October 2018 Chemo starters

[FiMillan]

Hi Aneeebel

I'm surprised at how well I feel to be honest. No sickness, just very slight nausea but I'm wearing my sea sickness bands and it seems to be helping, not had to resort to the anti-sickness pills yet.  I do have a headache which started on the C input yesterday. But it's better than it was yesterday and I've not resorted to painkillers, just drinking loads. The only thing is I have a flushed face, but temperature is fine. 

I didnt sleep very well because I was expecting to be ill! So I'm still tired but managing to do housework etc.

How are you after No 2? I do hope you're ok 💪💪

Take care all of you and keep fighting, you lovely ladies.

💜 Fiona xxx

[Aneeebel]

Hi 💜Fiona... Glad yr treatment went okay for you! Hope you're feeling well... One down!! 💗💪🏼 xx

Hi Lou45... I suddenly feel very fragile too for some reason! I think it's the wig that's tipped me over the edge! 🙄 (As well as everything else!) Keep your chin up... We're all on our way up!!! xx 💗💪🏼

@ktk @shi @kip @Mai7... Thankyou for your advice... I'm holding onto the bungi chord with both hands!!!

Have a good w/end everyone xx

💗💪🏼💗💪🏼💗💪🏼💗 xx

[Mai7]

Shi, you're bonkers!   I'm just DJ'ing in for any late joiners who may have missed my blog earlier in the month http://lifeafterlola.blogspot.com  it's full of tips we collected along our chemo journey which you may find useful.  I'll leave you with a little late night luuuurve "Caravan of Love" by the Housemartins - that was our chemo song in the May 2017 starters. xxxx

[Shi]

👭👭👭😘😘😘hi girls, sending ❤️❤️❤️and see how 💪💪💪you are all hangling onto that bungi chord while you bounce through this 🤪🤪🤪🤪ride. Few more tip, silk pillowcase is gentle on head and will be kinder to hair when it starts returning. Also get your look good feel better sessions booked in with your local Macmillan centres ❤️❤️❤️ if you can’t get on for a while, go to a boots or Debenhams the beauticians on the counters are usually the ladies who do the Lgfb sessions and they will show you at their counter and help you, they will be kind and lovely ❤️❤️❤️ time on the chemo jukebox for tonight for you, we are family by sister sledge 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💕💕💕✨✨✨✨Shi xx

[Kip]

Wow ladies you are doing well, the hair/wig issue is a biggie at first but once its gone you do get used to it, go with whatever you feel is right, wigs arent for everyone, mine looked lovely but i still hated having to wear it.  Now its getting colder out there will be lovely snuggly hats to wear.  Somebody mentioned what to do about eyebrows and lashes?  I didnt lose mine until chemo 5 out of 6 but if you can book yourselves on to the Looking Good Feeling better course, its free and you get shown how to draw in eyebrows etc and you get lots of lovely freebies.. its a really good pamper for you and a few hours away from this nightmare!

Keep ticking off the days,, 

Kip

Xx

[Lou45..]

Pinklily ,
I would just like to thank you for your kind words they made me bit teary but i know what you mean i have said to people i am still the same person inside even when i have no hair,
must admit your words have picked me up and i will keep holding on to those hands 🤗,
Lou 💕x

[pinklily]

The scarfs are very fashionable, I've seen a lot of people wearing them, I'm going to wear mine even when my hair grows back.

[Kip]

Ladies if you struggle with continued sickness please speak to chemo or help line there are other sickness pills to try, dont suffer in silence, also have you tried anti sickness travel bands?  

Kip

[ktk]

Lovely ladies, only go for a wig if you really want one. I decided not to bother and didn’t even go and look. In the summer I just went bald but now it is colder I have a plethora of colourful scarves to choose from. Love to all and good luck with your chemo. Kxx

[pinklily]

Hold on in there Lou45, we are here for you and I know you don't feel like yourself anymore, but inside you are still the beautiful person you always have been. I know it's easy to say, but our looks are on the outside, people see us for what we are in our behavior and I know your confidence has been knocked back, but you're not alone and we all know what you are going through. You have to look in that mirror and say, I'm me and I can do this, because we all have our arms around you to give you support and you are you. When this is all over, you will look back and say 'I got through and out the other side and I'm still me. We are all holding hands, don't let go now.

[Lou45..]

Afternoon ladies,
Hope you all doing okay on this cold afternoon,
I havent been on here for a bit but if i honest i have been struggling this week i think its just hit me with what i am dealing with,
I too saw the wig lady yesterday and wasnt impressed i have short hair and everything she showed me was nothing like me, when i got home i was quite upset,

Fiona sorry forgot to wish you luck for today hope all went well and you feeling okay,
The same goes for any other ladies that have had treatment today,
I have my second one on tuesday feeling bit anxious if i honest although my first one went okay and i wasnt to bad i got a feeling i wont be so lucky this time, my hair has started to come out now too i just dont feel like myself anymore i started off real positive but i not so much now 😫,
Take care and stay 💪
Lou 💕

[ElliesMum]

Well done Fiona, one down! 👍💪💕😘

[FiMillan]

Afternoon ladies, so first session of chemo done. No immediate side effects yet other than slight headache 😁
I hope you're all safe and taking care of yourselves 💪💪
Only another 125.5 days to go for me now on this stage, as long as it goes to plan 😜. I've even done post it notes for each week and cycle so that I can tick each day off and see progress.
Big hugs to you all 🤗🤗
💜 Fiona xxx

[reddi]

@Sar_ah My eyebrows and eyelashes have thinned, but as I had pretty thick eyebrows, the change has only been noticeable to me and my OH -- and I am through 5 cycles (3 FEC and 2 TPH, with TPH no. 3 of 4 today). I did lose body hair (armpit, back of legs, pubic) in cycle 1, faster actually than my head hair, which was thin at cycle 2, with a few locks holding on til cycle 5! (I didn't cold cap.) Hair is growing back now -- a few millimetres, approaching a centimetre, despite being on Herceptin in addition to the taxane. I have heard I might lose eyebrows and eyelases in cycle 6 or 7, despite promising hair regrowth.

[Sar_ah]

Best of luck today ladies having chemo! Thinking of you all ❤️
Had my port fitted yesterday which went well although I’ve rather suddenly started losing a lot of hair, I had the cold cap so wasn’t quite expecting it and have totally been in denial! I’ve also started to lose a lot of body hair ... I didn’t think that have til later, it hasn’t started to to go from my eyelashes or eyebrows but has anyone had any tips for when it does?
Hope you all have a lovely weekend and get lots of rest when you can

[FiMillan]

All the best Aneeebel for today 💪💪
💜 Fiona xxx

[FiMillan]

Good luck for today ladies 💪
I couldn't agree more with Sarah, if it wasn't for you all going through the same stuff, I'd be even more scared. It helps to know we can talk and know that we truly understand each other.
I had a meeting with the wig lady yesterday at hospital and I too got upset by it. I guess it just makes this nightmare become reality 😢
Oh well, time to get up and get ready for round 1 🥊
Good luck girls 💜 Fiona xxx

[Aneeebel]

Hi Shi... Thankyou so much for your lovely message...oooooouzing with positivity and kindness, made me smile 😘 You're right of course, we're all allowed the odd blip.. But I'll get my karate kid outfit on again...and give it all I've got!! 💪🏼💗💪🏼💗

ElliesMum...Yes, lots of challenges, but we'll get there in the end... (The limbo cover is fab, Tvm x 💗)

Sar_ah... Thanks for thinking of us 💗 I'm glad it's not only me with the wig too...I thought I was being dramatic! 💗💪🏼

💜Fiona... Best of luck for today 💗💪🏼

Best wishes to all us October ladies... Take care and Thanks for being here...xx

💗💪🏼💗💪🏼💗💪🏼💗💪🏼💗

[Badboob]

Morning everyone, just wanted to say that I too have found the whole wig thing really traumatic. The wig provider at my hospital had the most awful selection  with nothing in a mid length. I completely freak out at my first appointment. 

Friends then recommend a local business and I went to see them, what a difference, massive of choice and in fact the first one I tried on I ended up buying. They even had a hairdresser on site who then cut it properly to my style. Back to the hospital to have another go. I realised just how terrible the NHS ones were compared to private. I ended up getting a completely different style to my own on the basis it didn’t make me look like a witch, instead it is more bagpuss! I really feel for those who have no option but to take the free one.

The only positive to come from the day was meeting everyone at the Maggie’s centre. They grabbed me as I came out of the fitting, sat me down with a cup of tea and were really really lovely to me. I just felt so much better after my chat with them.  Goodness, this journey is hard isn’t it! 

Good luck to to everyone who is having chemo today, 

Hugs

[FiMillan]

Good luck for today ladies 💪
I couldn't agree more with Sarah, if it wasn't for you all going through the same stuff, I'd be even more scared. It helps to know we can talk and know that we truly understand each other.
I had a meeting with the wig lady yesterday at hospital and I too got upset by it. I guess it just makes this nightmare become reality 😢
Oh well, time to get up and get ready for round 1 🥊
Good luck girls 💜 Fiona xxx