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Re: October 2017 Chemo Starters

Foot massage sounds very appealing !!
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Re: October 2017 Chemo Starters

Thanks Shi x I was also speaking to a lady this week (not on the forum) who has just had bc and she said she'd thought hers had been brought on by stress and I remember reading other ladies mentioning it on the forum.

I've now cut my hours at work to help alleviate some stress. Money is quite tight now, but it's worth it!

As well as my counselling, I've been having some free therapies from a local charity that Macmillan sorted out for me, which have been relaxing.The lovely lady comes to my house. I had a foot massage last week and having another one next week Smiley Happy xx

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Re: October 2017 Chemo Starters

Glad you haven't got mets Jill, but sorry you've got a rare bone disorder, it sounds painful.

I think my rads onc, with the agreement of my chemo onc, wanted to wait for the scan because if it was done too soon it could give a false reading with scar tissue. I'm hoping they wouldn't leave me that long if they weren't pretty confident that everything was ok! xx

Shi Community Champion
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Re: October 2017 Chemo Starters

Hi jencat ❤️❤️For Monday darling. I think Stress played a part jencat but none of will ever know what it was that caused it. I don’t do stress now at all and focus on living, 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻, having 😂🤣😂🤣😂😁😁😁😁😁and 🤪🤪🤪🤪🤪🤪times with all our amazing 💪💪💪💪💪beautiful women on here and in day to day life. I’m glad to read your sessions are helping you 👭👭this journey is so personal to each of us we all have our strengths and weaknesses and together we are eternally 💪💪💪💪💪💕💕💕✨✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Can't believe that you have had to wait this long for the scan.I have lots of issues with my bones - initially they thought it was mets but looks like it is rare bone disorder causing me to break bones for fun - lesser of 2 evils ? Waiting on results of tests .
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Re: October 2017 Chemo Starters

Thank you Jill x It's been hanging over me a bit since I finished rads in June and makes it harder to move forward not knowing if I'm actually cancer free.

Hope you're ok x

Community Champion
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Re: October 2017 Chemo Starters

🤞for your results Jencat - hard not to be anxious - I hope you get good news .
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Re: October 2017 Chemo Starters

Hi Shi, I was interested to read on another thread that you felt stress had contributed to your bc as I've always felt that it was a factor for me getting it and I'm TN too xx

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Re: October 2017 Chemo Starters

Hi Chaffinch, thanks for your good wishes. I'm waiting for the results of a CT scan and will get them on Monday when I see my onc. I had it to check the few mm's of cancer that was behind my lump had gone. My onc said she'd be surprised if there was still anything there and I keep thinking surely they wouldn't have left me 6mths after rads finished before the scan if they were worried?! Even so,I'm anxious about the results xx

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Re: October 2017 Chemo Starters

Hi Jencat, fingers crossed for results of MRI and bone scan. Hate the waiting x
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Re: October 2017 Chemo Starters

Hi Angelblue. Sorry that you have to be here but it’s a very supportive place. Not sure how I would have coped without the ladies here.
I had 6 FEC and echo all of the advice above. I used a moisturising mouthwash specifically designed for dry mouth caused by chemo that began with a B but I never could remember the same they sell it in super drug for about £8 not cheap but worth it and I took Manuka 25+ honey made by Tiptree sold in most supermarkets.
Hope your treatment goes well and you avoid most of the side effects done people do. Pin a picture of New Zealand on the fridge to spur you on. My eldest daughter went there 3 years ago and loved it, so beautiful xx
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Re: October 2017 Chemo Starters

Hello ladies! Haven't posted for a while been very busy with work and also makes no the most if Xmas celebrations as I missed out last year.

Buddyfan, really good to hear that your CT results showed no further changes that's good news. I keep losing a few pounds then putting them back on again 🙄

Angelblue, sorry to hear you're having to go through this. My situation was very similar to yours I thought it'd just be op and rads but my oncotype test was at the top of borderline and was told to have chemo. I had fecx6 and cold capped all the way through. I had my hair cut into a short inverted bob type hairstyle beforehand and it's more or less back to what it was before treatment. I lost quite a bit from the top of my head and the back and sides thinned but I did keep quite a lot (enough for me to brazen it out without a wig). I found sickness & dizziness to be the worst SEs with fec. I didn't fast but I did drink 3litres of water day before chemo, day of chemo and day after and then 2litres every day between cycles. I took m&s Manuka honey and didn't have any problems with my mouth but I also used my electric toothbrush on a sensitive setting and my airflosser too. If you want to pm me with any cold capping or fec questions then please feel free to do so. Wishing you 🍀🍀stay 💪💪💪 and remember we're all here for you! If you feel or are sick after your first treatment call your 24hr line as they can change your meds and do something about that!
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Re: October 2017 Chemo Starters

Buddy, so pleased to hear your good scan results xx

Thank you all for your good wishes x  I get my results when I see my onc on the 17th. She said she would be surprised if there was anything still there, but I was told my lump wasn't cancer, so I can't really relax until I get the results xx

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Re: October 2017 Chemo Starters

Hi angelblue, sorry you've got to join us and it must be especially hard when you were thinking you were only having rads.

I didn't fast during chemo and my appetite wasn't affected! (Only when my taste buds were altered and I couldn't taste much) I didn't have any sickness, but I did wear sea sickness bands during chemo and for about three days afterwards, so I don't if that's what helped.

I was on FEC (I had 3 FEC and 3 T) and cold capped, but unfortunately after using it for three sessions, I had lost too much hair on top for me to continue. I don't regret having a try though as I found it easier to lose my hair then than I would have done at the start of chemo.

I had a PICC line and glad I did. It didn't hurt having it fitted and it made having chemo a lot easier. (A bit of a pain in the shower, but you can buy waterproof covers so your line doesn't get wet) It was a bit of a nuisance sometimes having to go back to the hospital weekly to have it flushed, but on the other hand I found it quite reassuring to see the nurses on a regular basis and that I was being monitored.

I hope you manage to celebrate your birthday  as well as having your wig fitting! xx

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Registered: ‎09-08-2017

Re: October 2017 Chemo Starters

Hi Angelblue
Welcome to the October 2017 thread.
I didn't try fasting. Though I did find I didn't want to eat much in the days following chemo. It's important to make sure you're eating and keeping your strength up.
I didn't cold cap and had 3xFEC and 3xT. My hair started to grow back on T as it's the FEC that causes hair loss. It will grow back it just might not start until you have finished all 6 chemos.
X
Shi Community Champion
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Registered: ‎11-10-2017

Re: October 2017 Chemo Starters

Hi angel blue, black nail varnish saved my nails, think buddyfan used an oil in her cuticles and she kept hers too. I had life Mel honey and I know some of the other girls used Manuka. Ask for difflam mouthwash in your goody bag at hospital but if you get thrush mouth ring the unit and get them to prescribe fluconzole don’t get fobbed off with drops. Get anosol and something like senility or movicol too the steroids will block your bum. At all times keep eye on temperature and if you don’t feel right even with no temp or pee burns phone rapid response, you can do this just keep safe darling and 😁😁😁😁and 💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻And go as 🤪🤪🤪🤪as you like 😘😘💕💕✨✨Shi xx
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Registered: ‎09-11-2018

Re: October 2017 Chemo Starters

sorry..I meant Shi not Shri!! xx

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Posts: 56
Registered: ‎09-11-2018

Re: October 2017 Chemo Starters

Hi all

 

Thanks for posting in the December 2018 starters shri and whytefawn, and thanks for inviting us to ask any questions in the Oct 17 thread. 

 

My chemo starts on Tuesday 11th Dec. Only found out last friday after 8 weeks of thinking only rads - so still getting my head around things. I'm having 6 lots of FEC. (Makes me think of Father Ted...I want to tell them all to FEC off!!)  I have a few questions ...any insights/advice really appreciated...

 

Did anyone try fasting before and after chemo day and what was the result on side effects..were they better?

Did anyone have FEC and cold cap and how did it go? 

Also I've read that some women  on FEC-T have found that they lost their hair on the FEC and it started growing again on the T...does this mean FEC is worse for hair loss?? (as i already have thin, fine hair I'm panicking)

Did anyone try Manuka honey for mouth sores?

I'm very phobic of canulas. I'm having one for 1st chemo due to lack of time and I'm considering PICC for 2nd. Did anyone have a PICC fitted and have positive expereinces to share?

 

Aaargh...so scared!! Trying to be positive though. Its my birthday on 10th (now have a wig trying session booked ...whoopee!!). I have decided that on my next birthday I will be in New Zealand and I will raise a glass to the me in December 2018. I'm also going to do as Shri, Wytefawn and others have done and post in a new starters thread to offer support and advice. I can't wait to be that post chemo me!! xx

 

 

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Registered: ‎29-04-2017

Re: October 2017 Chemo Starters

Buddy so pleased about your ct results ive lost 2 stone since Chemo just by reducing portion size and eating healthy it was horrendous before i was diagnosed and was a porker getting whst with the new hair which by the way Buddy has flopped alot now just a wave i was a bit disappointed the last cut took my curls 😨 there one day gone the next girl explained its the weight pulling it down will be keeping everything crossed for your bone scan and good to hear you are well apart from blood tests causing you greif xxx
Shi Community Champion
Community Champion
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Registered: ‎11-10-2017

Re: October 2017 Chemo Starters

Hi buddyfan great news on your ct scan 👍👍 are you able to have some Christmas cake and more bulky stuff to eat? I’ve found weight has gone back on all to easily after having a few puddings. Hang on in there with the clown hair, we’ve only got a few more months of it before it’ll be long enough now 💪💪💪we just have to power through, found a good curl cream in Sainsbury’s, not sticky and tamed the frizz on the curls, might be worth a try 👍👍jencat hope you are ok 💕💕✨✨✨Shi xx