Morning everyone, hope we are all ok this morning.
Elliesmum, I absolutely get about having a plan. I have my oncologist meeting next week for bloods etc prior to cycle 4 YES cycle 4, I can’t believe how fast the time is going. I hope that all is OK even if it means I will feel rubbish over Xmas.
Fiona, treat yourself to a sofa day to relax after your chemo, you know you deserve it!
I am not sure if my nails are starting to change colour, but they are very sore. I am finding picking things up and getting pills out of their packets really challenging. It feels like I have squished my nails and they are bruised, if that makes sense. I will ask my oncologist about it when I see him.
Has anyone got a mottled red rash? My hands, face and chest is covered in a rash that has little red spots that bleed? I think it’s to do with the docetaxel but it is very itchy and on top of everything else is getting me down!
I also had a call from the hospital to say that my uterus ultrasound has throw up a problem that need further investigation so I now have to have a Hysteroscopy! They decided to to an ultrasound as part of the whole women’s heath thing! Blimey, all I need is something to go wrong with my bladder and I will complete the set of nether region investigations, perhaps I should sell tickets for anyone else who wants to have a look!
Finally, some good news! Tina Turner was fantastic, the actress playing the part was really good, it’s a huge part, so I was most impressed with her stamina to do the show twice a day. We had a lovely time in London, we stayed over so I could get some rest, and on Friday we had lunch in a little fish restaurant in Brough Market which was lovely. DH has no problem finishing my food when I’ve had enough! But I did manage to eat all of my dressed crab, delicious😋
Hi Lovely Ladies.... Hope you're all well!
ElliesMum, I'm so pleased you managed nearly a full nights sleep.... Hope you get many more! 😴😴😴
I've started waking up 3 or 4 times during the night... So frustrating! 😴
Badboob, did you enjoy the concert? 💃🏼🎤
💜Fiona....hopefully you'll continue to feel well! Fingers and toes crossed! 🙏🏼💪🏼💗 I was on the same cycle as you but now the oncologist has delayed my no.4, my 'good week' is no longer Christmas week!! 🙄🎄🎅🏼
I'm not having problems with my nails so I'm unable to offer any advice! 💅🏼
Hope you all have a fab weekend, take care and stay 💪🏼 xxx
Thanks ElliesMum, I'm home now and curled up on the sofa with the fire going and plenty of water by my side deciding what rubbish to watch on telly 😃 I'm feeling reasonable. I get an instant headache and runny nose with the C but it's slowly wearing off. Not too much nausea as yet, that'll probably kick in tomorrow.
I hope everyone is well and keeping warm and toasty.
Have a lovely weekend 💪💪💐💐
Is anyone else having problems with nail discolouration? I've noticed that mine are just starting to look a little dark at the base, and I forgot to mention this to the oncologist today.
💜Fiona xxx 🤗🤗💪💪
First of all sorry for my last post, too long and a bit of a rant!
It’s a strange world we live in where we are delighted that one of us is well enough to have chemo! But Congratulations FiMilan! I can imagine the relief! I hope it goes well tomorrow and you are well enough to enjoy Christmas! My next chemo is 18th, so I should be at my worse over Christmas, thank goodness I am at my sister’s where I can just veg out.
Aneeebel, I can also sympathise with your situation, I prepared myself to be told I would need to lose a breast, but was very relieved when told that would be unnecessary. I too am still proud of my puppies, at 62 they are still quite perky. All I can say is this is a wonderful place to just let it all out, in a safe place with people who absolutely get where you are coming from. So don’t hold back if you need to rant.
Still feeling very tired, no improvement in bottom area, but it’s DH Birthday tomorrow so we are off to London to see Tina Turner ( if I can stay awake) so I have slapped my happy face on and will get though it without ruining his celebration!
ElliesMum, I do love red wine, I have to say, especially if it's Italian. We're not big drinkers but could easily drink 3 bottles a week between the two of us. I still keep trying to work out what caused Humphrey's existence, it's either alcohol but I don't think I'm over the weekly allowance, a fall I had in July or just bad luck. Genetics inferred that there really wasn't enough history for it to be BRCA1 or 2 but I was borderline on whether I should be referred to genetics anyway (it seems I'm borderline for everything - lumpectomy/mastectomy, wbc for C2, referral to genetics).
Ive just looked at the clock and realised its just gone 9! That's a miracle for me to still be awake! 😂 I went to work yesterday for about 5 hours and was fast asleep by 8.15. However, I'm always awake anytime from 4.30 onwards. It was 5 this morning. And I did about 4 hours in the office again today.
Well done you on your students 👏👏 Chemical physics? OMG! That sounds very complicated.
Bed time now I think, it's suddenly started to hit me. Does everyone else suffer the same way?
Good night 🤗🤗🍷😉
Aneeebel, I'm so sorry to hear your news. How awful that C4 is delayed but absolutely right that you shouldn't be subjected to chemo if you're not fit enough. And no way are you a wimp, crikey you've been through so much already, you're more than allowed to feel attached to your boob 😉
I've got my oncologist appointment tomorrow, fingers crossed I won't be borderline again and I'll be able to do chemo on Friday. In preparation, me and hubby are enjoying a bottle of wine 🍷🍷 Well, I won't be able to drink red wine for at least a week after chemo, thanks to heartburn.
Christmas tree is up at last 🎄🎄 woohoo! Although I don't know why I've put it up as we're going to my parents for Christmas,Marion to C4 on 28th (hopefully) which should be the first T. In the meantime, I'm just counting the days, 40 done, 86 to go (all being well). 🗓
Take care lovely ladies 🤗🤗💪💪💐💐
💜 Fiona xxx
Badboob... You poor thing! I do hope your bottom starts to improve soon! 💗
I'm virtually t-total too... I don't drink larger all the time... I haven't been well enough! (I'd hate you to think I had a problem!!! 🍺🍺🍺🍺🍺)
Elliesmum, Thankyou for wishing me well! How are you doing?💗
I've been to see my oncologist today... I was due to have C4 on Friday but she said my bloods were shot at last week and as I'm still not 100% fit enough she's delaying my chemo for a week.... I did say to her that I was quite relieved as I don't think my body can cope at the moment!
She said that if I was okay after C4 then I would have C5 but my Breast Care nurse rang me saying my oncologist had emailed her to say I wasn't coping (or my body isn't!!) with chemo and perhaps surgery earlier than planned would be a better option and have the rest of my chemo afterwards!!
So I now have an appointment 'for a chat' with my surgeon on Tuesday!!! 💔
Have a lovely evening everyone xx 🎀🌻🌸
Morning everyone! I hope we are all doing well on this frosty morning.
I have to say that drinking larger is only a dream for me as ALL alcohol tastes like vinegar! So I have decided to go teetotal until my taste buds decided to come home and behave! But I am pleased that you are feeling better Aneeebel.
I too has a number 3 cut, I also rembember the party we had to celebrate our hairless state! My head is covered in sparse grey hair. It seems that any dark hair has not got the strength to hang on and has dropped out, whereas my greys are hanging on in there for grim death! Interesting my body hair is either gone or going APART from my knees, which are still quite hairy! My brother thought this was particularly amusing! Lady garden is rather barren.....but I still have eyelashes and eyebrows, but they need a little help with an eyebrow pencil!
Which brings me on to the part of my anatomy I know you are really interested in...... well, my BCN never got back to me after talking to her while I was having chemo. So on Friday, in desperation I rang her asking her to please get back to me. To her credit she rang back pretty quickly to say that the consultant should have rung me, and perhaps if I was still having problems then to call the 24 hour emergency line. When I rang they wanted to admit me for further investigation as I was still bleeding, but, they were full and would I go to A &E!
Well! Friday afternoon in A&E, the queue to get though the check in process was out the door and down the street. Finally I get get checked in, given a mask to protect me from everyone else and told to wait. It appeared that we were separated into two categories. The red chairs were for people who were either being sick or were so ill they couldnt stand, or had obvious injuries and were covered in blood. The rest of us on blue chairs were a mottle crew of ages and dubious reasons for being there. There fore we all needed sorting out. So an hour later I get called in to be seen by a nurse practitioner who was obviously used to finding the malingers and who was genuine! I passed the test and was told I would be seen by a doctor in another hour. So finally I am called and have to trot after this doctor until finally we arrive at a private room with a bit sign on the door indicating that this was a barrier nursing area. He hooks me up to a blood pressure machine and heart rate and is alarmed that both are sky high! Well I’ve just done a 100 m sprint! He inspects my rear end and says they will know more after bloods are done! A hour later have another bl@@dy canular in my hand and I am left for another hour. Doctor returns and says bloods are low (what a surprise! ) and I may need a transfusion! But the surgeons wanted to see me first! Glup. DH is on a boys lunch and I have only sent him one text saying not to worry!
A hour later the surgeons arrive (3 of them) another inspection of my rear end and then the pronouncement that the previous doctor misread my bloods and they are fine and I should coming back to have a colonoscopy and apart from that, from to keep going with the treatment already prescribed! With that, they were gone! A hour later a nurse arrived to discharge me and in the process ripped out the canular so the my hand swelled up like a ballon and I now have a massive bruise. DH is now at home and going ape**bleep** with texts, He’s also been drinking so in no fit state to drive. I get home and go straight to bed! Well I won’t do that again, unless I absolutely have to.
Sorry this post is so long, so the short answer to a long post is, no change!
I need some help please!!
On friday I found out that I'm starting chemo this month, after being told post surgery it would be rads and tamoxifen (long story short but I argued for and got Oncotype Dx test done - just for my peace of mind. Didn't get peace of mind though as test came back at 31 which is just in the high risk group...so now chemo here i come...I think!!)
As you all started in October I just wondered if anyone is on FEC and what your experiences have been with it? I've been told FEc and it needs to start really quickly as I'm not far short of being 12 weeks post surgery.
I've just joined the December starters group but as I need to get my head round things quickly that chemo is the right way forward, I just wanted some input from others already further along than me. I have provisionally agreed to chemo and confirming by Tuesday.
Hoping you're all doing well...Love to you all xx
Thank you Sar_ah, I don't plan on doing much....altho, I just went shopping with my hubby and I went so hot and breathless and sick, I had to take my jacket off!! 😷🤕🤒
I was referred for genetic testing as 5 members of my family have had different cancers- my appt is on the 18th Dec.
Hope you have a lovely day doing your tree... I love Christmas too! When my grandchildren were younger I used to ask my daughter if I could go and sleep at her house but she said No, you'll have them up at silly o'clock...and would never let me!!! Hahaaa! 🎄🎁🎄🎁🎄
And, yes...people are so insensitive with their comments! When I mentioned needing a mastectomy someone said to me... 'Well, it's only a "boob!" I said No, it is not only a boob! It's MY boob and I'd much rather keep it Thank you!! 😡 Bloody idiots!!! 😤😤😤
Keep smiling ladies... xx 🌻🌷
Hi to you all.... How is everyone?
Badboob, hope you continued to feel well after C3 x 💪🏼
ElliesMum, Thankyou for your kind wishes x
💜Fiona...hope you enjoyed the Christmas markets x
I've been poorly again... 🙄
Was discharged from hospital on the Friday...spent the weekend at home, had to go to the HOTT clinic last Monday as I was unwell... The nurse rang me on Tuesday to see how I was and my temperature had gone up so I had to go back up to the clinic and I was admitted to hospital! I was generally unwell, very bad stomach and admitted with Neutropenic Sepsis.... On IV fluids/potassium and antibiotics for 3 days...I've had stomach X-ray, chest X-ray, ultrasound on my bladder, blood cultures done again, stool samples sent off...i think that's about it but the Doctor thinks most of the symptoms are severe side effects to the chemo! I've actually been ridiculously unwell to be honest!
I also have to have a blood transfusion as my blood count has dropped significantly and I'm anemic!
I have my appointment on Wednesday with my Oncologist so I'll find out more then... And chemo no.4 next Friday!!!! 😫😫😫😫😫 Do I have the energy to go again??? 🙄
Yes, I have...I have a week to get back on my feet.... 💪🏼💪🏼💪🏼💪🏼💗💗💗💗(altho, I am a bit apprehensive to say the least!!)
Anyway, at least I'm home for the weekend, my daughter brought my beautiful grandbabies to see me last night...I haven't seen them for ages as they've been full of a cold...and I'm finally feeling better... I might even force a bottle of beer down tonight!!!
Have a fabulous weekend everyone... Stay strong... And thanks for listening to my tales of woe! 😂💐
Well said, ElliesMum.
prior to my last chemo, I wasn't too impressed with the oncologist I saw. After telling me my white blood cells were borderline and me asking if I could do anything to promote regeneration, he said I could do the injections. I said, "what, the injections I do from day 5 for 5 days?" He hadn't read my notes properly 😡 And when I asked the chemo nurse she said so long as the count is 1 or over its fine, but according to the oncologist 1.42 was borderline. Confusing, or what!
Ive booked flights today for next July to Gran Canaria, so something to look forward to. I don't know where I'll be in the treatment plan but I'll definitely have finished chemo and hopefully had surgery, and maybe even rads by then. I know I won't be able to sunbathe but it'll be a well earned break from all this, and entertaining too as we're taking my sister, her boyfriend and my 3 gorgeous nieces. In fact, the eldest one said to her mum this week that she hoped I'd be better so that we could all go on holiday together again. She's only 8 and my sister has explained to her about my hair and how I'm poorly but the medicine I'm getting makes me lose my hair while making me better. Kids make your heart break with their beautifully simple view of life, don't they?
Its nearly the weekend and there's a Christmas market on in my town this weekend so I'm going to enjoy that, before the hospital rounds start again next week with bloods, onc, and chemo on Friday.
Stay positive, ladies, each day done is one day closer to the end. 💪💪
Morning ladies, I hope those of you who have been in hotel nhs are now all home and doing well.
i had my third chemo yesterday and am feeling fine, a bit hipper actually. Been up since two and feel I could mown the lawn and run round the park! Blinking steroids, I expect I will crash later this afternoon, but in the meantime I will take advantage and strip the beds!
My rear ended is still causing problems and spoke to my BCN about it and what more they can do. She appeared in the unit yesterday to talk to the very poor lady next to me, she is eight years since diagnosis and is still under treatment and is now stage 4 with mets! Very sobering talking with her, put my whines and moans in to perspective.
Anyway I hope everyone is as well as can be expected.
ElliesMum, glad you're not feeling too bad! What a shame your little one is poorly just when you could do with a rest! Hope you both feel better soon! 💗💗 and yes, my grand babies are lovely....Thankyou, I love them with my whole, entire heart! 💙💗
Mrs fingers, that's what I do with the steroids too... Alto, I'm still awake half of the night!! 💤💤
I had a call from the Oncology department last night...
The results from my blood cultures were back from when I was in hospital and they're showing that I have the bug in my system that causes pneumonia!!!
I was so surprised that I actually asked him if he was sure he'd rung the right patient!!!
I could visualise him quickly scrolling through the computer to check!
I'd started antibiotics whilst in hospital which are the correct ones for the bug so I have to finish the course but if I deteriorate I have to go straight to A+E!!
To be honest....I still feel pretty grotty!
It's no wonder I keep saying I'm not for any more chemo!!! 🤒😷😫
Take care everyone xx 😘💐