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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Just off out now with my daughter as my son and his friends doing photography degree have an exhibition of their work it’s at a place called The Engine Space which I have never heard of thank goodness for maps in my phone lol x
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Re: October 2017 Chemo Starters

Sorry to hear that you are feeling low Karen x
If it helps my son was in Ireland on a geography field trip with his uni on his 21st earlier this year and I didn’t see him until nearly a month later. It’s hard when you can’t be with them on big occasions. First time this year that I haven’t seen any of my 3 on their birthdays. It bothers us way more than it bothers them 😞. Hope you feel better tomorrow.
I feel okish today but have just slept for 45 minutes on the sofa!
Hope all goes well for you buddyfan you really didn’t need this on top of everything else x
Glad that you aren’t feeling too bad Cassie but rest up and hope that you have a good night x
Shi, you get those feet up too after all that surfing x
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Re: October 2017 Chemo Starters

Shi that made me full on laugh x
Shi Community Champion
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Re: October 2017 Chemo Starters

😘😘😘for Karana and buddyfan, and lots of ❤️❤️❤️❤️and hugs. 💕💕💕✨✨shi xx
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Re: October 2017 Chemo Starters

Afternoon ladies. I didn’t have a very good night, thinking/worrying too much. Can’t stop the subconscious doing its thing. My back isn’t too bad though, considering the fall.🚽🛏 I managed to go to loo naturally last night, this morning and this afternoon, so that’s encouraging that I can go when the bladder isn’t full. Haven’t tried it yet, but putting finger tips in water is supposed to encourage you to go! I went back to bed for a couple hours, midday. I was going to ring bcn to get blood results but I’ll wait until I go in tomorrow for pre chemo blood test. At least there are MacMillan staff handy if it’s bad news.

Chaffinch, due to age I had a hairy chin e chin chin, now it’s gone! Yay. I had one or two rogue hairs for years, then post menopause I get loads. Pluck-able and manageable but annoying.

Jelly, I hope you get that pic sorted. I think all new starters should be offered central line. They seem less trouble and out of the way. I guess it comes down to cost as an anaesthetist is needed for a central line.

Ooh, crumpets, they’re on the list for my FEC.

T, when I was chatting to two other T ladies and the nurses the biggest T SE is the bone pain. Remember get a decent painkiller ready, say co-dydramol. Also, biggest advice I can’t emphasise enough is a recliner. Get a cheap garden one if you haven’t got one and put a quilt on it to wrap yourself in. It takes the weight off your bones. If you do have co-dydramol, take temp first as it has paracetamol in it. I think the reason I didn’t have a problem with T is because I have quite hard hitting painkillers for arm, and recliner. Oh, and you know all that nagging of children when they lean back on their chair at the table? Well now it’s your turn as it’s comfortable for those aching bones.

Good luck tomorrow, I’ll be back on the 🚂 roof for the 🏄🏄🏄 lessons. Get your hotpants on.
🎇✨🎇✨🤞🤞🦄🦄👻👻🐧🐧👻👻🦄🦄🤞🤞✨🎇✨🎇
Thanks for all the FEC advice. I’ve got the 🍡, frozen 🍍and manuka 🍯for my mouth, salted 🥜 for taste.




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Re: October 2017 Chemo Starters

Afternoon ladies....glad ur all doing ok...Sue some people just don’t know how to filter what they say!!

I’m feeling really strange this afternoon, back aches stomach a bit cramps and just feeling sorry for myself, I’m really upset that I haven’t been able to see my son on his birthday, he’s fine about it but it makes me sad 😢 hate how this treatment messes with our lives so much 😢 xxxx
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Re: October 2017 Chemo Starters

Sue, I am surprised you didn’t 🥊her big fat mouth and say ooohhh look instant result with the physio, thanks and bye, what a thoughtless big gob. Glad you ok darling😘😘😘yes Lesley’s lady garden trimmings (wigs) photo was epic too 😂🤣😂🤣😂🤣💕💕✨✨shi xx
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Re: October 2017 Chemo Starters

I only tried it once a couple of months ago when someone bought some teabags from turkey and there was a sage one. It smelt like roast dinner but actually didn't taste that bad. At that point I didn't know it was good for hot flushes or that I'd be needing it. Was thinking if getting some, wonder if H&B do it?

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Re: October 2017 Chemo Starters

No haven't tried sage tea. Does it taste nice?
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Re: October 2017 Chemo Starters

I read that sage tea is good for hot flushes has anyone tried it?

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Re: October 2017 Chemo Starters

I usually become speechless when I get shocked by what people say to me sometimes. Can't think of anything to say apart from sitting with my mouth hanging open like an idiot, either that or I laugh 😂 nstead!

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Re: October 2017 Chemo Starters

I don't like it called poison either. Like you say it's medicine. I'm sure most drugs could be classed as poison and people are happy to take paracetamol. That could be poison if you take too much. It's just a different type of drug or medicine that we need.

Feeling ok so far but going to milk it and have a bath and put my pj's on. Tired as I was up all night peeing.
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Re: October 2017 Chemo Starters

I think I was more shocked as she is a medical professional

Oh well poison or medicine its saving my life life so she can stick her views where the sun don’t shine

Xx
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Re: October 2017 Chemo Starters

Sue, how thoughtless of her! I thought in some people just engage mouth before brain!

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Re: October 2017 Chemo Starters

Shi, I'm glad that it gave everyone a good laugh, although Lesley and her wigs had me laughing for ages after!

 

cassie, sounds like good negotiating with onc. 

 

Sue, I'm going to get him to take me out for one tomorrow or Saturday! 

 

Hope Ruths doing ok. Yes I think just Runnerbean to go tomorrow and then that's it until next week.

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Re: October 2017 Chemo Starters

My physio is really good at what she does but her conversation skills leave a lot to be desired
She told me she had to have a lump removed from her breast but it was benign I said thank goodness and her response was yes I was relieved I didn’t have to have poison pumped through my body my response was I like to think of it as medicine as it’s making me well I then went on to say so many medications in their raw form would be consider as poison and it is the professionals that make it medicine. Fortunately I wasn’t feeling sensitive today or she could have upset me.
Next time I will field off any medical conversation x
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Re: October 2017 Chemo Starters

Welcome home Cassie and shi xx

Meesh next time you put the money on meter and demand that hot chocolate xxx

Or send him out to get one now 🤣🤣🤣 xx
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Re: October 2017 Chemo Starters

Onc kept my reduced dose. He was in two minds about it but then I made a plea to make sure I wasn't in hospital for Christmas. He kept reduced dose at 75%. If I coped ok he could put it up next time.

Hope all is going well Ruth. Keeping the train warm for your journey home. Then we've got Runnerbean tomorrow is the anyone else? Sorry I struggle to keep up with my own appointments sometimes.

Going back to bloods. I asked my onc what my neutrophils were and he said 1.75 and showed me the screen with all my data. No issue with revealing info at all.
Shi Community Champion
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Re: October 2017 Chemo Starters

My cousin who is bc survivor has told me about a couple of websites for bras and swimwear nicola Jane and silima, hope this helps 💕💕✨✨shi xx
Shi Community Champion
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Re: October 2017 Chemo Starters

🤪🤪🤪🤪😂🤣😂🤣😂🤣😂🤣anything you say butter bum queen with mirrors, that is still the funniest moment on the thread, I’m going to get you one of those mini oscars for when we meet next year 😁😁😁by the way the may girls have had a good idea and will set their meet up by the private message route which is a good idea as anyone can see this thread💕💕✨✨shi xx
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Re: October 2017 Chemo Starters

Shi, glad you're also back safe and sound. Sorry should've done a vein dance for this morning but I forgot! He was the 🏄‍♀️🏄‍♀️🏄‍♀️On the roof? Any signs of bandits? Doesn't look like it. Just need Ruth safely back and we're all done fir the day. Rest up now crazy lady and get your fluids in 😘

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Re: October 2017 Chemo Starters

Glad you're back home safe and sound Cassie! Chill out and drink plenty 😘

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Re: October 2017 Chemo Starters

Hi everone Home too, they had a bit of bother fitting canula, the fec has arseholed my veins, luckily they managed it, so no pic this time hurrah. Glad you are back cassie 😘sue hope appointment goes well, Karana, hope you are doing better today lovely, get the fluids in😘😘😘runnerbean, hope you are ok and it’s not a blood clot. Buddyfan, hope you are doing ok today too lovely, we need that surfing lesson the t girls on the roof please 😁😁😁Ruth’s Nikita baby, hope treatment goes well and see you on the roof later lovely. Meesh 😘😘😘thanks for sticking gun up drivers mode when my veins went fec off, they behaved when they heard the nurse say the t was kinder to veins 😂🤣😂🤣love to everyone as always 💕💕💕✨✨✨✨shi xx
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Re: October 2017 Chemo Starters

Hi everyone. Back from docetaxel number 1. At home chilling. Hope everyone's ok.

Cassie x
Sib
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

Jelly I hope you get that picc and dressing sorted soon, fingers crossed no blood clots.

 

Sue hope the physio goes ok. I'd have loved to have stopped in town for a hot chocolate, but OH only put an hour on the parking ☹️Don't think he really wanted me out and about in town. 

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Re: October 2017 Chemo Starters

Not too cold her in Birmingham but we have got snow forecast for tonight
I just got to hospital physio at 1.30 so stopped at wrvs shop walking through and got a lovely hot chicolate felt a bit sick and realised I hadn’t eaten since 8.30 and as little and often works best I got a banana too xx
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Re: October 2017 Chemo Starters

I love the scotch pancakes too, will definitely have to get some of those next time I go shopping. 

 

Went into town with OH with my list of things to get, needless to say we only got those things and came home! Probably for the best though. It's rainy here too glad to be back home on sofa wrapped in a blanket with furry lap warmer fully ensconced! Now watching a crappy Xmas movie!

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Re: October 2017 Chemo Starters

Oh I love little scotch pancakes...will have to get some...xxx
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Re: October 2017 Chemo Starters

Karen I find carbs help more than anything else I have never ate so many crumpets in my life but got bored of them so started eating the little round pancakes lemon and sultana I like them as lemon is one flavour I can aways taste xx

 

Hope you feel better soon x

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Re: October 2017 Chemo Starters

Re steroids Chaffinch I had 2 this morning and then take another 2 about 1ish xx
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Re: October 2017 Chemo Starters

I’m def more blunder woman!! I don’t plan to do much today, really don’t like these first couple of days ☹️

Sent OH to shops and for a haircut, but dog is going mad coz he’s not been for walk yet, it’s miserable here, very rainy

Just had some toast & honey, struggling to fancy anything but know I feel worse if I don’t eat, gonna try drink a lot too xxx
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Re: October 2017 Chemo Starters

Jelly poor you the first nurse at unit doesn’t sound helpful, at least the district nurse admitted she wasn’t confident rather than do it and create a problem x
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Re: October 2017 Chemo Starters

Morning ladies
Buddy, what can I say except send I huge hug, bless you having to self catheterise that's tough! Although you will probably get used to it as tough as you are! X
Ladies up today good luck xx
Ladies up yesterday fingers crossed for a smooth round xx
Picc bled badly Tuesday, rang the district nurse who wouldn't come out as she wasn't confident...rang the chemo unit and spoke to a nurse who advised me to change the dressing myself !!... My poor OH had to do it bless him but we managed and yesterday I spoke to the unit again ( different nurse ) and they asked me to go in for a proper dressing change and more scans for clots etc. I'll be glad when it settles down , if it ever does !
Have a good day girls if possible xxx
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Re: October 2017 Chemo Starters

I forgotten about Blunder Woman, she far more me, or I could Try Susan Calman’s Wonder Woman Samba.🤣
Thanks for the link SueW it brought a much needed smile to my face this morning 😊
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Re: October 2017 Chemo Starters

Morning again ladies, managed another hour and a half sleep. Had some fruit bread and just had a small bowl of porridge. Feeling less nauseous than last time but I’m nervous because I keep waiting for it to hit! The worst time was between 9pm and 2am so far.
Hope you get a good rest today Karen hand have a better night tonight. I’m a bit worried about the third steroid. Had one at 6:30, will have other ones at about midday and no later than 6pm and see how I get on. Will try to stay awake today so I’m tired tonight but I’m wiped out.
Meesh, glad you feel up to doing a bit of shopping but rest up when you get back. You’ve got another busy day on the 🚂 today too.
Good luck to everyone today. X
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Re: October 2017 Chemo Starters

Karen, hope you can get some sleep today. Take it easy and try and get the fluids in I think it really helps. 😘
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Re: October 2017 Chemo Starters

morning ladies I slept til 8.30 wow a big pie in for me

Cassie, shi and Ruth good luck today please let us know your all home safely x

Karen chaffinch and meesh hope you have a good day xx

I got physio today on my chording it really helps

Buddy you are really going through it and I hope you are ok this morning after your fall

Ali so glad to hear you feel better today let’s hope you are through the worst and coming out the other side

I had to laugh at chin hair I have had one random hair growing on my chin for about 10 years so regularly pluck it. I was hoping it would fall out but no it’s still there growing I think I am becoming nanny McPhee ha ha x
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Re: October 2017 Chemo Starters

Morning ladies...didn’t have a great night...went to bed and fell asleep quite quickly but then woke up at 1130 and cldnt sleep so got up and watched Legally Blonde with OH, came to bed after but was wide awake and jiffy, not sure I slept much at all 😱 don’t feel too bad today just tired, flushed and dizzy, the norm!! Not planning to do anything much!  Feel bad as it YS 21st Birthday and I’m not even gonna manage to see him ☹️☹️

 

Chaffinch sounds like you take almost the same meds as me!  I struggled a bit with water last night but will try and overload today!

 

Good luck with those on the 🚂 today, good job we have Meesh organising it 💃💃🦄💃🦄💃🦄💃

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Re: October 2017 Chemo Starters

Morning ladies due into the chemo centre at 1 today so going to be a late one for me!! Gives me a chance to chill out with some yoga before I pop those hot pants on. Reckon I might glitter up like an apache with lots of facial stripes to show that 👨‍✈️ We mean business today!!
Buddy sorry to hear about your fall that sounds painful. ♥️♥️♥️
Ali love sorry to hear that you have been having more pain hope the worst is over ♥️♥️♥️
Glad to hear that the SEs are being tamed by that whip for the time being - hope it continues ♥️♥️💕💕🦄🦄🌈🌈
🚂 Choo choo glad to be leaving the station - just a little cake left for any in need of a short stop next time 😉🍰🍰🕺🕺🚂🚂🏄🏄
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Re: October 2017 Chemo Starters

Hi. Good luck today Shi and Ruth. I'll see you on the roof later. Just been weighed and now waiting to see onc. Normal procedure for each of my visits.

Hope everyone else is ok. Took me a while to get to sleep last night but I don't think it was steroids my feet were hot and kept needing to get up to wee as if drunk so much.

Sending everyone 🦄🦄🦄 hugs
Cassie x
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Re: October 2017 Chemo Starters

Karen, hope you had a good night too, I slept ok until OH woke me at 4am this time to ask if I'd slept well! 🐟🐟🐟👋🏻👋🏻 but dud manage to get back to sleep for another 2.5 hours. I've done my yoga and meditation this morning and planning to go into town for a quick Xmas shop to pick up some last few bits. I'm going early before it gets busy and also whilst I'm still feeling relatively ok. Then I can come back and spend the afternoon on the sofa watching the 100 box set or crappy Xmas films.

 

have a good day ladies, hope the SEs are minimal!

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Re: October 2017 Chemo Starters

Morning ladies! Buddyfan, hope you're ok after your fall, what a nightmare! 

 

Chaffinch glad you got a good night in, hope you got back to sleep and that your new meds regime work for you. Let me know how you go with the jittery feeling as I get that too once I've come off the steroids so wonder if I'd benefit from a tapering approach too.

 

Shi, Cassie, Ruth I hope you're ready with those gold hot pants and Shi, Cassie I hope you gave those surf boards ready fir that roof surfing lesson today! Good luck ladies🍀🍀🍀🍀🍀

 

Ive primed the 👨🏻‍✈️Got my Shawn off shotgun and semi automatic at the ready. The carriages are warm and full of glitter, Xmas decs, and ✨🌟⭐️💫⭐️🌟✨🌟⭐️💫🦄🌈🦄🌈🦄💫💫⭐️⭐️🌟✨🌟⭐️💫🦄🌈🌈🎄🎄🎄🎄🎄🎄 The chemo 🚂 is on its way ladies!!! Do a hot pant twirl as you board! And you t girls watch how you go on the roof with that 🏄‍♀️ 🏄‍♀️🏄‍♀️🏄‍♀️

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Re: October 2017 Chemo Starters

Hi Ali, glad to hear se’s easing On the t, I’ve got my first one today. Chaffinch, take it steady and rest up, try and keep fluids going lovely. Buddyfan, hope you are ok after your fall, don’t let your trust fob you off, is telling you to rick backwards and forwards to empty your bladder really the best they can do? Hope everyone has a good day my amazing ladies 😘😘😘cassie, ruth see you onboard and sue are you up today too? Thanks for getting the 🚂out meesh, I heR the toot as I’m at 9sm😘😘😘love you all 💕💕✨✨shi xx
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Re: October 2017 Chemo Starters

I’ve not had a bad night, had 2 Ondansetron at about 9:30pm and was in bed by 10. Woke up at 1am feeling queasy and didn’t think that I would get back off but I did. Woke up a few more times but not for long until I woke at 5. Had another Ondansetron and some water, me wee was an unhealthy colour because I struggled to drink last night because of nausea. I’ve managed nearly a pint now so hopefully ok. Steroids are 2mg 3 times a day today, twice a day tomorrow then one on Saturday. Not sure why the change. I think previous ones were 4mg 2 each morning maybe I’ll be less jittery with the lower dose and reducing dose over the 3 days. Time will tell!
Going to try going back to sleep for a bit now I’m rattling with tablets. I take Lansoprazole and 2 tablets for my thyroid in the morning too!
Wishing everyone a better day x
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Re: October 2017 Chemo Starters

Oh no buddyfan, let’s hopw today is a kinder day x
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Re: October 2017 Chemo Starters

My day got worse. They said try sitting on the loo back to front to catheterise. I promptly fell off the back onto my back on a tiled floor. I've taken an Ibuprofen to try and ward off inflamation. night night. Hope you all have good nights.
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

Buddyfan sorry to hear that you have had a rubbish day. It is so easy to say dontxworry but that is exactly what we would all do. Stay positive and reassure yourself that whatever it is they can sort it!!

Ladies starting T. I am on day 8 and after feeling despondent with the leg pain at the weekend, last night i had a good sleep and no leg pain. I feel so much better today. Just make sure you have co - codamol in and head the pain off - if it comes. I am also more tired and lack8ng in energy - but then i have had 4 lots of chemo!!

Good sleeps everyone xx
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Re: October 2017 Chemo Starters

Sorry you have had a 💩 day Buddy. Big hugs and try not to worry until you know what your dealing with. Easier said than done as we all know but we are all here to support you. Meesh yes I’m up Friday for my first T 10.00am if you can get the train nice and warm for me. I will have to dust off my hot pants ready for surfing on the roof xx