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October 2018 Chemo starters

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Re: October 2018 Chemo starters

ElliesMum, be brave, you can do this. And we're all here to support you 👭 You've done the first one and got through it, so well done to you. 🏅Each cycle we go through is one step closer to the end and being well again.

 

I don't think my lump Humphrey is too pleased about his FEC treatment, he feels a bit tender today and I'm only on day 4 of cycle 1. I can only hope that FEC is doing its job 😉

 

Today's the first day on my own, as hubby's gone to work, although he says he'll only do a half day. I don't want to waste the day so have got a list of jobs to work through (or not depending on how I feel 😜). Does everyone else get tired quickly? I'm in bed by 9 every night, having already fallen asleep on the sofa 😀

 

Take care lovely ladies, stay safe and warm 🤗

 

💜 Fiona xxx

Member

Re: October 2018 Chemo starters

Sar_ah I’m sorry you got such an early wake up greeting (even if it was super cute)! Daylight savings is a bit rough with little ones. If it makes you feel any better, we were up at 5am this morning too! 🤦‍♀️ (Sadly my in laws live 3 hours away, so a child-free night is like gold dust!)

I have my second cycle on Friday, and even though I feel well at the moment I’m starting to feel a tiny bit anxious about it. I guess I know what’s coming now, and I really don’t want to feel so horribly unwell again! 🙈 I see the oncologist tomorrow for a review. I have felt well since about day 8, but really did feel absolutely terrible for the first 3-4 days. Is there anything I should be asking to change this time? I had Emend from the outset, but sadly it didn’t seem to make much of a difference for me! 🤷‍♀️ Any suggestions would be greatly appreciated

Xox 💕😘💐
Member

Re: October 2018 Chemo starters

Pinklily hope you’re feeling a bit better today, sounds like you’ve had an eventful time so far. Hoping you’re able to get lots and rest and feel better soon.
Lou my hairs started to do the same, I can the cold cap but I’m starting to loss hair and the hair around my crown especially hurt (a bit like when it’s tied up for too long)
Ellie’s mum hope you had a lovely lay it (massively jealous!! 5am wake up here to “we wish you a merry Christmas 🤣)
x
Member

Re: October 2018 Chemo starters

Hi aneeebel,
I have short hair anyway but i had it cut real short before i started my treatment thinking it might help but it hasnt made any diffrence now its very thin thats why i thinking about the shave , my brother said this afternoon he would have his shaved with me , very nice of him i know but its nothing for a man to have no hair isnt it ,

Hugs to everyone 🤗💕
Lou x
Member

Re: October 2018 Chemo starters

My head is exactly the same Lou45...
I said to my friend before that I might have it cut shorter for now...but am I brave enough!!! 🤔 X

Hi ElliesMum... How lovely that you managed to have a lie in! 😴😴 x

I've had a walk to my allotment with the intention of planting a couple of gooseberry bushes... I got there, ate a butty and came home again...the plants are still in the packet! I ran out of steam... But at least I went out for an hour in the fresh air!!

Hope you're all having a lovely day xx

💗💪🏼💗💪🏼💗💪🏼💗
Member

Re: October 2018 Chemo starters

Oh no, pinklily, I’m sorry to hear you had such a rough night! I’m glad they got some IV antihistamines into you and I hope you start to feel better soon. 🤞💐

I hope those of you who had chemo recently are feeling alright. Fingers crossed you’ve all managed to get some sleep. My angel of a mother in law took our little girl last night so I got a proper sleep in this morning! 👼👍

Lou45, I shaved my hair off early on. It has started coming out now and I’m so pleased it’s already very short as it’s not been too distressing for me. Hopefully it starts to feel better for you soon.

Love to all! 😘💕xox
Member

Re: October 2018 Chemo starters

morning ladies,

 

pinklilly hope you are okay and feeling better today,

 

hope all the lovely ladies are doing okay and feeling fine,

 

i have a bit of a dilema my hair is coming out quite alot now i was wandering if anyone else losing hair is experiencing the same sensation as i am its like a prickly feeling and tender to touch it is also tender when i lie down, i am thinking about braving the shave just to get it over with ,

any suggestions or advice ?

thanks in advance ,

lou xx

Member

Re: October 2018 Chemo starters

Oh no pinklily... What a nightmare for you! And your OH! 💙
How are you feeling today? A lot better hopefully!

Thinking about you x 💗💪🏼
Member

Re: October 2018 Chemo starters

Had a nightmare night on Friday, hubby phoned the emergency number for chemo and they told him to phone 999 for an ambulance, I had terrible trouble swallowing, Friday night in hospital with drunks, druggies and people who had been in fights.
I felt so ill, the staff were lovely and tried to put me on a bed away from other people. The doctor came to a conclusion that I had some reaction to the sickness medication I'd taken, gave me a strong intrevenous of antihistamines and that seemed to help. Got home and into bed at 4.30 totally exhausted. Not a good start and so stressful for my OH.
Highlighted
Member

Re: October 2018 Chemo starters

Ladies hang on in there as Shi says the silk pillowcases are lovely for the head i found my head would get really hot at night with the flushes so the silk pillow case wasn't as sticky and stuffy my little tip is a couple of lavender drops on a hanky under pillow helps you relax and sleep better i found the wobbles i remember them Mai how right you are we are like weebles we are all standing upright and were where you lasses are last year and Mai's blog is fab 💪 stay strong and sending you some positive vibes xxx
Community Champion

Re: October 2018 Chemo starters

Lou45, wobbles are normal but we are weebles and weebles wobble but they don't fall down!  I took my afternoon steroids no later than 3pm otherwise there was no chance of sleeping.   xx

Member

Re: October 2018 Chemo starters

Good afternoon lovely ladies,
Hope you all keeping warm on this cold day we have a bit of snow falling at the moment,
Hope you are all feeling okay,
I think ive got over my wobble from the other day,

aneeebel think it was the wig thing that did it for me too, but onwards and upwards, i too had steroids for 3 days but i still not sleeping well.

Fiona hope you feeling okay too,
I havent slept proply since i had my first round they said it was probly all the meds i am taking,

Have a good weekend ladies stay 💪, and warm ,
Lou 💕 x
Member

Re: October 2018 Chemo starters

Aneeebel, I don't have any steroids to take, it was just nerves keeping me awake.
Best of luck and have a nice weekend.
💜 Fiona xxx
Member

Re: October 2018 Chemo starters

Hi 💜Fiona... I feel relatively OK in my self... Just tired...flipping steroids kept me awake all night again! Luckily I only have to take them for 3 days! I'm also a bit unsteady on my feet but that happened last time too! Fingers crossed I carry on feeling this well!
I feel very fragile today for some reason! 😥💗💪🏼

So pleased you're feeling well! Onwards and Upwards! 💗 xx

💗💪🏼💗💪🏼💗💪🏼💗
Member

Re: October 2018 Chemo starters

Hi Aneeebel

I'm surprised at how well I feel to be honest. No sickness, just very slight nausea but I'm wearing my sea sickness bands and it seems to be helping, not had to resort to the anti-sickness pills yet.  I do have a headache which started on the C input yesterday. But it's better than it was yesterday and I've not resorted to painkillers, just drinking loads. The only thing is I have a flushed face, but temperature is fine. 

 

I didnt sleep very well because I was expecting to be ill! So I'm still tired but managing to do housework etc.

 

How are you after No 2? I do hope you're ok 💪💪

 

Take care all of you and keep fighting, you lovely ladies.

 

💜 Fiona xxx

Member

Re: October 2018 Chemo starters

Hi 💜Fiona... Glad yr treatment went okay for you! Hope you're feeling well... One down!! 💗💪🏼 xx

Hi Lou45... I suddenly feel very fragile too for some reason! I think it's the wig that's tipped me over the edge! 🙄 (As well as everything else!) Keep your chin up... We're all on our way up!!! xx 💗💪🏼

@ktk @shi @kip @Mai7... Thankyou for your advice... I'm holding onto the bungi chord with both hands!!!

Have a good w/end everyone xx

💗💪🏼💗💪🏼💗💪🏼💗 xx
Community Champion

Re: October 2018 Chemo starters

Shi, you're bonkers! Heart  I'm just DJ'ing in for any late joiners who may have missed my blog earlier in the month http://lifeafterlola.blogspot.com  it's full of tips we collected along our chemo journey which you may find useful.  I'll leave you with a little late night luuuurve "Caravan of Love" by the Housemartins - that was our chemo song in the May 2017 starters. xxxx

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

👭👭👭😘😘😘hi girls, sending ❤️❤️❤️and see how 💪💪💪you are all hangling onto that bungi chord while you bounce through this 🤪🤪🤪🤪ride. Few more tip, silk pillowcase is gentle on head and will be kinder to hair when it starts returning. Also get your look good feel better sessions booked in with your local Macmillan centres ❤️❤️❤️ if you can’t get on for a while, go to a boots or Debenhams the beauticians on the counters are usually the ladies who do the Lgfb sessions and they will show you at their counter and help you, they will be kind and lovely ❤️❤️❤️ time on the chemo jukebox for tonight for you, we are family by sister sledge 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💕💕💕✨✨✨✨Shi xx
Kip
Member

Re: October 2018 Chemo starters

Wow ladies you are doing well, the hair/wig issue is a biggie at first but once its gone you do get used to it, go with whatever you feel is right, wigs arent for everyone, mine looked lovely but i still hated having to wear it.  Now its getting colder out there will be lovely snuggly hats to wear.  Somebody mentioned what to do about eyebrows and lashes?  I didnt lose mine until chemo 5 out of 6 but if you can book yourselves on to the Looking Good Feeling better course, its free and you get shown how to draw in eyebrows etc and you get lots of lovely freebies.. its a really good pamper for you and a few hours away from this nightmare!

Keep ticking off the days,, 

Kip

Xx

Member

Re: October 2018 Chemo starters

Pinklily ,
I would just like to thank you for your kind words they made me bit teary but i know what you mean i have said to people i am still the same person inside even when i have no hair,
must admit your words have picked me up and i will keep holding on to those hands 🤗,
Lou 💕x