Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hi Shi... Thankyou so much for your lovely message...oooooouzing with positivity and kindness, made me smile 😘 You're right of course, we're all allowed the odd blip.. But I'll get my karate kid outfit on again...and give it all I've got!! 💪🏼💗💪🏼💗

ElliesMum...Yes, lots of challenges, but we'll get there in the end... (The limbo cover is fab, Tvm x 💗)

Sar_ah... Thanks for thinking of us 💗 I'm glad it's not only me with the wig too...I thought I was being dramatic! 💗💪🏼

💜Fiona... Best of luck for today 💗💪🏼

Best wishes to all us October ladies... Take care and Thanks for being here...xx

💗💪🏼💗💪🏼💗💪🏼💗💪🏼💗
Member
Posts: 36
Registered: ‎14-10-2018

Re: October 2018 Chemo starters

[ Edited ]

Morning everyone, just wanted to say that I too have found the whole wig thing really traumatic. The wig provider at my hospital had the most awful selection  with nothing in a mid length. I completely freak out at my first appointment. 

 

Friends then recommend a local business and I went to see them, what a difference, massive of choice and in fact the first one I tried on I ended up buying. They even had a hairdresser on site who then cut it properly to my style. Back to the hospital to have another go. I realised just how terrible the NHS ones were compared to private. I ended up getting a completely different style to my own on the basis it didn’t make me look like a witch, instead it is more bagpuss! I really feel for those who have no option but to take the free one.

 

The only positive to come from the day was meeting everyone at the Maggie’s centre. They grabbed me as I came out of the fitting, sat me down with a cup of tea and were really really lovely to me. I just felt so much better after my chat with them.  Goodness, this journey is hard isn’t it! 

 

Good luck to to everyone who is having chemo today, 

Hugs

Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Good luck for today ladies 💪
I couldn't agree more with Sarah, if it wasn't for you all going through the same stuff, I'd be even more scared. It helps to know we can talk and know that we truly understand each other.
I had a meeting with the wig lady yesterday at hospital and I too got upset by it. I guess it just makes this nightmare become reality 😢
Oh well, time to get up and get ready for round 1 🥊
Good luck girls 💜 Fiona xxx
Member
Posts: 44
Registered: ‎25-08-2018

Re: October 2018 Chemo starters

Good luck for all you lovely ladies having chemo tomorrow, you’ve got this 💪🏻💪🏻💪🏻
I know what you mean about the wigs, I went in a shop, came home and cried! I’m kind of glad to hear it’s a “normal” reaction. It’s so lovely to have all you ladies here in my phone, it can be such a lovely journey while being surrounded my people at the same time but this forum as really helped that 💕
Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Oh Aneeebel, I’m so sorry to hear that getting a wig upset you. This process has so many challenges for us to deal with! Like you, pinklily, I decided to brave the shave in the week after my first chemo. I went to the barber shop a short walk from where I live and had them shave off my shoulder-length hair. They were fabulous - wouldn’t even let me pay afterwards! It honestly felt really liberating.

I’ve been back at work since shaving my head, wearing a wig. (I tend to wear beanies or hats otherwise.) I personally hated the wig initially and had to be convinced by my husband to go for it (wanted to run out of the shop empty handed and put my head in the sand!). Most people at my workplace don’t realise that I’m going through chemo and I have received several genuine compliments on my fabulous new hairstyle! 😂🙈🤷‍♀️ I’m slowly getting used to the wig and, as Shi suggests, I’m thinking of finding some “fun” wigs too to mix things up a bit! Also buying lots of gorgeous beanies! 🤗👍

Xox😘💕
Member
Posts: 87
Registered: ‎04-08-2018

Re: October 2018 Chemo starters

Should have said, I had I shaved last Saturday, I want to be in control as much as possible, I'm not going to let the cancer control me
Member
Posts: 87
Registered: ‎04-08-2018

Re: October 2018 Chemo starters

Good luck to everyone having chemo tomorrow hope it is not too bad for you. I had my hair cut really short four weeks ago, a grade 2, then a lovely man who overheard my conversation on the phone to Sarah at the barbers, wanted to pay for the cost of having my hair shaved, as his sister had cancer last year. He didn't leave his name, just wished me well and paid for me. So I don't have any hair, but I have purchased loads of beautiful scarf chemo hats from Hong Kong and China.
I'm ready for all events, even got the difflam you were all talking about and the child toothbrush.
Hopefully I won't need the difflam.
Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Aneeebel 👭👭👭it’s good to have a cry our hair is so important, but more important is the beautiful person you are, that shines bright with fight and strength (if you don’t see it yet, it’s there and it will just shine brighter and brighter) as you jump through this a jump at a time 💪💪💪💪try a few luvyababes wigs for around £20 too if you can, it’s good to have a selection, through a few tinsel wigs in too for good measure, I did. On days when you might not see you looking back in the mirror you are there with your karate kid outfit on fighting for all you are worth and all of us behind you too 👭👭👭💕💕💕✨✨✨Shi xx
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

[ Edited ]

Hi 💜Fiona... Good luck for tomorrow, will be thinking of you x 💗💪🏼

 

Hi ElliesMum... Thank you for thinking of me x 💗💪🏼

Hi MurphyC... Yes, I ended up in hospital too! My hair is starting to fall out, it's been okay until the last couple of days but my scalp has gone tender and I seem to be losing more when I wash it! I haven't been brave enough to shave it off as yet! I went for a wig today and when I got home I was so upset it I actually cried! Can't actually get my head around me getting a wig!!
Any way...sorry, I'm waffling... Good luck for tomorrow! 💗💪🏼

💗💗💗💗💗💗

Member
Posts: 130
Registered: ‎02-07-2018

Re: October 2018 Chemo starters

Best of luck for tomorrow, FiMillan, Aneeebel and MurphyC! I will be thinking of you all. 💪😘💕🤞

Pinklily, I believe that side effects usually follow a pattern each cycle, but there are sometimes different drugs (especially anti-sickness medications) that can be prescribed that might work better for you. I’m having FEC at the moment and I felt pretty nauseous and horrible for the first week (especially th first few days), but feel great now 2 weeks later. Hopefully you will start to feel better soon! 🤞😘
Member
Posts: 6
Registered: ‎16-10-2018

Re: October 2018 Chemo starters

Hello Ladies

 

It’s been an interesting first cycle - felt great, then in hospital with high temperature, hair has all fallen out and started to feel OK again...like a number of you, cycle 2 tomorrow!!!

 

Good luck everyone with your treatment, hope it goes well. xxx

 

 

 

Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Hi Aneeebel
Hope you're well and no 2 goes well tomorrow.
I've just got back from pre-assessment with my anti-sickness pill and steroids ready for tomorrow morning.
Good luck tomorrow to you and all of us 💪💪
💜 Fiona xxx
Member
Posts: 153
Registered: ‎14-09-2018

Re: October 2018 Chemo starters

Hi Pinklily, I've felt sick every day since I had chemo... Not constantly but it comes in waves!
Today is the best I've felt with regards to nausea and I'm going back tomorrow for chemo No.2!!! Typical!
Anyway...it's not getting me again! Haha! At least I know what to expect...I will be more prepared!!
Hope you feel better soon! 💗

Best wishes to all us October ladies...and every other lady of course! 💗
💗💪🏼💗💪🏼💗 xx
Member
Posts: 87
Registered: ‎04-08-2018

Re: October 2018 Chemo starters

Ladies, do you feel sick after every chemo cycle, or does your body get used to it. I'm drinking loads and have taken the anti sickness drugs, but still feel sick and just nibbling on cream crackers.
Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: October 2018 Chemo starters

Oh thats strange pinklilly it was a chemo nurse who told me.. best to listen to yours then.
Member
Posts: 87
Registered: ‎04-08-2018

Re: October 2018 Chemo starters

Hi kip
I had my first chemo yesterday and was told not to take any vitamins at all unless prescribed, the nurse said they can counteract some of the chemo drugs. When I asked about my vit c, they said certainly not.
Member
Posts: 148
Registered: ‎26-09-2018

Re: October 2018 Chemo starters

Thanks Kip, something else to add to the shopping list 🤣
Highlighted
Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: October 2018 Chemo starters

[ Edited ]

Hello ladies, sorry to just pop in,  im from the June chemo thread and was just having a thought about the nasty tongues and lack of taste buds due to chemo and remembered this tip.  Get the vitamin c tables (the ones jn a tube which you disolve jn water) and let half a tablet dissolve on your tongue, it helpa cut through the sliminess, yoh ccan do a whole one but they are quite sharp.  Juat a tip to pass on.

Kip

Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: October 2018 Chemo starters

Sarah 😘😘ring your team darling and speak to someone, they have seen everything and will be able to advise you and give you peace of mind. Keep 💪💪💪💪💪you can alll 🥊🥊🥊🥊this ❤️❤️❤️💕💕💕✨✨✨Shi xx
Member
Posts: 43
Registered: ‎25-09-2018

Re: October 2018 Chemo starters

Hi FiMillan,
Read your post and just wanted to say 👋 I have a lump in my right breast 2.6mm and one in my armpit..My armpit one is painful and swollen and the boob one sort of well ‘moves’ a bit..i’ve Had 2 FEC so far and I think they say it’s shrinking a bit! I’m having my chemo up front too which frustrates me a little as although they say from biopsy & ultrasound it’s in 1 node sometimes it sounds like it’s spread more at the time of surgery. Just feels a bit weird having it in me too as I’d wished it could be removed ASAP!! Anyway we just have to trust the medical experts I guess! Have a great day all x