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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Hi Jem x

Good luck for today BuddyFan x
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Re: October 2017 Chemo Starters

So sorry you are in casa NHS Cassie. Here is my little dance to hopefully get you home as soon as possible. 🕺🏼🕺🏼🕺🏼🕺🏼💃🏼💃🏼💃🏼💃🏼 Day 3 of second cycle for me so back to the dreaded injections. First signs of any pain in my hips and back this time and I will be asking for stronger painkillers. Also husband has a cough and cold and not sure how worried I should be about catching it? He’s banished to the spare room for sleeping but still managing to wake me up in the night! xx
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Re: October 2017 Chemo Starters

Just to add I am on daily lansoprazole (similar to omeprazole) - I think you could take it at any point if the acid has built up in your stomach. Because the antiemetics stop some bowel movements it can mean the acid has no where to go - always worth a chat with the gp xxx
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Re: October 2017 Chemo Starters

Hi Jem welcome - our phones can be a little unpredictable on the forum so watch out for the predictive text 😁
A few of us had acid reflux and sore throats in the first few days part of it is a possible side effect from the antiemetic particularly the domperidone if you are taking that. Just keep an eye on it in case you need to switch (quite a few if us switched). I am also on a PPI for the reflux now but I know a few of the girls successfully used some over the counter antacids - might be worth a call to your gp or BCN just to manage things early? We have all found it good to check in with our health care teams early if we think there might be a problem

Also lots of advice about mouthwashes if you want to scroll through our thread. Hope you feel better soon ♥️Ruth
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Re: October 2017 Chemo Starters

Hi Jem16 -normal Rennies are fine but also your team can give you a once a day antacid like omeprazole - may be too late for this cycle but next one they can offer this for a week over the worst days. If it is your actual mouth and throat then you can be prescribed benzydamine mouthwash or others swear by corsodyl that you can get yourself. I managed just with warm salty mouthwashes on the first 2 cycles then had benzydamine this time as had a lot of ulcers xx take care xx
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Re: October 2017 Chemo Starters

Meesh I have decided to go the no wash route to see what happens 😳 Have straight hair though so probably a little less troublesome than yours 😊 Although the conditioner from the cold so will have to be washed out!! I am planning to take my own conditioner in this time as can't really vouch for the chemicals in theirs! Plus it was really perfumed and the smell haunted me for days 🤢🤢
🤞 Your hair stays put after this cycle xx
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Re: October 2017 Chemo Starters

Hi guys, I’m new to this and not quite sure how to comment using my phone! Lol I started first chemotherapy last tues and had really bad nausea for the first few days, which had thankfully seems to have gone for time being but I’ve now got a burning throat; a bit like acid indigestion but not repeating on me if that make sense! Any tips or do you know if I can take normal rennies?
Shi Community Champion
Community Champion

Re: October 2017 Chemo Starters

Meesh glad your hair has survived the wash great news.  Lost a bit more with the wash today think it'll be full on bald by this time next week.  It'll be interesting to see what colours and if we end up curly when it all grows back wont it ladies.  Karana, agree buttering duties for oh for him then and also a bit of cleaning you need to avoid germs.  Mrs Meow, you have a good water company very very good service.  I am a woossy needle phobe no more and have just done my 1st injection on my own, funny how 6 days of being a pin cushion in casa nhs toughens you up isnt it.  Dizzy thats a relief for you that your daughter has gone off the sparkles this year for halloween bet her cosume is amazing.  For those of us with cats, is it just my cats that have forgotten how to use the cat flap because you are in they see you as their own personal back door opener?  or am I just too soft with them.  They've had me up and down like a yo-yo today and its only 10.15.  I've let them out, they then use the cat flap to come back in and then they want me to let them out the back door again.... I didnt expect at the start of 2017, I'd be playing door games with the cats by end of Oct.   Ladies have we agreed a destination yet where we are going to meet up?  We need to find a food place for us to book, unless we are all still craving the Maccy D's by then.  Speaking of Maccy D's I'm having one tonight, been craving one since Jencat had one the other day and can resist the craving no longer.  Has anyone risked a wig off amazon?  I've been having a look and see one thats under £20 that I might take a chance on.  Im not going posh wig shopping till the chemo's done.  Has anyone got a lgfb course this week?  Is anyone leaving it till after chemo before they go on it?  Cassie, hope you re ok sweety.  sending lots of love and sparkles and get better dancing Shi xx

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Re: October 2017 Chemo Starters

Morning ladies morning mrsmeow

Cassie so sorry to hear you have been booked in to casa NHS here is my big jig to help you get better
🕺🕺🕺🕺🕺💃💃👯👯👯👯🕺🕺🕺🕺👯‍♂️👯‍♂️👯‍♂️💃💃💃💃✨✨✨🌈🌈🦄🦄🦄🦄🦄🦄🦄

Hope today is going to be a good day for everyone ♥️♥️
Good luck with chemo two today BuddyFan 🍀🍀🍀🍀🌈🌈✨✨

I plan to try a little walk and then some admin and hope that this week can feel like a little lull in the storm. Also hoping to get my healthy diet back on track as last week was definitely all about the comfort food!! Wig fitting on Saturday which I feel a little wierd about. Am hoping to find something that will help carry me back into a normal working life when this stops and will be presentable at meetings and things without feeling like I am the cancer patient in the room. My eye lashes have definitely started thinning 😕 The one thing I hoped I might keep but no hair movement anywhere else although based on the reports from you lovely ladies I know it is a bit early (day 12).

Is it wierd that the thing I am most excited about this cycle is the time I feel safe enough to just go sit in a nice cafe and have a cup of coffee and read a book or better still a nice mindless magazine. Oh the simple things!!

♥️🌈♥️🌈Ruth xxx
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Re: October 2017 Chemo Starters

I’m still secretly dancing about him not golfing so yes he will be buttering bread! He has staffed it well just the preparation I will need to supervise, and shopping!!

I’ve been using mouthwash the hospital gave me but maybe shld switch to corsodyl ?? Keeping eye on temp and it’s ok at the minute!

Meesh glad you’ve got nice clean hair now 🤞 xxxx
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Re: October 2017 Chemo Starters

Hi Dizzie, i think that's the thing with curly hair it falls out then gets trapped in with the rest of your hair so when you wash it quite a bit comes out. I always had the same problem, plus I didn't brush it very often either! Sounds really manky I know but as you'll know curly hair doesn't deal well with being brushed! 😊

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Re: October 2017 Chemo Starters

Karen, I use the corsodyl mouthwash to (daily mouthwash) too.

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Re: October 2017 Chemo Starters

Chaffinch, perhaps you can persuade the cat to sit on your head to keep it warm 😹 My cat is not happy with me thus morning as she wants to snuggle up on my lap on the sofa and I've got to work so am at the kitchen table! I'm glad my supply wasn't cut off this morning, I couldn't have gone another day without washing my hair! 

 

Speaking of which, hair wash is done, loads of hair came out (probably end up with a blocked toilet and OH will go nuts, but didn't know what to do with it). I think I'm going to get a friar tuck look as the top is looking very thin, but elsewhere it isn't so bad, I'll see how it looks once it's dried, maybe I can do something with a wide headband 🤔, will definitely gave to get wig trimmed though. Glad to have nice clean head though and to be rid of the matting!

 

Karen, I'd be gleeful too about OH not getting to golf! They do sulk though don't they and sometimes dealing with that us worse than them going in the first place!

 

Cassie, sending some more 🦄🌟🦄🦄✨✨💃🏻🕺🏻💃🏻💃🏻🕺🏻💫⚡️🕺🏻💃🏻🕺🏻🌈🌈💃🏻

 

Buddyfan, good luck today with chemo 2 I'll send the chemo 🚂👨🏻‍✈️

 

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Re: October 2017 Chemo Starters

My T2 today

Just waiting for the porridge. Hubby stayed in bed all day, partly to keep away from me. My temp is v.good and uti that put me in nhs and delayed chemo is clear, so all systems go.

 

Meesh, sorry to hear you're in hosp but best place if you have infection. Do you other ladies have a specific oncology suite of rooms? We have a MacMillan unit which is where they admit you for initial investigations and antibiotic hit, during thw working week. outside hours it's A&E but I have a card to say they must see and give antibiotics within hour.  From either of those, fingers crossed it's the oncology ward with individual, en-suite rooms and excellent service and oncology doctors. Otherwise, it's the general wards where they aren't so specialised. eg. they take blood from arm rather than line.

 

Karama, I've started Corsodyl, fesh mint mouthwash, on advice. Tried the plain and it left a foul taste in my mouth in the night and morning. First few tries it was a real blast and I didn't like it, but used to it now.

 

Good luck any others on chemo today.

 

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Re: October 2017 Chemo Starters

Cassie, you’re in the best place for when you’re ill, I hope they get you all fixed up v soon though x

Welcome MrsMeow, the more the merrier and we do try to be merry. Always good to meet a fellow curly head 😊. My hair is currently staying put, although it might be thinning. It’s so hard to tell when I used to lose handfuls every time I washed it. Feeling the draft around my neck now it’s short though.

My little girl decided she didn’t want a “girl’s” costume this year so she’s gone for zombie. Maybe the sparkly phase is over for her 😁

Have a good day everyone ✨✨✨💖💖💖
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Re: October 2017 Chemo Starters

My head is freezing today not sure how men manage with bald heads and buzz cuts all the time. My hubby has been bald since he was 20! I’m sitting on the sofa in a hat with a blanket and a cat, it’s chilly.
Hope you get home today Cassie and that they are looking after you well xx
Looks like your hubby is on bread buttering Karen 😜.
Sounds like you had great customer service from your water company MrsMeow maybe I’ll give mine a call too. I suspect that I won’t get through their website has crashed this is a big problem I think. Many grumpy Monday people unwashed and caffeine deprived!
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Re: October 2017 Chemo Starters

Keep an eye on your temperature Karen and take it easy today xx
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Re: October 2017 Chemo Starters

Thank you for the welcome ladies - hope you all have a good day
Chaffinch - hope your water is sorted - I had a lovely experience with Scottish water when they sent a note of a planned change to our water supply last Monday - I rang the customer care line to make sure that the water would still be safe for me and they were so kind - they arranged for bottled water to be dropped off in advance and also put me on a register so that if anything else affects our supply (or access as I was worried they would dig our drive up) that they will keep me in mind - they even wished me well with my health - it's lovely when strangers especially in big companies go that extra mile I was quiet touched. Maybe you could contact your supplier!
Take care all - and keep cosy is a chilly one today especially in the head area missing my curls to keep me warm! X
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Re: October 2017 Chemo Starters

✨✨🌟🦄🦄🌟✨✨💃💃💃💃💃✨✨🌟🦄🦄🌟✨✨💃💃💃💃💃 let’s see if that helps Cassie xxx
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Re: October 2017 Chemo Starters

I’m secretly laughing to myself as hubby not been picked up for golf, he’s now sulking, I’m now cheering!! He does know about buffet as he booked it....he has this ability to not panic about these things, probably because I’m the one that takes control!!

Will try mouthwash Meesh, thanks for that tip! Hope you get on ok with hair Wash, keep us posted xxx