Hi ladies! Hope you don't mind me dropping by? Like Shi, I'm an oct 2017 lady. I'm er+ with no node involvement, I had surgery followed by 6 rounds of fec, rads and I'm now on tamoxifen. I cold capped fairly successfully through my chemo and I also worked. So if you've got any questions just let me know.
I was also very anxious and found yoga and meditation very helpful. I tried to do it every day even if it was just for 10 mins. My other tip would also be to make sure to drink plenty of water day before chemo, day of chemo and day after.
This forum is brilliant for support and I would say that the oct 2017 ladies kept me sane, but to be honest I think the chemo all turned us as mad as a box of 🐸 🐸 😂 Good luck!
Oh Aneebel, thanks so much for that.
That does help take the fear away a bit....💕
How come you were there from 8 - 5 ?
Does it take that long every time...
I had my first chemo treatment yesterday (Fri)... I was in a bit of a tiz as we probably all are..never having been through this before, but it all went smoothly!
Like the other ladies say... The first treatment is done very slowly, then you have a break to check for side effects... Then the next bag is attached... Have another break to check for side effects... And so on...
There is a nurse there all the time or there is a buzzer if you need help...
I was was there from 8 until 5 so it was a long day but for all the right reasons!
I did have a massive headache which was probably to do with the 'not knowing' and totally shattered by the time I got home... But today I'm relatively okay today on the whole!
Hope this helps you a little bit xx 💗💗
Thank you for your reassuring message regarding the chemo treatment, it does help to hear that the nurses will give it me slowly & keep a eye on me.
I really do hope the fear will subside after the first one.
And Yes, I'm having the medicine to kill off any random cells & Yes, that is good, it's VERY GOOD.
Thank you so much....💕
Anxious-Soul - thank you for message.
Definitely need distractions as watching Atypical did help.
Need some suggestions for more series if anyone has any.
Don't feel up for doing much else at moment as still feel bit sore & weak.
Thanks for helping me A-S I was in a bad place.....💕
P.S. - I watched every episode by the way !!
Good morning MoDo,
I am just dropping by to see how you're doing.
It sounds like binge watching atypical is working for you. Other distraction techniques will work for you, you have just got to figure out what activities will help and this may be trial and error.
I have lost count of the number of films I have watched and the number of drama series. The CBT counsellor gave me a worksheet and one of the questions was ' where is the evidence?' I found asking myself this useful. We are different so this may not work for you.
Wishing you some calmer days ahead.
Thank you for message, really appreciate it.
It helps me to hear I'm not on my own, I've been torturing myself.
I will look up the book you recommended it sounds just right for me. I have some book tokens & will see if they have it in Waterstones, thank you for that.
I certainly over think things so this is magnified 100 fold, I have been trying to combat my anxiety - I watched several episodes of Atypical last night & I did calm down some.
Like you the anxiety has made me feel all sorts ( worse case scenarios ) which almost tip me over the edge.
Thanks for taking the time to help me Reddi, everyone is so kind & helpful on here.
This group has kept me sane, I've had so much support from day one.
I can't thank you all enough 💕
Hi everyone, I hope you don’t mind me jumping on the thread, I found out yesterday I’m due to start Chemo Thursday, we only found out a few days ago I would need chemo and I think I was in complete denial it would happen.
To say I’m terrified would be an understatement, I have so many questions that I’m not actually sure what they are anymore 😳 but it has been really helpful reading others experiences, I’m not sure what I would have done otherwise! I think my biggest fear is the whole loosing my hair, where do you even start with wigs and scarfs? Has any bought them already do you wait?
I have spoke to Maggie's today & they have specialist nurses & a clinical psychologist there each day, it's a drop in centre so I'm going to go there.
I have calmed down some but still extremely anxious.
Glad you have no sign of infection, I'll be one/two weeks behind you as my first chemo will be 24th.....😮 xxx
You're welcome MoDo.
Remember to tell the NHS staff you're highly anxious and they will response with compassion and understanding.
This is doable. You can do this.
Thank you for message.
I definitely am very similar to you & your story does help a lot as I do feel quite isolated in my way of thinking as I'm so extreme.
Even ladies who do find it difficult seem less so than me, so it's good to hear from you.
I have been in touch with a counsellor have had to wait while I had another OP, oncologist yesterday said he would refer me too.
As you the worst case scenarios are awful & seem so real.
I do the breathing techniques & they can help, will try binge watching.
I too am hiding away quite a bit.
The question "is thinking this way helping me" is NO - I do talk to myself just need to get better at it.
As I'm typing this I can feel the anxiety making me shake.
Reassurance is essential to me as you say its worst case scenarios in my mind & I find it difficult to reassure myself.
Hopefully when I get some help with this I will improve.
Thank you A-S your message means a lot to me. 💕
I hope you don't mind me dropping by.
I wanted to share my story in case this may be helpful to you.
Back in February this year I started chemo and as my user name suggests I was an anxious soul and continue to be so. I was frightened a lot of the time, especially when my immune system disappeared. Worst case scenarios ran through my mind, I would shiver and shake with anxiety.
With the help of a CBT counsellor I developed some useful tools to help me. For example concentrating on my breathing, using distraction to help such as binge watching programmes, watching a film, caring for others.
At one point I would not leave the house because I was frozen with anxiety. Then I learnt to challenge myself by having a good talk with myself because I did not want cancer to lead me to merely existing rather than living. When my energy was okay I would go out for that walk and spend time with friends.
With the help of my counsellor she taught me another way to challenge myself was to ask myself one question: is thinking this way useful to me? During chemo I remember I was getting regular chest pain and told myself I was heading for a heart attack. I was frozen with fear, I would not leave the house and my quality of life declined. Then I had to have a good chat with myself, a chat that was useful to me, and from there I took small steps to enjoy moments of living.
The above may sound like I am sorted but I continue to have to work hard to get myself in a calm place.
In addition, I started taking a small dose of anxiety tablets prescribed by my GP.
I think those of us who are highly anxious need a lot of reassurance as our mind is often fixed on worst case scenarios. You will get reassurance from your bcn and maybe with the help of a counsellor you can learn to reassure yourself. Learning to reassure myself is now one of my goals.
MoDo - you can do this.
Don't go on Google, it's the information from hospital I've read.
I've got a number for someone at macmillan, i will phone them.
Anxiety takes over my mind & I become irrational even though I can see on here that it's doable on here by the amount of ladies who've done it.
I've got friends who've had chemo & are now getting on with their lives
It's all a waste of time & energy what I'm doing but I feel so obsessed by it all going wrong for me !
Don't know how to stop my mind, I'm going to go out for a walk I think.
Thanks for your replies. X
Thank you, not sure if speaking to BCN will help.
I might phone help line later.
Reading all side effects is daunting, oncologist said to make sure I read it all, blimey how does anyone agree to having it, it's mind boggling worrying.
Thinking about positives is in my mind for 2 mins then hours of chaos thinking all sorts, need some serious medication to calm me down.
Having a really bad day, cannot stop shaking, I'm becoming obessessed with the chemo treatment.
Feel traumatised by it all.
Need some help with this.
Haven't been able to concentrate on anything since appt yesterday.
Oncologist said to try at look at positives, suffer with anxiety/depression for years so thinking is warped already.
Hi - seen Oncologist today I'm having 3xEC and 3xTax starting 24th October......Also a Bisphosphonate as long as my dentist agrees. As I'm post menopausal.
Been scared stiff by the side effects & things that can go wrong some fatal....My goodness it's scary.
Got my appt for chemo tomorrow afternoon, it's not even for the treatment it's just to discuss things.
Feeling so anxious about what they going to tell me, feel jittery & so nervous.
Not coping very well I feel so overwhelmed by it all.
Goodness knows how I'm going to be when the treatment starts.....
Hi Mai7... Thankyou for your good wishes 💗 (I will get round to looking at your blog one of these days!) xx 💗
Hi Shi... You're right, I for one certainly feel 😳😳😳!!! (I'm not going, I've changed my mind!! 😂)
Thankyou for all your positive vibes and advice....
Where's the bungi chord???? I'll hold onto this end! 💪🏼💗💪🏼💗💪🏼💗💪🏼 xx 💗
Hi Helen.kenn...i had a heart scan a couple of weeks ago, I have a pre-assessment on Thursday, start chemo on Friday! I will be having 6 x TCH and Pertuzumab (if I've read that right on my paperwork!! 🙄)
Get hold of the bungi chord! 💪🏼💗
Hope everything goes well for you, would love to know how you're doing xx 💗
Love Ann x
Heart scan tomorrow and a meeting with the chemo team to find out how it will all works then start 3xEC and 3 Docetaxel on the 10th.
Wasn’t expecting chemo until my oncotype score came in at 37 so here I am
hello all, we’ll help each other through this !
Hello Ladies, I just wanted to wish you all well as it's now October and the start of your chemo. I had 8 rounds of FEC-T and finished a year ago. For anyone that hasn't seen my blog, here it is with lots of ideas for coping with side effects (you may not get as many as me though so don't worry!). http://lifeafterlola.com If you want to ask any questions about chemo to experienced matriarchs (lol) just post them on the earlier threads and others will be able to help (I'm on 'May 2017 starters' and we are a friendly bunch). xxxxxxx