Evening ladies, finished my first working from home day for this cycle and was very busy so not just catching up with you all now. Hope everyone has had a good day?
Hi Anna, welcome to the place no-one wants to be! As others have said feel free to ask us any questions you like, we're not experts but someone will have an answer! Chaffinch' s post was spot on and Ruth was right too once you've had chemo if you're worried or not sure about anything call the number they give you and ask them. I phoned them with loads of minor questions but they reassured me which meant I didn't stress myself out worrying! I'd also add Imodium and also a laxative to your list of things to have to hand, it depends what chemo you're having but most of us have experienced one or the other!
Cassie, I think I'd be climbing the walls, hope hubby brings you lots of nice things to keep you occupied, I'm sending you my dance 💃🏻🕺🏻💃🏻💃🏻🕺🏻💃🏻💃🏻🌈💃🏻💃🏻💃🏻✨🌟✨🕺🏻💃🏻💃🏻🕺🏻As you don't seem too have been sent one for a few hours and you must be due a dose to help you get those bloods back to normal!
Karen, hope the wake went ok and you got all your sarnies done. I hate shopping with OH, he does my head in with the packing (think he does it on purpose)!
Hello everyone, I am sorry to intrude, but I found out today that I am joining the chemo club. I won't start until next week, but I think I might just count as an October joiner by virtue of hearing today! The plan is for a 20 week cycle of 8 (every 3 weeks and then every 2 weeks) beginning next Wednesday. I knew it was likely, so it isn't a shock and I am pleased to have a bit of a plan.
After chemo, I will have a mastectomy followed by radiotherapy with good old Tamoxifen thrown in for good measure. Whilst I know it will be a long haul, I feel better for knowing that the bone and CT scans were clear and that I have some clarity.
I know everyone is different, but I would really love to hear your top tips for managing chemotherapy. I have been advised to get a thermometer and hand sanitiser, but other than that, I don't imagine there is much else I need in the house? I know I will be slap bang in the middle of chemotherapy when it is Christmas. Apart from delegating to my (adult) children and husband, is there anything I can do now that might make it a bit easier?
Thank you to everyone who has supported me this far. I have begun to read and explore this part of the forum (I had previously mostly hung around the 'recently diagnosed' section) and am finding my way slowly. I hope you don't mind me joining in over the coming months. It is so uplifting to know there is a community of us going through this strange, unplanned and unwelcome journey. xx
Think we all seem to be having a bit of a down day today!! Everything OH has done I’ve moaned at as he’s done it wrong!! Went shopping on my own coz think I may have killed him!! He won’t let me start sandwiches as saying him and dad can sort it....cld be hilarious!!
Still got got a bit of a sore throat but no temperature, but keeping an eye on it....if it doesn’t clear up will ring the nurses!!
It it doesn’t do any of us any harm to get angry, cry, shout or scream, at the end of the day it’s all a bit lousy and we don’t deserve it!!
Heres some sparkles to get to get us back in positive mode, 🌟🌟✨✨🌟🌟✨✨🌟🌟✨✨
Meesh glad your hair has survived the wash great news. Lost a bit more with the wash today think it'll be full on bald by this time next week. It'll be interesting to see what colours and if we end up curly when it all grows back wont it ladies. Karana, agree buttering duties for oh for him then and also a bit of cleaning you need to avoid germs. Mrs Meow, you have a good water company very very good service. I am a woossy needle phobe no more and have just done my 1st injection on my own, funny how 6 days of being a pin cushion in casa nhs toughens you up isnt it. Dizzy thats a relief for you that your daughter has gone off the sparkles this year for halloween bet her cosume is amazing. For those of us with cats, is it just my cats that have forgotten how to use the cat flap because you are in they see you as their own personal back door opener? or am I just too soft with them. They've had me up and down like a yo-yo today and its only 10.15. I've let them out, they then use the cat flap to come back in and then they want me to let them out the back door again.... I didnt expect at the start of 2017, I'd be playing door games with the cats by end of Oct. Ladies have we agreed a destination yet where we are going to meet up? We need to find a food place for us to book, unless we are all still craving the Maccy D's by then. Speaking of Maccy D's I'm having one tonight, been craving one since Jencat had one the other day and can resist the craving no longer. Has anyone risked a wig off amazon? I've been having a look and see one thats under £20 that I might take a chance on. Im not going posh wig shopping till the chemo's done. Has anyone got a lgfb course this week? Is anyone leaving it till after chemo before they go on it? Cassie, hope you re ok sweety. sending lots of love and sparkles and get better dancing Shi xx
Hi Dizzie, i think that's the thing with curly hair it falls out then gets trapped in with the rest of your hair so when you wash it quite a bit comes out. I always had the same problem, plus I didn't brush it very often either! Sounds really manky I know but as you'll know curly hair doesn't deal well with being brushed! 😊
Chaffinch, perhaps you can persuade the cat to sit on your head to keep it warm 😹 My cat is not happy with me thus morning as she wants to snuggle up on my lap on the sofa and I've got to work so am at the kitchen table! I'm glad my supply wasn't cut off this morning, I couldn't have gone another day without washing my hair!
Speaking of which, hair wash is done, loads of hair came out (probably end up with a blocked toilet and OH will go nuts, but didn't know what to do with it). I think I'm going to get a friar tuck look as the top is looking very thin, but elsewhere it isn't so bad, I'll see how it looks once it's dried, maybe I can do something with a wide headband 🤔, will definitely gave to get wig trimmed though. Glad to have nice clean head though and to be rid of the matting!
Karen, I'd be gleeful too about OH not getting to golf! They do sulk though don't they and sometimes dealing with that us worse than them going in the first place!
Cassie, sending some more 🦄🌟🦄🦄✨✨💃🏻🕺🏻💃🏻💃🏻🕺🏻💫⚡️🕺🏻💃🏻🕺🏻🌈🌈💃🏻
Buddyfan, good luck today with chemo 2 I'll send the chemo 🚂👨🏻✈️
My T2 today
Just waiting for the porridge. Hubby stayed in bed all day, partly to keep away from me. My temp is v.good and uti that put me in nhs and delayed chemo is clear, so all systems go.
Meesh, sorry to hear you're in hosp but best place if you have infection. Do you other ladies have a specific oncology suite of rooms? We have a MacMillan unit which is where they admit you for initial investigations and antibiotic hit, during thw working week. outside hours it's A&E but I have a card to say they must see and give antibiotics within hour. From either of those, fingers crossed it's the oncology ward with individual, en-suite rooms and excellent service and oncology doctors. Otherwise, it's the general wards where they aren't so specialised. eg. they take blood from arm rather than line.
Karama, I've started Corsodyl, fesh mint mouthwash, on advice. Tried the plain and it left a foul taste in my mouth in the night and morning. First few tries it was a real blast and I didn't like it, but used to it now.
Good luck any others on chemo today.