Member
Posts: 310
Registered: ‎23-07-2017

Re: October 2017 Chemo Starters

 

Evening Ladies

 

Not sure whether I should be posting here or in September starters but I know quite a few of you on here so I thought I'd just post a quick update on my 2nd chemo sesh. Couldn't post yesterday as I went out for dinner after my treatment (yeah, getting a bit cocky now!! 🤗)

 

As with last time the actual treatment day was somewhat eventful. I had a trainee chemo nurse putting my cannula in, unfortunately she made a bit of a bodge of her first attempt and I nearly passed out!! And cos she'd hurt the first vein she then had to inject the epirubicin (the scary, potentially flesh burning red drug) manually with a big plastic syringe which was pretty uncomfortable too. Not convinced she totally knew what she was doing. When I almost fainted she tried to take my blood pressure on my leg but that didn't seem to work either. I suspect she's actually a trainee at Argos but somehow ended up at Clatterbridge...

 

The magnificent news for all of you in the Cold Cap Club is that this time the cap was a much less harrowing ordeal. I think my electric throw really helped and I'd upped my painkillers from paracetamol to cocodamol.

Unbelievable really that it wasn't as bad because due to all the faffing about with my newby nurse I must've had it on for 4 and three quarter hours!!! 🙄 I better not lose one single strand this cycle!!!

 

Today, very little to report. Feel totally normal - not even my rosy cheeks this time. The only low point was having to attend a meeting with a new client and explain that I don't usually pitch up at meetings looking like I'm sleeping in the woods. I'm just glad that during my last oncologist appointment she announced that my lump had shrunk by half a centimetre or I'd honestly question whether the chemo was working!! 

 

Anyway, glad to see you're all perky as usual. Really sorry to hear about your picc line Runnerbean. I decided against one of those and despite my nurse apparently digging for potatoes in my veins yesterday, I'm still going to persevere with the cannulas now.

 

Cherry Bakewell xx

Member
Posts: 22
Registered: ‎04-10-2017

Re: October 2017 Chemo Starters

Hi Reboot
I've had an itchy scalp all day today too. I realised today I don't want to loose my hair either and feel like you but I think I'm going to get a nice hat and not worry to much about a wig maybe? We will see! Hugs for you for Monday xx
Member
Posts: 218
Registered: ‎09-08-2017

Re: October 2017 Chemo Starters

Reboot of course you can join. Everyone is welcome. Don't worry we'll all hold hands. The chemocoaster is like life. Every now and again you just have to throw your hands in the air and scream lol.

Cassie x
Member
Posts: 28
Registered: ‎26-09-2017

Re: October 2017 Chemo Starters

Claire and Cassie, can I join your carriage please? My 2nd cycle is on Monday. Though I’ve always hated rollercoasters!!

Lots of love to everyone starting tomorrow xx

Sue, your FB announcement is beautifully worded, I wish I didn’t have to keep messaging everyone but at the same time I’m not ready for that yet.

My hair’s kind of aching today, I’m not sure I’m ready to start wearing the scarves yet. I really wasn’t worried about it in the build up to all this, but now it seems to be affecting me more than I thought.

Lots of love ladies xx
Member
Posts: 22
Registered: ‎04-10-2017

Re: October 2017 Chemo Starters

Thanks for sharing your fb post Sue! It was really nicely written and covered everything! How do you dm people in the forum here? X
Community Champion
Posts: 5,487
Registered: ‎29-05-2015

Re: October 2017 Chemo Starters

Good luck tomorrow Sue !!!!
Member
Posts: 1,350
Registered: ‎11-06-2017

Re: October 2017 Chemo Starters

Thanks Debbie x
Member
Posts: 219
Registered: ‎07-05-2017

Re: October 2017 Chemo Starters

Very best wishes tomorrow sue w on the start of your new journey,  and also to other ladies xx

Highlighted
Member
Posts: 1,350
Registered: ‎11-06-2017

Re: October 2017 Chemo Starters

Chaffinch .... re ck I private messsged her and had reply yesterdsy she has been working and said she is on most right after chemo when she has to rest but has less time in her working days x
Member
Posts: 7
Registered: ‎28-08-2017

Re: October 2017 Chemo Starters

Thanks for the best wishes for tomorrow, my chemo is at 11.30am. It is reassuring we all together on this 'chemocoaster' now the time is nearing I am terrified but your support means everything.

 

I will be drinking gallons of tap water tomorrow & over the weekend! 

 

I also had a problem with my picc line overnight like Runnerbean, hope you are ok now by the way.

 

After having it put in yesterday I had a 4 hour wait in my local a&e, my arm & fingers swelled I couldnt remove my wedding rings from my finger, after an examination I was sent home, the swelling has reduced today & seen a district nurse today & had numerous calls from the oncolgy nurses, I will be exmained tomorrow before the chemo too. 

 

Love to all xxx

Member
Posts: 227
Registered: ‎27-09-2017

Re: October 2017 Chemo Starters

Cassie, I have only been shaving one armpit since my surgery as the guff I read said I shouldn't shave it anymore due to risk of infection in case you get a cut. Not that I've ever cut my armpits shaving but you know there's always a first time and it was bound to happen! Then I stopped shaving my legs and the other armpit because was told shouldn't when on chemo for same reason. I haven't bothered with my eyebrows for ages either as I figured they'd probably fall out.  So I look a right hairy state at the moment! I also popped on one of the monthly threads the other day and someone was talking about tamoxifen giving you facial hair, so I'm guessing I could end up looking like a bald hairy monkey with a beard too if my facial hair grows quicker than that on my head!

Member
Posts: 227
Registered: ‎27-09-2017

Re: October 2017 Chemo Starters

Hi Runnerbean, sorry to hear you've had a rough time of it. I agree it is important to get things checked out if you're worried or not sure. That's what they get paid for, that's what my bcn nurse said they get paid to take care of our worries. My OH got a bit annoyed with me because I've phoned the oncology nurse about 4 times in the last week all about minor things but you just never know and I'd rather get things sorted quickly than let them escalate. Since I told him that some of you have ended up in hospital he has been a bit more understanding and asked me to phone them today to see if I could catch the flu from him when he has his flu jab Monday!

 

chaffinch, have you tried the September forum re: CK? When was her 2nd chemo?

Member
Posts: 314
Registered: ‎12-08-2017

Re: October 2017 Chemo Starters

Anyone heard from CK since her latest chemo btw?
Not like her to be quiet, I’m a bit worried
Member
Posts: 314
Registered: ‎12-08-2017

Re: October 2017 Chemo Starters

Sorry to hear that Runnerbean, it’s a lesson to us all to get ourselves checked out if unsure about anything.
I told my Facebook peeps because I had found out by self examination following a documentary where a lady had been nagged by her friend to check herself. I decided to be the nagging friend and put the word out there and I made the post public too so that it could be shared too.
The bald hairy monkey comment made me chuckle.
SueW I’ve been thinking pink food too to up the donation level. Thought maybe bacon sarnies in the morning. Bacon is pink and we buy kilo packs of cooking bacon from Lidl which is usually really tasty bacon you just have to avoid the packets with big chunks instead of slices. We then cook it on trays in the oven and keep it in the fridge ready to microwave for breakfast. We thought that we could just take a load of bread rolls and the cooked bacon and people can help themselves, after donating obviously!
Might make some pink cakes for lunchtime too
Member
Posts: 44
Registered: ‎19-08-2017

Re: October 2017 Chemo Starters

Afternoon ladies, hope you are all doing OK and good luck to all those starting tomorrow. I’ve had a bad night last night, after being woken multiple times with pain in my arm which was getting worse as the night went on I phoned the helpline number early this morning. The sent me straight to the local A&E department, the best part of 7 hours later I now know that I have multiple DVT,s in my PICC line arm. The line is staying in but I now have to inject warfarin everyday for the next 3 months. If you are unsure of anything I would say give the nurses a call as you never know when it is something which needs looking at urgently xx
Member
Posts: 218
Registered: ‎09-08-2017

Re: October 2017 Chemo Starters

Meesh that made me laugh. I stopped shaving to see when it started to fall out but began to look like a reject from Gorillas In the Mist so I relented and shaved.
Member
Posts: 1,350
Registered: ‎11-06-2017

Re: October 2017 Chemo Starters

Thanks meesh it took a lot of composing but I felt so much better once it was out there as I was getting up to 40 texts or emails a day and just could not keep up with everyone emotionally and it took an awful amount of time too x
Member
Posts: 227
Registered: ‎27-09-2017

Re: October 2017 Chemo Starters

SueW, wow that was really brave and also a really good post too!

Member
Posts: 1,350
Registered: ‎11-06-2017

Re: October 2017 Chemo Starters

Meesh that made me laugh xx
Member
Posts: 1,350
Registered: ‎11-06-2017

Re: October 2017 Chemo Starters

Just to add I am happy to add any of you to my fb it is set to private so you won’t be able to add me but that is because of my job in a School x just message me
I would also be very discreet and never put anything csncer related on your walls as I know some people are still keeping their journey private xx