October 2017 Chemo Starters

[SueW]

Meesh have a lovely family day xx
I will text jencat later and let her know you was asking and hope she replies I don’t like to keep texting loads in case she feels I am harassing her x
I just going for a bath then chemo at 11.15 then lunch with mom butvwill pop on forum when I can
Wishing everyone a great day
Meesh what do you take to help you sleep when you pumped up on steroids x

[Meesh73]

Hope all you other ladies are doing ok and have nice things planned.

Karen, howre you? Hope your temp is still under control and you're not suffering too much with your cold. Make sure you rest up today and drink plenty of water.

sue, have you heard from Jencat recently? Is she ok?

My mum and sis are coming today 🤗🤗🤗 I can't wait! Need to have a shower and check rash as I've got loads to do before they get here. OH is hoovering so housework will be finished but I need to go to Tesco for a few things. My friend made me some lovely mulled apple juice, it's really 😋😋😋 so I'm off to get a few ingredients I don't have so I can make it for my mum and sis.

Have a lovely day ladies! 

[Meesh73]

Morning ladies! Sorry to hear some if you didn't sleep well.

Sue, Rach, Jellytot the 🚂 is on its way with ⭐️✨⭐️✨🌈🌟✨⭐️🦄🌈✨🌟⭐️And 🎄🎄🎄🎄🎄it's plenty warm for you. Hope you gave your gold hot pants on and that Sue and Jelly have your surfboards ready for 🏄‍♀️🏄‍♀️🏄‍♀️🏄‍♀️On the roof. Cassie is on her gigantic 🐴 with her 🏹🏹 and I've got guns trained on 👨🏻‍✈️Shi, will be along with her glitter and tai chi as back up if things get out of control. Rach, keep twirling and enjoy vic reeves. Hope the chemo treats you kindly ladies, good luck 🍀🍀🍀🍀we're all thinking of you today 😘😘🤗🤗⭐️✨🌟✨🌟⭐️🌈🌟✨⭐️🌈

[SueW]

Morning Ruth sorry you had a bad night x

no more sleep oh well I going to ask when I go chemo and f I can take anything so hopefully I will sleep tonight

Jelly and rach see you on board x I will let you know when I am back

Love to all xx

[Ruth07]

Runnerbean sorry you are in casa NHS but glad it is making you feel a little better. Hopefully you will be home safe and sound soon. Glad the search party found you ♥️💕💕
Sue those pesky steroids 🙄 Hope you have managed to doze again this morning. I had a bad nights sleep too but not sure why? I think it might be my mind reengaging after being in zombie land for the last week. I have been ignoring everyone so have a huge backlog of messages from friends and family to reply to today. Also continuing to pee like that old drunk 😵 overnight so maybe the last of the toxins are coming out 🤞🤞🤞
Get the 🚂🚂 out of the station Meesh for our lovely ladies and keep safe everyone 🌊🌊🌊 🏄🏄🏄🌪🌪🏹🏹🏹🥊🥊🏇🏇🏇🏇🏇🏹🏹🔫🔫💣💣⚔️⚔️✨✨✨

[SueW]

Runnerbean get well soon lovely

I have joined wide awake club thinknits the 8 steroids today in prep for first t
Been awake since 3.15 lay in bed for an hour trying to go back to sleep but have no give up and come downstairs

Thanks for your info Ali i am so happy to take advice and guidance from those ahead of me and hope in the future the things I have learnt can help someone else in the future xx

[Runnerbean]

Hi ladies, had an eventful day today. Phoned up with out of control diarrhoea and a temperature so was told to go to a&e. When I got here this afternoon they did the usual test and decided my heartbeat was very high. I hadn’t even noticed this. I was put on a drip for an hour to rehydrate then given antibiotics as they say there are signs of an infection although they don’t know where it is. I’m now on another drip for 8 hours but have finally been moved onto a ward so at least I may get a bit of sleep. I have a private room but not allowed to use the toilet they have given me a commode which is going to be quite embarrassing with my botty predicament. On the plus side I do feel better with all the fluids so must have been really dehydrated so make sure you keep your water levels up. They didn’t even have a phone signal in a&e so my Mum sent out a search party to track me down which was a bit embarrassing but at least she cares xx

[Ali49]

Hi all, suew and everyome else starting T tomorrow - remember to ask for loperamide for diaorreah tomorrow - just 8n case you need it amd also ask for nystatin for sore mouth if they dont give you anything else.

SueW,. I felt fi e the day after T and then on day 3 felt tired. My mouth felt off prettymuch straight away amd the pain k8cked in on the night between days 3 and 4. Make sure you have co codamol in or another effective painkillet. Then alternate with ibuprofen and keep on top of the pain for the few days that it lasts.

Cassie being aware of my heartbeat and a fast heartbeat has been a thing throughout this first cycle of T. The oncnurse told me it is the steroids and the treatment. I have also felt a bit breathless.

Good luck everyone having treatment tomorrow x

[Ruth07]

Evening lovely ladies - lots of 🤣😂😂😂😂😂😂😂🤣🤣🤣😂😂😂 on here this evening thank you ♥️♥️♥️💕💕💕💕
I love the gold hot pants pic - made me laugh out load - what attitude 😉😉
I now have a vision of Cassie on a huge horse jumping fences with buddy riding shotgun pinging out loratadine for all our t-birds out surfing 🏄 🏄🏄 on our 🚂 Whilst Shi and Meesh are running through the train spraying everyone gold and feeding us Philadelphia and peanut butter 🥜 Sandwiches 😂🤣😂🤣😂🤣
Good luck all our girls for tomorrow T and FEC - get those meds down you and hope the steroids don't ruin your lovely beauty sleep too much 😴 😴

[SueW]

Only time they would re do that should have said

[SueW]

Gosh so you have to have your bloods and wait for chemo on same day?

I go for bloods 48 hours before and get straighgbin chair only time they would really do is if they come back too low from the previous test

Yet another hospital having different procedures x

[Fairydust 14]

Ahh thanks Sue. I will need a cannula and am not cold capping so will allow up to 2 hrs in the chair. I usually have an hour's wait to get in the chair as well so maybe up to 3 hrs in
total plus travel time plus blood test and travel time in the morning. That's my day done!

[SueW]

Fairy I had appointment for line flush and bloods Wednesday and I asked about length of time for t and was told about 1 and half hours but I have a line so don’t need time allowance for cannula
Have you got a line or need cannula? and if you cold cap adds tome too x

[Fairydust 14]

Hi Cassie. Thanks for your T feedback, but so sorry you're suffering. Can I ask how long it took for your T chemotherapy? I'm curious if I get T tomorrow how long I might expect to be in the chair.

[Meesh73]

🤣😂🤣😂🤣😂Sue, that's sounds like the normal way of things in my house. OH has just made some semolina, did he ask me if I wanted any ....no. I make his breakfast, lunch and dinner everyday yet he never asks me if I want a cup of tea or a snack🤜🏻🤜🏻🐟🐟🐟. Sometimes I'm tempted to just cook myself some dinner and see what happens.

[SueW]

Thanks for link buddy I know what to look for x

[SueW]

Thanks meesh
Dizzy 🤣🤣🤣🤣🤣

Omg I don’t know if my patience vanished with this last round of chemo my hubby just raided the cupboards got 3 viscount biscuits and 2 cherry bake Wells sat there and munched them without even offering me anything. I didn’t want anything but just called him all the selfish b@st@rds under the sun for not even asking especially as I was standing getting his packed lunch ready for work tomorrow think he will be getting a dose of arsenic on his sandwiches x

[Meesh73]

Yes I've bought it off the shelf before. Although when I went to onco unit yesterday they asked me if I had any at home I said no because knew they'd then give me some for free!

[WhyteFawn]

🤣🤣🤣🤣 no it doesn't Each not really. OMG I can see where you get the nickname 😂
Buddyfan I love to watch the puissance but don't think I have the guts to jump a horse over 7ft myself. I do like jumping tho it's my favourite and very much missing riding as much as i use to.

[buddyfan]

Loratadine is off the shelf I think. Just checked, Tesco's anti hayfever/allergy is Loratadine https://www.tesco.com/groceries/en-GB/products/282027376

[Meesh73]

Cassie, 😂🤣😂🤣😂😂I lôve it that your Fitbit phones the police! 

Sue, I'll let you know about the Philly PB combo. Not expecting much but you never know!

Cassie, hope your bath helps ease your pains,

Rach, forgetting your antisickness 😳😳😳😳you're brave! Perhaps you are still dizzy after all!  My team gave me loads of meds after first chemo and just told me to tell them when I run out. 

[DizzyBrummie]

Oh my god WhyteFawn, does it really report you missing?

[SueW]

Thanks rach I will try that
As in dizzy my head is spinning like a whirlpool it never ends 🎶 ?
What a pain havingvto wait for snyisiciness to kick in before your treatment x

[buddyfan]

Way, way back in the day (1970's) I had a ex, v. long in the tooth Puissance jumper. He was 17.2 and had jumped 7foot something in his former life. He was miles too big for me as I was still jumping juniors.

[DizzyBrummie]

Sue, my mom used to add a bit of sugar to fizzy pop to get rid of the fizz. Works a treat then you don’t need to leave it open.

Meesh, Dizzy was my song at Uni, also where I picked up the nickname. I obviously grew out of being Dizzy though 😂

WhyteFawn, I’m FEC all the way, no Tbird for me.

They forgot to give me my Emend today to take before I go and I forgot to ask for it. I’ll have to be there that little bit longer.

[SueW]

Buddy is Loratadine over the counter or prescription? X
Cassie I just got out the bath feel much more relaxed now

Will be using dream cream and sleepeaze tonight in the hope of combatting the steroids xx

[WhyteFawn]

My Fitbit says I need to move more. In the week after chemo it phones the police and reports me missing. Even tho I wear it 24/7 It's amazing how little you can move sometimes.
Sue I actually prefer flat lemonade. Sounds daft but cheap flat lemonade is the best ever. I like flat coke for if I feeling a bit crappy. It seems to give your stomach something to do if you're not eating much.
Just having a nice looooonnnngggg soak in bath for my aches whilst trying not to get my feet too warm. It's not working too well.
Anyone who likes horse sports it's Olympia horse show this week. The puissance is on BBC red button tonight at about 9.15. Can't wait it's my favourite
🐎🦄🐎🦄🐎🦄🐎🦄🐎🦄🐎🦄

[buddyfan]

Sue, I found taste went by next day, worse than my FEC1 so far. I hope you get some more sleep tonight. Remember the Loratadine for bone pain.

Love that photo, even OH did after I explained the whole 🚂, hot pants, 👻🏄🐱🏍🏹

Karana, raid the pubs dry roasted peanuts, they worked well for T and help loosen the 💩

[SueW]

My tongue is not sore or anything but seems hyper sensitive to fizzy x no sparkling wine for me over Xmas though to be fair I haven’t really fancied alcohol. I had to leave the lid off the lemonade I had earlier with honey and lemon so it went flat but it has really helped my annoying cough

Cassie fingers crossed 🤞 the worst of the aches and pains have passed

I got heart rate monitor on my cheap watch thing from amazon (refused to pay Fitbit price lol)
It says my heartbeat ok but keeps telling me I need to move more ... cheeky thing it is some days it’s an effort to get out of bed ... though I do everyday even if it’s to relocate to sofa 🤣🤣🤣🤣🤣
It’s saying I need more sleep ... no 💩 Sherlock
I am averaging about 5 hours during the night with my awake times but most days have a couple of hours afternoon today I haven’t probably because of taking the 2 x 4 steroids in preparation for tomorrow xx

[WhyteFawn]

Hi everyone. So far today (touch wood) the aches and pains have been less. Tho they do like to appear just as I'm getting ready for bed so we'll see what happens later. I seem to have been very aware of my heart beat today for some reason. My Fitbit seems to suggest it's ok even when I think it's a bit fast. Maybe I'm just paranoid.
Good luck you 3 for tomorrow are you all going to be T-birds?
My first T SE's started on Saturday night which was day 3 in the evening with the pains. Then mouth started feeling yucky. Got fluconazole and mouth washes so while it feels yucky it's not painful or stopping me eating or anything.
I've been less inclined to eat sweet stuff whilst on chemo. And in the first week I usually feel overfaced by a meal and prefer to graze throughout the day.

[Mishy18]

Sur i think it will be someone really random like the Vicar!!! My theory is that is why she did the funeral... Guilt trip.. Who knows the chemo brain works in Mysterious ways as i still have it 😣

[SueW]

I will let yoU try it first meesh lol
At least if you don’t like it you can have Philadelphia and marmite x

[Meesh73]

Karen, glad you're feeling better and nice to see OH treating you to a choc orange 🍊 too, he must feel guilty!

Sue, Rach and Jellytot, I've been onto the 🚂 👨🏻‍✈️today and given him a good talking to so everything should be good for you tomorrow 🤞🏻He'll make sure the train is super 🌟⭐️✨⭐️🌟🌈✨⭐️🌟🌈⭐️and cosy warm too. I'll have a couple of 🔫🔫pointed at the 👨🏻‍✈️head, Cassie' going to help me with her 🏹 and Shi will go all tai chi on 👨🏻‍✈️If he misbehaves. Hope Sue and Jellytot that you have surfboards at the ready for 🏄‍♀️🏄‍♀️on the roof🏄‍♀️Rach you can twirl in your gold hot pants Dizzy by Vic reeves.

Ive been scoffing crisps, mince pies, crumpets and bread the last few days. Sue, bought some Philadelphia to try on crumpets with peanut butter to see if it's good or not, but haven't tried it yet.

[SueW]

I still haven’t had revels lol and been fancying them since they were mentioned last

I have had lots of galaxy hot chocolate to drink though 👍x

Yes I prefer even numbers lol but then I know I am odd

My kids think I am mad I can eat spaghetti hoops but not tinned straight cut spaghetti
I also like corn on the cob but not loose sweet corn

🤣🤣🤣

[karana23]

I prob won’t have a clue who’s who Sue...but reckon I will still watch it!!

My diet has been really strange...I’ve not ate much meat just the odd bit of chicken, this round I’m really struggling to fancy anything healthy, malteasers and revels are going down well!! My mum left me some homemade biscuits earlier so reckon I’ll be munching on them soon!! Xxx

[DizzyBrummie]

I feel like 4 is much more of a landmark than cycle 3 was. I’m looking forward to having it over and done with!

[SueW]

Shi thanks
I should be ok for lunch then
I have struggled with meat the last cycle think it’s to do with the smell thing I have going on I cooked steak jacket potato and mushrooms last night but literally just ate the mushrooms
Tonight I did chicken roasties and veg but had the smallest amount of chicken and still left some

I have craved carbs never have I ate so many crumpets or so much bread, before treatment started was on slimming world and I didn’t tend to eat them. This cycle I have even just boiled rice or pasta and ate that on its own
When I was weighed on Wednesday I had lost 4.5 kg but still with in wright parameters for my current chemo mix . The weight loss wasn’t intentional

Roll on tomorrow get chemo 4 done and dusted and see what it brings x

[Meesh73]

Sue, I thought it was just me that fitted my bath around 📺 😂🤣😂I keep thinking I would love a tv in the bathroom. Mnd you I'd never get OH out of the bath then! 

[SueW]

Jelly ... York is on my to visit list my mom said it is a beautiful city but I have not made it there yet so hope to get there before I go back to work if I can get hubby to have a day off 👍

Lol karen will you know who anyone is ?

[Shi]

Hi sue on the t currently because of steroids and antisickness meds botty got backed up, been better days 6&7, went onto fluconzole as mouth started going on day 5. I’ve been lucky on fec and touch wood on t, no loss of appetite, so nausea or sickness. Ive found sticking to what I fancy to eat (steak or lamb) at lunch and then whatever at night, pizza, pie chips beans, spaghetti Bol it’s been ok taste wise. The may girls did advise us to up the carbs on t, as t can give us 🌪botty. Buddyfan has got the t t-shirt so knows all about t on this thread. 😘😘😘💕💕✨✨shi xx

[karana23]

Loved that pic....who needs to be a skinny Wonder Woman Anyway!!

I also had clear nodes but Oncotype came back recommending I had chemo.....coz it’s so great and we love it...NOT!  Rach who needs a brain anyway!!

im starting to feel more normal again now...have put pjs on and OH has gone out to another pub for a couple of hours, maybe he will come back a bit happier...he did buy me a choc orange from the shop so I think he knows I’m angry with him!!

sue....I never watch emerald but think I may even have to watch it tonite!!

✨✨✨✨

[Jelly tot]

I'm not in until 130pm, so we're going xmas shopping in York (with lunch) beforehand while I still can !
Hugs to all x

[SueW]

I really want a bath but want to see who killed Emma in emmerdale think I will rush up in the half hour between episodes lol x

[SueW]

Ha ha ha rach 🧠 x
I am 11.00 tomorrow then going straight from hospital to lunch with my mom x I found if I ate straight away in FEC I could enjoy it before side effect kick in so just hope I can enjoy it tomorrow how quickly did people get reactions after first T xx

[Meesh73]

Rach, 😂🤣😂🤣😂🤣😂loved the brain comment! Just proves you really are as crazy as the rest of us! 😜

[Fairydust 14]

Rest up Shi. Sleep well and keep snuggly warm.

Fairydust x

[Meesh73]

Evening ladies! 

Karen, looks like our journey continues to be similar with antibiotics for us in cycle4! Good job you got yourself checked out, hope you start to feel better soon 😘😘🤗🤗🤗although I've still not taken mine yet. Rash is still the same, I never suffered with spots but this looks like acne 😳

Jellytot, that photo is 😳🤣😂🤣😂🤣😂

Buddy, I'm having chemo because the oncotype test came back at the top end of intermediate and so was advised to have it. I was also told that by having it I would have 90% chance of it not returning not sure what the % was if I didn't have it.

Shi, hope you're doing ok here's a dance for you to get you back on your feet 💃🕺🏻💃👯👯‍♂️👯⭐️🌟🌈🌈⭐️⭐️🦄🕺🏻🕺🏻👯💃🌟🦄🕺🏻👯👯🕺🏻🕺🏻💃🕺🏻👯🕺🏻🕺🏻💃🕺🏻👯👯‍♂️👯🕺🏻👯‍♂️👯‍♂️💃

[Shi]

Good luck everyone with treatments and appointments tomorrow. 😘😘😘hope everyone gets se and colds and rashes sorted very soon too. I’m in bed so wanted to send ✨✨✨💕💕🕺🕺🕺💃🏻💃🏻🕺🕺💕💕✨✨✨✨ready for tomorrow if I fall asleep early as I have been. 😘😘😘love you all very much 💕💕✨✨shi xx

[DizzyBrummie]

I can’t unsee that!!

Can’t remember who asked about chemo if nodes aren’t involved. My nodes were clear but as I was grade 2b they checked my oncotype, it came back as smack bang mid risk so was given the option of chemo. It improves the odds of no return over 10 years from 85% to 90% onc said it wa really up to me and if it were his wife he’d not push for one way or the other. So I actually chose to have chemo, they’re going to check for a brain later 😁

Had my bloods done today but won’t know if I’m good to go until I go in. I’m up at 9.30 tomorrow, what time are the rest of you up?

💖☃️🦄✨

[Shi]

Great photo, I want to tell her she’s an inspiration and she can be our momma hot pants who’s waiting for us at the station 😁😁😁😁💕💕✨✨shi xx