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October 2018 Chemo starters

Member

Re: October 2018 Chemo starters

Hi Everyone, 

 

Hope you are all coping with this crappy crap we are dealing with together!

 

Now, this is going to sound like a really weird thing so brace yourselves.........

 

I feel well enough to try my Yoga class today, BUT my hair has started to drop out and I am really worried about ‘moulting all over my mat! I can’t make up my mind if I should take a cap or just let it happen. Downward Dogs are going to be interesting! 

 

Ahhhhhhhh! 

 

Sue x

Community Champion

Re: October 2018 Chemo starters

Hi Lou

 

I'm pleased to hear you're doing ok after no 2, well done you 💪👏💐

 

Dont forget to drink loads today too.

 

I started my injections yesterday and I've already got achy knees 😧 But I'm still going to go out for a walk as it's such a beautiful day here in the Derbyshire Dales 😊

 

Good luck to those ladies having treatment today, fingers crossed it all goes well, and it will be another down 😃

 

Stay safe and warm 🤗🤗 big hugs

 

💜 Fiona xxx

Member

Re: October 2018 Chemo starters

Hi juzcooper, hope everything goes well for you on 7th Nov. I found that wearing seasickness bands during chemo and for a few days afterwards helped with the sickness.

I've got 2 cats and I was just told not to let them lick me. I shouldn't think there will be a problem with your dogs xx 

Member

Re: October 2018 Chemo starters

Hi all. I start my chemo 7th Nov and have joined the November thread. However, I've spent an hour and a half reading through this thread to get a heads up on what to expect after my 1st and 2nd cycles. It's a fantastic thread and have got some great tips for upcoming possible side effects for which I thank you. Sorry to hear those of you who have not had a good time and had to spend time in hospital. You have all given me inspiration 😘 I just wanted to ask a question. We have 2 dogs who I love dearly and give me great comfort. I know that the chemo basically abliterates your immune system and you have to be careful during certain periods. Do any of you have pets and have been advised to avoid them through these times due to possible infection. Sorry if this is a daft question 😕 xx
Member

Re: October 2018 Chemo starters

Good evening ladies,

Well second one done ,
ive got to have a pic line fitted they had trouble with vains again third attempt they got it i feel okay just tierd and abit spaced out,

Mrs fingers,
Welcome all the ladies are great they all share advice and tips on how to cope with diffrent things as i do , i am on same as you fec-t, i found ginger biscuits help if feel a bit sicky and i lemonade to drink ,
Take care stay 💪,

To all the other lovely ladies hope you all okay,
Sendings hugs to all, 🤗🤗
Lou 💕xx
Member

Re: October 2018 Chemo starters

Hi everyone, I started chemo today -first of 3 FEC, then it will be 3 x T.
I’ve been really anxious about all the possible side effects but nothing much has happened so far - except feeling a bit spaced out and dizzy. Obviously it’s early days though...
I’ve got a portacath fitted which made the infusion much easier (no more nasty needles - I had 2 blood tests and 4 injections/cannulas last week, mostly on the same day so totally fed up of being a human pincushion).
I’m trying the cold cap and it was nowhere near as bad as I expected.
Look forward to hearing/sharing chemo experiences x
Member

Re: October 2018 Chemo starters

O I hope the district nurse doesn’t keep you waiting to long
I told them I would inject myself , then thought what are you saying , so told my husband he has to do it 😂😂
I’m glad to read this sickness does pass and I will be sure to tell them that it hasn’t been great
I’m also glad to read being tired and just sleeping is normal the nurse yesterday said just stick with normal life routine
Well since 9pm last night I have slept for few hours woke had drink been sick took meds and pretty much continues in that pattern
How can one feel so tired after all those hours sleep all be it broken sleep xx
ktk
Member

Re: October 2018 Chemo starters

Hi Ladies. Do listen to your bodies. I found that I had 4 days or so after FEC where I just took to my bed. Hardly ate anything. I found sparkling water with a splash of cordial most palatable. However, after the first few days, a week at most, I was up and about as normal. Don’t forget everyone is different. Take it easy and look after yourselves. Much love Kxxx
Community Champion

Re: October 2018 Chemo starters

Good luck with round two, Lou. You can get through it! 💗🤞💪

Kateday, I felt sick for a week. Started feeling a little better from day 4, and nausea had largely gone by day 7. (I’m on FEC.) I really struggled to eat or drink, but eventually found that I could stomach sparkling apple juice and that really helped! Drinking water was horrible for the first week for me. It does get better. I’ve felt fine the rest of the cycle. Gearing up for round two on Friday now! 👍

I’m thinking of you, Aneeebel. You’ve had a bit of a rough time so far! Fingers crossed your tinnitus subsides soon - not what you need right now! 🙈

I hope your distric nurse comes soon to put your mind at ease, Fiona. Good to hear your husband is working from home so he can be there for you. 💕

Love and gentle hugs to all! 😘💐💜
Member

Re: October 2018 Chemo starters

Aneeebel,
Thanks for that,
Sorry to hear you not feeling to good i had that tinnitus too i had it for 2 days made me feel quite strange,
Take care and look after yourself, 💪🤗
Lou 💕 x
Community Champion

Re: October 2018 Chemo starters

Hi 💜Fiona, I still feel really "odd" to be honest! I've developed tinnitus too which doesn't help! I also feel fragile... Seem to be taking two steps forwards and one step back... 😩

Hope you're all feeling well... Have a good day 🌞🌞 xx

💗💪🏼💗💪🏼💗💪🏼💗💪🏼💗
Community Champion

Re: October 2018 Chemo starters

Good luck for today Lou45 xx 💗💪🏼💗💪🏼💗

Community Champion

Re: October 2018 Chemo starters

Hi Aneeebel

I hope you're feeling a bit better today. I had to have a nap yesterday afternoon but it worked. We just have to listen to our bodies and if they say rest, then rest it is.

I'm having a bit of a wobble today so hubby's working from home just to be there for me. 

 

Kateday, keep sipping the water.  I'm on Akynzeo too with dexamethasone, but both of these I have to take one hour before chemo. I've got domperidone as anti-sickness pills but I've not had to use them yet so couldn't tell you if they're any good. I've still got taste buds so far, but I'm only on day 5.

 

I'm waiting for the district nurse to come today and stressing about that, what if they don't turn up etc. 

 

Thinking of you all and hoping you all have a positive day, big hugs 🤗

 

💜 Fiona xxx

 

 

Member

Re: October 2018 Chemo starters

Good morning to all our lovely ladies,

Fiona thanks for that if i honest i feeling a bit anxious i keep thinking because i felt good last time it wont be the same this time ,i drinking loads so hopefuly that will help, hope you still feeling okay today 🤗,

I hope all you 💪 ladies are okay today , have a good day whatever you may be doing remember stay strong and keep warm ,
Lou 💕🤗💪x

Community Champion

Re: October 2018 Chemo starters

Good luck for today Lou, thinking of you 🤗

💜 Fiona xxx

Member

Re: October 2018 Chemo starters

Can anyone tell me how long the sickness lasts
Taking meds drinking fluids
But still either feel sick or am sick y husband will get me sea sick bands later xx
Community Champion

Re: October 2018 Chemo starters

A daytime nap sounds like an excellent idea, Aneeebel! Be kind to yourself and take things gently. I hope you feel a bit more steady on your feet and less tired tomorrow after a good sleep. 🤞💕

Great work, Fiona, getting through your first few days and managing a long walk. So pleased to hear the side effects have been kind to you thus far - long may it continue! 👍🤗

Very brave, Lou, going ahead with the shave. Good on you! 💕💪

Welcome, Kateday, to this fabulous group. The ladies have been so lovely and supportive of me (and of everyone here). It has helped me immensely! Thank you all! 🤗😘💕

Thanks for the tips, Shi! I will definitely ask about the anti-sickness meds’ you mentioned. Food tasted horrible for a week last time (continuing longer than the nausea) so I’m super encouraged that you managed to avoid losing your tastebuds. Fingers crossed there is a combination of anti-sickness meds that will work better for me in round two. 🤞🙈

Goodnight and hugs to all! Xox 💜❤️💙
Member

Re: October 2018 Chemo starters

Aneeebel
Thanks for that i had to do it i didnt like it coming out the way it was and i pleased to say that prickly sensation has gone and so has the itching so hopefuly i might have a bit more of a settled night well thats if i dont start stressing about round 2 tomorrow,

Goodnight lovely ladies sleep well 🤞 anyway 😴,
Hope you all get up in morning feeling good,
Lou 💕💪x
Community Champion

Re: October 2018 Chemo starters

Hi Kateday
Well done on having your 1st chemo... Hope you continue to feel well! One down... 💗💪🏼 xx

Lou45... How brave were you getting your head shaved!! I'm proud of you!
(I'm still deliberating!! Or maybe I'm just a wimp!! 😋) 💗💪🏼 x


💜 Fiona... So pleased you managed to have a walk out! It feels nice to get out into the fresh air doesn't it! 💗💪🏼 x

ElliesMum... Hope you feel okay when it gets to Friday! Will be thinking about you! 💗💪🏼 x


I haven't done anything... I've been so weary and lifeless and off balance... I even went to bed for an hour! 😴😴

Hope everyone is okay! 💗💪🏼💗💪🏼💗💪🏼💗💪🏼 xx

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi Ellie’s mum, akynzeo and metrochlopromide worked well for me during chemo, no sickness, kept my tastebuds too. 👏👏👏 done Lou 👍👍👍you took control and did it 😘😘😘 you are all doing amazing even if you don’t think/feel you are, you are 💪💪💪💪💪 💕💕✨✨Shi xx
Member

Re: October 2018 Chemo starters

I will have to purchase some of these as the sickly feeling isn’t nice along with a head ache xx
Member

Re: October 2018 Chemo starters

Fiona,
Thanks for that it feels strange but at least i not got to worry about doing my hair in a morning just throw a hat on and i'm away ,
Glad you had a nice walk today ,
i cleaned all the bathroom and changed beds and i starving too takeaway pizza for us 😃,

Take care,
Lou 💕💪x
Community Champion

Re: October 2018 Chemo starters

Well done Lou, I'm pleased to hear the shave went well 💇

 

Kateday, I agree with the ginger biscuits too!

 

Hubby and I went for an hour's walk this afternoon, now I'm starving 😜

 

🤗 💜 Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Kateday, be strong 💪 I hope you're coping 💐

I feel the same, as my first session was last Friday so these lovely ladies this month are at least two weeks ahead of me. We'll all get there though. 

Have you got sea sickness bands? They've certainly helped me and I've not needed to take the antisickness pills. And water, just keep drinking the water.

Take care 🤗

💜 Fiona xxx

Member

Re: October 2018 Chemo starters

Hello lovely ladies,

Well i did it i braved the shave my son done it for me i thought i was going to be upset but to be honest i feel quite good apart fom a cold head😨 i think my son made it easier for me because we had a good laugh he left me with a mohawk at one point, i have a few little bristly bits but i guess that will come out on its own,

Kateday,
Welcome,
Glad your first session went well as for feeling sick i have found ginger biscuits help me infact i got some mcvities ginger man biscuits theres 6 little packs in a bag very nice, hope that helps,
Stay warm,

Hope all our other ladies are okay today,
Lou 💕 x
Member

Re: October 2018 Chemo starters

Hi all
I hope everyone is holding up well

Today was first chemo , not as bad as expected was so nervous before hand
Feeling slightly sick now
Any advice on that would help
I will also join November when it starts as I am quite far behind all you lovely ladies xx
ktk
Member

Re: October 2018 Chemo starters

Lou, make sure you take the injection out of the fridge 20mins before you need it. Pinch a good inch and holding the flesh go in at a 30degree angle. You do get used to it I promise. Kx
Member

Re: October 2018 Chemo starters

Fiona
Glad you feeling good i think i only had to rough days but again i think i made it worse by not drinking, i drinking like a fish today ready for tomorrow,
My son had said he will shave my head if i want him to i am thinking about it for today because my head realy irritable at the mo and everytime i go to gently rub or scratch it clumps of hair come out 😮,
I was a bit nervous about the injections but i managed to do them myself i put an ice pack on my tummy first then did it 😖,
I will keep you posted if i brave the shave,

Enjoy your day ladies,
Lou 💕💪
Community Champion

Re: October 2018 Chemo starters

Morning Lou

I feel surprisingly well and I'm shocked by that to say the least. I haven't really had any nasty side effects, just slight nausea and headache for a couple of days. I've not needed to take the anti-sickness pills, I just make sure I drink at least 4 pints of water a day. I drank that much while I was receiving the chemo, I think it may have helped.  I do seem to have a slight tingle in my fingers on my left hand today and my scalp feels a bit weird too, so maybe the FEC is working. I was beginning to think they'd given me fake stuff as I wasn't suffering much 😜 . I should start on the injections tomorrow, when the district nurse turns up, I don't want to do that bit!

I'm not looking forward to the hair loss bit, just like the rest of you. I hope it's quick. My hubby has agreed to shave it for me once it starts coming out. I don't think I could face going to my hairdresser 😢 It's going to be traumatic enough as it is.

It's a beautiful day outside, ladies, I hope you're all going to take advantage of it. I'm hoping to go for a walk later when hubby's home.

Stay 💪💪 and safe. Big hugs 🤗

💜 Fiona xxx

 

Member

Re: October 2018 Chemo starters

Sorry for the odd spelling mistake in last messege i blame my chemo brain 😄
Lou 💕
Member

Re: October 2018 Chemo starters

Morning ladies,

Fiona hope you doing okay my lump was feeling a bit tender too i thought perhaps its the fec working i hope so anyway and as for tierdness exactly the same i was in bad for 9 but then awake again in an hour then on off all night ive tried to go bed later the last week but i still have restless nights the last 3 nights its been my head with the prickly sensation and got up with head ache my hair coming out thick and fast now and gone patchy, 🤗

Elliesmum,
I know what you mean about feeling anxious ive git my second round tomorrow and i dreading it incase it knocks me about , ive been told to make sure i keep drinking plenty because i do struggle with getting the fluids in i not a big drinker, 🤗

Have a good day , stay 💪strong ladies and warm ,
Lou 💕 x


Community Champion

Re: October 2018 Chemo starters

ElliesMum, be brave, you can do this. And we're all here to support you 👭 You've done the first one and got through it, so well done to you. 🏅Each cycle we go through is one step closer to the end and being well again.

 

I don't think my lump Humphrey is too pleased about his FEC treatment, he feels a bit tender today and I'm only on day 4 of cycle 1. I can only hope that FEC is doing its job 😉

 

Today's the first day on my own, as hubby's gone to work, although he says he'll only do a half day. I don't want to waste the day so have got a list of jobs to work through (or not depending on how I feel 😜). Does everyone else get tired quickly? I'm in bed by 9 every night, having already fallen asleep on the sofa 😀

 

Take care lovely ladies, stay safe and warm 🤗

 

💜 Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Sar_ah I’m sorry you got such an early wake up greeting (even if it was super cute)! Daylight savings is a bit rough with little ones. If it makes you feel any better, we were up at 5am this morning too! 🤦‍♀️ (Sadly my in laws live 3 hours away, so a child-free night is like gold dust!)

I have my second cycle on Friday, and even though I feel well at the moment I’m starting to feel a tiny bit anxious about it. I guess I know what’s coming now, and I really don’t want to feel so horribly unwell again! 🙈 I see the oncologist tomorrow for a review. I have felt well since about day 8, but really did feel absolutely terrible for the first 3-4 days. Is there anything I should be asking to change this time? I had Emend from the outset, but sadly it didn’t seem to make much of a difference for me! 🤷‍♀️ Any suggestions would be greatly appreciated

Xox 💕😘💐
Member

Re: October 2018 Chemo starters

Pinklily hope you’re feeling a bit better today, sounds like you’ve had an eventful time so far. Hoping you’re able to get lots and rest and feel better soon.
Lou my hairs started to do the same, I can the cold cap but I’m starting to loss hair and the hair around my crown especially hurt (a bit like when it’s tied up for too long)
Ellie’s mum hope you had a lovely lay it (massively jealous!! 5am wake up here to “we wish you a merry Christmas 🤣)
x
Member

Re: October 2018 Chemo starters

Hi aneeebel,
I have short hair anyway but i had it cut real short before i started my treatment thinking it might help but it hasnt made any diffrence now its very thin thats why i thinking about the shave , my brother said this afternoon he would have his shaved with me , very nice of him i know but its nothing for a man to have no hair isnt it ,

Hugs to everyone 🤗💕
Lou x
Community Champion

Re: October 2018 Chemo starters

My head is exactly the same Lou45...
I said to my friend before that I might have it cut shorter for now...but am I brave enough!!! 🤔 X

Hi ElliesMum... How lovely that you managed to have a lie in! 😴😴 x

I've had a walk to my allotment with the intention of planting a couple of gooseberry bushes... I got there, ate a butty and came home again...the plants are still in the packet! I ran out of steam... But at least I went out for an hour in the fresh air!!

Hope you're all having a lovely day xx

💗💪🏼💗💪🏼💗💪🏼💗
Community Champion

Re: October 2018 Chemo starters

Oh no, pinklily, I’m sorry to hear you had such a rough night! I’m glad they got some IV antihistamines into you and I hope you start to feel better soon. 🤞💐

I hope those of you who had chemo recently are feeling alright. Fingers crossed you’ve all managed to get some sleep. My angel of a mother in law took our little girl last night so I got a proper sleep in this morning! 👼👍

Lou45, I shaved my hair off early on. It has started coming out now and I’m so pleased it’s already very short as it’s not been too distressing for me. Hopefully it starts to feel better for you soon.

Love to all! 😘💕xox
Member

Re: October 2018 Chemo starters

morning ladies,

 

pinklilly hope you are okay and feeling better today,

 

hope all the lovely ladies are doing okay and feeling fine,

 

i have a bit of a dilema my hair is coming out quite alot now i was wandering if anyone else losing hair is experiencing the same sensation as i am its like a prickly feeling and tender to touch it is also tender when i lie down, i am thinking about braving the shave just to get it over with ,

any suggestions or advice ?

thanks in advance ,

lou xx

Community Champion

Re: October 2018 Chemo starters

Oh no pinklily... What a nightmare for you! And your OH! 💙
How are you feeling today? A lot better hopefully!

Thinking about you x 💗💪🏼
Member

Re: October 2018 Chemo starters

Had a nightmare night on Friday, hubby phoned the emergency number for chemo and they told him to phone 999 for an ambulance, I had terrible trouble swallowing, Friday night in hospital with drunks, druggies and people who had been in fights.
I felt so ill, the staff were lovely and tried to put me on a bed away from other people. The doctor came to a conclusion that I had some reaction to the sickness medication I'd taken, gave me a strong intrevenous of antihistamines and that seemed to help. Got home and into bed at 4.30 totally exhausted. Not a good start and so stressful for my OH.
Member

Re: October 2018 Chemo starters

Ladies hang on in there as Shi says the silk pillowcases are lovely for the head i found my head would get really hot at night with the flushes so the silk pillow case wasn't as sticky and stuffy my little tip is a couple of lavender drops on a hanky under pillow helps you relax and sleep better i found the wobbles i remember them Mai how right you are we are like weebles we are all standing upright and were where you lasses are last year and Mai's blog is fab 💪 stay strong and sending you some positive vibes xxx
Community Champion

Re: October 2018 Chemo starters

Lou45, wobbles are normal but we are weebles and weebles wobble but they don't fall down!  I took my afternoon steroids no later than 3pm otherwise there was no chance of sleeping.   xx

Member

Re: October 2018 Chemo starters

Good afternoon lovely ladies,
Hope you all keeping warm on this cold day we have a bit of snow falling at the moment,
Hope you are all feeling okay,
I think ive got over my wobble from the other day,

aneeebel think it was the wig thing that did it for me too, but onwards and upwards, i too had steroids for 3 days but i still not sleeping well.

Fiona hope you feeling okay too,
I havent slept proply since i had my first round they said it was probly all the meds i am taking,

Have a good weekend ladies stay 💪, and warm ,
Lou 💕 x
Community Champion

Re: October 2018 Chemo starters

Aneeebel, I don't have any steroids to take, it was just nerves keeping me awake.
Best of luck and have a nice weekend.
💜 Fiona xxx
Community Champion

Re: October 2018 Chemo starters

Hi 💜Fiona... I feel relatively OK in my self... Just tired...flipping steroids kept me awake all night again! Luckily I only have to take them for 3 days! I'm also a bit unsteady on my feet but that happened last time too! Fingers crossed I carry on feeling this well!
I feel very fragile today for some reason! 😥💗💪🏼

So pleased you're feeling well! Onwards and Upwards! 💗 xx

💗💪🏼💗💪🏼💗💪🏼💗
Community Champion

Re: October 2018 Chemo starters

Hi Aneeebel

I'm surprised at how well I feel to be honest. No sickness, just very slight nausea but I'm wearing my sea sickness bands and it seems to be helping, not had to resort to the anti-sickness pills yet.  I do have a headache which started on the C input yesterday. But it's better than it was yesterday and I've not resorted to painkillers, just drinking loads. The only thing is I have a flushed face, but temperature is fine. 

 

I didnt sleep very well because I was expecting to be ill! So I'm still tired but managing to do housework etc.

 

How are you after No 2? I do hope you're ok 💪💪

 

Take care all of you and keep fighting, you lovely ladies.

 

💜 Fiona xxx

Community Champion

Re: October 2018 Chemo starters

Hi 💜Fiona... Glad yr treatment went okay for you! Hope you're feeling well... One down!! 💗💪🏼 xx

Hi Lou45... I suddenly feel very fragile too for some reason! I think it's the wig that's tipped me over the edge! 🙄 (As well as everything else!) Keep your chin up... We're all on our way up!!! xx 💗💪🏼

@ktk @shi @kip @Mai7... Thankyou for your advice... I'm holding onto the bungi chord with both hands!!!

Have a good w/end everyone xx

💗💪🏼💗💪🏼💗💪🏼💗 xx
Community Champion

Re: October 2018 Chemo starters

Shi, you're bonkers! Heart  I'm just DJ'ing in for any late joiners who may have missed my blog earlier in the month http://lifeafterlola.blogspot.com  it's full of tips we collected along our chemo journey which you may find useful.  I'll leave you with a little late night luuuurve "Caravan of Love" by the Housemartins - that was our chemo song in the May 2017 starters. xxxx

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

👭👭👭😘😘😘hi girls, sending ❤️❤️❤️and see how 💪💪💪you are all hangling onto that bungi chord while you bounce through this 🤪🤪🤪🤪ride. Few more tip, silk pillowcase is gentle on head and will be kinder to hair when it starts returning. Also get your look good feel better sessions booked in with your local Macmillan centres ❤️❤️❤️ if you can’t get on for a while, go to a boots or Debenhams the beauticians on the counters are usually the ladies who do the Lgfb sessions and they will show you at their counter and help you, they will be kind and lovely ❤️❤️❤️ time on the chemo jukebox for tonight for you, we are family by sister sledge 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💕💕💕✨✨✨✨Shi xx
Kip Community Champion
Community Champion

Re: October 2018 Chemo starters

Wow ladies you are doing well, the hair/wig issue is a biggie at first but once its gone you do get used to it, go with whatever you feel is right, wigs arent for everyone, mine looked lovely but i still hated having to wear it.  Now its getting colder out there will be lovely snuggly hats to wear.  Somebody mentioned what to do about eyebrows and lashes?  I didnt lose mine until chemo 5 out of 6 but if you can book yourselves on to the Looking Good Feeling better course, its free and you get shown how to draw in eyebrows etc and you get lots of lovely freebies.. its a really good pamper for you and a few hours away from this nightmare!

Keep ticking off the days,, 

Kip

Xx