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October 2018 Chemo starters

Member

Re: October 2018 Chemo starters

Hi Sar_ah

At the pre-assessment the nurse shows you the chemo unit, weighs you, measures your height, goes through yr treatment and potential side effects, answers any questions you may have so she should be able to help with your anemia queries, we were shown a little video and she gives you your emergency contact numbers if you need to get in touch with the unit for any reason.... Really helpful actually!
I also had a picc line put in my arm as I have terrible veins... It was actually a relief on Friday not to have needles poked around in my dodgy veins... And the nurses use the picc line to take blood tests too!
(I said I'm leaving it in forever in case I need more blood tests in the future! Haha!) And I know I sound ridiculously pleased about the picc line but it made such a difference! 😂😂

Good luck... Let us know how you get on xx 💗💪🏼

💗💗💗💗💗💗
Member

Re: October 2018 Chemo starters

Hi MoDo, glad I could help a bit 💗
It won't take that long every time... Usually 5 hours for me...
-my first drug took 90 mins to go through, then they wait 90 mins to check for side effects...the second one was an hour, then wait an hour for side effects... And so on... I had 4 bags in total but next time it won't take as long as I didn't have side effects so I can have them a bit quicker! 💪🏼💗

Thankyou ElliesMum... Yep, one down! How are you feeling? 💗💪🏼 X

💗💗💗💗💗💗
Member

Re: October 2018 Chemo starters

Hi ladies! Hope you don't mind me dropping by? Like Shi, I'm an oct 2017 lady. I'm er+ with no node involvement, I had surgery followed by 6 rounds of fec, rads and I'm now on tamoxifen. I cold capped fairly successfully through my chemo and I also worked. So if you've got any questions just let me know.

 

I was also very anxious and found yoga and meditation very helpful. I tried to do it every day even if it was just for 10 mins. My other tip would also be to make sure to drink plenty of water day before chemo, day of chemo and day after.

 

This forum is brilliant for support and I would say that the oct 2017 ladies kept me sane, but to be honest I think the chemo all turned us as mad as a box of 🐸 🐸 😂 Good luck!

Member

Re: October 2018 Chemo starters

Glad to hear your first session went well Aneeebel.
It’s so helpful to hear from people who have actually been though it.
I have my pre-assessment Tuesday and start Thursday. What happens at pre assessment? Is it just bloods, weight etc?
I suffer from anemia and a little worried what impact this will have on how I’m feeling, I forgot to ask the consultant when they told me I was having chemo 🤦‍♀️
Member

Re: October 2018 Chemo starters

Hi Aneeebel, thanks for sharing your experience. Well done on getting through it - one session down!

😘
Member

Re: October 2018 Chemo starters

Oh Aneebel, thanks so much for that.

That does help take the fear away a bit....💕

 

How come you were there from 8 - 5 ?

Does it take that long every time...

Member

Re: October 2018 Chemo starters

Hi MoDo

I had my first chemo treatment yesterday (Fri)... I was in a bit of a tiz as we probably all are..never having been through this before, but it all went smoothly!

 

Like the other ladies say... The first treatment is done very slowly, then you have a break to check for side effects... Then the next bag is attached... Have another break to check for side effects... And so on...

There is a nurse there all the time or there is a buzzer if you need help... 

 

I was was there from 8 until 5 so it was a long day but for all the right reasons!

I did have a massive headache which was probably to do with the 'not knowing' and totally shattered by the time I got home... But today I'm relatively okay today on the whole! 

 

Hope this helps you a little bit xx 💗💗

 

💗💪🏼💗💪🏼💗💪🏼💗

 

 

Member

Re: October 2018 Chemo starters

Hi Sue,

 

Thank you for your reassuring message regarding the chemo treatment, it does help to hear that the nurses will give it me slowly & keep a eye on me.

I really do hope the fear will subside after the first one.

 

And Yes, I'm having the medicine to kill off any random cells & Yes, that is good, it's VERY GOOD.

 Thank you so much....💕

 

 

 

 

 

Member

Re: October 2018 Chemo starters

Anxious-Soul - thank you for message.

 

Definitely need distractions as watching Atypical did help.

 

Need some suggestions for more series if anyone has any.

Don't feel up for doing much else at moment as still feel bit sore & weak.

 

Thanks for helping me A-S I was in a bad place.....💕

 

P.S. - I watched every episode by the way !!

 

 

 

 

 

 

 

 

 

 

 

Community Champion

Re: October 2018 Chemo starters

Hi Modo
Just popping into the thread..
It's perfectly normal to feel anxious at this incredibly difficult time. But I just wanted to reassure you that it will be OK. The chemo nurses have to go through all the potential side effects, but the reality is that it is all very unlikely. The chemo nurses will be with you every step of the way. They give the chemo very slowly and will watch for any adverse reaction and will be able to deal with it immediately. Most side effects afterwards, are fatigue and nausea. Not nice but very doable. You will find that after the first cycle, you will feel much better. It's the fear of the unknown which makes us anxious.
Try to focus on the positives. You are having the medicine to kill off any random cancer cells and that's good right?
You will get through this.
Sue xx
Member

Re: October 2018 Chemo starters

Good morning MoDo,

 

I am just dropping by to see how you're doing.

 

It sounds like binge watching atypical is working for you. Other distraction techniques will work for you, you have just got to figure out what activities will help and this may be trial and error.

 

I have lost count of the number of films I have watched and the number of drama series. The CBT counsellor gave me a worksheet and one of the questions was ' where is the evidence?' I found asking myself this useful.  We are different so this may not work for you.

 

Wishing you some calmer days ahead. Smiley Happy

Member

Re: October 2018 Chemo starters

Hi ElliesMum
My picc line went in fine... I don't know why I was so worried! 😇 I do have a 'sensitive disposition' but seriously it was okay...had the line put in then have an X-ray to check it was in the right place and Bobs your Uncle... And the added bonus of no needles in my dodgy veins on Friday, that made a big difference!
My first chemo treatment went well... Was a long day tho, I was there from 8 until 5! Again, as we don't know what to expect, it's all a bit scary....but I was fine and the nurses are lovely too! I did have a massive headache, which I've still got, and I feel a bit spaced out for want of a better expression but I feel fine on the whole!

Glad you're healing well... Good luck with your chemo!
Thanks for asking... 💗💪🏼💗💪🏼💗💪🏼💗 xx
Member

Re: October 2018 Chemo starters

Hi Purp22 and Sar_ah, I have a little one too! My little girl is 14 months old. Hopefully we can share ideas on how to manage chemo whilst caring for a little person/people! Minimising infection risk will be interesting... 🙈🤞

Xox
Member

Re: October 2018 Chemo starters

Sar_ah thanks for your reply, in some way the children can be a good distraction from chemo and side effects, that is what I am hoping anyway!

I took a towel, fluffy socks, scarf and blanket in preparation for the cold cap but didn't actually need them, the hospital provided a towel and blanket and they gave me a heat pad for my hand which seemed to be freezing too, that was enough and it was totally doable, I know everyone will find it different however but I am pleased I have given it a go and am keeping my fingers crossed I can keep some hair, we shall see! X
Member

Re: October 2018 Chemo starters

Thanks Ktk it’s helps having some idea of where to start, I’m going to def try the cold cap and get some scarfs in preparation and see how I go.
Purp22 I have a 2.5 year old daughter (and a 14year old son) so not quite as tiny we like you have lots of support but it is daunting thinking about day to day life! I’m just trying to look on the positive she may get extra time with the people who she loves and make the most of time we do get together Smiley Happy
Member

Re: October 2018 Chemo starters

Hello ladies I would like to join this thread please!

Quick info I am grade 3 IDC hormone negative, 36 years old with a 4.5 month old baby x

Had my first of four EC chemo's today, it was much better than I expected and glad I have done the first one now, I think I was working myself up with the unknown.

I tried the cold cap and didn't find it too bad although it did give me a bit of a headache and still have one now, I was expecting it to be worse than it was so am just hoping it was all on properly and doing its job! I have already bought a wig from my local hairdressers incase my hair does come out. Am very wary/nervous of what the next week will bring in terms of side effects as we all are i guess!
Also wondering how it is going to be looking after my
Baby boy, I have plenty of support and my husbands work has been great and he has plenty of time off with me, just wondering how other people coped with the side effects with young children?

Anyway I look forward to getting advice from others on this thread, and if I can offer any support to others, we have got this ladies! Xxx
Member

Re: October 2018 Chemo starters

Reddi,

Thank you for message, really appreciate it.

It helps me to hear I'm not on my own, I've been torturing myself. 

 

I will look up the book you recommended it sounds just right for me. I have some book tokens & will see if they have it in Waterstones, thank you for that.

 

I certainly over think things so this is magnified 100 fold, I have been trying to combat my anxiety - I watched several episodes of Atypical last night & I did calm down some.

 

Like you the anxiety has made me feel all sorts ( worse case scenarios ) which almost tip me over the edge.

 

Thanks for taking the time to help me Reddi, everyone is so kind & helpful on here.

This group has kept me sane, I've had so much support from day one.

I can't thank you all enough 💕

Member

Re: October 2018 Chemo starters

Dear MoDo,

I'm popping in from the June 2018 chemo starters thread. Right now in my chemo day unit getting cycle 5 of 7 -- and chemo is the first step in my treatment journey.

Reading your posts brought to mind the work of Susan Nolen-Hoeksema, who was a professor of psycholgy at Yale. She wrote a book maybe 15 or 20 years ago called Women Who Think Too Much that offers some concrete approaches for ending overthinking / ruminating spirals that can lead to anxiety and depression. It is complementary to cognitive behavioral therapy (CBT), though Susan's field was happiness research (she studied with Martin Seligman, U believe). I found the book very helpful and eye-opening. [Disclosure: I worked with Susan as an editor on one of herlater books, but not on this one, and not with her UK publisher, Piatkus.]

Even with a little arsenal of tools like this, I remain prone to anxiety. For instance, between the time of my diagnosis and presentation of my treatment plan -- a very long 36 days -- I started having a burning sensation across my chest into one of my shoulder, and I feared that it was the cancer spreading. It felt like my skin was feverish, and it was getting worse each day. During a lymph node biopsy I told the nurse and she demonstrated to me that my skin wasn't hot by placing her hands on me; in fact, my skin was noticeably cool in comparison. I then did visit the google and discovered that this was an anxiety response -- and as I worried about it, I became more anxious, setting off more nerve signals. Knowing this helped break the feedback cycle, and the burning sensation hasn't returned. It was especially helpful to talk it through with a professional counselor. I saw one at a charity based at my hospital (Helen Rollason Centre in North London).

I have also found some comfort in the rhythm of treatment -- and in asking the doctors and nurses questions to help me better understand both treatment and prognosis. At the same time, I've had to learn to accept inevitable delays and uncertainties; safety is foremost, and sometimes chemo must be delayed to give you body time to recoup before the next cycle. Rest easy, as you can, if this happens. The doctors' goal is to kerb the cancer, and they will always have this goal in mind as they set and reset your overall treatment plan.

I am so glad you are going to the drop-in clinic and am sure they will help you find tools to calm and quiet the brain.
ktk
Member

Re: October 2018 Chemo starters

Hi Sar_ah. Have you talked to your oncologist about cold cap. It can preserve your hair if you are prepared for the discomfort of an ice pack on your head for a couple of hours! Your local cancer support will guide you toward wigs. You get a voucher towards the cost from nhs. Personally I decided not to bother with a wig. Hair falls out about two weeks in if you don’t cold cap and you should be prepared to brave the shave rather than let it fall out in clumps around the house! I was lucky as my chemo hair loss was in the middle of our lovely summer so I just went bald! Now it is colder and my hair is starting to grow back fluffy I tend to wear semi shaped scarves from Amazon. Again your cancer support centre will probably stick some.

The thought of it all is far worse than the reality. Take all the help and support on offer and ask anything. Are you having FEC-T? Kxxx
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi sar_ah, sorry you find yourself on here. Ask away on here any questions and if you go back a few pages mai7’s blog is very helpful too. On the wig front if you have a luv u babes dressing up shop near you have a look at their big wig selection that they have (not the fancy dress ones) I was happier in my £14.99 one from there than my real hair one that cost £1,000, just thought I’d let you know so you can save money. A tip for wig trying on is, get the one where you see you, you will know when it’s the one, but saying that I ended up with about 20, coloured ones, tinsel ones at Christmas the works, it was all steroid induced mind, but I have already warned about the shopping frenzies 🤪🤪🤪😁😁😁💕💕💕✨✨✨Shi xx
Member

Re: October 2018 Chemo starters

Hi everyone, I hope you don’t mind me jumping on the thread, I found out yesterday I’m due to start Chemo Thursday, we only found out a few days ago I would need chemo and I think I was in complete denial it would happen. 

To say I’m terrified would be an understatement, I have so many questions that I’m not actually sure what they are anymore 😳 but it has been really helpful reading others experiences, I’m not sure what I would have done otherwise!   I think my biggest fear is the whole loosing my hair, where do you even start with wigs and scarfs? Has any bought them already do you wait?

Member

Re: October 2018 Chemo starters

Thanks ElliesMum,

 

I have spoke to Maggie's today & they have specialist nurses & a clinical psychologist there each day, it's a drop in centre so I'm going to go there.

I have calmed down some but still extremely anxious. 

 

Glad you have no sign of infection, I'll be one/two weeks behind you as my first chemo will be 24th.....😮 xxx

 

 

Member

Re: October 2018 Chemo starters

How was your picc line insertion, Aneeebel? Thinking of you and wishing you well for your first chemo today. You’ve got this! 💪💐🤞

I hope you’ve managed to get in touch with someone from your team, MoDo, to help with your concerns. We’re all here to help each other through!

The emergency removal of my implant went well. Wound is healing nicely, no more signs of infection. Fingers crossed chemo can finally start next week! (Or, failing that, on the 19th.)

Xox 😘
Member

Re: October 2018 Chemo starters

ktk... Thankyou for your advice, I'll bear it in mind! 💗💗 xx
Member

Re: October 2018 Chemo starters

You're welcome MoDo.

 

Remember to tell the NHS staff you're highly anxious and they will response with compassion and understanding.

 

This is doable. You can do this. Smiley Happy

 

 

Member

Re: October 2018 Chemo starters

Hello A-S,

 

Thank you for message.

I definitely am very similar to you & your story does help a lot as I do feel quite isolated in my way of thinking as I'm so extreme. 

Even ladies who do find it difficult seem less so than me, so it's good to hear from you.

 

I have been in touch with a counsellor have had to wait while I had another OP, oncologist yesterday said he would refer me too.

 

As you the worst case scenarios are awful & seem so real.

I do the breathing techniques & they can help, will try binge watching.

I too am hiding away quite a bit.

 

The question "is thinking this way helping me"  is NO - I do talk to myself  just need to get better at it.

As I'm typing this I can feel the anxiety making me shake.

 

Reassurance is essential to me as you say its worst case scenarios in my mind & I find it difficult to reassure myself.

Hopefully when I get some help with this I will improve.

 

Thank you A-S your message means a lot to me. 💕

 

 

 

ktk
Member

Re: October 2018 Chemo starters

Pat, a bit of cordial in the water helps and I found sparkling water more palatable. No reason not to drink tea and a glass of wine every now and again won’t hurt!! Kx
ktk
Member

Re: October 2018 Chemo starters

Good idea. A walk will help clear the mind. Glad about Google. Defo find someone to talk to. Sometimes a stranger is better than friend as they fan be more objective. Given your history, is it worth contacting your GP and getting something to calm you down or at least help you sleep? Much love Kxxxx
Member

Re: October 2018 Chemo starters

Hi MoDo,

 

I hope you don't mind me dropping by.

 

I wanted to share my story in case this may be helpful to you.

 

Back in February this year I started chemo and as my user name suggests I was an anxious soul and continue to be so. I was frightened a lot of the time, especially when my immune system disappeared. Worst case scenarios ran through my mind, I would shiver and shake with anxiety.

 

With the help of a CBT counsellor I developed some useful tools to help me. For example concentrating on my breathing, using distraction to help such as binge watching programmes, watching a film, caring for others.

 

At one point I would not leave the house because I was frozen with anxiety. Then I learnt to challenge myself by having a good talk with myself because I did not want cancer to lead me to merely existing rather than living. When my energy was okay I would go out for that walk and spend time with friends.

 

With the help of my counsellor she taught me another way to challenge myself was to ask myself one question: is thinking this way useful to me? During chemo I remember I was getting regular chest pain and told myself I was heading for a heart attack. I was frozen with fear, I would not leave the house and my quality of life declined. Then I had to have a good chat with myself, a chat that was useful to me, and from there I took small steps to enjoy moments of living. 

 

The above may sound like I am sorted but I continue to have to work hard to get myself in a calm place. 

 

In addition, I started taking a small dose of anxiety tablets prescribed by my GP.

 

I think those of us who are highly anxious need a lot of reassurance as our mind is often fixed on worst case scenarios. You will get reassurance from your bcn and maybe with the help of a counsellor you can learn to reassure yourself. Learning to reassure myself is now one of my goals.

 

MoDo - you can do this. Smiley Happy

Member

Re: October 2018 Chemo starters

Thank you i will ask for that one i wish I could find something to drink other than water any suggestions x
Member

Re: October 2018 Chemo starters

Hi K,

Don't go on Google, it's the information from hospital I've read.

I've got a number for someone at macmillan, i will phone them.

 

Anxiety takes over my mind & I become irrational even though I can see on here that it's doable on here by the amount of ladies who've done it.

I've got friends who've had chemo & are now getting on with their lives

 

It's all a waste of time & energy what I'm doing but I feel so obsessed by it all going wrong for me !

Don't know how to stop my mind, I'm going to go out for a walk I think.

 

Thanks for your replies. X

ktk
Member

Re: October 2018 Chemo starters

MoDo KEEP AWAY FROM GOOGLE!!! You really must must must talk to someone. Please ring your BCN. It will take them time to ring you back so do it NOW!! They will talk you through it and direct you to someone who can help. It is all scary to start with but as Shi says the fear of the unknown is the problem. Everyone is different and Google will always give you the worst case scenario. Just look on these threads to see that we have coped and come out the other side more or less unscathed! Please please get yourself some help today. Kxxx
Member

Re: October 2018 Chemo starters

Shi, 

Thank you, not sure if speaking to BCN will help.

I might phone help line later.

 

Reading all side effects is daunting, oncologist said to make sure I read it all, blimey how does anyone agree to having it, it's mind boggling worrying.

Thinking about positives is in my mind for 2 mins then hours of chaos thinking all sorts, need some serious medication to calm me down.

 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Oh my darling, please speak to your bc nurse that’s been assigned to you and tell them how this is making you feel. We have all had the fear of the unknown as we started chemo, it’s normal to be feeling this way. People do get through chemo, break it down into 3 week slots, it makes it easier to cope with, you will settle into a routine with it, put a post it up in your kitchen and tick each one off it give you sense of achievement and you will achieve it my darling, we are all here too 👭👭👭💕💕💕✨✨Shi xx
Member

Re: October 2018 Chemo starters

Having a really bad day, cannot stop shaking, I'm becoming obessessed with the chemo treatment.

Feel traumatised by it all.

Need some help with this. 

Haven't been able to concentrate on anything since appt yesterday.

Oncologist said to try at look at positives, suffer with anxiety/depression for years so thinking is warped already.

ktk
Member

Re: October 2018 Chemo starters

Hi MoDo. I finishe my final T yesterday 😁 and am due to have rads next. I am also having bisphosphonates starting in November. These are just to strengthen your bones to protect from the longer lasting effects of chemo and menopause.

Aneebel, don’t worry about the chemo. It is very doable. You will be monitored throughout and can ring the help line at any time night or day. If you want to your local charity can also arrange support in terms of a ‘someone like me’ person to talk to or even som counselling if you want. Why don’t you give them a buzz.

Love to all you starters. Stay strong. You have got this. Kxxxx
Member

Re: October 2018 Chemo starters

Hi MoDo
Yes, it's very scary but at least you have more of an idea where you're up to with your treatment...the "not knowing" plays on your mind too doesn't it!!

I don't know what a Bisphosphonate is so I can't help you with that!

I'm going for my pre-assessment at the chemo unit this morning and having a picc line put in!!
My chemo starts tomorrow.....
(Unless I change my mind and I decide I'm not going!! 😳😳😳)

Stay strong everyone... 💗💪🏼💗💪🏼💗💪🏼💗 xx
Member

Re: October 2018 Chemo starters

Hi - seen Oncologist today I'm  having 3xEC and 3xTax starting 24th October......Also a Bisphosphonate as long as my dentist agrees. As I'm post menopausal.

 

Been scared stiff by the side effects & things that can go wrong some fatal....My goodness it's scary.

 

 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi pat, I had akynzeo and metaclopromide during my 6 chemos and no nausea or anything and kept my taste buds too. Everyone is different and everyone will have different antisickness meds combos but you need to tell your teams if things aren’t working so they can tweek them to suit you personally, keep 💪💪💪they will find a combo for you 😘😘💕💕✨✨✨Shi xx
ktk
Member

Re: October 2018 Chemo starters

Metaclopromide works for me, but I only took that after I had used the high strength stuff given for the days following chemo. Have they given you Emend? If not ask for it. Good luck! Kx
Member

Re: October 2018 Chemo starters

Hi, since posting my last blog it went down hill, on the Saturday after chemo I had no energy, was finding it hard to get my breath and felt very very sick. The Sunday was a slightly better day but not by much and by 9 p.m I was violently sick, managed to get some sleep but the sickness /nausea feeling very strong. Monday was a little better but sick again in the evening, all through this I was taking Cyclizine but have had to change today to Metoclopramide. Has anyone else had a bad time after second lot of chemo? Have any of you been taking Metoclopramide if so did they help.
ktk
Member

Re: October 2018 Chemo starters

MoDo, it will be better when you know the plan. Make sure you take someone with you. Then get ready to shop! Wigs, scarves, hats 😄. My last chemo tomorrow. It is nice to get to the end. Lots of love Kxxx
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

MoDo 😘😘😘darling, it’s ok to be 🤯🤯😳🤯😳your team at your unit will look after you and support you very well, tell them you are worried, they can recommend you can speak to a specialist support person at your hospital who can show you coping strategies also, don’t forget the bccf has the someone like me option that you can ring and they call you back and you can discuss everything in confidence too. Keep 💪💪💪💪you can do this, we’ve got that bingo chord round your waist and you might bounce but all the ladies in here will haul you back to safety always 😘😘💕💕💕✨✨✨Shi xx
Member

Re: October 2018 Chemo starters

Got my appt for chemo tomorrow afternoon, it's not even for the treatment it's just to discuss things.

Feeling so anxious about what they going to tell me, feel jittery & so nervous. 

 

Not coping very well I feel so overwhelmed by it all.

Goodness knows how I'm going to be when the treatment starts.....

Member

Re: October 2018 Chemo starters

ElliesMum, hope you start to feel better soon.. Fingers crossed you'll be well enough for the 21st!
Thankyou for thinking of me... I'll let you know how I get on! xx

💗💪🏼💗💪🏼💗
Member

Re: October 2018 Chemo starters

Thanks for your supportive messages, Mai7 and Shi! I know this forum will be so helpful as we muddle our way through chemo.

Best of luck on Friday, Ann 🤞 I’ll be thinking of you. As it turns out, I definitely have an infection now (extra surgery last week made things worse rather than healing) and have to get implant removed today. So chemo for me has been delayed another fortnight 👎 Oh well. I will get to hear about all of your experiences and learn from you all over the next few weeks! Due to start on the 21st now.

Good luck with your first chemo session on the 10th, Helen!

😘💕xox
Member

Re: October 2018 Chemo starters

Hi Mai7... Thankyou for your good wishes 💗 (I will get round to looking at your blog one of these days!) xx 💗

 

Hi Shi... You're right, I for one certainly feel 😳😳😳!!! (I'm not going, I've changed my mind!! 😂) 

Thankyou for all your positive vibes and advice....

Where's the bungi chord???? I'll hold onto this end! 💪🏼💗💪🏼💗💪🏼💗💪🏼 xx 💗

 

Hi Helen.kenn...i had a heart scan a couple of weeks ago, I have a pre-assessment on Thursday, start chemo on Friday! I will be having 6 x TCH and Pertuzumab (if I've read that right on my paperwork!! 🙄)

Get hold of the bungi chord! 💪🏼💗

Hope everything goes well for you, would love to know how you're doing xx 💗

 

Love Ann x

 

💗💪🏼💗💪🏼💗💪🏼💗💪🏼💗

 

 

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi 💪💪💪Oct 18 ladies, you will probably be in 🤯🤯🤯🤯😳😳😳😳mode right now, please know we are all here to help you through 👭👭👭😘😘😘you will do it, hold onto each other with a big bunji chord and bounce and 💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻Your way through. Take your meds as instructed by your units, if they don’t work for nausea ring your units and tell them, they will tweak them till they get you on right combo. Keep check on your temperature during chemo and for anything even if you think it’s nothing, phone your unit rapid response number and speak to them, it’s all about getting through safely and you will ❤️❤️Because you are 💪💪💪💪and beautiful and amazing. I was on oct17 Chemo thread and we were all slightly 🤪🤪🤪🤪during our chemo train journey but we made it and you all will too, keep focused. Oh yes, silk pillowcase is gentle on head if you are not planning on cold capping, if you don’t your hair will start to shed after 1st t around day 14, most of us buzzed hair off to grade 1 at this stage and had wigs at the ready (turned out to be like a nice warm hat during the winter) so bonus 👍👍oh and warning for any shopaholics the steroids will have you online shopping at all hours 🤣😂🤣😂🤣and also talking to each other on here at all hours 😁😁💕💕✨✨✨Shi xx
Member

Re: October 2018 Chemo starters

Heart scan tomorrow and a meeting with the chemo team to find out how it will all works then start 3xEC and 3 Docetaxel  on the 10th. 

Wasn’t expecting chemo until my oncotype score came in at 37 so here I am

hello all, we’ll help each other through this !

Community Champion

Re: October 2018 Chemo starters

Hello Ladies, I just wanted to wish you all well as it's now October and the start of your chemo.  I had 8 rounds of FEC-T and finished a year ago.  For anyone that hasn't seen my blog, here it is with lots of ideas for coping with side effects (you may not get as many as me though so don't worry!).  http://lifeafterlola.com  If you want to ask any questions about chemo to experienced matriarchs (lol) just post them on the earlier threads and others will be able to help (I'm on 'May 2017 starters' and we are a friendly bunch). xxxxxxx