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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Good news ladies had a message from jencat she is ok and been busy she will pop on when she can but wants you all to know she is ok xx
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Re: October 2017 Chemo Starters

Sleep well Runnerbean! 🐟🐟🐟🐟🐟🚽🚽🚽 to those who take credit for things they haven't done! I do find it tougher going into work rather than working from home!

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Re: October 2017 Chemo Starters

Evening ladies, I have been working the last couple of days so just catching up with everything. A flash mob sounds like a brilliant idea and would raise awareness. Talking about people taking credit for someone else’s work it happened to me yesterday while I was sat there! Someone claimed they had dealt with an issue when that was what I had gone into the office to deal with. Ruth I hope your not in A&e to long, it took them 7 hours to decide I had blood clots when I had problems with PICC line. Fingers crossed it’s fine but if not it can be treated and they normally leave the PICC line in so I still have mine. Hope you all get a good nights sleep, I’m knackered tonight and said I would go in work tomorrow so going to get on early night for once xx
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Re: October 2017 Chemo Starters

Gosh Karen, at least when i work it's a 7-8 hour day and I'm done by early evening, you have such long days I don't know how you do it! πŸ€—πŸ€—

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Re: October 2017 Chemo Starters

I’m finally resting watching life of 5yr old....gotta go do chips & hotdog for poker boys in a bit then will have to go back down to lock up then hopefully will get a better nites sleep!  Stomach not as bad as it was but still not right and it’s making my back ache!  

 

Spurs are are losing so gonna have a grumpy OH when he finally gets home!

 

😘😘😘

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Re: October 2017 Chemo Starters

Can’t stand people who take credit from others. Does my head in. If you can’t do it or don’t know just say.
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Re: October 2017 Chemo Starters

I am ok shi thanks Hun
Hope everyone else is too x
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Re: October 2017 Chemo Starters

Cassie, my genetic testing was because the top guy got involved in my case and although they said it was due to my family history, it felt tenuous compared to what I’d heard the criteria usually were xx Despite a lot of cancer in my family, we only (thankfully) have one occurrence of BC and prostate cancer in my direct line. Mine came back negative after all that x
Shi Community Champion
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Re: October 2017 Chemo Starters

That’s good news no head flushing, just get the 🐟🐟🐟🐟🐟out to slap anyone else then 😁😁😁😁here’s to us all πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»When we meet up. Karana hope you are resting lovely and sue hope your se’s ok lovelyπŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
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Re: October 2017 Chemo Starters

πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚I might just do that! Although the main culprit (my manager) has left now but I'm not too bitter as I now have her job! πŸ€£πŸ˜‚πŸ€£πŸ˜‚

Shi Community Champion
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Re: October 2017 Chemo Starters

Wait till they are piddled at next office do then flush their head down the loo and leg it back to the table before anyone notices πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ’•πŸ’•βœ¨βœ¨Shi xx
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Re: October 2017 Chemo Starters

πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ€£Shi, ive had both co-workers and a manager who passed off my ideas as their own! 

Shi Community Champion
Community Champion

Re: October 2017 Chemo Starters

We did it again,posted same time πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£
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Re: October 2017 Chemo Starters

Thanks ladies! I'll see what onc suggests and will ask for the akynzo if I don't like the sound of the suggestions!

Shi Community Champion
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Re: October 2017 Chemo Starters

😁😁😁it’s not managers that do it meesh, it’s been quarter brained co-workers who try to outshine everyone by nicking ideas and passing them off as their own, you know the type talk the talk but can’t walk the walk. When we all know the best always come from a team effort don’t we πŸ˜πŸ˜πŸ˜πŸ˜πŸ’•πŸ’•βœ¨βœ¨shi xx
Sib
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

Yes I recommend akenzyeo I have to take it 1 hour before chemo and lasts up to 5 days
The smell thing makes me feel sick but no actual
Physical sickness xx
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Re: October 2017 Chemo Starters

Shi, we always post at the same time! πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚I've wanted to flush a few heads down the loo too! I have a lady in my team at the moment who is all too happy to take the credit for other people's ideas really annoys me. I am always very careful to ensure the right people in my team get credited as it's not nice having your manager take all the credit for your work.

 

OH thinks I'm obsessed with looking down the loo at my bodily functions, maybe I am but I like to flag any issues early. No good burying my head in the sand if something's not right!

Shi Community Champion
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Re: October 2017 Chemo Starters

Cassie because of my age and family history for me on the gene test. ❀️❀️Shi xx
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Re: October 2017 Chemo Starters

Buddyfan, I think that would freak me out if I looked down the loo to see that! I'd keep an eye on it and call team if you're unsure.

 

Cassie, glad appointment went ok today. I'm not tn so not having any testing so can't help with that. I'm sure Lovely Shi or Ruth will be along to answer though.

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Re: October 2017 Chemo Starters

Buddy fan glad you looked up you coloured wee, are we all checking the loo for our wee colour and Bristol stool charts samples to make sure we’ve not got infection starting? Meesh you should ask for akynzeo you take 1hr before fec then take home metoclopramide, that’s what I’ve been on while fecking and now probs at all, no nausea, no sickness at all. Ali good look with 1st t tomorrow 😘😘reeboot well done you too for getting on with t so far. Flash mob for us is Ruth’s idea ladies, I don’t take credit for other people ideas, we’ve all had a few of those in our careers I should imagine and personally I have always wanted to flush their sweet butter would melt heads down the loo when I’ve had a stunt like that pulled on me. Sorry but I am sure you have all encountered at least one of those πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: October 2017 Chemo Starters

Oh no Ruth let us know how you get on.

Love the flash mob idea always wanted to do one. Don't think my dancing would be much good but I play the violin maybe incorporate that instead lol.

Went to chat about gene testing today. Nothing I wasn't expecting. I have a blood test form so they can take blood next week when I have chemo bloods done. Saves having a separate needle. Ladies that have had the gene testing did you get referred because you had family history or did you ask for the test?

Cassie x
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Re: October 2017 Chemo Starters

Bit of a scare, my wee is dark brown/red. I knew nitrofurantoin colours urine and sure enough google says it goes dark yellow/brown. That coupled with me taking it incorrectly today, in the morning rather than evening makes me think I'm ok. I usually drink at least 2.5l of water/cordial a day. 🚽🚽🚽😬😬😬
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Re: October 2017 Chemo Starters

Rach, I know, its naughty of them really to take the order if they haven't got the stock. Oh well it's just not meant to be.

 

Im seeing onc tomorrow and going to ask about better sickness meds for chemo day.

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Re: October 2017 Chemo Starters

Meesh, rubbish about the DMs. Mine were supposed to come today but I got a message saying they hadn’t turned up. I’m keeping my fingers crossed.

Ruth, I hopefully you’re doing ok x
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Re: October 2017 Chemo Starters

Ruth let’s is know how you get on when you can we do worry about each other xx
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Re: October 2017 Chemo Starters

Hi all just catching up
They didn’t have any tarts grrr
But I got tiramisu instead lol can’t fave coffee but missing caffeine also got some iced latte which I can
It’s just the smell as the hot water hits coffee 🀒 xx

Meesh sorry to hear about your order M and m direct had some in their sale might be worth a look x
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Re: October 2017 Chemo Starters

I’m private for this stage too (thank you hubby’s work!) so get a bag with my pills/ jab each session and a total that they’re charging the insurance company. For Β£
800+ of their money, I get:
Lonquex (single injection to boost WBCs)
Fluconazole (for 10 days, for mouth soreness)
Dexamethazone (steroids x32 tablets)
Domperidone (though I’ve got a bit of a backlog now)

Sue, good luck for your next few injections xxx I totally chicken out and her hubby to do it each time. He was a wuss the first time but has sussed it out now πŸ™‚

Karen, you sound so busy! Take care of yourself and I hope you get some help from your doc/onc x

Ruth, I hope you aren’t stuck at A&E long and they are able to sort you out xx

My day 2 of T has been uneventful (waiting for SEs to kick in days 3-5 😱) and I’ve managed to sort out my wardrobe! By clearing out my maternity clothes, I now have space to hide Christmas presents πŸ™ˆ

Lots of love to everyone.
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Re: October 2017 Chemo Starters

Oh Rach, had bad news about my dms and satchel! OH has had his money refunded, no explanation at all. Presume they're out of stock! So he's back to square one now for my Xmas present 😟

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Re: October 2017 Chemo Starters

Evening ladies! Just catching up on you all.

 

Shi, flash mob dance was great we should definitely do that!πŸ’ƒπŸ»πŸ•ΊπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ»πŸ’ƒπŸ»πŸ‘―β€β™‚οΈπŸ‘―πŸ‘―β€β™‚οΈπŸ‘―πŸ’ƒπŸ»πŸ•ΊπŸ»πŸ’ƒπŸ»

 

Ruth, hope you're ok. Let us know how you get on. βœ¨πŸ¦„πŸŒŸπŸ¦„πŸŒŸπŸ’«β­οΈπŸŒˆπŸŒŸπŸ¦„πŸ¦„πŸŒŸπŸ¦„πŸ’«β­οΈπŸŒŸβœ¨βœ¨πŸŒŸ

 

Ali, I'll make sure the driver warms the train πŸš‚ up ready for you tomorrow! Good luck with your first t treatment hope it goes ok.

 

Sue, well done on that injection. Did you treat yourself to that tart? Mmmm lemon and raspberry sounds πŸ˜‹

 

Karen, hope you get on ok at docs and you get that tummy sorted.

 

Buddyfan, glad your temp is back to being even on both sides πŸ™‚

 

Work wasnt too bad today, a lady bought me a present hotel chocolate dark chocolate ginger drops. She had bc 20 years ago and she said she knew I liked ginger. Didn't like to say that ginger makes me 🀒 πŸ˜–now! Still OH will polish them off no doubt.

 

 

Shi Community Champion
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Re: October 2017 Chemo Starters

Ruth, sorry just seen poss prob with pic line, hope you are going to be ok lovely😘😘please let us know how you get on. For those of us who are tn and node neg, I’ve been told rads to chest wall after, I don’t know how many yet. Have you been told rads after chemo, I thought you had and someone else who’s tn said about a booster after rads too, I’m not going crazy and imagining things am iπŸ˜³πŸ˜³πŸ˜³πŸ˜³πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: October 2017 Chemo Starters

Ruth that's pants... let us know how you get on. X
Shi Community Champion
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Re: October 2017 Chemo Starters

😁😁😁it’s ruths idea Karana, would be brilliant if all the threads wanted to join in for a mass flash mob to Cindi laupers girls just wanna have fun, I can’t upload a link to the tune as I’m rubbish at uploading, if one of you other brilliant ladies could we can start practicing our dance moves (not Monica and ross’s New Year’s Eve pRty dance tho) πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ€£πŸ€£πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: October 2017 Chemo Starters

Shi that would be fab for all our threads to do something β™₯️
Am sat in the car as OH is picking DD up from after school club as it seems w need to take another family trip to a&e 😳 My PICC line played up when they tried to take bloods this afternoon and so now they want to make sure I don't have a clot!
Ho hum will let you know how it goes but have my overnight bag in the boot just in case 😏
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Re: October 2017 Chemo Starters

That’s a brilliant idea Shi!!

 

These injections sound horrible...I’m glad I don’t have to have them!

 

Im feeling alit better today think the Biscopan (IBS) tablets are helping!  Have stopped the domperidone...they def made me worse...haven’t called onc nurse today as their advice yesterday to take domperidone was rubbish!!  Gonna make appoint at docs tomorrow as need some more Lansoprazole so gonna see what she suggests and maybe ask if I can have cetrozine (is that what it’s called?) OH has now gone off to footy...he was a bit worried about leaving me after last nite but I’ve got staff in at 6 and a friend popping in to check I’m ok before then....at the minute it’s just me and the dog in the pub!!

 

xxxx

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Re: October 2017 Chemo Starters

Cassie That will be great if you get results before surgery so you can just have the one op, think Ruth and I who are waiting out gene results are currently waiting to see if we need further surgery next year when our come back. Ruth, it would be brilliant if not only our thread but lots of other threads were up for a flash mob in Trafalgar Square it would really highlight how wonderful these threads are and how much they help us all πŸ˜˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: October 2017 Chemo Starters

Hi everyone. How are you all doing?
I've been to hospital today for my genetics chat. The lady was really nice but she was telling me stuff I'd already read about and it was hot in the room so kept losing focus. Got a blood test form so can tag it into my chemo bloods next week to save having yet another blood test. Hopefully results will come back end of chemo time which may influence surgery.

Cassie x
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Re: October 2017 Chemo Starters

Shi that was a fab flash mob - we should definitely do a Wonder Woman one in Trafalgar Square when we all meet up 🀣🀣🀣🀣🀣🀣🀣🀣🀣

Shi Community Champion
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Re: October 2017 Chemo Starters

Sue, I’m the same as you when I have to start the roundvofvinjection too, try and think of it as another one out the way, know we still have a few more to do but consider us fortunate we are not on a 4x4 chemo that’s how I try and look at it, grateful for a 3x3 know I sound crazy, but try and take anything like that and turn it into a positive 😁😁😁jabs n all. πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: October 2017 Chemo Starters

Maybe buddy but I will be ok it’s day 1 that always gets me xx
Shi Community Champion
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Re: October 2017 Chemo Starters

Karana, sorry you’ve had a bit of a night again with tummy, have you phoned onc clinic to see if they can give you anything else for that? You should have to suffer se’s. It’s so crazy how all our meds differ isn’t it, you’d think there was a standard that we would all be on and then the variations of they need tweaking, just in case anyone needs a big 😁😁😁tatyana has posted an amazing link to a flash mob on the May thread, will really give you a 😁😁😁so wanted you all to β€˜put on the ritz’ and enjoy it πŸ˜˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
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Re: October 2017 Chemo Starters

Sue, why don't you try hubby, maybe you won't have a meltdown if someone else does it. AND don't look, the anticipation is what gets you.
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Re: October 2017 Chemo Starters

No I have to mix mine not fridge ones
I do ice area first and once I done the 1st one the rest ok x hubby did offer but I would rather be on my own when I have the inevitable meltdown xx
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Re: October 2017 Chemo Starters

Wow so maybe Β£500 difference? I have 7 on both FEC and T
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Re: October 2017 Chemo Starters

Just looked up cost of my gcsf injections. Β£250 for 5 I think.
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Re: October 2017 Chemo Starters

T3 day 9 and I had a really good sleep last night. Considering I’m drinking 2.5l I didn’t even need a loo break. I awoke naturally, about 7:30 and dozed until 8:00 alarm. I’ve taken my uti nitrofurantoin at the wrong time, oops should be at night not morning, chemo brain. Still, I’m on three antibiotics this week, so should be ok. Temp is good as well, 36.9 both ears, first measurement, so maybe I’ve turned the corner. My eyelashes are itching a lot, is that the beginning of their end?

Sue, are you doing the injection yourself? Get someone else to do it, pinch that inch hard and don’t look. Are you a fridge one, if so at least half hour out of fridge to warm up. I do mine latish afternoon, as advised by bcn.

Reboot, ooh, I don’t get a list of prescriptions in my bag. What’s the Β£800 one called? I suppose co-amoxiclav and fluconazole are so bog standard that they’re relatively cheap. Any idea how much our daily gcsf ones are?
Off for a shower now, and first hair wash of cycle, bit skanky to leave hair this long but needs must. πŸšΏπŸšΏπŸšΏπŸšΏπŸ‘§πŸ‘§πŸ‘§πŸ‘§πŸšΏπŸšΏπŸšΏπŸšΏ
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Re: October 2017 Chemo Starters

Thanks Rach that makes sense then β™₯️
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Re: October 2017 Chemo Starters

Ruth, I’m lucky enough to be private. The cost explains why I’m getting one rather than 7 though.
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Re: October 2017 Chemo Starters

Rach do you know what ccg you are with to get 1 on NHS? β™₯️
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Re: October 2017 Chemo Starters

Hi Reboot good luck today β™₯️β™₯️β™₯️Yes apparently the single injection is about Β£300 more than the multiple injections.
Ali maybe you should ask for it if you still get the pains this round? I think the SEs aren't supposed to be as prolonged? XX