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October 2018 Chemo starters

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Re: October 2018 Chemo starters

Sorry to hear your in hospital Aneeebel Smiley Sad fingers crossed your out soon and able to recover at home.
Good news on the lasteay blood test for you Mrs Fingers Smiley Happy must be such a relief for you.
Thank you the advice for the nails! Must say while I’ll be pleased to tick off fec feeling nervous about t and what it holds! But at least it means we’re getting there!
Hope you all have a positive day, I have number 3 today and have been up most the night with a cheeky monkey toddler.
Does anyone have older children, more teenagers? How are you finding they’re managing everything? I have a 14 year old boy and his finding it so hard Smiley Sad
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Oh aneebel 👭👭sorry to hear you are in casa nhs again 😘😘sending some ✨✨✨✨your way and the famous may17 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Bloods dance ( don’t ask me why but it always works and gets the bloods up) 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻Please keep 💪💪💪💪ask your onc to change antisickness meds, have you tried azekyo (think that was the one I was on) and metrochlopromide (again not sure of spelling) but they worked fine, also your reduced dose could be another persons full load as it’s all tailored to each individual, speak to your onc about everything ❤️❤️❤️Sending you big hug of ❤️❤️❤️Hope you manage to get a bit of sleep in between the monitoring darling 💕💕💕✨✨✨Shi xx
Member

Re: October 2018 Chemo starters

Hi Ladies... Hope you're all doing okay 💗💪🏼 x

I had chemo 3 on Friday... I was doing relatively okay until Monday! I was so weary and slept a lot of the day... Made it until about 11 pm and then I started vomitting... By the morning I had a high temp and ridiculously unwell... I'm now in hospital! (Again!!🤒🤕) My neutrophils have gone very low and they've put me in a side room!! Hopefully the doc will let me out tomorrow! The doctor mentioned reducing the dose of my chemo as I've been unwell after all 3 cycles... To be honest, I think it would be easier if I didn't have any more!!!! 🤒🤕😂

Take care everyone x

💗💪🏼💗💪🏼💗💪🏼💗

Member

Re: October 2018 Chemo starters

Good work getting a walk in, Fiona, especially when you’ve had some issues after chemo number 2! Hopefully the pain from the cannula subsides quickly.

So sorry to hear about your PICC line dramas, Lou. How frustrating! At least chemo was still able to go ahead. Fingers crossed the next attempt is successsful!🤞

Good news on the blood count picking up, Mrs fingers. I’m very impressed! You’ll need to pass on your tips for getting your neutrophils up so quickly. I’ve been feeling a bit run down and have had a mild temp (not enough to call it in, but a bit elevated) the last few days... really hoping I get the all clear today for chemo 3, which is scheduled for Friday.

I hope the side effects are tolerable and that you are all keeping warm! 🧣💪💕😘
Member

Re: October 2018 Chemo starters

What a relief, Mrs Fingers 😄 It's so good to knock the chemo sessions off the list, isn't it? Hope you're feeling okay.

 

Thanks Georgie, that nail balm looks the business 😉

 

Stay warm ladies and 💪💪

 

💜Fiona xxx

Member

Re: October 2018 Chemo starters

What a nightmare Lou! Thanks for the nail link Georgie, that looks worth a go.

So I went in today for a 2nd blood test. Chemo nurse reckoned no chance but my neutrophils had bounced back to just under the magic 1.5 number so they decided to go ahead with FEC no 2. Big relief!

Got home to find hubby has lit a fire so big brownie points to him. Feeling toasty warm.
🔥🔥🔥
Member

Re: October 2018 Chemo starters

Link again: 

 

www.polybalm.com 

 

Member

Re: October 2018 Chemo starters

Hi Ladies,

Georgie here from August, but I write more on the June thread.  Long story short, but I finished chemo early because of severe side effects and in hospital 3 times.  

 

Wanted to give you a tip about cold heads!  It can be freeeeeeeezing cold can't it!  

I have taken to wearing a hoodie to bed, and also around the house in the day...... the hoodie keeps my neck warm, as it's another part that gets really cold for me.  Often wear a sleep hat as well.  Hoodies are easier to pull on or take half way off, if you see what I mean?  I am getting lots of hot flushes in the day and night (thank you chemo!!!......) and sometimes I just partially pull back my hood and it all cools down nicely.  Then when I wake up in freeze mode again, I pull it over again and zip up the hoodie!  

 

Also, can I recommend a nail-saving cream to all those going on to Docetaxol, aka T? 

 

Its quite a new product, and expensive but worth every penny.  It's called polybalm, and here's a link to the website with info.    Polybalm.com   - worth a try!  

 

Warm (especially your heads!). Wishes,

 

Georgie Gee xx

Member

Re: October 2018 Chemo starters

Oh Lou, it just doesn't seem to go well for you does it? But goid news they did the chemo today, even if you didn't have the picc line fitted. As you say, it's one more ticked off the list. Let's hope you feel ok over the next few days 🤞🏻

Well, day 5 of my 2nd cycle and it's injection day but I got so freaked out I couldn't do it so hubby's been promoted 😁

And I had to call the helpline because the vein in my hand where cannula was is tender, phlebitis apparently. No hospital visit fortunately, keep it elevated, paracetamol and steroid cream. I was healthy before chemo, now my stash of NHS condiments is growing 😢

Energy levels are pretty good at the moment, did a 3 mile walk this morning and got wet 🤣🌧☔ but at least my head and neck were dry 😉 I think it's my neck more than anything that gets cold. I've still got a patchy downy covering that doesn't appear to want to detach itself from my head - maybe I will get to the end of my shampoo bottle 🤣

Take care lovely ladies 💪💪🥊🥊👭🤗🤗

💜Fiona xxx
Member

Re: October 2018 Chemo starters

Afternoon lovely ladies,

Well i went in at 9 this morning as told for picc and chemo would you believe they said it should be tomorrow it fully booked today as you can imagine i wasnt happy so had a few words with the person who told me to go today only for them to argue saying they said tomorrow i said my brain not fried that much give me some credit anyway long story short i got them to do chemo today they managed fine got to go back 12th dec for pic and treatment, so third one done i half way next one is starting the T lets see what side affects that brings on what joy 😫,

Thanks fiona for thinking about me i the same think about you and all our other lovely strong ladies and how you all getting on, hope you okay, i still dont like this rollercoaster we all on still want to get off but i know we need to stay 💪and ride it out together ❤,

As for the cold head its not nice i purchased 2 chemo sleep caps of amazon they very thin and soft when i first shaved my head i slept in one made a big diffrence and the other i would wear round house but i not to bad now as think my head getting used to it infact i find its my ears that are more cold now 😂,

Stay 💪, and warm dont about where you all are but here in midlands it real cold so my fire having a good blast, might even have a little kip 😴,

Take care ladies,
Lou 💕 x
Member

Re: October 2018 Chemo starters

Elliesmum
Yes halfway through EC then tax to go sounds so much better if you break it down here , Emend seems to be helping I don’t feel so sick and fingers crossed haven’t vomited this time

I hope your bloods pick up for today Mrs Fingers

And 100% with you on the cold head it’s a shock even more so if the wind gets you xx
Member

Re: October 2018 Chemo starters

Good luck to everyone for today! Another day closer 💪🏻
Cold head sucks hey Fiona, I used to have really long thick head and never really got it when people said they get cold heads 🙈 .... I sure do now!!!
Member

Re: October 2018 Chemo starters

Mrs Fingers, good luck, I hope the wbc picks up quickly. I can imagine how you feel. It's so frustrating that there's nothing we can do to help it along, isn't it?

Lou45, good luck for today. I hope it all goes to plan. Thinking of you 🤗

Love to all, keep warm, it's getting colder (My head gets so cold now it doesn't have it's normal frizzy ringlets/curly mess covering it).

💜Fiona xxx
Member

Re: October 2018 Chemo starters

So you’re halfway then Kateday? Woohoo! I hope the Emend helps.

How annoying, Mrs fingers, that your white blood count is so low. Fingers crossed that it picks up for you quickly so chemo can go ahead!🤞

Love to all. Keep warm in the cold weather! I’ve been needing my beanies. 🧣🥰💕👊💐
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Re: October 2018 Chemo starters

O missfingers
I do hope you pick up soon, I have read posts where bloods picked up enough
I’m so far only slightly nauseous after number two with slight headache and ready for a nap xx
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Re: October 2018 Chemo starters

Went for my blood test today ahead of chemo no 2 tomorrow. Hospital just phoned to say my counts are too low (0.9). I have to go in for retesting tomorrow to decide whether they go ahead or postpone... looking at fiona’s post below I’m not confident!

It’s a bit frustrating but I have been fighting off a cold since I was hospitalised during round 1 and I’m still not feeling 100%.

In the last couple of days my hair started to fall out a bit and I’ve developed a small bald patch right on top of my head, which thankfully I can cover with a scarf. I’m cold capping so it will be interesting to see how things go.

Still catching up on all your posts as I’ve been offline for a few days. Onwards and upwards everyone! 👊👊👊
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Re: October 2018 Chemo starters

Fingers and toes crossed for you Kateday x 💗💪

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Re: October 2018 Chemo starters

Well ladies round two complete just two more EC to go
They have added Emend to the antisickness so fingers crossed
Nothing they can do for bone and joint pain from injections
Fingers crossed for an easier ride this cycle
Hope your all holding up well xx
Member

Re: October 2018 Chemo starters

Hi Badboob, good news that you're in slightly less pain than you were...hope you continue to improve quickly!
And thanks for the heads up on the sunburn...I'll have to bear it in mind when I go digging at my allotment! (If I ever have the energy!! 💪🏼)

ElliesMum, hope you're feeling a bit 'calmer' today.... 💗💐😘

Shi...we're all holding onto the bungi... 💗

I feel like I've had a lie in...managed to sleep from about 11 until 5... I'll never sleep tonight!!! 😂💤😴

Have a lovely day everyone... Keep smiling and keep your chin up! 😘💐💕

💗💪🏼💗💪🏼💗💪🏼💗
Member

Re: October 2018 Chemo starters

Thanks ladies. We are stronger than we know and we can do this! 💪💕😘

Hope the sudocrem and other treatments sort you out ASAP, Badboob! My, erm, “related” issues are also slowly improving, thank goodness. I plan on being more proactive in a bid to avoid similar issues (or at least minimise the level of discomfort) next round!😂