October 2017 Chemo Starters

[Mishy18]

My temp has been 36 sometimes even 35.6 at its lowest wrapped up for bed Friday night and when I got out of bed it was 37.9! Rang hospital for advice they asked me to go up in case I was neutropenic turns out all bloods totally fine great in fact and temp had went back down almost straight away and remained like that all day they sent me home after an hour or two I took it again, as soon as I got up this morning 38! Tried 2 mins later and it's acknowledged to normal 36.7 must have been too hot in bed but then again had sleep hat on double blankets! It's a hard one with Tempsford had I not been to the hospital yesterday I would have definitely panic this morning but I think I should make sure I have been up 5 mins before taking it!
If unsure speak to nurses on helpline that's what I normally do x

[SueW]

My temp always around that too but I took my temp for a week before chemo do I knew what my general running temperature was so to speak and it has remained the same xx

[Shi]

Thanks Karana and well done sue and your daughter for more fund raising thats great news.  Id like to do that walk through London at night that gets done, maybe not next year but would love to be able to do it in 2019.  Its something to aim for. Love and sparkles shi xx

[karana23]

My temp been around 36.5 - 36.8 most of the last week...I don’t really know what a low temp means does anyone else?  Hopefully Shi your last round was just a blip and your train will run smoother this time round...I’m sure they will keep a good eye on you as the onc won’t want you to go thru this each cycles!  I’m sure our dancing and sparkles will help 💃💃🌟🌟💃💃🌟🌟 xxx

[SueW]

Not only am I impatient but also like to be in control and this is beyond my control to a point x but thank you meesh for your reassurance I guess because I found first op relatively easy I though the 2nd would be too
Hey ho onwards and upwards x
Well done on fund raising ladies my daughter did a pink evening last night for me with a few of our friends and we paid that to breast cancer care last night so easy to do on line 👍x
Thank you all for your lovely comments on my photo xx

[Shi]

Thanks meesh, my temp has been anything from between 36.0 - 37.1 this round.  Mostly holiding around 36.6 - 36.8 is that not good then?  I only had snb and movement was back to full range by 6 weeks after after doing the exerises.  Mmmm I'll see what my onc has to say on Wed, I would like to get through the chemo a bit better this next round thats for sure.  Love and sparkles to everyone and thanks again all of you for getting me through.  Love you shi xx

[Meesh73]

Hi Karana/ Chaffinch, looks like you're in the same carriage (the one behind me)! Took temperature this morning and it's the lowest it's been 36.4 (so still within range but normally 36.7-36.9, although did go down to 36.5-36.6 for a few days last week) 😕Hoping this doesn't impact bloods tomorrow. Sounds like we all did pretty well last time round lets ask for the same again please! Chaffinch hope your hair holds up til you get home.

Karana, looks like you had an amazing night and everyone was very supportive.

SueW, that head scarf looks brilliant and really suits you! My op was 7 August and I also had full range of movement pretty quickly afterwards but tight armpit/ cording feeling lasted quite a while after. Keep doing the exercises (I must admit I've stopped doing them now😮 but I am doing yoga everyday so figured that would be just as good! Sounds like you might just be a little bit impatient like me, perhaps you should join me in the drivers carriage of our train!

Shi, hope round 2 goes better for you, when are you do start it (all being well with those pesky neutrophils)?

[Shi]

Karana great photo thanks for sharing.  Sue youve done an amazing job on the head scarfe looks great.  Chaffinch hope your hair has held up over night.  I hope round 2 isnt the same as round 1 on the chemo, I've had a really rough ride with this first one and not looking forward to another 5 rounds of this at all.  Let hope the Life Mel Honey works and my neutraphils dont go on holiday tomorrow.  I see onc on Wed and have a lot of questions for him, like can he lower the dose. Anyway onward we go ladies like meesh said we will be a third of the way through after this next one and we'll get each other through safely and with love, laughter, tears, hugs, funny stories, support and whatever else anyone needs.  Love you all and hope se's ease for everyone soon.  Love and sparkles shi xx

[SueW]

Morning ladies x
Karen I just searched tie a headscarf on you tube and there are loads of different ways of doing them x
Some seem more complicated that was so simple x

[karana23]

Sue that headscarf looks fab...what did you look for on you tube to find that?  I’m not liking wearing wigs much at all and struggling to find any hat I’m comfortable wearing in doors...have got to work behind the bar for a few hours today and it’s gonna be busy as local derby on tv (Norwich v Ipswich) so a woolly hat maybe a bit too much!!

Ali...thanks for the advice..I did write down how I felt for first few days so hopefully it will follow a pattern, by the sat last time I felt reasonably ok, fingers crossed 🤞 like you say it must be a little easier as we can be prepared for things like sore mouth, my onc gave me some mouthwash on fri and said I shld have been given it before I started and has given me a prescription for indigestion! 

Xx

[Ali49]

Sue that looks brilliant and you really suit it!

Meesh and Karana. Did you write down how you felt and were last time? My BCN told me to keep a record and now on day 4 of round 2 i am practically the samexas round 1. However i am better prepared. My sore mouth is coming but this time i have the mouthwash and gel from my GP so hopefully i will head it off or it wont be as bad.

I have finished my steroids today and that went quicker this time and i am taking Clarityn to reduce aches from injections.

I am not enjoying it but i know i can do it becaise i've done it before.

You will be great because you have done it before xx

[SueW]

i had a unicorn headscarf bought for me today and using the power of you tube managed to do a knot free head dress with it 

sorry if you are fed up if seeing pics of me but I am really embracing my shaved head (no hair loss yet but only on day 8)

[SueW]

Meesh my surgery was 8th September for axillary clearence and yes got chording 

its not over tight but is uncomfortable  as I have done my exercises but they have said to raise my arm in the air and massage the chorded area just using E45 cream. They will also refer me for phsyio but might not be able to start it until chemo finishes depending what onco says. Apparently it is quite common 

I do have full range of movement in my arm it just feels like a really tight elastic band under my arm and when you feel it from the outside feels like  rope under the skin hence the name chording x 

[Chaffinch17]

My hubby gets annoyed every time I pull some out, I think it freaks him out a bit, but I find it quite amusing especially because it annoys him 😜

[karana23]

Although my hair was doing that too Chaffinch i didn’t have any on my pillow just when I brushed it or touched it...I then kept pulling it out coz I was amazed how easily it came out 😱

Hope you have an ok day tomorrow x night x

[karana23]

This is a picture from last night...all the men had a cancer bow face painted on their cheeks, one of our customers donated a £1 for every man that had one....managed to get 39 of them to join in 😊 

[Chaffinch17]

My hair comes out if I run my fingers through it at the moment. Staying in a hotel tonight, so what’s the betting that it will be on my pillow by morning?
My dad suffered terribly with hiccups when he had chemo earlier this year.
Hope that all you round two people have a better day tomorrow. Last time I felt better by about day 5. Not looking forward to starting at square one again on Wednesday myself.
Off to see my parents in the morning then heading home ready for a busy week.
Night all xx

[karana23]

Yes that’s exactly why I’m worried 😟 but I will jump in the carriage behind you and hopefully we will have another smooth ride 😘

[Meesh73]

Hi Karana, mine is Tuesday (so you can climb in the carriage behind me) and I'm also starting to worry now! I'm worried that I'll suffer more this time, as I was fairly good last time. At least we'll be a third of the way through though 😊

[karana23]

When I shake my short wig and put it on I look like rod Stewart! Everyone that’s watched the video of me having my head shaved (yes I did put it on Facebook) said I look fine with no wig but I’m not sure and it’s chilly !

Im liking having the meet up and doing the Wonder Woman twirl! 💃💃🌟🌟 it’s difficult for us ladies to have stuff to look forward to xx

Is anyone panicking about chemo 2 yet....mines on Wed and I’m worrying a bit,in fact I think I’m worse than I was for first one...is that coz I’ve got an emotional chemo brain now 😱

xx