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October 2018 Chemo starters

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Ellie’s mum 🤣😂🤣😂you laugh now at an 80’s crazy wig 🤣😂🤣😂🤣some of us oct17 girls have chemo curl mullets just now trying desperately to grow long enough to straighten 😂🤣😂🤣😂but hey it’s hair and you’ll be celebrating crazy 80’s hair too soon 😂🤣😂🤣👍👍keep going ladies you are doing amazing 💪💪💪😂💕💕✨✨✨Shi xx
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Re: October 2018 Chemo starters

Is anyone else having problems with nail discolouration?  I've noticed that mine are just starting to look a little dark at the base, and I forgot to mention this to the oncologist today.

 

💜Fiona xxx 🤗🤗💪💪

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Re: October 2018 Chemo starters

Yay Fiona! Clearly the wine did the trick 🍷👍 Best of luck with your final round of FEC tomorrow. I hope the side effects are kind to you! 🤞💐

Aneeebel, you continue to amaze me. Good on you for going shopping, although do try not to pass out if you can help it! 😂 I have started carrying water everywhere with me just in case I start feeling faint. It’s hard to predict; stupidly overheated shops certainly don’t help matters!

Have fun at the Tina Turner concert, Badboob. What a great excuse to wear a crazy 80s-style novelty wig!?! I hope you get lots of rest today so you can really enjoy yourself.🕺

Love and hugs to you all! Xox 😘💕💪

P.S. I almost got an uninterrupted night of sleep, Aneeebel! My little one only woke once, and even then she was only awake from 12-12.30. Compared to usual, it was a fantastic night of sleep! 😴👍
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Re: October 2018 Chemo starters

Hi 💜Fiona... I wasn't feeling too bad so went shopping with my daughter... Jeez, I nearly passed out in the shop! I Went hot and breathless and nauseous again... I actually said to the sales assistant if I pass out don't say I didn't warn you! My daughter went rushing off to the shop to get me a bottle of water!!

Badboob, you don't need to apologise for your rant...like you say, we can come on here to let it all out.... I just sound like a moaning Minnie at the moment! 💔
Have a fab time in London! 💙🎤🎼

Stay strong everyone x

💗💪🏼💗💪🏼💗💪🏼💗
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Re: October 2018 Chemo starters

First of all sorry for my last post, too long and a bit of a rant! 

 

It’s a strange world we live in where we are delighted that one of us is well enough to have chemo! But Congratulations FiMilan! I can imagine the relief! I hope it goes well tomorrow and you are well enough to enjoy Christmas! My next chemo is 18th, so I should be at my worse over Christmas, thank goodness I am at my sister’s where I can just veg out. 

 

Aneeebel, I can also sympathise with your situation, I prepared myself to be told I would need to lose a breast, but was very relieved when told that would be unnecessary. I too am still proud of my puppies, at 62 they are still quite perky. All I can say is this is a wonderful place to just let it all out, in a safe place with people who absolutely get where you are coming from. So don’t hold back if you need to rant. 

 

Still feeling very tired, no improvement in bottom area, but it’s DH Birthday tomorrow so we are off to London to see Tina Turner ( if I can stay awake) so I have slapped my happy face on and will get though it without ruining his celebration! 

 

Hugs x

 

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Re: October 2018 Chemo starters

Thanks Aneeebel, it feels such a reluef to know i can knock another one off.

How are you today?

💜F xxx
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Re: October 2018 Chemo starters

Yippee... Fabulous news 💜Fiona! Hope everything goes well tomorrow! 💗💗💗💗 x
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Re: October 2018 Chemo starters

Hooray, bloods are good, 1.9, so all good for tomorrow 😁 Last FEC. They've got to use other arm though tomorrow as my vein is still sore, it's the E apparently which is the irritant.

I'm so relieved I can have chemo but not looking forward to the days after 😣

Take care all 💪💪
💜Fiona xxx
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Re: October 2018 Chemo starters

Hi 💜Fiona... Hope your bloods are behaving for your chemo! I trust the vino went down well... 🍷🍷🍷🍷🍷

ElliesMum...how fantastic that your students passed the exam! You all deserve the bubbles!!! 🍸🍸🍸🍸🍸
Did your little one sleep through?
It's a long time since a little one woke me during the night...my grandson is 14 and can sleep for England, always has done and my Grandaughter is 9 and can talk for England!! 😂😂💗💗💙💙

Thankyou to both of you for your kind words...and advice... 😘💐

Hope you all have a lovely day, stay strong!

💗💪🏼💗💪🏼💗💪🏼💗
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Re: October 2018 Chemo starters

ElliesMum, I do love red wine, I have to say, especially if it's Italian. We're not big drinkers but could easily drink 3 bottles a week between the two of us. I still keep trying to work out what caused Humphrey's existence, it's either alcohol but I don't think I'm over the weekly allowance, a fall I had in July or just bad luck. Genetics inferred that there really wasn't enough history for it to be BRCA1 or 2 but I was borderline on whether I should be referred to genetics anyway (it seems I'm borderline for everything - lumpectomy/mastectomy, wbc for C2, referral to genetics). 

 

Ive just looked at the clock and realised its just gone 9! That's a miracle for me to still be awake! 😂 I went to work yesterday for about 5 hours and was fast asleep by 8.15. However, I'm always awake anytime from 4.30 onwards. It was 5 this morning. And I did about 4 hours in the office again today. 

 

Well done you on your students 👏👏 Chemical physics? OMG! That sounds very complicated.

 

Bed time now I think, it's suddenly started to hit me. Does everyone else suffer the same way?

 

Good night 🤗🤗🍷😉

💜Fiona x

 

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Re: October 2018 Chemo starters

Yay for all of the Christmas trees going up. I love Christmas! 🎄

Fingers crossed for your blood count tomorrow, Fiona! I hope the 🍷 does the trick!🤞💉 I’m not a big drinker (only have a few drinks a year), but I have had champagne on two separate occasions in the past three days! 🙈🍾 For good reason, though, as two of my PhD students passed their viva exams this week - no mean feat (especially in our field of research, chemical physics) and definitely worthy of some celebratory bubbles! Very proud moment for me, as they are the first two PhD students to graduate from my research group! 🎓 🤗 It was lovely to have something meaningful to celebrate, although I am totally wiped out now! Fingers crossed my little perosn lets me sleep tonight. 😂😴

Aneeebel, I don’t even know what to say. You have been so brave and strong in dealing with all of the rubbish that has accompanied each of your chemo cycles. 💕 It sounds like your body needs a little rest so, while it is probably frustrating to have the goalposts suddenly shift, it may be for the best. Compared with chemo, you will find the surgery a walk in the park! 💪 I was surprised with how ok I was with my post-mastectomy body. (I had surgery before chemo.) I know that it is a very personal thing, and everyone is different, but it might not be as bad as you think. There are so many different and amazing reconstruction options, I was really pleasantly surprised! So, if you can, go to the appointment with an open mind and try not to worry too much (easier said than done, I know 🙈). We’re all thinking of you and sending good vibes your way! 🥰

Love to all xox 💐👊⛄️
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Re: October 2018 Chemo starters

Aneeebel, I'm so sorry to hear your news.  How awful that C4 is delayed but absolutely right that you shouldn't be subjected to chemo if you're not fit enough. And no way are you a wimp, crikey you've been through so much already, you're more than allowed to feel attached to your boob 😉

 

I've got my oncologist appointment tomorrow, fingers crossed I won't be borderline again and I'll be able to do chemo on Friday. In preparation, me and hubby are enjoying a bottle of wine 🍷🍷 Well, I won't be able to drink red wine for at least a week after chemo, thanks to heartburn. 

 

Christmas tree is up at last 🎄🎄 woohoo! Although I don't know why I've put it up as we're going to my parents for Christmas,Marion to C4 on 28th (hopefully) which should be the first T.  In the meantime, I'm just counting the days, 40 done, 86 to go (all being well). 🗓

 

Take care lovely ladies 🤗🤗💪💪💐💐

 

💜 Fiona xxx

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Re: October 2018 Chemo starters

Hi Ladies....

 

Badboob... You poor thing! I do hope your bottom starts to improve soon! 💗
I'm virtually t-total too... I don't drink larger all the time... I haven't been well enough! (I'd hate you to think I had a problem!!! 🍺🍺🍺🍺🍺)

Elliesmum, Thankyou for wishing me well! How are you doing?💗

I've been to see my oncologist today... I was due to have C4 on Friday but she said my bloods were shot at last week and as I'm still not 100% fit enough she's delaying my chemo for a week.... I did say to her that I was quite relieved as I don't think my body can cope at the moment!
She said that if I was okay after C4 then I would have C5 but my Breast Care nurse rang me saying my oncologist had emailed her to say I wasn't coping (or my body isn't!!) with chemo and perhaps surgery earlier than planned would be a better option and have the rest of my chemo afterwards!!
So I now have an appointment 'for a chat' with my surgeon on Tuesday!!! 💔

Have a lovely evening everyone xx 🎀🌻🌸

💗💪🏼💗💪🏼💗💪🏼💗

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Re: October 2018 Chemo starters

Goodness me, Badboob, what an epic saga!🙄 I hope you’ve recovered from the experience and that your back passage issues have calmed down a little. Big hugs! 💐💕💪
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Re: October 2018 Chemo starters

Morning everyone! I hope we are all doing well on this frosty morning.

 

I have to say that drinking larger is only a dream for me as ALL alcohol tastes like vinegar! So I have decided to go teetotal until my taste buds decided to come home and behave! But I am pleased that you are feeling better Aneeebel.

 

I too has a number 3 cut, I also rembember the party we had to celebrate our hairless state! My head is covered in sparse grey hair. It seems that any dark hair has not got the strength to hang on and has dropped out, whereas my greys are hanging on in there for grim death! Interesting my body hair is either gone or going APART from my knees, which are still quite hairy!  My brother thought this was particularly amusing! Lady garden is rather barren.....but I still have eyelashes and eyebrows, but they need a little help with an eyebrow pencil! 

 

Which brings me on to the part of my anatomy I know you are really interested in...... well, my BCN never got back to me after talking to her while I was having chemo. So on Friday, in desperation I rang her asking her to please get back to me. To her credit she rang back pretty quickly to say that the consultant should have rung me, and perhaps if I was still having problems then to call the 24 hour emergency line. When I rang they wanted to admit me for further investigation as I was still bleeding, but, they were full and would I go to A &E! 

 

Well! Friday afternoon in A&E, the queue to get though the check in process was out the door and down the street. Finally I get get checked in, given  a mask to protect me from everyone else and told to wait. It appeared that we were separated into two categories. The red chairs were for people who were either being sick or were so ill they couldnt stand, or had obvious injuries and were covered in blood. The rest of us on blue chairs were a mottle crew of ages and dubious reasons for being there. There fore we all needed sorting out. So an hour later I get called in to be seen by a nurse practitioner who was obviously used to finding the malingers and who was genuine! I passed the test and was told I would be seen by a doctor in another hour. So finally I am called and have to trot after this doctor until finally we arrive at a private room with a bit sign on the door indicating that this was a barrier nursing area. He hooks me up to a blood pressure machine and heart rate and is alarmed that both are sky high! Well I’ve just done a 100 m sprint! He inspects my rear end and says they will know more after bloods are done!  A hour later  have another bl@@dy canular in my hand and I am left for another hour. Doctor returns and says bloods are low (what a surprise! ) and I may need a transfusion! But the surgeons wanted to see me first! Glup. DH is on a boys lunch and I have only sent him one text saying not to worry!

A hour later the surgeons arrive (3 of them) another inspection of my rear end and then the pronouncement that the previous doctor misread my bloods and they are fine and I should  coming back to have a colonoscopy and apart from that,  from to keep going with the treatment already prescribed! With that, they were gone! A hour later a nurse arrived to discharge me and in the process ripped out the canular so the my hand swelled up like a ballon and I now have a massive bruise. DH is now at home and going ape**bleep** with texts, He’s also been drinking so in no fit state to drive. I get home and go straight to bed! Well I won’t do that again, unless I absolutely have to.

 

Sorry this post is so long, so the short answer to a long post is, no change! 

 

Hugs!

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Re: October 2018 Chemo starters

Aneeebel, I’m so relieved to hear that you’re finally feeling better. 🤗 Drinking lager sounds like an excellent way to celebrate! 🍻

Haha Fiona, saying I “put up” the Christmas tree would be overselling it... With a destructive one year old in the house we opted for a 2-foot tall fake tree that was predecorated (lights and all). The only effort required involved placing it on a raised surface (out of reach) and switching the lights on!😂🙈🎄Job done! 👍🎅

It is interesting hearing your collective experiences with hair loss. I lost the vast majority of the hair from my head after round one, but seem to have grown a fine, blond - almost downy - “fluff” since then. A few strands of my original hair (shaved to a number 1) are hanging on in the odd sparse patch here and there, but not much. I have no underarm hair, but I do still have a patchy covering on my, ahem, lady garden. I also have a reasonable number of short hairs on my legs from whenever I stopped shaving pre-chemo! 🤦‍♀️ Still have eyebrows, although they are definitely thinning, and have only lost a few eyelashes so far.🤞I’ll see how the remaining hair fares on the three docetaxol cycles I have left!?!

I hope you all have a fabulous week!💕😘💪
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Re: October 2018 Chemo starters

Hi everyone...

Hope you're all feeling well... 💐😘

💜Fiona... I made it through the w/e okay, Thankyou...I actually feel so much better today! At last!! 💪🏼 I had a couple of bottles of lager last night, it went down a treat, whilst watching a Kevin Costner film!
I know how to partayyy!! 😂🍺🎉

My hair is hanging on for its dear life... It's very, very fine but I haven't got any bald patches, just a very fine covering -my granddaughter was stroking my head the other night! She said it feels nice! 😂 She also said its growing... I'm due C4 on Friday so I'm wondering if it will ever fall out completely!! ✂️

Hope all you lovely ladies have a fabulous day... Stay 💪🏼 and keep smiling! 😀😀😀😀 xxxx

💗💪🏼💗💪🏼💗💪🏼💗

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Re: October 2018 Chemo starters

Good morning Kateday and October ladies.

Kateday, I'm similar with the hair loss. Mine started coming out in cycle 1, had the shave to a grade 3 on about day 17, lost a bit more and have a few bald patches but I'm not completely bald and cycle 3 is due this coming Friday. I wonder if that's the extent of hair loss for me. Even my lady garden is holding on for all its worth 😉 My husband thinks my hair is growing, I'm not convinced about that but I am confused as to why I haven't lost it all yet. I shouldn't complain really 😁

Aneeebel, I hope you made it through the weekend ok. You really do seem to have drawn the short straw on side effects and my heart goes out to you. We're all here for you 👭💪💐 Just keep knocking those days off the calendar. Did you have your beer the other night?

Badboob, I hope your rear end is behaving itself. I suppose it could make your downward dog rather interesting 🤣 Are you still managing to do your yoga?

How's the tree looking ElliesMum? I might attempt mine today. If chemo goes ahead on Friday (I'm always cautious about saying it will definitely happen) I won't be up to it next weekend so I need to take advantage of this good week 😁🌲🎄

Have a good day ladies, and remember we're all one day closer to the end.

Big 🤗🤗 and stay 💪💪
💜Fiona xxx
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Angel blue, I’ve posted on December thread for you darling 😘😘💕💕✨✨✨Shi xx
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Re: October 2018 Chemo starters

Hi Ladies

 

I need some help please!!

 

On friday I  found out that I'm starting chemo this month, after being told post surgery it would be rads and tamoxifen (long story short but I  argued for and got Oncotype Dx test done - just for my peace of mind. Didn't get peace of mind though as test came back at 31 which is just in the high risk group...so now chemo here i come...I think!!)

 

As you all started in October I just wondered if anyone is on FEC and what your experiences have been with it? I've been told FEc and it needs to start really quickly as I'm not far short of being 12 weeks post surgery. 

 

I've just joined the December starters group but as I need to get my head round things quickly that chemo is the right way forward, I just wanted some input from others already further along than me. I have provisionally agreed to chemo and confirming by Tuesday.

 

Thank you

 

Hoping you're all doing well...Love to you all xx