Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

I hope you neutrophils have magically picked up overnight, Mrs fingers! I have a review with my oncologist this morning ahead of chemo #4 on Friday. I may have overdone things at my research group’s Christmas dinner last night (and it probably didn’t help that I effectively worked full time last week)... 🙈 Feeling so tired, run down and just generally wiped this morning!😬 I’m really hoping my blood counts are ok too!!!🤞I might need to be a bit more sensible next round...🤦‍♀️

Xox💪💐😘💕🎄
Member
Posts: 22
Registered: ‎30-10-2018

Re: October 2018 Chemo starters

Blood test today ahead of round 3 tomorrow and yet again the neutrophils are too low. Hoping for another overnight recovery!
Highlighted
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Badboob, so pleased you had a fab evening!
I bet you couldn't believe it when you were told something had shown up on the ultra sound.... Fingers crossed everything is okay!
I haven't got a red rash but suddenly my feet are painful...I actually think my body is too heavy for them but we'll blame the chemo!! 😂😂😂
Have you tried taking an antihistamine...that may help with the itching perhaps!

Keep your chin up! 💐😘 xx

💗💪🏼💗💪🏼💗💪🏼💗
Member
Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

Morning everyone, hope we are all ok this morning.

 

Elliesmum, I absolutely get about having a plan. I have my oncologist meeting next week for bloods etc prior to cycle 4 YES cycle 4, I can’t believe how fast the time is going.  I hope that all is OK even if it means I will feel rubbish over Xmas.

 

Fiona, treat yourself to a sofa day to relax after your chemo, you know you deserve it!

😉

 

I am not sure if my nails are starting to change colour, but they are very sore. I am finding picking things up and getting pills out of their packets really challenging. It feels like I have squished my nails and they are bruised, if that makes sense. I will ask my oncologist about it when I see him.

 

Has anyone got a mottled red rash? My hands, face and chest is covered in a rash that has little red spots that bleed? I think it’s to do with the docetaxel but it is very itchy and on top of everything else is getting me down! 

 

I also had a call from the hospital to say that my uterus ultrasound has throw up a problem that need further investigation so I now have to have a Hysteroscopy! They decided to to an ultrasound as part of the whole women’s heath thing! Blimey, all I need is something to go wrong with my bladder and I will complete the set of nether region investigations, perhaps I should sell tickets for anyone else who wants to have a look! 

 

Finally, some good news! Tina Turner was fantastic, the actress playing the part was really good, it’s a huge part, so I was most impressed with her stamina to do the show twice a day. We had a lovely time in London, we stayed over so I could get some rest, and on Friday we had lunch in a little fish restaurant in Brough Market which was lovely. DH has no problem finishing my food when I’ve had enough! But I did manage to eat all of my dressed crab, delicious😋

 

Hugs x

Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

[ Edited ]

Hi Lovely Ladies.... Hope you're all well!

ElliesMum, I'm so pleased you managed nearly a full nights sleep.... Hope you get many more! 😴😴😴

I've started waking up 3 or 4 times during the night... So frustrating! 😴

Badboob, did you enjoy the concert? 💃🏼🎤

💜Fiona....hopefully you'll continue to feel well! Fingers and toes crossed! 🙏🏼💪🏼💗 I was on the same cycle as you but now the oncologist has delayed my no.4, my 'good week' is no longer Christmas week!! 🙄🎄🎅🏼
I'm not having problems with my nails so I'm unable to offer any advice! 💅🏼

Hope you all have a fab weekend, take care and stay 💪🏼 xxx

💗💪🏼💗💪🏼💗💪🏼💗

Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Thanks ElliesMum, I'm home now and curled up on the sofa with the fire going and plenty of water by my side deciding what rubbish to watch on telly 😃  I'm feeling reasonable. I get an instant headache and runny nose with the C but it's slowly wearing off. Not too much nausea as yet, that'll probably kick in tomorrow.

 

I hope everyone is well and keeping warm and toasty.

 

Have a lovely weekend 💪💪💐💐

 

💜Fiona xxx

Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

I hope chemo number 3 was ok for you today, Fiona.🤞Thinking of you.💕💐 Yay for FEC being over!

I can totally understand not wanting a delay to your next chemo cycle, Kateday. I am clinging to my schedule for dear life, as I am someone who needs a plan! Not to mention, I don’t want my worst days (side-effects wise) to coincide with Christmas...🙈 I hope your arm holds up ok and that they manage to sort a PICC line for you soon!

Love to all! Xox 😘
Member
Posts: 160
Registered: ‎08-09-2018

Re: October 2018 Chemo starters

Hi ladies how are you all
So saw onc today and discussed the side effects and he wants to reduce the dose and for me to have pic line
He wanted to delay next week chemo , I said no , o will suffer the arm pain just to try and be over the side effects by Christmas so he will do it before number four xx
Shi Community Champion
Community Champion
Posts: 3,248
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Hi Ellie yep think Michael Keaton in beetle juice 😂🤣😂🤣😂xx
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Haha Shi I can just imagine the hair styling you are describing. I wish you and the Oct 17 ladies luck with taming your curly post-chemo mullets! 😂

Fiona, I can only share my own experience but my nails have been ok so far. A bit thinner and more easily torn, but not terrible. However, I’ve only had FEC so far; I believe that the T part of FEC-T treatment causes the most nail issues. I will be paining my nails a dark colour and hoping for the best next week!🤞💅
Shi Community Champion
Community Champion
Posts: 3,248
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Ellie’s mum 🤣😂🤣😂you laugh now at an 80’s crazy wig 🤣😂🤣😂🤣some of us oct17 girls have chemo curl mullets just now trying desperately to grow long enough to straighten 😂🤣😂🤣😂but hey it’s hair and you’ll be celebrating crazy 80’s hair too soon 😂🤣😂🤣👍👍keep going ladies you are doing amazing 💪💪💪😂💕💕✨✨✨Shi xx
Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Is anyone else having problems with nail discolouration?  I've noticed that mine are just starting to look a little dark at the base, and I forgot to mention this to the oncologist today.

 

💜Fiona xxx 🤗🤗💪💪

Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Yay Fiona! Clearly the wine did the trick 🍷👍 Best of luck with your final round of FEC tomorrow. I hope the side effects are kind to you! 🤞💐

Aneeebel, you continue to amaze me. Good on you for going shopping, although do try not to pass out if you can help it! 😂 I have started carrying water everywhere with me just in case I start feeling faint. It’s hard to predict; stupidly overheated shops certainly don’t help matters!

Have fun at the Tina Turner concert, Badboob. What a great excuse to wear a crazy 80s-style novelty wig!?! I hope you get lots of rest today so you can really enjoy yourself.🕺

Love and hugs to you all! Xox 😘💕💪

P.S. I almost got an uninterrupted night of sleep, Aneeebel! My little one only woke once, and even then she was only awake from 12-12.30. Compared to usual, it was a fantastic night of sleep! 😴👍
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hi 💜Fiona... I wasn't feeling too bad so went shopping with my daughter... Jeez, I nearly passed out in the shop! I Went hot and breathless and nauseous again... I actually said to the sales assistant if I pass out don't say I didn't warn you! My daughter went rushing off to the shop to get me a bottle of water!!

Badboob, you don't need to apologise for your rant...like you say, we can come on here to let it all out.... I just sound like a moaning Minnie at the moment! 💔
Have a fab time in London! 💙🎤🎼

Stay strong everyone x

💗💪🏼💗💪🏼💗💪🏼💗
Member
Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

First of all sorry for my last post, too long and a bit of a rant! 

 

It’s a strange world we live in where we are delighted that one of us is well enough to have chemo! But Congratulations FiMilan! I can imagine the relief! I hope it goes well tomorrow and you are well enough to enjoy Christmas! My next chemo is 18th, so I should be at my worse over Christmas, thank goodness I am at my sister’s where I can just veg out. 

 

Aneeebel, I can also sympathise with your situation, I prepared myself to be told I would need to lose a breast, but was very relieved when told that would be unnecessary. I too am still proud of my puppies, at 62 they are still quite perky. All I can say is this is a wonderful place to just let it all out, in a safe place with people who absolutely get where you are coming from. So don’t hold back if you need to rant. 

 

Still feeling very tired, no improvement in bottom area, but it’s DH Birthday tomorrow so we are off to London to see Tina Turner ( if I can stay awake) so I have slapped my happy face on and will get though it without ruining his celebration! 

 

Hugs x

 

Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Thanks Aneeebel, it feels such a reluef to know i can knock another one off.

How are you today?

💜F xxx
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Yippee... Fabulous news 💜Fiona! Hope everything goes well tomorrow! 💗💗💗💗 x
Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Hooray, bloods are good, 1.9, so all good for tomorrow 😁 Last FEC. They've got to use other arm though tomorrow as my vein is still sore, it's the E apparently which is the irritant.

I'm so relieved I can have chemo but not looking forward to the days after 😣

Take care all 💪💪
💜Fiona xxx
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hi 💜Fiona... Hope your bloods are behaving for your chemo! I trust the vino went down well... 🍷🍷🍷🍷🍷

ElliesMum...how fantastic that your students passed the exam! You all deserve the bubbles!!! 🍸🍸🍸🍸🍸
Did your little one sleep through?
It's a long time since a little one woke me during the night...my grandson is 14 and can sleep for England, always has done and my Grandaughter is 9 and can talk for England!! 😂😂💗💗💙💙

Thankyou to both of you for your kind words...and advice... 😘💐

Hope you all have a lovely day, stay strong!

💗💪🏼💗💪🏼💗💪🏼💗
Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

ElliesMum, I do love red wine, I have to say, especially if it's Italian. We're not big drinkers but could easily drink 3 bottles a week between the two of us. I still keep trying to work out what caused Humphrey's existence, it's either alcohol but I don't think I'm over the weekly allowance, a fall I had in July or just bad luck. Genetics inferred that there really wasn't enough history for it to be BRCA1 or 2 but I was borderline on whether I should be referred to genetics anyway (it seems I'm borderline for everything - lumpectomy/mastectomy, wbc for C2, referral to genetics). 

 

Ive just looked at the clock and realised its just gone 9! That's a miracle for me to still be awake! 😂 I went to work yesterday for about 5 hours and was fast asleep by 8.15. However, I'm always awake anytime from 4.30 onwards. It was 5 this morning. And I did about 4 hours in the office again today. 

 

Well done you on your students 👏👏 Chemical physics? OMG! That sounds very complicated.

 

Bed time now I think, it's suddenly started to hit me. Does everyone else suffer the same way?

 

Good night 🤗🤗🍷😉

💜Fiona x