Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Must to something in the air Elliesmum! Struggling with the lovely T! Fatigue isn’t too bad today compared to previous days butbthe aches 😭 there are times I’m struggling to pick up my daughter which is awful! I also love to run and I’ve got to the point where i feel it’s the only part of the “old me left” and not sure is be able to do that! Hoping for a better day tomorrow, onwards and upwards I guess Smiley Happy)
Hope you feel better soon ladies!!
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

I have zero energy too...
Luckily I feel slightly better than I did when I had chemo no.3 but still so rough and nauseous... I actually can't walk anywhere without going so sick and hot and can't breathe... The district nurse advised me to 'listen to my body'... I'll never get anything done at this rate!!! 🎁🎁🎁
I seriously thought I was going to pass out in the supermarket this morning...
And my temperature is still up and down! It's been ove 38* a few times too but I just can't bring myself to ring the helpline!!! My daughters keep telling me off!!

So sorry to hear you've been in hospital ElliesMum... Hope you continue to improve! 🙏🏻💐
💜Fiona...you've done well wrapping your pressies!! 🎁

Take care everyone x 🎀

💗💪🏼💗💪🏼💗💪🏼💗
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Haha I feel like I need to invest in a new “chemo” wardrobe too, Fiona. All I want to wear right now are comfy (stretchy/accommodating 🙈) clothes! I’m sure your choices were far more stylish 😊 Also, I’m very impressed you’ve finished wrapping all of your Christmas presents! I have loads left...🤦‍♀️

I’ve had a rough few days. Tax really does hit you several days later than FEC, and I wasn’t really mentally prepared for that. Ended up back in hospital yesterday feeling rubbish. However, I seem to have finally turned a corner and feel a little bit better back at home today. Still on oral morphine, but the aches are tolerable. I hope you’re feeling a little bit better too, Sar_ah.

Aneeebel, I like the sound of your low-maintenance Christmas decorations. My energy levels have really taken a hit, so my goals for the day were to get my daughter to nursery, do a load of washing and read through one paper draft. It only took me 7.5 hours to accomplish...🙈😂

Love and gentle hugs to all. Xox 💕💐😘
Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Lol Aneeebel, that was funny 🎄

I've just spent 2 hours in Chesterfield like a whirling dervish (does anyone actually know what one of those looks like?) treating myself to new clothes. I've now got the task of trying them on at home. It seemed far too much effort to do it in the shops 🤔

All presents are wrapped, work is pretty much wrapped up for the year, I've bought some new "fat" clothes, I'm not sure there's much more to do other than put my feet up and enjoy ☕🍰

Have a lovely day ladies, thinking of you all and sending big hugs 🤗🤗💪💪🎄🎄
💜Fiona xxx
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hello Ladies...

Hope you're all well! 🎀

I've finally put my Christmas tree up!
Well, it's a 2 foot tall fibre optic tree with about 8 baubles on it and a star! I'd hate you to think I'd found the energy to transform our living room into Santas Grotto!! Hahaaaa... 🎄🎄

Have a lovely day everyone... Keep smiling and take care!! 😘🎀 x

💗💪🏼💗💪🏼💗💪🏼💗
Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Glad your granddaughters concert went well Smiley Happy you must be very proud Smiley Happy
I was massively jealous of your naps!! I’m in bed today, has a rough afternoon yesterday and not feeling great today, I think I’ve hit the Christmas wall and thinking a lot about a “normal” Christmas.
Hope your feeling a bit better today Elliesmum and less achy.
Xx
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hi ElliesMum and Sar_ah... I went to the concert but left at the interval... My Grandaugter was fab, the kids loved it! Giving it their all!! 👧🏼👦🏼
I didn't feel too well actually... Still don't!
I've been shopping with my daughter this morning...well, she only came to look after me!! I had to sit down a couple of times before I fell over!

I think Father Christmas is going to have to do the rest of my shopping!!! 🎅🏼🎅🏼🎅🏼🎅🏼🎅🏼
I've been to bed too... I bet you felt nice after a 4 hour nod! 💤💤💤
I was meant to be going to the Genetics clinic tomorrow but I seriously have no energy...I've re-arranged it so now my appt is Feb!

Stay strong everyone and keep smiling! 😘🎀 x

💗💪🏼💗💪🏼💗💪🏼💗
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

How was the concert, Aneeebel? I hope you were well enough to enjoy your granddaughter’s performance! Did your little one let you sleep last night, Sar_ah? I hope so! I hope all of your October ladies are feeling ok.

In the interests of full disclosure, I feel compelled to report that I may have been a little hasty in my assessment of docetaxel... Turns out it does kick in a few days later than FEC! 🤷‍♀️🤦‍♀️🙈 Still, aside from some aches and fatigue it hasn’t been too bad. Haven’t been sick, which is good!👍 I intended to get a full day of work done from home day today. Dropped little one off at nursery, decided I needed a quick “nap”, and woke up four hours later! 😂 Where did the morning go?!? Still, I feel a bit better for it so it was probably a good idea.

Have a lovely Monday wonderful ladies! Xox 😘💐💕
Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Mishy18, thank you for the advice Smiley Happy I feel a bit silly now, I have loads of Epsom salts for after runs and the thought hadn’t even crossed my mind!! Just waiting for the littlen to go down (hoping she sleeps today) and be on that job Smiley Happy) thank you so much!
Member
Posts: 1,854
Registered: ‎29-04-2017

Re: October 2018 Chemo starters

The T makes you ache in the joints ladies mainly at night added to the injections making it feel worse it lasts about a week, but if you aee feeling cold all the time keep an eye it could just be the weather and lack of body hair, i used to feel really cold but i was told a low temp below 35.5 to ring unit too mine fluctuated on Doxetaxol its best just to air on side of caution if at all unsure, take care everyone, it will be finished before you realise it goes fast once you get to 4th cycle xxx
Member
Posts: 1,854
Registered: ‎29-04-2017

Re: October 2018 Chemo starters

Ladies the pain in joints and bones from T can be eased by Epsom salt baths i had one every night after T chemo once the pain kicked in can be taken along side painkillers put them in a hot bath but don't get in until its just over warm as i found during chemo a hot bath caused palpitations!!! Lots of ladies on they forum tild me to use the salts and they do help i found adding a couple of drops of lavender and chamomile essential oils helped relax me xx thought i would pass on the tips clicked on your thread by accident but thought i should share my tips while im here i finished my active treatment end Jan this year xxxx
Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Hope you enjoy the concert! Smiley Happy) and well done to your granddaughter for her solo, brave girl Smiley Happy)
Has anyone been given any tips re joint and muscle pain? Struggling today in my legs and hips mainly, taken some painkillers but didn’t know if anyone else had any other works or wisdom? Also anyone else also constantly cold! Currently sitting with heating on, heated blanket, and extra blanket and lots of layers!
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Have a fabulous time at your granddaughter’s concert, Aneeebel! 🥳🕺💕 I hope your temperature stays in the safe range for you. You’ve reminded me I haven’t been checking mine as regularly as I should be...🤦‍♀️

Have a wonderful Sunday, ladies! Xox 💐❄️💪
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hi Ladies.... Hope you're all feeling well!
😘💐🎀

Thankyou for thinking of me... Up to now I don't feel too bad, altho I did panic a bit yesterday as my temperature appeared to be going up, luckily not over 38* but it was on its way!!! 🙄 I'm very tired too but I think we all get tired and spaced out! 😴😴😴

Good news that you Ladies don't feel too bad on your T treatment...everything is crossed it stays that way! 💗

I didn't go to our Works Christmas night out...as it was the same day as chemo! 🎄🎅🏼
My Grandaughter is in a singing club and it's their concert this afternoon... So will hopefully be going to watch her... She very proudly told me she's singing a solo and was very excited! 👧🏼🎤💗🎅🏼

Have a lovely day everyone... And thanks again for thinking of me! You're all very kind! xx

💗💪🏼💗💪🏼💗💪🏼💗

Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

That’s brilliant news Smiley Happy I’ve also been feeling well (other than fatigue, but that I can do with!)
Good luck Monday, hopefully you get somewhere with your team.
Xx
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Lovely October ladies, I’m feeling well the day after my first T chemo. Woohoo! Not sure how long it will last, but I’m so pleased. I was feeling pretty awful (or physically sick) and nauseous at this stage after every FEC. So pleasantly surprised. Long may it continue!👍💕🤞

Sar_ah, I plan on contacting my team on Monday to ask about genetic testing. I need to chase up a few other things (echocardiogram appointment hasn’t come through, for example) anyway. I will let you know how I get on!

I hope you’re all keeping warm and dry in this freezing wet weather! ❄️⛄️😘 xox
Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Morning Smiley Happy well that’s round four ✅ Smiley Happy))) and I have to say despite the terrible state I was in pre chemo and some rather strange issues I am having with smells in the hospital! (The hospital doesn’t smell bad, think it’s more association thing!) chemo was fine!! I even when for a 40 minute walk yesterday!!!
Aneeebel how did Friday go for you? Hope you’ve managed to have a “good” cycle, fingers crossed for you.
I’m on FEC-T but had herceptinbat the end. I also had in sprang on my I would be on long term injections in addition to tablets (which I was aware about after the chemo) but have no idea what or why to be honest I Didn’t ask as it wasn’t a great consultant appt.
Fiona my consultant seems to think side effects are much the same!? Only bonuses mentioned were tingling hand and feet (which they said too call if I get) and a runny bottom! So fingers crossed!!
How was your works xmas do? Ours was last night but I didn’t go which was a good idea, I was asleep at 8am!
Loving the idea of an xmas scarf! I tend to have the opposite problem at the moment, my wig makes me look like a hamster 🤣 so I tend to wear scarfs, people do look but I don’t notice it as much now! My little girl also loves them which is a massive help! She has a mini one she wears sometimes, although she def wears it better 😉
Elliesmum how did Friday go? Hope your feeling well Smiley Happy and been able to get some rest.
Re the genetic testing I’m in the same boat as you, it was briefly mentioned by a BC nurse in one appt at the start and shut down by the consultant, I’ve also been thinking about it a lot. Did you have any luck when you asked about it? I wasn’t sure when is the right time to ask, or even really who to ask!? I see the consultant but don’t see any BC nurses as that’s at a different hospital.
Good luck also on Tuesday badboob! It’s a heady feeling reaching the half way point isn’t it!!! In ways it’s gone so fast but others sooooo slow!
Kateday, hope you are feeling better today! Every day is a step closer, also hoping that T will be kinder for you. If it helps at all I’ve found the sickness has massively reduced with T!

Hope you all have a lovely weekend ladies, thinking of you all 💕💪🏻 Xxx
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Fiona, Shi and Aneeebel, thanks for sharing your experiences and offering advice. I will call my BCN and ask her about my options, as it is something I would like to know more about.👍

Feeling ok after first docetaxel chemo. Usually feel really unwell by now 🤢, so definitely an improvement over FEC so far! 🤗 Fingers crosses that trend continues.🤞

Love to all, and stay warm tomorrow. We have a snow and ice warning in the Midlands! ⛄️💕🥰 xox
Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

ElliesMum, I hope today went well, I've been thinking about you and Aneeebel.

As for genetic testing, I was offered this initially because of my age, I'm 48. At the time, the consultant didn't have all the results back from the biopsy so we didn't know I was triple negative, it was purely based on my age. There is no family history of cancer, other than my mum's cousin who had pancreatic cancer. When I met the genetics person she explained I was borderline, just approaching the 10% line where they do want to test. We know I'm triple negative, 48 but that's it.

We had a really good chat with genetics and I was happy to do the test, which is simply providing a blood sample. I was fortunate that I was going for a blood test the next day anyway. It takes about 8 - 10 weeks for the results which should fit in with the end of my chemo and whatever the results are may change what surgery I have (currently thought to be a lumpectomy).

If I was in your shoes I think I'd want to know so I'd try and push for it. But everyone's different.

Good luck with the rest of your evening, I hope you're ok and not suffering 🤗

Oh, the purple wig went down a treat 🤣 Getting a load if blokes trying it on and then seeing them flick their hair is hilarious 🤣

Take care ladies 💪💪

💜Fiona xxx
Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Hi Ellie’s mum, I had genetic testing because I was a tn and also bc runs in family, it was a simple blood test that they have to send away, I got results 2-3 months after having it done. I personally couldn’t wait to get it done and was happy to have the option, some of the ladies on here have had to fight tooth and nail to get one. It was more about knowing that if the tn was caused by faulty brca gene then I would have had additional surgery ASAP at my choice, in a crazy as it sound way, I felt it gave me back a bit of control if that happened, as it turned out I didn’t have faulty brca, the tn was just what mine happened to be (I think it was years and years and years in very stressful jobs) needless to say I don’t do stress now in anyway shape or form. No harm in asking if you could have one as you want to try and protect your daughter 💕💕hope that helps with your decision to pursue the test or not. 💕💕💕✨✨✨Shi xx