chemo starters

Community Champion

Re: October 2018 Chemo starters

Hi Modo
Seems oncologists differ from order of treatment, and hospitals too. I had invasive lobular as well. Didn't have ct before surgery and then the lump turned out larger than expected, so that's why they did tests afterwards.
The tests and waiting for results are definitely the worse part of it all. Chemo can be daunting, but not nearly as bad as you expect. And I was pleased to get the radiotherapy underway because I was doing something positive to get rid of it all.
It is all very traumatic, but that will ease over time.
Sue xx
Member

Re: October 2018 Chemo starters

K - I'm considering the cold cap, will wait until the appt to decide.

Thank you.

Member

Re: October 2018 Chemo starters

Thank you ElliesMum  xx

Member

Re: October 2018 Chemo starters

 Hello K,

Thanks for reply.

 

I'm trying to trust the experts (getting better) it's my panic not the team, it gets the better of me.

GP hopefully going to give me something to try & calm me down.

Fears are overwhelming me.

 

 I think it's more the not knowing than the actual reality I'm OK for a while then anxiety back ten fold...😯 xx 

ktk
Member

Re: October 2018 Chemo starters

MoDo, you can colour now but you might not want to waste your money! If you don’t cold cap you will lose your hair in two weeks!! Kxx
Member

Re: October 2018 Chemo starters

Hi MoDo, I’m so sorry that I can’t offer any answers for you, as I’m not a medical professional and only have my own experiences to go by. It’s all a bit scary and overwhelming, isn’t it! It sounds like you need to have a good chat with someone from your medical team. Could you call your breast care nurse on Monday morning, so you don’t have to wait until you see the oncologist on Wednesday?

From what I understand, the chemo regime you are recommended depends on lots of variables that your team will weigh up in deciding on the best plan for you. I haven’t had any extra scans since surgery, but will have an echocardiogram on Tuesday (as FEC and herceptin can cause heart damage).

I’m off for a brisk walk in this lovely autumnal weather to clear my head and get some fresh air. Xox
ktk
Member

Re: October 2018 Chemo starters

You probably won’t have another ct until rads. I didn’t. FEC isn’t too bad as long as you keep up the antisickness meds. T is a bit harder and some people can’t tolerate it so instead of 3 x T they have either a different drug or a lower dose, but more cycles. Your oncologist will explain what is best for you and you will be closely monitored at every stage. Trust the experts!! Kx
Member

Re: October 2018 Chemo starters

Hi Sue,

 

Thanks for reply.

I had CT scan before surgery will I still need one ?

 

I have invasive lobular with lymph glands involved, had lumpectomy & ANC.

 

Im actually terrified of any more tests & the Chemo itself, spending most of my time sitting traumatised by it all. x

 

 

Community Champion

Re: October 2018 Chemo starters

Hi Modo
The chemo that you have, depends entirely on the type of bc that you have. The common one seems to be 6 cycles of Fec T. But there are lots of variations. I had 4 cycles of TC so very different.
You're appointment will be to discuss this, plus organising any other tests that may need doing. I had a ct scan and a bone scan just to check that all else is clear. Luckily, that was fine.
I can't help with hair colour, but I'm sure someone will be along soon. Or you could ask the question either in the Chemotherapy section, or Ask the Nurse.
Best wishes
Sue xx
Member

Re: October 2018 Chemo starters

Hi ElliesMum,

 

Do you have any idea as to how they decide how many cycles of chemo you have as I've seen ladies have 3,4,6,8 - plus how do they decide between FEC & the other one T ?

 

Also at first Oncologist Appt do they give you any other tests or is it just a chat about treatment ?

 

Just by chance I have arranged on same morning of Oncologist Appt have hair cut short & have colour put on it, is it OK to have colour put on ? Or should I cancel the colour on it.

 

Sorry to ask so many questions but worried about everything & don't know anything...feel quite lost about it all.

 

Thank you.

 

Member

Re: October 2018 Chemo starters

Aneeebel I definitely don’t want any more delays either - we’ve had to cancel a holiday to visit family in Australia (booked for late October) because the oncologist insisted that I start chemo ASAP. 😞

The sooner it starts, the sooner it’s over!!! 👍 xox
Member

Re: October 2018 Chemo starters

Ktk you’re spot on about the pre-chemo assessment, but I also had my surgery wounds checked to ensure they were sufficiently well healed. That was my issue; one of my wounds (the drain site) still hadn’t healed properly. Had another quick surgical procedure to cut away some of the affected area and stitch it back together on Thursday (27th Sept), given lots of antibiotics, and hopefully I’ll get the all clear to start this week 🤞PICC line insertion is booked for this Thursday (4th), first chemo on Friday (5th).

Good luck with your oncology appointment, MoDo, and with your final round of chemo, ktk! Yay! 💐
😘 xox
ktk
Member

Re: October 2018 Chemo starters

Hi Aneebel, and the rest of you lovely October ladies. Sorry you have found yourselves here, but this forum will give you loads of support and remind you that you are not alone.

I am from June, and just about to have my last chemo on Wednesday 😁😁😁. 3 FEC, 3T. At the assessment the will measure and weigh you to get the dosage right. They will ask about your family history and explain what will happen. They might talk to you about having a Picc line, depending on your hospital’s regime. This is put in your uppe arm and stays for the whole time. Bloods are taken and chemo delivered through it. It is completely painless and saves them having to find a vein in your hand every time. They will also talk to you about side effects and if you want to cold cap. Finally they will agree a date to start treatment.

Hope that helps. Please feel free to ask anything. Good luck ladies. Kxxx
Member

Re: October 2018 Chemo starters

Hi ElliesMum

 

Oh no, how frustrating for you! What do they "assess"? (If you don't mind me asking!) 

I'm having my assessment on Thursday, I don't want my treatment delayed...I've phyched myself up for it now! 

 

Hope everything goes well for you during your treatment

 

please keep in touch, it would be lovely to know how you're getting on xx

 

💗💗💗💗💗

Member

Re: October 2018 Chemo starters

HI MoDo

 

When I asked my oncologist when my treatment would start she said "a couple of weeks" but I pushed for it sooner... So hopefully you'll find out when you go on Wednesday! 

 

The waiting is awful isn't it! It could tip you over the edge! 

 

Thinking of you X 

 

💗💗💗

Member

Re: October 2018 Chemo starters

I’m starting on the 5th of October too, Aneeebel! 🙋‍♀️

I was supposed to start on 28th Sept but failed my pre-chemo assessment 🙈 Hopefully good to start this week. I’ll be having 6 cycles of FEC-T with herceptin from cycle 5.

Good luck to all starting chemo this month! 😘💕🤞
Member

Re: October 2018 Chemo starters

Hi.... 

 

I will be starting my chemo on the 5th October! 

Chemo every 3 weeks for 6 cycles -I'm not sure if this is the norm! 

 

(I've changed me mind.... I don't want to go now!!!! 🙄🙄)

 

Best wishes to everyone xx 

 

💗💗💗💗💗💗💗

 

 

 

 

Member

Re: October 2018 Chemo starters

I've got appt with Oncologist Weds 3rd October, not sure how long from appt treatment will start but assuming it will be soon.

Obviously don't know which type or how many but extremely nervous of what's to come.

 

Have wrote down tips I've seen on here of what to take with me - had a shock when hospital phoned me today with appt.

 

I don't go back to see Consultant until 10th October !

Community Champion

October 2018 Chemo starters

Hi Ladies
This thread is for anyone who is starting chemo this month. I hope you can all help and support each other through this difficult time.
Please ask if you have any questions.
Sue xx