12-01-2019 07:26 PM - edited 15-01-2019 09:31 AM
The Birthday Girl had a lovely day, Thank you! 🎂💖
ElliesMum... how lovely that your Mum is coming to help out! You'll probably wonder how you managed without her! And now your little girl has gone to her Grandparents you can have a rest! (Try not to feel
too mean.. it'll probably do you good!) 😴💕
Yes, one more chemo to go! Ours are on the same day I think! 💪
Thank you everyone for thinking about me... I still feel ridiculously yukky! My temperature still isn't 'behaving' altho, it hasnt gone over 38* today so maybe it's settling down at last!! 🤞🤞🤞🤞
I only have my routine appt with my Oncologist and another appointment for an echocardiogram... nothing else as yet!
Maybe they've forgotten about me!! 🙄
Yes Fiona.... not long now until the 💩 chemo is finished with!!!! Yippeeeeeeee!
I hope you Ladies are coping with your horrid s/e... 🎀
Have a lovely evening xx 💐🌸🏵🌹
Stay strong! 💪
12-01-2019 05:42 PM
12-01-2019 05:18 PM
Hi Elliesmum - I just wondered what medical insurance you've been able to take out for travelling to the States. I know lots of people have been refused cover until after the end of all treatment, so it would be really useful to know of a company that's more flexible. Cheers.
12-01-2019 04:39 PM
12-01-2019 01:10 PM
12-01-2019 10:14 AM
11-01-2019 04:53 PM - edited 11-01-2019 04:55 PM
FYI, I'm now 8 weeks since last docetaxel infusion (June 2018 starter), and I've kept all of my fingernails and toenails -- including a bunged-up toenail that my BCN was quite sure I'd lose because it was already so damaged! I did get Mees lines (white horizontal lines) on my nails during FEC, but these are growing out, and they were at times sore, but they haven't become loose.
I kept my nails trimmed short, especially right before each chemo infusion. I applied OPI cuticle oil every day, including during FEC. (I got mine from Nail Direct, but you might be able to find it cheaper elsewhere.) I painted my nails a very dark brown for the first cycle of T, but because my nails tended to be dry/brittle and prone to breaking before chemo, I was worried about not being able to moisturize them, as well as the effect of nail polish remover. So in week 3 of T no. 1, I stripped them and started applying Polybalm, which was trialed at Bedford Hospital, Cambridge, at least daily; I also applied sunblock if I planned to be outdoors without gloves/mittens. I kept up the Polybalm for 5 weeks after my 4th and final T infusion, and still use what's left once or twice a week, when my nails look a bit dry. 💅
I don't know how much any of this helped, if it helped at all; it might also be that I kept my nails because my T dose was reduced to about 80% because of other side effects.
11-01-2019 03:29 PM
Hi Badboob, I didn't use any oil on my nails, I think that might be buddyfan as Shi has said. I did use plasters though to try and stop my nails breaking too much! It didn't look great, but it did stop my nails from breaking too low down and being painful and it prevented me from catching them on anything.
I was on FEC and like you, found it made me feel exhausted and I slept alot too! x
11-01-2019 01:48 PM
11-01-2019 10:45 AM
l’ve been lying low since my 5th chemo on Tuesday. But have been catching up with everyone’s news on here. Gosh we are all going though this aren’t we! I hope those of you who have changed to Docetaxel are doing ok.
I have found EC to be a totally different experience. Boy has it wiped me out. I had a funny turn while they administer it and had to call the duty doctor, who when she arrived was even more stressed than I was. I suppose the up side is that I can sleep! Just that I can’t stop sleeping! I am just so thankful that I only have two sessions to go. How many more is everyone having, we must be getting to the end of this poop.
Very impressed Elliesmum that you’ve been to work, and completely sympathise with your sentiments about what people say to you! I work freelance and have turn down loads of work as I can’t guarantee the quality as chemo brain is a bit of a problem at the moment and is driving me mad! Hope your little one is soon over her HFM infection.
Anyone starting to lose their nails? Mine are very sore. I rang my BCN yesterday who was sympathetic but explained that all fast growing cells are affected by the chemo, and yes I could lose some or all. She suggested using plasters and sterristrips to hold them down!
Stay strong ladies we are all getting there, slowly........
11-01-2019 09:17 AM
11-01-2019 05:14 AM
10-01-2019 11:03 PM
10-01-2019 06:37 PM
10-01-2019 04:54 PM
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09-01-2019 07:56 PM