Lou45, wobbles are normal but we are weebles and weebles wobble but they don't fall down! I took my afternoon steroids no later than 3pm otherwise there was no chance of sleeping. xx
I'm surprised at how well I feel to be honest. No sickness, just very slight nausea but I'm wearing my sea sickness bands and it seems to be helping, not had to resort to the anti-sickness pills yet. I do have a headache which started on the C input yesterday. But it's better than it was yesterday and I've not resorted to painkillers, just drinking loads. The only thing is I have a flushed face, but temperature is fine.
I didnt sleep very well because I was expecting to be ill! So I'm still tired but managing to do housework etc.
How are you after No 2? I do hope you're ok 💪💪
Take care all of you and keep fighting, you lovely ladies.
💜 Fiona xxx
Shi, you're bonkers! I'm just DJ'ing in for any late joiners who may have missed my blog earlier in the month http://lifeafterlola.blogspot.com it's full of tips we collected along our chemo journey which you may find useful. I'll leave you with a little late night luuuurve "Caravan of Love" by the Housemartins - that was our chemo song in the May 2017 starters. xxxx
Wow ladies you are doing well, the hair/wig issue is a biggie at first but once its gone you do get used to it, go with whatever you feel is right, wigs arent for everyone, mine looked lovely but i still hated having to wear it. Now its getting colder out there will be lovely snuggly hats to wear. Somebody mentioned what to do about eyebrows and lashes? I didnt lose mine until chemo 5 out of 6 but if you can book yourselves on to the Looking Good Feeling better course, its free and you get shown how to draw in eyebrows etc and you get lots of lovely freebies.. its a really good pamper for you and a few hours away from this nightmare!
Keep ticking off the days,,
Ladies if you struggle with continued sickness please speak to chemo or help line there are other sickness pills to try, dont suffer in silence, also have you tried anti sickness travel bands?
Morning everyone, just wanted to say that I too have found the whole wig thing really traumatic. The wig provider at my hospital had the most awful selection with nothing in a mid length. I completely freak out at my first appointment.
Friends then recommend a local business and I went to see them, what a difference, massive of choice and in fact the first one I tried on I ended up buying. They even had a hairdresser on site who then cut it properly to my style. Back to the hospital to have another go. I realised just how terrible the NHS ones were compared to private. I ended up getting a completely different style to my own on the basis it didn’t make me look like a witch, instead it is more bagpuss! I really feel for those who have no option but to take the free one.
The only positive to come from the day was meeting everyone at the Maggie’s centre. They grabbed me as I came out of the fitting, sat me down with a cup of tea and were really really lovely to me. I just felt so much better after my chat with them. Goodness, this journey is hard isn’t it!
Good luck to to everyone who is having chemo today,
Hi 💜Fiona... Good luck for tomorrow, will be thinking of you x 💗💪🏼
Hi ElliesMum... Thank you for thinking of me x 💗💪🏼
Hi MurphyC... Yes, I ended up in hospital too! My hair is starting to fall out, it's been okay until the last couple of days but my scalp has gone tender and I seem to be losing more when I wash it! I haven't been brave enough to shave it off as yet! I went for a wig today and when I got home I was so upset it I actually cried! Can't actually get my head around me getting a wig!!
Any way...sorry, I'm waffling... Good luck for tomorrow! 💗💪🏼
It’s been an interesting first cycle - felt great, then in hospital with high temperature, hair has all fallen out and started to feel OK again...like a number of you, cycle 2 tomorrow!!!
Good luck everyone with your treatment, hope it goes well. xxx
Hello ladies, sorry to just pop in, im from the June chemo thread and was just having a thought about the nasty tongues and lack of taste buds due to chemo and remembered this tip. Get the vitamin c tables (the ones jn a tube which you disolve jn water) and let half a tablet dissolve on your tongue, it helpa cut through the sliminess, yoh ccan do a whole one but they are quite sharp. Juat a tip to pass on.
I can't really comment as I've not had surgery yet, doing chemo first but I would recommend you speak to your team about it asap. My lump Humphrey in my boob has a mate Patricia in the armpit. Both are hard, and the armpit one can hurt. I thought I could feel it growing recently but the BC consultant said that was due to the biopsy and poking and prodding. The armpit tumour is more sensitive apparently.
Get it checked out as soon as you can so it can be dealt with if necessary or, fingers crossed, it's absolutely nothing to worry about and you can just focus on getting through chemo.
Thinking of you 💪💪
💜 Fiona xxx
@pinklily I've had a picc line fitted... Was quite straight forward -had an ultra sound scan to check where my veins where and if they were suitable, I then had a local anaesthetic and the line was inserted, I then went for an X-ray to check it was in the right place and then you go back to the unit to have the picc line area cleaned and a dressing put on it... I couldn't really feel too pain afterwards, it's more like having a small cut...cleared up quickly and so much easier than having needles/canullas for treatment or blood tests! The district nurse comes out once a week to flush it and change the dressing! I would recommend it if you have the option! 💗💪🏼 x
Hi ladies, I just went for my follow-up on my mastectomy and the good news is that they did get clear margins. The tumor was 6 cm. Again, just saying...I don’t know how 14 consecutive years of mammograms could have missed that. Anyway, my doctors are saying eight rounds of chemo. Four rounds with epirubucin and cyclophosphamide and four rounds of docetaxel. My tumor is estrogen and progesterone receptor positive. Does anybody have any experience/advice on my type of tumor and the above mentioned chemotherapy? Thanks in advance!
I was hoping someone would say they could do walks, it helps me to think I might be able too as well, I know maybe the hills might be bit adventurous to start with, but it would make such a difference to get up there and see those views.
I'm not sure about using my ruck sack at the moment, I can't lift anything heavy with my right arm ever and I'm going to have the picc line in the left and I read I can't lift anything heavy with that arm, although what some people count as heavy, I don't. As you said, I will have to see how I feel, but the sooner I get walking, the better.
I got bitten by something two days ago, used the antisane cream and took a anti histamine tablet, but it's itching and still looks a bit angry, I'm worried that the chemo will cause it to become infected, I will have to see what they say on Wednesday. Good idea to carry a mini first aid kit, we've got one in the house, in the car and we both have one in our ruck sacks, hadn't thought about losing nose hair, but it must make a difference, just as well it's autumn and winter.
As I'm starting with the EC and the Zometa for the first four sessions, I'm hoping the side affects will not be too bad, it's when they start to add the Paclitaxel as well once every week for 18 to 20 weeks that worries me more.
@pinklily Take it as it goes with the walking -- and treat yourself as you can! My OH and I are keen walkers, and it's been hugely helpful to my spirits to keep it up. I've managed several 10-11 mile walks during chemo (at least one per cycle, often more), including a 3-day trip to the Wye Valley that involved carrying our "kit" on day 1 and 2 during week 3 of my 3rd cycle of FEC. It can be doable, though it all depends on how your body responds to each chemo regime.
I've found it best to plan a walk that allows for an "early out" in case I'm feeling tired or running short on water. This weekend, we did a 7-mile walk on both Saturday and Sunday -- late starts cut short by dusk/twilight. Both were on relatively flat ground, as I'm feeling it more now that I'm in cycle 5. I've found the taxane regime is harder, in terms of walking -- I'm more fatigued, whether from the specific drug (I've been prescribed docetaxel, not paclitaxel) or the cumulative effects, and I really feel the effects on my feet (soles weary, and a bit of peeling, but no worrying pressure blisters as yet). I also carry a little first aid kit with me -- antiseptic cream, plasters, antihistamines -- in case of bites/splinters/scratches, to reduce chance of infection and deal with extra sensitivity to any pollens in the air (losing nose hairs makes a big difference!).