October 2017 Chemo Starters

[Meesh73]

Runnerbean, sorry to hear you're in case nhs. Hope they let you out soon. Here's a dance to help get your botty under control 🕺🏻💃🕺🏻💃🕺🏻💃🕺🏻💃🕺🏻💃🕺🏻👯👯‍♂️👯🌟✨🌟🌟🌟✨⭐️🌈🦄💃🕺🏻🦄🌈🌟✨👯🌈🌟✨⭐️👯‍♂️

Shi, funny you should mention the st. Trinians as I had the same thought last night. That's what I keep picturing now when I think of our little unruly band of travellers on our chemo 🚂 🏑🏑🏑🏑🏑

Karen, glad you're feeling a bit better. My rash is also looking a bit better too so I'm going to carry on with cream and antihistamines for another day and see how it looks tomorrow.

my friend didn't give me any quantities for mulled apple recipe, she said it's got 🍏 juice, some cloves, star anise, cinnamon sticks, piece of ginger 🤢and some sugar, put in saucepan over medium heat and leave for 60 mins. She also said she sometimes does it in the slow cooker. I usually slow cook my gluhwein or mulled wine on Xmas day that way there's always some on hand, I usually add a shot of amaretto to my glass and then add the slow cooked gluhwein 😋😋Won't be doing that this year though ☹️, so thought the mulled apple juice would be a nice replacement as OH really liked it.

[Shi]

Karebear on Dec thread is a 6xfec and would like some tips please our 6xfec girls. Thank you 💕💕✨✨Shi xx

[Meesh73]

Sue, I take lorazepam. I usually take them each night I'm on the steroids.

[Ali49]

Runnerbeam sorry to hear you are in hospital. My heart rate was up when i went in and i had to have a huge bag of fluids too. I did have diaorreah too but not uncontrollable. Hope they let you out with oral antibiotics soon. Are you 9n T Runnerbean?.what day are you on?

Karen i noticed that with the nurse, she just placed the thermometer in my ear wheress i put mine right in. Either way as long as we are consistent, we are checking our temp and thats all we can do. Take care mixing with everyone. Try to stay away because there is so much going around at the mo! I never left my hospital room for the 3 days i was in last week xxx

[karana23]

Oh and Meesh have a lovely time with your mum and sister...the mulled apple stuff sounds lovely...you may have to share the recepie with us 😊🥃 xxx

[karana23]

Runnerbean...hope you get out soon and they sort your botty probs....not nice to use a commode, is that coz they worried about infection?  Have they fed you yet?? Sending you lotsa love 💖 xxxx

[Shi]

Runnerbean, sorry to hear you are in casa nhs, hope they get you sorted and you can get home soon, please keep us posted. Karana hope you had a good night and the
Colds on it way out. Meesh have a lovely time with Mum and sister and keep check on that rash if the creams not made it go away or have you started those antibiotics yet? On the t, they flushed a bag of stuff through canula 1st then had the t then another bag of stuff flush after, took about 2-3 hrs total in chair no cold cap. Good luck t switchers and good luck dizzy with your fec and anyone else who has another fec😘😘😘we are getting their girls, together step by step 😁😁😁ruth I do the same like a little video clip of us all on the train, might be something to do with seeing the st trinians train robbery just before starting chemo, the old black and white film🏑🏑🏑🏑🏑😂🤣😂🤣😂🤣😂mishy we’ll be following you into nana rads pants soon, and as meesh said the other day titty free swinging on top during rads to help with getting air to things. We’ll still be peeing away too as still have to have the 2-3l of water during that too 😁😁😁do you think we could have filled the hoover dam between us by now🤔💕💕💕✨✨✨shi xx

[karana23]

Morning ladies....went to sleep really early last night and slept pretty well, woke up for an hour or so but managed to get back off!  Temp is back down to 37.6 and cold has dried up just got a bit of an irratating cough!  Quick question with temp...when they took mine yesterday at hosp she hardly put it in my ear and it was a lot lower than I had made it at home but I stick it right in....what do you do?  

Its xmas jumper day today so gonna put my unicorn one on and try and feel a bit Xmasy...I did have a few peoples nails booked in but I’ve moved them to tomorrow to give myself an extra day to feel a bit better!

Good luck for those of you that are up today...hope the T is kind to you if your changing!  Meesh, Sue was asking if they could give us anything to combat the steroids keeping her awake and I said you take something but cldnt remember what it is 😱 

⛄️⛄️🦄⛄️⛄️🦄

[SueW]

Meesh have a lovely family day xx
I will text jencat later and let her know you was asking and hope she replies I don’t like to keep texting loads in case she feels I am harassing her x
I just going for a bath then chemo at 11.15 then lunch with mom butvwill pop on forum when I can
Wishing everyone a great day
Meesh what do you take to help you sleep when you pumped up on steroids x

[Meesh73]

Hope all you other ladies are doing ok and have nice things planned.

Karen, howre you? Hope your temp is still under control and you're not suffering too much with your cold. Make sure you rest up today and drink plenty of water.

sue, have you heard from Jencat recently? Is she ok?

My mum and sis are coming today 🤗🤗🤗 I can't wait! Need to have a shower and check rash as I've got loads to do before they get here. OH is hoovering so housework will be finished but I need to go to Tesco for a few things. My friend made me some lovely mulled apple juice, it's really 😋😋😋 so I'm off to get a few ingredients I don't have so I can make it for my mum and sis.

Have a lovely day ladies! 

[Meesh73]

Morning ladies! Sorry to hear some if you didn't sleep well.

Sue, Rach, Jellytot the 🚂 is on its way with ⭐️✨⭐️✨🌈🌟✨⭐️🦄🌈✨🌟⭐️And 🎄🎄🎄🎄🎄it's plenty warm for you. Hope you gave your gold hot pants on and that Sue and Jelly have your surfboards ready for 🏄‍♀️🏄‍♀️🏄‍♀️🏄‍♀️On the roof. Cassie is on her gigantic 🐴 with her 🏹🏹 and I've got guns trained on 👨🏻‍✈️Shi, will be along with her glitter and tai chi as back up if things get out of control. Rach, keep twirling and enjoy vic reeves. Hope the chemo treats you kindly ladies, good luck 🍀🍀🍀🍀we're all thinking of you today 😘😘🤗🤗⭐️✨🌟✨🌟⭐️🌈🌟✨⭐️🌈

[SueW]

Morning Ruth sorry you had a bad night x

no more sleep oh well I going to ask when I go chemo and f I can take anything so hopefully I will sleep tonight

Jelly and rach see you on board x I will let you know when I am back

Love to all xx

[Ruth07]

Runnerbean sorry you are in casa NHS but glad it is making you feel a little better. Hopefully you will be home safe and sound soon. Glad the search party found you ♥️💕💕
Sue those pesky steroids 🙄 Hope you have managed to doze again this morning. I had a bad nights sleep too but not sure why? I think it might be my mind reengaging after being in zombie land for the last week. I have been ignoring everyone so have a huge backlog of messages from friends and family to reply to today. Also continuing to pee like that old drunk 😵 overnight so maybe the last of the toxins are coming out 🤞🤞🤞
Get the 🚂🚂 out of the station Meesh for our lovely ladies and keep safe everyone 🌊🌊🌊 🏄🏄🏄🌪🌪🏹🏹🏹🥊🥊🏇🏇🏇🏇🏇🏹🏹🔫🔫💣💣⚔️⚔️✨✨✨

[SueW]

Runnerbean get well soon lovely

I have joined wide awake club thinknits the 8 steroids today in prep for first t
Been awake since 3.15 lay in bed for an hour trying to go back to sleep but have no give up and come downstairs

Thanks for your info Ali i am so happy to take advice and guidance from those ahead of me and hope in the future the things I have learnt can help someone else in the future xx

[Runnerbean]

Hi ladies, had an eventful day today. Phoned up with out of control diarrhoea and a temperature so was told to go to a&e. When I got here this afternoon they did the usual test and decided my heartbeat was very high. I hadn’t even noticed this. I was put on a drip for an hour to rehydrate then given antibiotics as they say there are signs of an infection although they don’t know where it is. I’m now on another drip for 8 hours but have finally been moved onto a ward so at least I may get a bit of sleep. I have a private room but not allowed to use the toilet they have given me a commode which is going to be quite embarrassing with my botty predicament. On the plus side I do feel better with all the fluids so must have been really dehydrated so make sure you keep your water levels up. They didn’t even have a phone signal in a&e so my Mum sent out a search party to track me down which was a bit embarrassing but at least she cares xx

[Ali49]

Hi all, suew and everyome else starting T tomorrow - remember to ask for loperamide for diaorreah tomorrow - just 8n case you need it amd also ask for nystatin for sore mouth if they dont give you anything else.

SueW,. I felt fi e the day after T and then on day 3 felt tired. My mouth felt off prettymuch straight away amd the pain k8cked in on the night between days 3 and 4. Make sure you have co codamol in or another effective painkillet. Then alternate with ibuprofen and keep on top of the pain for the few days that it lasts.

Cassie being aware of my heartbeat and a fast heartbeat has been a thing throughout this first cycle of T. The oncnurse told me it is the steroids and the treatment. I have also felt a bit breathless.

Good luck everyone having treatment tomorrow x

[Ruth07]

Evening lovely ladies - lots of 🤣😂😂😂😂😂😂😂🤣🤣🤣😂😂😂 on here this evening thank you ♥️♥️♥️💕💕💕💕
I love the gold hot pants pic - made me laugh out load - what attitude 😉😉
I now have a vision of Cassie on a huge horse jumping fences with buddy riding shotgun pinging out loratadine for all our t-birds out surfing 🏄 🏄🏄 on our 🚂 Whilst Shi and Meesh are running through the train spraying everyone gold and feeding us Philadelphia and peanut butter 🥜 Sandwiches 😂🤣😂🤣😂🤣
Good luck all our girls for tomorrow T and FEC - get those meds down you and hope the steroids don't ruin your lovely beauty sleep too much 😴 😴

[SueW]

Only time they would re do that should have said

[SueW]

Gosh so you have to have your bloods and wait for chemo on same day?

I go for bloods 48 hours before and get straighgbin chair only time they would really do is if they come back too low from the previous test

Yet another hospital having different procedures x

[Fairydust 14]

Ahh thanks Sue. I will need a cannula and am not cold capping so will allow up to 2 hrs in the chair. I usually have an hour's wait to get in the chair as well so maybe up to 3 hrs in
total plus travel time plus blood test and travel time in the morning. That's my day done!