26-09-2017 06:49 PM
Hi Reboot, welcome! yes I was the same with the September thread I wasn't sure where to join, so decided to join the October thread. How did your first chemo go? Hope you are feeling okay...I have a few sickness tablets given to me already to take before and after so am presuming that is one of the major side effects with FEC. Hope you get childcare sorted out. My youngest is 16 so I don't have to keep up with small children and go through treatment, that must be doubly difficult. Hope you get childcare sorted, and everyone else does with small children and have lots of help.
I had had a flu letter arrive Sue, so asked my oncologist. She said to have it if it could be arranged before chemo starts or it would be a waste of time...wondered with how close chemo is if it is still a waste of time but had it anyway. That is just my experience not sure what others have been told. Re the PICC line I was told the hospital try to avoid putting FEC into the veins of the hand as it is cruel to the veins but the blood clot factor does concern me with the PICC line.
26-09-2017 05:56 PM
26-09-2017 05:37 PM
26-09-2017 05:14 PM
Your hair looks really fabulous Sue, I love pink....my dad is buying my wig too when they come into the salon! It's a club none of us ever wanted to join isn't it but we do have to adapt and not let the worry and fear take over. I went for my flu jab yesterday and the nurse avoided both arms so my derrière is a bit sore today. Are you having a PICC line put in, I was dreading that but it went ok, I just have to inject blood thinners now again as well due to a clotting condition I have. I am having 3 cycles of FEC and 3 of docetaxal.
26-09-2017 01:40 PM
26-09-2017 01:32 PM
Hi SueW, good luck with your own treatment. You are winning me on the wig stakes, the wig salon attached to the hospital is a charity and they only had one longer hair wig in when I went for a fitting having sold the others so some more have been ordered for me to try. Love your positive attitude, mine is on the whole positive, nerves are jangling a little bit now it's closer to.
26-09-2017 01:18 PM
25-09-2017 09:48 PM
Hi Cw1895, first off sending you a virtual hug as not surprised you are anxious, it's a horrid time. I hope your side effects aren't too debilitating with you having such a young family. I was given a list of side effects today at my pre assessment, I felt less stressed after the appointment as the nurse explained what they could do to help me with them. All the best to you with your own treatment.
25-09-2017 09:36 PM
Thank you very much Sue, been to my pre assessment today and have been given anti sickness tablets and mouth wash. My hospital won't give me the cold cap I did ask. I am having my hair cut short in preparation. Will check out the September thread for the list, thank you!
25-09-2017 09:26 AM
Hi Patchworkgirl and Cw
Welcome to the thread. Sorry that you've found yourself here, but hopefully we can all help each other through it.
My chemo was slightly different to yours, but there does seem to be common side effects throughout. The first week is the hardest, when fatigue is certainty a challenge. Sickness and nausea can also occur, but this can be treated, so let your team know if this a problem.
I didn't get neuropathy and it is not mentioned much on this site, so I would assume that it is quite rare, so hopefully you will be fine.
Hair loss happens at about 3 weeks after treatment starts. Its a good idea to think about how you are going to deal with it. Wig or scarf? Have you considered cold capping? It's not something I did, but there are other threads on here that specifically deal with that. If you have long hair, it may be worth getting it cut short, because when it starts to shed, it does make a mess. It is upsetting, but there is no getting round that I'm afraid. Its just dealing with it as best you can.
Try to prepare for the first week as much as possible. Eg, stock up the fridge, get the washing done and make sure you've got all the meds at hand that you may need. If you can get child care at all, I would advise it for that week. If anyone offers help, then accept it! This is the time to let others help!
On the Sept thread, some ladies have put on there a list of things that you may need, so its worth a read ( its right at the start so you will need to keep scrolling down!) .
Hope this helps and let me know if you have any questions.
25-09-2017 07:31 AM